Відео

fruits and vegetables are not a good source of vitamins and minerals both by weight and because they have alot of anti-nutrients in them that bind vitamins and minerals up so they can not be used by the body and might even bind more vitamins and minerals from foods eaten with the vegetables too. if you want vitamins and minerals, egg yolks, liver and other animal organs are high in them and as long as you eat the organs in moderation then you will be fine. no limit on the eggs. this is why the doctor giving this advice is suffering from mild sarcopenia. you can see it in her shoulders which are close to 90 degree angles and the lack of muscle in her neck and cheeks making no longer full and her eye lid skin sag, as well as her neck skin no longer being fully filled out do to the muscle wasting that is sarcopenia. she is a doctor, she is NOT taught proper nutrition and nether are nutritionist for that matter because by law they have to follow the food pyramid. if i was that lady... the way she could fix all those problems i just mentioned would be to have at least 1 fatty steak a day, some buttery bacon and eggs in the morning and when she drinks. she also needs to start taking taurine powder, start at 2 grams and slowly move up to around 4gram daily until she has the right body condition and then stay at a 2 grams daily for the rest of her life because she is old enough to already having the ability to produce her own taurine be cut in half, and when she hits 65 she would be making almost no taurine so it is all derived from the diet after that... that's why you see so many old people with muscle wasting/sarcopenia and they are just bags of skin and bones, no muscle. I'm not even mad at this doctor, she was lied to just like the rest of us were. i'm sure she does well for her patients, she just needs to do a deep dive into ancel keys, and then explore animal based keto and carnivore diets.

red meat is always the answer. it's carbs that screw people over. Kellogg's cereal funded ancel key's faked on purpose studies that were the basis for the american food pyramid. it was only the basis because kellogs spent a ton of money lobbying congress to base the food pyramid off of ancel key's faked research. if you ever want true proof it was the food pyramid making everyone fat and sickly just a couple years before the food pyramid was released telling people to avoid red meat, and all animal fats, to focus on seed oils, and eat carbs for their main source of energy.. well woodstock had between 400k and 500k american youths that attended that massive concert. they were animal based and red meat eating back then. you mission is to find a picture of a fat kid that attended woodstock.. spoiler you won't find any. the rise of disease and sickly american health outcomes rose with the interduction of the food pyramid just a couple years later. you look at american kids and you would be hard pressed to find a group of them that has 1k people that doesn't have some fat kids in there.

I've been helping a friend do biohacking for a long time and there was always something stopping him from getting fully healthy. i finally told him to just get a 23 and me test and then get the raw data from 23 and me and run it thru one of the auto dna problem finders and with promethease he was able to find out he had ET. so now i am doing research into ET. but in hindsight, knowing he has alot of cardiovascular issues and i had him taking high taurine for awhile there to help dissolve some gallstones he had, he noticed the taurine made him feel alot better. taurine is used in all the body's dealing with proteins and most people are low on it and by the time they are elderly they produce almost none of it and then they get sarcopenia (muscle wasting that turns them into skin and bones) but taurine does amazing things for the cardiovascular system as well, too many to list, but it with k2 mk4 and some vit d3, will dissolve cholesterol blockages in the vessels and heart. if it is clearing that type of vascular debri then why not a build up of platelets? he DID feel better on taurine after all. i probably won't go as high dose as he was for the gall bladder stone dissolving protocols, so maybe start at 2 grams daily and work your way up to around 5 or 6 grams daily... that's the plan anyways. and btw.. i am not a doctor, this is NOT medical advice.. i just work with a scientist and we mess around and do a bit of GRAS level experiments.

About sedation- that’s ridiculous! A patient gets a level of sedation for an endoscopy, but is expected to deal while a portion of their body is extracted! No thank you!

Thank you for an excellent program! It's great to take note of the extra risk of heart proglems as part of MPN problems.

Thanks guys, really interesting as always

Good evening from North Europe, Lithuania. Thank you for share

Wanted to comment since I have started exercising consistently over the last year and a half and changed my diet, reduced alcohol tremendously I don’t have many symptoms other than some fatigue every now and then. And even that I wonder if it’s a menopause factor or ET related. Oh, and lots of water.

As a MF patient with a CalR mutation I truly appreciate these videos. Many of my questions have been answered. Thank you

I have ET

Diagnosed a little over a year ago with PV, and as someone not in the typical age range it is so hard to find consistent information. Thank you for making this and making it available!

Very informative. Thank you Dr Rampal for the great webinar and to MPN for coordinating these events. I have learned more each time I tune in.

Im 39yrs i have night sweats. I feel so hot at night at around 2-3am. And the duration of my menstruation is becoming less. Is it related to ET?

WERE EVER SHE WORKS FOOT FETISH GUY'S MUST KNOW THAT (INTOXICATING INTENSE SEXY AROMA) 😮😮😮😮😮

Thanks guys, always informative and this really helps the MPN community.

I watched this live, had a couple of questions answered, and it was fantastic. This is the 3rd one I have watched this year and I look forward to each one. Thank you!

Thank you both for taking the time to put these kinds of webinar's together for patients and families. I just found this channel and have just subscribed!

My bf has been recently diagnosed with ET and im trying to support him as much as I can. He suffers from really severe fatigue and this is pretty much his the only symptom so far. He was put on interpheron. I'd like to know if his fatigue could improve once his platelets count goes down. I'd appreciate your answer 🙏

The sound is very muted on this video...can you fix it or reload the presentation?? It is an important one, for sure.

Wow! Thank you!

I did the 23&me research study.

Thank you for the video

Really happy to see someone address masking and other mitigations for MPN patients. I have ET and wear masks indoors around others and don't eat or drink in restaurants. Still a novid as far as I know.

My daughter and me, we have ET with out mutation

Also it seems when they're asked...how long can you live on "hydroxycarbomide" as they now call it now in the UK. They don't know, simple as that, just keep going on about the "exiting" new drugs in the pipeline. I'm more worried about taking hydroxy than my actual condition.

I had a bone marrow sample took in 1993 (I've got ET) absolutely horrible.. got a small female nurse trying to punch through the back of my pelvis with God knows what, her feet were skidding on the hospital lino and couldn't punch through. She left and a big fella came in, said "brace yourself" and the instrument just went in straight in.... whack! I spewed up and my head was spinning...traumatised in shock looking back. Can still feel exactly where the "punch" went in 31 years later, and the spot it went in hurt for about a decade after. I had no monitoring after or information given before the procedure. Fucking brutal and I've always been a hard man. Would never have another, 56 now.

Are the graphs you are showing at minute 16/17 of this video referring to all ET patients or to those who were not vaccinated at the time of contracting COVID. How do ET/JAK 2/over 60 on HU fare if they are fully vaccinated...7 vaccines including the new one this fall. Thank you for this very interesting talk.

Thank you for mentioning the environmental aspects at about 8:15; I'm an Iraq Veteran and have been going back and forth with the VA on their assessing a service connection.

Who’s the one wearing the red blouse? And her short skirt really accentuates her legs……It’s a shame the brunette head was blocking the view thou.

I have experience very severe headache, bed sweat at night, feel itchy after shower,my gums if i tooth brush easy to blood,blurred vision sometines,sometime having red eye,swollen feet if i eat fork ,beef,back pain .Sometimes in a year i feel pain in my abdomen swollen spleen. When i go to the Doctor hematology, The doctor recommend me to have a bonemarrow test and Im very scared of bone marrow test .I heard it was very very painful. Then I go to another Dr. And have second opinion for blood test and found out that i have Jack2 .And diagnosed of polycythemia vera (PV) and prescribed me of ,aspirin Hydroxyurea . For my hypertension Losartan,amlodophin Now since i have diagnosed more the 1 year now and still surviving.

I was diagnosed year 2023,and doctor prescribed me Hydroxyurea blood count sometimes good ,sometimes bad just recently i have blood test and my platelet count 453. Any foods recommend to me to lower red blood?

So much great information. Thanks so much

Thank you for answer. Continue taking heart etc meds and Hydrea. I find i get virtigo quite often. Causing falls alot. Why?

Good info we haven’t heard before. Thank you.

Such a great presentation.

Thank you so much for this good information. I was diagnosed with ET and the Jak 2 Mutation in April 2023. Hydroxyurea has lowered platelets to normal, but is not consistent. Doctor can't explain that. Same healthy diet, exercise and drinking at least one liter water per day. One important thing that Dr. Mesa said is how challenging it is to have this rare disease- since most people have never heard of it and have no way to relate to you.

Great patient symposium to all the speakers. Great information!!! Kudos to all of you.

Incredible talk & information! Thank you.

Thank you for this presentation, I’m newly diagnosed and have been looking for something to tie together reasons/ ratios/ values. I’m so appreciative.

Looking forward to discussions regarding blood disorders induced by the MRNA injections. I now have slightly sustained elevated platelets (450) since one year after the injections mandated at my work.No mutations! Slight Kapp elevation. Former annual labs going back to 2012 show I had normal bloodwork and no comorbidities. Very healthy! No family history of cardio or high BP issues. No blood mutations. University medical hematologists cannot figure it out. Thanks , Moderna, for Thrombocythemia that nobody can explain.

Thank you so so much for this. You guys are amazing ❤

Thank you for taking the time to inform patients about MPN’s. I was diagnosed with ET in 2020 and have watched pretty much any video related to ET. Again, thank you for all you do.

Great presentation! I learned a lot even though I have MF! We have to get into those little cells, sniff out the cancer, and get everything working better.

Can you please breakdown what an Allis Burden means in terms that a non -medical person can understand? My Burden was 3, I have PV and Jak2 positive. Thank you..

Yes itching 2014 before “diagnosis” in 2016. Led me to self- diagnose. Awful. JAKAFI stopped the itching within hours! Now, I have started to itch if I am late with the medication.

Taking rux since 2019. Allele % 68%. On 03 08 24 allele % now 74.9%. Rux did not help with the population of mutant stem cells. Or am I losing relatively more normal stem cells, during the loss of stem cells that may occur during normal aging?

I wonder if taking Hydroxyurea only twice weekly if it is effective controlling high platelets? Thanks for a great video.. Coco

What to do to lower high platelets counts? Or what foods to eat is there any?

Good day both i was diagnose in 2020 of ET from Massachusetts USA my oncologists treatment hydroxyroyea for rest of my life,My question is can i change or replace to enterperon from hydroxyorea im a low risk patient .because i speak up my oncologist about this and he said interperon have a lot of side effects.he doesn't recommend the interperon?according to my research interperon has none toxic rather than hydroxyorea.please help me about my questions thank so much i really appreciate.God bless.

Look at the doctor, she can't keep shoes on her feet.