CARLIN'S EPISODE CAUGHT ON CAMERA! DOCTORS PUZZLED... BRINGING CARLIN TO TEARS!
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- Опубліковано 12 вер 2024
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Epilepsy Mom here. Just in case it is a seizure (and it looks like one): When this happens, turn her on her left side, that way she doesn't have a chance of choking in case she throws up.Just keep her comfortable until it passes. Film it!! The are three phases of a seizure: Beginning (I feel weird, auras maybe), Middle ( called Ictal, seizing), post Ictal (up to 30 minutes, in and out of consciousness, it's like the brain is rebooting). Hope you can get into a Neurologist ASAP. The best type of EEG for detecting seizures is where they deprive her of sleep, blow on a pinwheel, use strobe lights, etc. They are trying to trigger epileptic brain activity. Praying for y'all. 🙏.
Thank you. Your information is spot on. You being an "epilepsy mom", I know you are 100% giving them the correct info. I worked peds for years, and I'm glad you left your comment. I hope your kid(s) are well! Have a great holiday weekend!
Yes or bite your tongue.
100%.
Also rolling her to the left can help prevent her tongue from rolling up in the back of the throat and blocking her airway. As well as something for her to bite on, (popsicle stick) think they have something called a bite guard.that will protect her teeth when she is going through this (holds the teeth slightly apart). Those two things are equally important.
yes!! get her to the floor and turn her to her left side!! I grew up with my dad and several of my friends having seizures.
When Carlin was on the floor and cried out "what's wrong with me?" broke my heart. 💔
Also, Evan, it'd be a great idea to take CPR lessons just to be safe (and infant/child CPR) if you haven't already. I'm sure it would give you some added piece of mind when she has an episode.
It broke my heart as well and I cried with her. Carlin and Evan are such sweet people and I hate that this is happening. I know God is in control and I will be praying for the answers yall need about Carlins illness. Ya'll have 2 beautiful babies. Love yall!!!
Absolutely. Great idea. My brother has a severe seizure disorder and he typically quits breathing every seizure. He has been intubated, put on a ventilator and life flighted. He didn't have his first seizure until he was in his 30's. One time he fell face first through a glass table and had a huge cut on his forehead. My cousin was holding a towel on his forehead to control the bleeding and I was doing CPR (all while he was violently convulsing). Witnessing a seizure is terrifying (and I'm a registered nurse).
This is a great idea except when it's a family member most tend to forget exactly what to do. My mom has been a paramedic for years and this happened to her when I had an episode and became unresponsive and stopped breathing.
* peace of mind.
On a positive note, how amazing is it to have a whole second family who loves you? It's hard to see you like that, but I bet it makes your parents and family feel better seeing how loved and cared for you are by your second family.
Yes! Not everyone has that! Was so sweet!! ♡♡
It made me tear up! The love!
For real! I would be absolutely mortified if anything remotely close to this happened with my in laws.
@@amclaudet me too I was tearing up watching this. Reminds me of what I have gone through so many times- my husband cried every one he witnessed; side note all of mine happened at night?
The way Evan’s family stepped up and cared for Carlin was beautiful! They seem like incredible in-laws!
What a lovely supportive family, in laws and ambulance staff .
I agree!!! I love this! My in laws would step over me just to give my husband a popsicle.
During your episode at your family’s house I was just so impressed with how calm and caring your family was
Me too! They were so loving and kind. What treasures!
They were amazing!!
They are so sweet
They were wonderful
I know. They made me tear up- they are so loving!
Evan…your Nashville family is AMAZING ♥️♥️♥️ watching them remain so calm…watching them sit with Carlin, hold her, comfort her, talk to her - brought tears to my eyes!
Me too 🥺
Oh my gosh me too
Carlin, everything you’re feeling emotionally is completely normal. Your positive attitude is amazing and is so helpful. I was a nurse practitioner in neurology for 35 years and I just want to reassure you that often times the process of obtaining a diagnosis is long and frustrating.. But you will get this figured out!!! You’ve had all the appropriate tests so far and praise God that nothing obvious has shown up. I admire your family support so much and Evan is so mature and wise (and calm which helps so much!).. I have seen what a difference it is for someone with no support. You are blessed! It sounds as if the doctors have instructed you as to when you would need to take a trip to the ED.. I just want to add that if any episode seems particularly long compared to previous ones you need to call for an ambulance. Know that you and your family are in my prayers and again, although this seems long and frustrating, something will come to light!!! Take good care.
WAS SHE VACCINATED
@@wendy4ronpaul I wonder the same.
I have been praying and checking for updates several times a day. Love you guys so much.Hang in there. This too will change. They will figure this out.❤️
@@wendy4ronpaul That's a good question. It might just be from the vaccine. I know people who have not passed out but had fevers. I do know that they did have covid.
Amein 💕🙏🏽
I’m a epilepsy mom and your episode did look a lot like my daughters seizures. The postictal phase of falling asleep is spot on. Hugs and good luck.
As part of my husband's epilepsy testing, they hooked him up with a portable EEG machine that he wore for 3 days. They were able to see EEG data during a seizure that helped in his diagnosis and plan for care.
They didn’t mention this to them and why not?????????
Oh wow!! My son has done a 24 hour EEG, but never one for 3 days!
But sometimes the EEG doesn’t show anything, but you still have epilepsy. Don’t think that it isn’t seizures if the EEG is negative. HOWEVER, since this happened post partum, I would make sure she saw a cardiologist AND a neurologist. Probably a hematologist too, if her family has a history of blood clotting disorders. (I’m a very experienced patient, with Lupus and Epilepsy).
Was she Vaccinated
That's how they were able to definitely diagnose my daughter with epileptic seizures. It is unclear originally caused them but at least we had answers and were able to get her treatment for them. She still had breakthrough seizures but less often
This just broke my heart seeing the episode at Evan’s parents home. Had me in tears. Thank you for updates, and I will keep her in prayer, and you, too, Evan! You all are precious!
Same here 😭 My heart goes out to them both and praying for answers.
Yes I was crying also! Such a sweet family! Hope they find answers soon! 🫂🫂
Had me in tears too. Love this sweet family and hope they get answers soon. ❤
Whatever you do - don’t give up. No matter how many doctors tell you that everything is normal - fight for answers. It took me 13 years to figure out what was wrong with me; a rare progressive neurodegenerative disease. All the doctors over the years that I saw, who told me it was in my head. I’m so thankful that I never gave up. You’re doing great you two 💜
Geef niet op jezus heeft haar in z’n arme 😂❤🙏
Nursing student here! In the case that these episodes are epilepsy related seizures or POTS, turn her on her left side so that in the event that she throws up she won’t choke. I would also inquire with her doctors about her blood pressure because she might have orthostatic hypotension which means she has a steep drop in blood pressure with position changes which would result in the fainting episodes. Hopefully the doctors have also been checking her blood sugar and potassium levels. 🙏 Praying for y’all!
Yes - definitely put her in the recovery position during or after episodes
I just bawled watching her have an episode! Evan you have been so strong through all of this! What a blessing that your family was all around during this big episode and that someone was able to film it for the drs to see!
Praying over you Carlin!!! God will lead you to the right drs with the answers!!
Watching her have that episode just made me cry for Carlin and everyone around her! Evan your family was so, so sweet with her!
I cried too😢😢 praying for answers
Seen this before on someone else. Get both stress tests
I had episodes similar to this for years and years. Ended up being diagnosed with POTS. And later diagnosed with chronic Lyme disease- which was causing the POTS. It took many Lyme tests (because they’re unreliable tests) so I wouldn’t take one test result as definitive. Praying for relief and answers soon ❤️
Did u grow up where ticks are common?
Love Love sort of but I only had one tick bite that I can remember. Never got the rash so we didn’t think much of it. Through the years my symptoms kept piling on and being diagnosed as autoimmune diseases. 80% of people with Lyme don’t get the rash and I’m in that 80%. You can get it from ticks, but also from mosquitos. We aren’t really sure the exact way Lyme entered my body.
I was thinking the same thing, I have two good friends with POTS (thats a lot becasue it's rather rare) but they look just like this when they have episodes
@@antiarugula EVERY WHERE! I have Lyme and the heartland virus. I live in nny but they are everywhere. I just went to see my dad last weekend in PA and left with two more on me 😭
this is my exact situation too😢❤
This definitely looks like seizures. I was diagnosed with epilepsy last August (at age 53) out of the blue. The neurologist had to do a 72 hour ambulatory EEG to detect the abnormal brain waves that were causing my seizures because nothing showed up during the short one in the hospital. I am thankful to the Lord and my doctors that they have been able to get me on a medication that has prevented any more seizures since December. Maybe a longer EEG is in order for you too.
Totally agree with you
I agree with you too!
I am 45. I have epilepsy since I was 5. Carlin please find a neurologist. It looks like a gand mal seizure. I have had so many. I am so sleepy after. I am not a doctor but please see a specialist.
May I ask what meds you are taking?
I am taking Briviact and Lamotrigine.
This poor girl, my heart breaks for you Carlin.
I agree. The hospital kept my niece overnight hooked up to EEG to monitor for seizures. She has never had a seizure in the hospital but they still put her on anti-seizure meds. She went to the hospital after she had a seizure in her sleep and bit her tongue severely. She is still not allowed to drive but cares for herself and the kids on her own now.
Someone needs to figure out what's going on and get her some treatment.
My heart just broke when she says "What's wrong with me?" and breaks into tears.
Sending prayers to the fam.
Carlin and Evan, my heart dropped seeing the videos you shared with us. How incredibly scary this was for everyone involved. Being in the medical field myself, I just want to say how incredibly proud of the calmness Evan & his family showed while all of this was happening. I know inside they were an emotional wreck but on the outside you couldn’t tell. Evan, you have been SO strong and supportive through all of this and just so incredibly calm when her events happen. Again I just want to say THANK YOU for sharing your personal life and keeping us updated on how things are going. I did see the IG post of Evan wheeling you out of the doctors office the other day, I’m glad the follow up doctor got to see an episode happen while you were with her. Now hopefully answers will be coming sooner than later.
So my daughter started having seizures at 11, and it was like Carlin. Nobody could pinpoint anything. Until they did a sleep deprived EEG, and when we went in to the appt she was in status. Hookrd her up to the EEG and within 5 minutes we were sent to Seattle Childrens, where they finally diagnosed her and started her on meds. No issues since meds. Shes 25 now and living life fully! Maybe ask about a sleep deprived EEG. Sorry for the long post!
agreed, i think it’s seizures
Seizures makes you want to sleep
Great call!
My bff daughter started having seizures last year at 11yrs old too. After her annual check up. Lots of women have had lifelong reactions to guardasil and I wonder if your daughter and my friends had them.
My granddaughter had seizures very scarey.She outgrew them at about 8 thank god.
My son has epilepsy- these episodes are so similar to some of his seizures I have witnessed. As a nurse I am so glad to hear of all of the tests that have already been done. The not knowing is the frustrating part. Lean on your faith and your family. May Peace be with you both 💜
I have seizures and didn’t start having them until I was in my 30’s. They couldn’t figure out what was going on until I was told to see a Neurologist. After a lot of testing they found my Depakote levels were low. After adjusting my levels to what they should be, I’ve been seizure free for almost 15 years!!!
@@priscillarobinson7740 Praise Our Wonderful Jesus Your healing is so encouraging to Carlin I’m sure :)
Was she VACCINATED
Carlin manages to smile and still look adorable even in the ER during a traumatic experience. Watching Carlin grow up on her family’s tv series makes us all feel like she’s a member of our own family. Thinking of Carlin and her entire family…..praying for an answer. Hugs
I know she does. She is goofy and funny.
Yes she's a beautiful young lady.
I totally agree with you!
My name is Kc. I’m a friend of a friend of yours. I sent a message to your sister Erin Bates regarding P.o.t.s. I have these exact same episodes. I pass out randomly then shake and feel off for hours… sometimes days. I have other health issues including myalgic encephalomyeltis. You are having them exactly like I did. Postpartum is what made things bad and for months I got worse because I continued to push myself. I was told by a specialist if I had just taken it slow and tried to rest I would have never gotten as bad as I did. I won’t scare you but I will tell you it was REALLY bad for 5 years for me. I want you to know this because I wish I had known. I hope you see this….
I hope she see your message!!
I was hoping someone would mention this! One of my best friends has POTS and she had similar episodes to this for the longest time. All her tests also came back frustratingly normal as well. It’s been a long road of learning how to listen to her body and lifestyle changes to get it under some control. It really sounds like she may have POTS.
I commented on one of her previous videos about POTS I was wondering the same thing
I am just thinking she just had a baby still working alot. She needs to get some rest and slow down.
I was just going to suggest this! I got diagnosed with pots after my last pregnancy and had these same symptoms.
You guys are showing such strength and grace through this all. Have you ever talked about POTS before? Vanderbilt has a great team that treats it. Sending Prayers!
That’s what I was just thinking.. I have POTS and can heavily relate to this
Oh Carlin. I am so sorry this is happening. I cried when I saw the footage of your seizure. How scary it must be for you to go through all of that. Praise God you have a super supportive family and darling husband to take care for you! Praying for answers and good health!
I cried too! So awful what she is going through.
I also cried watching her going thru this. Definitely having a seizure, but why. Praying for answers!🙏
I am just weeping through this video. Evan is precious and all of the Stewarts are wonderful. Praying hard for all of you!
I hope you guys find answers soon ! 🙏🏼If a service dog is possible, that would be good to consider later down the road ! Some service dogs are trained to catch you before you even fall when they sense an episode coming, it’s amazing
Izzy could be trained as service dog- poodles are great for that
@@caroldearing8002 yes true 👍🏼
I would definitely check on getting Izzy trained for seizure detection . Dogs are so smart and helpful in the medical field.
@@sherriplath8346 yes exactly !
EVAN, you may have to fight for what you want. Don’t let the doctors blow you off when you ask for a certain test. You have to be proactive and be Carlin’s advocate. Doctors don’t like it when patients suggest things to them, even when they are obviously completely in the dark about what’s going on, so you keep fighting for every last test you want done.
The question should always be: If she is not significantly better by when, we should what?
That requires an answer moving forward. And don't let the dr leave without answering that question.
Also, the videotaping is helpful so that they can see what you're seeing.
Still thinking positive thoughts and praying.
Yes, keep asking questions and I would recommend a notebook to write everything down for each visit because it can become so overwhelming. We carried that notebook every time we went to the fr or hospital. Jot notes and questions as you think of them so when you see your dr you have it right there.
Totally AGREE!!!
I so completely agree I can remember while my husband was in the hospital and being there 18 19 hours a day going home and doing research typing in One symptom and then another and the connections that it would make when I found the answer I printed it off the computer first thing in the morning I took it to the hospital headed to the doctor and I said do the test
@@jenniferb.7250 I also found that very very helpful I still have all the notebooks of the hospital visits in a blood pressures what time what medicines were administered so on and so forth
This came across my feed so I thought I would share in case it helps. I had Pots symptoms, heat issues, tingling, limb exhaustion, blackouts, convulsions and the list goes on. Magnesium deficiency. magnesium supplements gave me my life back. 20 years of doctors couldn't figure out what one amazing nurse could. good luck to you!
People don’t realize how much magnesium helps us!
@@mayramontero4316 magnesium , iron and salt
OMG ME TOO! Magnesium has SAVED ME. I had POTS, heart palpitations and fatigue after a virus and Magnesium citrate has helped me soooo much.
POTS is the first thing I thought of when she said they couldn't figure out what it was
That's what I was thinking this is.
Currently going through POTS testing for similar reasons, not this severe. Highly recommend the tilt table test. Praying for you
Mark 5:26-34. 🤍
I second this. I recommend a tilt table test also!! I have dysautonomia as well, but it's not this severe.
I had similar symptoms lately and had an episode where my arms and legs were going numb. I was taken to the ER in an ambulance and the doctors tested me for Guillian Barre and it was negative but then tested my B12 levels and they were low. My doctor has me taking b12 now and I haven’t had an episode since. I am praying for you all!
If nobody has told you this; buy a 3" binder notebook and start putting every medical notes, results, etc... With the newest info on the top. With medical diagnosis you are your best advocate! I am so sorry your family is going through this! Prays!
The heart monitor is the most important thing right now. I really think a Tilt table test is needed so they can monitor everything as she is being tilted. This test will show whether it's POTS and/or vasovagal syncope. It's not all that uncommon for people with vasovagal syncope to have myoclonic jerks during episodes. It's common for this to be confused as seizures.
I’ve had all of these! I have POTS and was having these symptoms. I’ve had all the tests she had and more. There are beta blockers that cross the blood brain barriers and others that don’t. When I switched my beta blocker all of my symptoms went away. Looking at your blood pressure when it drops and your heart rate is SO important! Good job for Evans family for checking your vitals while you were having those symptoms!
@@juliereinhart2973 With all due respect, drinking water and staying away from caffeine doesn't stop someone from getting POTS or vasovagal syncope. It's so much more complicated than that. sigh
I too have POTS- it all started after a very complicated twin pregnancy. I would ask for a tilt table study and a treadmill test-stress test. My blood pressure plummets when I change positions. I noticed your heart rate was very high at one point. I take a morning small dose of a beta blocker. My friend who also has been in and out of hospitals take a vaso constrictor. It helps keep her blood pressure up. I'm praying your doctors will find answers for you and that you will be on the road to recovery or at least the road to managing what is happening to you. I will say this...I am doing so well. It took a lot of time to get the diagnosis but I manage well. God has this!
@@ChaiLatte13 Never said would stop POTS. Caffeine consumption and poor water intake are agitators . Until she sees her cardiologist and receive a holter monitor result, it is something simple she could do.
@@juliereinhart2973 Well I've had POTS for 20 years and every doctor seems to think that drinking more water is some magical cure. It's just not.
Just now seeing this. I'm so sorry you're going through this! 🥺 I pray there's a diagnosis and treatment plan soon. Prayers of healing for you Carlin! Evan, your family ROCKS!!!!
I’ve had epilepsy since childhood and watching this video is almost like a mirror image of my initial testing/diagnosis period. To this day I’ve never had a seizure during a test so I can understand how disheartening the lack of answers can be. I understand your frustrations and how life altering these seizures can be but I promise you it will get better. Maybe not today, next week or even next month but I know, in time it will get easier for you. Finally, The feeling you get before a seizure is known as an aura and when it occurs you’ll slowly learn how to read it and use it as a way to get yourself into a safe place, or in my case simply sit down on the floor, before anything happens.
This may sound dumb, but a dog who is trained to detect a seizure before it actually happens may be a way to help to confirm or deny that it's actual seizures. Just a thought!
Carlin, you are a doll face even when you have medical equipment wrapped around your head 😂❤ Stay strong girly, you have a lot of people praying for you. ❤ Evan, you are doing a great job!
I’m noticing a maturity in Evan already through this experience. Before he seemed to have some uncertainty about what he should do. Now, it’s like he knows all he needs to do right now is be there for Carlin. This is who you were all along Evan :).
Love you Evan!
Much love to Evan! He is an excellent husband and source of support
♡
After watching your video, the calmness and care you're getting from your husband, friends and family is truly amazing. I know what you're going through is scary as I have the same episodes as you. The collapsing aka drop attacks, fatigue, dissociative seizures, balance & tingling in my limbs & memory issues (forgetting what I want to say while having a conversation), dizziness and typically happens when I am at rest or just standing still, getting out of bed is another thing that will bring on my seizures. Finally, I got the diagnoses as FND aka Functional Neurological disorder. MRIs are normal as are my EEGs. Took 4 years to get a final diagnosis and been living with it for about 7 years now...not sure if this is what you have, but it is very similar to my symptoms! Prays & Huggs
I cried when she cried and said "what's wrong with me?". Praying the medical team can find the right med for this.
Y’all, I cried so much watching this! My heart goes out to Carlin and your family. I’m praying for her daily ❤️
i really think they hit a nerve in her spine with that epidural... praying for yall!! love from texas!! 😭
Love You Carlin,Evan,Zade,and Layla!!!! God Bless you always,and keep hanging in there!!!! We love you Bates's,God Bless,and hang in there!!!! Thoughts,and continued prayers for all!!!! We love you,hang in there!!!! God Bless always!!!!
Their last name is Stewart, not Bates.
I would request an EEG that is longer than just a couple hours… it needs to be at least on her for 3 days or more! I know it’s not the easiest thing but she needs it done! Praying for y’all!! 💜
Yes!
Yes I Definitely agree
Agreed
I'm epileptic & I have similar symptoms that you are when I have seizures. The confusion & exhaustion afterwards is normal. It took some time to finally pinpoint what was happening. After multiple tests & medications, I finally was diagnosed. Prayers for you, your family, & the doctors.
I pray God’s healing over sweet Carlin. This episode tore me up. I am praying God will move you in the right direction for answers and what to do next and that you’ll be safe in all you do. ❤️
Amen
Amen
This just randomly popped up and I was watching and I'm literally crying. When you asked what's wrong with me while aging in the hall I have felt that so many times myself for my own health issues. And as a mother I was so scared because my 3 month old had a febrile seizure and it wouldn't stop and he was 106° and the ambulance came and I never felt so defeated because they just said he will be ok and keep giving him Tylenol which I had been doing for 2 weeks at that point and he wouldn't break the fever no matter what I did. The ER wouldn't do anything, the pediatrician, nothing. So I know what he means about watching you shake and jerk and it being scary outside looking in. Because they love and care for you and don't want to see you that way and just want to help. I'm praying hard for you! And I'm praying for answers, healing, and peace and comfort.
Watching Carlin cry and say “what’s wrong with me?” broke my heart!!! Praying for you sweet girl!!🤍
Please, please, please pay attention!!! I am an RN Masters in Nursing w 50 years experience, 20 yrs in Cardiac Intensive Care at a massive teaching, investigational cardiac facility Wm Beaumont in Royal Oak MI.
PLEASE ASK MDS, CARDIOLOGISTS WHY THEY DO NOT THINK CARLIN HAS POTS (postural orthostatic tachcardia syndrome) its newly discovered, she is typical of so many symptoms, including in 20s, post partum, standing up causes passing out and she has tachycardia, her hands, fingers get pale, dark, indicating lack of circulation. This is cardiac, NOT NEURO FOCUSED USUALLY. PIN THEM DOWN ABOUT POTS, PLEASE!!!!!!!!!!
I have been thinking the same! I’m a nurse too and also have POTS and Gastroparesis and some other stuff. I was borderline with her symptoms and puzzled why they haven’t done further tests except that they’d prefer her see a specialist, BUT, THIS VIDEO was great because I noticed her pale hands too when he was holding her hand and the camera zoomed in on that! It was very noticeable!!
Oh my gosh....broke my heart seeing Carlin on the floor having an episode!😢😢 Praying for you and that you get answers!🙏🙏 Love you guys!💜
I just got diagnosed with PNES physcogenic non-epileptic seizures I had the same symptoms as you it’s taken a whole year for my diagnosis in and out of ER and ICU Rooms I would recommend you get a good neurologist and ask them to get a EMU done it’s where they admitted into the hospital for a couple day and monitor your episodes try to find your triggers like you said the worst part is not knowing that was the hardest for me and my family! Prayers to you 🙏🏽
Really admire you guys for sharing such a vulnerable moment so openly. I'm going through some scary medical stuff at the moment and seeing Carlin so calm and positive is a great example!
She really is amazing
I pray that your medical problem is resolved and with good results. Keep the faith.
God's blessings 🙏.
Oh Carlin. Definitely keeping you ... and your family ... in my prayers. I was in tears watching you on the floor. Broke my heart. Hugs.
Praying they find answers soon. Evan you are so caring and it truly shows how much you love Carlin and your family melted my heart the way they kept talking calmly to Carlin and were letting her know they loved her and to not worry about Layla and Zade that they would be fine while she went to the hospital. I know this is scary for both families. Sending love and prayers for everyone.
They wont find answers, its from the jab. I have seen this hundreds of times.
Keeping you all in my prayers. I suffered from seizure like episodes for over ten years. Then I had a sleep deprived EEG. I was diagnosed with a seizure disorder but it is non epileptic. Mine are more related to stress and PTSD. I just had one at church on Sunday, that was embarrassing but everyone at my church was so loving and helpful. So blessed. I’m a new subscriber and I’m definitely sticking around and hope you get answers. Xoxo
Oh gosh, I bawled like a baby watching you go through this. Prayers they figure it out
This looks like POTS! Request a Tilt Table test. Keep advocating for her. You guys are heading in the right direction! 💕
Good thought!!!
What is pots?
This is what I thought, too. Maybe a good question to ask neurologist.
As a nurse who has performed many tilt table tests, that is the first thing I thought of when I watched your video. Sometimes a holster monitor can pick up the episode, but if you have POTS, a tilt table can and most times will induce an episode. Prayers for y’all as you seek answers!!
It's probably post Covid related :(
I’m not a neurologist but I am a neuro critical nurse & have taken care of a lot of seizure patients in the past 5 years. I agree it definitely looks like seizure activity. Especially the postictal state (sleeping) afterward. I would ask the neurologist if it’s possible to do a continuous EEG test until Carlin has another episode. This might require another hospitalization, but it would be worth the answers that the test would provide. Hopefully once she gets the official diagnosis they can prescribe an anti-seizure medication regimen to get rid of them all together & hopefully can pin point the cause!
Agreed
I had these same episodes, request a 72hr EEG also a Tilt Table Test. It took from the time I was 15yrs old or so to the time I was 28yrs old to get all the right test. Mine were never this many together normally months and months between. The Tilt Table test finally gave us the answers. I have a Heart valve that sticks open which causes me to pass out! My episode would be so different from the next. One time I Lost all continents. That is when I pushed for answers.
And also have her move around … bc it seems her triggers are heat, movement, etc.
@@jillkelso4402 *continence* («continent» is one of earth’s 7 land masses) 🤗 So glad to hear you figured out what went on with your seizure disorder! Good for you!!!💓💞💓
Agreed. My sister is a nurse practitioner and she's working in neurology, specifically epilepsy, and she works at an "EMU" (Epilepsy Monitoring Unit) where patients stay for a week, hooked up to an EEG, hoping for a seizure so the docs can see an active seizure on the EEG and pinpointing seizure or not and what type.
Highly suggest a tilt table test and other stress tests… a lot of ppl are recommending and pointing out - they need to test during an episode. As amazing as the doctors are, sending her home without doing this is upsetting (and typical).
Yes. Why no tilt table test?????
EDS
POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME
POTS, See Cardiologists, Nuerologist and do a MRV brain scan. Look for EHLERS DANLOS, CHIARI or CCI. Those look like seizures
My grandmother had seizures, and she would sleep for hours afterwards. Hers would just come on all of a sudden also. They finally got her on the right medication and she is doing great now. The doctors have never found what causes them. My prayers are with you.
I'm so sorry you are going through this. Praying for your complete healing. Praying for Evan too.
Hard to watch Carlin suffering. Praying for healing and answers to what is wrong. ❤
My sister started having "episodes"....passing out in her late teens and early twenties. She had probably hundreds and two car accidents over two decades. She saw neurologists, cardiologists and other specialists over the years. Wore heart monitors, but they couldn't find a cause. After going to Cleveland Clinic, they told her she needed a pacemaker. She has not had one episode since, and it's been almost 4 years. She feels great.
Same thing happened to my grandfather. He was being examined by a dr when he had a spell. They put in a pace maker and he lived another 25 years around 85 ish.
Lots of women started having issues after hpv vaccine. It's one of the side effects. Did she ever get guardasil?
😭 that was so hard to watch, I may or may not have balled me eyes out. I can't even imagine, I hope y'all get answers to exactly what is causing this to happen. Your husband is amazing and so is his family! I am definitely praying for you and your family! Thankful that Evan will be able to stay home too with you, as a mom myself my anxiety brain goes to all the what ifs and I can't even. Love to you Carlin! Answers are coming. 🙏
Watching this video and seeing what Carlin went through had me crying. My heart is hurting for y'all. I'm praying that you get answers to what is causing the episodes & I'm praying for healing. Love you guys!
Thank you for the huge update. I sat here and cried and prayed and cried and prayed, and said, “Poor baby!” So many times. I just wanted to make the pain go away. I am so so glad you all have such a huge and amazing support system and God on your side. My thoughts and prayers are with you. ❤️
I love Vanderbilt hospital. I had a gallbladder attack 3 months ago. Spent several nights in the ER then was moved to a room upstairs because of my medical history. They take really great care of you. I would recommend them to anybody.
I am so sorry you are going through all of this! I am an RN, and I definitely think you need a 72 hour video EEG and tilt table tests!! Praying you find answers soon!!! 🙏🏻🙏🏻
Carlin's episode was hard to watch, but Evan's family was so loving and comforting to her. Praying for answers for you all. Glad you will be seeing a neurologist. Evan, you're doing a great job covering your wife and family.
Aw Carlin 🥺 I’m so sorry that this is happening to you, praying heavily for you! Glad you’re doing better and I hope we get answered soon
I went thru similar episodes and was finally diagnosed with dysautonomia. Keep pushing and searching for answers someone out there will be your blessed Dr. who will find answers and treatment. I'm sorry its so scary
Same. I think she needs to look into tests for dysautonomia because I had the same symptoms and was diagnosed with that along with myocarditis.
Request a tilt table test (TTT) with an EEG! It mimics the postural changes your body normally makes when you go from sitting/laying to standing (which seems to be the common denominator before many of your episodes), monitors your body to catch how it effects you and find out if that’s what’s causing your episodes. Your symptoms look very similar to POTS and if that is the case, a tilt table test will diagnose that. I have pots and have had seizures similar to yours after passing out because my heart and body couldn’t seem to get enough blood to my brain, causing seizures.
I am so sorry you are going through this. I know how disheartening the process can be. It took me 5 years to get a diagnosis. I pray you will find one way sooner than I did. I will be praying for you! ❤️
YES!! look into POTS and FND
This!!! This is what I’ve been thinking too
Yes!!! This I have POTS, hEDS. Go see cardiologist and neurologist. Could seizures or neurocardiogenic syncope. She needs an EEG and tilt table test for sure!!!
If not intermittent blood clots I thought of POTS as well. I am new to the channel but went back and watched several videos. Before her pregnancy she was given anti-coagulant injections twice a day and it was mentioned that she may have to go back on them after delivery and now here she is having symptoms that very much look like bloot clots thrown to the brain. I am not sure what symptoms she had prior to going on heparin but this should be the first place the doctors look. She may have brain inflammation which is causing POTS which could have been brought on by Covid or the vaccine. There are multiple COVID reports of clotting as well as VAERS (vaccine reactions) reports regarding this issue.
This sounds somewhat like POTS, although not everything. I would definitely recommend the TTT and tether monitoring. Vanderbilt works with several of these issues, although it is hard to get in. If you go in through the ER, you will likely get in faster to the specialists, so try going there next time you have an episode. They are familiar with diagnosing these complicated issues that the other hospitals are not.
Also:
Go to the Momming with Migraine channel. She has POTS and several other autoimmune issues in addition to migraines. Jen has videos of her episodes and how her service dog helps her stay safe as well as documenting her journey to getting the correct diagnoses. I think she will be an encouragement during this scary and frustrating time. She is also a mom to 2 very young children and very sweet.
Oh Carlin and Evan my heart goes out to you. I’ve wrapped you in my arms and added you to our prayer list.
I was brought to tears watching her episode, I prayed for Carlin and she is on my list of prayers 🤍 I pray the Lord gives you all an answer !
I am so sorry this is continuing for you . You definitely have lots of prayers coming your way. Hopefully you will find out soon was is wrong and get on meds to help you out. Love you guys and appreciate the update. ❤️
Seeing her go through this on UA-cam was so emotional. I can’t imagine how scary for you and your family. 🙏❤️🤗
I’ve been watching Carlin’s episodes for the past few weeks. They are very similar to what my daughter had. Sometimes she knew they were coming and other times she didn’t. She pretty much experienced all the symptoms Carlin is showing - shaking, the breathing ....... . It was frustrating as she would go to emergency then be fine and it baffled doctors. After years of this - it went right through her childhood and most of her teens, she was diagnosed with a form of syncope. Her body wasn’t making enough adrenaline to keep her blood pressure stable. She was given heart medication and it made a difference. She’s twenty one now and hasn’t had an episode for about 4 years. It’s so scary for them and you. My daughter often knew what was going on around her but couldn’t answer - she was trapped in her body. So hard for her loved ones as we were helpless in trying to help and never knew when one would happen. She often had triggers - getting up quickly from a chair, sitting up quickly, heat which is hard living in Queensland Australia, being in a stuffy room. I pray for you. It’s hard not having an answer. It’s easier to deal with what you know. I love following your family videos. Good luck❤️💕🌈🌈
That’s what I was wondering....if they had said anything to her about syncope. Our daughter was diagnosed with syncope when she was 17/18 by a cardiologist, after passing out for no apparent reason. She had to wear a heart monitor and they ran many tests on her because she was passing out. The cardiologist said it was “common” for that age to young adult/college age, but I disagreed with it being “common”. They prescribed her some salt tablets which seemed to help her. She eventually stopped passing out. The cardiologist told her if she would start getting the feeling of passing out to lay down to get the blood to go her heart. Our daughter had to take things slower, with the things you said your daughter did, to keep from passing out as frequently.
I really hope they see this post, I know nothing of these symptoms but this sounds like something they could credibly pursue. Thank you for sharing
I hope Evan and Carlin do too. The symptoms are exact - very similar to seizures and the aftermath of tiredness. My daughter couldn’t see well or comprehend after a big episode and also. When she was 12, they virtually strung her up to bring the episodes on - some did - not as big but they were able to capture the activity and then she was diagnosed. It was great as it was real and we were taken seriously. She had blood pressure medication and later on in her teens was weaned off it. She even lived overseas for a year on a gap year and didn’t have any issues. She’s had a few surgeries in the last couple of years and after each one, the blood pressure is an issue and she goes back and demonstrates some of things she did when she was younger. It took 9 years for her to be diagnosed. It was a long and drawn out time. I hope Carlin gets a diagnosis soon - that’s why I was drawn to comment. It took forever for us and greatly impacted our lives. I’d hate for Evan’s job to be at risk. They have so many people trying to help and commenting, they not see my post. Thanks for reaching out. ✌🏽❤️
I was going to say the same. My 12 year old son passed out recently and was close to it years ago as well. Through my research it seems it could be syncope which can be because of issues with the vagus nerve. I’m not sure why he would have an issue with it but in reading the other comments about your epidural maybe you had your vagus nerve damaged in the process. Also in my research I have read that 10% of people can have seizure like symptoms from passing out so maybe look at it from that angle instead of the angle of the seizures are causing the passing out. Obviously I am no doctor, but just throwing it out there as an idea. Although maybe you don’t want any more thoughts on what it could be and just want prayers. I am for sure praying for you. The episode at Evan’s house made me cry. God will use it for good.
@@paulablair6580 Ooh Wow! That must have been hard for her and you for her to keep going through this, multiple times. It’s extremely hard when you can’t get answers or a resolution. I agree! I hope Carlin, Evan, and/or some of their family/friends see these comments, too! 🙏🏼💕
This has me really scared for all of you. I’m so glad someone was there and she wasn’t alone with the babies. I’m praying that they find out what’s wrong very soon and hopefully it can be controlled or stopped all together. Hugs to everyone.
10:04 I felt that. I am 13yrs old and for the last year I have been going through severe health issues that no doctor can figure out. When I’m laying on the bathroom floor I cry out the same thing and also, can’t help but cry. You just need to know gods doin this for a reason and it’s making y’all stronger inside. God bless❤️😘🥰😔
Praying for healing Carlin. Love watching y'all Vlogs.
I love your guys videos so much, they always brighten my day! Seeing Carlin like that is so sad! Praying for healing and a speedy recovery!!
Trying to find what's wrong is like trying to hit a moving target. Praying for soon answers, and praying for BOTH of you!
Perfect comparison!
I think a big clue is at 8:10 of their high risk pregnancy video. She was diagnosed with a genetic blood clotting illness Factor V Leiden and 2 other issues. Praying - much love and hope for rapid elimination of these horrific symptoms! ua-cam.com/video/kb7-Ui-dwtQ/v-deo.html
This sounds for me like epileptic seizures! I work in the healthcare system as a nurse and this is very familiar from what I have seen when it comes to epilepsy. I hope you get the correct diagnosis soon 🙏❤️ And please start to wear a helmet for to protect your head as you can get seriously hurt if you one day fall and hit your head. It might not be that cool 😎 - but better safe than sorry 👍❤️
Carlin, I was in tears watching this. You'll continuously be in my thoughts and prayers as well as Evan, Layla and Zade. I hope and pray that you'll soon have answers for what's causing your episodes. Love y'all and God Bless You all!❤️🙏🙏🙏❤️🙏❤️🙏🙏🙏❤️
Me too, I am worried about her. So hard on Evan too.🙏🙏🙏🙏🙏🙏🙏
@@sarahludos7970 I hope and pray that they find out soon what's causing it.
My heart is going out to the two of you. It does look like seizures. Did they do a tilt test? Check for POTS? Evan you are such an amazing husband. You are very wise and it helps that you are able to be calm in a chaotic situation. Carlin I'm praying for you and to get some answers. You were prayed for in my church last Sunday as well. I've watched you grow up on TV and feel like y'all are part of my family. Blessings to you all 🙏
Praying for y’all and hoping you find some answers soon ❤️ As a nurse watching this, one thing I want to note is when Carlin is having these episodes and starts convulsing, put her into the recovery position. Don’t hold her head or her body while she is shaking. It’s super important that she is on her side in case she starts vomiting. Taking pressure off her back can also help her breathing as the lungs are located more towards the back. I can’t imagine how scary this must be for y’all, and just know you have so much love and support from your UA-cam fam
What is the recovery position?
@@truthbtold2596 you place a person on their side with their arms supporting their head. You can hold the person upright while they are seizing but not restricting them. It’s the safest way to prevent injury to a person having a seizure, and it prevents them aspirating on any vomit that may come up
Praying for Carlin and hoping your family get answers soon. It's great that you have such a loving, caring n attentive husband and family. Thank you for sharing your lives health and everything with us.
That episode in your parents hallway was awfully scary, I feel so sorry for Carlin…she’s definitely in my prayers 🙏🏻🙏🏻🙏🏻 Y’all are in my prayers….🙏🏻
Evan, you’re an amazing husband! Prayers for you! I’ve been in your situation, I felt like I was watching about myself. I ended up having POTS and a neurologist came in my hospital room and I was having an episode and he said that it’s possible to have seizures and them not show up on EEG. I was accused of faking mine for attention, only if they knew how helpless I felt and this was by medical professionals. After that neurologist saw me he put me on seizure meds and I’m doing so much better
None of my seizures showed up on the standard tests. Mine are believed to be caused by 2 concussions, scar tissue in my brain from when I was having chronic migraines. I have a terrible time sleeping so my body just reached it’s breaking point.
I hate taking medication but I can for the most part live a normal life.
I have P.O.T.S. , too. That is my thoughts. Sometimes doctor's don't ca5ch it right away. See a neurologist.
I was thinking POTS too, my niece has is and would pass out all the time at the drop of a hat! The shaking though is more like seizures almost. When my niece passes out she is still and totally out, but it drains her after each episode. Good luck on figuring out what is wrong! Best wishes!
Evans family is amazing. They truly care about Carlin. It’s beautiful
I agree with so many others saying this looks so much like POTS. Even the discoloration in your legs in the hospital looks like a blood flow issue.
Agree completely
Yep, my Dysautonomia does this, it sucks ☹️
That's what I was coming here to suggest! And it's HARD to get a diagnosis if that's what it is.
My heart goes out to you both! It puts me in tears seeing what you go through, Carlin and I can't even imagine how scary it is for you, Evan! You are in my prayers for answers or healing! Praise God!
This had me in tears. I'm so sorry you are going through this. I am so glad Evan is there to make sure you are ok!! Great support system!
Aww, you both are SO precious. My heart breaks for what you’re going through, but I know our Lord is in control and loves you both so much!! Rest, stay strong, keep looking up! Continuing to pray for you! Thank you so much for the updates as you can. ✝️🙏🏻❤️💞
I grew up with a mom having epilepsy and I often saw seizures. Very scary!! Evan, you are an amazing man to be so calm, patient and loving!
I had a stroke back in 2020 and it affected my emotions so I’m literally trying not to cry watching Carlin go through this in the hallway. I am praying so hard for y’all!
I also had a stroke last year and I was feeling the raw footage! Flashbacks!
It’s so hard to just see Carlin going through that and Evan and his family not being able to do something. All my boyfriend could do was rush me to the hospital, but he couldn’t do nothing else. So you just feel helpless.
@@babycakes1315 yap! And almost a year later I still have no answers. But you learn to live with something chronic like this!
@@hottisphinx the drs couldn’t tell me why I had mine. The neurologist said the left side of the main artery that splits in the back of the head is asymmetrical and told me to take 2 aspirins a day. I still have moments though. It affected the right side of my body and I’m right handed and I have to write slow or whatever I’m writing will be a squiggly line. I still flustered when I talk, I’ll try and say something and say something completely different. It’s frustrating not knowing what actually caused it, but all I can hope is that I don’t have another one. Hope you’re doing well also!
@@babycakes1315 they think mine is migraine induced and I have to take a baby aspirin everyday! But really they have no idea. Also have POTS so that’s annoying! Ain’t life grand!
Look into POTS- she has the same symptoms of my children that have POTS. It can start after pregnancy. The random rashes are also common with POTS. You can also get tremors during a POTS passing out episode.
She needs to get a tilt table test
Yes, yes, yes! I keep posting about this. I really hope they mention it to one of their doctors!
Yes! Tilt table test! Vanderbilt has an excellent Dysautonomia POTS cardiac unit!
Vanderbilt University Medical Center has one of the only specialized Autonomic Dysfunction programs in the U.S.
Sure looks like POTS symptoms, especially the legs discoloration and the circulatory reactions to changing position from sitting / laying down to standing (heart rate spiking, blacking out). Sending blessings of vibrant health and well being, for the Highest Good
All these systems were what my mother suffered with for four years. My sister-in-law a life long nurse (she retired on 80th birthday) said right at the begining it was her heart, it was either electrical or mechanical. Fours years my mother was fitted with a pacemaker (electrical) and never had an episode again. Good luck to you both, praying for speeding resolution, xx
I’ve passed out about 12 times and seize/posture while out. I have a pretty sunny disposition but my demeanor changes and I snap at people right before I pass out. It’s become a pretty good indicator. I’ve had several injuries and crazy situations from my episodes. You can’t be too careful. I felt every bit of anxiety you were having during your episodes. I pray you get answers and they figure out how to help you. 🙏
every Saturday when y’all post, it makes my day🫶🏼 praying for solid answers and for yalls family!🤍 love you
Oh Evan, idk how you are able to remain calm! I literally started crying when Carlin started shaking! I pray y'all get some answers to this soon! 💜
I shed so many tears watching this. You guys are so beautiful, so supportive of each other…and Evan, it’s so clear to see how much your family loves you both. I only wish I can one day find a love like that.
I’m a healthcare professional and I can’t even imagine how scary this is. It’s scary for me to watch! I am thinking of you all. Stay strong 💗
POTS survivor for 28 years. It's awful, and it's especially horrible in the summer heat. I take Liquid IV packets with me, everywhere I go. I count to 40 before standing very slowly. I've fainted in so many places: Walmart, church, gym, mall, kids schools, parks, etc. It has gotten better as I have aged, and it is manageable. My kids were around 3 and 4 and would see me faint in the kitchen and my husband said they would turn back to the TV while yelling "Dad! Mom passed out again!!!" That was literally their "normal". Family learned to raise my legs, get a cold cloth and a drink and wait. I don't wish it on anyone.