This makes me so sad 😢 Both my grandma and grandpa on my mom's side had dementia, so it makes me worry for my mom. She just turned 73 and is doing really well, but both her parents didn't start showing signs until they were in their 80s. Also, makes me wonder if I'll someday have it too. Truly scary and sad
My mother exhibits this behavior. She is still able to shower and dress. Thinks she can do everything she has ever done. This brings forth a real concern of accidents. If there is a blessing, it's the fact they haven't a clue the outcome from this disease. It's way tougher on the care givers. Kills two at the time, I'm learning.
i'm wondering if my mom has this. She has no concept of her health conditions. She has CHF , COPD, She's type 2 and now her kidney's are starting to "act up"...(just using that to describe it). Her concept of time is way out in left field. her short term memory is going. I'm thinking a lot of this is due to her type 2 which is not really maintained as well as it should be. It's finally messing up her mind. She's currently in the hospital again for fluid in the lungs. I talk to her every day and she still tells me the dr's dont' know what causes it, it just happens. She's also told us that it's because she drinks too much fluids. (then why doesn't it happen to all of us? She never has an answer for that). Mom has been an "Ignore it and it will go away" person her entire life. It's a wonder any of us kids live to adulthood. I could tell you stories.... She ignored her gall bladder for almost 10 years saying it was an ulcer (and supposedly the dr said that too....according to mom). Finally she went and had it removed. When we were kids we'd get what was probably bronchitis but we never went to the dr. (both parents smoked IN the house. I would get bronchitis almost yearly until almost 10 years after I moved out--I never smoked). We never went to the dentist unless we were in pain. We never even finished all our immunizations. We all only found out as adults. Back to mom.... About every 8-10 months mom is in the hospital from fluid in her lungs. Back in oct 2020 she had a dr appt. and I called her three hours earlier to remind her and she said she didn't want to go because she didn't feel good and wasn't sleeping well. She is very lazy and does nothing but watch tv. I argued w/ her that she's going. My sister called her to talk to her. She noticed mom walked to the fridge and was totally out of breath. Mom just said, "i'm fine, it's just because I walked to the kitchen". She literally couldn't get a word out. Back track... I told her a few days earlier that she should put the cordless phone in the room in case she has to call one of us or 911. She whines, "oh but I have to unplug it".. that is too much work for her so she never did it.. .Ok, back to mom.. So, we decided we should take mom to the ER. Mom throws a fit. (like always). She starts with her usual, "I have to take a shower, I'm a mess, I have to talk to my brother later, My sister wanted to go to the store" etc. We told her dr's don't care what you looke like. and she gets angry and says, "I DO!". So our other sister came over with her pulse oximeter and her BAC was 78!!!! We promptly called 911 and they were there in less than 10 min. She spent 12 days in the hospital. Fast Forward to last week. This time SHE ACTUALLY called my sister (who lives upstairs) that she is having trouble breathing and sister called 911. She's telling the EMT's she has no heart history. She says she was in the hosptial 2 years ago (it was 8 months ago). She tells the dr in the hospital she was on heart meds but the dr. took her off them because her heart is better. (um no it's not.. she just ran out of them and doesn't tell anyone she ran out). and you guess it... she's STILL telling me dr's don't know what's causing the fluid build up in her lungs. I KNOW this isn't right and she needs care. We have no money and all of us kids have to work to survive plus we all have kids so when are we supposed to watch over her 24/7? Sorry for the rant. I know I'm not alone. Just looking for others that are in the same position!!
it's okay for you to get irritated sometimes ...but I know you love your mother so much 🥰 and that's really rare nowadays ...I can feel your pain from your words...but i tell you...your mother is in much more pain buddy 😔 imagine being grunted for something you consider normal, every now and then and nobody literally understands what you are feeling , people are trying their best to comfort you ...but even you yourself are not able to find what's wrong with you ...you take medications every minute like a staple diet and still not physically fit ...people around you are worried for you all the time...but they have no time to have some sweet moments with you . It's like chaos in your mind everytime. may be this is what your mom feels sometimes. I hope everything goes well and your mom will be back with you lively and healthy 🥰
Never thought I could learn so much from a 3-minute video. This will definitely change how I see things. I have one question though, is dementia a type of anosognosia or did you just use it as an illustration since it manifests many of the signs of anosognosia.
Anosognosia is the state of being unaware of having symptoms or a disorder. It's a common symptom of dementia. It can also accompany some types of strokes, some traumatic brain injuries, and other conditions--depending on what part of the brain is affected.
An actual tip is to make taking a bath a relaxing thing, associate it with things she finds relaxing. In therapy, they usually akin it to a spa, with you acting as someone working at the spa.
@@MishaFlower It seems like you have not dealt with many people with dementia. You must set aside your sense of reality and deal with them in whatever way will help them. They are the priority, not you. It often takes a lot of pure and compassionate unconditional love and DEFINITELY patience. I am assuming your comment was satirical, but whether it was or was was not, I hope you never have to be a caretaker for someone you love who needs this kind of care.
I don't think I have dementia but I definitely know I'm in denial and have struggled with many symptoms and have been mentally enough to keep my sanity. My head says something else sometimes and comes up with ideas, but my heart keeps me inside from the rain so to speak. I feel like I'm stuck being an old me (as I was as a teenager) and afraid to let myself grow idk what to but I don't think my problem is serious but I have problems sleeping my mind is always going sometimes it hurt to breath and I feel like breaking down. If I can't do it then I won't do it at all I don't like hell to often and I'm angry alot of the time. And hit lows often. What do I do? And what should I be asking?
Go to the doctor and tell him what symptoms you have. The longer you wait the worse it'll get. It's not embarrassing or stupid, your doctor has 10 people/year coming into his office thinking they have cancer because they vomited (or something along the lines). Being worried isn't weird. So phone him right now and ask him for an appointment.
Anosognosia - Now that's a word. My spellcheck doesn't even recognize it. I've only recently added it to my vocabulary, but I've been mispronouncing it evidently. Although when I went online for pronunciation guides, I found at least two different pronunciations. Anosognosia is a co-occurring disorder in 50% of those with schizophrenia. This leads to homelessness because they can't care for themselves and don't believe they need mental health care. (I'm not denying that most homelessness is from poverty and ever increasing wealth inequality.) They prefer their delusions. Those who love them are often helpless in getting them care. In CA you cannot force mental health care on someone unless they present a clear and present danger to themselves or others. The problem with that is violent ideations are episodic. In other words, one can present a threat of violence at one moment and not at another. They are not a threat until they are. Although any cop can detain you as "5150" (the gov't code in CA), most mentally ill people are savvy enough to present as not a danger when faced with the possibility of going to jail. Thus, our loved ones who suffer psychosis are allowed to deteriorate. We wouldn't let grand dad with dementia (and anosognosia) leave the house and wander, yet when the diagnosis is schizophrenia in a young adult we can't infringe on their civil liberties and bring them home and to treatment.
Not to be unkind, but, you cannot do it. They no longer have the ability to reason. All you accomplish is to get the both of you upset, frustrated, and possibly worse. I had to learn that the hard way in the 1980s when there were no resources such as UA-cam.
Wait…I’m even more confused than before. Wouldn’t ALL OF US grimace if someone said they were going to help us with a bath? This is sort of like someone saying “You’re in denial”, how does one object to such a lazy and self-serving accusation? And if you don’t know you have it, how do we know this woman doesn’t suffer from it?
It's really easy. You show someone a video of how dirty they are - they'll still deny it. The rest of society will rightfully say you're filthy you need a bath. But the one person who has anosognosia is saying they're not dirty. I'm with the majority (and my nose) on this one.
Can it be that humanity is experiencing anosognosia? I'm omniscient and it seems for me that humanity experiencing some kind of decline in consciousness.
The ease with which you explained anosognosia reflects your experiences with the patients. Thank you for the clarity!
This makes me so sad 😢 Both my grandma and grandpa on my mom's side had dementia, so it makes me worry for my mom. She just turned 73 and is doing really well, but both her parents didn't start showing signs until they were in their 80s. Also, makes me wonder if I'll someday have it too. Truly scary and sad
Oh dam that’s fucked good luck with that
This has changed my view tremendously. What a great explanation, thank you!
My mother exhibits this behavior. She is still able to shower and dress. Thinks she can do everything she has ever done. This brings forth a real concern of accidents.
If there is a blessing, it's the fact they haven't a clue the outcome from this disease. It's way tougher on the care givers. Kills two at the time, I'm learning.
Confabulation in the strangest part of it all.
i'm wondering if my mom has this. She has no concept of her health conditions. She has CHF , COPD, She's type 2 and now her kidney's are starting to "act up"...(just using that to describe it). Her concept of time is way out in left field. her short term memory is going. I'm thinking a lot of this is due to her type 2 which is not really maintained as well as it should be. It's finally messing up her mind. She's currently in the hospital again for fluid in the lungs. I talk to her every day and she still tells me the dr's dont' know what causes it, it just happens. She's also told us that it's because she drinks too much fluids. (then why doesn't it happen to all of us? She never has an answer for that).
Mom has been an "Ignore it and it will go away" person her entire life. It's a wonder any of us kids live to adulthood. I could tell you stories.... She ignored her gall bladder for almost 10 years saying it was an ulcer (and supposedly the dr said that too....according to mom). Finally she went and had it removed. When we were kids we'd get what was probably bronchitis but we never went to the dr. (both parents smoked IN the house. I would get bronchitis almost yearly until almost 10 years after I moved out--I never smoked). We never went to the dentist unless we were in pain. We never even finished all our immunizations. We all only found out as adults.
Back to mom.... About every 8-10 months mom is in the hospital from fluid in her lungs. Back in oct 2020 she had a dr appt. and I called her three hours earlier to remind her and she said she didn't want to go because she didn't feel good and wasn't sleeping well. She is very lazy and does nothing but watch tv. I argued w/ her that she's going. My sister called her to talk to her. She noticed mom walked to the fridge and was totally out of breath. Mom just said, "i'm fine, it's just because I walked to the kitchen". She literally couldn't get a word out. Back track... I told her a few days earlier that she should put the cordless phone in the room in case she has to call one of us or 911. She whines, "oh but I have to unplug it".. that is too much work for her so she never did it.. .Ok, back to mom.. So, we decided we should take mom to the ER. Mom throws a fit. (like always). She starts with her usual, "I have to take a shower, I'm a mess, I have to talk to my brother later, My sister wanted to go to the store" etc. We told her dr's don't care what you looke like. and she gets angry and says, "I DO!". So our other sister came over with her pulse oximeter and her BAC was 78!!!! We promptly called 911 and they were there in less than 10 min. She spent 12 days in the hospital.
Fast Forward to last week. This time SHE ACTUALLY called my sister (who lives upstairs) that she is having trouble breathing and sister called 911. She's telling the EMT's she has no heart history. She says she was in the hosptial 2 years ago (it was 8 months ago). She tells the dr in the hospital she was on heart meds but the dr. took her off them because her heart is better. (um no it's not.. she just ran out of them and doesn't tell anyone she ran out). and you guess it... she's STILL telling me dr's don't know what's causing the fluid build up in her lungs.
I KNOW this isn't right and she needs care. We have no money and all of us kids have to work to survive plus we all have kids so when are we supposed to watch over her 24/7? Sorry for the rant. I know I'm not alone. Just looking for others that are in the same position!!
it's okay for you to get irritated sometimes ...but I know you love your mother so much 🥰 and that's really rare nowadays ...I can feel your pain from your words...but i tell you...your mother is in much more pain buddy 😔
imagine being grunted for something you consider normal, every now and then and nobody literally understands what you are feeling , people are trying their best to comfort you ...but even you yourself are not able to find what's wrong with you ...you take medications every minute like a staple diet and still not physically fit ...people around you are worried for you all the time...but they have no time to have some sweet moments with you . It's like chaos in your mind everytime. may be this is what your mom feels sometimes.
I hope everything goes well and your mom will be back with you lively and healthy 🥰
thanks ...great video
Really informative
Never thought I could learn so much from a 3-minute video. This will definitely change how I see things. I have one question though, is dementia a type of anosognosia or did you just use it as an illustration since it manifests many of the signs of anosognosia.
Anosognosia is the state of being unaware of having symptoms or a disorder. It's a common symptom of dementia. It can also accompany some types of strokes, some traumatic brain injuries, and other conditions--depending on what part of the brain is affected.
Thanks for sharing
How does one help a loved one get insight into their condition or deal with anosognosia?
Support groups or contact that could help online?
wow, they dont know what they dont know... thats the real shit here
the more you know, the more you know that you don't know shit
Going thru this with my mom right now - how do I get her to take a bath or help her with anything really without causing her anxiety
Pure love and compassion. Unconditional love and patience is the only way of doing it.
An actual tip is to make taking a bath a relaxing thing, associate it with things she finds relaxing. In therapy, they usually akin it to a spa, with you acting as someone working at the spa.
@@Xpistos510 We're also going to ride unicorns on rainbows, OOHHHH WEEEE.
@@MishaFlower It seems like you have not dealt with many people with dementia. You must set aside your sense of reality and deal with them in whatever way will help them. They are the priority, not you. It often takes a lot of pure and compassionate unconditional love and DEFINITELY patience. I am assuming your comment was satirical, but whether it was or was was not, I hope you never have to be a caretaker for someone you love who needs this kind of care.
@@janicewest6648 he’s right though, if just loving someone was enough to solve issues, there wouldn’t be issues.
Wow my brother is just like that
I don't think I have dementia but I definitely know I'm in denial and have struggled with many symptoms and have been mentally enough to keep my sanity. My head says something else sometimes and comes up with ideas, but my heart keeps me inside from the rain so to speak. I feel like I'm stuck being an old me (as I was as a teenager) and afraid to let myself grow idk what to but I don't think my problem is serious but I have problems sleeping my mind is always going sometimes it hurt to breath and I feel like breaking down. If I can't do it then I won't do it at all I don't like hell to often and I'm angry alot of the time. And hit lows often.
What do I do?
And
what should I be asking?
Go to the doctor and tell him what symptoms you have. The longer you wait the worse it'll get. It's not embarrassing or stupid, your doctor has 10 people/year coming into his office thinking they have cancer because they vomited (or something along the lines). Being worried isn't weird. So phone him right now and ask him for an appointment.
Anosognosia - Now that's a word. My spellcheck doesn't even recognize it. I've only recently added it to my vocabulary, but I've been mispronouncing it evidently. Although when I went online for pronunciation guides, I found at least two different pronunciations.
Anosognosia is a co-occurring disorder in 50% of those with schizophrenia. This leads to homelessness because they can't care for themselves and don't believe they need mental health care. (I'm not denying that most homelessness is from poverty and ever increasing wealth inequality.) They prefer their delusions. Those who love them are often helpless in getting them care.
In CA you cannot force mental health care on someone unless they present a clear and present danger to themselves or others. The problem with that is violent ideations are episodic. In other words, one can present a threat of violence at one moment and not at another. They are not a threat until they are. Although any cop can detain you as "5150" (the gov't code in CA), most mentally ill people are savvy enough to present as not a danger when faced with the possibility of going to jail. Thus, our loved ones who suffer psychosis are allowed to deteriorate. We wouldn't let grand dad with dementia (and anosognosia) leave the house and wander, yet when the diagnosis is schizophrenia in a young adult we can't infringe on their civil liberties and bring them home and to treatment.
Poor people, but fascinating stuff. What happens when you try to explain anosognosia to someone with anosognosia?
you need to map cognitive glitchs and use it to explain
What if everyone has anosognosia? Most psychiatrist are mentally ill.
Not to be unkind, but, you cannot do it. They no longer have the ability to reason. All you accomplish is to get the both of you upset, frustrated, and possibly worse.
I had to learn that the hard way in the 1980s when there were no resources such as UA-cam.
Wait…I’m even more confused than before. Wouldn’t ALL OF US grimace if someone said they were going to help us with a bath? This is sort of like someone saying “You’re in denial”, how does one object to such a lazy and self-serving accusation? And if you don’t know you have it, how do we know this woman doesn’t suffer from it?
It's really easy. You show someone a video of how dirty they are - they'll still deny it. The rest of society will rightfully say you're filthy you need a bath. But the one person who has anosognosia is saying they're not dirty. I'm with the majority (and my nose) on this one.
If you are not a psihiatrist RUN! out of that person!!!
Can it be that humanity is experiencing anosognosia? I'm omniscient and it seems for me that humanity experiencing some kind of decline in consciousness.