This is a great list Jess, thanks for putting it together and sharing it. You've got a great insight into the important points here and there's nothing I would add to it! Speaking with a lot of experience on this, one thing I would like to stress from point 8 is the importance of keeping a journal/ diary. I've found that there's been quite a few occasions where I needed to know exactly when I started treatments/ had relapses or even when I got diagnosed. After 10+ years it's easy to forget about these milestones so having some high level points to hand can be really worthwhile. But more importantly to that, there's been a few times where I've gone for assessments with nurses and neglected to mention symptoms or couldn't remember the finer details of how it made me feel because they happened months prior. It tends to come flooding back a day or so afterwards, so having a record there during consultations is super useful.
Thank you so much Mike! And I know exactly the feeling of forgetting things when talking to MS nurses. Thank you for commenting it really helps the channel but I also think it’s great for people to be able to see different MSers experiences on things like this!!
👏 👏 absolutely fantastic, very impressive. Not watched it in it’s entirety yet but I am enjoying it. I Know mike, he owes me a pint 🤣. I need to know discover what the C is for after Mike 🤔
I’ve just been diagnosed but I don’t really want to tell any of my friends, not even my best friend as I feel she would tell her girlfriend who I also see a lot and spend time with her friends. I don’t like the idea of people I’m not close with knowing , don’t know what to do
Hey, hope you are doing ok with your diagnoses and symptoms. I’d say with telling people you really just have to go when you feel ready. I guess with people telling others you’d just have to say up if you asked them not to whether they still would and if you are comfortable with that situation. It took me a long time to tell anyone outside of my family but I’m really glad I waited till I was ready and comfortable with people knowing
@@jesswithms2275 thank you I’m doing ok now at first I thought my life was over as I’m only 20 but I’m starting to accept it :) yeh I don’t know why I thought I had to rush to tell everyone I think I felt bad like it was a secret but yes I think I’ll wait when I’m ready too and hopefully people will accept it
@@unicornvggghhu4285 I'm glad you are doing better now and starting to accept it, I was 17 at diagnosis and I know it took me a long time to accept and work through so take your time but remember your life isn't over and you can still do so many amazing things, even if you have to do them in a slightly different way! I understand but remember that it's your diagnosis and it is a big thing for you to deal with and you have to feel ready before everyone knows and it's something that is completely up to you to decide when you are ready, no one else, and anyone who doesn't accept is probably isn't worth having around aha. I'm sure the people that matter will embrace it, because it doesn't change who you are and you didn't chose it. Good luck with everything, I wish you well in your journey with MS, always feel free to contact me if you need someone to talk to about anything
This is a great list Jess, thanks for putting it together and sharing it. You've got a great insight into the important points here and there's nothing I would add to it!
Speaking with a lot of experience on this, one thing I would like to stress from point 8 is the importance of keeping a journal/ diary. I've found that there's been quite a few occasions where I needed to know exactly when I started treatments/ had relapses or even when I got diagnosed. After 10+ years it's easy to forget about these milestones so having some high level points to hand can be really worthwhile.
But more importantly to that, there's been a few times where I've gone for assessments with nurses and neglected to mention symptoms or couldn't remember the finer details of how it made me feel because they happened months prior. It tends to come flooding back a day or so afterwards, so having a record there during consultations is super useful.
Thank you so much Mike! And I know exactly the feeling of forgetting things when talking to MS nurses.
Thank you for commenting it really helps the channel but I also think it’s great for people to be able to see different MSers experiences on things like this!!
👏 👏 absolutely fantastic, very impressive. Not watched it in it’s entirety yet but I am enjoying it. I Know mike, he owes me a pint 🤣. I need to know discover what the C is for after Mike 🤔
Thank you so much!! I’m really glad you are enjoying it 😆
I’ve just been diagnosed but I don’t really want to tell any of my friends, not even my best friend as I feel she would tell her girlfriend who I also see a lot and spend time with her friends. I don’t like the idea of people I’m not close with knowing , don’t know what to do
Hey, hope you are doing ok with your diagnoses and symptoms. I’d say with telling people you really just have to go when you feel ready. I guess with people telling others you’d just have to say up if you asked them not to whether they still would and if you are comfortable with that situation. It took me a long time to tell anyone outside of my family but I’m really glad I waited till I was ready and comfortable with people knowing
@@jesswithms2275 thank you I’m doing ok now at first I thought my life was over as I’m only 20 but I’m starting to accept it :) yeh I don’t know why I thought I had to rush to tell everyone I think I felt bad like it was a secret but yes I think I’ll wait when I’m ready too and hopefully people will accept it
@@unicornvggghhu4285 I'm glad you are doing better now and starting to accept it, I was 17 at diagnosis and I know it took me a long time to accept and work through so take your time but remember your life isn't over and you can still do so many amazing things, even if you have to do them in a slightly different way! I understand but remember that it's your diagnosis and it is a big thing for you to deal with and you have to feel ready before everyone knows and it's something that is completely up to you to decide when you are ready, no one else, and anyone who doesn't accept is probably isn't worth having around aha. I'm sure the people that matter will embrace it, because it doesn't change who you are and you didn't chose it. Good luck with everything, I wish you well in your journey with MS, always feel free to contact me if you need someone to talk to about anything