What a great effort to help offset the isolation CRPS can cause. We will be happy to share this on our social media sites to encourage more support groups of this nature. Well done.
This was so wonderful to be able to 'sit in' on a support group. I don't have this around my area, and if know how helpful it is to be able to talk to others going through this. I have one RSD friend and we share our ups and downs, vent to each other, and are there for one another, but to have a group of people to gather and talk openly, listen to other stories, and just know that we aren't alone, is good. I started a Fibromyalgia Support Group in 1991 when I was diagnosed with that and had no one to share the illness with. Since 2007, after being diagnosed with RSD, it's been lonely. I don't have the energy to start a group. This video was the next best thing! I wish there was a way to have a video support group ... a conference call but have us see each other in the group to feel the support.
Wow, what a blessing in lives to have this resource. I kind of am out here in limbo. I haven't found that kind of support group. I am proud of you all.
I feel so alone....i hurt...my Pt said i have Cprs...my doc shot it down and said NO...its not that.My feet are killing me.Im listening to you ladies and everything your saying is what im going through and feeling.
I am a 51 year old man. I was injured in 2001. Compound fracture in my left arm. I was diagnosed a year later with RSD. Constant burning pain in my hand and 3 fingers. It has been hell on earth sometimes. I take methadone and klonopin for the pain. Sometimes that is not enough. Been very hard for my wife and 2 sons. Lately, I have tried edible cannabis. That has helped very much. In 2008 I had stage 4 colon cancer. Sometimes the pain of the RSD hurt much more than the surgery. Very misunderstood. Even by doctors and nurses. I live in LA.
After crushing my foot I've lived with this for 16 mo. Now and it is the hardest thing had to ever deal with the dead numb burning pain 24-7 still trying to walk 100ft can't stand to be touched need teeth removed and a.m terrified to death of it going to my face any one out there share some advice to this condition CRPS type2.
What a great effort to help offset the isolation CRPS can cause. We will be happy to share this on our social media sites to encourage more support groups of this nature. Well done.
This was so wonderful to be able to 'sit in' on a support group. I don't have this around my area, and if know how helpful it is to be able to talk to others going through this. I have one RSD friend and we share our ups and downs, vent to each other, and are there for one another, but to have a group of people to gather and talk openly, listen to other stories, and just know that we aren't alone, is good. I started a Fibromyalgia Support Group in 1991 when I was diagnosed with that and had no one to share the illness with. Since 2007, after being diagnosed with RSD, it's been lonely. I don't have the energy to start a group. This video was the next best thing! I wish there was a way to have a video support group ... a conference call but have us see each other in the group to feel the support.
Wow, what a blessing in lives to have this resource. I kind of am out here in limbo. I haven't found that kind of support group. I am proud of you all.
Thank you so much you helped me help me!
I feel so alone....i hurt...my Pt said i have Cprs...my doc shot it down and said NO...its not that.My feet are killing me.Im listening to you ladies and everything your saying is what im going through and feeling.
I am a 51 year old man. I was injured in 2001. Compound fracture in my left arm. I was diagnosed a year later with RSD. Constant burning pain in my hand and 3 fingers. It has been hell on earth sometimes. I take methadone and klonopin for the pain. Sometimes that is not enough. Been very hard for my wife and 2 sons. Lately, I have tried edible cannabis. That has helped very much. In 2008 I had stage 4 colon cancer. Sometimes the pain of the RSD hurt much more than the surgery. Very misunderstood. Even by doctors and nurses. I live in LA.
Any support group in Seattle/WA area?
After crushing my foot I've lived with this for 16 mo. Now and it is the hardest thing had to ever deal with the dead numb burning pain 24-7 still trying to walk 100ft can't stand to be touched need teeth removed and a.m terrified to death of it going to my face any one out there share some advice to this condition CRPS type2.