Diagnosed With a Deadly Brain Tumour: Incurable & Inoperable, Signs? Symptoms? Treatment?

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  • Опубліковано 7 жов 2024

КОМЕНТАРІ • 428

  • @MiskatonicArkham
    @MiskatonicArkham Рік тому +158

    Hi Willy. My sister had the exact same. Just wanted to thank you for your great work. Love from Ireland.

    • @keelanfoley3921
      @keelanfoley3921 Рік тому

      💚from Ireland bro💯

    • @ibagm.8
      @ibagm.8 Рік тому

      so you know the name of the brain tumor?

    • @MiskatonicArkham
      @MiskatonicArkham Рік тому +1

      @@ibagm.8 Yeah its called brain tumor

    • @ibagm.8
      @ibagm.8 Рік тому

      @@MiskatonicArkham but there are much different names in special ... brain tumor = you call something a car ... but different names for different brands and names of the car ...

    • @MiskatonicArkham
      @MiskatonicArkham Рік тому +1

      @@ibagm.8 look brother..Im not an Oncologist or medical Doctor, But I think "Inoperable brain tumor" covers it in laymans terms. Best of luck to you.

  • @DoMiNaToR3
    @DoMiNaToR3 Рік тому +118

    That’s crazy man, just shows how precious our time really is. Thanks for spending the time to share this with us. Brought a tear to my eye

    • @FlukeTog
      @FlukeTog Рік тому +6

      Yea some days I remember some days I forget. But everyday Grateful. Man it is a precious short time.

    • @sking3492
      @sking3492 Рік тому +3

      You're a good man, Willy, you're heart is in the right place, and you are doing good work. Anyone living with a - some would say a death sentence - you have to take each day as it comes. As we say, 'any day above ground is a good day😜'. I don't mean it in a cheeky smart way, Willy. BUT DON'T SPEED IT UP, AND KEEP UP THE VIDS👍😜

    • @Rumorhasit-777
      @Rumorhasit-777 Рік тому

      Willy you are a very handsome man - live as you would live forever. Women would love to
      love you. Whether a a few years are to grow old with you. You are everything a woman would love in a man.

  • @lloyd4301
    @lloyd4301 Рік тому +58

    Im watching my Mrs go through chemo and immunotherapy for stage 4 cancer, and know how tough treatment can be. We live one day at a time and always try to see the positives even on the most crap days. Keep on keeping on Bro. Sending you positive vibrations.

  • @sonnybully
    @sonnybully Рік тому +93

    We love you, Willy! You're a stud and I pray for you every day!

    • @willyOAM
      @willyOAM  Рік тому +18

      thanks legend, I really appreciate it

    • @giovanni-ed7zq
      @giovanni-ed7zq Рік тому +1

      @@willyOAM look into taking the mushroom supplement cordyceps sinesis either sold in capsule or the powdered form in bulk. good for overall general health and immune system and considered a superfood. studies found is increases cellular oxygen so it give you more energy and stamina. i believe in japan they are also looking into its anti cancer properties. if ya get the powder form in bulk, if ya want capsules the purica brand has the highest purity at around 78 percent. also look into lions mane which is also a mushroom extract, helps with brain. you cant take too much of cordyceps as you know if you did by getting the runs. if ya have the runs means cut back on the amounts you taking.

  • @karma7683
    @karma7683 Рік тому +20

    Only at age ~33 I started to grasp how little time there is left and I still continue to somewhat waste it. Stories like yours make me take a bit different perspective on things and for that I am grateful. Thank you.

  • @Geo_Stone
    @Geo_Stone Рік тому +37

    Thank you for your honesty and bravery.

  • @willyOAM
    @willyOAM  Рік тому +79

    Very different to usual but this is some of the back story of how this channel started! (a lot skinnier back then haha)
    thankyou legends
    Support Channel directly:
    www.patreon.com/willybeatingcancer
    www.paypal.me/MWilliams745
    MERCH
    willys-merch.creator-spring.com/

    • @heliumhubcryptocollective9337
      @heliumhubcryptocollective9337 Рік тому +5

      first post in my feed of yours ive seen in awhile..was just thinking about u yeserday and poof here u are. god works in mysterious ways. just wanted to say im glad your still here. stay blessed

    • @richardhell73
      @richardhell73 Рік тому +2

      Selinexor. As of Feb 2022 it was in phase 2 international trials.

    • @tarnation1010
      @tarnation1010 Рік тому +2

      Your story is one of the most inspiring and equally tragic of any that I've heard. I had a friend that had the same diagnosis (not sure if it's the same type) and the doctor gave him 2 years. He lived another 10 and had his wits about him right till the end. I came across your channel because I've been following the ukraine conflict and was looking for something that was fully unbiased. I found it. Seriously I have a lot of respect for you and I hope keep up your good mentality, I'll be here supporting you from the other side of the world.

    • @davidprins5504
      @davidprins5504 Рік тому +3

      Have you looked at ZAP-X radio surgery that new device is developt specificly for brain tumors
      There is a documentary on UA-cam from ZAP-X called " first in man " about the first patiënt having radio brain surgery

    • @levin645
      @levin645 Рік тому +3

      My brother from Salisbury went through the same fight with his brain cancer as you there in Adelaide also. My quadraplegic friend gave me his outlook he lived by -
      "Every day you wake up is a gift, enjoy life as you are one of the lucky ones"
      I try to live up to this also as I'm dealing with the consequences of a car crash that I'm truly lucky to be alive. Police and Firies told me I would normaly would have died in the crash from their experience and I died twice on the operating table while the surgons battled to put me back together.
      Each day is a gift, stay strong, positive and as you comrad says in your outro be an Aussie ratbag and a c_nt. Enjoy Life. ❤❤❤

  • @nathanb9111
    @nathanb9111 Рік тому +36

    Had a very similar situation with doctors failing to communicate between eachother for treatments and keeping the patient informed with my mother during her cancer battle. I saw how much the uncertainty impacted her health, as her condition was not something that had any known effective treatments and was inoperable. It was quite frustrating to her as much as painful to us to see her down in the dumps mentally during it as the chemo itself is a bloody battle on its own as you know.
    You're a tough fella Willy. Stay strong legend, you're an inspiration to us all.

  • @DamienAlba
    @DamienAlba Рік тому +29

    Uncanny, the wife and I were just watching your vid yesterday and she asked about how you were doing with the cancer. She just went thru a 13cm spinal schwannoma, during which they did a PET and found a papillary thyroid cancer. Both treatable and have been removed, so we are very lucky. We appreciate the work you do on the channel and the info you present is really not readily available in such a format. Thank you for your service, and continued efforts Matt.

    • @e.e.8589
      @e.e.8589 Рік тому +5

      All the best to you two

  • @juliancahillane
    @juliancahillane Рік тому +2

    Mate. You are absolutely cool as fuck. Im not going to say I'm sorry, sooo sorry etc.... because that means absolutely fuck all. What actually matters is that you are making a difference. Aside from everything else that you have done,.you are running this channel whereby you speak to people involved in this conflict at a completely down to earth level, it is absolutely helps people like me when we see these interviews, as you are completely real, the people you interview seem to pick up on your vibe and there is no bullshit. You have existed and everything that you have accomplished has happened, there is no unwriting that. You are forever written into existence. If there is a heaven, you'll be there. If not....i guess I'll see you around

  • @martapatterson8896
    @martapatterson8896 Рік тому +19

    Your story is so familiar to me, I can’t really talk with anyone but one of my children about it. My illness was discovered three years ago by chance. I knew something was deadly wrong, was the time of the sickness and lockdowns. It was common with respect to my age, therapy was held off for a year. When I became very sick, I was given a daily pill, for what ever life I had left, no one new what that would be. My visit last night, was “you will grow immune to therapy”, this new doctor was more direct, and smarter, no dates, but few years is implied. When a person faces death, you look at it, and find what ever peace there is in it, or you loose your mind. I don’t think about it, waiting for the conversation with the grandkids and how to tell them and not tell them, like a cold that makes you feel a little bad, that never goes way. Sticking a port in my chest was never an option, wishing I was dead every day, sick as a dog, we not going to happen. I was lucky with this is form of treatment otherwise I wouldn’t be writing this today. I live with one of my children, I would never admit this to anyone else but, we have dark jokes about my dying and we laugh. It’s like you know an important date is coming, not sad or happy, just there, I’m ok with it, God Bless you Willy. . .

  • @MrParanoia
    @MrParanoia Рік тому +59

    My Dad passed from cancer eariler this year and I've been battling with some health issues myself since 2019 that caused a cardiac arrest in 2020 so gotta take those sweet ass steroids haha and low dose chemo. You're truly inspirational and absolute legend mate, I don't know how you do it. Knowing of you makes me even more proud to be Australian and I thank you sir, for everything you do!

    • @anthonyhowrard526
      @anthonyhowrard526 Рік тому +2

      Your are tougher than you know. My Dad passed in 2019 as well. He was 90. He was able to go to his 90th birthday party when He was well and it made His day to see all the family.
      all the best from a pommie

    • @CMoore8539
      @CMoore8539 Рік тому +1

      I’m very sorry for the loss of your Father.💔
      I hope you get well completely real Soon! Take good care of you and hang in there. Everything will work out.
      P.S. I know how you feel about steroids. I’m having to take them too. I have found that if you take them at bedtime, it’s not as bad. I’m American and I love Australian People. I hope you have a Merry Christmas! And get well real real Soon!♥️

    • @CMoore8539
      @CMoore8539 Рік тому +2

      @@anthonyhowrard526I’m sorry about the loss of your father too. I lost my Mom at 90 years old in June 2021. Losing a parent is a difficult thing to go through. Just take good care of you. Lots of Love and Respect from America!♥️

    • @anthonyhowrard526
      @anthonyhowrard526 Рік тому

      @@CMoore8539 Thank you so much. All the best to you and yours.

  • @jb6668
    @jb6668 Рік тому +21

    As somebody who has been through the bastard of cancer and Chemo. Although I'll never fully know your battles, I can empathise with your life experience and attitude. I really hope there is a way to find a successful outcome for your condition. All the very best mate.

    • @e.e.8589
      @e.e.8589 Рік тому +1

      You are a real trooper. I wish you just the best

  • @curtgomes
    @curtgomes Рік тому +1

    Willie: Thanks for telling your story. I am much older than you and have suffered through some serious medical issues; not as serious as yours but somewhat similar. My body insists on growing tumors. Mine are on my adrenal glands and have affected my kidneys. I started noticing issues about 40 years ago. I went to the doctor and was misdiagnosed! For many years I was ill with symptoms and given entirely the WRONG medication and medical treatment. I finally saw a doctor who immediately recognized what was causing my symptoms and treatments were immediately stopped. I soon had a surgery to remove a large tumor on my right adrenal gland. I was hoping that would end it. But no. My left adrenal gland started growing a tumor. I was lucky because my tumors were treatable. Unfortunately, my kidneys have been greatly compromised. The doctors have told me that I will need dialysis. That was eight years ago. I refused. For some reason my kidney function has kinda stabilized and is working well enough to keep my alive? God has been good to me. I hope he is good to you and the quality of your life remains and lasts for many more years.

  • @leonardusgroenendyk6027
    @leonardusgroenendyk6027 Рік тому +10

    I have stage 4 lung cancer. So I don't have that long. So I fully understand how you are. Also am an ex Cpl. Tanker. Best years of my life and would do it over in an instant. I thrive on my dark humour which my army mates all understand. After three wives I don't bother dating anymore as , as soon as you tell them that you have cancer they just run. I still want to finish my Ph.D. Only so the ex wives have to call me doctor! Love the show.

    • @giraffe_hd9773
      @giraffe_hd9773 8 місяців тому +1

      I'm sorry you're going through that, I can only hope you're still with us and things have since taken a better turn

  • @skidskudd
    @skidskudd Рік тому +14

    You’re a legend mate, I’ve always held a great deal of respect for you and the content that you make. But also to the fact that you haven’t let this control you’re life. Best of luck for you Willy

  • @adamtedder1012
    @adamtedder1012 Рік тому +1

    You made the right decision. We chose the surgery for our family member. It was horrible. She lost the ability to move her entire side and speech. She lived 2 yrs longer, but the quality of life was absolutely horrible. We all regret convincing her to make that decision. It affected me deeply and made me decide then and there what decision I would make if it ever comes knocking on my door.

  • @TheMcEwens419
    @TheMcEwens419 Рік тому +4

    I live with Ehlers-Danlos Syndrome with severe Hypermobility. . . it is hell.
    You made me see, we all end up the same.
    Thank you for your time!

  • @elizenolte4687
    @elizenolte4687 Рік тому +1

    Hi Willy. Amazing how life is. I f you did not go for the CAT scan, you would have not have known. Does it help to know? I am not sure, but one thing I am sure is that what you said about how to live your life, is valid for all of us. Live like tomorrow can be your last day, but also live like you have many years ahead. Treat people well, look after that that is important. How do we want to be remembered? Most of us don't want to talk about our limited time . Great talk you did and your decision about how and what will be done to you is completely for you to decide.

  • @user-pq8cq9cv1h
    @user-pq8cq9cv1h 10 місяців тому +1

    I hope you live forever, mate. You’re a good dude.

  • @gloriagavaneli9862
    @gloriagavaneli9862 Рік тому +6

    Willy your positive attitude will help you live longer don’t give up miracles do happen. We are praying for you. ❤

    • @stephen8996
      @stephen8996 Рік тому +2

      That's a fact and something many don't understand. Attitude and mindset is everything

  • @VladicD
    @VladicD Рік тому +2

    My father had glioblastoma, he died two months ago after two years of battle. I know how it is mate, especially when you started to talk about illness from chemo. He had the same, he also got allergic to Temodal eventually. Brain tumors are really a terrible disease. You are very brave mate, keep up the spirit.

  • @CivDiv
    @CivDiv Рік тому +1

    Really nice vid man I had no idea you recorded some of your time in Afghanistan on patrols, was really crisp footage btw what GoPro was that? Praying for you man

  • @HRM.H
    @HRM.H Рік тому +4

    Wish you the best of luck willy. Many years to come ♥️

  • @mgmurray100
    @mgmurray100 Рік тому +1

    I am 60 and have fought accoustic nuromas for 30 years! The first surgery was state of the art skull base procedures 19 hours/7 surgeons, who later said I had only a few weeks left and i was losing my vision in days. Same whole headaches, as you, same sudden surgery, no prior warning about being near deaf, loud tinnitus and loads of local pain every since. I was among the top cat sailors and training for the '92 olympics in tornado sailing and studying instrument flying, one day, my Vietnam F-4 phantom instructer said your done take her down. I knew he was right but it still took 9 mos in total to get the correct diagnosis with a mri then cross state flight to mayo clinic and surgery within a day. I was blind for a while in the hospital but my 30 bday was a day i could see some rain on the window..
    I even eventually made it back to professional sailing. An Aussie was my lifelong nemesis, Dryland from Sydney and I dueled for three decades. Being a pilot, notsomuch.

  • @SeamusCameron
    @SeamusCameron Рік тому +3

    The worst part about life currently is that it's terminal. I hope you have many more years, but I'm glad you're here now and living your life to it's fullest. That quote at the end is one of my favorites as well.
    "serit arbores, quae alteri saeclo prosint".

  • @mdk7028
    @mdk7028 Рік тому +2

    We're kind of neighbours brother
    Im in WA
    We appreciate you greatly Willy 🙏 ❤️

  • @scannfamily4863
    @scannfamily4863 Рік тому +3

    Thank you for sharing your story. In our family we have two children that have been diagnosed with cancer in the last year. Our grandson (3) has Leukemia, and our nephew was diagnosed 7 months ago with a tumor wrapped around the optic nerve in his left eye. Our grandson has another 12 months of chemotherapy treatments, and our nephew has had a rough go with his treatments. Our nephew is (4), the doctor's have told the family that we have to take it one day at a time. Prognosis for our grandson seems like it's good, but our nephew's is not so good. They can't operate on it so prognosis doesn't seem like it's going to be too great. You're right tell your family you love them every day because tomorrow isn't promised. Prayers for you 🙏 Much Love from our family to your family 💞

    • @bmac5242
      @bmac5242 Рік тому +2

      Many prayers for your grandson and nephew and your whole family. I can't imagine how difficult this must be - they're too young🙏

    • @scannfamily4863
      @scannfamily4863 Рік тому +1

      @@bmac5242 thank you, it's difficult to watch the children go through more than they should have too. But our family has become so much closer together. We just take it one day at a time and hopefully both children will overcome their illness and become healthy again.

  • @Allen338LM
    @Allen338LM Рік тому +3

    Love your stuff Willy and yeah your that kinda dude ide click with as for the unit pic you laying on aside like that is the same kinda shit I do clowning around keeping the morale high and light no matter what you do great work brother never stop

  • @Chasechillz
    @Chasechillz Рік тому +2

    Had no idea, just recently started watching. Hope a miracle for you and stay puttin out the dope content!

  • @colinmitchell3213
    @colinmitchell3213 Рік тому +6

    You are incredibly brave & your attitude is incredible, especially being so young. You have carried the warrior spirit over to civvy street in your approach to life in general & to journalism in particular.
    The maturity, integrity & neutrality you show in your reporting on topics which can be very polarising, especially given the massive propaganda around them, belies your years. You could teach most so called journalists a lot older than you are, about true journalism.
    Hopefully your reporting inspires other journalists to try to reach the same standards and raise them too.
    Keep strong & keep seeking the truth.

  • @Coilboii
    @Coilboii Рік тому +3

    thank you for sharing willy, I look up to you, now to the video. I've always wanted to know. makes me feel like we are of the same.

  • @56Spookdog
    @56Spookdog Рік тому +2

    Willy although me diagnoses wasn’t cancer I was told expect 10 years 15 at the very most, that was 31 years ago. Best of health to you.

  • @Waniac
    @Waniac Рік тому +1

    My niece is only 15 years old when she was diagnosed with a brain tumor. Prayers are DEFINITELY going up for you sir. Thank you for your service and the wonderful content you provide. You won't hear some of this stuff anywhere else. God bless!!!!

  • @The_Capt
    @The_Capt Рік тому +2

    It fwlt really strange to be pushing the like button to a story about having cancer. But you explained it with dignity and grace. The measure of a persons character is how they tackle adversity.
    Funny you mentioned Rosewater. I had my first legal beer in the Flinders Hotel at Pennington a few decades ago. I would love to shout you a beer in the Rosewater Hotel sometime.
    Cheers, and stay strong.

  • @pugapq
    @pugapq Рік тому +6

    You are an absolute inspiration for all us Willy. Stay strong bud

  • @kerrylaw100
    @kerrylaw100 Рік тому +1

    Nawww Willy we are all better people for having met you online or otherwise ❤ this Kiwi will be praying you get to stay in this world a long time 🙏⭐️😊

  • @TheRealMrCods
    @TheRealMrCods Рік тому +3

    “A society grows great when old men plant trees in whose shade they shall never sit.” - Greek Proverb 💖

  • @gpant
    @gpant Рік тому +1

    It sucks to hear this, you are absolutely killing it with your amazing attitude. Strength to you 💪. My favorite quote is from the Sandman comic book. Death goes to collect the soul of an infant, and the baby asks like an adult "is that all I get". Death then replies "You get what everyone gets, you get a lifetime". I found another instance of this same thought in Marcus Aurelius's (the sad emperor of Rome) memoirs. "Life is like sitting on a rock observing the world, it doesn't matter if it lasts a second or an eternity". I take strength from these words and I try not to take anything for granted. Live well!

  • @effsixteenblock50
    @effsixteenblock50 Рік тому

    Willy I had no idea. Been watching your content for a while but you hadn't mentioned it in any of the stuff I'd seen.
    You have a great attitude. One thing I *did* notice was that you seem to have a great deal of empathy.
    Here's something to think about:
    Of all the zillions of people that have lived to a fairly old age and died without having ever been scanned for tumors, we have no idea how many of them did in fact have undiagnosed tumors that either stopped growing or for what ever reason didn't become symtomatic.
    You've probably gotten all the unsolicited advice that you can handle but - continue living well. Don't eat crap - don't eat sugar and bread etc.. Keep doing what you're doing. Looks like you've already got the right attitude.
    All of us love you man! Keep kicking ass!

  • @damionbowen3846
    @damionbowen3846 Рік тому +2

    You may have had to leave the army but your still a true warrior mate

  • @mwbiggs
    @mwbiggs Рік тому

    I've been watching your videos a few weeks now on Ukraine. Just came across this older video of yours describing your health challenges. What can I say, you are a special guy. There was always something about your videos that attracted me. You are well grounded. Hope you continue to defy odds. We all have expiration dates. Some of us know those dates (or there about), and some of us have no clue. I always wanted the latter case for me (just take me G-d at your choosing). But you have shown a real class with the former case, and may God bless you with a really unexpected long and long life. I know you live your life most efficiently! God Bless! :)

  • @NeoCavo
    @NeoCavo Рік тому +15

    Willy, you are an inspiration.
    I know it's not the same, but i have family who were diagnosed with HIV/AIDs back in the 1980s. They only barely made it to HAART.
    Your story reminds me of theirs. When youve got a prognosis of 'This WILL kill you' its fucking hard news and it breaks many. But for some, they really take it and live by planting seeds for trees they will never sit under.

  • @aeophylus
    @aeophylus Рік тому

    Many thanks for sharing your story. I'm a doctor myself and just want to say Australians are one of the most stoic people I've known having worked in many other countries myself. What you relate is so typically Aussie in the face of hardship- the ability to have a sense of humour and the mateship of friends and family. I wish you all the very best and will look forward to listening to your channel which I have just discovered.

  • @gilby3176
    @gilby3176 Рік тому

    I was watching the newest video and I thought to myself I can not remember what Willie's voice was like before he lost it. So I scrolled back randomly. And holy hell. Can't believe I got used to it. You really have put yourself through hell to give daily vids. I appreciate it and keep up the great work. Loved the content in Texas and hope you come back. Best wishes

  • @91F2Z
    @91F2Z Рік тому +2

    We got as much out of this video as perhaps you did in telling. It's been 18 years since my last brain tumor (I had three), and fortunately I (so far) beat it. So I have a bit of appreciation for what you are going through. From one veteran to another, stay low, move fast, and best to you!

  • @simonwiltshire7089
    @simonwiltshire7089 Рік тому

    Extraordinary. You came up randomly on my YT feed with your long interview with Justin. For the last several hours I have been completely transfixed. I am rarely lost for words. Today I am. I don’t even know why I feel such thanks for your posts. Humbling.

  • @SillySpudyRocking
    @SillySpudyRocking Рік тому +2

    You sir are an absolute bloody legend and the perfect example of someone to look up too and that's putting it mildly.

  • @danielmarotta4465
    @danielmarotta4465 Рік тому +4

    Hey Willy..extremely sorry to hear what you are going through..stay strong mate..your have great determination and will power...thoughts and prayers are with you !!!!!

  • @flaxenelbow6987
    @flaxenelbow6987 Рік тому +4

    Mate, you're a warrior, i hope you throughly enjoy the time you have

  • @elsestelema6273
    @elsestelema6273 Рік тому +7

    This really made me cry…. You are an amazing young man and words can’t say how sorry I am.
    I do hope you will have many years ahead of you, stay strong💕💕💕

  • @timdegraff5483
    @timdegraff5483 Рік тому

    Dude.. new subscriber here.. had NO idea. Thank you for sharing and doing what YOU are doing on your channel. Non biased, listen and ask the right questions to those on the front lines that we never would hear from. Carpe diem, you are doing it man. I hope and pray all the best especially for a miracle.

  • @callsigncamp
    @callsigncamp Рік тому +3

    Thanks for telling your story Willy

  • @ExtraRice365
    @ExtraRice365 Рік тому +1

    Glad you're still alive Willy!

  • @7p33dK1ng
    @7p33dK1ng Рік тому +3

    I admire your courage man. I hope you get to make awesome videos for many many years.

  • @iqbalbhuller1164
    @iqbalbhuller1164 Рік тому

    Sorry to hear about your life threatening illness. Wish you all the best and full recovery to good health.😊🇩🇪🙏

  • @masonshirley4051
    @masonshirley4051 Рік тому

    Thank you for sharing your story. Ever since I found out about you on the ole inter webs, I've been praying for you. I truly appreciate your work. I think your insight is enlightening. I've also listened to your perspective on human life and not only is that hard to come by, but I think it shows your connection with God. Keep pushing onward, I will keep praying for you and I encourage everyone who sees this to pray for Willy as well. Peace.

  • @chopsuey69
    @chopsuey69 Рік тому +2

    Thanks for sharing Willy, take care man.

  • @ClintonFlinton
    @ClintonFlinton Рік тому +2

    Hey Willy 👋.
    You're as amazing as a person can be. And seeing how you're keeping "the control" of things is such an inspiration. You're absolutely a legend. I've been struggling with a lifelong disease myself for some time now myself..
    Sorry for the directness, though may I ask, nobody has ever suggested "Proton therapy" or proton beam therapy..? It's very recent, the past 5-10 years only whereas it's been used in cases much like yours, and with great results. And as its something far away from chemo, you can keep doing it forever. There's no side effects as long as the surgeons are using it properly.
    All the best William. Always glad to see your uploads. Truly one of the most inspirational people online and worldwide.

  • @gmamah9559
    @gmamah9559 Рік тому +2

    Thank you. I was curious where you'd gotten your expertise.

  • @derekpb6394
    @derekpb6394 Рік тому +1

    Thanks for the follow up. It is good to not only have the community know but for you to do this... You are an Amazing man and yes those seeds you have planted will give shade in the future.
    My best to you and yours

  • @FlyingEagle41
    @FlyingEagle41 Рік тому +1

    We all love you Willy, stay strong. Prayers sent.

  • @jjducharme1
    @jjducharme1 Рік тому +1

    Thanks for sharing. I think the worst thing of dealing with cancer is waiting for results - always waiting for results with your thoughts.

  • @crystalclear6661
    @crystalclear6661 Рік тому +1

    That’s the Adelaide health system for you !! my mother passed away she lived in Adelaide, Elizabeth and I’m telling you the healthcare system there is shocking. I truly believe she would still be alive if she was able to come to NSW.
    I’m so sorry that you’ve gone through this but what you’re doing and how you’re living your life is amazing!!
    I just want to say though I absolutely love people from SA are used to go there every year when my mum lived there and I used to have the best time going out to all the clubs like HQ Glenelg like the crown I think it’s called loved it.
    I must say you’re really inspirational the fact that you just do so much and you live a life you know knowing that you are not going to probably be able to be here for a really long time it’s just amazing and you’re an amazing amazing person I just hope that you get everything that you need out of life and you stay here as long as possible.

  • @slapman7646
    @slapman7646 Рік тому +1

    Hey Willy.
    I’m sure it’s tougher for you than you let on, though you’re clearly a strong man and very capable. Coping very well with the tumour whilst making unforgettable and informative videos.
    I was a carer for four years for my mother who was diagnosed with grade 4, she opted for the surgery and well, she did manage to get back to the point where she could function again.Took a lot of work! Though From my experience I do think you made the right choice in keeping yourself functioning and doing what you do and doing it so well.
    But yeah, for what it matters I respect and admire you sir.

  • @BRADLEY856
    @BRADLEY856 Місяць тому

    Flying to Europe is 4:12 the funniest thing I’ve heard in years. You’re a good bloke mate

  • @sninstall
    @sninstall Рік тому

    Sorry to hear your prognosis. Love the videos. I am a cancer survivor and had 35 x radio sessions and 3 x high dose chemo for HNC which pales in comparison to your situation. Let's hope there is some breakthroughs in chemo for your case and gives you plenty of quality years.

  • @Mat-threw
    @Mat-threw Рік тому +2

    No doctor or prognosis can put an expiration date on your life. Keep it up!

  • @rockymountainmanrmm8850
    @rockymountainmanrmm8850 Рік тому +3

    You are an inspiration Willy, I wish I had your mental strength.

  • @krisvette5874
    @krisvette5874 Рік тому

    Brilliant overview from the personal view to the clinical perspective to the healthcare systemic disfunction to life management. Total wisdom.

  • @francissonnyunmeopa8434
    @francissonnyunmeopa8434 Рік тому +2

    All well said brother and also well received. The more we do good things with no matter what cards we are dealt in life, the better we are as people. You are doing that in spades bro, be cool and keep on ‘shooting the breeze’. I’ll listen.

  • @darnedghost2008
    @darnedghost2008 Рік тому +3

    Wish you all the best, incurable things sucks I have Multipel Sclerosis. Just have to fight it as best you can. You are inspirational and your reporting are world class shit! Love it! Cheers from Sweden!

  • @Chiboza
    @Chiboza Рік тому

    Listened your story with tears… I was moved by your genuine and shining personality. Thank you so much for sharing your time with us.

  • @si1az0
    @si1az0 Рік тому +1

    Willy! You hands down have the best interviews and have helped far more people's understandings of what reality is like than you could imagine. Much love from America, keep it up!

    • @si1az0
      @si1az0 Рік тому

      also both of my parents have had cancer and one still has it so just know that you are not alone, f cancer.

  • @noproblem2big337
    @noproblem2big337 Рік тому +2

    Best wishes for a life full of vitality for as long as possible... and the strength to deal with whatever life dishes out💪❤

  • @donnys2965
    @donnys2965 Рік тому

    hi from Canada, thanks for sharing. As someone with epilepsy and a TBI i can feel your struggle. In 2014 my TBI set me back many years. I wasnt even 20 and my manhood took a huge hit. No one wants to feel worthless or even worse feeling like a problem. Best of luck willy

  • @knots2524
    @knots2524 Рік тому +2

    I get headaches with relative regularity. Once or twice it was to the point of vomiting but usually very minor. Was really sweating this one till editing willy popped up 😂😂.

  • @Tom_Monahan
    @Tom_Monahan Рік тому +2

    Love you Willy! God bless you.

  • @kwyu
    @kwyu Рік тому

    I can't imagine how rough this would be for you bro but it makes me very happy to see this hasn't dragged you down & let it ruin you your an inspiration mate !

  • @tiitsaul9036
    @tiitsaul9036 Рік тому +2

    Dude, your honesty and openness is inspiring.
    Hey did receive my email couple of weeks ago.

  • @moniquem783
    @moniquem783 Рік тому

    Blessed is he who plants trees under whose shade he will never sit.
    Or
    A society grows great when old men plant trees in whose shade they shall never sit.
    I like the first variation better. I got worried when I saw the title, thinking something had changed dramatically. Glad it wasn't that. I've seen your other video about this but I still hung on your every word. There was a lot extra in this one too. You are inspiring Matt. Raising all that money to help others is incredible.
    My Dad did a trial of a new chemo drug for his brain tumour back in 2012. I wonder if that was the drug you were on. I don't know the name of it, only that they were doing the trial in Melbourne and pulled strings so he could have it done in Geelong so they could be based at home with family around. It didn't work for him.

  • @arsefook
    @arsefook Рік тому +1

    Sending my love....you are such an incredible man. X

  • @UnpredictableTony
    @UnpredictableTony Рік тому

    I have been here since you first told us, and it was inspiring and sad, I have prayed for you many times. And have followed you since back then. Bless you.

  • @SteveWalkey
    @SteveWalkey Рік тому +1

    No disrespect to Doctors Willy Bruv, but nobody knows everything and you live your life just the way you bloody well want to! To me, that seems like the best way forward anyway, wishing you well Bruv, from the UK. 🇬🇧

  • @crisdesousa7195
    @crisdesousa7195 Рік тому +1

    I’m glad at least you got the headaches taken care of.

  • @MSWeaponsChannel
    @MSWeaponsChannel Рік тому +3

    I don't know how you feel about god but I paused this video in the middle and preyed for you. Been following your videos since Feb 24.

  • @brokenpines8491
    @brokenpines8491 Рік тому

    Praying for you Willy,
    you have an amazing story and are doing great things with your life. My son just finished 6 treatments of chemo for large B cell lymphoma in his jaw. He has been lucky as his last scan was clear and the chemo did not make him sick. He will see the cancer Dr. in three months. Attitude is everything.

  • @fartsyfloxy855
    @fartsyfloxy855 Рік тому

    How do you feel now, Willy? Seem well but could be plowing through misery to get the job done.
    I so, so value you and all the contributions you've made to our lives! Truly 1 in 8 billion🥰🤗!

  • @AidanandAssociates
    @AidanandAssociates Рік тому +4

    Wow mate such an incredible story. Your passion for life and genuine care for people comes across in every video. Much love my brother you are doing incredible work and are making thousands of people smile every single day

  • @theneurologist1
    @theneurologist1 Рік тому

    I fully understand exactly what you're saying. You're an amazing individual and I'm glad to have found your channel! Thank you for everything you're doing!
    It's one thing seeing the same patient every once in a while, and to wonder how they're doing between appointments.....but to actually follow the life of someone making the best of their time, is magical in a way.

  • @Madmaximus1000
    @Madmaximus1000 Рік тому +4

    Willy you're an inspiration to me. And I just want to say ultimately, we’re all dead men, sadly we cannot choose how, but we can decide how we meet that end in order that we are remembered as men. Always sending you lots of love and strength, cause you're the legend in my lunchbox mate. And I just want to say thank you brother for all your hard work and effort you've put into this 💪🇦🇺🇺🇦 will never forget 🙏 Happy days Bro

  • @peripheralparadox4218
    @peripheralparadox4218 Рік тому +2

    No one would ever have a ‘death party’ for a woman. Goes to show stoicism is truly a masculine virtue.

  • @Jackb8296
    @Jackb8296 Рік тому

    Mate Keep doing what you’re doing smashing out the quality videos! Stay strong brother

  • @xtctrader1467
    @xtctrader1467 Рік тому

    Thank you for giving the background to your illness.
    Keep up the great things you do for others.

  • @myotahapeaofbabylon6510
    @myotahapeaofbabylon6510 Рік тому

    It's good to know we walk the earth at the same time. Happy travels brother man.

  • @lukeday2375
    @lukeday2375 Рік тому +2

    Thank you for sharing mate. Honestly how are you doing now? You seemed to so open and calm explaining your story. I don’t really believe anyone comes to terms.
    Keep living large mate, my heart goes out to you and the family

  • @Alan_Watkin
    @Alan_Watkin Рік тому +2

    My Father had a one in a similar place but on the left controlling side, but his doctor never sent him for a scan our local hospital back in late 80s UK didn't have an MRI back then, but my dads did give him symptom's and from time to time he would collapse and it would have a stroke like effect so his doctor put him on stroke medication and he took this for about 9years i think, until while ill again needing an ambulance by chance he was taken to a much bigger hospital, given an MRI and told he had never had any stroke at all and it was a massive tumer causing pressure inside his skull, i was only about 16 while this was happening so my memory of the full details isn't great but somewhere around now they decided to try and remove it, which left him with no use of his left side, my dad used to be an active guy he was an army mechanic until his early 20s and served out in what was then Malaya after that he worked as a motor bike mechanic, he raced bikes had more trophies than the house had space, but he died age 57 having spent the best part of 10years in a wheelchair in an old folks home, so from the point it got so big it was out competing his brain for space he got around 20years half on medication that might have even been making him worse, half stuck in a chair with people 20-30years older than him, so make the most of what you've got,, always live your life to the fullest

  • @Rusty_shackleford
    @Rusty_shackleford Рік тому +4

    Willy, I love you bro. I can empathize, I had a really bad combat wound from Iraq fall apart recently and the neurosurgeon presented me with crap options and asked me what I wanted to do. I felt the same, like what do you mean what do I want to do?
    I'm on neurosurgeon number 3 and he's fixing it, but the orthopedic surgeon is arguing with him right now 🤦‍♂️🤦‍♂️

  • @Huwie73
    @Huwie73 Рік тому

    Keep on, keeping on! Keep fighting fella. I’d rather have a full and condensed life than a long drawn out existence.

  • @jgriffin282
    @jgriffin282 Рік тому

    It gives me comfort to know that this world is not all that. The next one that our consciousness goes to is way better. This is just a temporary blink of an eye for souls. We never die, we just go to an amazing other place.