A new thrombotic syndrome Spontaneous VITT

Presenters at NTW'24 discuss this newly identified condition and consider:
1. How to recognise,
2. How to diagnose,
3. How to treat.
Chaired by Prof Beverley Hunt OBE with presentations from Dr Will Lester, Dr Sue Pavord and Prof Marie Scully.

[@JL-ui5xl]

Can I please ask your help and advice on my own personal situation as I can not find anybody at the NHS .
I had a myocardial infarction at 42 years old. Then stupidly had the AstraZeneca that caused unprovoked extensive bilateral pulmonary embolism. Been on Apixaban ever since but GP surgery’s keep ignoring all my requests for help. Diagnosed again with Worsening Bilateral PE. Current GP fails to even document my health and I’ve shown no improvement in 3 years . Centre chest pain is now constant and gets really bad at times. Bpm 160 at rest . Blood ox 78 . Can walk 25 metres then can’t breathe.
I know my body can’t keep this up yet I’ve no help
Please I need advice

[@thrombosisuk180]

Hi - can you email [e-mail] and they will be able to reply

[@JL-ui5xl]

Shame that nobody did reply

[@thrombosisuk180]

@@JL-ui5xl we did reply - please email [e-mail] who will be able to discuss your questions with you

[@debby3959]

I broke my ankle 2 weeks after the AstraZeneca vaccine. I then got bilateral PE's 2 weeks after that. My GP refused to consider that the vaccine could have played a part, but reluctantly agreed to give the Pfizer for the 2nd vaccine. Is there any way of knowing? Many thanks

[@thrombosisuk180]

@debby3959. if you can email [e-mail] they will be able to discuss with you