It makes sense that MCAS is linked to abandonment trauma. Because if you are an infant or child that has been abandoned, your safety is threatened. You live your life in a state of hypervigilance trying to survive. Is it any wonder that your mast cells become hypervigilant too.
@@mariellinda8624 I am doing the same. I have gone to 5 doctors In the past 20 months since COVID and they don’t know or don’t believe me. It is hard to find a doctor.
It was actually my Functional providers that recognized that I might have EDS, my Allopathic providers didn't have a clue. Oxylates can be a problem too along with Histamine.
This was great, thank you! I'm a Naturopath with MCAS that was triggered by Lyme/CIRS. I found that Amlexanox peptides were VERY effective at helping me regain foods back and it's not talked about a lot within the community. It's definitely something that practitioners should consider for their MCAS patients.
@@lindapelle8738 A lot of compounding pharmacies offer peptides, you would just have to find one in your area that offers Amlexanox and find a prescriber in your area that is familiar with peptides too. Once you find a pharmacy that offers them, ask who prescribes them often - sometimes it's easier to work backwards that way. :)
@@helendillard7784 If you do this type of work, try looking at feelings of safety, or safety in the world as possible imprints. It seems to be very common with allergy patients. It's as if the whole world is attacking you, and that's a fruitful place to 'poke around' for details of what this means to the patient. There are also feelings of panic when anaphylaxis is triggered regardless of which organ system is affected, in my case it was the GI tract and I'd awaken with panic every morning. Once the GI started to calm down, the cortisol trigger faded away.
How about a flight or fight experience triggering MCAS? If so, I think that was mine. Can we ever reset this or has the train left the station for good? Can you share any studies and treatments?
Both of you need to ring the bowl for this amazing conversation. This will be extremely helpful in helping me navigate the topic of histamine intolerance and mast cell activation with my doctor as I battle these crazy hyperpigmentation skin lesion reactions I've been having the last 6 months. They've made me highly insecure, wearing more makeup than I have ever worn and one even had a biopsy done on it now creating a huge scar to go with this hyperpigmentaion.🤦🏾♀️ Through it all my doctor hasn't had one answer for me that made sense.
One thing I never heard mentioned was hormonal causes of mast cell activation. Even in studies using different types of medications from my experiences it needs to be well over 3 weeks to go through a full and complete cycle because something within the cycle is causing the reaction for me. And I cannot get anybody to daily test hormones to see what is setting it off.
Doctors suck. Good luck finding one who wants to help you. They just want to treat the sniffles and if you don't have the sniffles they will run a few blood test and tell you you're fine. Check into Hashimitos disease see if you have thyroid anyibodies. Not that it will matter there's nothing they will do anyhow.
Thank you for this thoughtful, enlightening discussion on MCAS. While you touched on nutraceuticals as a potential treatment approach, the only one explicitly mentioned was quercetin. Are there others (stinging nettle, digestive enzymes, etc.) that are worth trying? Many patients prefer a natural approach over OTC antihistamines, which can have side effects and generally are not sustainable long-term solutions. And unfortunately many people with MCAS are trying to navigate a sea of conflicting information on their own, without any help from the conventional medical community. So your guidance is welcome.
I have MCAS and Ketotifen helped me a lot . I was taking many antihistamines at rhe same time but when the doctor an allergist prescribed Ketotifen it made a hugh difference everything calmed down. I stopped having so many allergic reactions. What started it all was an allergic reaction to a flu shot for seniors, I did already have some allergies to some medications. He's right about dosing of foods.
Wow, wow and wow…..explained so well. I have MCAS and someone asked me the other day, I told them I didn’t know….I read about it all the time, TRYING TO FIGURE IT OUT… who knew(pepperonis) hyperactive immune response…bingo! So thank you very much!
My tryptase was normal but I definitely have MCAS. All other symptoms for it are positive. So it's still unknown. Histamine and Salicylate allergy plays a big part too.
I have had a gastro tell me that my problems were caused by "my thoughts" and I had a natural doctor quit on me because I was "too sensitive" to everything.. My PCP wanted to send me to a shrink so clearly she thinks its from my "thoughts" as well and she thinks going on a shrink drug is supposed to fix everything so I can then eat all the countless foods I react to! Well I am not THAT stupid. This has only led to doctor anxiety and me NOT trusting doctors. And I totally REFUSE to take anything as these long years has only taught me I REACT TO EVERYTHING. Taking anything is not safe. I can take apple cider vinegar in water - that is about it. But I have a serious problem with all grains, esp CORN. And corn is hidden in EVERYTHING. And I react to it no matter what derivatives it is. I even react to fumes from restaurants while I am walking past outside and to fumes from perfume and air freshener and even to white vinegar. Its impossible to take these anti histamines as they all have hidden corn in them! So how is an over the counter product full of corn supposed to STOP a reaction also caused by corn? That idea is sheer madness! I am down to eating 3 foods. Mostly living on grass fed beef. I have autism and EDS. I have a script for the MCAS test (the big one with all the fancy tests) but after that they say I need to take antihistamines. Well they all have corn in them. So I will be only reacting! And I have a long list of foods I react to & have to avoid, including bananas and flaxseeds. Flax makes me burp 50+ times in less than 30 minutes if I eat any..also am celiac.. Maybe I have that triptase gene. I would not be surprised. My mother seemed to have these issues too. Anyway now each time I am exposed to hidden corn I get the Pots. 😟 and all my hair is falling out too. Been grain free since 2019 in July. Dairy + egg free in Nov 2020. And I have read Dr Afrin's book. He said the drugs to treat MCAS are powerful TOXINS. I want no part of toxins. My mast cells are WARNING me about chemicals and toxins. Corn is full of toxins. So is wheat. Roundup. GMO.. Veggies have toxins too like oxalates, nightshades, lectins plus they are sprayed with stuff! Same with fruit. That stuff is NOT SAFE TO EAT. Its full of poison.. We are meant to be carnivore. The problem is no one makes shampoo and stuff without CORN! And those fumes are everywhere even outside. Plus early this spring somehow I ended up with a pine tree allergy too! 😡
Well I’m so sorry you’re going thru this nightmare.I has CIRS (chronic immune response syndrome) on top of MCAS, due to biotoxic mold illness. I have higher than I like Uric acid levels, so on my own I decided that I’ll try and lower it. I started taking Quercitin and Luteolin. Once in am once in pm. Well within 2 weeks I was much better, (stomach issues,severe diarrhea) so out of all the crap I take I said, wow don’t know what’s in that stuff but I’m doing 60% better, my doc said it’s working because you have MCAS. He said tests for MCAS aren’t always accurate. He said that is the natural remedy for MCAS. I also have perfume,odor aversion...I bought a vibration plate to help drain my clogged lymphatic system, looking into getting an infrared sauna. I have the genetic mutations that prohibit detox, MTHFR GENE, HLA...I’m unable to sweat. I can’t get the mold out of my body. Very high levels in blood and urine. Try detoxing slowly.you’re poor body is very, very angry, obvi on overload. Hugs🙏💕😇💫🦄🧞♂️
I was there! Still ill, but I got back to baseline! My baseline is pretty ill! Lol. But, I can eat again. 10 years ago was the same as you, I was so thin, not able to eat, sleep, even things like coffee and smells had a histamine response. I had to go for a month to a doctor in Dallas who had safe housing and derived their own preservative-free injections of different foods, to inject so as to be able to eat those foods again. During the day was sauna, and lymphatic massage and infusions of vitamins. Mayo Clinic did not ‘believe in this type of food allergies’. But, they wanted to take copies of all my workpapers from the Dallas doctor. My advice is you need to find a doctor who derives their own allergy injections of the various foods like I did. My Dallas doctor died and his name was Dr. Rae and he was a great man.
My son is highly sensitive to corn, also. As soon as he eats anything that has corn in it, it comes up immediately and causes headaches that are excruciating. Corn has been so genetically modified, and grows mold quickly. Even seeds grow the corn with mold in them. I’m not an expert, but I’m a mother who has been through the ringer with breast implants, mold toxicity, autoimmune diseases, weird infections, and had 4 major surgeries within 10 months (the last to get out the damn implants!). I also got pseudomonas aeriginosa from the hospital and had to move. Now it’s all a set-up by God so I could recognize these things when my grown son developed mold toxicity, and now severe Lyme coonfections, mast cells, and I’m trying like heck to feed him good foods, that I’ve been on for over 6 years. Im watching these things because I believe he has mast cells and long Covid. He needs a low histamine diet. Try doing that when you’re on heavy duty antibiotics because you now have severe Lyme too and a broken shoulder! I also had a stroke in my previous condo that had severe mold and I didn’t know anything about it. I don’t know how I made it out of there alive, and my son is staying with me, but he yells early in the mornings because of panic attacks and nightmares. He’s been seeing excellent doctors, but he is in horrible pain and he is paranoid of everything!!! I’m ready to jump off a bridge!
The director head of Emery Atlanta allergy and immunology told me almost 20 years ago just because we don’t have a test that can detect measure and identify what your child is having an allergic response to does not conclude your child is not having an allergic response. My clinical observation identifies the signs and symptoms indicates an allergic response being activated. Do not falsely believe Your child is not experiencing an allergic response due to the ineptitude of our testing modalities to identify what your child is having an allergic response to, or your child is then at risk of death. The fact our diagnosis testing modalities cannot identify the allergy then we cannot classify it as an allergy on our medical forms and codes and diagnosis criteria, it dictates we identify it as a sensitivity . But we MUST clinically treat the patient as having an allergic response based on clinical observation and our job is simply much harder because we do not have testing g to identify what is causing an allergic response, which increases the risk factor for children unable to speak and communicate their symptoms within Such as the throat closing with anaphylactic. Due diligence is necessary. Do not continue to entertain the allergist that you are seeing that is telling you your child is allergic to nothing or you put your child at risk. Eventually EoE mast cell inflamed Esophagus discovery close to age 20, doctor admitting they just didn’t know what that was when my son was a baby/toddler. A whole lot of medical gaslighting in between and support structures of disbelief that there was any problem at all including being diagnosed with eating disorders and defiance disorders etc. etc. that was never the case.
OMG. So much of this seems quite relevant to me. I've known about a metal sensitivity for a long time... first when I had some cheap eyeglasses and the clearcoat wore off, I was getting a flaky irritating skin problem directly where the metal touched under my eyes from the frame. I gave up on earrings decades ago. I recently had to quit wearing a chain because it was causing a very red scaly patch on my neck. someone told me to get evaluated for the common autoimmune conditions after I described my health. It hasn't been confirmed yet, but I had a sudden onset of arthritis everywhere that seems likely to be rheumatoid. everything went completely to Hell after my thyroidectomy 2 years ago. Pain, fatigue, brain fog... plus all sorts of emotional stress, trauma, physical and financial hardship.
Yes, the body does not differentiate between physical-, chemical-, and emotional stress, and different stressors are working together to result in various symptoms. Towards faccilitating self-healing, one can aim (as far as it is under one's control) to alleviate various deficiencies, and assist in/support ellimination of various toxicities; including keeping harmful anti-nutrients/defence chemicals in plant foods at low dosages. A very powerful self-healing tool, is regular FASTING. Important to take note of how the third leading cause of death (besides for heart disease and cancer), is currently said to be resulting from chemical stress related to prescription medications; with half of the deaths occurring, after taking the drugs as prescribed. The worst health outcomes are IMO due to unnatural invasion of/tampering with the immune system (at any age) by injecting pathogens alongside poisonous, foreign substances - directly into the body; thereby by-passing the body's natural defences.
I’m so lucky to fall upon this. Where is your guest speaker from ? You mentioned everything, but 2 things . First is how AlphaGal Syndrome is associated with MCAS and any insight about acupuncture for MCAS and AG. Can you recommend a practitioner out here in Northwest Tennessee. Bless your hearts
Looked up methionine after you mentioned that it doesn’t exist in a gluten free plant based diet. Looked at few pages and apparently does exist in sesame seeds, Brazil nuts, hemp seeds, soy. One table suggesting more per hundred grams than beef or chicken. Have I got the name ‘methionine’ wrong? And am looking up completely the wrong thing?
I am plagued by diarrhea and I had asthma eczema hives as a child it all goes away with tiny Claritin and tiny imodium. I am Carnivore do eat fish and ribeyes bacon and drink Sparkling water. I watch my glucose and ketones. I am 80 yrs great exerciser still run step race and light weights. I was diagnosed with cdiff in my 60s but the more I read about MCS I wonder. My doctor knows zip. No prescription no body replacements. Just my tiny OTC. Continue?
thank you for sharing this video , i am on anti histamine h1 , h2 and helps a bit , my question is does it cause cognitive and memory los too ? thank you .
Most doctors know nothing. They misdiagnosed me for years. I would be dead or a drug addict if I wasn’t educated. God Bless. Do you know any doctors in OC Calif?
My symptoms are feeling hypoglycemic and being sensitive to sugar. I get a yucky high feeling after eating sugar. Lately I've been having brain fog after eating histamine food.
Note: tofu, most nuts and many seeds are high in histamine. If one is on a strict diet avoiding these foods, then methionine supps would be prudent. I think I need to supplement.
Could anyone please give us the name of the wonderful dr she is interviewing? She gives it in the beginning but I have no clue how it is spelled. Also, where he is located if possible. Great interview!
I just got diagnosed with MCAS recently. But my tryptase levels were high-38.7 the first time, and 35 the second time. KIT was negative, and bone marrow biopsy was normal. My doctor says tryptase is high in MCAS patients, but that’s the opposite of what I have read. Could I possibly have both MCAS and HATS? Why else would my tryptase levels be high like that?
Im sorry to hear that. What are your symptoms? How did they start off? Asking cause ive just been itchy around my nose and eyes. Any little thing ive eaten kinda activates it. But theres no redness or rash or hives anywhere.
@@Hondo34 for many years I had itchy eyes, nose and ears. And constant running nose. And random rashes and hives. I thought I was allergic to a lot of stuff but got tested twice and not allergic to anything
@@phadrae161 oof. Thats a lil scary cause my eyes, n nose n mouth are itching alot lately. But i have no redness or rashes etc. my doctor took my bloodwork yesterday and said i do have a high IgE. And i know what im allergic to. Also claritin and fexofenidine didnt help. I hope im good and dont have it but. I assume the worse 😔
Does anyone that has this have sharp needle like pain in lymph nodes and after vaccination sharp nerve pains and muscle spasms? The lymph node pains comes and goes within 20-40 seconds and it’s sharp pains. Also I have dull bone pains. Can anyone advice? I have Ana 1-80 speckled so docs didn’t think it was autoimmune but I have had the sharp needle double in size lymph nodes on and off since 15 years ago. I am going to start this h1 and h2. Been on quercitin recently and bromalyn
I feel that I may have this. Always just been told it's in my head. I've spent 10+ years being ignored, I've even been forced on anti-psychotics. Lost complete faith in Western medicine. Quality of life is awful.
It seems mine started after early covid March 2020. Mine shows up chronically in flares and cycles. * worse prior to cycle. My lungs will feel tight, like they are not working, air hunger, and anxiety It will flare with stress, tiredness, and fighting a exposed virus. I had a mango, pineapple, orange smoothie last week and an avocado wrap/chicken and had such severe tightness and air hunger, HR increases. I had a feeling of impending doom due to the air hunger and tightness in chest.80 percent of the time I have chest tightness, just what degree or flare
I'm so sorry but I am actually happy too that I have found someone like myself! I had covid March 2020 and went onto have Long Covid then told to get the pneumococcal and flu vaccines incase I got pneumonia and ever since getting them I haven't been able to breathe normally and had pneumonia 6 times! It's so bad now that it feels like a anaphylactic type reaction going on. My lungs and heart are clear according to my scans but I am suffering so badly that I am still mostly house bound. I have also had terrible gastric problems. I think I may have MCAS but there is no testing here and I am too sick to travel. It's a nightmare 😪
@@cw8593 yes, very scary. My heart and lungs are ok, but have been known to get hyperinflation now. Asthma is my NEW diagnosis. 39 years old when I got this. Now 42. I've been doing ok since last round of azithromycin. ( must be getting walking pneumonia or chest infections easy now OR are we dealing with an autoimmune problem due to covid remnants?
It's crazy and so hard to fix. Doctors have no idea. I get infections every 3 months or so and my iron keeps depleting. I also have severe gastro issues and vomiting out of nowhere. Have you had any tests for autoimmune problems? Mine have came back negative. I can only think that this is MCAS@@oliviaelliott4623
Thank you so much for this video! I never knew so many food had nickel in them, I went to a bunch of allergist and nutricinist during my life, none of them told me that, even when I am highly allergic to nickel. I did take intolerance teste fo IgG, and is a very big list of food, and just found out they are all high in nickel. I was wondering if I would had to go in low histamine diet, and felt like there were no food left for me to eat, so just gonna see what else is high on Nickel and start from there. 🙏🏻🙏🏻🙏🏻
It makes sense that MCAS is linked to abandonment trauma. Because if you are an infant or child that has been abandoned, your safety is threatened. You live your life in a state of hypervigilance trying to survive. Is it any wonder that your mast cells become hypervigilant too.
@@savagebunny1440 yessss! Mind body connection! No one knows for sure, needs to be studied more, but resonates
It’s wild people are actually listening, it took almost 10 years to get diagnosed. Most Drs ignore my MCAS as if it’s imaginary/fake.
@Lady Die I understand you have been through a lot, please do not diminish my path because it “only took” 10 years…not cool.
self diagnosed here, simply doctors were clueless
@@margaritaleon2502 I am self diagnosing as we speak lol
@@mariellinda8624 I am doing the same. I have gone to 5 doctors In the past 20 months since COVID and they don’t know or don’t believe me. It is hard to find a doctor.
It was actually my Functional providers that recognized that I might have EDS, my Allopathic providers didn't have a clue. Oxylates can be a problem too along with Histamine.
Is your provider taking new patients? Any referrals or reccomendations? I am trying to get diagnosed w MCAS/EDS etc
I don't think oxalates are a trigger for me, but salicylates definitely are.
Thank heavens for doctors like you. I got so many WOW - moments. Thank you for educating us
This was great, thank you! I'm a Naturopath with MCAS that was triggered by Lyme/CIRS. I found that Amlexanox peptides were VERY effective at helping me regain foods back and it's not talked about a lot within the community. It's definitely something that practitioners should consider for their MCAS patients.
Can you give us some information on where we can order these types of peptides? I have never heard of that before thank you
@@lindapelle8738 A lot of compounding pharmacies offer peptides, you would just have to find one in your area that offers Amlexanox and find a prescriber in your area that is familiar with peptides too. Once you find a pharmacy that offers them, ask who prescribes them often - sometimes it's easier to work backwards that way. :)
Did it help you with sinus problems?
Are you treating yourself?
@@lindapelle8738 Compounding pharmacies usually carry it.
I think physical and emotional trauma are connected to this dysfunction. That is my experience as a trauma therapist.
What is your role as a trauma therapist?
@@pictureslife265 I do EMDR, trauma is my speciality
@@pictureslife265 I do outpatient EMDR for trauma and ptsd clients.
@@helendillard7784 If you do this type of work, try looking at feelings of safety, or safety in the world as possible imprints. It seems to be very common with allergy patients. It's as if the whole world is attacking you, and that's a fruitful place to 'poke around' for details of what this means to the patient. There are also feelings of panic when anaphylaxis is triggered regardless of which organ system is affected, in my case it was the GI tract and I'd awaken with panic every morning. Once the GI started to calm down, the cortisol trigger faded away.
How about a flight or fight experience triggering MCAS? If so, I think that was mine. Can we ever reset this or has the train left the station for good? Can you share any studies and treatments?
Both of you need to ring the bowl for this amazing conversation. This will be extremely helpful in helping me navigate the topic of histamine intolerance and mast cell activation with my doctor as I battle these crazy hyperpigmentation skin lesion reactions I've been having the last 6 months. They've made me highly insecure, wearing more makeup than I have ever worn and one even had a biopsy done on it now creating a huge scar to go with this hyperpigmentaion.🤦🏾♀️ Through it all my doctor hasn't had one answer for me that made sense.
its called CUSHINGS SYNDROME INDUCED BY THIESE CARELESS EVIL DOCTORS . WAKE THE F UP.
One thing I never heard mentioned was hormonal causes of mast cell activation. Even in studies using different types of medications from my experiences it needs to be well over 3 weeks to go through a full and complete cycle because something within the cycle is causing the reaction for me. And I cannot get anybody to daily test hormones to see what is setting it off.
Doctors suck. Good luck finding one who wants to help you. They just want to treat the sniffles and if you don't have the sniffles they will run a few blood test and tell you you're fine. Check into Hashimitos disease see if you have thyroid anyibodies. Not that it will matter there's nothing they will do anyhow.
❤ everything said was speaking to my soul , he said everything I’ve ever felt about this subject and she asked all the right questions
Thank you for this thoughtful, enlightening discussion on MCAS. While you touched on nutraceuticals as a potential treatment approach, the only one explicitly mentioned was quercetin. Are there others (stinging nettle, digestive enzymes, etc.) that are worth trying? Many patients prefer a natural approach over OTC antihistamines, which can have side effects and generally are not sustainable long-term solutions. And unfortunately many people with MCAS are trying to navigate a sea of conflicting information on their own, without any help from the conventional medical community. So your guidance is welcome.
Proteolytic systemic enzymes helped me. Also my most helpful supplement is HistDAO by Xymogen.
@@moniquechurchill6857 Thank you!
@@moniquechurchill6857 which brand works for you and how much do u take.
DOESNT DO SHITE IF YOU USED YOUR BRAIN. PEOPLE ARE BEING MURDERED BECAUSE OF MAN MADE HORMONES.
THEY WILL KILL YOU YA KILL YOU IDIOT WAKE UP.
ANY CONNECTIONS with esonophila esophageal problems?
I have MCAS and Ketotifen helped me a lot . I was taking many antihistamines at rhe same time but when the doctor an allergist prescribed Ketotifen it made a hugh difference everything calmed down. I stopped having so many allergic reactions. What started it all was an allergic reaction to a flu shot for seniors, I did already have some allergies to some medications. He's right about dosing of foods.
Did you have sinus inflammation?
Wow, wow and wow…..explained so well. I have MCAS and someone asked me the other day, I told them I didn’t know….I read about it all the time, TRYING TO FIGURE IT OUT… who knew(pepperonis) hyperactive immune response…bingo! So thank you very much!
My tryptase was normal but I definitely have MCAS. All other symptoms for it are positive. So it's still unknown. Histamine and Salicylate allergy plays a big part too.
I'm incredibly allergic to nickel and I had no idea that foods had nickel
I have had a gastro tell me that my problems were caused by "my thoughts" and I had a natural doctor quit on me because I was "too sensitive" to everything.. My PCP wanted to send me to a shrink so clearly she thinks its from my "thoughts" as well and she thinks going on a shrink drug is supposed to fix everything so I can then eat all the countless foods I react to! Well I am not THAT stupid. This has only led to doctor anxiety and me NOT trusting doctors. And I totally REFUSE to take anything as these long years has only taught me I REACT TO EVERYTHING. Taking anything is not safe. I can take apple cider vinegar in water - that is about it. But I have a serious problem with all grains, esp CORN. And corn is hidden in EVERYTHING. And I react to it no matter what derivatives it is. I even react to fumes from restaurants while I am walking past outside and to fumes from perfume and air freshener and even to white vinegar. Its impossible to take these anti histamines as they all have hidden corn in them! So how is an over the counter product full of corn supposed to STOP a reaction also caused by corn? That idea is sheer madness! I am down to eating 3 foods. Mostly living on grass fed beef. I have autism and EDS. I have a script for the MCAS test (the big one with all the fancy tests) but after that they say I need to take antihistamines. Well they all have corn in them. So I will be only reacting! And I have a long list of foods I react to & have to avoid, including bananas and flaxseeds. Flax makes me burp 50+ times in less than 30 minutes if I eat any..also am celiac.. Maybe I have that triptase gene. I would not be surprised. My mother seemed to have these issues too. Anyway now each time I am exposed to hidden corn I get the Pots. 😟 and all my hair is falling out too. Been grain free since 2019 in July. Dairy + egg free in Nov 2020. And I have read Dr Afrin's book. He said the drugs to treat MCAS are powerful TOXINS. I want no part of toxins. My mast cells are WARNING me about chemicals and toxins. Corn is full of toxins. So is wheat. Roundup. GMO.. Veggies have toxins too like oxalates, nightshades, lectins plus they are sprayed with stuff! Same with fruit. That stuff is NOT SAFE TO EAT. Its full of poison.. We are meant to be carnivore. The problem is no one makes shampoo and stuff without CORN! And those fumes are everywhere even outside. Plus early this spring somehow I ended up with a pine tree allergy too! 😡
😳
Well I’m so sorry you’re going thru this nightmare.I has CIRS (chronic immune response syndrome) on top of MCAS, due to biotoxic mold illness. I have higher than I like Uric acid levels, so on my own I decided that I’ll try and lower it. I started taking Quercitin and Luteolin. Once in am once in pm. Well within 2 weeks I was much better, (stomach issues,severe diarrhea) so out of all the crap I take I said, wow don’t know what’s in that stuff but I’m doing 60% better, my doc said it’s working because you have MCAS. He said tests for MCAS aren’t always accurate. He said that is the natural remedy for MCAS. I also have perfume,odor aversion...I bought a vibration plate to help drain my clogged lymphatic system, looking into getting an infrared sauna. I have the genetic mutations that prohibit detox, MTHFR GENE, HLA...I’m unable to sweat. I can’t get the mold out of my body. Very high levels in blood and urine.
Try detoxing slowly.you’re poor body is very, very angry, obvi on overload. Hugs🙏💕😇💫🦄🧞♂️
I was there! Still ill, but I got back to baseline! My baseline is pretty ill! Lol. But, I can eat again. 10 years ago was the same as you, I was so thin, not able to eat, sleep, even things like coffee and smells had a histamine response. I had to go for a month to a doctor in Dallas who had safe housing and derived their own preservative-free injections of different foods, to inject so as to be able to eat those foods again. During the day was sauna, and lymphatic massage and infusions of vitamins. Mayo Clinic did not ‘believe in this type of food allergies’. But, they wanted to take copies of all my workpapers from the Dallas doctor. My advice is you need to find a doctor who derives their own allergy injections of the various foods like I did. My Dallas doctor died and his name was Dr. Rae and he was a great man.
My son is highly sensitive to corn, also. As soon as he eats anything that has corn in it, it comes up immediately and causes headaches that are excruciating. Corn has been so genetically modified, and grows mold quickly. Even seeds grow the corn with mold in them. I’m not an expert, but I’m a mother who has been through the ringer with breast implants, mold toxicity, autoimmune diseases, weird infections, and had 4 major surgeries within 10 months (the last to get out the damn implants!). I
also got pseudomonas aeriginosa from the hospital and had to move.
Now it’s all a set-up by God so I could recognize these things when my grown son developed mold toxicity, and now severe Lyme coonfections, mast cells, and I’m trying like heck to feed him good foods, that I’ve been on for over 6 years.
Im watching these things because I believe he has mast cells and long Covid. He needs a low histamine diet.
Try doing that when you’re on heavy duty antibiotics because you now have severe Lyme too and a broken shoulder! I also had a stroke in my previous condo that had severe mold and I didn’t know anything about it. I don’t know how I made it out of there alive, and my son is staying with me, but he yells early in the mornings because of panic attacks and nightmares.
He’s been seeing excellent doctors, but he is in horrible pain and he is paranoid of everything!!!
I’m ready to jump off a bridge!
@@terriealabama7612You sound like me! N
He is adorable and so caring. I wish he worked in Australia
Okay, so how do we get ACTUAL help???
The director head of Emery Atlanta allergy and immunology told me almost 20 years ago just because we don’t have a test that can detect measure and identify what your child is having an allergic response to does not conclude your child is not having an allergic response. My clinical observation identifies the signs and symptoms indicates an allergic response being activated. Do not falsely believe Your child is not experiencing an allergic response due to the ineptitude of our testing modalities to identify what your child is having an allergic response to, or your child is then at risk of death.
The fact our diagnosis testing modalities cannot identify the allergy then we cannot classify it as an allergy on our medical forms and codes and diagnosis criteria, it dictates we identify it as a sensitivity . But we MUST clinically treat the patient as having an allergic response based on clinical observation and our job is simply much harder because we do not have testing g to identify what is causing an allergic response, which increases the risk factor for children unable to speak and communicate their symptoms within Such as the throat closing with anaphylactic. Due diligence is necessary. Do not continue to entertain the allergist that you are seeing that is telling you your child is allergic to nothing or you put your child at risk.
Eventually EoE mast cell inflamed Esophagus discovery close to age 20, doctor admitting they just didn’t know what that was when my son was a baby/toddler. A whole lot of medical gaslighting in between and support structures of disbelief that there was any problem at all including being diagnosed with eating disorders and defiance disorders etc. etc. that was never the case.
EoE is definitely mcas. I have familial Achalasia. It is too. It’s intensely painful. God bless.
Who would like to start a MCAS/POTS/EDS support group?
OMG. So much of this seems quite relevant to me.
I've known about a metal sensitivity for a long time... first when I had some cheap eyeglasses and the clearcoat wore off, I was getting a flaky irritating skin problem directly where the metal touched under my eyes from the frame. I gave up on earrings decades ago. I recently had to quit wearing a chain because it was causing a very red scaly patch on my neck.
someone told me to get evaluated for the common autoimmune conditions after I described my health.
It hasn't been confirmed yet, but I had a sudden onset of arthritis everywhere that seems likely to be rheumatoid.
everything went completely to Hell after my thyroidectomy 2 years ago. Pain, fatigue, brain fog... plus all sorts of emotional stress, trauma, physical and financial hardship.
This is not a functional medicine approach because you don’t look at root causes except for the vague trauma thing. That doesn’t help anyone.
Yes, the body does not differentiate between physical-, chemical-, and emotional stress, and different stressors are working together to result in various symptoms.
Towards faccilitating self-healing, one can aim (as far as it is under one's control) to alleviate various deficiencies, and assist in/support ellimination of various toxicities; including keeping harmful anti-nutrients/defence chemicals in plant foods at low dosages. A very powerful self-healing tool, is regular FASTING.
Important to take note of how the third leading cause of death (besides for heart disease and cancer), is currently said to be resulting from chemical stress related to prescription medications; with half of the deaths occurring, after taking the drugs as prescribed.
The worst health outcomes are IMO due to unnatural invasion of/tampering with the immune system (at any age) by injecting pathogens alongside poisonous, foreign substances - directly into the body; thereby by-passing the body's natural defences.
Absolutamente fantástico. Gratidão imensa
I’m so lucky to fall upon this. Where is your guest speaker from ? You mentioned everything, but 2 things . First is how AlphaGal Syndrome is associated with MCAS and any insight about acupuncture for MCAS and AG.
Can you recommend a practitioner out here in Northwest Tennessee. Bless your hearts
i have done some slight research on the connection, I did not a mast cell/histamine response after acupuntcture treatment.
I’ve had acupuncture for both and right now can tolerate a lot more foods then before.
Thank you so much for this episode! ❤
I was diagnosed in Ontario in 2017 and it was explained to me MCAS is due to an epigenetic event. A Gene mutation is your root cause.
ONT, CAN or USA?
I think it's Dr. Hamilton that did the report on gi biopsies.
thank you for this!
Looked up methionine after you mentioned that it doesn’t exist in a gluten free plant based diet. Looked at few pages and apparently does exist in sesame seeds, Brazil nuts, hemp seeds, soy. One table suggesting more per hundred grams than beef or chicken. Have I got the name ‘methionine’ wrong? And am looking up completely the wrong thing?
Legumes, nuts, seeds, oats, provide methionine...wheat, barley and rye are not the only plant based sources...
I am plagued by diarrhea and I had asthma eczema hives as a child it all goes away with tiny Claritin and tiny imodium. I am Carnivore do eat fish and ribeyes bacon and drink Sparkling water. I watch my glucose and ketones. I am 80 yrs great exerciser still run step race and light weights. I was diagnosed with cdiff in my 60s but the more I read about MCS I wonder. My doctor knows zip. No prescription no body replacements. Just my tiny OTC. Continue?
thank you for sharing this video , i am on anti histamine h1 , h2 and helps a bit , my question is does it cause cognitive and memory los too ? thank you .
Elimination diet helps
I began having problems after my tonsils were removed.
Most doctors know nothing. They misdiagnosed me for years. I would be dead or a drug addict if I wasn’t educated. God Bless. Do you know any doctors in OC Calif?
I’m in OC CA as well. If you ever find someone please let me know or post on this page. Thank you good luck
@@lindapelle8738 ua-cam.com/video/MS7SMoqBUQE/v-deo.htmlsi=4sqOft76HLossyf6.
Dr Kelly McCann is in OC. I’m going to go soon. God Bless Linda
Thank you so much for this! I have hereditary tryptasemia, and now have dvt. Having flares.
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Thank you!!!
My symptoms are feeling hypoglycemic and being sensitive to sugar. I get a yucky high feeling after eating sugar. Lately I've been having brain fog after eating histamine food.
Methionine is found in a plant based gluten free diet. Tofu, some nuts and seeds are really high in this.
Note: tofu, most nuts and many seeds are high in histamine. If one is on a strict diet avoiding these foods, then methionine supps would be prudent. I think I need to supplement.
Sadly plant based diet is hard for people who also have Salicylate Sensitivity.
Can indolent systemic mastocytosis cured by functional medicine, or just mcas can? If yes, how?
Connection to mold exposure???
why histamine containing food causes mast cells reaction cascade??
How does one heal from this drasted condition? Is it incurable? I've been struggling with this for years, and haven't been diagnosed, of course.
It’s incurable. I been diagnosed with 6 co morbidities.
Mast cell activation - really good presentation on this! Nickel in grains? Jewelry is a problem. What about a titanium rod in the spine?
I have this, I am married to a jeweler. I don’t have any problems with metals. Especially gold and diamonds 😆
@@lauriekline178 😂 gold and diamonds!
Could anyone please give us the name of the wonderful dr she is interviewing? She gives it in the beginning but I have no clue how it is spelled. Also, where he is located if possible. Great interview!
Dr. Greg Plotnikoff
So could mcas cause mgus?
I just got diagnosed with MCAS recently. But my tryptase levels were high-38.7 the first time, and 35 the second time. KIT was negative, and bone marrow biopsy was normal. My doctor says tryptase is high in MCAS patients, but that’s the opposite of what I have read. Could I possibly have both MCAS and HATS? Why else would my tryptase levels be high like that?
how did you get diagnosed?
@@Hondo34 labs and bone marrow biopsy by a hemotologist
Im sorry to hear that. What are your symptoms? How did they start off? Asking cause ive just been itchy around my nose and eyes. Any little thing ive eaten kinda activates it. But theres no redness or rash or hives anywhere.
@@Hondo34 for many years I had itchy eyes, nose and ears. And constant running nose. And random rashes and hives. I thought I was allergic to a lot of stuff but got tested twice and not allergic to anything
@@phadrae161 oof. Thats a lil scary cause my eyes, n nose n mouth are itching alot lately. But i have no redness or rashes etc. my doctor took my bloodwork yesterday and said i do have a high IgE. And i know what im allergic to. Also claritin and fexofenidine didnt help. I hope im good and dont have it but. I assume the worse 😔
Does anyone that has this have sharp needle like pain in lymph nodes and after vaccination sharp nerve pains and muscle spasms? The lymph node pains comes and goes within 20-40 seconds and it’s sharp pains. Also I have dull bone pains. Can anyone advice? I have Ana 1-80 speckled so docs didn’t think it was autoimmune but I have had the sharp needle double in size lymph nodes on and off since 15 years ago. I am going to start this h1 and h2. Been on quercitin recently and bromalyn
No vaccines. No needle poking here. No problem.
@@lauriekline178
To what extent is this condition directly linked to activating the immune system unnaturally? 🧐
I e been to over 20 functional docs and forked over my savings and never gotten any results. 😭
Lewis Amy Jackson Mary Hernandez Anthony
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I feel that I may have this. Always just been told it's in my head. I've spent 10+ years being ignored, I've even been forced on anti-psychotics. Lost complete faith in Western medicine. Quality of life is awful.
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It seems mine started after early covid March 2020. Mine shows up chronically in flares and cycles. * worse prior to cycle. My lungs will feel tight, like they are not working, air hunger, and anxiety
It will flare with stress, tiredness, and fighting a exposed virus. I had a mango, pineapple, orange smoothie last week and an avocado wrap/chicken and had such severe tightness and air hunger, HR increases. I had a feeling of impending doom due to the air hunger and tightness in chest.80 percent of the time I have chest tightness, just what degree or flare
I'm so sorry but I am actually happy too that I have found someone like myself! I had covid March 2020 and went onto have Long Covid then told to get the pneumococcal and flu vaccines incase I got pneumonia and ever since getting them I haven't been able to breathe normally and had pneumonia 6 times! It's so bad now that it feels like a anaphylactic type reaction going on. My lungs and heart are clear according to my scans but I am suffering so badly that I am still mostly house bound. I have also had terrible gastric problems. I think I may have MCAS but there is no testing here and I am too sick to travel. It's a nightmare 😪
@@cw8593 yes, very scary. My heart and lungs are ok, but have been known to get hyperinflation now. Asthma is my NEW diagnosis. 39 years old when I got this. Now 42. I've been doing ok since last round of azithromycin. ( must be getting walking pneumonia or chest infections easy now OR are we dealing with an autoimmune problem due to covid remnants?
It's crazy and so hard to fix. Doctors have no idea. I get infections every 3 months or so and my iron keeps depleting. I also have severe gastro issues and vomiting out of nowhere. Have you had any tests for autoimmune problems? Mine have came back negative. I can only think that this is MCAS@@oliviaelliott4623
@@cw8593how are you doing now? 🙏
Still in the same position unfortunately. I have started on anti histamines but not seeing a difference yet
More videos about this please. Doctors don’t seem to know
What a blessing this was
Will I have inflamed sinuses the rest of my life?
Thank you! Never considered nickel being in foods!
Thank you so much for this video! I never knew so many food had nickel in them, I went to a bunch of allergist and nutricinist during my life, none of them told me that, even when I am highly allergic to nickel. I did take intolerance teste fo IgG, and is a very big list of food, and just found out they are all high in nickel. I was wondering if I would had to go in low histamine diet, and felt like there were no food left for me to eat, so just gonna see what else is high on Nickel and start from there.
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30 years of Medical Gaslighting!...Diamine Oxidase / Gene Test!!!
Thank you , please tell me what is an IFM practitioner?
Excellent!