Thank you. One of the best talks I’ve seen to educate patients. The last part about using fibrosis grades to distinguish pv/et vs MF was great information. I never heard others explain that before.
Thank you, Ann and Dr. Petit! Having the terms explained is like learning a language which allows me to talk with my hematologist about my CBC results which I get each month. I’ve been diagnosed with primary MF for 4 yrs. I’m jak2 positive and my LDH is above normal. I think it’s taken me this long to be ready to learn from Dr. Petit. And it was helpful for me to have my CBC results it front of me during the presentation…Ron
Fantastic presentation! I wish this resource was available 1 year ago when I was diagnosed with PMF. I really had to advocate for myself to find great resources to familiarize and educate myself. I really appreciate all this advocacy does to help patients make well informed decisions throughout their MPN treatment plan. I have a wonderful hematologist/oncologist but it’s always best to be knowledgeable about your disease as well.♥️
Thank you for the information....the meanings and descriptions of all the jargon......Just diagnosed with primary myelofibrosis no mutants/variations. Awaiting appointment with my specialist.
Thank you. One of the best talks I’ve seen to educate patients. The last part about using fibrosis grades to distinguish pv/et vs MF was great information. I never heard others explain that before.
Thank you, Ann and Dr. Petit! Having the terms explained is like learning a language which allows me to talk with my hematologist about my CBC results which I get each month. I’ve been diagnosed with primary MF for 4 yrs. I’m jak2 positive and my LDH is above normal. I think it’s taken me this long to be ready to learn from Dr. Petit. And it was helpful for me to have my CBC results it front of me during the presentation…Ron
This!!!!! So helpful!!! Thanks to Ann and Dr Petit.
Thank you for this, brilliant presentation. I have had ET for 13 years and this will help me so much.
Fantastic presentation! I wish this resource was available 1 year ago when I was diagnosed with PMF. I really had to advocate for myself to find great resources to familiarize and educate myself. I really appreciate all this advocacy does to help patients make well informed decisions throughout their MPN treatment plan. I have a wonderful hematologist/oncologist but it’s always best to be knowledgeable about your disease as well.♥️
Thank you for the information....the meanings and descriptions of all the jargon......Just diagnosed with primary myelofibrosis no mutants/variations. Awaiting appointment with my specialist.
No mutations? How did they figure it out or "see" it?? I'm fighting my sixth year to get diagnoses
Incredible presentation. Thank you so so much for explaining everything so clearly and in-depth 🙂