The BAHA - My Experience

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  • Опубліковано 3 гру 2024

КОМЕНТАРІ • 87

  • @LetThereBeEars
    @LetThereBeEars 3 роки тому +5

    I loved the Ponto for it's durability. It could withstand all types of sweat and moisture. Truly a well built BAHA! 😎

  • @dorabuji4582
    @dorabuji4582 3 роки тому +2

    Thanks for sharing ur experience mam 😍
    I'm faced same situation..

  • @hilyamused
    @hilyamused Рік тому +1

    Great video and thank you! Does the implant cause issues with future MRI's?

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому

      it can create a small shadow. However, with the post style the shadow is very small so not considered concerning. A magnet style baha was not recommended as the shadow is larger and I am being monitored for tumor regrowth. It is safe to have mris with the implant. You just remove the processor (and there are particular settings to have the mri machine at).

  • @danielledewitt1
    @danielledewitt1 10 місяців тому +1

    I have a magnetic baha, not for long, it irritates my skin so having it replaced with the clip on abutment type.

  • @hellokitty0160
    @hellokitty0160 Рік тому +1

    I'm deaf on my left side and I'm liking it I originally wanted the magnet but I was told it's easier to lose

  • @thomaswallcoveringllc8164
    @thomaswallcoveringllc8164 2 роки тому +1

    Great video! Very disappointed that Oticon is selling it’s organization to Cochlear!😢😩

  • @HelenaRG71
    @HelenaRG71 2 роки тому +6

    I am also deaf on one side since I was 12 years old (now I am 50) due meningitis. 10 years ago I went to a specialist for a BAHA but decided against it back then. As I am now a mono person for most of my life, I wasn’t ready back then. Now there are new BAHAs on the market, e.g. the new BAHA 6 max, and it looks quite interesting. I had big problems in the COVID pandemic as everyone was wearing a mask. I wasn’t aware that I was lip reading so much all the time! I understood people very badly in louder surroundings! Never noticed that before so I think I will contact the same specialist again and maybe have the surgery. I am just concerned to loose to much hair then, i have very long hair and I don't want to have my head shaved too much. How many hairs did you have removed? All the best, regards from Switzerland.

    • @LuckyBrainTumor
      @LuckyBrainTumor 2 роки тому +2

      Almost no hair was removed. I have a small scar where the hair doesn't grow from my prior brain surgery. They used the same scar area to install the baha. You can't see it, even if you look hard.

    • @erikolsen1333
      @erikolsen1333 Рік тому +4

      I sympathize and understand all you are saying. SSD all my life the pandemic was so hard for me to understand the world around me

    • @DontBugCandy
      @DontBugCandy 10 місяців тому

      I got a cochlear implant. It like it a lot. It doesn’t plug into my head but there is a magnet on my skull that it sticks too

    • @HelenaRG71
      @HelenaRG71 10 місяців тому

      @@DontBugCandy Great to hear it works for you and you like it. I cannot have a cochlear as my hearing nerve is damaged. No signal to the brain anymore.

  • @dodgers175
    @dodgers175 2 роки тому +3

    Hi Emily. I'm also single sided deaf. I lost my left side hearing in 2018. I currently use the BAHA 5, however, I', waiting on delivery of my new BAHA 6. Love to chat.

    • @SabinaLeonBarra
      @SabinaLeonBarra 10 місяців тому

      Hola donde lo consigo el BAHA

    • @Kmpangle
      @Kmpangle 4 місяці тому

      I also have single sided deafness in my left ear with severe tinnitus. Just curious if you also have/had tinnitus with your hearing loss and if so, did the baha help with that or worsen?

  • @robertvigil1847
    @robertvigil1847 2 місяці тому +1

    Thank you for sharing your experience!
    I'm about to get tested to see if can
    qualify for a bone conduction unit. I
    have a choice between the Baja or Osia
    units, or a crossover hearing aid. I'll find
    out on Monday in a week, so I'm
    watching videos on the internet to
    understand and get feedback from
    people like you. Once again, thank you
    for sharing; it's most appreciated.

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      You are welcome! Good luck on your journey

  • @marthaemory1
    @marthaemory1 Рік тому

    Thank you for this video. I had my acoustic neuroma surgery in March of this year and will be getting my BAHA abutment placed in November. I’m nervous about having another procedure so close to my incision from surgery because I’ve had such bad headaches since surgery. Did you have any headaches or worsening of any symptoms (pain, tinnitus) after your abutment was placed?

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому

      nope! I was tired and my skin had to heal from the abutment surgery but no other complications/ interactions. I would say I maybe got a few headaches the first week or two as I was acclimating.

  • @greginfla_1
    @greginfla_1 3 роки тому +2

    Thank you for making the video just left the doctors office they’re recommending a Baha. What is your word comprehension percentage with the Baha? I would love to ask you like 20 questions

    • @AcousticNeuromaAssociation
      @AcousticNeuromaAssociation  3 роки тому

      Emily's contact information is available on the ANA website if you'd like to contact her directly: www.anausa.org/community/young-adult

    • @meireluciadossantos2773
      @meireluciadossantos2773 2 роки тому

      Tenho o Baha e venho tendo muito incômodo no local

    • @LuckyBrainTumor
      @LuckyBrainTumor 2 роки тому

      I would be happy to talk. You can find my contact info here: www.anausa.org/community/young-adult
      My word comprehension is 100% when it is quiet. It goes down significantly in a loud environment.

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому

      my word comprehension is 100% in a quiet setting

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      My word comprehension is 81% in background noise

  • @highestsprings
    @highestsprings Рік тому

    Thanks for this. A question, does the implant get infected at all? Does your hair grow back at the abutment site?

    • @elisescharpe2649
      @elisescharpe2649 10 місяців тому +1

      It can get infected or sore if you don't clean up properly. It took some time for mine to heal completely but I know I am a slow healer
      The hair grows back !

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому +1

      you need to keep the skin clean or you can have infections. kinda like maintaining a piercing. My hair grows everywhere around the site except the incision scar (it is right adjacent to my brain surgery scar)

    • @highestsprings
      @highestsprings 10 місяців тому

      @@LuckyBrainTumor thanks , good to know.

  • @angeliquerademakers9530
    @angeliquerademakers9530 4 місяці тому

    Hey. I have my operation May 23 this year. And i hope this friday to get my baha.

  • @shardie78239
    @shardie78239 2 місяці тому

    I just found out about these a few months ago. So can you tell improvement listening to music and watching TV?

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      I have improvement in all listening situations, less fatigue for sure

  • @salsabil44
    @salsabil44 Рік тому +1

    Why are there no subtitles?

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому

      because I made this video years ago and subtitling tech was not as easy as now.

  • @Laughingtackle
    @Laughingtackle 3 роки тому +3

    I'm deaf one side as of 1 year ago. I've gone with the cros hearing aid and I'm currently looking into the baha.
    You haven't filled me with much enthusiasm to get it done now after saying the clarity of what somebody is saying isn't great. Like, for such an invasive thing to have done, I dunno, I just think I'd want more than to know somebody is taking on that side :(

    • @greginfla_1
      @greginfla_1 3 роки тому

      I would love to hear your experience with the cros? Just left the doctors office recommended Baja

    • @greginfla_1
      @greginfla_1 3 роки тому

      Why are you thinking about leaving the cros or are you trying to use both?

    • @TheCybertiger9
      @TheCybertiger9 2 роки тому

      @@greginfla_1 And what did you end up doing ? I've had a Cros now for a few weeks and I'm not overly satisfied.

    • @greginfla_1
      @greginfla_1 2 роки тому

      long story but ened up with a medel cochlear implant.... got it in March 22.

    • @LuckyBrainTumor
      @LuckyBrainTumor 2 роки тому

      @@greginfla_1 that is awesome! Cochlear implant definitely gives you more options than a baha. I am not a candidate for a cochlear implant. I am grateful for the big improvement the baha made in my life over ssd.

  • @JS-vx4tv
    @JS-vx4tv Місяць тому

    How are the natural voices of people received? Does it sound robotic or like Alexa?

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      Hmm, it mostly sounds quiet. A touch robotic. I recommend testing one with an audiologist to see what it is like.

  • @grubbsgrady96
    @grubbsgrady96 7 місяців тому

    thank you for sharing youre experience

  • @Kmpangle
    @Kmpangle 4 місяці тому

    Just wondering if anyone that has a baha, did your tinnitus subside or worsen if you have tinnitus? I am a candidate for a baha after SSHL left side only. I have severe tinnitus in my left ear.

    • @LuckyBrainTumor
      @LuckyBrainTumor 3 місяці тому

      It can help with tinnitus but not guaranteed. It helps some but not all. My tinnitus was removed when I had my brain surgery, so I can't speak to this personally

  • @gthornton3
    @gthornton3 2 роки тому

    Emily , I am deaf in one ear and my Dr thinks the Baha would be a good option for me. What was your recovery time and pain level ?

    • @LuckyBrainTumor
      @LuckyBrainTumor 2 роки тому

      Recovery was just a few weeks where it made any impact in my daily life. I think I couldn't use regular shampoo for 2 weeks. Pain was very minimal. Few days. Then it took a while for the skin around it to heal completely, rather similar to a piercing like a belly button ring. But that wasn't a huge deal for me- just a little skin sensitivity

  • @teenad8703
    @teenad8703 Рік тому

    Emily, i am considering the baha and wanted to know if you can hear a caller on the phone on the cochlear side

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому

      I can bluetooth my phone to my baha and have a call. I cannot hold a phone up to my baha for a call.

  • @salsabil44
    @salsabil44 10 місяців тому

    I am about to get a BAHA. I am completely deaf on the right-side and wear a high-power behind-the-ear hearing aid on the left. The doctors want to install the BAHA on the right but say I will hear on the left. Does this mean my old hearing aid will no longer be required? Or can I still get any advantage from wearing it? And, one final question, is the sound you hear the same as with a hearing aid ie true sound? (I love my music)

    • @LuckyBrainTumor
      @LuckyBrainTumor 10 місяців тому +1

      You will probably still need your hearing aid. I am not sure your exact situation but perhaps they mean the left side will process the sound from the baha? If so, the baha will only work as well as the hearing in that ear. But it all depends on the type of hearing loss and your situation. I only wore regular hearing aids briefly once, so I don't have a great compariosn. I liked the sound quality better with a baha than a hearing aid. The baha isn't the same as my hearing ear. However, I greatly enjoy music with it.

  • @CharuSharma-qd1ix
    @CharuSharma-qd1ix 2 місяці тому

    Hi, emily my doctor recommended me for BAHA, just curious to know does it feel heavy on your head?

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      I cannot tell it is on. When I first got it it took a few weeks to get used to the vibrating feel. The weight is not noticeable

  • @VerbilKint
    @VerbilKint 2 роки тому +1

    No CC 😞

    • @LuckyBrainTumor
      @LuckyBrainTumor Рік тому

      Sorry! Made this at home. I don't know how to do that

  • @chrispriest6464
    @chrispriest6464 2 роки тому

    Hi. Thanks for sharing. I also had an accoustic neuroma and suffered complete loss of hearing in my left ear. Did you try bi-cros hearing aids before you decided on the BAHA?

    • @LuckyBrainTumor
      @LuckyBrainTumor Рік тому

      Yes! I did a test drive of both. I found bi cros very uncomfortable because I have teeny tiny ear canals. Also I liked the sound experience better with a baha.

  • @jameshardy4561
    @jameshardy4561 Рік тому

    Hi. I may not need to contact you but could I possibly arrange for a relative to speak to you- either by email with me as go between as they don’t use email, or possibly a phone call?

  • @GarryHodgkins-uw4ec
    @GarryHodgkins-uw4ec 4 місяці тому

    I find I have trouble on a windy day do you have this problem x

    • @LuckyBrainTumor
      @LuckyBrainTumor 3 місяці тому

      My baha has noise canceling for wind. I hear it at the beginning and then the sound is removed by the device and I don't hear it anymore

  • @haleykinnard3624
    @haleykinnard3624 8 місяців тому

    Did you have tinnitus on your deaf side and if so was it cured after you got your BAHA?

    • @LuckyBrainTumor
      @LuckyBrainTumor 3 місяці тому

      I had tinnitus before I had my brain tumor removed. I had my brain surgery about 6 months before my baha, so my tinnitus was gone before I got my device.

  • @Glorydayshorseanddonkeyfarm
    @Glorydayshorseanddonkeyfarm 5 місяців тому

    My Baha 4 was too heavy and I gave up.

  • @KANGURASK
    @KANGURASK 4 роки тому

    Thank u.

  • @barel1384
    @barel1384 2 роки тому

    How natural is the sound and does the area get sore? Can you feel the anchor when you're lying on your side?

    • @meireluciadossantos2773
      @meireluciadossantos2773 2 роки тому

      Muito dolorida, tenho a mais de quatro anos tem dias que a dor fica insuportável como hoje por exemplo

    • @VerbilKint
      @VerbilKint 2 роки тому

      I've had an abutment for about rights years. The only time nine gets sore is when I don't clean it well. With very few exceptions, like when hair trimming buzzers hit it, I forget that it's there.

    • @LuckyBrainTumor
      @LuckyBrainTumor 2 роки тому

      The sound is a little different. Mostly quieter, maybe a little tinny. You can test drive one with an audiologist and see what it sounds like. The skin around it does sometime get sore/ need cleaning maintenance. I don't sleep on that side as much as I used to, but I can. You can't really feel it.

    • @elisescharpe2649
      @elisescharpe2649 10 місяців тому

      Hi ! I got mine in 2019. I generally can't feel the anchor while lying but it still depends on your position or the pillow's softness. I can't lie down on a hard surface for sure and I have to be careful while hugging my SO. Also, lying on linen can provoke a squeaky sound against the anchor that I absolutely can't stand because it feels like it's coming for the inside 😅
      Also, it still gets sore sometimes

  • @moalf5088
    @moalf5088 5 місяців тому

    What is cost?

    • @LuckyBrainTumor
      @LuckyBrainTumor 3 місяці тому

      It depends. In the US, maybe 30k for the surgery and device. Just the device 6k or so.

    • @Hasi_bazar
      @Hasi_bazar 2 місяці тому

      ​@LuckyBrainTumor is it in dollars??

    • @LuckyBrainTumor
      @LuckyBrainTumor Місяць тому

      Yes ​@@Hasi_bazar

  • @mariacambray7947
    @mariacambray7947 7 місяців тому

    My son had that and gave him alot of infections

    • @LuckyBrainTumor
      @LuckyBrainTumor 3 місяці тому

      I hear that can be a struggle for kids. I have never had an issue

  • @ixxgxx
    @ixxgxx Рік тому

    not interested for my ssd

  • @thewholedeel6238
    @thewholedeel6238 2 роки тому

    Can you hear someone talking to you in a noisy restaurant?

    • @LuckyBrainTumor
      @LuckyBrainTumor Рік тому

      I can. It is still hard though. Better than just one ear, still significantly worse than 2 ear hearing.

    • @easyenetwork2023
      @easyenetwork2023 Рік тому

      @@LuckyBrainTumorMy biggest adjustment was tuning out people in restaurants and other loud crowded environments. But hearing the soft rain on a roof was amazing. So was being able to hear further away and without having to turn the TV volume up extremely loud.

    • @ThatShannon01
      @ThatShannon01 Рік тому

      Hello! How long was recovery? I have guardianship of a 41 yr old with Down’s Syndrome, who had surgery on 8/1, follow up on 8/8 and back for final follow up and device attachment the last week of Sept. I think I’m cleaning it as needed and cleaning it correctly, but it still isn’t healed. With what and how do u clean ur abutment? She’s not in pain, but it’s still slightly tender to clean- I’ve been using saline wash. Ur input is appreciated!
      We love ur video!!!!