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Hope After Head Injury
Приєднався 28 тра 2014
Grieving and Growing through TBI - Survivor & Caregiver Perspective (with Kelly Lang)
Living with brain injury is an emotional journey for the entire family. There is a grieving process that we go through, and it’s important this side is acknowledged and not ignored. Let’s dive deeper…
Today, Cristabelle Braden engages in a heartfelt conversation with Kelly Lang, a brain injury survivor and caregiver to her daughter who sustained a traumatic brain injury in 2001. She is a bestselling co-author of “The Miracle Child: Traumatic Brain Injury and Me,” co-leads the Brain Injury Association of America’s Advisory Council and serves on the Virginia Brain Injury Advisory Council, along with being a keynote speaker and many other advocacy and research projects for TBI. In this episode, she shares her story, especially as related to the grief process. We also talk about the invisibility of brain injuries and the misconceptions surrounding them, with encouragement and hope for survivors and families going through their own journeys.
🎙Hear More on "Hope Survives | Brain Injury Podcast" (this is Ep.91): hopeafterheadinjury.com/hopesurvives
Join the online support groups:
www.hopeafterheadinjury.com/community
Connect with Kelly: substack.com/@kellylang1515 | www.themiraclechild.org/
Connect with Cristabelle: www.cristabellebraden.com
00:00 Intro with Cristabelle
04:56 Kelly Lang's Story
10:03 Navigating Recovery as a Caregiver
15:03 Importance of Grief Processing
20:06 Journey of Healing and Growth
32:25 The Invisibility of Brain Injuries
39:50 Balancing Advocacy and Personal Recovery
45:08 Words of Hope
This podcast is for education and informational purposes only, and not intended for medical advice. If you need specific medical advice, please consult your physician.
Today, Cristabelle Braden engages in a heartfelt conversation with Kelly Lang, a brain injury survivor and caregiver to her daughter who sustained a traumatic brain injury in 2001. She is a bestselling co-author of “The Miracle Child: Traumatic Brain Injury and Me,” co-leads the Brain Injury Association of America’s Advisory Council and serves on the Virginia Brain Injury Advisory Council, along with being a keynote speaker and many other advocacy and research projects for TBI. In this episode, she shares her story, especially as related to the grief process. We also talk about the invisibility of brain injuries and the misconceptions surrounding them, with encouragement and hope for survivors and families going through their own journeys.
🎙Hear More on "Hope Survives | Brain Injury Podcast" (this is Ep.91): hopeafterheadinjury.com/hopesurvives
Join the online support groups:
www.hopeafterheadinjury.com/community
Connect with Kelly: substack.com/@kellylang1515 | www.themiraclechild.org/
Connect with Cristabelle: www.cristabellebraden.com
00:00 Intro with Cristabelle
04:56 Kelly Lang's Story
10:03 Navigating Recovery as a Caregiver
15:03 Importance of Grief Processing
20:06 Journey of Healing and Growth
32:25 The Invisibility of Brain Injuries
39:50 Balancing Advocacy and Personal Recovery
45:08 Words of Hope
This podcast is for education and informational purposes only, and not intended for medical advice. If you need specific medical advice, please consult your physician.
Переглядів: 69
Відео
Nervous System Safety in Concussion/TBI Recovery (with Shelley Latendresse, OT)
Переглядів 15021 день тому
After a brain injury, survivors often feel overwhelmed and on edge - one of the reasons for this could be nervous system dysregulation. Today, we are going to talk about nervous system safety and how to incorporate this into our recovery. In this episode, Cristabelle Braden interviews occupational therapist Shelley Latendresse about the importance of understanding nervous system safety. Shelley...
Lost and Found through Brain Injury (TBI Survivor Story with Amanda Allemang)
Переглядів 14928 днів тому
Brain injury is invisible: on the outside you can't see how lost a survivor can actually feel. Today’s episode is a survivor’s story of going from feeling lost to being found through finding hope and support. Cristabelle speaks with Amanda Allemang, a 16 year survivor of TBI, about the long journey that brain injury can be. We talk about how hard it can be to find resources at first, dealing wi...
Blast Overpressure Brain Injury in Mortar Soldiers + the Effect on Mental Health (with Todd Strader)
Переглядів 242Місяць тому
You are NOT your brain injury! Brain injuries can be considered a hidden injury, but what happens when someone doesn’t even realize they have one? It would be so overwhelming to have so many symptoms and not know where they are coming from. This is often the case for members of the military that are exposed to occupational low-level blast overpressure from firing heavy weapons like mortars and ...
Resilient Roots - Staying Grounded through TBI Recovery (with Cazoshay Marie)
Переглядів 109Місяць тому
How do we stay rooted after brain injury, when life feels so chaotic? Let’s talk about it! Today, Cristabelle interviews Cazoshay Marie, a TBI survivor and advocate with roles as a member of the Brain Injury Association of America’s Advisory Council and as a Traumatic Brain Injury Ambassador for the Model Systems Knowledge Translation Center. In this conversation, we explore themes of resilienc...
Neck Instability after Concussion (with Dr. Sasha Blaskovich)
Переглядів 125Місяць тому
One of the hardest parts of recovery is trying to find out the root cause of where your symptoms are coming from. Every brain injury is different, and one of the possibilities for prolonged concussion symptoms could be a form of neck instability. Today, Cristabelle interviews Dr. Sasha Blaskovich, as he shares his journey into chiropractic care due to a personal experience with concussion, and ...
Journey of Self-Advocacy and Returning to School after Brain Injury (with Calista Susa)
Переглядів 140Місяць тому
A brain injury can turn your entire life upside down in one day- and it’s so important to advocate for yourself in this “new normal.” Calista Susa had a brain bleed at age 16, which led to hospital stays, brain surgeries, rehab, and facing a world of new challenges. On this episode, Cristabelle interviews Calista to share her journey of resilience: being a patient her entire life due to being b...
CONCUSSIONS: Common Misconceptions, Symptoms & My Experiences (Cristabelle Braden)
Переглядів 1442 місяці тому
Have you ever heard someone say it’s “just a concussion”? It is common to minimize concussions down to just a “headache” - but it is so much more than that. Every concussion experience is different, and while some may recover, there are others with Persistent Post Concussion Symptoms who end up living with a completely changed reality. In this episode for National Concussion Awareness Day, Cris...
Courage to Restart and Rebuild after TBI (with Kevin McDonald)
Переглядів 1402 місяці тому
The journey with brain injury is not easy - it takes courage, resilience, and hope to walk through. Today, Cristabelle is joined by Kevin McDonald, a TBI survivor, advocate, and founder of the nonprofit “Restart Your Life - Renew Your Mind.” Kevin shares his personal journey through 15 years of TBI. He candidly opens up about the challenges he has faced, including anger, frustration, cognitive ...
Making Sense of the Messy through Brain Injury / Concussion (with Natasha Wilch, PT)
Переглядів 3202 місяці тому
Life with brain injury and concussion can feel so overwhelming, affecting identity and sense of self… so let’s talk about finding hope and making sense of the messy! 🎙Hear More on "Hope Survives | Brain Injury Podcast" (this is Ep.83): hopeafterheadinjury.com/hopesurvives CONCUSSION NERDS SUMMIT REGISTRATION LINK: www.natashawilch.com/a/2147875754/K6Qwrgrd Clinician Track: www.natashawilch.com/...
Adapting to Life with Brain Injury (with Lynda and Richard Dougé)
Переглядів 3276 місяців тому
Lynda and Richard have been married for almost 28 years. The day of their 25th wedding anniversary (9/25/21), while on vacation in Salt Lake City, Lynda was crossing a busy street on a pedestrian crosswalk at a green light. The driver of a lifted SUV made an illegal left turn to beat incoming traffic and hit her full force. She was thrown off and landed to the right side of her head. She was br...
The Road to Concussion Recovery (with Dr. Brittni Charle)
Переглядів 3387 місяців тому
After experiencing a concussion or any type of brain injury, the road to recovery can be one that is full of ups and downs, and unexpected twists and turns. Today, Dr. Brittni Charle joins Cristabelle for a conversation all about setbacks, flare ups, and re-injuries and all the unexpected bumps in the road that can hit and also the wins and victories that we can celebrate along the way! Recover...
Wordlayer- Speaking Life, Love, and Hope through TBI (with Lindy Boone Michaelis)
Переглядів 2668 місяців тому
Today, Cristabelle is joined by Lindy Boone Michaelis, sharing her family’s journey with her son Ryan’s severe TBI. Brain injuries affect the entire family: "You get a call or you get notified, and for me, my life is now divided into two halves: before June 19, 2001 and after June 19, 2001... because everything changed." Listen as Lindy shares from a place of vulnerability, wholehearted compass...
Hope in Neuroplasticity + New Research and Technologies in Rehabilitation (with Dr. Jeremy Schmoe)
Переглядів 5048 місяців тому
Whether you just had a brain injury or if you are years or decades out, there is hope. Concussion protocol is continually evolving, there is always new research coming out, and new technologies that completely change the game! It is so encouraging to know that the future is bright in brain injury rehabilitation. Today, Cristabelle is joined by Dr. Jeremy Schmoe from The Functional Neurology Cen...
Your Voice Matters + TBI Act Reauthorization Efforts | with Cristabelle Braden
Переглядів 2198 місяців тому
Did you know your voice can make a huge difference? Today Cristabelle shares about her experience advocating for brain injury in Washington D.C. and explains some of the specific asks for members of congress and senate. Brain Injury is invisible - so using our voice for awareness is even more important. Significantly, this year the TBI Act is up for reauthorization. You can join the Brain Injur...
Embracing Your Unique Brain Injury Journey (with Ali Rheaume)
Переглядів 3588 місяців тому
Embracing Your Unique Brain Injury Journey (with Ali Rheaume)
Managing Symptoms after Brain Injury (with Natalie Mackenzie + Cristabelle Braden)
Переглядів 3499 місяців тому
Managing Symptoms after Brain Injury (with Natalie Mackenzie Cristabelle Braden)
I have a concussion... now what? (with Dr. Mark Heisig)
Переглядів 1,2 тис.2 роки тому
I have a concussion... now what? (with Dr. Mark Heisig)
Post-Injury Headaches vs. Migraines- and what to do about them (with Dr. Thompson Maesaka)
Переглядів 1,8 тис.2 роки тому
Post-Injury Headaches vs. Migraines- and what to do about them (with Dr. Thompson Maesaka)
Social Communication + Relationships after TBI (with Katherine Noyes, SLP)
Переглядів 1,8 тис.2 роки тому
Social Communication Relationships after TBI (with Katherine Noyes, SLP)
Sleep Disturbances after Brain Injury + How to Sleep Better (with Dr. Roy Wilkins)
Переглядів 2,9 тис.2 роки тому
Sleep Disturbances after Brain Injury How to Sleep Better (with Dr. Roy Wilkins)
Communication and Cognition after Brain Injury (with Katherine Noyes, SLP)
Переглядів 1,7 тис.2 роки тому
Communication and Cognition after Brain Injury (with Katherine Noyes, SLP)
Rebuilding Life after Concussion (Silvie's Story)
Переглядів 6792 роки тому
Rebuilding Life after Concussion (Silvie's Story)
Dysautonomia and Beyond - Addressing Symptoms after Brain Injury (with Sonia Vovan, PT)
Переглядів 8452 роки тому
Dysautonomia and Beyond - Addressing Symptoms after Brain Injury (with Sonia Vovan, PT)
Frustrations of Living with Brain Injury + Not Giving Up (Bobby Apgar's TBI Survivor Story)
Переглядів 1,5 тис.2 роки тому
Frustrations of Living with Brain Injury Not Giving Up (Bobby Apgar's TBI Survivor Story)
How to Improve Concussion Symptoms on Hard Days (with Dr Jeremy Schmoe)
Переглядів 1 тис.2 роки тому
How to Improve Concussion Symptoms on Hard Days (with Dr Jeremy Schmoe)
Concussions, Depression, + Mental Health (with Bella Paige)
Переглядів 1,4 тис.2 роки тому
Concussions, Depression, Mental Health (with Bella Paige)
Finding Yourself Again after TBI (Madi's Survivor Story)
Переглядів 2,2 тис.2 роки тому
Finding Yourself Again after TBI (Madi's Survivor Story)
Vestibular Rehabilitation in Brain Injury
Переглядів 1,4 тис.2 роки тому
Vestibular Rehabilitation in Brain Injury
Applying Creativity to Brain Injury Recovery (w/ Ali Rheaume)
Переглядів 4942 роки тому
Applying Creativity to Brain Injury Recovery (w/ Ali Rheaume)
Feel like a monster, i hate that part of me. My family avoid me, and im the head if house. Im ignored. That is exactly it, im different and the world is different. Its very scary. I eas hurt 1 week before lockdown. Im still hiding.
Wow, I needed to hear this today. Thank you!
There should be a 24 hour line for anger tantrums 😂
*deep sigh* lol Where were you in 1962? Car accident, damage to most of the left side of my head, woke up 3 fays later. The interesting part is that I didn't know about TBI until around 1996. Funny/interesting chat with a Psychologist around 2010, " That happened years ago, it's not relevant now." Was director of Brain Injury Assoc. of Alberta for two years and discovered that most Doctors were unaware of the prevalence of TBI and the long term effects. Good on you for bringing light to an invisible problem That few, within or outside of the affected community are aware of. God bless you my friend.
Great interview, keep up the good work on this channel, it covers a topic very few in youtube give attention to, your personal experience gives it a touch of magic. I'm currently learning more about tbi because my brother has it, we never saw any symptoms until he finished high school and all the psycological issues started showing up, that's when we started doing the testing, listening to you brings light to many things
I've been through hell this helped alot
The best thing I have heard in years. Thank you so much.
"A brain injury is the only time that we ask the injured part to regulate itself any other part like if you break your leg it"s your brain that helps you regulate how much you use that leg, if you pull a muscle its the brain that regulates that. But with a brain injury we are asking the other body part to do the heavy lifting and sometimes that doesn't always work." Also love the explanation and coining of the term "JUSTIFIABLE PARANOIA". I mean THAT!!! So true.
I received mine in 2020 I was involved in a motor vehicle accident. It punctured through my brain wall on my frontal low and I lost my orbital socket and temporal bone. I’m still trying to figure it out thank you for putting this content out there. I’m currently going through a divorce now I think she was not strong enough for me to recover and I find out the rest of society is in either we have to fight to stay with people
Good stuff. Try to increase the sound levels when recording if you can 👍
Vestibular Therapy for me was not good. I wosh my therapist warned me to not overdue it. I know you've had a podcast that said not to overdo it but I needed my therapist to not push me and know not to push me.
I just thought I was gettting old and having issues. It wasnt until this group helped me realize there is something more to it. I started researching and listening and asking. After a 3 week program for TBI PTSD at Brave in WI, I was able to realize that it is an issue that can be worked on and there is help out there if you want it. Realize that you wouldnt ask yourself or someone else to climb a ladder if their leg was in a cast, this TBI is an invisible cast but no less hindering. Thank you Todd for helping me and my wife get some answers.
Wow. You two are my people. I have had many of the issues you are talking about since my injury in January, 2022. I have used the term "untethered" to try and explain my dizziness and headaches and head aches. M y ears constantly ring... and yes, I am tired of talking about how I feel, explaining it, but at the same time it is all I can talk about. Unfortunately, I am dealing with anger now. I lost my father two weeks before my injury and my mother 6 months after my injury. New normal? Isn't it so confusing... Thank you for your podcast and your friendship.
I'm thriving at HASCI (Head and Spinal Cord Injury) in Greenville, South Carolina.
This has been the most informative video I’ve seen about TBI’s impact on sleep!!!! (And I’ve watched a lot, lol) You put words to things I’ve tried to explain to others about what’s happening. It’s so exhausting living with this mentally, and trying to explain it is even more so. Thank you for normalizing that in a way that those of us watching know we aren’t losing it. That they are common and valid experiences for TBI
I’m not certain but I have had extreme issues with emotional regulation. Extremely forgetful, I’ll misplace legal documents, or earbuds, or jewelry. This usually sends me into an adult temper tantrum. I’ve been diagnosed with ASD but never really identified with any element other than the rigid thinking. My father was very disregulated himself, and maybe 3 weeks to a month ago I found out he would beat me in my crib as a baby for crying. I would come home from his house covered in bruises. Very young, no memory. I do remember being over at his house for visits and him getting frustrated either at me, my brother, or his game and throwing us in the direction of his bed. Sometimes we’d land on the mattress, other times the backboard. I had to be told by my Brother who remembers it vividly, as I had blocked it out. My disregulation is dangerous to myself and others, and trying to keep a lid on it is my hardest battle, but one I fight for the people I love, and who are positive forces in my life. Between throwing things, screaming until I get these “swirlies” in my vision, and self cutting, it leaves me feeling so disgusted because I never even began to consider that my brain might have actually been damaged through it all. I refused to. I wanted to know I had full control but the truth is I don’t. I have yet to even begin to understand what’s actually happening chemically in my brain. I can’t be certain, as I’m unable to afford a brain scan, but this sounds a LOT like what’s happening. I can’t stop crying I don’t know If I feel relieved or afraid. It feels like hopelessness has taken the place of my shame.
Important that this is finally being acknowledged within the veteran community. Countless soldiers who were doing their jobs suffered greatly because the injuries weren't recognized or addressed. Hopefully they'll soon be able to access the proper healthcare needed to treat those service connected injuries.
He states the new eye tech determines metabolic disorders and he refers out of its mold, Lyme etc BUT a concussion is in and of itself a metabolic disorder
Does anyone feel nauseous at times? Hard to swallow as well?
Thank you for sharing this Important conversation. 👏👏👏 Awareness Eventually begets action and response. All Too Slow... for the 22 Veterans that took their Lives, EACH Day... before Their help Ever came... 🇺🇸🙏 May GOD be with America!
I have had two major brain injuries within months of each other. I have had so many issues that you describe. 😢 it is the worst experience ever. 2:00
Thanks for your dialogue. My messy had been a burden beyond understanding until recently being diagnosed with TBI from MVA....it took 3 years before any Dr would say concussion! I've been getting great help in Tucson, AZ from SPARCC and Arizona Vision Therapy Center. Dr Amy Thomas is guiding me through my journey. She and her team have been wonderful. Syntonic lense therapy has shifted things in my brain. Structural Energetic therapist has adjusted my C1...a most intimate process. Great relief and comfort in my neck and head. Still emotionally out of balance but working on coping techniques. It's probably too late to salvage the friendships and relationships I've shattered with my irritability and outbursts of rage, but now I know why I was "that way"....A part of my messy. Less lonely is still lonely. J
I was discharged from the Army in 2007 and for the past 17 I've just thought I was a terrible person who could never do anything right. It started out small; just little things. But then it seemed like things got harder and harder, and I got crazier and crazier. My inability to control my emotions and behaviors ruined my marriage and almost all my friendships. I developed unbelievably unmanageable addictions. All of my bills piled up and collection agencies began coming after me. Not because I had no money, but because I just couldn't keep track of anything executive. I'm basically unemployable. I found myself alone, disillusioned, and hopeless. I became suicidal. It was just this last Monday that I was admitted to the VA psychiatric hospital. It was there that I learned about TBI and how my head injury, which was basically ignored by the Army (ibuprofen and a week in sick bay), could be the root cause of all of this. I can't believe it took me this long to make that connection. I feel like I've lost an entire life. I don't even know what to think right now. They start my cognitive and neurological testing next week. Omg I hope that things get better.
It helps to know that others went through a similar journey post TBI. Great video, thank you. I hope everything is going well with you
I live in England the care here is terrible I was unconscious completely for 2 days fell on my head after falling out the loft. My friend was with me when it happened. It took 6 hrs for the Ambulance to come. I spent 48 hrs in A and E then they kicked me out the hospital. They said they had no beds . My friend took me home I was unconscious for 3 weeks. My neighbours looked after me I had no care from anyone from doctors or hospital. Deborah
I had my brain injury on the 1st June 2024 Deborah
So what is he’s recommendation if it’s microscopic in brain and neck?
Dizziness woozy heavy heads anxiety atf since jabs
Such an incredible young woman. God speed!
This is an eye opener. This girl ive been dating has had brain surgery, and does most of what you describe. I normally get a little upset with her, but now i know to give her patience and grace. Still annoying though lol
I’m glad you said that, I don’t want to upset people I want to be on my own but everyone keeps coming round. I feel like screaming at them. I don’t want to up set everyone. It’s only been 4 months since my fall . I get burnt out really fast and don’t like listening to small talk it’s so unimportant.
Wish I didn’t have to deal with this shit but here we are 6 years later
I asked this Q on many platforms... 15 years After brain injury, does anyone have extreme headache (brain pressure) but ONLY before weather change, change in atmospheric pressure?! And how did it resolve it? Without pain killers and without brain surgery.... PLEASE answer me, or ask anyone... Did testosterone or any other hormone therapy helped anyone that had EXTREME migranes but only when is weather change.... Of course a lot of others serious TBI symptoms are present, but surviving this "migranes" without pain killers is suicidal.... Help me please, any info is appreciate
I was in denial for 45 years after being run over and killed by a car at 4 years old. It wasn't until this year in April that I could even except that there was anything wrong with my brain. I was raised to believe that I was as smart and able as anyone else.
I think I need to talk to her
I sent a message to my mother after this with a link. So thank you
I didn't survive.. just co exit no One cares about you well majority of us are homeless and alone and more abused in every way.. didn't survive nothing
Thank you for this, these are so useful I am going through a lot of the videos from a while ago all at once.. one at a time 👍🏻
PLEASE READ. I am asking this question to see if anyone can relate to this feeling Hello if anyone who has/had Post concussion syndrome headaches constantly like your brain just feels off, like a throbbing pressure pounding in your head I really really want to believe it will resolve itself especially now that I have just started trying to go on walks and treatment for my neck but I’m very afraid this torture feeling will continue forever. Has anyone had these headaches before because they aren’t like ‘normal’ headaches.. no one would understand what it feels like unless you’ve experienced it Thanks for reading please comment if I’m not the only one, I just want to know I can heal this
Yes I had them. The therapy I had didn’t help no meds helped. I found a chiropractor, the specializes in neck and head trauma after one session my headaches went away.
@@hummingbird7713thank you so much for responding and anyone else. Wow really one session that’s amazing. I am in physical therapy and they are working on my neck since I have a compression injury, lt is a huge relief that your neck was a main contributor I think mine could be that too
I've had double vision for 45 years
Inersha
My daughter got a concussion at rehearsal for her high school play. She fell backwards off the stage. The next day, she stage managed opening night.
Who treated your Dysautonomia?
I had my concussion March 2021. Was told same thing go home and rest! By er doctor. After that workman’s comp told be I could back to work! I couldn’t get out of bed without passing out. Worked for a hospital. They “couldn’t” hold my job by July. Lost job insurance pay. I still to this day haven’t gotten much help since that July. I always said it’s my eye and neck. So I just suffer . I wouldn’t wish this on anyone!💔
I’m really sorry to hear that you had that experience I’m going through my own hell too you aren’t alone in this
Thank you for creating and sharing this video, as Brain Injury can happen to Anyone, at Any time. Our Medical Professionals, Emergency Rooms, and GP's, must update their Awareness and Training, to recognize and properly treat Concussions at all levels. As well as establishing accessible Rehab facilities around the country. Those that have suffered from concussions, may be one of the best Resources to learn from.
This is so useful for Me to hear because I’m sure others can relate to how scary even existing can be with the symptoms especially with flare ups or bad days. I’m only 4 months in with My post concussion symndrome I hate my life like this and all I want to do is stay in bed and watch tv, it’s taking everything I have and more to just go on like 5-10min walks up and down my street every other day
I was like this at the beginning, but it does get easier to deal with things. You have to listen to your body and learn your limitations.
Brain Brain Injury Survivor 2015 TBI Survivor 5-inch head & face scar. Thank you
I have a brain injury since 2016 & you are spot on l feel the same way & act like this & l cant explain myself.
Thank you for this episode!!! Love the guest.
Thanks for what you’re doing Christabelle & big thx too to your speaker 🙏Auto accident in 2005 - Severe TBI & multiple fractures etc. Love that we can all inspire each other 😊