Alagille Syndrome Alliance: Founder's Story

Поділитися
Вставка
  • Опубліковано 4 сер 2024
  • This film takes a look back at how the Alagille Syndrome Alliance was founded and the legacy of Alaina K. Hahn, the founder's daughter who lived with Alagille Syndrome. Cindy Luxhoj shares her journey with starting the organization, its purpose, and her daughter's contribution throughout her life.

КОМЕНТАРІ • 1