Hi Julie, my Dad passed this morning. He went to sleep and didn´t wake up. He just looked like he was sleeping peacefully. He didn´t have any symptoms, he gave us no clues at all. He died at home, with his wife of nearly 55 years, having just spent Christmas and his 84th birthday with us. He had a good death. I just wanted to thank you for all your informative videos and book. You´ve really helped me through this time. xxx
My Mom passed away last July, age 95, from Congestive Heart Failure. She lived in an assisted living senior community. After a fall in her apartment and a subsequent hospital stay, her doctor suggested she be put on hospice, as he didn't expect her to live but another two weeks. Well, Mom decided on her terms when she was ready to pass. Between the care she received from the medical team at her retirement community and the hospice team who visited twice a week, it took the pressure off our family, and we knew she was being well cared for. We called the hospice team, Visiting Angels. They were wonderful! Thanks to the education we got from watching Hospice Nurse Julie's UA-cam channel. When the end came, we were so informed about what the actively dying process was going to be like. Thank you, Nurse Julie and all of the hospice nurses who take so much off the shoulders of the families as we are grieving. 💜
We have a hospice care center on the outskirts of town. Peaceful and quiet. Even the building is about 100 yards from the road. My mom was in there April 2023. It's a blessing to have round-the-clock care from dedicated staff.
I Bet you have to Deal with ALOT of family members with Narcissistic personality disorder who demand your immediate attention . My heart goes out to you. I applaud your Patience 👏
They were great when my mom went on hospice last year. They brought all her equipment and supplies, helped me set it up, taught me what to watch for and what to do, hos to care for her. She was on hospice a week before she died and she was clean, comfortable and safe. They answered all my stupid questions and even kept me company a couple of times because my help was either faraway at the time or working, it was easier for me to just be alone with her with no interference so I could take care of her and deal with my own feelings. Watching Julie's videos and some others was the best thing I could do, also, as she prepared me. Even her insurance company gave me advice on what to do. All I had to do was ask.
Hi Julie, My sister and I have had to deal with Hospice 5 times since the early 2000's starting with my mother-in-law. Some of the things we learned are what you are telling us. But Hospice gets paid by our insurance and people forget that, we are the Hospice companies customer. We have had only one bad Hospice company we tried to have them help us with the issues at hand but they flat out refused to work with is. As a result we changed Hospice companies and we interviewed the companies that we would higher. And we did in home care all 5 times. Fortunately my sister was on permanent disability and was able to help with their care. My point is that people need to consider what they would like to expect from the Hospice provider, and be prepared to meet in the middle, remember you control who gets that money, and they will usually make some concessions to get the business.
Thank you, Julie. You answered questions I didn't know I had. It's just me taking care of my husband and they just recertified him for another 90 days under hospice care. It does take a lot to take care of your loved one and I feel blessed because I had CNA training many years ago. That knowledge is very helpful to have.
You’re such a wonderful person. I’ve worked many years in the medical field and understood what Hospice was and how to deal with dying patients. But two times I was dealing with my sister in law who didn’t believe in hospice and listened to a doctor who said no hospice and he was also doctor to my mother and I had to fire him to get hospice. So 3 times I used hospice for different family members it hard but I felt good having help. People need to understand you come and check on the patient and you let the caregiver rest and then you go. It’s not an easy thing to do.
There’s a big difference between hospice at home and hospice at a hospice specific care facility. My sister was only in hospice for four days. I was in the room with her when she passed away. And then I hit the call light and the nurse came in and confirmed.
It's sad that we really do treat our pets better than our own family members. We won't let our pets suffer for months and slowly die of natural causes.
Thank you for providing this valuable information for free, every adult needs to watch this video, especially young adults who have aging parents or parents diagnosed with terminal illness. It is important to normalize death and dying, none of us are immune. If your loved one begins hospice, it is extremely helpful to have more than one set of ears during intake to be clear of expectations moving forward. When my partner had his intake with hospice his own children did not attend, it was me and his nephew and his nephew heard "caregivers are coming in to take care of him." When that's the exact opposite of what said. and the family chose to believe the nephew over me. As a result, no one in the family was interested in providing care except for me. The hospice nurse was fantastic and she made a challenging time a lot easier. The nephew was only there because he claimed to hold power of attorney, but he lied. Elder abuse is a real thing, please discuss death with your loved ones and learn all you can well ahead of time.
I have a question… I’m severely overweight. Although my mom isn’t in hospice (just mobility issues), I’m already having issues taking care of her. How am i supposed to give her the care she needs when the time comes & I’m already struggling as is?
The problem with healthcare in general, and I worked direct patient care for 30 years, is the lack of education to the family. The family is not educated on anything basically. Like you said, even you did not realize how uninformed the families are. At an extremely stressful time they are not getting the information they need. The system is so broken. They put a ton of emphasis on documentation and none on education.
I think it all comes down to some of the unqualified & uncaring folks they hire at a Hospice. They need better HR personnel & better hires. I say this because I went to a hospice with my wife to visit my mother in law. There are many great doctors & nurses though, but not enough. Again, take a hard look at who hires the employees! Nurses like Julie, have to deal with relatives of the patients that just won't be satisfied with their dying relative's care. Thanks Julie
Dad has stage 4 cancer, but I already look after him. Make his meals, give him his pills and pain meds, walk him to his room and tuck him in, change his adult diapers (pullups), put his new ostomy bag on him one every couple days and clean up any poop he has around it, change him, walk him to and from his truck when he drives so he doesn't fall, empty his pee jar. It's pretty easy, I was always told it's going to be tough...nope.
In UK, we have carers, (CA's) that come out on a predefined amount of times per days/week, which can either be paid privately or if on a low income, will be provided for. This makes sure that the "Mrs who lives on her own" doesn't get forgotten about. My question is, if there is a lady (or man) that has no family and are on their own, but is unable to do those activities of daily living on their own, what happens to those people?
I would say I had a good experience with Hospice, the hardest part was for me to sign the Hospice papers to put my aunt on it to bring her home to die, the only bad thing was the RN that who is on a 24 hour call really did not want to come out at 5am because I called as I was instructed to and she said why can't I wait until the duty RN that comes out on duty at 10 am, well my aunt died at 5:50 am and she wanted me to wait she also said I could keep her here in the home for 24 hours per the Law, I said I'm not going to have my aunt lying dead in the bedroom for 24 hours just because you wanted me to wait for the day shift to come out, well she ended coming out anyway took down the time of death and she disposed of the medication and called the Mortuary then she left, the Social worker came out and stayed until the Mortuary came and took her away. I thought Hospice did a good job I was lucky to have a RN come out every day for about an hour and I had a CNA come out twice a week and I had to hire a healthcare worker to make up the remainder of the days the CNA does not come out, I was fine with that, all the medical equipment was paid for so there was no out of pocket expenses on my part plus she had health insurance and also Medicare.
I would’ve reported that person and made a formal complaint. That’s just pure laziness and not doing their job. I’m glad the rest of the people sounded like they were decent, but it only takes one person to ruin somebody’s opinions on hospice.
Thanks for this, Julie. It was very helpful. I do have a question on how to handle custodial care for people on hospice who live alone. I worked with many men who had spent large periods of their life homeless or incarcerated. If they were dying, we tried to get them into Calvary Hospital in the Bronx, which is a hospice facility, but often Calvary couldn't take them right away, so they had to wait. We were able to arrange for home health care aides, paid for by New York State Medicaid, which was very helpful (usually). Do you know if Medicaid provides these services, or their equivalent, in other states? Have you encountered these sorts of situations? If so, how was it handled? Thanks.
Ok I understand that the main person caring for the loved one is the one who lives at the home with the person but what if....let's say the person living with their mom is short and is also handicapped even if it's only mentally what would happen then? Could you please make some videos addressing this topic because I'm one of the handicapped persons i'm speaking about in this question. Thank you for all you do, Julie.
When is The Actual Hospice Facility best? Is that for if the family just cannot take on the responsibility due to lack of family or age of family to care for them or when does the facility come into play? And if they are in the Hospice Facility, is their loved one allowed to stay with them 24/7?
I have a question. Should we not wake up someone no matter how long they sleep? My mother is 90 and on Hospice. My brother cares for her. I'm just wondering...
Hi Julie, my Dad passed this morning. He went to sleep and didn´t wake up. He just looked like he was sleeping peacefully. He didn´t have any symptoms, he gave us no clues at all. He died at home, with his wife of nearly 55 years, having just spent Christmas and his 84th birthday with us. He had a good death. I just wanted to thank you for all your informative videos and book. You´ve really helped me through this time. xxx
Sorry 4 your loss my condolences to u & your family
So sweet. Your dad has some great kids.
@@queen_of_green420 hugs to you and your family..
Oh my word! My dearest and heartfelt condolences. And I can't think of anything else meaningful to say as I am not party yo your grief and sorrow 😢❤
Condolences 🙏
My Mom passed away last July, age 95, from Congestive Heart Failure. She lived in an assisted living senior community. After a fall in her apartment and a subsequent hospital stay, her doctor suggested she be put on hospice, as he didn't expect her to live but another two weeks. Well, Mom decided on her terms when she was ready to pass. Between the care she received from the medical team at her retirement community and the hospice team who visited twice a week, it took the pressure off our family, and we knew she was being well cared for. We called the hospice team, Visiting Angels. They were wonderful! Thanks to the education we got from watching Hospice Nurse Julie's UA-cam channel. When the end came, we were so informed about what the actively dying process was going to be like. Thank you, Nurse Julie and all of the hospice nurses who take so much off the shoulders of the families as we are grieving. 💜
We have a hospice care center on the outskirts of town. Peaceful and quiet. Even the building is about 100 yards from the road. My mom was in there April 2023. It's a blessing to have round-the-clock care from dedicated staff.
Please address how hospice deals with people who have no family.
I Bet you have to Deal with ALOT of family members with Narcissistic personality disorder who demand your immediate attention . My heart goes out to you. I applaud your Patience 👏
My mom passed away on hospice a year ago from 2 types of cancer. A week before she died she was moved from hospice at home to a hospice care facility.
They were great when my mom went on hospice last year. They brought all her equipment and supplies, helped me set it up, taught me what to watch for and what to do, hos to care for her. She was on hospice a week before she died and she was clean, comfortable and safe. They answered all my stupid questions and even kept me company a couple of times because my help was either faraway at the time or working, it was easier for me to just be alone with her with no interference so I could take care of her and deal with my own feelings. Watching Julie's videos and some others was the best thing I could do, also, as she prepared me. Even her insurance company gave me advice on what to do. All I had to do was ask.
Hi Julie,
My sister and I have had to deal with Hospice 5 times since the early 2000's starting with my mother-in-law. Some of the things we learned are what you are telling us. But Hospice gets paid by our insurance and people forget that, we are the Hospice companies customer. We have had only one bad Hospice company we tried to have them help us with the issues at hand but they flat out refused to work with is. As a result we changed Hospice companies and we interviewed the companies that we would higher. And we did in home care all 5 times. Fortunately my sister was on permanent disability and was able to help with their care. My point is that people need to consider what they would like to expect from the Hospice provider, and be prepared to meet in the middle, remember you control who gets that money, and they will usually make some concessions to get the business.
How does this process work if you have a terminal illness and you live alone and have no family?
Seems like the issue of death is never really taught until the time comes.
Surrounded by fear of even bringing it up.
Except for this channel.
Thank God for hospice. Whenever my dad needed them they were always there they took very good care of my dad. I'm very thankful for them.
Whenever we called them they came
Great and very educational video....thank you Ms Julie
Thank you, Julie. You answered questions I didn't know I had. It's just me taking care of my husband and they just recertified him for another 90 days under hospice care. It does take a lot to take care of your loved one and I feel blessed because I had CNA training many years ago. That knowledge is very helpful to have.
You’re such a wonderful person. I’ve worked many years in the medical field and understood what Hospice was and how to deal with dying patients. But two times I was dealing with my sister in law who didn’t believe in hospice and listened to a doctor who said no hospice and he was also doctor to my mother and I had to fire him to get hospice. So 3 times I used hospice for different family members it hard but I felt good having help. People need to understand you come and check on the patient and you let the caregiver rest and then you go. It’s not an easy thing to do.
There’s a big difference between hospice at home and hospice at a hospice specific care facility. My sister was only in hospice for four days. I was in the room with her when she passed away. And then I hit the call light and the nurse came in and confirmed.
Hi Julie. What happens if the patient has no family,friends, etc,
The Hospice outreach coordinator sold Hospice as if it was a spa or a summer camp. Boy was I misled.
Hospis is great they teach you what you need to do
It's sad that we really do treat our pets better than our own family members. We won't let our pets suffer for months and slowly die of natural causes.
Great informational video. Thank you!
Luv'Ya Girl...goood stuff, as always *..*
Thank you for providing this valuable information for free, every adult needs to watch this video, especially young adults who have aging parents or parents diagnosed with terminal illness. It is important to normalize death and dying, none of us are immune. If your loved one begins hospice, it is extremely helpful to have more than one set of ears during intake to be clear of expectations moving forward. When my partner had his intake with hospice his own children did not attend, it was me and his nephew and his nephew heard "caregivers are coming in to take care of him." When that's the exact opposite of what said. and the family chose to believe the nephew over me. As a result, no one in the family was interested in providing care except for me. The hospice nurse was fantastic and she made a challenging time a lot easier. The nephew was only there because he claimed to hold power of attorney, but he lied. Elder abuse is a real thing, please discuss death with your loved ones and learn all you can well ahead of time.
I have a question… I’m severely overweight. Although my mom isn’t in hospice (just mobility issues), I’m already having issues taking care of her. How am i supposed to give her the care she needs when the time comes & I’m already struggling as is?
The problem with healthcare in general, and I worked direct patient care for 30 years, is the lack of education to the family. The family is not educated on anything basically. Like you said, even you did not realize how uninformed the families are. At an extremely stressful time they are not getting the information they need. The system is so broken. They put a ton of emphasis on documentation and none on education.
Didn't know hospice was no cost. Thanks for sharing.
Helpful information. Thank you.
I think it all comes down to some of the unqualified & uncaring folks they hire at a Hospice. They need better HR personnel & better hires. I say this because I went to a hospice with my wife to visit my mother in law. There are many great doctors & nurses though, but not enough. Again, take a hard look at who hires the employees! Nurses like Julie, have to deal with relatives of the patients that just won't be satisfied with their dying relative's care. Thanks Julie
Dad has stage 4 cancer, but I already look after him. Make his meals, give him his pills and pain meds, walk him to his room and tuck him in, change his adult diapers (pullups), put his new ostomy bag on him one every couple days and clean up any poop he has around it, change him, walk him to and from his truck when he drives so he doesn't fall, empty his pee jar. It's pretty easy, I was always told it's going to be tough...nope.
love this channel alot. wouldnt get this kind of info or other related info like this anywhere else. shes a peach. :)
I've only one in-person bad thing about hospice in all my decades of being a hospice volunteer.
How does home hospice differ from hospice care for a resident in an assisted living or memory care facility?
In UK, we have carers, (CA's) that come out on a predefined amount of times per days/week, which can either be paid privately or if on a low income, will be provided for. This makes sure that the "Mrs who lives on her own" doesn't get forgotten about. My question is, if there is a lady (or man) that has no family and are on their own, but is unable to do those activities of daily living on their own, what happens to those people?
I would say I had a good experience with Hospice, the hardest part was for me to sign the Hospice papers to put my aunt on it to bring her home to die, the only bad thing was the RN that who is on a 24 hour call really did not want to come out at 5am because I called as I was instructed to and she said why can't I wait until the duty RN that comes out on duty at 10 am, well my aunt died at 5:50 am and she wanted me to wait she also said I could keep her here in the home for 24 hours per the Law, I said I'm not going to have my aunt lying dead in the bedroom for 24 hours just because you wanted me to wait for the day shift to come out, well she ended coming out anyway took down the time of death and she disposed of the medication and called the Mortuary then she left, the Social worker came out and stayed until the Mortuary came and took her away. I thought Hospice did a good job I was lucky to have a RN come out every day for about an hour and I had a CNA come out twice a week and I had to hire a healthcare worker to make up the remainder of the days the CNA does not come out, I was fine with that, all the medical equipment was paid for so there was no out of pocket expenses on my part plus she had health insurance and also Medicare.
I would’ve reported that person and made a formal complaint. That’s just pure laziness and not doing their job. I’m glad the rest of the people sounded like they were decent, but it only takes one person to ruin somebody’s opinions on hospice.
Thanks for this, Julie. It was very helpful. I do have a question on how to handle custodial care for people on hospice who live alone. I worked with many men who had spent large periods of their life homeless or incarcerated. If they were dying, we tried to get them into Calvary Hospital in the Bronx, which is a hospice facility, but often Calvary couldn't take them right away, so they had to wait. We were able to arrange for home health care aides, paid for by New York State Medicaid, which was very helpful (usually). Do you know if Medicaid provides these services, or their equivalent, in other states? Have you encountered these sorts of situations? If so, how was it handled? Thanks.
Ok I understand that the main person caring for the loved one is the one who lives at the home with the person but what if....let's say the person living with their mom is short and is also handicapped even if it's only mentally what would happen then? Could you please make some videos addressing this topic because I'm one of the handicapped persons i'm speaking about in this question. Thank you for all you do, Julie.
When is The Actual Hospice Facility best? Is that for if the family just cannot take on the responsibility due to lack of family or age of family to care for them or when does the facility come into play? And if they are in the Hospice Facility, is their loved one allowed to stay with them 24/7?
I have a question. Should we not wake up someone no matter how long they sleep?
My mother is 90 and on Hospice. My brother cares for her. I'm just wondering...
Nurse: RN or LPN?
قالَ الربُّ يَسوعُ: «أَنَا هُوَ الكَرْمَةُ الحَقِيقِيَّةُ وأَبِي الكَرَّام.كُلُّ غُصْنٍ فِيَّ لا يَحْمِلُ ثَمَرًا يَقْطَعُهُ، وكُلُّ غُصْنٍ يَحْمِلُ ثَمَرًا يُنَقِّيهِ لِيَحْمِلَ ثَمَرًا أَكْثَر.أَنْتُمُ الآنَ أَنْقِيَاءُ بِفَضْلِ الكَلِمَةِ الَّتِي كَلَّمْتُكُم بِهَا.أُثْبُتُوا فِيَّ، وأَنَا فِيكُم. كَمَا أَنَّ الغُصْنَ لا يَقْدِرُ أَنْ يَحْمِلَ ثَمَرًا مِنْ تِلْقَاءِ ذَاتِهِ، إِنْ لَمْ يَثْبُتْ في الكَرْمَة، كَذلِكَ أَنْتُم أَيْضًا إِنْ لَمْ تَثْبُتُوا فِيَّ.أَنَا هُوَ الكَرْمَةُ وأَنْتُمُ الأَغْصَان. مَنْ يَثْبُتُ فِيَّ وأَنَا فِيه، يَحْمِلُ ثَمَرًا كَثيرًا، لأَنَّكُم بِدُونِي لا تَقْدِرُونَ أَنْ تَفْعَلُوا شَيْئًا.مَنْ لا يَثْبُتُ فِيَّ يُطْرَحُ كَالغُصْنِ خَارِجًا ويَيْبَس. وتُجْمَعُ الأَغْصَانُ اليَابِسَة، وتُطْرَحُ في النَّارِ فَتَحْتَرِق.إِنْ تَثْبُتُوا فِيَّ، وتَثْبُتْ أَقْوَالِي فِيكُم، تَطْلُبُوا مَا تَشَاؤُونَ فَيَكُونَ لَكُم.بِهذَا يُمَجَّدُ أَبِي أَنْ تَحْمِلُوا ثَمَرًا كَثيرًا، وتَصِيرُوا لي تَلاميذ.>>>>>.>.>.>.>.
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