Treatment of Fistulae associated with J Pouches - Phil Tozer & Lillian Reza

Phil Tozer (consultant colorectal surgeon - St. Mark’s Hospital) & Lillian Reza (St. Mark’s Academic Institute) talking on the subject "Treatment of Fistulas associated with Pouches" on behalf of the Red Lion Group. Followed by Q&A.
This webcast was recorded on behalf of the Red Lion Pouch Support Group. See pouchsupport.org for further videos and resources relating to J-Pouch (also known as ileal pouch-anal anastomosis (IPAA).
For more pouch related videos go to pouchsupport.org/resources. To find out about membership of the Red Lion Group go to pouchsupport.org/join.

[@Kru5hit]

Hi - thank you for this presentation.
question - I had done colonoscopy in two countries and every time report said I got UC. I ended up having a jpouch surgery in 2019 and 3 years later I developed a complex fistula. Currently all the reports indicate (but not confirmed yet) that I got crohns. And you said in your video it changed over time or you always had crohns diseases. I find this very hard to believe that multiple different pathology doctors repots can be wrong with diagnosis over the years. Just bit shocking to me.
Anyways, all I am trying to know is what is the best solution here? I am sure you probably seen many people with similar case like mine and I wonder what treatment works the best? Was it control the inflammation using biological and surgery for fistula or go for stoma for life? I really don't mind following medical treatment and go for fistula surgery but I wonder if end result down the road after 3-5-10 years be - going back to stoma forever. Mine as well just do it now and control crohns using biological. Just overall trying to understand how many patient with similar situation ended up having stoma? Hope this make sense. Also, if possible I would love to get in touch with you to discuss this further.
Really appreciate your time.

[@Randy-life]

I have a fistula in the annas - the pouch works ok until the fistula acts up.