I was diagnosed with Wegener's granulomatosis 10 years ago and I have been in remission until a few months ago. Now I'm in the middle of a severe relapse. Currently trying methylprednasolone Bactrum and Leflunomide. I'm not sure which makes me feel worse, the disease or the meds. Hopefully one of you medical people out there will develope a cure for this nasty disease. I know the steroids and immunosuppressive drugs treat the vasculitis, but no one ever seems to offer a drug that helps with feeling sick and weak and in pain. If anything, the treatment exacerbates the discomfort. Opioid pain meds are a Godsend for those of us in severe pain, or they used to be, but now they are socially unacceptable because some people abuse them. Being forced to live in pain because some junkies can't control themselves is ridiculous. The medical community needs to find a way to address pain without treating normal patients like we're all potential addicts.
Wicked Coolname I’m here because a friend has the disease. Have you looked at marijuana medical edibles? They may be able to help. Medical dispensaries are a wealth of knowledge. Hope you get some relief! 😄
@@bcfriardoyle7697 No. I don't have much faith in marijuana as a pain medicine. Only because I smoked pot from my mid terms through my 30s. Not for any medical reasons, but just to get high. I don't recall it ever doing anything for pain. But, I'm open to trying again. It might not help, but it probably can't hurt.... No pun intended.
Wicked Coolname it will return your white blood cell count to Normal, and reverse the effects of the disease, luckily for me here in Australia, the government provides the drug free of charge
Wow! I was really struggling to understand this disease, so I watched several videos. This one was the most helpful. It also provides detailed and additional information, which is great for exams. Thank you, an excellent piece of content! Love from TURKEY ❤
Would you be able to review a case of wegener's with gastrointestinal and CNS/brain involvement, possibly on UA-cam or your website? This was very very interesting. I have wegener's vasculitis (GPA) with involvement that seems to be less common.
قصدها نعذره يعني لو بينطق ال c غلط او بيحطها في موضع غير موضعها لانه في الاول و الاخر مصري مش لغته الاساسية الانجلش و كمان لاننا كمصريين بتوع فهلوة و بنلصم اي حاجة في أي حاجة 😂😂😂
I wasn't sure which video you're referring to about the answers to the questions cuz there're 80 videos in the pulmonology section of channel. Do you mind posting the answers? Thank you.
Hi ..your channel is very interested thanks for all your effort that you give to us ❤️.. please could you make a video of how reading and diagnosis the CBC readings?by looking to each indices of RBCs . ❤️..sorry if there is a wrong in my words that because english is not my mother tangue .
Differential CCCChurg-strauss :) Make one with P for Churg strauss Sx: resPiratory Problems (asthma) Polyneuropathy or mononeuroPathy Pulmonary infiltrates eosinoPhilia Dx: P-anca Tx: cycloPhosPhamide Prednisolone azothiPrine Ohh god your mnemonics are the best even though they make no sense sometimes :D
"This is everything in the world you need to know about Granulomatosis with Polyagiitis." Umm no. Patients are easily fatigued, muscle weakness, joint pain. This continues for many even after treatment Not enough Dr's are addressing that part of this disease. There's also "Limited" GPA which does not affect the kidneys but the word limited does not mean less serious or less in need of treatment. "Limited" can change and maybe affect the kidney's with a disease flare. Let's add a few more C's: Flares are Common. PneumoCystis Pneumonia prophylaxis - BaCtrim DS 3x per wk, Childless -Cyclophosphamide causes birth defects and early menopause (wish my Dr knew about that) Bladder Cancer - also caused by Cyclophosphamide tablets (something else my Dr didn't know). This is why Rituxan is used for initial therapy now as well as maintenance. Thank you for getting the word out about this rare disease. : ) Dx'd 2002
If I sent you my symptoms and photos could you tell if this is maybe what I have? As all my symptoms fit and my local drs are useless and I'm at my end of help. :( No anca test yet. tested for everything else, mg, ms, lems, etc.
@@MedicosisPerfectionalis sweating fatigue fevers dry mouth, day excess night itching double vision pupil changes shortness of breath/coughing food stuck in throat, comes up hours later eye opening at night high blood pressure zaps bone pain face pain chest muscle pain night or severe stress weight loss 30 pounds immune system & infections granuloma annulare pass out in shower/heart palpitations ankle/ leg swelling started topamax aug 12, stopped sept 1. started migraine shot sept 11 started swanson sept 6th june started pupil changes double vision attacks pupils got better double vision stayed few weeks ago sore throat turned into sneezing and cough turned into bronchitis eyes started again. while looking at face I noticed facial droop. face still swollen but less droop
🧠 Neuropharmacology Lectures: www.medicosisperfectionalis.com/
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I was diagnosed with Wegener's granulomatosis 10 years ago and I have been in remission until a few months ago. Now I'm in the middle of a severe relapse. Currently trying methylprednasolone Bactrum and Leflunomide. I'm not sure which makes me feel worse, the disease or the meds. Hopefully one of you medical people out there will develope a cure for this nasty disease. I know the steroids and immunosuppressive drugs treat the vasculitis, but no one ever seems to offer a drug that helps with feeling sick and weak and in pain. If anything, the treatment exacerbates the discomfort.
Opioid pain meds are a Godsend for those of us in severe pain, or they used to be, but now they are socially unacceptable because some people abuse them. Being forced to live in pain because some junkies can't control themselves is ridiculous. The medical community needs to find a way to address pain without treating normal patients like we're all potential addicts.
Wicked Coolname I’m here because a friend has the disease. Have you looked at marijuana medical edibles? They may be able to help. Medical dispensaries are a wealth of knowledge. Hope you get some relief! 😄
@@bcfriardoyle7697 No. I don't have much faith in marijuana as a pain medicine. Only because I smoked pot from my mid terms through my 30s. Not for any medical reasons, but just to get high. I don't recall it ever doing anything for pain. But, I'm open to trying again. It might not help, but it probably can't hurt.... No pun intended.
Wicked Coolname it’s not your moms weed anymore that’s for sure. Good Luck.
Wicked Coolname you need Rituximab
Wicked Coolname it will return your white blood cell count to Normal, and reverse the effects of the disease, luckily for me here in Australia, the government provides the drug free of charge
Now this is medical education to the next level!
Yes!
Thank you so much 😊
Very useful ..
We are very proud of you in Egypt.
We recommend your videos to all our new colleagues.
Thank you ❤❤
So nice of you!
Thank you!
I- e Ludwing angina II- b dental hygiene III- c anarobic gram -ve IV-d celllitis V-a VI-d
Wow! I was really struggling to understand this disease, so I watched several videos. This one was the most helpful. It also provides detailed and additional information, which is great for exams. Thank you, an excellent piece of content! Love from TURKEY ❤
I appreciate you so much!
Pride of Egypt bro😂❤
I dont have this
I'm not trying to be a doctor
But I feel really educated right now
Lol
Wow! Thank you so much 😊
haha I swear at one point this guy called me Baby. Loved the video, very engaging!
Thank you so much ☺️
looove the Questions sooooooo much ...keep going
Thanks 😊
This was amazingly useful, thank you!
Thank you so much for your encouraging words!
Can you please help me by sharing?
Would you be able to review a case of wegener's with gastrointestinal and CNS/brain involvement, possibly on UA-cam or your website? This was very very interesting. I have wegener's vasculitis (GPA) with involvement that seems to be less common.
I was a female patient with wegeners granulomatosis
@@abeersheikhabeersheikh8067 what are the first symptoms in your case
im waiting for the questions that have answer a til z 🤭🤭
عااااااشتتتتتت مصرررررر امممممم الدوووووننياااااا
Do you mean "ssssss" as in the movie (Assal Eswed / bittersweet ) 😁 ?
you are still my fav guy on UA-cam!!!!!
Thank you 🙏
Did not know you were Egyptian! بجد؟؟
this mnemonic will make people understand harder
Wow 😍 lovely video 💟🌹🍦
Thank you!
Thank u
My pleasure 😇
This is amazing
Thanks 🙏
omggg ure egyptian!!!!!! im so proud
thanks!!
My pleasure 😇
What do u mean by u're Egyptian
I'm egyptian but didn't understand u 😕
قصدها نعذره يعني لو بينطق ال c غلط او بيحطها في موضع غير موضعها لانه في الاول و الاخر مصري مش لغته الاساسية الانجلش و كمان لاننا كمصريين بتوع فهلوة و بنلصم اي حاجة في أي حاجة 😂😂😂
G-d bless you… the answer is right up my alley!!!
You too! Thank you 🙏
Why you make fun of Egypt in most of your videos!
Just joking 🙃
I am Egyptian!
I wasn't sure which video you're referring to about the answers to the questions cuz there're 80 videos in the pulmonology section of channel. Do you mind posting the answers? Thank you.
Hey 👋
Can you please send me an email?
I will give you all the answers that you want.
my email is:
medicosisperfectionalis@gmail.com
Wow 😮 👏🏻👏🏻
Thanks 😊
Thanxx❤
Beautiful😘 loved it
Ludwig angina
✅✅✅✅
Keep going ammazing work😍😍
Thank you 🙏
Hi ..your channel is very interested thanks for all your effort that you give to us ❤️.. please could you make a video of how reading and diagnosis the CBC readings?by looking to each indices of RBCs . ❤️..sorry if there is a wrong in my words that because english is not my mother tangue .
Differential CCCChurg-strauss :)
Make one with P for Churg strauss
Sx:
resPiratory Problems (asthma)
Polyneuropathy or mononeuroPathy
Pulmonary infiltrates
eosinoPhilia
Dx:
P-anca
Tx:
cycloPhosPhamide
Prednisolone
azothiPrine
Ohh god your mnemonics are the best even though they make no sense sometimes :D
Thank you so much 😊😊
Can I post this mnemonic on my channel?
Do I have permission from you?
@@MedicosisPerfectionalis Of course! Keep up the great work it's a blessing.🙂
"This is everything in the world you need to know about Granulomatosis with Polyagiitis." Umm no. Patients are easily fatigued, muscle weakness, joint pain. This continues for many even after treatment Not enough Dr's are addressing that part of this disease. There's also "Limited" GPA which does not affect the kidneys but the word limited does not mean less serious or less in need of treatment. "Limited" can change and maybe affect the kidney's with a disease flare. Let's add a few more C's: Flares are Common. PneumoCystis Pneumonia prophylaxis - BaCtrim DS 3x per wk, Childless -Cyclophosphamide causes birth defects and early menopause (wish my Dr knew about that) Bladder Cancer - also caused by Cyclophosphamide tablets (something else my Dr didn't know). This is why Rituxan is used for initial therapy now as well as maintenance. Thank you for getting the word out about this rare disease. : ) Dx'd 2002
Thank you for sharing your thoughts.
If I sent you my symptoms and photos could you tell if this is maybe what I have? As all my symptoms fit and my local drs are useless and I'm at my end of help. :( No anca test yet. tested for everything else, mg, ms, lems, etc.
I can try my best to help you, but I am not a practicing physician so I can’t give medical advice.
I just teach!
@@MedicosisPerfectionalis
sweating
fatigue
fevers
dry mouth, day excess night
itching
double vision
pupil changes
shortness of breath/coughing
food stuck in throat, comes up hours later
eye opening at night
high blood pressure
zaps
bone pain
face pain
chest muscle pain night or severe stress
weight loss 30 pounds
immune system & infections
granuloma annulare
pass out in shower/heart palpitations
ankle/ leg swelling
started topamax aug 12, stopped sept 1.
started migraine shot sept 11
started swanson sept 6th
june started pupil changes
double vision attacks
pupils got better double vision stayed
few weeks ago sore throat
turned into sneezing and cough
turned into bronchitis
eyes started again. while looking at face I noticed facial droop.
face still swollen but less droop