Jenny Beat Long Covid & Severe ME/CFS! How Did She Do It?
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- Опубліковано 19 чер 2024
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In this video, Jenny shares her horrendous 2 year journey with long covid and ME/CFS, along with the strategies that allowed her to fully get her health back.
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VIDEOS MENTIONED:
👉 Rebecca’s Chronic Fatigue Syndrome Full Recovery Story - • Rebecca’s Chronic Fati...
👉 Unveiling the Secret to ME/CFS Recovery: Mind/Body Healing with Rebecca Tolin - • Unveiling the Secret t...
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TIMESTAMPS
00:00 Jenny’s dream come true of recovering and telling her story
03:53 How Jenny’s health problems all started - the perfect storm
05:56 How being a parent of two small children impacted things, the build-up before covid
10:35 Getting covid - the start of a couple of horrendous years
13:00 What didn’t work for Jenny
15:38 Finding what worked - what allowed her to fully recover
19:50 What day to day recovery activities looked like
23:25 The undeniable truth about recovery
27:51 How this has dramatically changed Jenny
31:07 A message for parents living with chronic illness
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue #mecfs
The organisation Jenny used for Trauma therapy is called Klearminds. It's based in London but does zoom meetings too 😊
I’m 3 years long covid, from runner, home cook, and now watching these… it’s my aim now to be well enough I can do this too! Lol
Me too 3 years
Am I the only one who tears up every single time Raelan mentions her mum? I feel her presence in every single video and she really is so proud of you Raelan ❤
❤❤❤
A fellow Sheffielder!!! Congratulations, this is a beautiful story. I had remission from Long Covid / ME/CFS for 15 months, and that is in large part thanks to Raelan and this channel!
Are you still in remission Sarah or has it come back? 🙂
Thanks Jenny and Raelan. I'm recovering from Long Covid, here in the UK there is not really any help so it was by chance I discovered the Mind/Body approach/ TMS approach and I'm so glad I did. This approach totally resonates with me. I'd been leading a stressful life for years, had childhood trauma, perfectionist, I was ( still am to a degree as working on it ) a tick list for TMS symptoms. Since starting this work and watching all your recovery videos Raelan and Rebecca Tolins I feel I am well on my way to healing. My advice is give this approach a try, what have you got to lose? And you learn so much about yourself too and that's why when people say they've changed their lives since getting CFS or Long Covid and in a strange way they have this illness to thank it's true. We can't live our lives like this anymore and our bodies have said a big, fat no and our body is making us change. Without discovering this, these videos I would not be on my recovery path. Thank you Raelan xx
Finally. Someone that recovered with young kids.
I love Jenny’s story. Yay for more success stories of parents with young kids! Like Jenny, when I got sick, I had two young boys - 4 year old and 18 month old at the time. It was horrendous. My sister had to move in to help take care of us for two years. Then through this, I had my third child, a baby girl (oy vey!), which was one of the most challenging experiences because of all the symptoms. But now, I’m doing much better and improving day-by-day thanks to the free TMS resources on UA-cam, reading Sarno’s and Schubiner’s books, caring TMS experts who answer my emails and comments, and the icing on the cake was working 1:1 with a mindbody coach. I was trying to DIY this recovery process, and I know everyone is different, but I’m finding that the consistent and tailored accountability and support is a critical piece for me.
So very happy for you, Jenny! You are a bright light. Thank you for sharing your story so brilliantly! ❤
Thank you Rebecca and I'm so very grateful for you ❤ xxx
@@jennymcguigan7329 It's been a true joy and honor to witness your remarkable recovery! ❤❤❤
Wonderful interview, thank you both 🙏 🎉
Terrific interview! I really related to the things said here! Thanks for all you do Raelan! I know your mom would be proud of you!
Wow how powerful, feeling very emotional watching this fantastic interview. Congratulations Jenny & thanks again Raelan ❤
Hello my name is Jeremy. I have been a long hauler for almost 27 month’s. I have watched 5 of your recovery videos now. To be honest, I don’t know what to feel. I’m noticing that all these people have gotten help for the doctors. I have not. I have referrals for neurologist’s and long hauler units in 3 different places. They won’t call me back. A lot of these people have some of the same symptoms but it’s hard for me to tell exactly how hard it was before they recovered. I am not recovered whatsoever! In fact in many ways I’m worse than what I was the first year. One mistake that I made from the beginning was continuing working out. The doctors told me not to. I lost 50 pounds including maybe 15 pounds of muscle. They suggested testosterone replacement therapy and I worked out very hard. That was a huge mistake! I lost feeling in my left arm and hand for 5 months from working out. Today my left arm and leg are deteriorating. Muscle pain, bone pain is actually worse now if I don’t continue to exercise unfortunately. Also the PTSD. Everything that ever gave me a lot of fear or trauma is back in full effect mostly every single day. I’m deathly afraid of cops. If I see one, I start to shake, I sweat profusely! I just can’t control it. In my mind I think I know that I’m doing absolutely nothing wrong. Although all I think about is how they try to incriminate us. I’ve been there before, I know. Believe some people truly innocent of crimes they allegedly commit. So I don’t leave the house. I try. I’ve even submerged myself to Norfolk beach Virginia where the cops are everywhere and I couldn’t take it. I came back home and got into bed yet again. I literally sweat and shake from thinking of anything that upsets me. I try to stick to music on UA-cam but obviously I’m on your channel because I’m searching for answers. Although I admit, the anxiety of just typing this is to much. Foods! It’s different for everyone. I had a slight tolerance to sweets, spicy foods and other sweets like chocolate. Today all I can eat is steak, hamburger, chicken, certain vegetables, potatoes and a few other things. Otherwise I look like I just got out of the shower. Nightmares and sleep. Similar to the male nurse that recovered. I also sleep an average of 2-4 hours a night. I have insomnia since covid. My nightmares are so reoccurring that I dread going to sleep. I wake up in a panic attack every time. I’m sweating and shaking uncontrollably and it’s sometimes takes an entire day to calm down. Then I fall asleep and it starts right back up again. The breathing didn’t affect me until I caught omicron on Christmas Day 2021. I feel sorry for everyone going through this! I wouldn’t wish it upon anyone! I’ll end it with this, I’d love to talk to you about this unfortunately just having someone comment on my comment sends me into a panic attack. There is nothing about this virus that makes any sense whatsoever! Thanks for listening. Bless all!
It is such a reassurance when others encourage & you get some answers of our condition. Thank you for all your videos.
Lovely to see you so happy and chatty!!! I’m gonna get better, I’m gonna be able to parent again!! Thank you… x
I think it shows we have to try things out and work out what is working for us. It's proper work to recover! Thank you for this interview. Like you, I find Raelan's interviews have been a real source of hope.
Thank you so much Raelan for another amazing video! Every video you do, gives me more hope every time I watch one!
It is so good to hear so many different ways that people recover! No matter, if it’s brain, retraining, or somatic experience!
Thank you both for the story. It’s such a relief to hear from someone with babies. I’m relating to so much of your story Jenny, trauma, no time to stop, keep pushing through. In pure fight/flight 24/7. Then got a typical flu and bang!!!!!! Life over. I also get the loss of self and guilt. ❤
Thank you Jenny for expressing your experiences so clearly. You are helping to build understanding in the world at large so that one day appropriate help WILL be available through the health services. Thank you, you've made a difference already.
Raelan thanks for all this videos, so helpfull life savers. Please, please can you make one speaking about another conditions and sympthoms in long covid? I'm long covid but don't have fatigue and I feel like my condition is less common. I will really aprecciatte if you share information and advices to recover for the ones who have differrent sympthoms of Long Covid than ME/CFS ❤
Thank you for making these videos. They are very informative. I had brain-cancer in 2015 and went through a very dark time. Since then I have learned a wild amount about health and wellness and am now doing wellness coaching and am grateful I have brought myself to a balanced place in life after implementing lifestyle changes and various culture's breath/body/mind practices to address my nervous system. I am actually about to collaborate with an immunologist at The Cleveland Clinic on a wellness practice to offer patients with Long Covid and do a study on. He also has a large focus on ME/CFS and POTS. So again, thank you for providing me with these videos to deepen my understanding to know what to bring to the table with the study. And of course this type of content you are creating is very important for the world in general and I'm sure many people are grateful for the work you are doing. Take care in the meantime!
Great interview!!! ❤
Hello Raelen.First of all hats off to you and your channel all the way from India.I have been suffering from ME/CFS for above 1.5 years.Have been watching the recovery videos.I know i will heal but during the crash it's really lonely.Have been trying to cope up with anxiety from early college days.I now can connect all the dots and the lead up to this amd what FLIPPED the switch.Initially it was difficult to comprehend but now thanks to you and the recovery stories, learning soo much about brain retraining,have always been searching outside for answers but its all inside and though the symptoms are crippling, today is a very important day when the switch reflipped inside.I wish it looks up from here with graded exercise,diet and management.Thank you sooo much and utmost gratitude.And yeah kudos to her and the episode.God bless.Thanks to the universe.
How you are you doing these days? I hope you've gotten better!
Such a beautiful recovery story! As a mom of 3 boys still recovering from LC, this interview was extremely powerful and downright emotional. I'm curious to know her symptoms in detail. Would love to know if she dealt with dysautonomia symptoms from LC.
So inspiring thank you for sharing!
Such a gentle interview... xxx
Great interview!
27:15 kittens and squirrels 😊
Those can be categorized under catching glimpses, which I read about in some trauma recovery insta accounts.
Joyful things are soooooo important for recovery!
CNS for the win baby! Parasympathetic state for the win.
How to (my opinion):
Recognise stressors and remove them
Keep light activity in if possible(walking, massage etc)
Watch the diet so good proteins and fats and complex carbs. Eat frequently and planned
Realise symptoms are physical but reason is CNS overload.
No phone or social media or shit news following
Have clear sleep method (cool room, dark, silent)
Yoga and meditation daily!
@Shania Gib It is a very complicated disease that involves multiple organs and multiple body systems. It starts with immune dysfunction and then it seems to have many ways in which it manages to ultimately destroy the mitochondria, including via the microbiome.
Yep, I've recently realised how much that stress inducing programs were effecting me. I was watching health, crime and accidents programs in order to feel safe in knowing things to avoid. But it is constantly reinforcing an idea that the world isn't safe which is stressful.
I feel safer and happier now I'm not doing that.
@@ShaniaGib-dc9oxOr you could actually say that the nervous system disregulation isn't allowing the gut to work properly to allow the right microbiom to thrive.
I have tried to alter my gut microbiom with so many different modalities with little to no effect.
@@loobylouboti for u to say this means u are in the bushes and cannot be helped. Now go to your internist and let him solve chronic pain for ya with opioids. I bet u also trust scientist who said vaccine is utterly safe haha didnt ya
@Shania Gib this is how it seems to me too...I wish more people talked about the microbiome...are there any resources or speakers you d recommend? 🙏
You both made great points here!! ❤
Thank you Jenny! I relate to so much of your story, about having kids and the traumatic things that can happen (mine were similar and different at the same time). My kids were 2 and 4 when I really crashed. Two years later it’s still hard, but not as difficult as in the beginning. I’ve recently listened to the interviews with Rebecca Tolin and for my the safety thing also really clicked. I feel I have lifelong safety issues to resolve, but I realize that this doesn’t mean I can’t move forward and live my life now. So that’s what I’m trying to do! Hopefully I’ll be on the channel too, not too long from now, letting other mothers with young children know that you can get through this!
Thank you for your comment. Especially the safety issues you mentioned hit me. Struggling with that too and for now feeling lack of safety and security blocks me from moving forward. And also wanting to be the perfect mom and wife and house manager 😁
@@buszje1 Hoi Martine, ben jij toevallig ook Nederlandse? 😉 ik heb dezelfde naam hier als op Instagram. Mocht je het leuk vinden om contact te leggen, stuur me een berichtje daar! Groetjes, Mieke
Two people with such beautiful souls. Thankyou for all your work helping others. It makes me smile so much to see such kind and loving people 😁 xx
It is really interesting how different approaches work for different people.
Amazing recovery with kids🙏💪😇
But how do you handle the PEM when you push yourself and the body response with massive symptoms that really can't be pushed through anymore?
I never really could understand the Sarno approach. I understand the theory behind it but the practical aspect with telling yourself you're fine... That's not enough, not enough for my NS anyway.
Waiting to see the answer someone’s answer to it!
In the video, she talks about how her friend found pacing helpful and recovered that way, and why in her case/situation it didn't help. Jenny's takeaway on how these different methods are linked I thought was really good. That said, for a lot of people doing both works (ie pacing and Sarno or other NS modality). Practical lifestyle + NS. I'm not an expert on Sarno, but I think beyond the knowledge piece (about it being the nervous system / mind-body, etc), it's also the I think it's the emotions component -- so maybe looking into why you feel the need to over-push yourself. And healing that part of you. Your body is probably saying no for a reason. Sending
I have been using Sarno’s method and for me I had to work on finding safety first before I started challenging myself physically. She said she felt safe living life again because she knew nothing was wrong with her. Her belief was strong. It doesn’t work to resume activity if you’re not working on convincing your brain you’re safe. When I started resuming activity again I talked to my brain before and during (not excessively though) and told my brain I am safe. It is safe to do this activity. I learned from Dan Buglio - Pain Free You. You don’t have to have pain. It works with many different symptoms. He posts a daily video on UA-cam. I listened to him alot and joined his group for a little while.
Sarno's work and research was on pain, not ME/CFS, so religiously following his advice is probably not a great idea.
For instance, Sarno recommended pain sufferers to resume activity as normal-A recommendation which is frequently unadvisable for people with ME if not physically impossible.
His main point was to be in touch with your emotional state, and to reduce the fear and catastrophisation surrounding your illness, which I think is a great idea and has helped me personally. Lying to yourself and saying "actually I feel fine" when you really don't is antithetical.
@@PiegyYTubeno it's listed in his book fybromyalgia cfs
I am very curious if she got the covid vaccines after her suspected covid infection, and if those seemed to help her recovery (or hurt)? Thank you, this was a great interview and very encouraging :)
Thank you so much
Thank you, Raelan, for yet another compelling video! Recovery really is about calming down and being kind and understanding towards ourselves, as Jenny so beautifully stated. She is such a beautiful soul who, through this video, is helping so many others of us in our recovery journeys. Bless you both!
Beautiful story! I was watching with closed captions and they were pretty bad. Look at 27:27, when the closed captions said that her kittens were so stupid. Haha :) I'm sure they are fine and good kittens!
I'm from Rotherham, I'm so glad your feeling better, can I just ask a couple of questions, 1 did you suffer chronic insomnia 2 did you have any gut issues like leaky gut many thanks, Nick
I watched the videos and you guys got it so easy!!! I was four years bed-bound with total food intolerance with Lyme disease than I recovered had three amazing years and covid hit me harder than Lyme since than almost two years of suffocation and Lyme and all kinds of crap...
I wish I would have been in your position...
Hi ! I’ve lyme as well but nobody believes me . I tested positive so many times but doctors don’t even care . I’m bedridden and have a neuropsychologist that it’s applying Sarnos theory but I’m not feeling good at all… how did you improve a treat your lyme ? How did you got better first time ? Thank you ❤ hope you will get better again if you did it once you can do it twice. 🙏
Nothing about chronic illness is easy, for anyone.
Would it help you to try to bring back the things that helped you in the first time ?❤
@@MariaSotiropoulou88 I tried unfortunately last time my way out was cycling and I can't do that anymore because I can't breath... is a nightmare.
@@fwdflashwebdesigncan't take a deep breath I had this for years but it's pain symptoms now constant
Try having severe me/cfs in 1981. Not only was there no help but my neighbour's all told me I was crazy. How are we crazy if/ when I get sick in a motel room at the age of 20, i later developed an ulcer, when ulcers were thought to have been from stress....we now know ulcers are from H.pylori. then in 1993 at the age of 33 KERBOOM!!! I ended up severely sick....as sick or sicker than Whitney Dafoe.if a door shut normally, I would end up in bed for 2 weeks...can't say it hasn't been a battle. I'm still pretty sick...I don't think I am recovered...I know I'm not.im probably full of infection as I have 2 inch lumps under my skin all over my chest etc. Mcas, allergies,gut troubles,arthritis,ringing in ears and over 100 other symptoms yet no help
I had to go on a restrictive diet because my face was swelling nearly everyday,gives,itching it was Hell on top of CFS symptoms. I lost alot of weight and went on a low histamine diet. After months it eased of but I take natural anti histamines daily, got of allergie tablets. As a mum to a young child it was SAS bootcamp in suffering. M.e/ CFS is so hard. Please keep watching recovery stories and trying everything, put in the work with your mental health, diet, etc. Turn to God, read the psalms, about suffering. Don't get bitter get better. Pray to God for strength.
Hi Jenny thanks for sharing, how did you find your psychotherapist in the UK? I had a look on the TMS wiki but couldn't see any. I'm also trying to find one
Yes I'd highly recommend klearminds- they're not cheap but really great. I had Amanda she's wonderful xx
👍 ... Yea, there were tears. ❤
I'd be really interested to reach out with Jenny and find out who her therapist was. I am looking for one now to release some stress and trauma and it may be halting my recovery
Thanks
Congrats Jenny, Tolin strikes again 😀
Nicholas, I have rewatched your interviews with both Raelan & Rebecca. I think you're such an extraordinary person, and told my partner this morning that I really would love to see you as a group coach to men (or anyone!) that are going through similar conditions. I think there are so many men out there that can resonate with your story and that you could help. I'm so grateful to you - to be so open and dared to share your amazing healing journey with all of us. It really means a lot! 🙏🙏🥺☀✨
@@AW-tz6fb I don’t know how to respond to that….speechless really… I’m just a very simple fella and don’t rate myself at all and in fact not very kind to myself at all… thankfully Rebecca taught me about all that… I have been thinking deeply what to do in this TMS/Mind Body world post recover to help people, I setup a little website, did some interviews but not sure what or how to do next. Hopefully it comes to me but for now I’m happy to have chats people and share my story. Thank you for such a kind message, means the world to me.
@@AW-tz6fb I agree 100%. Nick is truly extraordinary! He really understands how to heal and has a heart of gold. I agree that so many people can resonate with Nick and his amazing experience!
@@Mozzos Aww, Nick. You are a gem, sharing your story and knowledge so generously. You truly have a unique way of expressing healing and hope. I didn't do much. It was all you! 🥰
@@rebeccatolinmind-bodycoach thank you Rebecca, we made a great team in my recovery journey as you are doing for so many others and we all thank you 🙏
I’m close and have kids 11 & 13, I’ll meet you at the finish line;)
My kids are 11 and 14! YES--We will get there!❤️
And we recovered at around the same time too :)))
My heart goes out to her with the trauma after having children 💓
Does anyone know is there a stage where long covid is the most dangerous ? First 3 months or later ?
Thanks
Graham!!! You are a rockstar - thank you. Seriously, I appreciate you and the gratitude you continually send my way. Sending hugs to you and wishing you amazing things coming your way ⭐️
Thanks so much Raelan
I have been meaning to write in with my little story.
Essentially recovering from ME, then the masking symptoms of ME, to produce someone who is nor well,
Somehow I toddle along with these masking symptoms, only to find out that firstly I had water on the brain, and with the aim of repairing that condition through Neuro surgery, to find incidentally that with the evidence of a lumbar MRI, which was not going to be undertaken unless my daughter Gemma insisted I should have!
Long story short MRI shows cancer of colon, which was speedily extracted, and the Neuro surgery are all behind me save to say the cancer which involved chemo treatment.
I could only complete the 2 out of three sessions.
Made me feel absolutely dreadful
My long winded point that my treatment for ME was ok
But talking of rockstars with the humbling treatment of cancer was so so much better. I am the same person with ME however if I was labelled as a cancer patient treatment is far far better.
People have asked how I am with cancer and check in with me!
As an ME survivor barely anything..you can honestly tell by the eyes and body language!
If one is they are deserving of sympathy and understanding !
Thanks to Viome for sponsoring this video! Try it here 👉 tryviome.com/raelan
How do I find Rebecca Tomlin video?
Raelan added it to the video notes! 🥰
Thank u so very much, God bless you.
❤❤❤❤ Well done Jenny!But you didnt say Jana 😅😅😅
What about when one has genuine oxygen saturation drops still, with long covid ? Anyone else tangible symptoms?
Hallo Billythekid i have the same problem like you do. Oxygen i don’t know what to do if i start walk i feel my lungs don’t get enough oxygen
@@sadnagoso-yn6iz well the reality is that a huge UK study I took part in last week confirmed the Gas exchange in 75% of long haulers is inefficient… that’s not to say methods outlined by Raelan etc don’t work as a calm nervous system will help for sure! But perhaps our bodies are misfiring for a biological reason too
I’m truly disgusted by these doctors who say ‘get used to it’ shame on them!😡
Did she experience any emotional stuff
Has anyone gotten vaccinated, while dealing with long covid? Did it help?
Definitely made my LC much much worse
Adopting my neighbor's Dog got me out of bed and happy. The limbic brain is like a 3-year-old so what would make a three-year-old happy and That's what I did a lot of lulabies, silly things, pets, coloring, and should I say a bit of candy ok I said it. Some of the things.xxoo Ava
I would love 2 tell my story.. What they did 2 me.. You would not believe
First step to recovery: don’t read the comments..
Most comments here are good, but yeah, some are not.
Hahah you are so right, the people that write comments like IVE BEEN SICK FOR 30 years are all victims, they blame everyone else for why they aren’t better and can’t take ownership. And then they write these comments that actually keep more people sick from FEAR
Lol great comment! I must say however-some comments and some responses I’ve received have really helped me cope with my long Covid journey! ❤️
@@MK-gy1ug I can’t risk finding a good comment as the negative ones are so triggering for me. I don’t know how people can be selfish with their “I have CFS for decades and it’s gets worse everyday” comment. I personally make a big effort to post things that I know won’t hurt others. I know people want to express themselves and they have every right, but hurting others doesn’t seem to help anyone.
@@swyllie30Totally agree with you! Some can be pretty nasty! I’ve heard my share. I never understood why people can be so mean. They must be going through something, still does not make it OK. I always say being nice is free and does not cost “you” anything. Wishing you the best of luck in your journey! Stay strong!
no they didn’t, don’t lie.
I need to find a way. Since Aug last year my life is a living hell.
❤❤❤