Interesting facts about low iron deficiency.
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- Опубліковано 5 бер 2019
- This vlog has interesting facts and statistics on low iron deficiency.
Dr Sandy is incredibly knowledgeable on Iron and works with The Iron Clinic as well as being a trainee surgeon.
This is my last of the four vlogs on low ferritin, until my updates on how I'm getting along since the iron infusion.
If you have any of the symptons I describe please go to your GP and ask for a Full Blood Count including...
- Ferritin
- Trans ferritin saturation
- Serum Iron
It is worth getting your B12 checked aswell.
Ask for a print out of these results. Send them to Dr Caitlyn Scott by email with my name in the subject and a list of your symptons to info@theironclinic.co.uk
Lots of love and thank you for your continued support.
Sally x
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I had iron deficiency most of my adult life and didn't know that was the problem even though I had about 50 symptoms. Hair thinning from the age of 14 and brittle nails. Tachycardia and pots by the age of 15. At 22 my hair began to thin worse and took on a dry, cotton candy texture. Continual depression, anxiety disorders, panic attacks. Unrelenting fatigue. Constant brain fog. Flat thinking and apathy, low mood. Foods never tasted normal. Sometimes I felt ravenous and made something and was not able to hold that hunger I was confused all the time. I wasn't able to hold focus well and became absent minded and couldn't get excited about normal things I'd be flat as a pancake emotionally because I couldn't hold a thought process for long enough. I'd crave starchy food or burnt food but suddenly avoidant of sugar. Constant headache and feeling faint. Occasional gasping. Irritable and upset all the time, felt like taking my own life on a daily basis. Skin took on a dry appearance and began flaking especially on my face and constantly on my lips, itching all over. Itchy scalp. Itching I pulled out my eyebrows and lashes. Hair became thinner and excessive split ends and then the hairline started shedding and receding. Clumps of hair all over the house. Joint and muscle pain. Nails started looking tatty at the ends. Extreme fatigue and no stamina, dizzy and faint. Began getting heart problems and bladder issues, high blood pressure, sleep apnea and chronic insomnia. Bloating and abnormal weight. Not being able to move hands and feet very well. Low neutrophils and severe acne outbreaks and scarring. Then gasping, tachycardia, collapsing. Low physical stamina, burning tongue and smooth shiny appearance, burning feet and constant leg cramps. Emotional distress. Low mood and crying. Skin took on a pale tone and then yellowed. I was so apathetic I didn't leave my bed, couldn't think and struggling to breathe and confused and upset. Even getting up to go and get an iron tablet was too much. Bruising all over for years on my legs and my hands looked as of they'd been crushed. The cognitive problems were for me worse than the chest pain they were more scary. Derealization and spaced out, not being able to tolerate normal things so when dealing with people I'd normally care about it was minimal and I had no energy for anything. This caused me anxiety. I was too weak to shout for many years and when I was walking I had to instead walk right over to someone to get their attention. Very little facial expressions or outward shows of emotion because I was befuddled and trying to grasp basic information. Began full on fainting and when I checked ferritin I was told pretty much 9 was near to normal. So another 6 months where i felt terrible. Such physical weakness I couldn't make it to the GP to do a blood test. Couldn't even walk to the car because of my chest pain and shortness of breath. I was deeply upset and disorientated, fainting and no longer tolerant.
18 years I had all this and only now addressing the iron deficiency
Fatigue is excessive, like being hit by a lorry
all very relatable, are you any better now?
How are you now? Hope you are well. It is a great feeling when you can get past the hurdle.
I hope you're doing better. I can relate to.almost everything except the fainting. I do get light headed though.
5 months after my infusion - hair is coming back gradually and I'm a new woman. Thank you so much Sally and The Iron Clinic :-)
You're truly welcome. I'm absolutely delighted that this has made a difference to you. Do you mind if I use your message on my other social please?
I'm so thrilled you messged me and you have sorted your iron deficiency x
My ferritin is 16 and my doc said it's normal. Thank you so much for this video!!!! I have been losing clumps of hair and have chronic fatigue, breathlessness, high pulse rate, etc. I need to find a doctor who is educated about low ferritin.
I'm afraid not many are, thata the worrying thing. But The Iron Clinic are in London as they specialise in this. You need to push as you know the details now. Google and print off everything you find to show it is not normal range. At 16 you are empty of ferritin. Please keep me posted. Xxx
@@SallyJacksTVMum Thank you, I will. I can't tell you how much I appreciate that you are putting all this information out there. Thank you so much for doing that.
Curl Girl my ferritin is 12, just got the results last week. I’ve also been losing clumps of hair 😢 and have all those symptoms you mentioned. It seems to have hit pretty quickly within the last two months. Have you found a doctor yet?
Haha I’m 5 wondering why
I’m total addicted to coffee
Hi, how are you now? Have your symptoms gone now?
My ferritin is 3.7 and my doctor said it is normal in young women, thank God another doctor told me that it is not normal at all, they are going to give me an iron infusion this weekend
Omg that's extremely low😮😮 and I thought my mine was really low ( ferritin level 12). I hope your doing well. I want to grt an iron transfusion but I don't know where to start. I'm also a thalassemia career which makes me even more anemic. Honestly, I have a hard time trusting gps in my area😞
Thank you Sally this has been so interesting to watch. Look forward to see how you do. Take care luv you lots xxxxx
Love this chat - love this doctor! Thank you for sharing this information - it's all so valuable.
You're welcome. Thank you for watching. X
After 3 ER visits and looking mildly crazy, no one figured out that my ferritin level was rock bottom at 8. They prescribed me anti anxiety and anti depression pills. After giving them a speech that I’m not depressed and “something is missing,” they looked at me as if I’m crazy. Crying to my doctor, I ended up with ferritin of 8, along with low calcium and low magnesium. Now, eating meat daily and taking a supplement every other day.
Has it helped do you feel better mine is 18 just been put on iron tablets but have suffered with low ferritin for 8 years not sure pills and eating meat will help me 😒
@@gembob157 after 6 weeks and taking primarily floradix 40ml ( double dose) plus 1 energizing iron by nature’s way ( has a measly 4mg of chelates iron), along with meat consumption, I’m up from 8 to 20.
One other thing to mention is I quit eating grains- wheat, bread, pasta, sweets... my daughters bday came and I allowed myself to eat a slice of pizza and cake. Boy, did I regret it! My stomach refused to digest the food or pills/ supplements. 3 days later, still suffering. Check to see if you may be celiac Or have gluten intolerance. That alone can screw up your digestion of food and medications/ supplements alike. I hope this helps you. While I didn’t get tested for food intolerances, I did eliminate most foods, and it turned out my stomach reacts badly to anything with grains.
@@asathora1819 OK thanks you for the advice ❤
How are you now? What are your symptoms?
@@gembob157 try digestive tablets when taking iron, vit C for sure.
Thank you so much, this is very helpful.. to ALL the women, taking care of your health is #1 priority💪🏼
My name is Natasha and thanks for making these videos! I watched your infusion yesterday and today I got my own iron IV infusion. This topic is very important we need more info thanks for sharing! Don’t forget hair-loss as a symptom.😱😢
Hello Natasha, thank you for your message. I mention hair loss most of the time, I am just may not have down in this video. There are 132 symptoms that they are aware off...how scary is that!!! Thank you so much for watching. It's hell being iron deficient, makes you feel like absolute rubbish...hope you are good after your infusion. Love xxz
Outstanding video Mrs. Sally!
Thank you. X
Thank you so much for talking about this on your you tube channel it’s helped me so much as at the moment in under investigation at the hospital for love hb and ferritin my hair has been falling out been super tired just watching your videos has giving me so much hope that there is light at the end of the tunnel fingers crossed 🤞 doctors will find out what’s wrong with me soon and give the infusion I keep asking for x x x
Thank you for your message. I hope this is sorted. Make sure you fight. Take in as much information and use this. Make sure you know your levels and where they should be, wo you know to ask questions. All the best. Xxx
I could have listened to you for hours. Absolutely me! I am homozygous C282y Hemochromatosis and was told to avoid iron at all cost, until i recently gave iron supplements a try, and feel fantastic. We have so much to learn about the mystery of iron balance. Thank you for this video and topic.
Thank you for the message. I'm so sorry only just seen it. Is everything going well? Is soeak to Dr Caitlin Scott info@theironclinic.co.uk and get her opinion, she literally is the best. Xxx
Hi Sally enjoyed your Vlogs very informative and hope you get to feel better now you have been treated xx
I'm much better thank you. And I'm off all my medication. xx
Honestly ur a Godsend and ur content about iron is helping me so much and educational
Thank you. I hope you are being sorted. Xxxx
Thankyou Sally for the vlogs this has been very informative hope now you have been treated you are feeling better
Feeling so much better thank you. X
This video was soooo helpful. Thank you so much.
You're welcome. There are lots more about iron in the Playlist about iron and health. Xx
This is sooo damn valuable!!! 🤯
Thank you xx
Thank you so much for the information!
Thank you so much for this video. This was incredibly helpful in getting a better insight into ferritin deficiency.
No problem at all. Xxxx thank you for commenting. X
They only give iron infusion with a too low hb not with too low ferritin, unless you pay for it out of own pocket which costs about 750,- euro per infusion.
@@MiraLibertina that's the same as mine. Professor Toby Richard's Qantas people to realise that low ferritin should be recognized. Inoaid £700 for mine. Xx
So glad i found your channel/videos. I have had issues for months with anxiety, panic attacks, high pulse, chest pain, dizziness, headaches and many more symptoms. I had a baby 6 months ago and during my pregnancy i ended up in A&E a lot due to high pulse, breathlessness and chest pain. No one could work out why, i was just diagnosed with sinus tachycardia & anxiety. During pregnancy my iron levels were always just above 11 and i was told this was normal and i wouldnt be given iron tablets unless it was below 10.5. After having my baby my anxiety & panic attacks got worse and i ended up with shortness of breath. I got blood tests done and was given iron tablets as was told my iron was a bit low. Ive recently seen my results and my levels went from 21 to 11 in a few weeks. And at 11 I was anaemic. Im now annoyed this was never looked at.... all they kept checking was my thyroid and kept saying that was normal. They left my iron levels at 11 for month until i became anaemic.
Hi. I’ve had it all 😭😭😭
Gaia plant force iron is what I like - liquid and tastes great ! Love you all. Praying for all the victims of the screwed up medical system. Keep going till you get the correct answers. Xxoo. Deb
Great stuff Debs. When i need again, I'll look at this. Thank you xx
Thank you so much for this videos. They really helped me.
You're very welcome. Xx
Another great video xx❤️xx
Thank you. Xx
Ferritin level 14 here. GP completely dismissed it today, used the words 'health anxiety' and told me to eat a balanced diet. I am mortified. Been taking self-prescribed ferrus sulfate for 2 weeks, my dizziness and nausea have practically gone and my running has almost gone back to normal. I'm very familiar with low iron as I've struggled with it all of my adult life. At a loss for what to do. I'm moving GP and continuing to self prescribe in the meantime because I couldn't continue feeling so poorly. Thanks for your content. I feel like my concerns are valid.
Problem is, unless you get a GP that has studied this and knows the levels, then most will dismiss. You just need to read the comments on my vlogs. You really need to be referred to a haematologist.
I can help you whete yo go privately. But if you sort on the NHS, that'll be better for you. Just messaged if you need help.
@@SallyJacksTVMum thanks so much for your response. 😊 The GP practice I'm moving to has a GP who specialises in Women's Health so I'm going to request to see her and I'm hoping she might take me seriously. 🤞I would consider going privately as a one off but I can't afford repeat consultations.
@melissahoughton7141 it no doubt would be one off, as you'd be in for an iron deficiency, I'm almost 90% sure at that level, unless there was another reason why you couldn't. Try the way you say first and if that doesn't work, give me a shout x
The sad thing about iron deficiency is that ppl don't take it seriously when you tell them you have it. They are like oh just pop a multivitamin and be on your way, boohoo its not some illness.
ikr when it literally feels like de@th
Thank you for this information! I've been checking out your other videos as well. My ferritin is 24 and my doctor does not seem to do anything about it. She tells me that my iron is good but I have so many of these symptoms that I'm taking iron on my own. Once again thank you for putting this information out there
Mine was 24, I think, when I had the infusion.
Sadly this is incorrect from your Doctor. You want to be atound 75, preferably 100 for optimum.
This is where things need to change and that's what we are trying to do.
Keep me posted on how you get on please.
Love Sally x
@@SallyJacksTVMum Thank you so much for replying I appreciate your dedication and your passion. I did tell my doctor that this is not normal and please let me know what I need to do next. She seemed very nonchalant. Anywho, I do have good insurance. Do you think I should ask for iron infusion? And do you think they will make it happen for me? Thank you once again Sally!! After years of feeling tired and icky I finally have pinpointed this problem and you have helped me find it.
My ferritin was 0 due to heavy bleeding. I got it up to 34 in 22 days. I did take 30mg ion at breakfast, lunch and dinner. My breakfast included 4 cups of a horrible smoothie with all berries, spinach, kale, beets, 1 raw egg, 1 piece of raw liver. I bought the best quality ingredients I could find. My 3 meals contained nothing but cooked vegetables and red meat or cows liver. I know it’s hard to eat like that, but I was desperate to get better. Some versions of the smoothie could be making raw liver shots, and drink the smoothie alone. Hope it helps you.
@@sin...5982 absolutely an iron infusion. You also need to find out why it's happening. Optimum level is 100. Sadly over here in the uk, not the Docotrs fault but they are not trained fully and the guidelines are too wide, thats why Doctors are not looking for this and realise the low ferritin on patients bloods. Xxx
Hi, how are you now? Have your symptoms gone now?
Tested ferritin last year and was 60. My new doctor this year looked at that result and said “yes yu are in range but just getting by”. My saturation at that time was 27%.
Had me tested again this year and saturation is the same but ferritin is now 30. I have so many symptoms and no other reason. She said to start an iron supplement and my primary doctor said “nope yu are fine”.
I have asked for referral to hematology for hopefully more info. I am so tired, anxious, muscle aches, cold hands, dark circles under eyes, pale inner eyelid. So tired of being told I am fine when I am clearly not fine. Numerous other tests have been done to rule stuff out too.
@Karikk72 30 is not fine, that is lower than it should be. Ask for a referral to a haematologist. Remember the recommended dose for iron tablets is 65mg every other day, on an empty stomach taken with vitamin c. Don't take near tea.or coffee.
@@SallyJacksTVMum thank yu. I have a sensitive stomach so they told me to try the childrens flinstones with extra iron each day. It’s a chewable. Two chewables is 36mg per day. I am so angry because I have been fighting and fighting to feel better for 2 years and they just keep saying I am fine. I have asked for the hematologist referral ( unsure if doctor will do this for me) Also switching to a functional medicine doctor to see if she is wiser and better suited for me
My ferritin is 8 but my hemoglobin is fine, I struggle with the absorbtion of iron tablets / liquid. It's so hard to get the doctors or hospital to issue an iron infusion! It's like getting blood out of a stone!
Hey there! I'm also a male and had a ferritin of 11. I've recently been able to get it up with supplementing but haven't ever figured out why I have low storage. Very unusual for males. Have you gotten any answers. I'm 18 years old Btw
I just got my results today and my ferittin is 3! No wonder I feel horrible, I’m so dizzy, lightheaded, anxious and depressed.
Wow, if it cam be done you really need an infusion at that level. Ask to be referred to a haematologist ASAP. Important this is sorted. Xxxxxx let me know how you get on. X
@@SallyJacksTVMum I am going to call my doctor first thing Monday and get a referral for a hematologist…hoping for the best!
Same here
Hi - what an amazing video, thank you Sally. I have had severe hair loss from low ferritin/iron deficiency, and I’m looking to get the IV from the clinic in the video. Can I ask people how long it took after their iron infusion for their hair to start regrowth? Im really struggling with it now x thank you x
I've just started to notice a difference with mine properly after around 2 years. But I have also been taken suppleness for it aswell. X
My ferritin is 10 ng/ml. My iron % saturation is 4% and iron serum is 14 ug/dl. I have to go get an iron infusion next week. My hematologist sent me to get it. Thank goodness for him.
Thank goodness. You wouldn't believe how many at your level and are being turned away by Doctors not fully understanding about iron deficiency. All the best, excited for you. Xxxx
Thank you♥️
Very good video on the awareness of low iron I believe my daughter is going through a lot of these things that you were talking about especially on your other video when you talk about mental health anxiety depression thank so much for spreading this information like you was explaining to the doctor they are quick to describe you all this medicine and you still feel messed up wow not to mention costing you more and more money
Pink is Lovely I have depression and my ferritin is 12. I just got my results back a week ago so haven’t done any treatment for it other than just a liquid iron orally, but I do find magnesium to give me a little relief with depression. I spray it on me and take it orally. It may be worth a shot to try in the meantime while you get the iron checked. Just a suggestion. Hope your daughter finds some relief soon. Serenegen helped me with my anxiety and to get off the prescription pills. I had to take 3 pills 3 times a day.
Sally give details of iron clinic also forth for blood testing please
Hi Sally
Is it better to take heme iron supplements 20mg x 3 per day everyday? Or ferrous sulphate every other day? Thanks
Thank you for this video. My ferritin is 2.5 and I feel pretty bad
Mine as well what are your symptoms?
Thanks for this video, very validating!! I have a ton of symptoms and my ferritin on meds is 20- 50 with 81 mg of oral p/day and no meds ferritin is 10-20 - all around still feel like poo. Iron is 61. I’m having the sat% and binding done tomorrow. 7 year journey of major fatigue I’m going through here. Where is this Dr based? In UK at the iron clinic?
I’m in Seattle WA and need assistance. I’ve seen Functional, ND, MD, Endo, Rheum, PCP. Thoughts?! Thanks again love this video and you shedding light onto this issue where low ferritin greatly impacts quality of like!!! Drs NEED to be educated in this!!! Under 100 we cannot function! 🙏🏼❤️
Absolutely!!! I'm sorry to hear and I van feel your pain, as its bloomin dreadful to feel like this. Yes check trans ferritin saturation, vit d, folate and b12 also as they are linked. Yes Dr's are in the UK, but they will speak to you and advise, as I get a lot of messages from America and India. Info@theironclinic.co.uk or email Dr Caitlin Scott reception@themewspractice.com
Let me know how you get on. X
Getting the remaining iron labs now! Vit d is 46, b12 is robust and folate are ok! Just the ferritin ranges from 10-50. I see GM soon, I’m have been completely self advocating for 7 years now, you give me hope!! Do you have a resource for US iron clinic? Could I come to UK for support? You know when you’re desperate? That’s me….. you told your story…that is me….
@@MLHealthandLife I don't have anyone in the US I'm afraid. How is your vit d measured? Can you give me the letters after please?
@@SallyJacksTVMum Vit D result on 6/7/21 was: 47.2 ng/mL (range 30-100ng/mL) on the result page. Ferritin was 26 while on oral iron I was barely able to function. It's now 33, still struggling. Taking a medical article with my to GP on Wednesday with symptom list. LOVE YOU, please keep shedding light to providers!
Sat is 28%, TIBC is 285, UIBC is 204. My RDW also flagged as low with an 11.5% but Hgb is in normal range. I’ll send over my info to the iron clinic today
Thanks Sally. what a sad commentary on our health system that we get information on important thing off YT!. It is true that many Doctors do not listen. I had really low (didn't know it at the time) iron count.. 6.5 dc/l and collapsed. Drs at the hospital kept me in for 10 days of testing Nil by mouth ( without food) looking for surgical answers (mostly very uncomfortable procedures) to what they were convinced was internal bleeding. Constantly being asked if a I had been passing blood and my constantly protesting 'not at all'.. after the last round of investigations the Mr at the hospital came to me and said in a very terse tone.. 'I'll be annoyed if this is diet related'. Sent me home weighing 6st 9lbs with iron tablet that only took, after two weeks, my count to 7. My test of my lack of fitness was that I could only push my (heavy) petrol mower for about 20 seconds before literally collapsing on the grass, gasping. The Mr wanted more thorough investigations but i protested. I asked if i could try changing my diet first. He reluctantly agreed.. I went home and researched anaemia and diet.. bread/wheat (not gluten) kept coming up as an intolerance that closes down the stomach Villi. So I thought the worst thing i could do was to cut it out for a few weeks. after a strict 4 weeks I was 9st 4lbs with tight fitting clothing and could mow the whole lawn in one go!.. count was 11.5. The Mr I saw said in an irritated voice - it was 'better but not good enough'. I never went back again. I'm now still hovering around 10st and can still do the same work.
I’ve had 44 or 45 iron infusions in the past few years. My ferritin is 56 today but was only 7 or 8 6 months ago so pretty up and down. I have a great hemo now but the long term solution isn’t obvious.
When we found out my daughter had iron deficiency at 4 a few months ago, we were shocked! Prior to that, she was constantly complaining about fatigue, ache and pain, and the worst was depression. We did not know it had something to do with ferritin. After nearly 3 months, her level went up to 13 which is just right at the normal low range. She still suffers unexplained mood swings now and then. Is anyone out there has the same issue even your ferritin is in normal low range?
13 for ferritin is not a normal range. I believe and I'm not medically trained a child's levels are similar to an adults. You need to find a specialist in this or write info@theironclinic.co.uk
I've had a similar tale with my son and hecwas roughly 4 or 5 when it happened. Gosh did I have to fight and again it was fine to lack of knowledge from Doctors.
The blood tests are:
- serum iron
- ferritin
- transferrin (transferrin saturation can be calculated either by lab or by patient)
Also useful tests mentioned by the doctor are folate and B12.
So it's NOT trans ferritin but transferrin, a protein that moves iron throughout the body.
Wish you had closed captions
Hi, I was hoping you could help me. I used to have amazingly thick hair people used to think I was actually wearing a hair extensions but over the years I’ve seen a decrease in density, I had a biopsy and they saw some chronic inflammation and slight miniaturisation but the dermatologist said she can’t see evidence of FPHL under the Dermascope. I’ve always had some weird relationship with my MCV, MCH and ferritin since my teens and early twenties I’m now 28 and thinking where has my hair gone lol!
So my ferritin has always fluctuated between 24-37
My MCH has never been in normal range so between 24-26pg
MCV has always been between 76-81fl
Could you please advise?
Vitamin D 49 nmol/L
Hi Sally- I sent my info and labs over to the iron clinic and you said in this video they’ll review them for free, they actually won’t. A consultation is what’s needed and for US price conversion it’s about $300.00 for 30 minutes with Dr Richards. Just an FYI 🥰
Really? This must have changed only just recently. Thank you for letting me know. I need to follow this up. I appreciate you telling me.
Yep! Roisin McAleary emailed me saying I can schedule a consultation for x price and it would include a review of labs, hx, symptoms. They’d offer recommendations and any qs 🥰
@@MLHealthandLife okey dokey. Thank you, I'll chase up and see what's happened and why it's changed.
Any updates from iron clinic?
Saw a blood doctor, said I don’t have low iron and I’m fine. Ferritin is 25-35 on 81mg oral iron p/day. The other iron labs are “in range”. Anyone in Washington State or USA have contacts for iron providers has recognize ferritin as having an impact on quality of life?
Are there other things besides a G.I. bleed that would cause you to have low ferritin when you eat a diet with plenty of both animal and plant sources of iron? It will be months until I get scoped for a bleed, which I doubt I have. I suspect some absorption issue, but why and how to correct?
My ferritin is 5 I feel awful I saw a Haematologist 2018. Found out I was iron deficient since 2017. Last blood test Jan 2023 ferritin 5 mcv also low referred back to haematology and the consultant refused the referral. I have been on multiple iron supplements, I eat meat three times a week, green veg etc levels still low. Im loosing my hair, heart palpitations, weakness, feel faint, short of breath and stomach problems.
Have you had a Transferrin Saturation Index blood test done by your GP?
Whether oral iron decrease b12 level. My iron and ferritin were 125 and ferritin 70 saturation 35./. .but in cbc my b12 is 145 haemoglobin is 13.8 .
My ferritin has been high but iron has been low in the blood. Next April will be 4 years off work from my mysterious health issues. I believe anemia might be to blame. Going through all my paperwork leaves me baffled on how they could overlook something like this. I think I’m very close to solving this mystery and hopefully getting my life back. I’m a male in Canada and seen several specialists that can’t figure it out. The biggest flaw with the healthcare system is the wide ranges on blood work. Example: If the range is 11-30 and you are around 11-13 they think you are fine. I just found out that my grandfather and mother both had pernicious anemia and my sister was recently told she has low iron. This is going to be a busy week!🙂
Please check your b12 and folate. Also your trans ferritin saturation as you may have ferritin but it may not be being transported.
However, if pernicious anaemia is in the family you need to check this.
There are lots of websites you can go to for b12 deficiency and pernicious anaemia.
Keep me posted, I wish you well. X
My Ferritin is at 9 and they said it’s not low enough to get a blood infusion
Where the link to send the test too ?
Wats the optimal ferritin level for women ? And optimal level for b12 ?
Has low ferritin caused jerks in the upper body for anyone as they’re trying to fall asleep? If so, did raising ferritin levels help with getting rid of them?
Is that a symptom? I just thought that was something my body did. Especially if I am laying on my back !
@@artisticagi Same!
How about jerks anywhere in the body? Torso, legs, arms, neck?
I have had exactly the same. I’ve been taking iron tablets for 2 months and my ferritin is up from 26 to 38 but I have still been getting these upper body jerks.
My doctor is insistent I have colonoscopy to rule out gi bleed.My ferritin is around 10.I took upon myself to start gentle iron 25 mg bid.Doctor did not recommend supplement because he was to r/ o gi bleed.Millions are deficient in iron like myself who is 50 and still menstrating.I have say I have seen a marked difference
Is an ion infusion a good idea for someone with low ferritin and high hemoglobin/hematocrit?
You'd have to ask the experts. Dr Caitlin Scott info@theironclinic.co.uk xxx
My Ferritin is 4 and my hgb is 8. My insurance keeps denying iron infusions. I can barely get out of bed...
That's not right. I'm.taking it you live in America? What's your Doctor or haematologist said?
"those with serum ferritin 24 micro g/L." I would make a guess, noone has a ferritin of less than six. One might wonder how that would be accomplished?
Question, I have had iron deficiency for as long as I can remember my levels have never been over 18 since I was young I'm 46 now, so about 30+ years of severe iron deficiency. I recently found a DR. who is at a clinic that does Iron Infusions, and I had my first one done in October. Due to me not having anemia I do not qualify for Iron Infusions through the hospital. I went and paid for my iron infusion cause I know I absolutely need it my ferritin level at that time was 12, Iron Saturation 0.09, TIBC 66, and Iron at 6. After the iron infusion I had some pretty horrible joint pain and felt pretty gross but, after about 2 weeks I did feel a bit better. I then started to feel really bad and noticed that my urine was smelling funny and was darker than normal. I went back to the Dr. beginning of December because he was away on holidays and had blood work done now my ferritin is even lower at 6. I'm not sure why the level crashed so hard after the iron infusion is that normal for that to happen when you have been low for so long? I just had my second infusion and I am experiencing less joint pain and nausea but, I still have the weird smelling darker urine (infusion was on the 5th). I have taken iron tablets for so long now that as soon as I take one now to try and help my levels I get sick with gastritis (I get gastritis whenever I take iron now no matter what kind). I have takin liquid, heme, desiccated liver tablets from New, Zealand, FeraMax, Palafer, Proferrin among others and take Folate and all of them make me sick. I'm beginning to wonder if I don't have a genetic issue or something. I have in the last year become covered in Petechiae on my trunk and chest and they are now starting to go down my arms (most of the spots will get lighter only to multiply). The Dr. doesn't seem to think these are anything to worry about since my CBC is normal and blood counts are low normal I do get IM vitamin B12 and take folate to help my body make more red blood cells I figure it can't hurt. My Platelets though are always higher and sit around 340 and up. It would be awesome if you had any insight as to what's occurring because my Dr. doesn't seem to really have a clue. I'm looking for answers. I should also note that my Mother had very low iron from what I remember and my daughters have the same type of thing (one has it worse than the other and is more like myself). I really appreciate any incite you might have. Thanks in advance!!
Do you take your iron pill with vitamin C? They work well together for absorption of the iron. 😊 I hope this helps. Also sounds like you may need to see a nephrologist about your kidneys, I know I am. I’m just going the I’d rather be safe than sorry route at this point.
@@fricative247 yes I do the iron I take has it in it. It’s liquid called Iron+ but it’s now starting to make me sick. I usually get a month maybe then my body seems to get gastritis and severe heart burn that keeps me awake all night. If I stop the iron it stops so I know it’s the iron. I had an iron infusion in February got my level to 59 by March 17 my level was at 2 so I have no idea where it’s going or why. I just know it does and not one Dr. Can tell me why. I even eat meat like it’s going out of style, broccoli, molasses etc etc. even gone as far as taking dedicated liver which did absolutely nothing. The homeopathic Dr. Was perplexed that I can take the liver tableys and not have any movement in my iron levels. I was the first failure in what they said 15 years. Nice so ya I have tried 15 or more (lost count) different iron supplements even ones that’s are supposed to be easy on the guts (they aren’t for me), 4 different liquid iron supplements, desiccated liver, eating organ meat etc, nothing works and I feel like Sh&@
Hi, I saw your post on Instagram and I came to watch your videos it’s joint, muscle weakness and sometimes like a burning feeling in the skin ? My ferritin is 3 my doctor just said to keep taking iron pills my b12 is normal that’s what she said. Can you please help me to confirm that my symptoms are from low iron storage I been in fear to have something else
This is absolutely deficient you have nothing and it will be causing symptons without a doubt. I'm not medically trained but send to Dr Caitlin Scott info@theironclinic.co.uk
Have you checked your other levels?
Folate
B12
Vitamin d
Trans ferritin saturation
Serum iron
If you'd like these checking I have sorted these bloods with Forth with life.
www.forthwithlife.co.uk/mind-and-body/
Let me know how you get on. Xx
Hi brigete I’m going through this does it ever go away i thought I had something else too told me anxiety burning skin hurt so bad I don’t wish this on anyone
I have Neck and Hand tremor and my ferritin is 18. Can my tremor be cuaused by low ferritin level?
I've a feeling it can. I know b12 deficiency definitely can. Some people ate low in both and folate aswell as all three make up the red blood cells. Please get this checked with a Doctor that is really trained and up to date with iron deficiency. Sadly as I'm learning over the last 4 years, many are not knowledgeable at all. Make sure you see someone that does. I can pass you on to Doctors but they are private. Xxx
My ferritin is 7, hemoglobbun 110. Can this cause eye floaters? I’m pregnant the doctor says this is normal levels I know they are wrong that’s how I’m here
How are you doing rn ? I’m also anemic and have eye floaters... did you find anything that helped you ?
i have doubt for vitamin d taking with fat ...should i not drink water just swallow the pill?..
This is what I was advised to do from someone within the know. So this is how I choose to take it. But of course you can take however you like. 😄
My hemoglobin is normal, but everything else is borderline abnormal (other words, on the low or high end of every scalp pertaining to iron deficiency). What's weird? The scale for ferritin for my diagnostic office starts at FIVE ng/L, so the doctor doesn't believe I need iron. They believe if you have at least 5 ferritin they think you're fine!!
My levels? Ferritin: 13 ng/L ("normal" 5-204), iron: 79 ug/L ("normal" 50-170), iron saturation percent: 17% ("normal" 15-50), and iron binding capacity at a whopping 460!! ("normal" 200-489).
I'm experiencing light headedness, shortness of breath, vision issues, coldness in hands and feet, skin dryness, fatigue, brittle hair nails (which also have developed little "dips"?) Did you experience this even though you weren't anemic??
Ps: btw, not thyroid--I dont have a thyroid anymore and take replacement hormones, and my levels are checked and managed frequently enough that I know it isn't this. Thyroid levels are perfect rn
Hello Natalie. Sorry only just seen your message.
You are completely deficienct in ferritin and your trans ferritin is also very low. Im not medically trainrd but I would say you would benefit.
Send your bloods with your symptons to Dr Caitlin Scott info@theironclinic.co.uk
Ferritin for optimum should be 100. My son ive taken 5 months to get him from 16 to 50 in which 50 is considered basic. Xxxx hope that helps.
Hi, how are you now? Have your symptoms gone?
20k of Tests , Docs , Naturopaths, Surgery. Supplements
Years of Fasting , dieting , keto, calorie counting and excessive cardio.
Health kept deteriorating.
Low Ferritin was the issue. Gods timing is perfect so i dont get distressed over the time wasted.
Oh my word, this is where the system is failing, wasting time and money so much.
But I'm do glad for you, its eventually been found.
Sending love. It's horrendous isn't it, low ferritin has wasted almost 5 years of my life x
@@SallyJacksTVMum thank you.
Good way of checking is looking at your nails. If they have verticle lines it mean anemia or iron defiency.
Knowledge is power.
Do iron injections work as well as iron infusions
Not sure, i had an iron infusion. Xx
Hi sally. I’m on iron tablets. My serum iron is 32 and ferritin is 38. My vitamin D level is 72 do you know if that is low or normal for vitamin D? Also I take a vitamin D tablet it’s only 10 ug would you say that dose is enough.
Can I ask with your anxiety with your iron deficiency. Did you get like a nervous feeling in your body with yours? Did your’s last for hours in the day?
My symptoms seem to jump from one to the other.
Hope to hear from you soon 😊
Yes I did have the nervous feeling in my body.
Your ferritin isn't extremely low, but many get symptons at that level. My mum had half an I fusion with a level like yours
Vitamin d level you don't want any lower than that. Experts I've spoken to have said 125 for optimum, but speak with a Doctor who specialises. Make sure it's d3 and take in a morning on a full stomach .
Check your trans ferritin saturation aswell, plus b12 and folate. X
@@SallyJacksTVMum
Thank you for your reply. My ferritin was 19 in January I’ve managed to get it up to 38
Do you know about vitamin D is level 72 good
@@katiep2959 I've popped that in the last message. Xxxxxx
@@SallyJacksTVMum Oh yes you did sorry I didn’t see the read more 😊 thank you very much xx
@@katiep2959 youre welocme
Yes mine is 15 after Covid I had symptoms before covid but not recovered from Covid I have been started on iron tablets not feeling better yet but hopefully soon been off work 2 months so far
Have you dealt with a specialist in this area? Has anyone talked about an infusion with you?
@@SallyJacksTVMum no just the gp who prescribed the iron tablets had no effect yet but give them another week then go back years ago I had a blood transfusion because of heavy bleeding and have always had heavy bleeding
@@sophiegoss8378 ask to be referred to a haematologist. With ferritin, if that's what is reading 15 then it will take a long time on tablets. Plus they may have given you too much and therefore we struggle to absorb. X
did your hemoglobin and RBC improved after iron infusion?
Absolutely. I'm back to the old me and off all my medication. It was the low iron that made me mentally ill. Xxx
@@SallyJacksTVMum hi Sally, what's your ferritin now?
My ferritin is 16 scale 15-150 and saturation is 18. Scale 15-55. I have every symptom. Do I need a hemotologist or can my gp help??
You need your GP to refer you to a haematologist. Your level at 15 means you have nothing in the body.
The ranges are too wide and need up dating. X
@@SallyJacksTVMum thank you so much for messaging me! Your videos are the only ones that have helped and made me more informative. Thank you for your work. I will get ahold of my gp today. Ferritin is 16 but I doubt that is any different from 15?? I am excited to feel better. It is a real struggle daily. Dizziness, headaches, head fog restless legs, anxiety amount many many more symtoms. It’s hard!!!!
Hello good afternoon my ferritin was a 33 and I been taking iron I think a year 65mg a day last time I check it was at 65 when do I stop taking the iron
when ferritin is 100
Hi, do you think there is any relation to iron deficiency and dvt?
www.ncbi.nlm.nih.gov/pmc/articles/PMC2226003/ I'd actually never heard of it before, but since you've asked, I've found this. Very interesting. Thanks for messaging. Xxx
@@SallyJacksTVMum keep doing what you do, u saving lives.I'm inspired and keen in helping my wife resolve her iron issue.
@@bradleykarim4537 I wish her well. I hope you get it sorted.
My ferritin is 15, feeling so tired and weak and hair shedding in clumps. I have absorption issues and cant absorb iron.
Have you managed to talk to a specialist in this area? Xxxx
Is there any correlation between low iron and PMS? My ferritin is okay but iron levels are low and iron saturation is low and my doctor has told me to start iron and vitamin C. My symptoms seem to get 10x worse before my period
Yes. Your ferritin mist be low if everything else reads low. Did your Doctor tell you your ferritin was OK? Do you know where your ferritin level is? Also trans ferritin saturation? Xx
@@SallyJacksTVMum Sorry Sally! Never saw your reply. My ferritin is falsely raised due to inflammation. But my iron saturation is 17.1, serum iron is 54 and TIBC is 315. Didn’t get get a number for transferrin though.
@@saragreen2502 the iron saturation the same as trans ferritin saturation. This at 17.l % is low.
@@SallyJacksTVMum thanks for clarifying that for me 🙏🏼
came to say my PMDD is lots worse after my iron got low. i started BC too now to maybe help it
Is taking iron tablets okay?
If you are low yes
My ferritin is 27 Ng/ ml but serum iron is 124 haemoglobin 13 this case also iron deficiency
If you have symptons then yes, as your ferritin is at lower end of the scale. X
@@SallyJacksTVMum hairfall and restless leg syndrome no other symptom
@@SallyJacksTVMum I'm pretty sure you are giving medical advice .. and I was 'advised' my au natural liberally lathering lecithin, was 'medical advice', and so you should at least include a link to a study, any study, which says, 13 hemoglobin in a woman is considered iron deficiency. The healthy range for hemoglobin is: For men, 13.2 to 16.6 grams per deciliter. For women, 11.6 to 15 grams per deciliter
"Since 1983, researchers have warned us to avoid supplements that contain iron may be a primary cause of free radical induced degenerative disease. In a study in the March 29,1994 issue of the Proceedings of the National Academy of Sciences, Japanese researchers found that iron caused tubular necrosis (kidney damage), leading to a high incidence of renal adenocarcinoma (kidney cancer)."
You can watch a scientist or doctor on youtube for ten hours and not get 1% of the useful information that you get from these.
Thank you
My ferritin levels are currently 40 but feeling all of the symptoms, however my GP said that 40 is well within the normal range for a female so not to worry. Even though I told him I felt awful.
They’ve previously been anywhere between 9-64.
What should they be?
If measured in ng/L then optimum is 100.
Since having my infusion I've learnt that really anything under 60 and suffering with symptoms should be treated. If you haven't any symptoms and levels are basic then your body copes and you leave it.
But if you have symptons and you are lower than basic then talk it through with another Doctor.
My mum had half an infusion, her level was 32.
My friend had an infusion, not sure if it was full or half at level 52.
You could speak to your Doctor about iron tablets.
Ask them to look at the recent details in the lancett.
It states about taking 65mg every other day on empty stomach with vit c.
Anymore and it can irritate the tummy and not absorb.
Please go back and talk to them. Xxxx
Thanks Sally. I’ll speak with my GP again.
😀
Also see a hematologist. They are more educated
Now when the doctor starts guessing at what is wrong with you, (this has been my experience for at least 9yrs) what they're really saying is, I don't know!!! Because you already gave her the symptoms!
Hi. Can i still email you my blood result? And you send it to the iron clinic?
Love from norway 😊
You can send them straight to the iron clinic with your symptons. They take a look and get back to you. If you want further discussions then you book a consultation. info@theironclinic.co.uk
@@SallyJacksTVMum ok thanks. But shoud i have your name on it?
I think i want to travel to the clinic one day😊👍🏻they shoud have this in norway to! 🥴
What are your symptoms?
My fritin is 9.86 is normal
My ferritin is 7, i feel like death 😢
I know that feeling. Have you talked about an iron infusion with your Doctor. Unless there is a medical reason not to, this us the ONLY way. Do not let them talk you into tablets as it'll take a year and they'll probably overdose
My ferritin 10 Ng/ ml iron is 15 this cause hairfall
Yes, iron deficiency at this level causes your hair to fall out.
Optimum level is 100 ng/L. If I'm correct your hair doesn't grow back unless your ferritin is around 60 ish.
If your ferritin is 10, it means you have no iron stores at all.
You really need an infusion at that level. Please contact the iron clinic info@theironclinic.co.uk x
@@SallyJacksTVMum thank you so much .
@@beginnerssamayal8319 you're welcome. All the best. Keep me posted. X
@@SallyJacksTVMum ferritin raise upto 70 Ng/ ml at four months hairfall reduced 75 percent but doctor said to stop iron due to toxicity because my haemoglobin is normal when ferritin is 10 at starting .after stop taking iron again hairfall started how long I should take supplement
@@beginnerssamayal8319 Doctor shouldn't be looking g at haemoglobin for iron. They should be looking at ferritin. This is sadly lack of training in this area. Not his fault, however that doesn't help you and other patients.
Folate but not Folic Acid please
I do state this in most vlogs now. Xxx
8😊
Happened to me and I am a 57 year old man.
No bleeding just wasn't absorbing due to excess zinc blocking copper and iron. Everything normal but ferritin.
Sorry to hear. It does happen in men, it is just not as often as in women. Did you have an infusion?
Hi Sally, I wish the way you talk in your vlogs here is the same way you talked at work and on air at Ideal World. I find that you are very warm and entertaining in your vlogs than when on air. Believe it or not, I always mute the TV when you are on air. But I do enjoy your presentation in your vlogs which is very warm and humane. I hope you don’t feel offended because you seem to be a nice person in real life but not on air, unfortunately.
💙💜🖤💛🧡♥️💚
All I know if I had a woman doctor she would have never allowed me to walk away w out prescribing iron pills.Utter ignorance …
Maybe this Indian doctor can explain how everything she is saying is incorrect? Giving iron to people has been said to be THE marker for the lawyers to sue the doctor for failure in 'duty of care'. The reason everyone in the world is considered to be 'iron deficient' is because the medical profession has taken a 'too high hemoglobin' as being normal. They say when a woman has a 'low hemoglobin' of 11 makes her considered to be iron deficient anemic, when in FACT, 11 has been shown to be the healthiest, evidence based medicine. Humans are herbivore, unable to safely eat meat due to the high iron absorption properties of the type of iron, found only in meat, heme-iron. Heme-iron is absorbed at a very high rate compared to iron from any other source. It also has what is called an iron absorption enhancing factor which allows other iron ingested at the same time to be absorbed at this very high rate. This is bad. It leads to increased iron levels which cause oxidation / rust, amongst other measurable ill effects.
So contrary to your seemingly staunch opinion of all women 'bleeding to death', cannot eat enough food to survive, etc .. which is a paradox in itself .. women do not get iron deficient, they become iron overloaded which is to be treated by a very low iron diet and iron reduction therapy, no meat eating a'tall ..
They've tested it in those with PCOS , polycystic ovary syndrome, one in ten women have it, and it is the number one cause of infertility.
“Effect of phlebotomy versus oral contraceptives containing cyproterone acetate on the clinical and biochemical parameters in women with polycystic ovary syndrome: a randomized controlled trial.”
www.ncbi.nlm.nih.gov/pubmed/31470879
Lmao Tom, if a woman is having shortness of breath, fatigue, dizziness etc. and her iron is low then yes she is iron deficient. Until you menstrate every month and feel like complete crap maybe keep your opinion to yourself.
@@leigh24 Women do not get preeclampsia, a'tall, UNTIL their hemoglobin rises to 11 and above, that is what is considered to be iron deficiency. They've just shown women do not begin to create new red blood cells UNTIL their hemoglobin lowers to 11. Again, that is considered to be iron deficiency.
This is an article in which she explains how iron deficiency, contrary to popular opinion, does not occur due to menses, something I've tried to explain for almost thirty years, women do not 'bleed to death', it is illogical .
“Iron-deficiency is not something you get just for being a lady” blogs.scientificamerican.com/context-and-variation/httpblogsscientificamericancomcontext-and-variation20110727iron-deficiency-anemia/
And, I must say, even though I included the study, simple phlebotomy, is as effective as standard of care, in those with PCOS, which as I too, pointed out, affects one in ten women, you still tell me to keep my trap shut ..
You not a woman.