I still remember when my dad was diagnosed with this. Hopefully technology has come a long way since he had it back in 2007 and unfortunately passed away in 2009. Hopefully they have better treatment than back then and I hope you beat this.
My husband was recently diagnosed with MDS. He is 82. He is going through treatment now. He is handling it better than I am. I hate that he is going through this. We would love to see a cure for MDS! I pray his treatments work. I love him so much.
I was recently diagnosed with CCUS and a TP53 gene mutation. The path from here is USUALLY MDS and likely AML. I am a recently retired Nurse Practitioner and my wife is an orthopaedic OR nurse. Wishing you well. I will follow you to receive and offer support. Best Wishes. Gary
I’m in the same boat and just recently got diagnosed at 45. I should be going in for a trial transplant soon! It is very scary and can relate to all the feelings, thoughts and emotions! Thanks for sharing your story!
I still remember when my dad was diagnosed with this. Hopefully technology has come a long way since he had it back in 2007 and unfortunately passed away in 2009. Hopefully they have better treatment than back then and I hope you beat this.
My husband was recently diagnosed with MDS. He is 82. He is going through treatment now. He is handling it better than I am. I hate that he is going through this. We would love to see a cure for MDS! I pray his treatments work. I love him so much.
Hi, how is your husband doing? I hope everything is OK
Hows ur hubby now ??
I was recently diagnosed with CCUS and a TP53 gene mutation. The path from here is USUALLY MDS and likely AML. I am a recently retired Nurse Practitioner and my wife is an orthopaedic OR nurse. Wishing you well. I will follow you to receive and offer support. Best Wishes. Gary
I have MDS also IM 63 and was diagnosis at age 60 . l Iive day to day and hope for a cure .gratefull for every day !
Are you doing ok?
R u ok now?
Are u ok
I’m in the same boat and just recently got diagnosed at 45. I should be going in for a trial transplant soon! It is very scary and can relate to all the feelings, thoughts and emotions! Thanks for sharing your story!
Hi Brian, how are things today?
I hop you successfully did your BMT
My father has MDS, does that mean he has cancer?
Yes, Mds is a form of cancer. My husband has had MDS since 2013. He is transfusion dependent. Push for a lot answers. I have watched a lot of videos.
Yes, MDS is a cancer of the bone marrow. How is your father doing?
That's why Novartis needs to invest in Autologous cell gene therapy.