My Stage 4 OVARIAN CANCER Symptoms: Marie's Story | The Patient Story
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- Опубліковано 23 чер 2024
- Marie K. started experiencing bleeding and spotting. She then got an endometrial biopsy and ultrasound but doctors didn’t find anything in either test. But she still felt something wasn't right. Later that year, she started getting more symptoms including fatigue, belly button discharge and a major fall which led her back to the doctor. She was then diagnosed with stage 4B ovarian cancer and learned it spready throughout her body.
Video Chapters:
00:00 Introduction
00:44 My first symptoms
03:06 Finding discharge in stomach
04:53 Getting diagnosed with ovarian cancer
08:03 Processing my cancer diagnosis
09:02 My ovarian cancer treatment
11:17 Undergoing surgery
12:51 Treatment side effects
16:24 How I responded to treatment
18:33 Words of advice
Full story & transcript → thepatientstory.com/patient-s...
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The belly button oozing was what happened to my mom. She had ovarian cancer in 1990 and is still here.
i’m so glad your mom is still here❤ she is so strong
@@chelciewentzel8191the people who don't make it are strong too.
God bless her
How hopeful to read this to all people here! Thank you for sharing! ❤❤❤
Wow good news
I was diagnosed with Stage 4 ovarian cancer in April 2021 and I also live in Sacramento. I think we have the same oncologist! I have Dr. Rebecca Brooks at UC Davis and she was my surgeon also, coming up on 2 years since that surgery. My symptoms were very different - no pain - but suddenly I became very constipated, which was unusual for me. I called my family doctors office and spoke to an on-call nurse, a male, and explained my symptoms and was told to drink more water, eat more fiber, etc. Luckily, I had a scheduled appointment for a yearly physical with my family doctor a couple of weeks later and I brought it up then. She ordered a CT Scan and there it was - already spread to my liver. I had the gynetic testing done and, nothing. Went through about 10 rounds of chemo before surgery, the surgery didn't solve much, two more chemos after that, then on the oral chemo pill. I was on that for about a year and a half before my CA 125 rates started to climb again. Now back on chemo but a different drug. I just turned 64. I'm fortunate that I respond well to the drugs and am still able to work. I try not to think too far into the future, but today is good. Anyhoo....thank you for your story and I wish you well! Sorry for the novel but I got excited when I heard you are from Sacramento and we (I think) share the same doctor. Much love from another Sacramento cancer patient!
Did you have contrast with your CT? thks for the details appreciated ❤
Yes, I had contrast and didn't have a problem with it. Hope that's the same for you. Blessings!
Thank you so much for sharing your story. I’m glad you’re still with us! God bless🙏🏾❤️
i’m so sorry you’re going through this… nobody deserves it at all. I swear it breaks my heart hearing and seeing people go through/be in pain. I wish sicknesses never ever even existed i swear… please stay strong, and never forget how amazing and beautiful and strong you are… Also, another very important thing, never forget that God and Jesus are so beyond amazing and they have everyone through everything✝️❤️ I will be praying and sending so much love and hugs your way💪🏻🙏🏻✝️❤️
Have you tried the JoeTippensProtocol? It worked for Marie! Read Joe's whole article! It's amazing!
Her story brings me hope. I was just diagnosed with stage 4 ovarian cancer two days ago. Im so scared.
Don't be scared, try to have a good mindset going into this battle. My mom just got diagnosed with stage 4b ovarian cancer. She & so are we all very hopeful. This is just another bump in the road. Don't give up. Fight fight fight ❤️
Me too😞
Prayers to you all.
Thank you all, so much!
I lost a very good friend to stage 4 ovarian cancer in 2022. Her only symptom was constipation, which was consistently ignored by her doctors who told her to eat more fiber. She was a very healthy person, into plant based diets and exercise. By the time she finally got an x-ray at the ER, the tumors were so large they had completely blocked her colon. She had surgery and chemo, a brief period of no evidence of disease, then a fast recurrence and died less than a year after diagnosis. She was 56.
She was very strong-willed and did advocate for herself but it wasn't enough. The doctors still ignored her constipation because "it's normal for menopausal women". It's not normal. I miss my friend every day.
I'm sorry you are going through this. It's a horrid disease. Some people do have better outcomes than my friend. She did not have the BRCA gene. One thing we learned was that non-white people (she was mixed race) aren't as well studied and there may be other genes involved we don't know about, particularly for people of other races.
My sympathy. Friends grieve, too.
I am really sorry to hear that.. I wish sicknesses never ever even existed. I swear nobody deserves it. But I just wanna say please stay strong and never forget she’s looking down on you so proud❤ also never forget that God and Jesus are so amazing and they have everyone through everything always and forever❤ I know I don’t know your friend personally, but I just know that she was so beautiful and strong and amazing and always will be❤ I’ll be sending so much love and hugs and prayers your way🙏🏻💪🏻✝️❤️🩷🩵 stay strong 💪🏻
I don’t understand why they don’t incorporate CA125 as a standard part of every woman’s regular checkup? It’s a cheap/inexpensive test… why won’t they do it?
Thank you for this comment. I'm so sorry about your friend. I've recently developed chronic constipation, and I keep blaming it on a medication change, but I'm not 100% convinced that's what it is. I was not aware that there could be different gene mutations for non-white people. That is good to know!
I wish she had discussed her “other symptoms” she mentioned
Same here.
I agree.. That's vital information that could help so many 😢
Pretty sure cramps would be high up on the list, possibly a bloated feeling. But yeah it'd have been best to hear it from her.
Same here, that was the reason I wanted to see that video 🤷♀️ Wishing her all the best!
Me too
Marie beautifully, warmly told the story of her very serious disease and treatment, surviving and thriving. Thank you, Marie.
Please share your other symptoms. Ovarian cancer symptoms can be very subtle. The more symptoms that are shared, the better off we all will be.😊
It's discouraging to know that you got a late diagnosis despite being proactive and getting tested early but it's always encouraging to know that a stage 4 diagnosis doesn't have to be a death sentence . Stunning photo of you with your arms stretched out by the river and I'm glad you got through it !
You have to be your own advocate. You have to be persistent or find another doctor. Another way of getting medical attention is to go to the emergency room! They'll run every test! She was at a disadvantage because of COVID. I advocated for myself, even when I had a clean mammogram in June, when I knew I had cancer. I wanted my December MRI ASAP; this was in 2019. The doctor relinquished, and I got the MRI in August and surgery in November; I indeed did have cancer. The cancer didn't show up on the mammogram. Imagine what would've happened if I waited until December? COVID hit the very next January! Testing and surgery would've been a nightmare with the new protocols. And imagine if you didn't want the jab. No jab, no surgery! I'm glad I didn't listen to the white coat. We trust our doctors too much.
@@motherofthreeb6337 If the test that I got came out negative I'd be more likely to be relieved and get on with my busy day. If cancer tries to bite me I'm so screwed ..
It sucks but cancer is a part of Mother Nature. It’s how she weeds out certain things. It’s very sad though. Seems our dependence on sugar and preservatives and certain vaccines are making conditions and cancers explode 😢
Your dog is your little miracle angel
We were diagnosed with the same cancer right around the same time in 2021. They caught mine at stage IIIc. Very similar stories but I don't have the BRCA gene and I'm 45. Glad you are doing well!
What were your symptoms?
@@DecorTours I started bleeding in November of 2020 and never stopped until I had a hysterectomy in August 2021. There was needling pain like hot pokers in the lower right and lower left. Ultrasound, uterine biopsy and CA-125 were all normal. The surgeon left my ovaries and took the cervix, uterus and tubes.
I had complications after the surgery (fistula) and in the ER is when I got the pathology results. High Grade Serous Carcinoma in both tubes, capsules had broken and it was spreading. When it was spreading, symptoms were total constipation, no appetite, excessively weight loss, anemia and fatigue I tried to mask with excessive coffee consumption. I made the Oncologist do the debulking surgery first to stage me and 6 rounds of chemo afterward.
If any female has abnormal bleeding, assume the worst and get the hysterectomy. I was offered a progesterone IUD to stop the bleeding. If I had taken that option, I'd be dead right now.
@@ppmny7015when you say you started bleeding in November 2020 and never stopped til you had your hysterectomy in 2021 do you mean you bled nonstop that whole time or had two periods in each month?
@@lghop82 Bled non-stop. There wasn't a defined period cycle anymore, just bleeding.
@@ppmny7015how horrible, did U had sex while you were bleeding? Did U had a lot of sex before ? I'm researching this and it seems it is an STD. Men are the culprits, sex with men.
I was diagnosed IIc in January 2021, and simultaneously diagnosed with uterine and appendicial cancers. I was not well for at least 10 years prior and went through 4 different drs looking for answers- a pcp and 3 naturopaths because i was chronically fatigued, pale with dark circles under my eyes, and always having bloating and gi issues. I also blead extremely heavily every month, with spotting inbetween, and had 2 or 3 incidents of extreme pain in my abdominal region. The pain would bring me to the ground and take my breath away and were likely cysts bursting. The pcp diagnosed me with ibs. The first naturopath said that i was anemic and had a lot of the same nutritional deficiencies as autistic people, likely due to leaky gut/malabsorption. The second naturopath listened attentively and then loaded me up with more expensive supplements. The third naturopath diagnosed and treated me for sibo and recommended an ultrasound. I began to lose hope as I went to work soooo tired each day, suffered from regular headaches, and could barely make it through the day. Fast forward to August 2020; I was sitting on the couch eating dinner and was suddenly overcome with a pain that took my breath away. I froze, afraid to move, with the sensation of expansion happening. If i inhaled the air rushed right back out of my mouth. I knew something was terribly wrong and should have called an ambulance but the pain was so bad that i could not cope with the idea of transporting and slowly made my way to my bed, knowing it might be my final resting place. But i awoke in the morning, and when i stood up warm, clear liquid, with a pink tinge, poured down my legs and pooled at my feet. I called the dr and believe it or not, they scheduled me months out. When the appt date finally arrived i showed up only to be told that i didn't have an appt😮💨. Now most people would have protested or marched over to the emergency room, but i was still in so much pain, was raising 2 foster babies, and just didn’t have any fight left. So when i finally got in to my new pcp, she did an exam and found irregularities, ran ca125, and it was at 13,000. She didn’t say i had cancer but quickly set me up with gynecology, and that dr said that it was likely. She wanted to do a biopsy but everything hurt so bad we skipped it and scheduled surgery just a few days out. I couldn't even be sad- i was just SO relieved to FINALLY have the answers I'd been seeking for so long, and to have a road map. Push, ladies, push! When you know, you know...
The post dinner pain incident, btw, was a 21 cm half tumor, half cyst that had burst and was necrotic by the time I had surgery. Can't believe how underscored patient testimony is, particularly in women's health. You really have to push and be obnoxious to get taken care of in America, is what I learned.
I am in a situation where I feel to bad to be a good advocate for myself. I wish you all the best
Hey... Your cancer journey is great... Kudos to you...
My mother has recently been diagnosed with ovarian cancer... Her CA-125 is 2778 it's way too much.... I am just hoping for the best... The doctor said it's stage four and it has spread a lot.. Like there is a node in her breast and on her collar bone.. And the collar bone one is effective.. Like that's carcinoma... I don't know what to do... Don't wanna lose my mom.... Looking for some positivity in your video.... Thanks for uploading....
Just to let you know I am from India.... So as my mother...
I would like if you pray for her well being
Thanks and Regardd❤❤❤
Look up JoeTippensProtocol, & get her started on FenBen ASAP!!
So glad to hear your story! It’s definitely hopeful. Thank you!💕
Thank you for beautiful story Marie.❤
Oh my goodness!. No wonder you were in so much pain with your broken bones! ugh. poor thing. Blessings and healing to you. xo
So helpful and insightful, thank you for sharing!
Thank you so much for sharing. It can help others as well.
Marie this is such a beautiful video you made about your cancer journey. Sending lots of love and hugs to you and I just know you will have a long, happy, healthy life. ❤❤❤
Thank you for sharing your story Prayers and positive thoughts
so sorry to hear about your diagnosis. Your video is so inspiring. your positivity and resilience are contagious! thank you
Thank you for your post. I had very very light menopausal bleeding. Turned out i had Stage 3c endometrial cancer (metastasized to my lymph node). 6 rounds of taxol and carboplatin chemo and both internal and external radiation with 5 rounds of cisplatin chemo as well. Still suffering "after effects" but Im here and so far so good. Endometrial cancer is 95% curable with a hysterectomy. Please have your self checked if you are experiencing any type of bleeding. To the person questioning about people posting their cancer journey: i hope you never have to live through this insidious disease but if you do there is a community who cares. ❤
Thank you for sharing your story. It is very inspiring! I wish you good health 🙏🏾❤️
Best of luck to you!
So glad you're still here with us stay strong and keep that beautiful smile😊❤
Thank you, Marie, for telling your story. I completely agree with you about being your own advocate. ❤
Thank you so much for sharing your story. What a fantastic attitude you have and fantastic outcome. You look wonderful. I also had the same cancer as you but stage 2 and it’s been like 25 years. You go girl.
Like Marie, I had post-menopausal bleeding and I knew that it could be a sign of something bad. Unlike Marie, my endometrial biopsy came back positive in March 2021. I was treated with a radical hysterectomy. Turns out, it was Grade 1, Stage 1 endometrial cancer. No chemo nor radiation required. Like others have said here, if you think there's something wrong, get it checked. I'm glad that I did.
I just had that done just waiting for the results, I'm scared because I saw a lady on UA-cam have that done and they spread her cancer after that biopsy and did not do a hysterectomy
@@AmericaAyala-sp8sg I know how it feels waiting for results. There is scary stuff out on the internet. Don't look if you don't have to. Everyone's journey is different. Just take it 1 day at a time.
@@AmericaAyala-sp8sgI just had an endometrial biopsy a day ago too and what do you mean you saw another lady have one and it spread? I didn’t know having this biopsy can cause this and I am really upset and scared now and upset that my dr did not mention even one thing about this biopsy and any risks she did it without hesitation when I asked for it bc I’m trying to get answers for my long time abnormal bleeding
@@AmericaAyala-sp8sgor did you mean you just had a hysterectomy and then a biopsy and you heard it can spread after that? I didn’t have hysterectomy just endometrial biopsy
@@lghop82When doing a biopsy there's always a risk with bleeding, and if so the bleeding COULD potentially spread the cancer cells throughout the body (via blood stream). However, to get a diagnosis if having cancer or not, and find the exact right treatment, a biopsy is a must. And not doing it, comes with a much more dangerous risk (as in not getting the right diagnosis and by that the right treatment) Also, those dr's doing biopsies are pros and do it every day and are of course careful to not cause any major bleeding. A tumour (if there is one) could also bleed by itself, even without a biopsy, so I would say that (the potential spreading with a biopsy/bleeding) is the last to worry about.
Very inspiring.
I'm so very sorry that you have been diagnosed with Cancer,I will be saying some prayers for you,God Bless You🙏💗,thank you for sharing your story with us❤
Thank you for watching!
@@ThePatientStory your welcome
@@ThePatientStory,
I just want to help really, please read me it could save soo many lives, or at least give more time:
Guy TENENBAUM's case about cancer stage 4 and his protocol (he didn't use chemotherapy or radiotherapy):
- a low-carb diet outside the fasting period (total elimination of carbohydrates/sugars) and eating OMAD (One Meal A Day) crucifers, garlic, onions, avocados, walnuts/almonds, olive oil and oily fish to avoid losing too much weight (avoid meat and cheese)
- taking specific food supplements that Guy TENENBAUM has called TCC (The Cancer Cure) which correspond to his 5 essentials, with the dosage he took:
* High-dose melatonin 30 mgr before going to bed (Phycocyanine or Lithotamne, but the most powerful would be melatonin): inhibition of SCOT (to use pure phycocyanine and lithotamne to increase the volume of SCOT inhibitors in addition to melatonin)
* Allicin (either as a 2400 mg quality concentrated pill, or with crushed raw garlic): up/down stream of SCOT
* Matcha green tea (with turmeric and ginger): up/down stream of SCOT
* Metabolic treatment (metabloc): Alpha Lipoic Acid (or Sodium R Lipoate, 600mg 3 times a day, 1800mg in total) + Garcinia Cambodgia (Hydroxycitric Acid, 600mg 3 times a day, 1800mg in total) + CoQ10 (the transporter, 100mg morning noon evening)
* Omega 3 in a DHA - EPA ratio (500mg DHA/200mg EPA): to fight keto paradox during ketogenic diet or the fasting phase
* Bromelain (850mg to 5000 GDU) and Quercetin (500mg) for nodules
* Berberine and Curcumin to block additional metabolic pathways
- Alkalinise the body with a combination of baking soda and cider vinegar
- if the body allows it: long fasting then the following month by short fasting and intermittent fasting + taking nutrients and minerals to avoid deficiencies (vitamin D3, Magnesium Bisglycinate and multivitamins)
The protocol has been validated by 3 peer-reviewed scientific publications:
1) "Inhibition of SCOT and Ketolysis Decreases Tumor Growth and Inflammation in the Lewis Cancer Model"
2) "Cancer Metabolism: The fasting reset, the ketosis paradox and drugs for elimination"
3) "Unravelling cancer metabolism: Fasting reset, the ketogenic diet? and therapeutic strategies"
Thank you for telling you story, and continued wellness to you!
You look great and I wish you the best
i’m so sorry you’re going through this… nobody deserves it at all. I swear it breaks my heart hearing and seeing people go through/be in pain. I wish sicknesses never ever even existed i swear… please stay strong, and never forget how amazing and beautiful and strong you are… Also, another very important thing, never forget that God and Jesus are so beyond amazing and they have everyone through everything✝️❤️ I will be praying and sending so much love and hugs your way💪🏻🙏🏻✝️❤️
You're lovely, Marie. Thank you for sharing.
Thanksfor sharing……bless you……
You are strong i am survivot stage 2b oc
Very inspirational thank you.
I pray your doing well.
Great advice! Especially the letting people help you, the support group. Being your own advocate is so important to managing your health situation! DNA testing is available and important these days, glad you did that, mentioned that. Learning what you may be a (DNA) carrier for is indeed important earlier the better! Great fight! Best wishes for a long life! 🙏
Sorry about your suffering my mum aunty's and sister all passed away from HGSC stage 4c so hard to get symptoms taken seriously my sister was just few months and her doctor didn't take her pain to be real. My mums doctor knew she had cancer and never told her and my family one off my aunty's was being treated for kidney disease disease and only by chance of her Dr for her kidney disease meeting her oncologist did they try to help her but was all too little too late. Glad in cancda they found ginger root can help ovarian cancer patients. Hugmuggus hug 🤗 from across the pond 😘🐻
this is a place for to really ónly listen to someone elses experience and not for me to come here and compare symptoms.. and i like that, its special.. i have to be still and just listen to hér story without involving myself.. cos then only more questions will rise, cos this is a unique story. The only thing i keep recognizing is that doctors and assistents are functioning or most of the time, as a barricade instead of a set of open arms.. sending you home with nonsens 13 years if you give em that chance.. thats bad.. for the rest its humans telling their stuff and thats good. Wish her well and flow in life, she already got all the rest 😊💚👋😊
Im less than 1 month into Olaparib. Same chemo as you ❤❤❤❤
Thanks for sharing your story. Did your daughter get gentic testing? And did your dr recommend avastin? I also have high serous carcinoma and from my understanding that it’s same treatment across the board. I’m stage 2b and treating as stage 4 because it’s an aggressive form of cancer. My last treatment is 4/1. I didn’t have the gene 🧬 but it was one of the first thing my dr did was genetic testing. Taxol and carboplatin and avastin which he says works on a cellular level.
My wife has been battling ovarian cancer since 2015. Full hysterectomy and tumor removal. Stage 3C at the time. Its metastatic in her lungs now and growing. Multiple chemos over the years. Her gyno oncologist is out of ideas. MD Anderson suggested carboplatin again. Shes been out of work for over a year on FMLA and will probably lose her job. Braca gene but C125 is still under 200.
God bless glad your ok my mom didn't make it
❤🙏❤️
My CA 125 is 6100 it started at 3408. I’m from California the doctor said he can’t cure me but do aggressive chemo and couldn’t give me anymore time just control it. I am in Mexico getting treatments. 🙏🏽🙏🏽✝️
And my mom has ovarian cancer in metastatic stage ...he did tretment with Carboplatin without Taxol , i don't understand why ....
Did you make any dietary changes?
How is it that the chest x-ray didn't show the broken ribs and fractured sternum??
Yes. AND the fact the ultrasound did not show anything on the ovaries either. (she did a check at the gynecologist) Ovarian cancer is one the most difficult ones to detect, and often with symptoms only in advance stages.
It’s was during Covid. Most doctors only cared about Covid in 2020. Everything else was irrelevant to them.
My ovarian cancer was not caught on ultrasound or even during surgery. I thought I only had uterine cancer, and they took everything out except ovaries. 9 months after surgery a CT scan showed large masses on both ovaries. Ovarian cancer is very sneaky.
@user-qc3sz1ui9j Did you get the CT scan because of new symptoms or as I follow-up to the surgery?
@Sasbie65 I was in a car accident, and that revealed everything. All the drs kept telling me I needed PT. Symptoms wise, I never felt ok. After the hysterectomy, the symptoms remained, and some got worse. I am supposed to be cancer free now after the second surgery chemo etc...since last year, but 3 months ago, horrible symptoms appeared. So far, everything appears clear, but I don't fully trust it, I feel like my body knows what's wrong before the scans. Currently having bloating, feeling of uti's, pelvic pain and constipation. Next month, I get more scans.
It's very frustrating that she didn't state what her various symptoms were. That's the part I want to know.
🙏 ❤️ 🙏
🩷🙏🙏🙏May June ‘24 be a month to celebrate!
🙏🙏❤️❤️
I was a nurse and had to leave because I refused to take the covid shot. I am assuming since you were still working in a healthcare setting you took the shot. Within my research the shot had some parcel monkey thing that is known to cause cancer. the interest lies currently in the number of people getting cancer which strange. Whenever I hear this the first thing I find muself asking is did they take the shot.
Parcel monkey??
I think my cancer comme from Pfizer vaccin
what a disgraceful message you've left here. You should be ashamed of yourself. Nobody wants to hear your lies and foolishness, so go away and stay away.
Good thing you are no longer a nurse. Do you link EVERYTHING to the shot? This is so old, get over it already.
That's like asking, "did they eat toast for breakfast?"
Don’t be misled; These vids are subtle sales pitches for big pharma chemo $$$
-watch how quickly this comment disappears
Shirley here. Why are so many people putting their cancer on you tube? If it's to make other people people that have cancer feel better I can't understand that.
Why not put it here? It may help people. You don’t have to watch it.
It was interesting you shared your story but could you slow down talking a bit
What the?? This is called The Patient Story! Cancer patient stories! I’m stage 4 ,an I’ve learned a lot of important information I need, from these stories,of people sharing their experience,your comment was not very smart
Hey former nurse here . One googles or remembers symptoms and it's all text book or recall from observation . There are many first hand experiences that people share that educate far more than schooling or taking care of people. It's the little things that might be a light bulb moment .
IT's so people who are interested can learn from other's experiences...