As a nurse with a newly diagnosed fiancée I don’t know how someone without a medical professional living with them does it. I just had a patient that was new type one and educated him as best as I could about insulin and titrating insulin, which is a huge huge part of type one. I’m glad you made it through. Adult er’s should have better training on type one because it is definitely not the same as discharging a type 2 patient.
Very much on point! They just did that to me about two weeks ago! They made it look like I was going to fall dead after I left the hospital!! Them docs needs education….
Hi. T1DX61YRS. And I am 62. I was dx 1962. For the first 20yrs of life, my Drs usually gave me new orders, told me to go home , then tell them my results. I felt like a science experiment. I now use a pump and CGM. Recently I decided to trust a specialist in diabetes type 1 in adjusting my basal rates. I was having many low blood sugars across the board. I knew I needed to reduce my basal rate overall. But, the amounts this person recommended caused me to have excessively high blood sugars overall. Took me a month to correct everything. Told me again I know my body after all this time and that specialists can be careless in their egos. My Ha1c went from 6.2 to 7.8. I am now back to a 6.2. I will say my doctor is a general practitioner and knows what a diabetic needs to balance. I do not go to an endocrinologist.
Hi to be honest hospitals an clinics should have a few people that have diabetes like us working for them cuz it’s true I talked to my doctors or some dietitian bout symptoms or questions an most of the time they don’t understand I mean I’m great full for them trying but it’s confusing an misunderstanding like that’s not what I’m talking about I went to School for MA an got my diploma but it’s hard to get a job cuz I don’t have experience in medical hospitals or clinics an I try so many times I forgot most of my experience in school cuz I was focusing on getting a job in the medical field but I was working as a dishwasher too lol hated so bad
I was sent home on a sliding scale, 2 forms of insulin, and something pill formed. I saw a dietitian 3 days after being released from hospital (blind like you) and while sitting with her, I started to drop. They escalated me to an Endo within days, and the pills I was given, were a mistake. I somehow managed to guestimate my insulin needs for a year and a half until I needed an insulin to carb ratio to go on my pump. My endo was fine with it because I was doing a good job with control. I can't even remember when I ditched the sliding scale. Also, the hospital had me on Insulin R which stays in your body longer. The nurse thought she was helping me by giving me my pen that I was using to save me money. My scripts were for Regular insulin, so that was messing with things as well. It was a crazy time.
Only T1Ds can truly understand the complexities of this disease. I was lucky my diabetic educator was T1D herself for 30 years. She was shocked that when I was diagnosed I was not given meal time insulin.
Hi samantha great video I had the same experience only 9 months in can i ask you how can you help with foot to the floor sugars in morning i stay flat all night but as soon as i wake boom goes up makes a lie in so hard thank you
As a nurse with a newly diagnosed fiancée I don’t know how someone without a medical professional living with them does it. I just had a patient that was new type one and educated him as best as I could about insulin and titrating insulin, which is a huge huge part of type one. I’m glad you made it through. Adult er’s should have better training on type one because it is definitely not the same as discharging a type 2 patient.
Very much on point! They just did that to me about two weeks ago! They made it look like I was going to fall dead after I left the hospital!! Them docs needs education….
Hi. T1DX61YRS. And I am 62. I was dx 1962. For the first 20yrs of life, my Drs usually gave me new orders, told me to go home , then tell them my results. I felt like a science experiment. I now use a pump and CGM. Recently I decided to trust a specialist in diabetes type 1 in adjusting my basal rates. I was having many low blood sugars across the board. I knew I needed to reduce my basal rate overall. But, the amounts this person recommended caused me to have excessively high blood sugars overall. Took me a month to correct everything. Told me again I know my body after all this time and that specialists can be careless in their egos. My Ha1c went from 6.2 to 7.8. I am now back to a 6.2. I will say my doctor is a general practitioner and knows what a diabetic needs to balance. I do not go to an endocrinologist.
Hi to be honest hospitals an clinics should have a few people that have diabetes like us working for them cuz it’s true I talked to my doctors or some dietitian bout symptoms or questions an most of the time they don’t understand I mean I’m great full for them trying but it’s confusing an misunderstanding like that’s not what I’m talking about I went to School for MA an got my diploma but it’s hard to get a job cuz I don’t have experience in medical hospitals or clinics an I try so many times I forgot most of my experience in school cuz I was focusing on getting a job in the medical field but I was working as a dishwasher too lol hated so bad
For sure!!!
I was sent home on a sliding scale, 2 forms of insulin, and something pill formed. I saw a dietitian 3 days after being released from hospital (blind like you) and while sitting with her, I started to drop. They escalated me to an Endo within days, and the pills I was given, were a mistake. I somehow managed to guestimate my insulin needs for a year and a half until I needed an insulin to carb ratio to go on my pump. My endo was fine with it because I was doing a good job with control. I can't even remember when I ditched the sliding scale.
Also, the hospital had me on Insulin R which stays in your body longer. The nurse thought she was helping me by giving me my pen that I was using to save me money. My scripts were for Regular insulin, so that was messing with things as well. It was a crazy time.
@@Type1Tribe sorry I novelled 😊
Only T1Ds can truly understand the complexities of this disease. I was lucky my diabetic educator was T1D herself for 30 years. She was shocked that when I was diagnosed I was not given meal time insulin.
Mam. When cure will come
Hi samantha great video I had the same experience only 9 months in can i ask you how can you help with foot to the floor sugars in morning i stay flat all night but as soon as i wake boom goes up makes a lie in so hard thank you
I take tresiba at 5 pm every day
I'm on mdi
@@Type1Tribethank you