my life expectancy

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  • Опубліковано 22 тра 2018
  • hi guys! sorry I've been MIA, this video explains why...
    / claire.wineland
    / clairesplacefoundation

КОМЕНТАРІ • 7 тис.

  • @mayamwww
    @mayamwww 5 років тому +18380

    In case you guys don’t know: Claire had passed away September 2nd 2018. She received her transplant but then suffered a massive stroke. She was put into a medically induced coma. She was taken off of life support September 2nd 2018. Rip Claire, you are now free from this horrible desease.

    • @Aurora-sz8by
      @Aurora-sz8by 5 років тому +127

      What happened with the lungs? Did they take them off again or she died with them?

    • @Redmonki184
      @Redmonki184 5 років тому +229

      @@Aurora-sz8by I'm not 100 percent sure, but she probably died with the lungs she got...

    • @Christine_990
      @Christine_990 5 років тому +293

      @@Aurora-sz8by she was an organ donor as well so I'm sure they went to someone else if they were salvageable.

    • @jiannarae28
      @jiannarae28 5 років тому +12

      Jungkooks banana Milk Oh ya I heard from inside edition...

    • @jpvlogs9388
      @jpvlogs9388 5 років тому +65

      why is she still uploading tho

  • @hannahnicole36
    @hannahnicole36 4 роки тому +11503

    UA-cam is recommending this to me in 2020? sad reality check

    • @lexbroken8101
      @lexbroken8101 4 роки тому +141

      Recommended to me 3 days after you found it, it broke my heart watching it and destroyed the broken pieces after reading the comments. May she rest in peace.

    • @Make-Asylums-Great-Again
      @Make-Asylums-Great-Again 4 роки тому +5

      Hannah Nicole just got this.

    • @rainbowdeathhearts1466
      @rainbowdeathhearts1466 4 роки тому +13

      I know wtf UA-cam

    • @thatsodiesel
      @thatsodiesel 4 роки тому +5

      I know. I cant even deal. I miss this girl 😔😔

    • @roguenz9848
      @roguenz9848 4 роки тому +22

      I think one of the things I now find so heartbreaking about Claire's journey is she got SO CLOSE to the time where a real breakthrough was made. Seeing other people with CF have such incredible results with Trikafta is amazing but I often think of Claire and all the others who missed their chance, such is life but it still sucks.

  • @annetteespinoza842
    @annetteespinoza842 4 роки тому +7303

    She was pretty, wise, and had a badass voice.

  • @norakennedy4670
    @norakennedy4670 4 роки тому +6342

    So she died 4 months after this video. I cannot imagine knowing I had less than a year left. She was extremely brave.

    • @thelast3553
      @thelast3553 4 роки тому +151

      We may only have less than a month to live right now. Do what is pleasing to God.

    • @norakennedy4670
      @norakennedy4670 4 роки тому +120

      @@thelast3553 we are not all going to die in a month and what a wonderful god we have for the coronavirus.

    • @feralhound23
      @feralhound23 4 роки тому +79

      The Last do what is pleasing to yourself and the ones around you, whom you love and care about.

    • @b1emb4b3y6
      @b1emb4b3y6 4 роки тому +13

      @@thelast3553
      why?

    • @thelast3553
      @thelast3553 4 роки тому +5

      @@b1emb4b3y6 If I say it it will just get deleted because it's true.

  • @Dans.channel4me
    @Dans.channel4me 4 роки тому +6371

    I just discovered you and you're already gone. You were amazing. Rest in peace Claire.

    • @ethyumeko7381
      @ethyumeko7381 4 роки тому +10

      SayTanNic 666 :-0 same Rest in Peace

    • @godschild9997
      @godschild9997 4 роки тому +9

      Rest in peace Clare

    • @dommidavros2211
      @dommidavros2211 4 роки тому +14

      Already gone???? Please tell this poor girl’s still alive!! She’s getting a lung transplant so let’s keep our fingers crossed! Don’t write her off just yet!!
      She’s still in her early 20’s and life expectancy is over 40 these days!

    • @Dans.channel4me
      @Dans.channel4me 4 роки тому +48

      @@dommidavros2211 she died last year.

    • @lynkent677
      @lynkent677 4 роки тому +5

      Sometimes we discover others strength when ourselves at a time when needed!....SayTanNic 666...#John Lennon...Give Peace A Chance!!

  • @connorfincham6945
    @connorfincham6945 4 роки тому +4060

    I'm gonna start appreciating my life more.

  • @moe.4490
    @moe.4490 4 роки тому +2793

    The UA-cam algorithm is cruel. I never knew about her before now, but I hope she’s found rest and peace.

    • @evelynmockridge3337
      @evelynmockridge3337 4 роки тому +3

      cruel? Bruv

    • @moe.4490
      @moe.4490 4 роки тому +3

      @@evelynmockridge3337 yes?

    • @sluvvr
      @sluvvr 4 роки тому +3

      Yeah sad,....

    • @dubbedanimeisgay6480
      @dubbedanimeisgay6480 4 роки тому +22

      I just rediscovered her again. It hit me like a brick when I saw all the comments that she was dead because the last time I was on her channel she was talking how she was getting healthier and she was so optimistic :/

    • @zejdland
      @zejdland 4 роки тому +1

      It doesn't think.. it has no empathy... it is a robot...

  • @graceoyama2047
    @graceoyama2047 4 роки тому +1560

    i wasnt aware she's been gone for almost 2 years now... :(

    • @davidadams2395
      @davidadams2395 4 роки тому +32

      I know, it's sad. One can't say she didn't make the most of the time she was given. They say people who are terminal become wiser through introspection, and Claire was an excellent testament to that thought.

    • @silverwolf2643
      @silverwolf2643 4 роки тому +11

      @@davidadams2395 Because at that point everything we generally care about loses all meaning. In front of death and not knowing what happens next. You start questioning what's the point of everything.

    • @amyureel2769
      @amyureel2769 3 роки тому

      💛🙏🏻💛

  • @jasoncatron1039
    @jasoncatron1039 4 роки тому +1814

    This sucks. I watched the video and really liked this girl. In my mind I was really rooting for her and then I go to the comments to see she has already died.

    • @user-cv2vo5wn9m
      @user-cv2vo5wn9m 4 роки тому +73

      life is so unfair, she didn’t deserve to leave this world so soon

    • @CheatGang
      @CheatGang 4 роки тому +18

      It happened for a reason. Imagine still having this disease during this time

    • @gracesnowflake2344
      @gracesnowflake2344 4 роки тому

      Hi I love you and I miss you every day.!

    • @shhs1227
      @shhs1227 4 роки тому +9

      @Angel Izazaga her living would have been better. immunocompromised or not there would have been a chance that she can't even get the virus, or would be an asymptomatic carrier. and if she did get it. yeah it would be likely she'd die because she's would already be sick. but even then there's still a chance of recovery

    • @Firefox-xr7mp
      @Firefox-xr7mp 3 роки тому

      RIP

  • @anastasiagirl1342
    @anastasiagirl1342 5 років тому +4419

    She passed away two days ago. I'll miss her and her wisdom

    • @ValHeartNDHeartSuqquNoHeartPat
      @ValHeartNDHeartSuqquNoHeartPat 5 років тому +9

      anastasiagirl1342 ????😰😥

    • @bee4907
      @bee4907 5 років тому +133

      @@ValHeartNDHeartSuqquNoHeartPat
      During a lung transplant she had a stroke from a blood clot.

    • @ValHeartNDHeartSuqquNoHeartPat
      @ValHeartNDHeartSuqquNoHeartPat 5 років тому +36

      bee that’s terrible

    • @ValHeartNDHeartSuqquNoHeartPat
      @ValHeartNDHeartSuqquNoHeartPat 5 років тому +31

      bee I feel so bad for her little sister.. her family

    • @brianbommarito3376
      @brianbommarito3376 5 років тому +137

      Apparently, the stroke didn’t kill her right away. She was in hospice for a short period, and I guess when her condition became “brain-dead” (that is, she would live but only in a coma and on life support), her family decided to turn it off and let her die instead of prolonging her suffering. It is very sad, I’ve only known her since yesterday, when UA-cam recommended her channel to me. By this point, Claire had been dead for 3 days. I feel bad that I didn’t know her personally, nor even through the channel while she was alive. But Claire is an amazing and beautiful person, and I could tell that from the first video. My sympathies to her family, I too have lost loved ones to illness, and it is an indescribably painful experience, and how powerless one feels to stop it from happening. And when the worst happens, your feelings are a mixture of intense grief and relief, because you know your beloved isn’t suffering any more. And Death isn’t the complete end, it’s only a temporary setback. You will see Claire again, in a better world, and she won’t be sick when you see her. Until then, just try and live your life to the best of your ability, and make choices that would make Claire proud.

  • @cheezyfilmsproductions1842
    @cheezyfilmsproductions1842 4 роки тому +1388

    21. She was 21 when she died. The fact that there are so many who die before ever really experiencing life is devastating. And living with the knowledge that you have an expiration date. I can't imagine how it would feel to know when I would die.

    • @pinkfluffyunicorn1899
      @pinkfluffyunicorn1899 4 роки тому +59

      Cheezy Films Productions I’m turning 21 in a few months. It’s not the time to die, it’s the time when life starts. I cannot imagine knowing my life is to end in a few months at just 21...

    • @pinkfluffyunicorn1899
      @pinkfluffyunicorn1899 4 роки тому +18

      Emmie Conner I’m very sorry to hear that, that’s tragic. It makes me appreciate the fact that me and the people around me are well and healthy. But anything can happen anytime.

    • @evanw2195
      @evanw2195 4 роки тому

      Okay come on everyone dies, it’s really not that special

    • @wonderlandian8465
      @wonderlandian8465 4 роки тому +1

      @Emmie Conner I'm so sorry to hear that

    • @LuckyLuch1
      @LuckyLuch1 4 роки тому +4

      While I agree, we all technically have an expiration date, and could go at any time. In some cases having to face your mortality can force you to live your life to its fullest. Some can live more in 20 years then many do in 80.

  • @fatima-purposefullybeautif5950
    @fatima-purposefullybeautif5950 3 роки тому +277

    To Claire's parents. I am a 57 year old women that suffers from PTSD and depression. When I feel life is getting too much for me I watch your daughters videos and her love for life makes me question my suicidal tendencies. So even within death you daughter is saving lives and an inspiration. I hope you never take her videos down. Thank you. You were so blessed to have such a beautiful soul in your presence

    • @GeeBri
      @GeeBri 2 роки тому +3

      ♥️♥️♥️♥️

    • @shuvolinamukherjee6217
      @shuvolinamukherjee6217 2 роки тому +5

      Yes same my problems seem mineal in comparison and her life her being is so inspirational

    • @lukasz1154
      @lukasz1154 2 роки тому +4

      @Dude Juststop you don’t know anything about her life though? And yes, the brain is an organ too, it can become extremely fucked up too. Your brain manifest your reality, it can lead to some pretty miserable realities for some people. And she never claimed to have a “level up”, she quite literally stated she comes here to remind herself of how lucky she is. Ffs!

    • @lauraska95
      @lauraska95 2 роки тому +3

      Beautiful comment. Sending you love ❤️

    • @sonia15702
      @sonia15702 Рік тому +2

      Claire wanted to live more than anything, but she knew and was ready for the time that took her life post transplant. She didn't regain consciousness and her family were there when she passed.
      The biggest gift we can give Claire and all with CF is to become organ donors !

  • @experiment0003
    @experiment0003 4 роки тому +486

    oh what we take for granted

  • @_______6398
    @_______6398 6 років тому +368

    “Sorry for looking bummy” wtf she looks amazing...

    • @iarrcsim2323
      @iarrcsim2323 6 років тому +7

      You're right. She looks like a hot bum.

  • @sammargerum7283
    @sammargerum7283 4 роки тому +770

    I miss my girl... when people ask that “if you could have dinner with any 3 people, alive or not” question, she is always at my table

    • @gem.444
      @gem.444 4 роки тому +45

      JOHN MASTERSON you know that’s very racist and she wasn’t any of your girls she was her parents and families girl so just stop

    • @gem.444
      @gem.444 4 роки тому +37

      JOHN MASTERSON why are you being so rude I was just stating the facts

    • @gem.444
      @gem.444 4 роки тому +41

      JOHN MASTERSON well I’m 13 and I don’t even play with dolls and honestly your just a low life trying to ruin peoples day so no I won’t 😁

    • @gem.444
      @gem.444 4 роки тому +39

      JOHN MASTERSON it was a typo and stop embarrassing your self by trying to act cool by swearing in every comment you make and I won’t get mad or annoyed at you just to make you more angry because I don’t need to be sad for people like you 😂🙄

    • @ghoste_girll
      @ghoste_girll 4 роки тому +39

      @@gem.444 lmfao fr he lookin like a whole ass clown insulting you

  • @idiotsponges7987
    @idiotsponges7987 4 роки тому +825

    She had a badass voice that you’d hear in an 80s action movie

    • @wyldeyouth
      @wyldeyouth 4 роки тому +13

      Another dumbass comment. Jeez

    • @wyldeyouth
      @wyldeyouth 4 роки тому +5

      @T K How insensitive do you have to be to say something like that to a mortally ill person? You are as thick as the OG poster. The hell is wrong with people these days..

    • @FurianFlame129
      @FurianFlame129 4 роки тому +35

      @@wyldeyouth she always took it as a compliment. When she would live stream people would tell her that all the time and she liked it. Don't get offended for other people ❄

    • @Minmin._.
      @Minmin._. 3 роки тому +12

      _Actually her voice sounds deep and hoarse from the disease, people who generally have diseases that affect the lungs have that type of voice._

    • @ashley-sv4lo
      @ashley-sv4lo 3 роки тому +1

      I have like the same voice :)

  • @superholly
    @superholly 6 років тому +2822

    When I die I’m donating ALL MY ORGANS.
    You are such an inspiration, Claire!
    Love you!!!
    ❤️

    • @theteasweetie1194
      @theteasweetie1194 5 років тому +7

      superholly I want to too

    • @MrRazorblade999
      @MrRazorblade999 5 років тому +62

      Darric P.L Wtf? You have no idea what you're talking about.

    • @grace_2904
      @grace_2904 5 років тому +111

      Darric P.L they take your organs when you’ve experienced brain death. This is where your brain is completely dead and unable to work. There’s no true recovery from this, it just like normal death except your heart is still beating. They can take your organs several hours after brain death, and they can take your tissues, which fall under organ donation, within about a day after total death. Please don’t perpetuate false conspiracies about organ donations, as there is already a shortage of organs and several misconceptions regarding organ donation. Actually look into what organ donation truly means, as you have no idea how the falsehoods that you’re sharing are actually hurting people in need

    • @kirstenpoops7970
      @kirstenpoops7970 5 років тому +8

      😭😭😭 She's gone

    • @majooleonmagnani5246
      @majooleonmagnani5246 5 років тому +4

      @@kirstenpoops7970 I can't believe it

  • @JennyNicholson
    @JennyNicholson 6 років тому +2886

    Claire I've followed you for so long and my heart was sinking at this update. I know a lung transplant is by no means simple or a cure-all and is its own excruciating process with its own concerns but I think it's so brave that you're going for it, and I really hope it gives you back the autonomy you deserve

    • @TomHanksFan84
      @TomHanksFan84 6 років тому +59

      My friend with CF got a transplant a few years ago and it was so smooth and incredible and he’s thriving right now. There’s hope, plenty of hope, that you could experience the same thing! Praying for you right now, girl.

    • @aninarohr9205
      @aninarohr9205 6 років тому +9

      Jenny Nicholson yes, we really hope that and pray for you Claire❤️ Thankyou for everything you gave to this world, it’s kina time to just recieve now. To recieve hope and love and rest. Love you
      Anina Joy

    • @hariprasanthh2600
      @hariprasanthh2600 5 років тому

      So she have hope? Right

    • @helenfaith1508
      @helenfaith1508 5 років тому +8

      HARRY H she passed away two days ago

    • @kandiwhite4655
      @kandiwhite4655 5 років тому

      She died 8-26-18.

  • @Christian-do3vk
    @Christian-do3vk 4 роки тому +547

    I swear life is so unfair.

    • @yamirryayo20
      @yamirryayo20 4 роки тому +24

      It's true life is extremely unfair there are a lot of people having the time of their life and others wishing that they would die so the suffering stops. you just have to accept wathever life brings to you.

    • @mojo6112
      @mojo6112 4 роки тому +3

      The problem is people have lost their reason behind living. God always takes the blame because people forget he's the most just. It really sucks what happened to her, but who knows for sure she might be having the time of her after life in heaven and most of us here are living a mediocre life

    • @Christian-do3vk
      @Christian-do3vk 4 роки тому +2

      @@mojo6112 I can't agree nor disagree. As a nonbeliever I don't feel the need to blame God. But i understand why people do. But you're right, people take life for granted until it's too late.

    • @Christian-do3vk
      @Christian-do3vk 4 роки тому +3

      No judgement here. Honestly sometimes i wish i could believe because i know it is comforting for many. I just can't. Sometimes that's all people have left, faith.

    • @mojo6112
      @mojo6112 4 роки тому

      @@Christian-do3vk you can't? Why?

  • @gibbler_
    @gibbler_ 4 роки тому +702

    I had a girlfriend with cystic fibrosis. She was one of the most amazing people I’ve ever met. We bonded over our illnesses at first because I have severe hemophilia but she was funny, and kind, and one of the most beautiful people I’ve ever seen. She went to college, played in a band, started a scholarship named after her grandpa, she was so much more than her illness and if you have cystic fibrosis just know that you’re more than your illness too.

    • @aloeleaf
      @aloeleaf 4 роки тому +5

      Nate Stewart she passed away 4 months after this video :(

    • @johnmora5830
      @johnmora5830 4 роки тому +14

      What happened to your gf?

    • @gibbler_
      @gibbler_ 4 роки тому +92

      @@johnmora5830 we broke up. i know shes married and happier than she ever was with me. not sure what her health is like now but i know shes alive

    • @jpscreativedesigns
      @jpscreativedesigns 4 роки тому +6

      yes i am :)

    • @gibbler_
      @gibbler_ 4 роки тому +6

      @@jpscreativedesigns you arent her

  • @alicegordon4415
    @alicegordon4415 6 років тому +876

    Never apologise,
    Especially for those sunglasses they’re fabulous xx

    • @ranchugoldfish3822
      @ranchugoldfish3822 6 років тому +3

      Alice Gordon
      I to love her glasses. I thought they were a fasion statement not eye protection.

    • @alicegordon4415
      @alicegordon4415 6 років тому +3

      bill hundt ugh same I wish I could pull them off they’re pretty snazzy

    • @Jackson_Hts_Mr_Randy_Watson
      @Jackson_Hts_Mr_Randy_Watson 6 років тому +3

      Right? Glasses are great.

    • @mertunsal882
      @mertunsal882 3 роки тому

      Do you know where can i find them??

  • @hdfuwhfjkwehfwiefhwe
    @hdfuwhfjkwehfwiefhwe 6 років тому +1906

    Claire, whatever happens - please know that you have made a lifetime of a achievements already and changed so many people's view and perspective of the world. Myself included.

  • @chipchop9067
    @chipchop9067 3 роки тому +137

    I know Claire is having a blast everyday in the afterlife. No tubes and endless friends. We miss you so much down here but only the angels truly deserve you.

    • @tigershenanigans6878
      @tigershenanigans6878 3 роки тому +26

      @@candyman6905 Thank you for dying and returning to tell us that afterlife doesn't exist. We humble people of Earth appriciate it deeply.

    • @ZyliceLiddell
      @ZyliceLiddell 3 роки тому +3

      😇

    • @Neo5GT
      @Neo5GT 2 роки тому +3

      Beautifully said

    • @Neo5GT
      @Neo5GT 2 роки тому +1

      @UCkTpm76juIRoQhDT-vlgQow you idiot, learn from good beautiful people like Claire and the OP. Why you being a loser and wasting your own time and everybody else’s trolling. You’re obviously an unhappy person and I’m sure you have your reasons but turn your life around. Quit lashing out at others and improve yourself - start now

  • @Dopegurldesss
    @Dopegurldesss 4 роки тому +307

    This showed up in 2020 and I’m heartbroken 😔

  • @stacielliott3311
    @stacielliott3311 6 років тому +665

    Because of you, I just checked my organ donor status. Turns out I wasn’t registered (didn’t complete a step).
    Because of you, I’m now an organ donor.
    Thank you.

    • @IfYouMeetAWolf
      @IfYouMeetAWolf 6 років тому +7

      Go you! :D

    • @claudiasally6496
      @claudiasally6496 6 років тому +7

      No, thank you.

    • @zelo533
      @zelo533 6 років тому

      Claudia Sally why not?

    • @maxmustermann1455
      @maxmustermann1455 6 років тому +18

      Nobody wants my organs (or blood) because of T1D, otherwise I would be a donor.
      Seriously no clue why people would be against being a donor. It just should be the other way around. Everybody being a donor by default unless they opt out for religious reasons or whatever.

    • @Tiffytiff93
      @Tiffytiff93 6 років тому +2

      Welcome to the club

  • @evil_seagull
    @evil_seagull 5 років тому +1117

    She really seemed to realize all the risks in the procedure. She was beyond her years, an old soul. She helped me alleviate some of my anxiety about death, but I'm still so broken about her passing away. She's made an impact in my life for sure.

    • @dozydoe5245
      @dozydoe5245 5 років тому +17

      I use to cry at the thought of death. It would cause me really bad anxiety too. And she helped me cope with that through her videos and positivity in the face of it all. May she rest in peace. ❤🌹

    • @silverbowftw5225
      @silverbowftw5225 5 років тому

      @@dozydoe5245 aw mannnn D,:

    • @jojox9791
      @jojox9791 5 років тому +9

      She truly was amazing. I believe we are all here for a purpose. Whether it be to help someone, teach someone, whatever our reason....we have a reason. Claire touched so many. Sadly I didn't find her until just this week. I am fascinated by her courage. Her love. Her light!! She is Very bright angel. Of that i'm certain. She is doing everything her earthly body would not allow her to do!! Rip sweet girl. Breathe.....

    • @caribrown48
      @caribrown48 5 років тому +6

      The truth is, people with CF have to grow up really fast. They have to learn to embrace the fact that they are going to die. Until there is a cure, this is the reality of living with CF.

    • @practicalintuition4030
      @practicalintuition4030 4 роки тому

      An old soul? The fuck? Bitch, who taught you that?

  • @lockeddownboxing9904
    @lockeddownboxing9904 4 роки тому +178

    That girl deserved the best for what she's been through. I am CF too, just turned 21 this month. There is no life expectancy for me as I am in a blessfully great condition. My best lung test was 113%, currently I am around 80% but I've been through many infections during the past two years and it is still better than a lot of healthy people. I know I can raise these levels with physical activity and that's why I had 113% because since I remember I've been doing sports. Football/soccer for american readers, basketball, running, swimming, workout, gym, gymnastics, muay thai, bjj, boxing, wrestling and I am still doing to this day and I am in a great condition and shape but I can relate to her feelings and ups and downs and I hope she had her very last moment as she really wanted it to be for that situation. Rest in peace Claire!

    • @mashpotter6158
      @mashpotter6158 3 роки тому +4

      Congratulations 🙏🙏 that is amazing to hear 😁

    • @daleowens7695
      @daleowens7695 3 роки тому +3

      Holy shit dude! How is that possible with CF? I thought pretty much all ppl with CF were like Claire. Were you just "lucky", in the sense that for w/e reason your CF just isn't as bad as others? W/e the reasons, congrats! Keep doing you!

    • @lockeddownboxing9904
      @lockeddownboxing9904 3 роки тому +4

      @@daleowens7695 correct, I am a lucky man but I’ve been doing sports almost my entire life, since I remember. 6 days a week. I was into street workout, running, American soccer, basketball, then I was swimming, doing gym, competing, then I found my true passion which is combat sports. I started training Muay Thai and I’ve been doing it for 7 years now. I did boxing as well, grappling. I cannot really tell but without all this I am almost convinced I would be in a condition 10x worse.. the first 6 months of my life I spent in hospital with not so much positive predictions, I spent almost every Christmas alone (only parents were coming) in hospital due to infections, then I started doing sports, had 113% fev. Life can be beautiful with a little luck and hard work. I am pretty small naturally so sometimes people when they see me they worry if I can grab a box of 20kg for example meanwhile at the age of 15 I was deadlifting 120kg weighing around 55kg. I have developed top strength for my body and top endurance, I did marathons, many cool things for an “average” person. I love it and I’m only at the beginning! I also speak fluently 3 languages. I’ve done many jobs you’d do only with a diploma YET I don’t see anything special about me in this context, many people are capable of such things. The thing is you need to find your style and keep your head up! I know other people can do better than me but I expect from myself and I work for it, it’s not a blessing necessarily - I’d say it is getting to really know yourself and do what you do.

    • @MythicBricks
      @MythicBricks 3 роки тому +2

      @@lockeddownboxing9904 wow dude I'm impressed. keep it up and stay strong

    • @jessicah3450
      @jessicah3450 2 роки тому +1

      How do you breathe well enough to do all of that? 😳 Unfortunately for many of us with chronic/terminal lung diseases, our bodies can't handle that much exercise, and it is not a choice. But good job for you that you can!

  • @CaseyAngelicaHardy
    @CaseyAngelicaHardy 4 роки тому +128

    The inner strength she had is so inspiring. Though she was dying and was probably terrified she still smiled and had such a positive attitude regardless.

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому +1

      Casey Hardy a more important thing to ask. Does my polo shirt look good? Or too many buttons undone?

    • @CaseyAngelicaHardy
      @CaseyAngelicaHardy 4 роки тому +1

      Steven you dimwit.

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому +1

      Casey Hardy imagine we were both kidnapped and locked in a small cage together with no food or water. We’re both stuck in there getting very hungry and thirsty, what would you do?

    • @CaseyAngelicaHardy
      @CaseyAngelicaHardy 4 роки тому

      Steven wth?

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому

      Just it happened to me. I got kidnapped along with a woman, we spent 5 days in that cage got soo damn thirsty it got unbearable. We both wore polo shirts, no food either.

  • @niamhdocherty5508
    @niamhdocherty5508 6 років тому +334

    I have depression and you being so positive helps me to try and see the world as something beautiful. You are an inspiration to me, I remember finding you out years ago and I’m so glad I found your new channel💓

    • @stratchic
      @stratchic 6 років тому +4

      Same!

    • @neitha4
      @neitha4 6 років тому +9

      Niamh Docherty exactly, That's why I love technology in this way we can be connected and having help from people so far away they influence us even stronger then people around us!

    • @thenerrdpit7441
      @thenerrdpit7441 6 років тому

      same!

    • @dovestone_
      @dovestone_ 6 років тому +1

      Same

    • @blubbblubb6239
      @blubbblubb6239 6 років тому +7

      same..! I also have depression and see Claire as an huge inspiration and role model! She gives so much hope and lives her life! I really try to see things like her sometimes...

  • @hannahrenahouston5919
    @hannahrenahouston5919 6 років тому +202

    You've spent these 21 years of your life helping other people. Watching your videos definitely helped me, and so many other people and no matter what happens in the future I'm glad you get to know that your life has really made an impact on the world and will continue to do so long after you're gone 💜

  • @rayyanshah1267
    @rayyanshah1267 3 роки тому +61

    Angels like her live a small life and inspire for an eternity.

  • @mariasalales631
    @mariasalales631 4 роки тому +64

    It's always the dying folks that wake the rest of us and remind us to start living! We are all indeed very fragile beings, each day is a miracle. RIP lovely soul.

  • @kikicorleone3525
    @kikicorleone3525 6 років тому +322

    It's really good seeing you again.

  • @brandonjohnson3558
    @brandonjohnson3558 4 роки тому +433

    When you find a new UA-cam channel you fall in love with and didn’t realize she had already passed. Rip.

  • @zer0chill241
    @zer0chill241 4 роки тому +87

    UA-cam shoves this into my recommended 2 years to late. Rest In Peace

  • @alexsevilla4974
    @alexsevilla4974 3 роки тому +35

    Whenever I feel like life’s not worth living or have no hope for the future, I always watch Claire’s vids and somehow they give me hope.

  • @livvjanee
    @livvjanee 6 років тому +549

    I’ve got CF I’m having such a hard time at the moment, they’ve just found 3 infections so just started my IVs today. I used one of your videos in my awareness assemblies, you’re an inspiration to all of us!!☀️

    • @Smiley9915
      @Smiley9915 6 років тому +20

      Liv Jane stay strong hope you feel better ! U got it ☺

    • @BamitsSam4682
      @BamitsSam4682 6 років тому +18

      Sending love to you❤️

    • @Maadthreads
      @Maadthreads 6 років тому +14

      Will be thinking about you!! Feel better❤️❤️❤️

    • @pawaniyer2320
      @pawaniyer2320 6 років тому +15

      sending the biggest hug to you Jane
      I'll pray you live forever and make the world stronger with your positivity
      *huuuuggssss* ❤️

    • @PsychicMedium-Patricia.
      @PsychicMedium-Patricia. 6 років тому +13

      🙏🏽🕉🙏🏽💜
      Sending you much love & healing light darling Xx🌈💜

  • @isashisha
    @isashisha 5 років тому +1621

    rest in power sweet angel. you did more good here in your short life than most people who live to be 100.

    • @goldenboyi1989
      @goldenboyi1989 5 років тому +32

      mOST people who live to be 100? stop hating and being vengeful.That statement cannot possibly be true, do you know what most people over 100 have seen and done in their lifetimes? Besides making videos

    • @isashisha
      @isashisha 5 років тому +53

      Five EyeSights shut the fuck up and dont hate on my posts. i can post my opinion wherever i want and NOTHING was being vengeful. MOST people do not care to do the amount of good that she has. she started 3 foundations, wrote a book, went on campaign speechs while carrying her oxygen tank unable to even breath on her own. what the fuck have YOU done but troll videos and leave shitty remarks for people in mourning over losing somebody they cared for? way to go loser. hope you feel awesome about your loser comment.

    • @opiumbrella1367
      @opiumbrella1367 5 років тому +19

      Wow. You call her the names that your actually being. Claire did a ton. Saying she did more than most who get live a full life is not an insult to anyone. Most people just don't touch as many lives as this woman did.
      You are very hipocrytical.

    • @GooFucYourselfSir
      @GooFucYourselfSir 5 років тому +4

      Rest in power.. I like that!

    • @user-Ari00
      @user-Ari00 5 років тому +1

      @@opiumbrella1367 when did i talk to you, just getting in a disgusion your sick! And i can say what else i want I'ts my opinion so i don't want a stupid ass getting in my way!

  • @MeagGallagher
    @MeagGallagher 4 роки тому +144

    I just discovered Claire. Wow. I’m going to take better care of myself. She is still making a difference.

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому

      Meag Gallagher does my polo shirt look good?

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому +1

      Samantha Cole they should it’s short sleeved and unbuttoned

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому

      Samantha Cole that’s harsh. I was kidnapped once for 4 days no food or water, was soo hungry and thirsty I’m still traumatised

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому

      Samantha Cole you should care. I got very thirsty. You should go 4 days no food or water, see if you care then

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому +1

      Samantha Cole I couldn’t drink I was left THIRSTY! I wore this polo shirt as well for 4 days straight.

  • @TysonASMR
    @TysonASMR 3 роки тому +59

    God I loved this girl 😭 I listened to her podcast with Shane so many times. I’ve never heard someone talk about death the way she does. An inspiration. RIP CLAIRE ❤️

  • @CP9_Shino
    @CP9_Shino 6 років тому +453

    Stay strong Claire. Prayers going out to you that you get your lung transplant and it goes well!

  • @homiiciidalkiitten6650
    @homiiciidalkiitten6650 6 років тому +126

    I had a heart valve transplant and I was so scared but yet here I am typing this to you. I pulled through, so will you. Stay strong. You got this.

  • @sirsackolis5203
    @sirsackolis5203 4 роки тому +43

    She looked so stunning in this video, glad she found eternal peace.

  • @rayray2752
    @rayray2752 4 роки тому +32

    This girl inspired me and made me want to live my life to fullest, because it is so so short. Her death hit me like a ton of bricks, but the impact she made on me and millions of others will live on forever. RIP Claire. We love you.

  • @Chilupiano
    @Chilupiano 6 років тому +1169

    Clair I’ve followed you for years now. Words get in the way. Thank you for sharing such intimate details of your life. Love you always. Keep us posted if you can.

    • @bellamclaughlin9721
      @bellamclaughlin9721 6 років тому +3

      same

    • @camnicole900
      @camnicole900 6 років тому +8

      Yadira L. Um...... yes it is

    • @anurse2794
      @anurse2794 6 років тому +12

      Yadira L. Yes it is, the other one started taking her money and treating her badly so she left it. Watch her video on what it's like to die. She speaks about why she left the clarity project. This IS her channel.

    • @anacristinadelrosario
      @anacristinadelrosario 6 років тому

      Mundo Despierto Chalupian! 💜🎉

  • @95TurboSol
    @95TurboSol 6 років тому +3199

    This is why I'm an organ donor, any out there that isn't please consider being one next time you update your license. Anyways, it so nice too see another video Claire! I keep wondering how you've been. I want to see this transplant go well and give you many more years, even though it's not a fix, it gives more time for science to catch up with new treatments. I'll be praying that is what happens!!

    • @Laurinska08
      @Laurinska08 6 років тому +74

      95TurboSol I am too..I just graduated nursing school and had the opportunity to do a rotation in the ICU..and unfortunately had a young person die..but I was able to see how the organs were able to help quite a few people..you can so greatly change or save a life💗

    • @sweetboo1022
      @sweetboo1022 6 років тому +42

      also, it isn't always as easy as marking it on your driver's license, depending on the state you live in. So please go to organdonor.gov and go thru the process depending on your state. I'm in KS and I had to fill out an extra form with witnesses. PLEASE COVER YOUR BASES AND DON'T RELY JUST ON YOUR DRIVER'S LICENSE. Cheers

    • @JessicaHelena1227
      @JessicaHelena1227 6 років тому +31

      I am a donor and make it abundantly clear to family that anything that can be harvested and used is to be so.

    • @fotoschopro1230
      @fotoschopro1230 6 років тому +7

      Most organs go to fat old pigs.

    • @twistedbliss58
      @twistedbliss58 6 років тому +30

      No one has to donate if they don't want to.

  • @lexusgarcia1486
    @lexusgarcia1486 4 роки тому +184

    Did this pop up in anyone else’s recommended :/

    • @nornilamsari
      @nornilamsari 3 роки тому +2

      I see this after 'Five feet apart'

  • @ahoodm8213
    @ahoodm8213 2 роки тому +13

    She was full of hope..why do I cry every time I watch her videos
    You are gone in your body, but you are not gone from our hearts
    Everyone will die and be forgotten, but they are rarely in our memories and hearts like Claire
    peace to your soul

  • @jennamacdonald4596
    @jennamacdonald4596 6 років тому +409

    A family friend who has CF got a double lung transplant, and recently turned 50! Sending love, luck, and well wishes.

    • @christinegraham9069
      @christinegraham9069 6 років тому +7

      Jenna MacDonald wow, that’s impressive. :)

    • @dncviorel
      @dncviorel 6 років тому +13

      Christine Graham Yeah, I'm pretty sure Claire will get to live at least 40 years, she'll probably marry someone, and even have children and such. I'm confident things will turn out much better than she currently thinks.

    • @samanthamcgill1973
      @samanthamcgill1973 6 років тому +12

      That's awesome. My friend Suzanne who has CF got a double lung transplant 13 years ago - she's now 45, just got married last year and is enjoying life to the full. :)

    • @humannature4327
      @humannature4327 6 років тому +1

      Thanks goodness, if they can live, she can live too..i.am.so happy after knowing that there are people living with CF..hooooorrrreeeeyyyyyy, now i have this ray of hope that i can see her live a longer life ,before i read your msg i was so depressed, but now i am bit relaxed

    • @jiminie6788
      @jiminie6788 5 років тому +5

      Sadly Claire passed 🙏🏽❤️ RIP

  • @Auriraka
    @Auriraka 5 років тому +1115

    They said her life expectation was around two years... 20 to 21.. They were right this time.. It's sad

    • @bitchwormpuddin1499
      @bitchwormpuddin1499 4 роки тому +6

      Derrick McAdoo ...wtf

    • @user-yn7ku3dg7b
      @user-yn7ku3dg7b 4 роки тому +1

      Derrick McAdoo i- wtf

    • @booty_hunter4207
      @booty_hunter4207 4 роки тому +1

      @@derrickmcadoo3804 the fuck is wrong with you

    • @dataar7441
      @dataar7441 4 роки тому

      @@derrickmcadoo3804 weirdo. The girl is dead.

    • @Infinity2219
      @Infinity2219 4 роки тому +19

      @S***** sadly it was her time to move from our relm and move to the next relm, where she is sure to be at Gods table of pure souls in heaven.

  • @tylerdurden1663
    @tylerdurden1663 4 роки тому +44

    RIP Claire it’s 2020 I’m still watching this.

  • @lungtransplantnation
    @lungtransplantnation 4 місяці тому +3

    Such a brave young soul. God bless Claire. I watched your story while I was on oxygen and diagnosed with PAH and had to get a double lung transplant. You gave me courage to talk about my health and share it with others as well🙏🏾❤️

  • @jammiebaker4811
    @jammiebaker4811 5 років тому +1520

    I take my life for granted I abuse my body I poison my body I'm a shit I'm going to change my life

    • @shallandavarpainterofsouls9509
      @shallandavarpainterofsouls9509 4 роки тому +128

      you go do that. you are an important person and you can make a change.

    • @kryptoblade501
      @kryptoblade501 4 роки тому +18

      you better

    • @penguin-IDK
      @penguin-IDK 4 роки тому +26

      @@kryptoblade501 dang that got bossy

    • @_bored_wrld
      @_bored_wrld 4 роки тому +63

      dude i also felt like a piece of garbage by watching her in her situation being so determined and comparing it to the whiny ass that i am, its definitely time for some changes

    • @mazzaj89
      @mazzaj89 4 роки тому +2

      @@_bored_wrld same.

  • @1misstae
    @1misstae 5 років тому +952

    RIP Claire. You were truly an inspirational beautiful soul.

    • @christinahester1422
      @christinahester1422 5 років тому +6

      callme_shantenicole did she pass away ???

    • @tconlon251
      @tconlon251 5 років тому +6

      Christina Hester 2 or 3 days ago. Stroke caused by a blood clot 😔

    • @tconlon251
      @tconlon251 5 років тому +1

      Elise Marshall CNN article

    • @nicolettedrewes1064
      @nicolettedrewes1064 5 років тому

      Elise Marshall there are posts on @clairesplacefoundation @meliss.yeager1 @claire.wineland and @john_wineland on instagram

    • @missingmagoolallahhaunaxar1160
      @missingmagoolallahhaunaxar1160 5 років тому +1

      Okay Fr this is so sad, life's too short for the meaningless things you worry about. May she Rest In Peace and may the almighty guide us.

  • @jjthomas2297
    @jjthomas2297 3 роки тому +32

    "I look like a bum.." No sweetheart, you are beautiful..

  • @saintelisaiasthegreat1021
    @saintelisaiasthegreat1021 2 роки тому +12

    It’s so weird, she popped on my recommended, I really liked her and watched almost all her videos. Suddenly I realised that she hadn’t posted for three years. I cried and cried over a person I hadn’t met before. She was an incredible person♥️♥️♥️

  • @pizzelle2
    @pizzelle2 6 років тому +72

    Knowing someone like you is out there in the world makes me a happier person.

  • @Edward-ko9pn
    @Edward-ko9pn 6 років тому +858

    Claire you are not alone in your situation. I too have a terminal illness. I have metastatic Cancer. Oncologist says the Cancer will eventually take my life but also says he does not have a crystal ball so can't tell me for sure when. The one advice that my oncologist gave me was he told me to start living my life now!! So thats what Im doing. In the last two years I have traveled the world and even just recently bought a motorcycle that I'm going to ride all summer long. I am single, alone but I have family and friends to help me through this. Claire I know with your health declining it's hard to still do the things you want to do, however still try to do what you can perhaps with help from others that love you. Solidify your plans for the lung transplant and then let it be and after continue to live your life right now, in the present moment. Cheers.

    • @notsafeformiranda4271
      @notsafeformiranda4271 6 років тому +29

      You probably get annoyed when people call you an inspiration for having an illness, as I do as well, but thank you. My disorders are not terminal for the most part and probably won't kill me, but hearing from others that "you can't let it stop you" helps so much. I'm 16 and want to heal others, so I have been working my ass off despite everything going on to accomplish my goals of becoming a vet. One year from now I will be 17 with my vet tech degree which I'm super pumped about. I also have an internship at a vet hospital which is a lot of physical work so it can be very hard at times, but I push myself. At the hospital, I am surrounded by death. Ironically enough, death has become a large part of my life, and I'm okay with that. On my second day of my internship, my boss and I euthanized a very ill dog. It was incredibly sad and my heart broke for him, but it wasn't hard to do. He was suffering and even he knew it was his time. We all reach that point of acceptance eventually, where we realize that it's the quality of life not the quantity/length. This dog had a joyous, love filled life and was genuinely happy. When he knew it was the end he was okay with that. I believe he felt fulfilled in a way- he had done his purpose of bringing joy to himself and others. I tend to use him as an analogy for being ill in humans. He had treats and played with toys, and you are traveling the world on a motorcycle. That is incredible, and something that many people, even healthy ones don't get to do. You are living life to the fullest and reclaiming your happiness. This is one of the bravest things anyone in your situation can do. So, I do not know exactly what it is like to be in your shoes, but what you wrote has definitely given me a more positive outlook on life and all the challenges that come with it. I wish you the best with all of your adventures and excursions. Whatever you do, don't give up on happiness

    • @calliecooper99
      @calliecooper99 6 років тому +12

      Edward prayers for you 🙏🏻

    • @caryulmer5578
      @caryulmer5578 6 років тому +23

      Edward, You are so right. I have 2 terminal illnesses, cancer & a lung disease.Treatment didn't work for cancer; is no treatment for my lung disease. Was told I probably had months to live in 2012, but I'm still here, even though I'm told it's not medically possible. I too decided to live a full life the best I can. Like you, I also ride a motorcycle (Yamaha Maxim). Claire is right, serious illness demands much of your focus, (colds can easily turn into pneumonia etc.). I mostly require oxygen but I do go without sometimes, when I need to pass myself off as 'healthy'. I know I can do that until my oxygen drops into the low 70's (I pass out below 53😀); it's risky, & I try to avoid doing any of this if possible. But life sometimes gives you tough choices. You can't let the illness totally run your life or else you have no life. I too am now single, (my husband died from a heart attack last year), & have had to return to the workforce. It's hard disguising the illnesses at work, but luckily my job as a legal consultant mostly allows me to work at home. My options for work being limited; I have an emotionally abusive employer so its a high stress environment. But it is what it is; overall everyday is a blessing. I have a beautiful home, and (mostly) a beautiful life. I consider myself truly blessed, am proud of my strong body/immune system, & know when my health eventually declines I'll adjust & still live as full a life as I can. Meanwhile, I'll do my best contributing in a positive way, & love every minute of it.

    • @notsafeformiranda4271
      @notsafeformiranda4271 6 років тому +5

      cary ulmer i love your outlook on life. I’m sorry that you’re going through so much stress but you seem to be coping really well. The fact that you’ve surpassed your life expectancy by 6 years is incredible. I’m honestly awed that that’s possible for someone to have so much fight in them. As for your husband, I am so sorry for you. I know that must have been very hard as well. And your boss sounds... well, like a complete dick. You are surrounding yourself with positivity and not wallowing in it. Of course you’re still having you’re struggles, some of which could be terrifying, but you’re doing great. I wish you the best, and you’re really kicking your illnesses ass because you’re not letting them take your happiness

    • @lemonsqweezy9532
      @lemonsqweezy9532 6 років тому +1

      What bike did you get?

  • @laurenward256
    @laurenward256 3 роки тому +24

    She was so beautiful inside and out. I always come back to hear her wisdom and courage and wonderful way with words but I wish she was still here and there was some cure for all of these awful illnesses in the world. I like to think there is something out there when you die and they needed her there because she was just too amazing for this universe. RIP Claire.

  • @kashnimago2096
    @kashnimago2096 3 роки тому +15

    She was so beautiful, so so badass and brave. I watched other videos of hers, but comments have been disabled there. She was so chirpy, and so positive and so full of life, she was someone who wanted to give something to the world and SHE DID.
    She is an inspiration. She will never cease to exist. ❤️ I am so inspired by her today to just get up, be grateful , do as much as I can while I'm alive and thank God for even the smallest things that I am taking for granted. Thank you God. Thank you Claire.
    And if you are here somewhere, if you are listening, I just want to say : You were definitely more than your illness. So much so much more❤️ and I thank you for everything. I'll never forget you.

  • @Mmmmyown
    @Mmmmyown 6 років тому +237

    . When you turn a certain way you look a little like Angelina Jolie

    • @brennat124
      @brennat124 6 років тому +5

      misty howell I agree! I also think she looks like Kaia Gerber

    • @annabellj.54
      @annabellj.54 6 років тому +1

      True

    • @thenextresponseiswrittenby2853
      @thenextresponseiswrittenby2853 6 років тому

      misty howell I was thinking the same

    • @sonyvalencia
      @sonyvalencia 6 років тому +2

      misty howell I think she reminds me of Hillary Swank and a tiny bit like Angelina.

    • @Amoiiiii
      @Amoiiiii 6 років тому

      I love this comment

  • @AOM-wq5qd
    @AOM-wq5qd 6 років тому +366

    Even though she only posts like once every 3 months she still has a notification squad.
    Me

  • @Trabsol
    @Trabsol 4 роки тому +44

    Rest in peace, She died 4 months after making this.

  • @jacksonb1001
    @jacksonb1001 4 роки тому +17

    I still can’t fully fathom that she’s gone, she brought me so much comfort just a few years ago and I remember feeling scared but excited for the chance for her to have a better quality of life when she said she was getting the transplant and when I heard everything went well I was so happy, I still want to think she’s just recovering and will post a video any day now. RIP Claire, you’d know what to say during a time like this

  • @filipe5226
    @filipe5226 6 років тому +363

    What a coincidence, I was guessing how you were today while scrolling through my subscriptions.

  • @plddevries
    @plddevries 6 років тому +119

    "Bummy version of Claire?" Putting the rest of us to shame!

  • @avesaryanna2865
    @avesaryanna2865 4 роки тому +11

    I can’t imagine knowing my expiration date and talking about it like it’s a normal occurrence. Rest In Peace love.

  • @MsCoolkid16
    @MsCoolkid16 3 роки тому +12

    I’ve never been so heartbroken over a stranger in my life, but this is so sad. She is such a bright soul ❤️ Rest In Peace ❤️

  • @luniette
    @luniette 6 років тому +596

    I've been watching you forever, and the thought of you suddenly not showing up on my subscription box anymore is just so heartbreaking...but i know it wont come to that. Ive never watched anyone on here or in general be as strong as you. I mean - here i am, three years younger than you - complaining about school and my period.....Theres a reason why you keep breaking the life expectancies - i mean, the doctors thought you'd die at 5 - but here you are 16 years later making a difference in the world and living more than any of us have ..even if your body may not be strong, you and your brilliant mind and courage will get you through this transplant. I believe in your Claire, and always continue to believe in yourself....
    I really hope for the best and that you get the lung transplant

    • @BlogManiac64
      @BlogManiac64 6 років тому +2

      The Truth well said! ❤️

    • @ig-nat-ius1891
      @ig-nat-ius1891 6 років тому +12

      The people who pass away aren't any less strong either, it's more about support you have.

    • @IfYouMeetAWolf
      @IfYouMeetAWolf 6 років тому +5

      I can recommend Emily Hayward if you want some more of that type of strength :)

    • @icansurviveuniversity.imra1405
      @icansurviveuniversity.imra1405 6 років тому

      IfYouMeetAWolf no one is fully replacable, thou.

    • @janetsnakehole4836
      @janetsnakehole4836 5 років тому

      ❤️

  • @hannahashby2483
    @hannahashby2483 6 років тому +337

    you and molly burke should collab or something bc you all or so similar yet so different and i think y’all could be good friends

    • @masajerkovic2647
      @masajerkovic2647 6 років тому +7

      Yaaaaaa

    • @freyacollins4220
      @freyacollins4220 6 років тому +11

      Oh my god, yes yes yes yes yes. They would be such good friends!!!

    • @coolmoon4382
      @coolmoon4382 6 років тому +10

      And what about Stephi Lee... She is an amazing girl and wonderful Artist... I would love to see a collaboration with them..

    • @ames218
      @ames218 6 років тому +4

      That would be pure gold!

    • @Firefly-tf8gu
      @Firefly-tf8gu 6 років тому +1

      Great idea!

  • @dem5571
    @dem5571 4 роки тому +37

    In going through a depressive episode and this popped up on my recommended feed and reminded me how this is going to pass. I found Claire’s first UA-cam channel a few years ago while I was going through some stuff and when she passed away, I was heart broken. I still miss her sometimes even though I never met her. She was amazing and so much to say.

    • @kevajuice987
      @kevajuice987 4 роки тому +2

      💖

    • @kikirobi
      @kikirobi 4 роки тому +1

      If you ever feel like you wanna talk to someone, I am here for you. I’m not trynna hook you up or something, I just wanna be helpful

  • @jessicah3450
    @jessicah3450 2 роки тому +7

    Thank you for communicating how having a terminal illness FEELS. It's difficult to even sort out my own thoughts about it. I wasn't born with my illness, and it's very rare, so there's no one I can relate to about it. So, it's especially hard to explain to people who don't have a terminal illness, even close friends and family. I hope I can get my Port soon, goodness that would make a difference. I have 1 vein that still works, and it was stuck 3 times this week. But try to convince the doctors and especially the insurance company that it's necessary to improve my quality of life. Those little things like having a port and finding my nebulizer that make my breathing treatments twice as fast mean a lot right now when I know my time is limited. But they seem to only be for people who can pay for it out of pocket, but still such blessings when you manage to get it. You're still a gift, Claire.

  • @tnteesha
    @tnteesha 6 років тому +92

    I'd love to hear about the lung transplant process. Thank you for the update. You're an inspiration.

  • @heatherclark2701
    @heatherclark2701 6 років тому +569

    Good luck, hope you end up having a successful lung transplant. Thanks for updating us, wishing you the best and more time 💙

    • @adriianbacha
      @adriianbacha 5 років тому

      Sadly she passed away due to a stroke just after she had her lung transplant 💔

  • @cassiem3893
    @cassiem3893 2 роки тому +10

    I think about Claire every day. She was so special! I can’t put words on how beautiful she was, inside and out.

  • @stungbyahoneybee
    @stungbyahoneybee 4 роки тому +22

    This video was just recommended to me today, 2 years later. I'm so sorry and may you rest easy, Mrs. Wineland.

  • @rosesrosie8564
    @rosesrosie8564 6 років тому +223

    We really do take time and health and life for granted 😢

  • @AOM-wq5qd
    @AOM-wq5qd 6 років тому +457

    She's paying a lot of money to survive a little longer and still has the kindness to not let us wait about 5s to watch an ad.
    *If I die you are going to find my lungs in your letter box*
    Edit: thankfully she must of read this comment cause now there's an ad
    + Never got this amount of likes for anything before my highest was 9😂

    • @HopeRochy
      @HopeRochy 6 років тому +2

      A OM I second this ^^^

    • @quantumaria
      @quantumaria 6 років тому +3

      THIS! What an amazing soul she is!

    • @ecologist_to_be
      @ecologist_to_be 6 років тому +3

      You dont get ads everytime?

    • @gentabrennan6319
      @gentabrennan6319 6 років тому

      IA OM

    • @sapphirejynx
      @sapphirejynx 6 років тому

      Ya know Add block is a thing if it bothers you that much. Why don't you get it and stop complaining about adds. :D

  • @cheyennecerney8998
    @cheyennecerney8998 3 роки тому +15

    Rest In Peace Claire, you really inspire me ❤️

  • @stupidandsensitive
    @stupidandsensitive 4 роки тому +7

    this pops up in my recommended, i was having a not so great time. i miss her. i miss her words, her little laugh and smiles. she inspires me a lot. thank you Claire♡

  • @madixxoo
    @madixxoo 6 років тому +109

    Before I got my kidney transplant and was still on dialysis a little over a year ago I was in your spot (except kidney wise lol). I was in college and my mom had just died and my partner was about to leave for the military. I was on treatments for two years before I got the kidney. For christmas, all of my friends came home for the break to come be with me after my mom’s passing and just make it fun and make me feel better. I remember everyone holding me especially close but I didn’t realize (and they didn’t tell me until after I got my transplant and was healthy) that it wasn’t solely because my mom died but because I looked gravelly ill all of a sudden. My health went from doing okay to near death in about 6 months. I was suddenly in the hospital all the time and sick constantly and too tired to finish my treatments. I was always in pain and exhausted. My friends and nurses and family were all terrified that I was going to die. Then, January 27th, 2017, I got the kidney, and it saved my life. Perfect match. Still functions amazing to this day an entire year later. But you are so right!! It’s not a cure, just a treatment, and a lot of people don’t know that. However, I’m grateful for the extra time and really think it was worth all the risk and struggles at the beginning. I wish you nothing but the absolute best of luck and I hope you get any and everything good in the world xx

    • @atreju305
      @atreju305 6 років тому +5

      That's great!! Encouraging story!! Thanks for sharing it with Claire and us!! 👍🤗💞

    • @IfYouMeetAWolf
      @IfYouMeetAWolf 6 років тому +4

      You have a wonderful, big smile :) So happy you get to give people some of that still ^^

  • @Popskittle
    @Popskittle 6 років тому +28

    I'm a med student and I've always really found your channel very interesting. You're so human and sometimes in medicine its easy to become desensitized to what people who deal with illnesses are really going through. You are so incredibly strong. Really hope you get the transplant and all the goes well

  • @Rosierings
    @Rosierings Рік тому +2

    Randomly popped up in my feed again after years. I've watched her for a long time and remember hearing of her passing. Her message and random funny moments pop into my mind on a regular basis. 4 years later, she's still making an impact ❤️

  • @allenleoantony7337
    @allenleoantony7337 3 роки тому +5

    I want every version of claire cause there's beauty in each and every single one

  • @jenlobbins4952
    @jenlobbins4952 4 роки тому +243

    just found your channel and it’s sad that you already passed away 😭 fly high beautiful

    • @Bxxxxxx
      @Bxxxxxx 4 роки тому +9

      Exactly the same for me. What a terrible loss to lose such a beautiful, eloquent girl that had so much to offer the world... What a cruel world we live in sometimes :-(

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому +1

      jen lobbins you want to feel my polo shirt?

    • @Bxxxxxx
      @Bxxxxxx 4 роки тому

      @@Steven-lz7on tf are you talking about?!

    • @Steven-lz7on
      @Steven-lz7on 4 роки тому

      Bexxybex just want to know if my white polo shirt looks good?

    • @Bxxxxxx
      @Bxxxxxx 4 роки тому +3

      @@Steven-lz7on look in the mirror. You're a big boy, I'm sure you can work it out 😂

  • @mtngirlbunny9290
    @mtngirlbunny9290 6 років тому +102

    My good friend from college many years ago was diagnosed with cystic fibrosis in her early 20's. She was told she wouldn't make it and even if she got a transplant she would have maybe 10 years. She got down to exactly where you are now. She eventually got a double lung transplant. I haven't talked to her recently but she is well past the 10 years with the new lungs and in her 40's now. Praying for you. I have had different long term illnesses since I was very young but not terminal. Blessings in Christ.

    • @MySeasideRendezvous
      @MySeasideRendezvous 6 років тому +8

      MtnGirl & Bunny Im confused? How was your friend diagnosed with cf in her early 20’s. From what I know CF is a genetic disease that you’re born with. They found my cousin had it when he was 6 months old.

    • @jessloves9367
      @jessloves9367 6 років тому +3

      MySeasideRendezvous Its rare but some people find out they have it later on in life.. not sure how or why they didn't know sooner but it can happen.

    • @elenagibbons4719
      @elenagibbons4719 6 років тому

      MySeasideRendezvous sometimes symptoms don’t appear until later in life. It is a genetic mutation that is recessive and passed on from parents but there are MANY (in the thousands) different versions of the mutations so everyone’s CF is different. In 2013, 6.8% of people were diagnosed at age 16 or later so it is possible. And since 1940, the average life expectancy with CF has increased from 6 months to about 37 years and 5 months.

    • @MySeasideRendezvous
      @MySeasideRendezvous 6 років тому

      I had no Idea, It's good to know. All my cousins and I are going to get tested to see if we have the recessive gene and if there will be a risk when we try to have kids. Thanks for the info :)

  • @adriandaniels1
    @adriandaniels1 4 роки тому +6

    She seems so mature here. Like 35. Not 20/21. Forced to grow up quickly. Dont know alot about this girl but she pops up in my suggestions every once in a while and I see she's made a huge impact on people. R.I.P

  • @sebastiantyler2254
    @sebastiantyler2254 4 роки тому +116

    Dude why’d this come back up in my feed bruh. I’m crying in the club

    • @decimatethestars
      @decimatethestars 3 роки тому +2

      I just started 9th grade. It's hard enough to do my online work just starting high school but my suicidal self decided to see what it's like to die. Now I'm an hour behind on my algebra work and crying over my own mental health and this woman's death.

    • @allegraanegra455
      @allegraanegra455 3 роки тому +1

      @@decimatethestars hey you good now?

  • @GracieJaney
    @GracieJaney 6 років тому +54

    A friend of mine had a double lung transplant, 12 days after op she took her first steps, 16 days after she was allowed to leave hospital for a few hours and a month later she was allowed out of hospital. Now she no longer needs her oxygen.

    • @katevanderbilt4127
      @katevanderbilt4127 6 років тому +6

      Wow amazing. Sending your friend healing vibes and lots of love from this Southern Gal now living in New Zealand! I hope all continues to go well with your friend and will keep them in my prayers

    • @kittycatLOVExoxo
      @kittycatLOVExoxo 6 років тому +1

      Kate Vanderbilt I'm also a southern girl planning to move to new Zealand eventually lol, how come you're there ? Just curious

    • @SurelynotTHErose
      @SurelynotTHErose 6 років тому

      They can be so genuinely life changing. I'm so happy for your friend!

  • @molliegreenough2866
    @molliegreenough2866 6 років тому +499

    When you said you looked like a bum I was like "damn girl, what do I look like then?" Lol

    • @user-hs7ms2qz8q
      @user-hs7ms2qz8q 6 років тому +25

      Mollie Greenough U LOOK AMAZING BITCH NEVER BRING UR SELF DOWN U IS BEAUTIFUL OK???!!!

    • @coffeebean2370
      @coffeebean2370 6 років тому +7

      Mollie Greenough I relate to this statement

    • @sophiemitchell6576
      @sophiemitchell6576 6 років тому +2

      Omg same. But I'm actually ugly, you look so beautiful in your profile pic:)

    • @notsafeformiranda4271
      @notsafeformiranda4271 6 років тому +2

      Beautiful. That's what you look like. She is beautiful and so are you :-)

  • @elifyuksel33
    @elifyuksel33 4 роки тому +1

    i discovered claire’s channel a while before she passed. it was so sad to see her go, honestly she’s one of the most beautiful people i’ve ever seen, not just physically but as a whole. i miss you claire, your new videos and inspiring words. you inspire me every day to take better care of myself and make the best out of situations that seem like the end of the world. i hope you’re happy, safe and sound wherever you are. rest in peace

  • @MyRobert626
    @MyRobert626 4 роки тому +14

    I'm so happy I saw this in 2020 UA-cam is keeping her story alive ❤️

  • @anoj06
    @anoj06 6 років тому +1821

    Claire, you will get a transplant and will get healthy. Your years will be prolonged.
    I will say, "I told you so" exactly after a year. See you on May 24, 2019.

    • @anastasiyaa_96
      @anastasiyaa_96 6 років тому +95

      Anoj Kumar How sweet. May God help her surpass all health issues once for all and bless you 💜

    • @marissabubbenmoyer4083
      @marissabubbenmoyer4083 6 років тому +22

      She’s too sick to get a transplant.

    • @alicecoughlan5935
      @alicecoughlan5935 6 років тому +74

      No, she's not. I know someone who had only 20% lung function when they got their transplant, and they were practically bed bound. Its been 2 years since their transplant and they're still alive living life. You only know what Claire decides to tell us. She knows everything about her health, we don't.

    • @JustyMe
      @JustyMe 6 років тому +9

      I hope you are right! She will surely fight with all her strength.

    • @Itisgloria
      @Itisgloria 6 років тому +12

      This made me cry :( , yes Amen. 🙏

  • @adventurecalls4201
    @adventurecalls4201 6 років тому +42

    My best friend received two heart transplants in her lifetime before she passed away. It was a long, hard road for her, but it gave her more time to live and be happy. I couldn't be more grateful for organ donors who gifted us that time. You remind me of her, with your positivity and light. Sending all the luck and well wishes!

  • @molly5546
    @molly5546 4 роки тому +43

    idk why this is recommended to me but damn she was badass. rest in peace :(

  • @mSTRMNDi
    @mSTRMNDi 4 роки тому +29

    man its so messed that people get taken so young - appreciate life at its fullest, atleast for the sake of her, who never had the chance.

  • @katierice9247
    @katierice9247 6 років тому +73

    I’ve followed you for a few years now with your illness and everything you’ve been doing, and I really respect you. I myself live with a chronic illness. I have Rheumatoid Arthritis. It’s an auto immune disorder. So, not quite like yours, but your right. It is a struggle. And I think your inspiring to anyone suffering with life altering illnesses. Thank you for being so open about your struggles. For letting the world in on what it’s like to live this way. I appreciate not seeming like I’m alone in this kind of struggle. Your awesome! I love you! And thank you!

    • @x3princessbratx3
      @x3princessbratx3 6 років тому +1

      Katie Rice Sjögren over here 🙋‍♀️😞

    • @roxbuchanan6357
      @roxbuchanan6357 6 років тому +1

      Rheumatoid Arthritis, Fibromyalgia, *and* Type 1 Diabetes here. I say thanks too, Claire. You give me something to work towards when I'm having a rotten pain day, and that's having an attitude as good as yours.

    • @greenpeacesign420
      @greenpeacesign420 6 років тому

      Rox Buchanan me too, i also have T1D, JRA and Fibro!!!!

  • @Ana_MF
    @Ana_MF 6 років тому +185

    I found your videos the year I lost my brother to MS and your words have helped me a lot understanding life and what it really means to value our time on this planet, to enjoy the moment, even when it doesn't match this crazy ideal of perfection we have in our minds.
    It's not CF, but your attitude towards it what makes you special, Claire.
    If that operation is the only option, take it.
    You and your family are fighters. I hope you beat this whole situation and everything goes fine with the transplant.

    • @NYCgirl927
      @NYCgirl927 6 років тому +3

      anamf sorry about your brother.

    • @TheEternalScream
      @TheEternalScream 6 років тому +4

      Hey hey, I have MS myself and didn't think it was a deadly sickness? Coujld you perhaps share on what happened? Thank you and sorry for your loss!

    • @mariadelosangelesrodriguez5858
      @mariadelosangelesrodriguez5858 6 років тому +1

    • @Ana_MF
      @Ana_MF 6 років тому +4

      It depends on the type of MS you have. At 16, My brother was diagnosed with a really aggressive form of the disease.
      Doctors said he could live 5 or 6 years but he stayed with us 13 years.
      During that time we meet other people with MS, many of them had treatment and could have a life as normal as the disease allowed them to.
      I'm sorry to hear you have MS and maybe what I said scared you but please remember your type doesn't have to be my brother's. Just listen to your doctors and don't focus on other cases because it doesn't affect everyone the same way.
      Never give up. I send you a big hug and all the best for you and your loved ones ♥

  • @Dsullivann
    @Dsullivann 4 роки тому +1

    I always cry when I see you resurface on the internet, such an inspiration and a kind loving person. You're blog has had such an huge impact in my life. Can't thank you enough. ❤️

  • @len-rq3fw
    @len-rq3fw 3 роки тому

    rest in peace angel