I Woke Up Paralysed From The Waist Down At 19 | BORN DIFFERENT

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  • Опубліковано 16 лип 2022
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    MARI-JADE is 24 and from Winchester. She started experiencing spasms in her legs and arms when she was 18. Initially doctors put it down to anxiety but after a night out, she experienced paralysis in her legs and the left-hand-side of her face froze. Doctors thought she might have been spiked but after spending three-and-a-half months in hospital, she was diagnosed with Functional Neurological Disorder (FND). Due to the condition, Mari-Jade was having 30 seizures a day but after therapy, she now experiences up to 15 seizures a day including absence, chronic or sleep attack ones. Her memory doesn’t go completely but she said her memory jogs and she can forget her name or birthday but after a couple of hours/days, she’ll remember. She experienced periods of paralysis and had to learn how to walk again after a particularly bad episode in September 2020. Her dog Gracey is her best friend and has even saved her life on multiple occasions. She has said that she is grateful for the amazing community of people around her.
    Videographer: Jan Bednarz
    Producers: Georgia Embling, Natalia Giorgi
    Editor: Jonny Poole
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КОМЕНТАРІ • 301

  • @Tezah89
    @Tezah89 Рік тому +301

    This really made me 😢 I have multiple sclerosis and I found out because I became paralyzed basically overnight and I was 19. I’m so happy she’s trying to live her life and she’s not letting her disability control her. People don’t know how lucky they are and instead of judging, they should be thankful!! I think it’s so disrespectful to tell someone “they don’t look disabled” but there are people in the world that can’t help themselves. I really hope she gets control of her seizures. They look so scary and extremely dangerous 😢

    • @maryagyemang9870
      @maryagyemang9870 Рік тому +5

      Daily remainder to spread positivity

    • @TheKatarinaGiselle
      @TheKatarinaGiselle Рік тому +11

      I agree completely. Gratitude is as important as intention in this life.. otherwise it becomes so easy to lose our light..to lose ourselves and our way. When I am stressed, resentful, or feel myself depressed or heading in that direction, I slow muawld down and give thanks for every little thing. Even the most baaic of things because we take them for granted when we forget how much harder life would be without them. This is what keeps me going when life is it's hardest on me.

    • @amaza888
      @amaza888 Рік тому +9

      I thought about the same thing. I too have multiple sclerosis and some of her symptoms really speak to me.
      I'm often told "oh, you don't look disabled", or "you seem to be doing great today".
      Looks can be decieving...
      Best of luck to this amazing young lady, what an inspiration!!

    • @phylliskelley1570
      @phylliskelley1570 Рік тому +4

      Prayers 🙏.

    • @juliemaldonado7500
      @juliemaldonado7500 Рік тому +2

      @@Becca_MS-fighter yv

  • @gic8849
    @gic8849 Рік тому +190

    Several seizures captured within this little bit of time and she leaves us all with a smile on her face
    Man I pray she gets EVERYTHING she needs and wants in this lifetime to make it a safe and fulfilling one. She deserves it. What an inspiration

    • @sarahb7795
      @sarahb7795 Рік тому

      Try praying to god to stop creating these diseases and to stop making people suffer.

    • @iggyreilly1546
      @iggyreilly1546 Рік тому +1

      dont give up praying for you girl gods on oyur side

  • @bigjohn1253
    @bigjohn1253 Рік тому +160

    I used to be epileptic and it's scary before and during a seizure. I had brain surgery about seven years ago. Been seizure free since

    • @rockingrandmaof2
      @rockingrandmaof2 Рік тому +14

      Bless you!

    • @_am.ber_
      @_am.ber_ Рік тому

      I hope you stay seizure free for life!

    • @jenniferwhite746
      @jenniferwhite746 Рік тому +3

      What kind of surgery did you have? I am also epileptic too and also have many seizures of a wide variety. My medical team can't nail down what kind of epilepsy that I have. I am a preparing to spend two weeks in the hospital for a variety of tests and brain surgery. I have anywhere from one to 20 seizures a day. I live in Canada 🇨🇦 where our health care is fairly good.

    • @bigjohn1253
      @bigjohn1253 Рік тому

      @@jenniferwhite746 I had brain surgery at yhe Cleveland clinic in Ohio. My seizures were caused by an inner ear infection that spreaded to my temporal lobe when I was 6 months old and over the years it had caused scar tissue to develop which worsened my seizures. The surgeon's removed the scar tissue about 7 or so years ago and I've been seizure free ever since. Do you the doctors know the cause of your seizures or are they doing an exploratory surgery?

    • @mumofcuties5873
      @mumofcuties5873 Рік тому +4

      @@bigjohn1253 sorry to interrupt your conversation, but I find it quite interesting you say that yours was cause by an inner ear infection and scar tissue. My daughter had fluid on the ears when she was younger. It was finally rectified after I demanded for something to be done. She had grommets and then she could actually hear. She started having absences 19 months ago, then three weeks later, had her first tonic clonic seizure. She has been diagnosed with Juvenile Myoclonic epilepsy and despite being on 12 tablets a day, is very uncontrolled. I'm wondering whether this is what has caused her epilepsy. She was 12 when she was diagnosed, and her neurologist and doctors and paediatrician know she had ear problems as a child and have never told me this could be a reason. Thanks so much for this information, I will be asking them to investigate my daughter further.

  • @willcookmakeup
    @willcookmakeup Рік тому +64

    It’s really amazing that dogs have the ability to recognize seizures and when they’re happening. Ugh what an awful thing to go through and live with. But what incredible strength to continue to do so and to share her story.
    I can’t imagine suffering from this, but even more so to be continually called a liar and not believed about something happening to you. That has to probably be the worst part

    • @amorgan4984
      @amorgan4984 Рік тому +1

      I can imagine . It's so scary . I started having seizures in late December early January, and eventually a.strome with no known cause in may . It's scary when things happen on your body that you don't understand and can not explain .

  • @khalilahd.
    @khalilahd. Рік тому +56

    Wow this just broke my heart. I’m so sorry this happened to her but I’m so proud of her for still living life to the fullest 💜

  • @mendmywings7238
    @mendmywings7238 Рік тому +74

    Dogs are amazing. So is this girl. She's strong, and she's pretty. Wish the best for her x

  • @jessicabellone913
    @jessicabellone913 Рік тому +45

    Omg this is so crazy! I’ve just been referred to a functional neurologist because I suddenly became paralyzed too!!! Some of my symptoms come and go but my weakness has developed all over my body. I’ve been undiagnosed for over a year and a half now. It’s been such a devastating life changing event. Nobody knows what’s wrong with me and now I’m also being referred to a place that deals with mysterious illness. Sending all my love and support to all those who are suffering 🙏💖🙏💖🙏💖🙏💖🙏💖🙏

    • @palesasefurutshe6832
      @palesasefurutshe6832 Рік тому +4

      Sending lots of love to you🙏🏾😻!!

    • @mais00
      @mais00 Рік тому +5

      I’ve got fnd and not many people know about it including doctors, a lot of people get mis diagnosed and left there not being diagnosed for years, I got ignored by doctors when I was having tremors in my legs in hospital and one of them even said “get up and walk”, I was 9, u can’t just tell a 9 year old to get up and walk when I clearly couldn’t, long story short I get tremors in my legs and weakness in them, wishing u luck ❤💕

    • @carmenriegert8118
      @carmenriegert8118 Рік тому

      It will be interesting if she falls down when there's nobody

    • @LexiNc8284
      @LexiNc8284 Рік тому

      @@mais00 hi is FND genetic or can it happen to anyone?

    • @mais00
      @mais00 Рік тому

      @@LexiNc8284 nobody really knows yet cause doctors haven’t done enough research to know, it could be genetic but it could also happen to everyone.

  • @jessewru6425
    @jessewru6425 Рік тому +28

    Warrior woman! She's so strong to live that struggle and look that good at the same time!!

  • @robinwagner3293
    @robinwagner3293 Рік тому +23

    I can't imagine going through something like this. It also made me angry that people judge you because you quote "don't look sick." Well, I have disabilities being born with a birth defect. On the outside, to many people, I look fine. They don't know what I deal with medically. Same with you. You never know what someone is going through. Bless you and thank you for sharing your story.

    • @oldwomanranting
      @oldwomanranting Рік тому

      When I got sick with severe Rheumatoid Arthritis I remember a co-worker who was a therapist who asked if I wasn’t just b n a hypochondriac. I was so sick and couldn’t walk and he asked me that question. He ate crow when I got the diagnosis and he did apologize but often I look fine but nobody knows the severe pain and deformities I endure and have acquired. I am always sick but unless I am struggling walking I may look fine which isn’t true. I even get looks when I park n handicapped spaces because people don’t realize that I may walk into a store fine and not be able to make it out fine in a matter of minutes. Now I am not fussing because these viewpoints r normal because we as humans judge with our senses, mostly our eyes so for those of us who struggle let’s give people a pass and educate if possible. I just told all of my coworkers that I am hearing impaired because of this disease and nobody knew but it was time for me to share that I wear hearing aides and that I need help sometimes. It was hard to do but I am glad I took the leap to educate. It is okay sometimes

  • @Bettinasisrg
    @Bettinasisrg Рік тому +5

    All people who say/think "they don't look disabled" need a reality check! I've got a degenerative disease that causes a lot of pain and cluster headaches which are insane and although I don't look disabled I am not ok. Just remember there is a big net of what's disabled from not too bad to really severe but all deserve compassion and respect.

  • @laurenschenck5355
    @laurenschenck5355 Рік тому +54

    She is so beautiful inside and out and have so much strength and brave and amazing inspiring and god bless her and incredible unique and strong positive sprits and proud of her for sharing her story ❤️✨❤️

    • @farrukhahmad453
      @farrukhahmad453 Рік тому

      Hey can we friends truly and will you Hire me ??

  • @katelynwilliams7147
    @katelynwilliams7147 Рік тому +23

    I used to have frequent seizures so the statement she made about trying so hard to not let it happen really hit home. I know how that feels. They used to come on at the least convenient times. I had more out in public than at home which was VERY embarrassing due to having bladder and bowel incontinence nearly every time I seized. Never qualified for a dog or anything to help though. Not was I ever paralyzed. Temporarily maybe but never long term.

  • @checkermaker480
    @checkermaker480 Рік тому +24

    Love her and her mum for being so brave and being there for each other. I suffered a stroke close to 10 years ago, and have still not regained all of my ability, I don't think I ever will. But it's all about getting better and never losing hope. Please try and incorporate as many movement based activities as you can in your lifestyle. The brain recovers miraculously with it, trust me. Iam a dancer, and do have progressive peripheral neuropathy, but dance has helped me maintain control of my extremities. As much as is possible. Good luck to you, beautiful woman💜

  • @theproject568
    @theproject568 Рік тому +16

    A very brave young lady. Puts my life in perspective. I was having one of my pity party days for myself today and saw this video. Good reminder to count my blessings and be grateful for my health.

    • @chinchillamdgamer
      @chinchillamdgamer Рік тому

      When I feel I'm struggling or if I feel "my life is getting too hard" or if I'm in pain (i have a chronic disease but honestly it's veeeeeen mild slightly annoying if anything) i watch this videos and these people inspire to give my best. You always see them with a smile on their face and talking about what they CAN do rather what they can't. Watch one this vids a day, your depression will improve (not cured duh, but helps a little, it's therapeutic).
      Hugs from Mexico

    • @wakingup1441
      @wakingup1441 Рік тому

      Same'

  • @sassykaren7587
    @sassykaren7587 Рік тому +36

    I can completely relate to what she is going through. In March of 2018 I slipped into a coma for almost a month. The doctors told my grown kids that my brain wouldn’t stop swelling, and for them to plan my final expenses. I was blessed that I came out of the coma, but quickly found out that I now suffer from seizures and panic attacks. I have had times when the seizures caused me to not be able to walk, or function normally. I pray for the both of us that doctors will find something that will stop our seizures, and my serious panic attacks. 🙏

    • @marion5198
      @marion5198 Рік тому +2

      That sounds incredible. You are young healthy people and all of a sudden.... this can happen to anybody anytime. Those who are 100% alright can be sitting in a wheel chair tomorrow. There is a Scripture in the Bible about a time yet to come : lsaiah 35 : 5, 6 " At the time the eyes of the blind will be opened and the ears of the deaf will be unstopped. The lame will leap like a deerand the speechless will shout for joy."

    • @marion5198
      @marion5198 Рік тому

      @@laurag8126 thanks for your reply.

    • @LexiNc8284
      @LexiNc8284 Рік тому +1

      Hi what caused your coma? I’m so happy you’re here ❤

    • @sassykaren7587
      @sassykaren7587 Рік тому

      @@LexiNc8284 The doctors could never find the reason why I fell into the coma. I’m just glad that I made it through so I could watch my grandson grow up. Thank you for your reply, and kind words.

  • @toronto75x37
    @toronto75x37 Рік тому +26

    In spite of her condition, she is a symbol of regardless of her condition, she lets us know that we will overcome by the grace of God within us.

    • @janwinter4257
      @janwinter4257 Рік тому +6

      god has nothing to do with it. she is doing this with her own strenght. would there be a god she wouldn't have that condition in the first place. i wish her all the best

    • @sunshinemcfarland6445
      @sunshinemcfarland6445 Рік тому +2

      @@janwinter4257 There is a God and the only reason there are conditions and sickness like her’s and many many others. Is because of us and our sinful nature. Have a blessed day. Check out First Church of Our Lord Jesus Christ.

    • @toronto75x37
      @toronto75x37 Рік тому +2

      @@janwinter4257, trusting in your strength is useless, but trusting in his is reliable.

    • @toronto75x37
      @toronto75x37 Рік тому +1

      @@sunshinemcfarland6445, yes. His word is never a lie.

    • @sarahb7795
      @sarahb7795 Рік тому +2

      God shouldn’t of given her this horrible, cruel condition in the first place. No loving god would intentionally create suffering, and that means god isn’t good.

  • @king-gv3bk
    @king-gv3bk Рік тому +8

    She's such an inspiration. Her spirit is unbreakable. But my heart breaks for her mother. 😢

  • @heather_bee
    @heather_bee Рік тому +15

    This must be so exhausting for her. I hope they find help.

  • @marywatkins9438
    @marywatkins9438 Рік тому +37

    Has Mari-Jade considered a service animal? I think that would definitely be something that would help regain some of the independence she lost. Do they offer financial assistance to get service animals in England?

    • @TheKatarinaGiselle
      @TheKatarinaGiselle Рік тому +6

      Yes, that would be not only so helpful, but so healing! These animals xan be so incredibly expensive though. Butbaje has a following and could kost likely raise the funds! But at least she has her one dog that does help and has saved her life before. But a dog that iabtraijes for it would be less stressed than how her dog gets when she goes through a seizure as showed in the video.

    • @chinchillamdgamer
      @chinchillamdgamer Рік тому +2

      They're absolutely crazy expensive I've heard , no?

    • @KenziiThaBaddest
      @KenziiThaBaddest Рік тому +6

      She has one? In this video she shows the dog and it barks when she’s having an episode and helps her by laying under her head when seizing. I would consider that a service animal.

  • @JaneAquaz
    @JaneAquaz 7 місяців тому +1

    As someone who also has physical disabilities and chronic illness I myself have lost count of how many times people have told me .."Well you do not look disabled". What does someone with disabilities supposed to look like? People can be so darn ignorant and judgemental. They have no idea what we go through on a daily basis and how difficult life can be last thing we need is being accused of faking our illnesses, chronic pain or physical disabilities or conditions. I wish this young lady all the best and hope that the treatment she is currently trying will help her to control her seizures.

  • @mumofcuties5873
    @mumofcuties5873 Рік тому +5

    Oh darling, my heart breaks for you, and also for your mother. My daughter doesn't have FND, but she does have epilepsy. Uncontrolled epilepsy. Everything your mum said is absolutely true. It's heartbreaking to watch your child in a seizure. It's even more heartbreaking when we as mother's can't prevent these seizures. I feel guilty when I can't prevent my daughter from falling and hurting herself, resulting in an ambulance ride to the hospital. I'm so glad you have a beautiful family who love and care and support you. You should be very proud of yourself for being so determined and strong.

  • @chonky_bun2647
    @chonky_bun2647 Рік тому +3

    It always makes me mad when people say, "you don't look disabled." You never know what's going on in someone's life, so I don't think it's okay to say that someone doesn't look disabled.

  • @niaashmore9227
    @niaashmore9227 Рік тому +5

    Thank you for having the courage to show your seizures with FND. You have a disability but aren’t defined by it - much love x

  • @sheenagriffith2635
    @sheenagriffith2635 Рік тому +7

    I'm so sorry to see what you're going through, but I'm glad you overcame the obstacles of not walking. I hope you keep fighting for your health, I know you have it in you.

  • @ambrebaughman159
    @ambrebaughman159 Рік тому +2

    Her strength and beauty is overwhelming. She is a true inspiration for us all. Thank you for sharing this with us. You're incredible 💗

  • @shredasaur8857
    @shredasaur8857 Рік тому +10

    I used to work with a guy that had epilepsy that would cause him to black out very much like this. You'd be talking to him and within a couple of seconds he would just drop to the floor. It would take him a good 20 minutes or so after walking up to realise who he was or where he was, it was really scary at times. A few times he would even black out whilst cycling to work, luckily he's never had any serious injuries.

    • @shpup
      @shpup Рік тому +3

      As an epileptic, that guy is braver than the troops for riding a bike to work frfr

  • @LifewithDjena
    @LifewithDjena Рік тому +9

    Is it just me or does she resemble Drew Barrymore? I love her positive outlook on life. You got this mamacita 💛

  • @cathytestagrossa6198
    @cathytestagrossa6198 Рік тому +8

    You must've been so afraid that first episode of seizure n paralysis. Don't waste your time with those that say you don't look disabled. The only thing that matters is you..you living your life the best you can with your illness. It's good having support. I hope things will turn out better for you.❤️

  • @lilajane7820
    @lilajane7820 Рік тому +6

    Literally what is it with people and hate…she is so strong..really it’s scary what she’s been through…but she keeps getting stronger and I’m proud of her…

  • @Raymlewis23
    @Raymlewis23 Рік тому +4

    Thank you for sharing your story with us. I could see some of the light and the dark within her life. The light when she’s with her brother, just chilling and living life in her backyard with her dogs and enjoying the nice weather outside, fading into the darkness when she randomly has a seizure and her brother drops everything to comfort his sister. To the gray area when everything ends up alright and she regains her consciousness and her train of thought. Even though it was scary, she got up again. Even though she doesn’t know if she might end up blind, or paralyzed again after this seizure, she faces another day and is grateful for every moment. Doesn’t mean some days will be harder than others, but she continues never the less. In a sense, that’s how we all should strive to live life. Because we never know what the next second holds.

  • @pulloutsange
    @pulloutsange Рік тому +8

    Her story will inspire others to push through life.

  • @AleinWonderland
    @AleinWonderland Рік тому +4

    I’ve been diagnosed with a random brain condition and I’ve started getting seizures every day and my husband has become my full-time caretaker so I resonated with us so much and thank you for showing me that you can still be amazing and beautiful and powerful even when you have a chronic illness

  • @mytwitchylife
    @mytwitchylife Рік тому +4

    As someone with FND, I definitely understand the struggle and how scary it can be. You are not alone! ❤️

  • @elrea-lynnpeach6640
    @elrea-lynnpeach6640 Рік тому +5

    I woke up paralysed at 36, from the neck down! Long story too much for the comment box, STAY AMAZING!! Haters are ever where i swear that's all this world has on it, But Your story made my heart break, I'm not alone anymore with this crazy life i now live. I think your beautiful inside and out, Grabbing at all life has to offer. Means more to both of us, because we know what its like waking up and NEVER THINKING we will HOLD anything ever again. XO Elly Ontario, Canada

    • @sugandhadogra1781
      @sugandhadogra1781 Рік тому

      Plz try yoga. There is some thing called anulom vilom. In India people have even cured their cancer while practising yoga for years. Do anulom vilom. Watch it on UA-cam by swami ramdev. If you do for two hours daily you will see the results within a year or maybe before that. God bless you. I wish people knew about these yogas more :(

    • @LexiNc8284
      @LexiNc8284 Рік тому

      Oh wow? What caused your paralysis?

  • @zoe_dawg
    @zoe_dawg Рік тому +2

    You and your mom look so similar! Truly brave of you ❤️
    I do like how you aren't just showing it like everything is always amazing. It's hard and I'm glad you are trying to live day by day

  • @mizzhllywd
    @mizzhllywd Рік тому +4

    This is so sad. I'm glad she was able to walk again though.

  • @blackhairblueyes1
    @blackhairblueyes1 Рік тому

    I’m so appreciative of her share. Her strength and beauty speaks volumes. I wish her so much peace and happiness. Watching her cry, stating she has lost so much confidence made me want to grab her and tell her how amazing & beautiful she is. ❤

  • @scatromommy789
    @scatromommy789 Рік тому +2

    I have several chronic illnesses that have left me disabled and the thing I hate most is people telling me I don't look disabled. As if disabilty has an image.... it irks me!! Some days are great and other days are miserable and I need a wheelchair to get around out side of the house if I'm even able to leave home that day. So if anyone reading this takes something from it, please, please don't judge someone's disabilty by how they look because disabilty comes in many different forms

  • @Autobahn4537
    @Autobahn4537 Рік тому +1

    I’m so sorry this is happening to you. I wish you the best with the therapy. You have a sweet brother and mother. You are correct, dogs are our babies.

  • @nickygray8019
    @nickygray8019 Рік тому +1

    What a wonderful video. ! You are such an amazing and incredibly brave young woman. Your family is so supportive, it was so lovely to see. Nothing will stop you from succeeding at anything you put your mind to.

  • @Grandmomof30
    @Grandmomof30 Рік тому +2

    Don't let the haters get to you there's gonna be people who think people who look normal are normal but your just a perfect person who shows light to the world

  • @arielxmoore
    @arielxmoore Рік тому +4

    Beautiful souls.... All of them.

  • @novawallenda7848
    @novawallenda7848 7 місяців тому

    I'm literally holding back tears right now, I'm so sorry sweet girl that you have to go through this. You're so strong. Have a friend here! Thank you for telling us your story and you're beautiful. You should have lots of confidence❤

  • @karensanders2120
    @karensanders2120 Рік тому +3

    God bless you! You are an amazing person. Don't let anyone make you feel less. They don't walk in your shoes. You are beautiful!
    Love.from the US! ❤

  • @taniasprout7102
    @taniasprout7102 Рік тому +1

    What a brave and beautiful women. Thank you Mari-Jade for sharing your story.

  • @Thefitty
    @Thefitty Рік тому +2

    *I'm blessed to have seen and know her in person ❤️ she is such a vibrant soul when she's feeling like her self. You are an amazing, talented girl!* --Linda

  • @terriehumphries6028
    @terriehumphries6028 Рік тому +2

    Twice my brother-in-law became paralyzed after having seizures. The second time he was in the hospital for months. He still has seizures today and has to be watched carefully. He has other special needs and is so sweet. I myself suffered with seizures for a long time. Mine is controlled by medication. I to was told I did not look disabled. I just had to Stop ignoring people. You are an inspiration.

  • @C.kirk1287
    @C.kirk1287 Рік тому

    She’s such a beautiful young lady 😢 man my heart goes out to her, please remember that your a beautiful, strong woman! My sister in law woke up paralyzed around the same age, and also has sporadic seizures.. it’s really heartbreaking to hear the sadness in her but I thank God everyday that she’s still here ❤ you got this sweetheart and your a beautiful inspiration to everyone 🙏🏽🙌🏼

  • @lisacolledge7624
    @lisacolledge7624 Рік тому +5

    Darling girl, you are still you. Still rocking it, just in limited times!!. But now, by sharing your story, so many more people know of you and can be inspired by you. Remember, sometimes we are the student, sometimes the teacher. You may just be both. I wish you things that bring you happiness always. 😊 ❤🌹

  • @violetwilliamson2570
    @violetwilliamson2570 Рік тому +1

    ,such an inspiring story of a beautiful strong young woman!!! Th!nks so much for sharing...we need more people like you in the world!😊

  • @hayleymariemills
    @hayleymariemills Рік тому +3

    That's one fantastic little brother!

  • @epicplayz6132
    @epicplayz6132 Рік тому +25

    I'm honestly impressed by the time and effort you put into these videos, Keep it up!💙

    • @r.r911
      @r.r911 Рік тому +4

      Shut up with these copy/paste comments.

    • @chinchillamdgamer
      @chinchillamdgamer Рік тому +2

      @@r.r911 it's a bot i think. Very sure it is

    • @adamdavis5383
      @adamdavis5383 Рік тому

      Why do u say that on every single post brooo. It's mad annoying EpicPlayz you be saying it on videos of people who post daily the same thing. Can u come up with something new man

  • @mamarobyn
    @mamarobyn Рік тому +9

    That's so interesting I've known people that have done EMDR fortrauma and I was looking into it with my therapist as as well I never thought of it for somebody that had seizures.
    I have however been sitting next to a friend that went into a full body GM seizure and it was the scariest thing I've ever seen so God-bless her..

  • @blackamericanlesbianprofes4357

    Thank you for posting this insightful interview.

  • @apara2005
    @apara2005 Рік тому +27

    Crazy how the disorder just happened all of a sudden. The brain is a mysterious organ. I too am dealing with neurological issues (although mine happen right after I got the vax). It's Horrible. I'm not having seizures, but constant vertigo and headaches that happen all of a sudden. It sucks not have any control. I hope her treatment works 🙏🏾 ❤️

    • @palesasefurutshe6832
      @palesasefurutshe6832 Рік тому +2

      Am so sorry to hear about your health struggles😰🙏🏾..

    • @gloryglory5688
      @gloryglory5688 Рік тому +3

      Yawnnnnnn

    • @mais00
      @mais00 Рік тому +2

      I’ve got fnd and it’s horrible, I’ve been paralysed before and I couldn’t move from the head down for about a week, I get tremors and stuff now, atm I don’t have any control over my legs, wishing the best for u 💕

    • @doubtingdennis
      @doubtingdennis Рік тому +2

      I developed these symptoms after the vaccine as well, they're still daily a year later. Thank you for sharing because it makes people like us feel else alone ❤️

    • @LexiNc8284
      @LexiNc8284 Рік тому

      @@mais00 hi do you know what caused your FND? That sounds horrible I’m sorry!

  • @oliviastromme7588
    @oliviastromme7588 Рік тому

    Thank you so much for sharing your vulnerability and what it’s like to live in your shoes. You are incredible and I’d love to hug you. I wish you the best sista!

  • @MummyDiaries024
    @MummyDiaries024 Рік тому

    Jesus this really made me cry. What a wonderful, strong woman.💞

  • @cerysjohns3752
    @cerysjohns3752 Рік тому

    Your amazing girl,your an inspiration to everyone and strongest person I know.I’m lucky to have you as my bestie ❤️

  • @voniansah3997
    @voniansah3997 Рік тому

    You are indeed a blessing. Thank you for sharing your story. I send you prayers of healing.

  • @Lfly7
    @Lfly7 Рік тому

    Thank God for her brother and her mother!! Beautiful!! 🙏🏼❤🙏🏼

  • @twingytwango6971
    @twingytwango6971 Рік тому

    This poor girl!!! Such a lovely personality!!!

  • @dawndouglas922
    @dawndouglas922 Рік тому

    She is gorgeous. wishing her the best health possible and every happiness

  • @lilyem97
    @lilyem97 Рік тому +3

    Moms are everything

  • @bluejem1315
    @bluejem1315 Рік тому +1

    She is so brave.

  • @a.h.s5152
    @a.h.s5152 Рік тому +3

    Prayers for her healing I hope they can find an cure🙏🕊️🙏

  • @D1a.N4
    @D1a.N4 Рік тому

    People like this beauty are real life inspirations. I am in awe at how strong gentle and determined some humans can be. And how they can overcome horrible misfortunes, often with grace and a smile, while there’s people who vent for objectively futile and shallow things. Be strong honey, you are an amazing example ✨

  • @shaniajnbaptiste7379
    @shaniajnbaptiste7379 Рік тому +3

    Such a sweet soul🥲🥺🥺

  • @eugeniajones1895
    @eugeniajones1895 Рік тому +9

    Don't get down on yourself this condition is something you can't control. You have a beautiful smile and soul. Do all you can to keep up your spirits. I know it 's hard but your still here by God's grace and mercy.
    I believe that you will walk even more than you are at this moment. Believing in the impossible can be possible.
    Take it from someone with experience.

    • @mais00
      @mais00 Рік тому +1

      It’s hard to not be down when you have fnd, I’ve got it, i can’t control yourself, I can’t ever control myself, it’s a permanent condition and I got it and a young age for the condition, I got it when I was 9, I spent the whole summer just so doctors could ignore me and force me to stand up when I clearly couldn’t

  • @julierstjohn
    @julierstjohn Рік тому +3

    Fabulous Story Thank you for sharing ❣️❣️❣️

  • @theunforgiven2885
    @theunforgiven2885 Рік тому

    🥺She's a fighter you keep going Hun .God bless you 🙏Hats of to her little brother he's a good young man 🙏❤️

  • @nikkijooste-strombeck5045
    @nikkijooste-strombeck5045 5 місяців тому

    Oh man I cried when she had some of the seizures. I have a 24 year old daughter who is me tally disabled, she started having seizures about 2 years ago. Her seizures are finally under control with 2 anti-seizure meds. It took ages to get to that. I really feel for you. Be strong!

  • @nataliewestby7696
    @nataliewestby7696 23 дні тому

    She is so brave to share her story.

  • @ritaakalele4801
    @ritaakalele4801 Рік тому

    Proud of you. do you realise how much it would take for camera etc in your face , and to talk to the world about it . huge hugs, not pity. xxxx you diamond. xxxxx

  • @mish6244
    @mish6244 Рік тому

    God bless you, and thank you for sharing your story, keep going never give up. You are such a beautiful person and soul. This story should open up people's eyes that we should be more gratitude in our life what we have. And that there is lovely people out there suffering more than we have suffered.

  • @wakingup1441
    @wakingup1441 Рік тому +1

    When she said she was so tired after the seizure I could tell it was not just physically she tired of it all. I cried when she started seizing. I hope she pulls thru this.

  • @ashleyburrup149
    @ashleyburrup149 8 місяців тому

    What a beautiful strong young gal. Props to you dear- you are a true inspiration!!!❤

  • @CraigTodd924
    @CraigTodd924 Рік тому

    What a beautiful human being.....Warrior!!! ❤️❤️❤️

  • @goodvibration4298
    @goodvibration4298 Рік тому

    This girl is a hero

  • @martindavies4970
    @martindavies4970 Рік тому

    I suffer with fnd also and its horrible.... you are truly amazing and watching your progress has given me hope at a time when I was ready to give up 😢 thank you. You pretty much saved my life #hero. Kind regards Martin xx

  • @KirstiStephenson
    @KirstiStephenson Рік тому +1

    Bless Your Heart Sweetheart🙏 You are so Beautiful and Strong! Don't ever Give Up❣️ Love and Hugs from Canada 🥰

  • @tdm0fr
    @tdm0fr Рік тому +1

    She's seems like a really nice person. It's difficult to have this condition this young, but she's overcoming it really well with her loving familly and pets !
    If I can give her a recommandation:
    Throw all the hate comments in the garbage : you sufer a condition, you didn't choose it. When something is not a choice it cannot be critized.
    What we could comment is how you handle the situation and you handle it extremely well, you seem to have an awesome life, take care and enjoy !

  • @annsherine5210
    @annsherine5210 Рік тому

    you are so strong ,so unique, lovable soul

  • @patricia753
    @patricia753 Рік тому

    Oh sweetheart ❤🏋️‍♀️, you have to deal with So much!!! You are so Strong and Resilient!!! Your Beautiful supportive family is Amazing! I'm sending prayers and Love your way! 🌈🙏❤🌷

  • @johnnyshd8250
    @johnnyshd8250 Рік тому +1

    You find out who your real friends are when things are down and out. Kudos to her bro.

  • @katrinarepine3879
    @katrinarepine3879 Рік тому +3

    I also have FND, was diagnosed about 7 years ago when I kept having seizures. I went into a period of remission and then they came back and haven’t gone away. Other symptoms I have is bladder retention, blindness, I can go unresponsive, lose feeling in my legs, trouble swallowing, nausea and vomiting, dystonia and severe tics.

  • @princessmeganelsa8952
    @princessmeganelsa8952 Рік тому +1

    Heart breaking 💕💕💕💗

  • @McChrister
    @McChrister Рік тому

    What a beautiful, sweet and strong young lady you are! I pray for a full recovery for you…Baby steps and staying positive will definitely get you there! Blessings and love send to you, your family and friends from Ontario, Canada(Btw, keep smiling! You have a gorgeous smile😁)🙏🏼♥️👋🏼🇨🇦

  • @movieedge7370
    @movieedge7370 Рік тому +2

    Omg I feel so bad for her but at least she is not alone she has family and friends and her dog that all look out for her with love .

    • @mari-jadeanita5271
      @mari-jadeanita5271 Рік тому +1

      Thank you 🙏 I’m getting by and I have a great support team to help me x

  • @najaboone5914
    @najaboone5914 Рік тому

    You're a very positive role model for those going through trying times. God bless you 🙏 ❤️ Keep reaching for you goals. The Lord is with you!

  • @faith_God
    @faith_God Рік тому +10

    May God bless her 🙏🏼

  • @verochoum
    @verochoum Рік тому

    Waooooh, impressive. She is sooo brave !!! Her mum & brother are 👍🏽 i wish you all the best ! 🍀

  • @karinadebbage5452
    @karinadebbage5452 Рік тому

    You are Such a Very Brave Young Women, Watching You is Incredible How Honest you are of your Condition...You And you’re Dog Are Absolutely Perfect companions... I Think You Should be an Ambassador for your Disability...Life is So Cruel Sometimes...But You Are A Fighter...And that’s great, Maybe You Could Think About Helping Other Children who are Younger than You, Help Them to Understand their illnesses...It’s scary to think that a child of say 7-8yrs old could possibly understand better from a person who has That Same Disability as Yourself...With Your Positive Aptitude And Willingness I’m Sure You Would Be An Teacher 👩‍🏫!!!!, It’s Lovely to See You Real Friend Is Their For You!!!, Shame on the Others, Cause That Must’ve Hurt A Lot- Bless You And Your Family for Being Their...I Wish You All The Very Best for Now And a Very Bright Future ⭐️⭐️❤️❤️🍒🍒

  • @robertsoreda7227
    @robertsoreda7227 Рік тому

    Prayers going up!!!!

  • @hotbambi2010
    @hotbambi2010 Рік тому

    Awww bless her my heart goes out to her 😔😔😔

  • @reginajrosado6179
    @reginajrosado6179 Рік тому

    God continues blessing her 🙏 and her friend and mom are amazing

  • @thelordisgood1619
    @thelordisgood1619 Рік тому

    She so strong ❤️❤️❤️

  • @afeeztundehamzat4525
    @afeeztundehamzat4525 Рік тому

    Stay strong Wishing you the best

  • @michaelacolorsandcreates4030

    Bless your heart, my son has the same thing as you. It’s so hard. My prayers will be with you.

  • @dakotachristopher5532
    @dakotachristopher5532 Рік тому

    Prayers for her.

  • @vccc5783
    @vccc5783 Рік тому

    Such a strong 💪🏻 young woman