Thank you so much for this podcast, my boyfriend has tbi from when he was 6 and we struggle with communication. The part about repeating is very helpful, i always thought he was trying to get a different response by saying the same thing, its all hard but we are working on it.
Thank you so very much for all that you do. My partner and I still struggle with communication after three years of being together. He received his TBI about ten years before we started dating. It has been very challenging, but this podcast has helped educate me just that much more on what he is possibly going through. You are so very wonderful to provide us with this information, and I am so very grateful to have stumbled upon this podcast. Thank you! 💜
I have given up on romantic relationships because I feel that no woman could deal with my TBI "quirks,"-(repeating myself,poor temper,poor short term memory etc)...
One day I will wake and not see nothing about my brain even if I'm suddenly blind it's better than seeing lies about me because I shudder when I try to tell you I love you ? I'm still said I love you.,!
Well I guess I need to the same things too both of you today even though every single thing you said I can relate to I'm tired of trying to fix everything around me I don't even know how to fix yourself so I hate to even admit to anything or anyone or commit I can't do that no more it's cast out like another moron with a bad headache and can't deal with stresses in life it's just the way it is I wish everyone that thought I was terrible because I have some problems thinking and listening to people but I listen and I do hear you I think people will get upset when it takes me too long to answer them so they just cast me out like a person that doesn't even have a brain anymore and doesn't need one anyway that's why I'm never going to be angry at someone else maybe myself but no one else frustrations are within me should not be within you I guess we should never stop talking just don't let people know you got something wrong here brain that you don't know why but you don't want people to know because then you may be considered a real bad person And if you got PTSD to then you're really really in trouble because that's when you're going to get most of your negative feedback from health care providers because they're going to do everything they can when they make a mistake to turn the narrative around and say this person here with this mental disease this mental disability this mental deflection or affliction or whatever it's called We can just rely on that because we're a health care person provider and we can do anything we need to do to make them shut up All we have to do is rely on their brain and the stupidity that their brain causes them to do even though they won't do it or some of them don't do it that's the way that it's looked at seen it so many times I could write a book about health care disparities within the disabled and it would be a best-seller but the problem is I don't know how to write it in a form that would be almost readable haha lucky people Lucky you that I don't have the ability to process things and put them properly in a paper book or a book cuz then people may realize that you can't learn off of keeping one in total despair about something they had no control over getting You could be a little kinder and a little gentler especially on the scale of healthcare because isn't that what I trust you for My health care to take care of me through my sickness to take care of me and to understand me instead of ridiculing me and making me continually over and over and over look so stupid well you know like the way I am stupid right I hate narratives that are formed in me I hate the narratives worse than the ring damage itself I hate that narratives but there again I can't say hate about anyone anything any place anytime because of that's expressing the way I feel and they were just kindly dismiss it and tie you down to the chair again metaphorically speaking of course I've never been tied down to a chair I'm just saying that's metaphorically speaking no one probably can believe that someone like me used a word like metaphorically but then again I might be using it in the wrong context today or tomorrow but I might remember the next day I don't know I apologize for my stupidity Peace out to all kind loving people out there I know that you're still around I know you are I see you only when I dream now not in reality whoops I better be careful someone might say I'm I'm delusional because I dream of a better tomorrow for people with brain injury I better shut up now
I needed this today thank you. Going to talk to my doctor this week about this. My family is struggling with me
Thank you so much for this podcast, my boyfriend has tbi from when he was 6 and we struggle with communication. The part about repeating is very helpful, i always thought he was trying to get a different response by saying the same thing, its all hard but we are working on it.
Thank you so very much for all that you do.
My partner and I still struggle with communication after three years of being together. He received his TBI about ten years before we started dating. It has been very challenging, but this podcast has helped educate me just that much more on what he is possibly going through.
You are so very wonderful to provide us with this information, and I am so very grateful to have stumbled upon this podcast. Thank you! 💜
I have given up on romantic relationships because I feel that no woman could deal with my TBI "quirks,"-(repeating myself,poor temper,poor short term memory etc)...
I struggle with social cues and relationships post TBI...
Thank you. This info is so important.
It's been ten years since brain surgery and I still have to consciously think/work-on this, everyday.
I had speech today
One day I will wake and not see nothing about my brain even if I'm suddenly blind it's better than seeing lies about me because I shudder when I try to tell you I love you ? I'm still said I love you.,!
Well I guess I need to the same things too both of you today even though every single thing you said I can relate to I'm tired of trying to fix everything around me I don't even know how to fix yourself so I hate to even admit to anything or anyone or commit I can't do that no more it's cast out like another moron with a bad headache and can't deal with stresses in life it's just the way it is I wish everyone that thought I was terrible because I have some problems thinking and listening to people but I listen and I do hear you I think people will get upset when it takes me too long to answer them so they just cast me out like a person that doesn't even have a brain anymore and doesn't need one anyway that's why I'm never going to be angry at someone else maybe myself but no one else frustrations are within me should not be within you I guess we should never stop talking just don't let people know you got something wrong here brain that you don't know why but you don't want people to know because then you may be considered a real bad person And if you got PTSD to then you're really really in trouble because that's when you're going to get most of your negative feedback from health care providers because they're going to do everything they can when they make a mistake to turn the narrative around and say this person here with this mental disease this mental disability this mental deflection or affliction or whatever it's called We can just rely on that because we're a health care person provider and we can do anything we need to do to make them shut up All we have to do is rely on their brain and the stupidity that their brain causes them to do even though they won't do it or some of them don't do it that's the way that it's looked at seen it so many times I could write a book about health care disparities within the disabled and it would be a best-seller but the problem is I don't know how to write it in a form that would be almost readable haha lucky people Lucky you that I don't have the ability to process things and put them properly in a paper book or a book cuz then people may realize that you can't learn off of keeping one in total despair about something they had no control over getting You could be a little kinder and a little gentler especially on the scale of healthcare because isn't that what I trust you for My health care to take care of me through my sickness to take care of me and to understand me instead of ridiculing me and making me continually over and over and over look so stupid well you know like the way I am stupid right I hate narratives that are formed in me I hate the narratives worse than the ring damage itself I hate that narratives but there again I can't say hate about anyone anything any place anytime because of that's expressing the way I feel and they were just kindly dismiss it and tie you down to the chair again metaphorically speaking of course I've never been tied down to a chair I'm just saying that's metaphorically speaking no one probably can believe that someone like me used a word like metaphorically but then again I might be using it in the wrong context today or tomorrow but I might remember the next day I don't know I apologize for my stupidity Peace out to all kind loving people out there I know that you're still around I know you are I see you only when I dream now not in reality whoops I better be careful someone might say I'm I'm delusional because I dream of a better tomorrow for people with brain injury I better shut up now
We seen it we been there it was cool
Is it just audible until you complete that objective until the quest is over goes on until
I repeat myself a lot...
Big s/0 to hospital for special care
Swaggering