Alex's story is so heartbreaking. She was such an adorable and special little girl. Sometimes when I think of her I feel like crying.I'm sure she is at peace now and free from this horrible disease.
I read this book in the 80s and couldn’t stop crying. In the back of the book, there was a donation slip. We were extremely poor growing up, but I begged and begged my mom to be allowed to send my money and she finally relented. It was probably nothing much to the people opening the envelope but to me, it was what I had. My mom would go without food so that we could eat so it was probably very hard for her to let me do. I will never forget this story for the rest of my life.
I remember when I first came across the book when I was working for goodwill industries at the time ..I kept the book aside and started reading it and cried at work .I couldn’t compose myself at work finally I did and went about the day at work ..I will never forget the story :)
I am one of those people honored to tell Mr. DeFord that I named my first born after his daughter. I read his book and saw the movie that touched me so much. He is finally with her. She will always be her "Silly Daddy".
As a kid I never forgot this movie even today I still think about this film my mother had us watch this back in 86 she's gone now for 2yrs and watching this reminds me of watching this movie with her so its a very emotional moment for me to watch this movie
I watched the movie over and over from 13 to 15. I walked the farthest in my church group to raise money for CF in my church group when I was 13...I'm one yr older than Alex would be and I'm from the Florida keys and I lived there when Mr.Deford passed. He was on the front page of our local paper. I will always hold this story of Alex close to my heart 💜❤️
truly wish he's with Alex now. we have no idea what this man went through. I'm thankful for his book and movie .. in my 40s as a male I still have tears thinking about Alex.
peace love I saw the movie back in the 80’s or early 90’s. It was my first interest CF. I became a nurse and worked in respiratory clinic, and did research work as well. Thanks to this family I found my career and interest in respiratory medicine!
I named my daughter after her ...her story inspired me when I was little and watched the film and I always knew I was gonna name my little girl that ..Alexandria Jordyn “Alex”. 💕
Cystic fibrosis is my favorite cause. No child should have to endure the pain and suffering of such a horrible disease. RIP Alex, and now her noble father, Frank Deford.
I read this condensed story in the Readers Digest when I was about 12 and it had a big impact on me .. it was the first time I'd ever heard of CF even though I live in Ireland where it's very prevalent . I never forgot this little girl but I did forget her name until I Googled it . It's even sadder now I have my own children .
Yo también leí esa historia en la sección de libros condensados de esa revista. En ese tiempo, tal vez la niña tendría unos tres años de fallecida. Nunca olvidé esa historia.
I have the book and I also have seen the video! Alex was a courageous young girl and even though she was so gravely ill, just reading about her was so encouraging-she was selfless and thought of others! Alex was loved and loved people in return!
It’s because of Alex I learned about Cystic Fibrosis & I’ve loved Alex since I’ve seen the movie Alex The Life Of A Child. Alex did not die in vein & there was a purpose for her life. I believe because of Alex & the Deford Family children are now living longer with Cystic Fibrosis than ever before with newer technologies & medicines that weren’t available over 40 years ago. I hope someday there will be a cure so no child ever dies from Cystic Fibrosis ever again.
God bless Frank Deford & his daughter Alex. When I was a baby back in the 70’s like Alex was my mother thought I had Cystic Fibrosis. I was tested thank God I didn’t but I do have asthma & can kinda understand how Alex must have felt with mucus in the lungs & not being able to breathe & coughing up a lot of mucus. It is scary when you can’t breathe & you think you’re going to die. I myself have been taken to the emergency room in the middle of the night for not being able to breathe. I believe there is a reason for Frank’s & Alex’s existence & that is to raise awareness for Cystic Fibrosis & get more research done on this disease so there will be a cure. Children are living much longer with this disease than ever before & there are better treatments like the vest that vibrates so children & teenagers can do this independently without someone hitting the chest to get the mucus out of the lungs. Children with Cystic Fibrosis are living much longer lives than ever before & it’s all because of Alex & her father Frank & the whole Deford Family as well as the doctors & nurses & Dr. Dolan that have made this all possible. There will be a cure for Cystic Fibrosis someday & I hope that it’ll be in my lifetime.
Yeh i heard the story in the 1980s in a womens magazine 1985 i was 11 then i think the moive came tv shortly after that 1986 cause it had craig t nelson my fav actor because of the poltergeist moive parent of a lost or dead child. Then i i think i got the book from library and then bought the reissued book with pictures of Alex in them easier to read so could get a glimpse of what she looked like growing up he wrote it so vividly and with optimism. Like could her Alex's voice and image coming through in describing there everyday life with therapy. Part of reading thinks oh she gonna make it meds are working well, but reading the last few months of decline and how he wrote about her death i 😢😢 each time he describes what he saw. I never heard if the disease till this book. R I P frank
Alex's story is so heartbreaking. She was such an adorable and special little girl. Sometimes when I think of her I feel like crying.I'm sure she is at peace now and free from this horrible disease.
I read this book in the 80s and couldn’t stop crying. In the back of the book, there was a donation slip. We were extremely poor growing up, but I begged and begged my mom to be allowed to send my money and she finally relented. It was probably nothing much to the people opening the envelope but to me, it was what I had. My mom would go without food so that we could eat so it was probably very hard for her to let me do. I will never forget this story for the rest of my life.
I read this book when I was maybe 10. I still remember. I also cried for days. I still feel so emotional.
I remember when I first came across the book when I was working for goodwill industries at the time ..I kept the book aside and started reading it and cried at work .I couldn’t compose myself at work finally I did and went about the day at work ..I will never forget the story :)
Named my first child after Alex.
I read the book.
I should read most of it. I couldn't finish it, it was so sad.
Rest in Peace, Frank. You are with Alex now.
I am one of those people honored to tell Mr. DeFord that I named my first born after his daughter. I read his book and saw the movie that touched me so much. He is finally with her. She will always be her "Silly Daddy".
We named our daughter Alex, too, although I never got a chance to meet Mr. Deford.
As a kid I never forgot this movie even today I still think about this film my mother had us watch this back in 86 she's gone now for 2yrs and watching this reminds me of watching this movie with her so its a very emotional moment for me to watch this movie
Bless Frank Deford for finding the cystic fibrosis foundation. I recalled at age 9 I donated five USD to the foundation. It came out of my allowance.
I watched the movie over and over from 13 to 15. I walked the farthest in my church group to raise money for CF in my church group when I was 13...I'm one yr older than Alex would be and I'm from the Florida keys and I lived there when Mr.Deford passed. He was on the front page of our local paper. I will always hold this story of Alex close to my heart 💜❤️
truly wish he's with Alex now. we have no idea what this man went through. I'm thankful for his book and movie .. in my 40s as a male I still have tears thinking about Alex.
peace love I saw the movie back in the 80’s or early 90’s. It was my first interest CF. I became a nurse and worked in respiratory clinic, and did research work as well. Thanks to this family I found my career and interest in respiratory medicine!
The pain this man suffered is unimaginable.
I named my daughter after her ...her story inspired me when I was little and watched the film and I always knew I was gonna name my little girl that ..Alexandria Jordyn “Alex”. 💕
Cystic fibrosis is my favorite cause. No child should have to endure the pain and suffering of such a horrible disease. RIP Alex, and now her noble father, Frank Deford.
I read this condensed story in the Readers Digest when I was about 12 and it had a big impact on me .. it was the first time I'd ever heard of CF even though I live in Ireland where it's very prevalent . I never forgot this little girl but I did forget her name until I Googled it . It's even sadder now I have my own children .
Yo también leí esa historia en la sección de libros condensados de esa revista. En ese tiempo, tal vez la niña tendría unos tres años de fallecida. Nunca olvidé esa historia.
Rest in peace Frank. Your with Alex now .
I have the book and I also have seen the video! Alex was a courageous young girl and even though she was so gravely ill, just reading about her was so encouraging-she was selfless and thought of others! Alex was loved and loved people in return!
Oh my i grew up watch the movie it was my favourite as a child. I always thought of the family.
It’s because of Alex I learned about Cystic Fibrosis & I’ve loved Alex since I’ve seen the movie Alex The Life Of A Child.
Alex did not die in vein & there was a purpose for her life.
I believe because of Alex & the Deford Family children are now living longer with Cystic Fibrosis than ever before with newer technologies & medicines that weren’t available over 40 years ago.
I hope someday there will be a cure so no child ever dies from Cystic Fibrosis ever again.
On May 28, 2017, Alex reached out her hand, and Frank took it.
And she took his hand to guide him to heaven to be with her in all of eternity.
God bless Frank Deford & his daughter Alex.
When I was a baby back in the 70’s like Alex was my mother thought I had Cystic Fibrosis.
I was tested thank God I didn’t but I do have asthma & can kinda understand how Alex must have felt with mucus in the lungs & not being able to breathe & coughing up a lot of mucus.
It is scary when you can’t breathe & you think you’re going to die.
I myself have been taken to the emergency room in the middle of the night for not being able to breathe.
I believe there is a reason for Frank’s & Alex’s existence & that is to raise awareness for Cystic Fibrosis & get more research done on this disease so there will be a cure.
Children are living much longer with this disease than ever before & there are better treatments like the vest that vibrates so children & teenagers can do this independently without someone hitting the chest to get the mucus out of the lungs.
Children with Cystic Fibrosis are living much longer lives than ever before & it’s all because of Alex & her father Frank & the whole Deford Family as well as the doctors & nurses & Dr. Dolan that have made this all possible.
There will be a cure for Cystic Fibrosis someday & I hope that it’ll be in my lifetime.
We were born almost a year apart, my birthday is October 31, 1970.
conheci a historia de alexandra lendo um condesado de selecoes;jamais esqueci,.senti como fosse minha filha,.essa hjstoria me emociona ate hoje.
Yeh i heard the story in the 1980s in a womens magazine 1985 i was 11 then i think the moive came tv shortly after that 1986 cause it had craig t nelson my fav actor because of the poltergeist moive parent of a lost or dead child. Then i i think i got the book from library and then bought the reissued book with pictures of Alex in them easier to read so could get a glimpse of what she looked like growing up he wrote it so vividly and with optimism. Like could her Alex's voice and image coming through in describing there everyday life with therapy. Part of reading thinks oh she gonna make it meds are working well, but reading the last few months of decline and how he wrote about her death i 😢😢 each time he describes what he saw. I never heard if the disease till this book. R I P frank
Wish I could meet Scarlet once and have a nice chat.
play the answer machine scarlet