Dealing with Long covid after getting it in August this year. To say it is hell ...i can only do short walks for up to half an hour, having high protein powders with banana and milk smoothies, I take vitamins daily and eat healthy. Only those who have experienced it can know what it is like. I had a mild case, no need for oxygen or organs shutting down but the fatigue is depressing, cry really easy, to say its a struggle is an understatement.
Same here. I cry like 3-4 times a day and i cant do anything! A year ago i was full of life and energy. The other day, i had to crawl to the toilet. Which made me cry too
@@puremaledark8305 I've been doing so much research and contacting people for help. I'm currently taking ... Cod Liver Oil twice daily Liquid Iron and b vitamin complex liquid twice daily Immune Support capsules QI Ribose / D Ribose powder Loratadine tablet All bought on Amazon My moods as I've improved have gone from tearful to angry ...I've asked my pharmacist for help he recommended Rescue Remedy which is helping.
After 4 gruelling months and pushing myself to the limit I've been able to return to the fast paced job I love. I've found QI Ribose has worked wonders.
Energy budget like many with brain injury. 🙌🏼 Rest , meditation, reduce stimulus input (earplugs, hat with brim , shades, eyes closed, sensory deprivation so body can reset). Deep breathing. Listen, feel what body is telling you and full rest in between activities. Energy work ✨ respect the body Self compassion ❤️
Sept 22 had a bypass and a lung transplant. Age 71. In good as shape it could be going as i worked a very physical job for over 50+ years so musicals were toned and was pretty strong for 71. Went in to the OR weighing around 210lbs. Was a 9 or so hour operation. Then to ICU spending 2 weeks in a coma on a ventilator because the lung was traumatized. Finally after 14 days they able to wake me and pull the tube. Another 2 weeks on the transplant floor and went home. Back in the hospital with pneumonia a week later back home 2 days after thanksgiving. Everything was going a long normally. End of February I came down with Covid. Chills, 104.6 fever,slamming headache, trouble breathing, and a real bad cough. With called the lung center then off to down town we went. I was out of it don't even remember the hour drive. Covid totally rocked my world. Since March iv had no taste, smell and brain fog. Now im a very active person have been my whole life, Hot Rod Cars, grandkids house etc. recovery from everything was going good . Was getting stronger and able to walk a good distance. Went to SC to my daughters and noticed something was off. Came home and I had no energy, got winded quickly, and every day i was finding it harder to get motivated to do anything. Sleep and watch TV and eat that was about it. Headaches, gut problems. Iv lost interest in just about everything. Oh my personality has changed drastically. I get aggravated so easy now it just sucks. Have to be careful about what I take because it can't interact with the anti-rejection meds. So its been 9 months since losing taste,smell and having fog. 5months of couldn't care any less about anything.
A person with long COVID may have difficulty returning to work. They need strategies to help them recover. There are no cures. This is one option that people find helpful, and may allow them to recover and return to work sooner. I appreciate you commenting. Please keep it constructive next time.
I feel you. Bills don't seem to care about how exhausted and unable to work more as expected to keep up. Being self employed there is no one to talk to about cutting back or changing duties either. It is simply a requirement to keep doing enough to eat and stay warm even if we're tired 😩
@@DivineLightPaladin I agree. It's hard to do this because work needs to get done. And I feel.like the people i work with this im just using long covid as a excuse I can tell they don't understand. I'm not saying this is a bad video at all. Just cant take breaks when everyone else is working
I had all these symptoms before covid. It's all typical for people suffering with autoimmune disorders. Now those who thought we were lying know what we've been talking about.
Long Haul COVID is very similar to Chronic fatigue syndrome and has histamine involved liked MCAS. Both of which are related to mitochondria function and glutathione production. There are a ton of things you can do (and NOT do) to improve these conditions. Diet (and not just "eating healthy") and QUALITY sleep are at the top. Do not drink any forms of sugar, do not eat inflammatory foods like vegetable oils, and avoid flours. Turn off your electronics and wind down at night before going to bed early. Exercise within your limits, even if its just brisk walking a couple times a day. Lastly, take supplements that improve these areas like NAC, glycine, , methylfolate (b-9) and methyl b-12, Omega 3s, certain probiotics, etc. Do this consistently for a couple of months and you will see improvements.
Thanks! We also posted a sleep hygiene video that discusses some of the things you suggested. this one is focused on pacing techniques - we try to focus on one topic at a time. Thanks for your comment.
agree. You have to lower your histamine levels. Carnvore/ keto is good but needs to be adapted. Not more age meats like bacon, sausage. Do not keep meats in fridge for more than 2 days, if third day, needs to be chucked away. When buy meats, put in freezer straight away. Give it 6 months to a year before eating small amounts of bacon and sausages again. Something is the stomach lining is damaged, so your body can't get rid of histamine, once healed, you should be able to eat histamine food again. A small amount of vegetables has high histamine and some fruits have it too. Eggs is fine.
@@fearless6947 Great advice. Speaking of histamine, a recent study came out that 50mg of antihistamine does help with long covid. Lower dosage doesn't do much. I'm doing Benadryl as part of my long covid protocol for 3 months.
@@jglee6721 I brought a small book called: The AntiHistamine Diet by Anna Keating. It's on amazon with over 200 reviews. It's about £3 which is around $4 something. It has all the foods you can eat and which one not to eat. I brought it because it was cheap and quick to read. Obviously you be able to find the info on youtube or internet but it was worth it to me. Some people complained it was too small but I like it. It takes about 1 hour to read by you need to take notes. I use it as reference when I buy food and my coughing has stopped. It will take time though. I didn't take the supplements they recommended or phama drug, I didn't need it. My coughing was bad as well, within 3 days my coughing stopped
keep a journal of what you do and when, brain fog means frustration from misremembering. A minor illness or a fall can use a whole day's allotment, looking into journal can help you see it is not hopeless. Save energy every way possible, sit on a stool in the shower, use a cane ... making it through a really low energy day is still a big deal even if you "just" took a shower and changed clothes. This is life since neuromuscular disease came 5 yrs ago... have given up pushing through as it costs too much, accept showering every 4 days if things are bad.
Was going to the gym 12 times a week. I go on 1,000+ mile hikes. Got covid 3 weeks ago, and now I can barely have a conversation with someone without being exhausted. I hope this ends soon. Good luck everyone.
Very good video ! It explains what is the "Pacing". It is for every people who has got "Long Covid". It is for every people who has got "ME/CFS" (Myalgic Encephalomyelite / Chronic Fatigue Syndrome ) . I learned that . I 'm from France. Very good video ! Thank you !
I’ve been a viral long-hauler for over 13 years and NEVER been able to increase from that baseline. Several others that I know are the same. If you are never able to increase your available energy and can only ever take care of the basics, I see you.
Thanks for the video and the tips for recovery. Exercise or doing tasks wise - I have learned the hard way that we have to go slow and only do under our limit (not over) and no pushing ourselves.
Took B12 energy shot , sipped a little at a time over an hour or so period and worked wonders. Been in covid fatigue for 2 weeks and desperately want to overcome its affect , this really helped
So I've gotten this twice, each time I get COVID and get "better" I feel run down for 2 months. My kids don't understand why I can't play with them or pick them up as much as usual. I am just starting to feel my strength return now.
I had it once last year I was sick for 25 days I had covid and double covid pneumonia. My hair is still coming out and I been healed for a year it started coming out in may it gave me a heart condition but I got healed of that in July. I get out of breath after 5 or 6 minutes of walking but I usually walk for 30 minutes, running I’m out of breath in like 1 minute and I get out of breath after walking up the stairs
@@boneslab with covid and double covid pneumonia I had to walk every hour for 5 minutes just to keep my lungs not closing up on me sometimes I felt like they were closing up. The doctor told me to do that
Here in India there is no medical term called "long covid".When I explain my symptoms to my doctor,he told that you are pretending to be unwell to avoid going to office 😢
Here I think they do the same thing, I even believe I was talking to the cops once (pretending to be doctors). Another time I was in the hospital and they kept accusing me of pretending to be unwell to avoid going to office - but I was officially unemployed.
Thank you very much for info. I have RR MS, after having 3 flu’s in one year, 1 being covid (didn’t feel that bad compared to the other two but afterwards I caught every bug & virus going back to back… 9 months later trying to work out why & whats doing what, this video is exactly what Is going on… amalgamation of MS & L shitty C! Very frustrating … Stay strong & persistant everyone 🩷
Unfortunately there are no cures for long COVID. Long COVID can cause long term disability that makes it difficult for people to work or complete activities of daily life, regardless of whether they take this advice or not. If I had a cure I would share it! Pacing may help with recovery.
@@boneslab Maybe some examples for the average person and not privileged "knowledge workers". What do you do if your working multiple jobs for $7.25 an hour to keep your family off the street?
@@JimJWalker One of the characters is pictured working in a warehouse precisely because we know that essential workers were often affected by COVID. I am not really sure what you want here - there are no cures or treatments that I can share that reverse the effects of long COVID so that people can work. If we knew of any, we would share them. The reality is, if you have long COVID, you may find it difficult to work, whatever type of work you do. I have no magical solutions to share that change that reality. It sucks, for sure. It is especially hard on families that depend on the income from the person affected. A large number of people will live with the disability associated with COVID for many years - it is a population health catastrophe. I wish I had more answers, Jim. What I can share is that we have learned from the ME/CFS community that pacing can help manage symptoms. But it is not a cure. And I agree, it is not something one can do AND still work a gruelling work schedule.
What a wonderful video. It was explained very clearly & the use of pictures and written words enhanced it even more. It’s very similar to the “Spoon Theory “. Thank you.
I get out of breath after 5 or 6 minutes of walking but not really fatigued I usually walk for 30 minutes when I go for walks I been healed for a year and 2 days
It IS hard. For people with fatigue related to long covid or chronic fatigue, they are already having to make compromises and cannot work or care for others. This video outlines a structured way to prioritize and do thing to avoid "crashes", which would prevent them from doing any of it.
Coming up to FOUR f'ing years. Maybe twice I thought it was over (and I have the FitBit data to show it) and then ... bang! complete crash. Never mind telling me to budget my energy, how about an f'ing CURE? Or at least a USEFUL symptomatic treatment?
try and lower your histamine levels. go for foods that have low histamine. it might help. Try not to eat aged meat like bacon, sausage and burgers. Put meat in freezer asap. Once you cooked meats, eat within 2 days max. Histamine builds up the longer is stays out or in the fridge
I’m with the woman who said she tries to do a lot, but crashes. I’m trying to remember the “do, be, do, be..”. Do some stuff, just be. Vitamins??? I take a lot.
It is unknown if vitamins will help. If you have shortness of breath or problems sleeping check our breathing and sleep hygiene videos. There are some medications that may help with cardiovascular or memory issues. Best to discuss with your physician.
@@boneslab I don’t have shortness of breath, but I’m getting a sleep study done on May 10, in a couple weeks. I was diagnosed with sleep apnea and severe narcolepsy, which seemed to go away after I got my implants removed, but now it’s back.
Do not try to pace or out exercise Long Covid. You have to rest, be patient and give it time. BUT, a big but is understanding your own body. The severe fatigue people are experiencing is because the body has switched its energy usage from aerobic to anaerobic, meaning you're operating on high power mode constantly, which drains very quickly. They think this may be linked to the body becoming too acidic and high lactate levels. Which is easy to check and change yourself. I don't believe everyone's symptoms are different, they just appear that way. All the crazy symptoms we experience rotate and come in peaks and lows and are set off by the autonomic nervous system being stuck in panic mode. This is located in your brain just above your neck and has been proved to swell up during infection. The key to understanding this is that the ACE2 binding receptors are located in abundance in the brainstem, lungs and lower intestine areas, and also found in many organs to some degree. I don't know much about the ACE2 receptors role in the body, but it could be viral persistence that causes this. My case was having leaky gut syndrome where the virus crossed the thinner stomach wall into my micro biome resulting in me getting LC. After a year, I suddenly started eating bucket loads of fermented foods, specialised drinks and within 8 days all my symptoms stopped...and I mean everything... from fatigue to brain fog....coincidence, maybe?! But since then, my recovery has been rapid, with very minor minor issues. I'm still having neuro issues. I believe I had a low grade brainstem infection back in Nov for some reason, but even that is shifting quickly now.... the most positive proactive thing you can do is pump your body full of nutrients, more than you need at times... I focused on cayenne pepper, turmeric, ginger, Thaimine, Niacin, Vit D, Vit C.. do not sleep with your window closed, keep it open for buckets of fresh oxygen to get in...do not try cold showers, hot ones only... when you start to get through the week without any crashes then there is a chance you're moving into the recovery phase. Good luck people!
So basically your recalibrateing your body and mind. I feel like this has to do with our brains if we can recalibrate our brain to learn new things and learn that the body isn't in danger anymore so it won't go into protective mode and shut down our body from doing the things we love we can get through this.
You did really well telling people to do less than causes exhaustion, and how the illness can't be cured, and doesn't get better on its own. Then you ruined it by telling people to try going above their safe baseline, to deliberately inflict exhaustion and symptoms, to try and get a new higher baseline, when you just explained that can't happen. This harmful advice goes against both the best research into ME/CFS and Long COVID, AND the decades of lived experience of people who live with ME/CFS. Sufferers should only go above their baseline to achieve something important to them, a task, a social or family event, something enjoyable, as long as they are prepared for the crashing exhaustion, pain, brain fog and other symptoms that can last from days to weeks. You started saying don't push through, then you finished by advising people to push through slowly, which is guaranteed to hurt them. Try listening.
when I had CFS 15 years ago, my doc told me to rest until I'm rested...when I felt I could finally do something, do only half of what I thought I could do and then stop half way through! I learned that "pushing through" would cause a crash. I healed in about 2 years and all those lessons applied to long covid. 👍
That wasn't exactly what was said. I am sorry if it was not explained in a way that aligns with your experience. Essentially the message was: IF you want to "test" whether you can do more, do it in small chunks - give your body 3-5 days to adapt after an increase, and monitor symptoms. It may take a while to see IF you can increase activity (i.e., not saying everyone can).
@@boneslab Thank you for the clarification. I was finally diagnosed 30 years ago, and then got Chronic Ciguatera on top of ME. After the graduated exercise training disaster kept coming back as policy, anything that hints of it raises concern.
Couldn't agree more. This whole "psuh yourself" is not a good protocol to get better. I know first hand, even pushing a little bit over baseline causes much more exhaustion and takes down several days of recovery. Only do what you can or perhaps half of it.
Exactly, I can't do basic self-care without being exhausted. Its like you can pass out anytime, I used to so energetic all day & sleep only a few hours a night. Now I can't even breath normal or do basic things in life. All the things you work hard or accomplished means nothing if you dont have good health. So sad but we just going to try our best, one day at a time
@@jennydkwong For the past 18 months post covid,I am feeling unsteadiness, feeling near faint all times & unable to do tasks,job which I did with ease before... Looking at me my colleagues and family are telling you are fine and you are having fear in your mind,you go and work, everything will be ok,but I can't.Unfortunately I am the only one affected with long covid and I am unable to prove my employer I am unwell...Even I don't have any energy left in me to go to office to give resignation letter 😢
This is totally me for almost 3 decades now due to EBV. Last 4 years have been brutal, now 75% bed bound. No longer can work. How can i prove to SSI my disability when the doctors around here don’t even know what ME/CFS is, nor will take anytime to research it? I just switched doctors, my last doctor of 8 years is totally clueless, never took anytime to research apparently otherwise he would have recognized what my condition is. As far as i know this idiot only put “ Sleep Disorder” in my medical records... how in the world am i gonna get approved for SSI for “ Sleep Disorder”?... My new doctor also says he doesn’t know much about Epstein Bar and didn’t even know what ME/CFS is.. I need help, completely out of money, need SSI immediately, but with these knucklehead doctors around here, i’ll die first before they provide answers and legitimate diagnosis.
Phil I've been where you are, and getting close again. Been denied disability twice. I've heard a lawyer can help but I'm unsure if any do it for free or only take payment if they win for you.. I've been to busy to look into it myself but maybe it's an option for you. Praying for the best for you, may things work out in your favor very soon!
Such a good video! Simple yet very clear on the pacing guidelines. We are a patient's association for those who suffers from myalgic encephalomyelitis (chronic fatigue syndrome) in Quebec, and can't emphasize enough the importance of pacing and good energy management on a daily basis for our members!! Are you planning to do a french version of this video? Can you reach us out at info@aqem.org to talk about it? Thank you and keep up your great work
I had long covid. It finally passed after about 6-9 months. Stay hopeful and don't give up.
Happy for u
Thank you for sharing. It gives us hope.
Dealing with Long covid after getting it in August this year. To say it is hell ...i can only do short walks for up to half an hour, having high protein powders with banana and milk smoothies, I take vitamins daily and eat healthy. Only those who have experienced it can know what it is like. I had a mild case, no need for oxygen or organs shutting down but the fatigue is depressing, cry really easy, to say its a struggle is an understatement.
I am so sorry you are going through this. I hope that with pacing and everything you are doing, you can recover soon.
Same here. I cry like 3-4 times a day and i cant do anything!
A year ago i was full of life and energy.
The other day, i had to crawl to the toilet. Which made me cry too
@@puremaledark8305 I've been doing so much research and contacting people for help.
I'm currently taking ...
Cod Liver Oil twice daily
Liquid Iron and b vitamin complex liquid twice daily
Immune Support capsules
QI Ribose / D Ribose powder
Loratadine tablet
All bought on Amazon
My moods as I've improved have gone from tearful to angry ...I've asked my pharmacist for help he recommended Rescue Remedy which is helping.
I am sorry to hear that. I hope this video helps you find a pace that you can manage.
After 4 gruelling months and pushing myself to the limit I've been able to return to the fast paced job I love. I've found QI Ribose has worked wonders.
I’m passing this video on to my family so that they will understand why I can’t do everything that I used to do the way that I used to do it. Thanks.
I am glad it was helpful, Monica! check our our videos on sleep hygiene and breath practice, would love your feedback!
I went to work on the yard yesterday but fell short
@@jogmas12 I hope that the video helps you use pacing to develop a strategy to help with your fatigue.
We same.
@@jogmas12 gt on the dribose and creatine iv had cfs 4 13yers i knw wht wrks n wht doesnt
Energy budget like many with brain injury. 🙌🏼 Rest , meditation, reduce stimulus input (earplugs, hat with brim , shades, eyes closed, sensory deprivation so body can reset). Deep breathing. Listen, feel what body is telling you and full rest in between activities. Energy work ✨ respect the body Self compassion ❤️
Sept 22 had a bypass and a lung transplant. Age 71. In good as shape it could be going as i worked a very physical job for over 50+ years so musicals were toned and was pretty strong for 71.
Went in to the OR weighing around 210lbs. Was a 9 or so hour operation. Then to ICU spending 2 weeks in a coma on a ventilator because the lung was traumatized. Finally after 14 days they able to wake me and pull the tube. Another 2 weeks on the transplant floor and went home. Back in the hospital with pneumonia a week later back home 2 days after thanksgiving. Everything was going a long normally. End of February I came down with Covid. Chills, 104.6 fever,slamming headache, trouble breathing, and a real bad cough. With called the lung center then off to down town we went. I was out of it don't even remember the hour drive. Covid totally rocked my world. Since March iv had no taste, smell and brain fog. Now im a very active person have been my whole life, Hot Rod Cars, grandkids house etc. recovery from everything was going good . Was getting stronger and able to walk a good distance. Went to SC to my daughters and noticed something was off. Came home and I had no energy, got winded quickly, and every day i was finding it harder to get motivated to do anything. Sleep and watch TV and eat that was about it. Headaches, gut problems. Iv lost interest in just about everything. Oh my personality has changed drastically. I get aggravated so easy now it just sucks. Have to be careful about what I take because it can't interact with the anti-rejection meds. So its been 9 months since losing taste,smell and having fog. 5months of couldn't care any less about anything.
It is miserable. I’m hauling since February 2020 and I’m at best half way better. Good luck.
Great advice, as long as you don't WORK for a living.
A person with long COVID may have difficulty returning to work. They need strategies to help them recover. There are no cures. This is one option that people find helpful, and may allow them to recover and return to work sooner. I appreciate you commenting. Please keep it constructive next time.
I feel you. Bills don't seem to care about how exhausted and unable to work more as expected to keep up. Being self employed there is no one to talk to about cutting back or changing duties either. It is simply a requirement to keep doing enough to eat and stay warm even if we're tired 😩
@@DivineLightPaladin I agree. It's hard to do this because work needs to get done. And I feel.like the people i work with this im just using long covid as a excuse I can tell they don't understand. I'm not saying this is a bad video at all. Just cant take breaks when everyone else is working
@@boneslab what are the other options?
@@brendalg4 this is one option. it is best to talk to your doctor about what options are right for you.
I had all these symptoms before covid. It's all typical for people suffering with autoimmune disorders. Now those who thought we were lying know what we've been talking about.
Long Haul COVID is very similar to Chronic fatigue syndrome and has histamine involved liked MCAS. Both of which are related to mitochondria function and glutathione production. There are a ton of things you can do (and NOT do) to improve these conditions. Diet (and not just "eating healthy") and QUALITY sleep are at the top. Do not drink any forms of sugar, do not eat inflammatory foods like vegetable oils, and avoid flours. Turn off your electronics and wind down at night before going to bed early. Exercise within your limits, even if its just brisk walking a couple times a day. Lastly, take supplements that improve these areas like NAC, glycine, , methylfolate (b-9) and methyl b-12, Omega 3s, certain probiotics, etc. Do this consistently for a couple of months and you will see improvements.
Thanks! We also posted a sleep hygiene video that discusses some of the things you suggested. this one is focused on pacing techniques - we try to focus on one topic at a time. Thanks for your comment.
agree. You have to lower your histamine levels. Carnvore/ keto is good but needs to be adapted. Not more age meats like bacon, sausage. Do not keep meats in fridge for more than 2 days, if third day, needs to be chucked away. When buy meats, put in freezer straight away. Give it 6 months to a year before eating small amounts of bacon and sausages again. Something is the stomach lining is damaged, so your body can't get rid of histamine, once healed, you should be able to eat histamine food again. A small amount of vegetables has high histamine and some fruits have it too. Eggs is fine.
@@fearless6947 Great advice. Speaking of histamine, a recent study came out that 50mg of antihistamine does help with long covid. Lower dosage doesn't do much. I'm doing Benadryl as part of my long covid protocol for 3 months.
@@jglee6721 I brought a small book called: The AntiHistamine Diet by Anna Keating. It's on amazon with over 200 reviews. It's about £3 which is around $4 something. It has all the foods you can eat and which one not to eat. I brought it because it was cheap and quick to read. Obviously you be able to find the info on youtube or internet but it was worth it to me. Some people complained it was too small but I like it. It takes about 1 hour to read by you need to take notes. I use it as reference when I buy food and my coughing has stopped. It will take time though. I didn't take the supplements they recommended or phama drug, I didn't need it. My coughing was bad as well, within 3 days my coughing stopped
@@fearless6947 Great. Thanks for the tip.
keep a journal of what you do and when, brain fog means frustration from misremembering. A minor illness or a fall can use a whole day's allotment, looking into journal can help you see it is not hopeless. Save energy every way possible, sit on a stool in the shower, use a cane ... making it through a really low energy day is still a big deal even if you "just" took a shower and changed clothes. This is life since neuromuscular disease came 5 yrs ago... have given up pushing through as it costs too much, accept showering every 4 days if things are bad.
Great advice broken down to understandable points. Will try to keep from crashing. Thanks.
I hope it helps! Good luck.
@@boneslab It does help. I forwarded your link to my therapist (My PCP said I just needed a psychiatrist. That it's not physical.ugh.)
@@mtnlvr2157 I am sorry that you had to experience that. Good luck.
Was going to the gym 12 times a week. I go on 1,000+ mile hikes. Got covid 3 weeks ago, and now I can barely have a conversation with someone without being exhausted.
I hope this ends soon.
Good luck everyone.
That happened to me. I had to take multiple breaks during conversation. It went away after about 5 months but my immune system still has not recovered
@ASMRyouVEGANyet I'm on week ten now. Getting better every day.
I hope you are doing well.
So on the outside you seemed pretty fit but I wonder what your D3 levels were along with your gut microbiome?!
Very sensible advice with clear explanations!
thanks so much!
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Very good video !
It explains what is the "Pacing".
It is for every people who has got "Long Covid".
It is for every people who has got "ME/CFS" (Myalgic Encephalomyelite / Chronic Fatigue Syndrome ) . I learned that . I 'm from France.
Very good video !
Thank you !
Thanks for your kind words! We have a new one coming out on breathing very soon!
My hair is still falling out and I get out of breath easily
I been healed for a year and 2 days
@@MelB868 Have you tried ArtemiC Rescue and Support? They are specifically for Covid and Longcovid.
Thank you - this is exactly what I needed to show people at work what I am trying to do
thanks for your kind words! glad it was helpful. I just posted a new video on sleep hygiene - would love your feedback!
I’ve been a viral long-hauler for over 13 years and NEVER been able to increase from that baseline. Several others that I know are the same. If you are never able to increase your available energy and can only ever take care of the basics, I see you.
I am sorry that this is the case for you. I hope that one day you find things that help you. Thank you for raising awareness!
What helped me was getting fired from my job.
Have you tried ArtemiC Rescue and ArtemiC Support? They are specifically for Covid and Longcovid.
Thanks for the video and the tips for recovery. Exercise or doing tasks wise - I have learned the hard way that we have to go slow and only do under our limit (not over) and no pushing ourselves.
This is the approach I have had to take since before the pandemic I taught myself you can only do so much.
Thanks Connor! Glad it resonated with you.
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Took B12 energy shot , sipped a little at a time over an hour or so period and worked wonders. Been in covid fatigue for 2 weeks and desperately want to overcome its affect , this really helped
Are you feeling any better
Have you tried ArtemiC Rescue and ArtemiC Support? They are specifically for Covid and Longcovid.
@@latashapressley8106 strange how those covid people never answer after 9 months
So I've gotten this twice, each time I get COVID and get "better" I feel run down for 2 months. My kids don't understand why I can't play with them or pick them up as much as usual. I am just starting to feel my strength return now.
Thanks for sharing. I’m a month out from my first case. Had been working out but will now stop given that it really fatigued me
@@TheEconomicExpert i hope the pacing tips help you recover some of your energy and get back to exercise.
Does an increase in heart rate come along with that fatigue?
I had it once last year I was sick for 25 days I had covid and double covid pneumonia. My hair is still coming out and I been healed for a year it started coming out in may it gave me a heart condition but I got healed of that in July. I get out of breath after 5 or 6 minutes of walking but I usually walk for 30 minutes, running I’m out of breath in like 1 minute and I get out of breath after walking up the stairs
@@boneslab with covid and double covid pneumonia I had to walk every hour for 5 minutes just to keep my lungs not closing up on me sometimes I felt like they were closing up. The doctor told me to do that
It's been hell dealing with this. The turn to app has definitely helped me find a way forward through some of it though!
Here in India there is no medical term called "long covid".When I explain my symptoms to my doctor,he told that you are pretending to be unwell to avoid going to office 😢
I am sorry that that was your experience.
Sorry to hear that. Your doctor wouldn't be saying that if he/she was experiencing this.
Omg I am so sorry I would go to a new doctor
Sorry bro. You believe you and do the best that's good for you. People don't know sh#t
Here I think they do the same thing, I even believe I was talking to the cops once (pretending to be doctors). Another time I was in the hospital and they kept accusing me of pretending to be unwell to avoid going to office - but I was officially unemployed.
Going to try this, thanks.
cnt hlp but feel its all prt of the gr8 reset
Thank you very much for info. I have RR MS, after having 3 flu’s in one year, 1 being covid (didn’t feel that bad compared to the other two but afterwards I caught every bug & virus going back to back… 9 months later trying to work out why & whats doing what, this video is exactly what Is going on… amalgamation of MS & L shitty C!
Very frustrating …
Stay strong & persistant everyone 🩷
@@lauraseaman39 glad you found it helpful!
I wonder how the Amazon warehouse worker with a family, rent, car payment, no healthcare, and a sick loved one takes this advice?
Unfortunately there are no cures for long COVID. Long COVID can cause long term disability that makes it difficult for people to work or complete activities of daily life, regardless of whether they take this advice or not. If I had a cure I would share it! Pacing may help with recovery.
@@boneslab Maybe some examples for the average person and not privileged "knowledge workers". What do you do if your working multiple jobs for $7.25 an hour to keep your family off the street?
@@JimJWalker One of the characters is pictured working in a warehouse precisely because we know that essential workers were often affected by COVID. I am not really sure what you want here - there are no cures or treatments that I can share that reverse the effects of long COVID so that people can work. If we knew of any, we would share them. The reality is, if you have long COVID, you may find it difficult to work, whatever type of work you do. I have no magical solutions to share that change that reality. It sucks, for sure. It is especially hard on families that depend on the income from the person affected. A large number of people will live with the disability associated with COVID for many years - it is a population health catastrophe. I wish I had more answers, Jim. What I can share is that we have learned from the ME/CFS community that pacing can help manage symptoms. But it is not a cure. And I agree, it is not something one can do AND still work a gruelling work schedule.
@@boneslab please say "there are no cures YET" as every bit of hopefullness helps us. ❤️
@@judymiller5154 good call! i should have said that.
What a wonderful video. It was explained very clearly & the use of pictures and written words enhanced it even more. It’s very similar to the “Spoon Theory “. Thank you.
Thank you! We are planning one on sleep hygiene next.
The sleep hygiene video is up if you are interested: ua-cam.com/video/7K9BAO_dlgs/v-deo.html
@@boneslab Thank you for letting me know. I’ll go watch it now.
Thanks for this video. I'm definitely dealing with this now, its not very fun.
I am sorry to hear that. I hope the video helps. We have some on breathing and sleep hygiene as well, thay may help.
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Hi I can't walk in street because fatigue after covid. I can only 300step a day. 2 years into long covid. Help me yes treatments long covid fatigue?
The strategies in the video are one thing you can try. You can discuss other options with your physician.
I can only do 200 to 300 steps a day too. Can't take a shower. I cry almost every day. I'm only into 9 weeks. I pray for a miracle
@@michelita2704how are you now?
I get out of breath after 5 or 6 minutes of walking but not really fatigued I usually walk for 30 minutes when I go for walks I been healed for a year and 2 days
We have another video called a focus on breath that you might want to try, in addition to the pacing one.
This was very helpful. Thank you.
You are most welcome! I hope it continues to help.
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Good advices bit if we had that time when we have to work and take care of family there is not much time take brakes in between
It IS hard. For people with fatigue related to long covid or chronic fatigue, they are already having to make compromises and cannot work or care for others. This video outlines a structured way to prioritize and do thing to avoid "crashes", which would prevent them from doing any of it.
Exactly what I do but I take pine needle tea and mullein now
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Coming up to FOUR f'ing years. Maybe twice I thought it was over (and I have the FitBit data to show it) and then ... bang! complete crash.
Never mind telling me to budget my energy, how about an f'ing CURE? Or at least a USEFUL symptomatic treatment?
This is me since march 2020. I was diagnoses with CFS and thats it
I am sorry to hear that. I hope you find this video helpful. We also have videos on sleep and breathing techniques.
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
I am suffering from this now…it’s debilitating :/
I am so sorry. I hope that you recover.
@@boneslab thank you, I feel like I’m slowly improving :)
I am unable to work because of this situation.
I am sorry to hear this. It is a huge problem. I hope that you recover.
I used Doctor Kioya Herbs and it Cured me, now I can smell and taste well, all thanks to Doctor Kioya On UA-cam.. Am so happy now.. 🤗😊💕
Got Covid and got better. Then two weeks later felt an extreme fatigue and here I am 61 days later hoping this will go away soon
I hope you feel better soon.
This is exactly how it has been for me the last 18 months.
Any better?
18 MONTHS WTF
@lelskiiii19I'm so sorry
I feel so tried and this cough is still holding on anyone smell a Smokey smell when breathing 😵💫
Me too. Ugh 😩
@@InfinitelyBlessed888 so You are still coughing and getting that smoke smell to
@@lindasmith3608 just that smoke smell. No coughing
try and lower your histamine levels. go for foods that have low histamine. it might help. Try not to eat aged meat like bacon, sausage and burgers. Put meat in freezer asap. Once you cooked meats, eat within 2 days max. Histamine builds up the longer is stays out or in the fridge
@@fearless6947 thank You ☺️
I’m with the woman who said she tries to do a lot, but crashes. I’m trying to remember the “do, be, do, be..”. Do some stuff, just be.
Vitamins??? I take a lot.
It is unknown if vitamins will help. If you have shortness of breath or problems sleeping check our breathing and sleep hygiene videos. There are some medications that may help with cardiovascular or memory issues. Best to discuss with your physician.
@@boneslab I don’t have shortness of breath, but I’m getting a sleep study done on May 10, in a couple weeks. I was diagnosed with sleep apnea and severe narcolepsy, which seemed to go away after I got my implants removed, but now it’s back.
Do not try to pace or out exercise Long Covid. You have to rest, be patient and give it time. BUT, a big but is understanding your own body. The severe fatigue people are experiencing is because the body has switched its energy usage from aerobic to anaerobic, meaning you're operating on high power mode constantly, which drains very quickly. They think this may be linked to the body becoming too acidic and high lactate levels. Which is easy to check and change yourself. I don't believe everyone's symptoms are different, they just appear that way. All the crazy symptoms we experience rotate and come in peaks and lows and are set off by the autonomic nervous system being stuck in panic mode. This is located in your brain just above your neck and has been proved to swell up during infection. The key to understanding this is that the ACE2 binding receptors are located in abundance in the brainstem, lungs and lower intestine areas, and also found in many organs to some degree. I don't know much about the ACE2 receptors role in the body, but it could be viral persistence that causes this. My case was having leaky gut syndrome where the virus crossed the thinner stomach wall into my micro biome resulting in me getting LC. After a year, I suddenly started eating bucket loads of fermented foods, specialised drinks and within 8 days all my symptoms stopped...and I mean everything... from fatigue to brain fog....coincidence, maybe?! But since then, my recovery has been rapid, with very minor minor issues. I'm still having neuro issues. I believe I had a low grade brainstem infection back in Nov for some reason, but even that is shifting quickly now.... the most positive proactive thing you can do is pump your body full of nutrients, more than you need at times... I focused on cayenne pepper, turmeric, ginger, Thaimine, Niacin, Vit D, Vit C.. do not sleep with your window closed, keep it open for buckets of fresh oxygen to get in...do not try cold showers, hot ones only... when you start to get through the week without any crashes then there is a chance you're moving into the recovery phase. Good luck people!
So basically your recalibrateing your body and mind. I feel like this has to do with our brains if we can recalibrate our brain to learn new things and learn that the body isn't in danger anymore so it won't go into protective mode and shut down our body from doing the things we love we can get through this.
Anyone else gets fatigue the next day & adjusts slowly?
I am six weeks post cove and I’m still battling debilitating fatigue. It’s horrible. I was so healthy and active before.
The pacing technique in this video explains how to work on adjusting your activity level.
You did really well telling people to do less than causes exhaustion, and how the illness can't be cured, and doesn't get better on its own. Then you ruined it by telling people to try going above their safe baseline, to deliberately inflict exhaustion and symptoms, to try and get a new higher baseline, when you just explained that can't happen. This harmful advice goes against both the best research into ME/CFS and Long COVID, AND the decades of lived experience of people who live with ME/CFS. Sufferers should only go above their baseline to achieve something important to them, a task, a social or family event, something enjoyable, as long as they are prepared for the crashing exhaustion, pain, brain fog and other symptoms that can last from days to weeks. You started saying don't push through, then you finished by advising people to push through slowly, which is guaranteed to hurt them. Try listening.
when I had CFS 15 years ago, my doc told me to rest until I'm rested...when I felt I could finally do something, do only half of what I thought I could do and then stop half way through! I learned that "pushing through" would cause a crash. I healed in about 2 years and all those lessons applied to long covid. 👍
That wasn't exactly what was said. I am sorry if it was not explained in a way that aligns with your experience. Essentially the message was: IF you want to "test" whether you can do more, do it in small chunks - give your body 3-5 days to adapt after an increase, and monitor symptoms. It may take a while to see IF you can increase activity (i.e., not saying everyone can).
@@boneslab Thank you for the clarification. I was finally diagnosed 30 years ago, and then got Chronic Ciguatera on top of ME. After the graduated exercise training disaster kept coming back as policy, anything that hints of it raises concern.
@@IanWoolf absolutely not recommending GET here. We also have videos on breathing and sleep hygiene, since those can be helpful too.
Couldn't agree more. This whole "psuh yourself" is not a good protocol to get better. I know first hand, even pushing a little bit over baseline causes much more exhaustion and takes down several days of recovery. Only do what you can or perhaps half of it.
if you are able to work or do activities then you don't have long covid.
Many people with long covid can't work, that is true. Pacing is one strategy that may help with recovery. There are no cures, unfortunately.
Exactly, I can't do basic self-care without being exhausted. Its like you can pass out anytime, I used to so energetic all day & sleep only a few hours a night. Now I can't even breath normal or do basic things in life. All the things you work hard or accomplished means nothing if you dont have good health. So sad but we just going to try our best, one day at a time
I can work light duties for about 2-4 hours now before needing a day off and sleeping 12 hours 😢
@@DivineLightPaladin it takes to heal. I believe we all going to be better, getting back to our vibrant health, full of life. 💃yes we can.
@@jennydkwong For the past 18 months post covid,I am feeling unsteadiness, feeling near faint all times & unable to do tasks,job which I did with ease before... Looking at me my colleagues and family are telling you are fine and you are having fear in your mind,you go and work, everything will be ok,but I can't.Unfortunately I am the only one affected with long covid and I am unable to prove my employer I am unwell...Even I don't have any energy left in me to go to office to give resignation letter 😢
This is totally me for almost 3 decades now due to EBV. Last 4 years have been brutal, now 75% bed bound. No longer can work. How can i prove to SSI my disability when the doctors around here don’t even know what ME/CFS is, nor will take anytime to research it? I just switched doctors, my last doctor of 8 years is totally clueless, never took anytime to research apparently otherwise he would have recognized what my condition is. As far as i know this idiot only put “ Sleep Disorder” in my medical records... how in the world am i gonna get approved for SSI for “ Sleep Disorder”?... My new doctor also says he doesn’t know much about Epstein Bar and didn’t even know what ME/CFS is.. I need help, completely out of money, need SSI immediately, but with these knucklehead doctors around here, i’ll die first before they provide answers and legitimate diagnosis.
I am sorry to hear this. I hope you find someone that can help you navigate this.
Phil I've been where you are, and getting close again. Been denied disability twice. I've heard a lawyer can help but I'm unsure if any do it for free or only take payment if they win for you.. I've been to busy to look into it myself but maybe it's an option for you. Praying for the best for you, may things work out in your favor very soon!
@@DivineLightPaladin Thank you so much🙏🏻🕊❤️👍
Anyone else experiencing long COVID from the vaccine?
The banking analogy is poor...pun intended.
Thanks for your feedback. Do you have a suggestion for a better analogy?
I feel like every nap is just a cash advance 😆
I don't have f time for this wtffffff
Basically the spoons 🥄 method then. Fatigue is no joke, shame people just roll their eyes 👀 and assume the person is being lazy...
Such a good video! Simple yet very clear on the pacing guidelines. We are a patient's association for those who suffers from myalgic encephalomyelitis (chronic fatigue syndrome) in Quebec, and can't emphasize enough the importance of pacing and good energy management on a daily basis for our members!! Are you planning to do a french version of this video? Can you reach us out at info@aqem.org to talk about it? Thank you and keep up your great work
Thank you so much! I will email you.
I have posted French subtitles. :)