Henya Learns About Ironmouse's Illness
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- Опубліковано 15 лип 2023
- Official links below ↓
Henya:
/ henyathegenius
/ @henyathegenius
/ henyathegenius
Ironmouse:
/ ironmouse
/ ironmouseparty
/ ironmouse
/ ironmouseparty
/ ironmouse
/ discord
#ironmouse #henyathegenius #VTuber #Vshojo #ENVtuber #Vstreamer - Розваги
"I would go outside for her" the ultimate sacrifice, Henya a real one
Imagine if she would touch grass too. Oh the sacrifice.
"I would go outside for her" The ultimate compliment a vtuber can give.
Something a discord mod, redditer, or 4chan user could never provide.
@deontaeavila3514 i think they could for a underage girl 🤔
Disregarding her murderous language, Henya is one of the sweetest people ever. Every single clip of her brings me genuine joy.
Henya is a cinnamon roll
@@Dorian_Scott henyamon roll
@@Dorian_Scott hopefully chat well quit corrupting her lol
@@odintoast2018 lol
@@JohnSmith-xq1pz But she isn't seiso. Henya herself even admitted as much in a previous stream.
Mouse's condition has two parts, one is the inmunodeficiency part which puts her at risk if she goes out or gets exposed to any pathogen. The second is the damage she already has for being previously exposed to such pathogens, its why her lungs are busted, she cant process food, her blood is all wack and she was bedridden. That part she can recover from, she can heal somewhat and become stronger, regain mobility and lung capacity, but she will never fully go back to 100%
Yeah she had atrophied muscles as a complication of being bedridden. That's one of the reasons she has trouble moving around. That part can get better but no doubt it would be a painful slog.
"Can't process food" that's outdated now because she can just only certain food at a time
@@David-nq8cv I mean, she can process food, but because she "ate" artifical food so long, her stomach would never accept complicated food.
Stupid question. If she was healthy enough for it could they transplant in a new set of lungs?
CVID can get "better" it just doesn't "go away", but it can have phases of being less bad as well as treatment making it easier to deal with. Still... i wish mousey didn't have to struggle. My best friend also has CVID, it really sucks.
She seems to be getting back into the form she had before they messed up her medication prior to her getting Ligma, which is especially nice to hear through her singing.
Unfortunately she said as time passes her plasma treatments will become less effective and be required more often until it reaches a point where it can't be increased any more.
A couple of years ago she mentioned how she lost a friend that way, it's obviously not something she likes to dwell on and hasn't mentioned it since.
I don't pretend to even have a clue of the timescale she's working to though and I obviously would never dream of asking so I just try not to think about it and enjoy her while we have her. And long may that be. I wish her and her family health and success.
That's why donating to help fund research is so important, developing new and more effective treatments is what will extend that time frame, maybe one day treating it indefinitely until a cure can be found.
I hope your friend's condition isn't as severe as Mouse's and that they're doing well and the less bad days outnumber the worse ones.
If we learn how to manipulate the genes and be able to do that without dealing harm to the patients, then there's a chance to get rid of things like cancer, cvid, and so on.
Coming from Henya this is actually huge. She said she wouldn't even go outside for kson, who she has known for years at this point and has said multiple times that kson is basically like her big sister.
She's a bit of a shut-in, but exaggerates about how much as kinda a joke. She also talks about going to the store and hanging out with and things. But she definitely prefers to stay home, and I'm sure travel is difficult for her.
Why exactly is she a shut-in?
is she agoraphobic?
One of the big problems with Mousey’s malady is how little is actually known about it.
While CVID _can_ be passed down through parents, only about 10% of cases are due to inherited genes. 90% of cases are some combination of genetic and environmental factors, so developing treatments, a cure, and preventative measures for it is incredibly difficult.
At some point, we might get to a point where genetic problems can be attributed to some DNA being 'wrong.', but we will probably never be able to attribute it to anything other than regular variation aka luck/unlucky. Or maybe it's something like radiation, etc. in the environment causing small random changes.
@@autohmaeThere's something called "crispr" that I think might shine a light on genetic disorders in general.
There's a lot to explain about what crispr is but the TLDR is that it can let you see and edit the very DNA of someone before they're born. Theoretically, it could be used as a straight up character customization screen for your unborn child but I digress.
If there is a genetic marker in Mousey's DNA that says "This individual will be born with CVID" crispr could theoretically target that bit of DNA, physically cut it out of her chromosomes, and replace it with a 'normal' version of human genetic code. If her condition was strictly genetic, then crispr might be able to do away with it entirely.
Some scientists are concerned about human trials though, because it can be really dangerous and unethical if used improperly, or even at all. Talkin bout actually playing God here. But there have also been studies on how crispr could fight cancer and last I checked, it was too soon to tell but so far, so good.
Also if you're curious, crispr is an acronym which stands for "Clustered Regularly Interspaced Structured Palindromic Repeats" and it's basically what bacterias have in lieu of an immune system. Scientists haven't even begun to figure out exactly how it can be used because the ethical implications are so damn iffy.
@@chickencurry420 DNA usually turns out to be much more complicated than just 1 element, but multiple different elements spread out increasing the likelihood of something. As I understood it: CRISPR is for the editing of DNA, the seeing is independent of it (well, for editing you need to be able to see too of course). The biggest issue is: our DNA becomes even more identical, so we are less resilient for the next covid, etc. For which some were more resilient than others. But if we are all very similar, it could rip through our societies much faster.
@@chickencurry420 Man, don't bring up CRISPR. That thing gave me a headache when I studied it for a project. Not to mention, from what I read, CRISPR still has issues. I think the newest boy on the block is CPF1.
@@amanawolf9166Oh, I just remember learning about it in school and I thought it was pretty cool so I looked it up on my own.
I was in chat when she asked this question, and it was absolutely heartbreaking. I was almost crying. They'd just finished a Minecraft collab, and there was a part where the two of them were crying while discussing some difficult things they've been through. Henya still expresses a lot of sensitivity about getting canceled, and VShojo screens her Twitter hashtags for her. She also gets emotional about how important streaming is to her, and how unhappy she was before.
Henya should talk to mouse herself about this; she's pretty open to health questions, especially to friends. But it's a very sad story, but I'm sure her limited English limits how much she knows. I'm sure she'll be heartbroken to find out all the things mouse can't do, and will never be able to do.
Henya got canceled?
@@ValFBIAgentno but pikamee was. I heard they were close dayo.
Sigh mousey dosent deserve such a sad fate
True. She's quite sweet. What sucks is that there are horrible, horrible people out there who deserve a much worse fate, and yet, those people are the ones running businesses, they're in politics running governments, and they're just outright crappy people.
Nobody does
@@friktogurg9242Oh shit, I found the far-right Conspiracy Theorist!
"Banksters" Huh?
@@amanawolf9166 Bankster, rothchilds..etc
@@amanawolf9166It's because those people have never had to face real struggle that would teach empathy or growth
It actually makes me so sad. Mousey is a very caring and sweet person who doesn't deserve to suffer from such a cruel fate. Henya wishing to hang out with her is so wholesome.
(Completely unrelated: The BGM in this clip goes hard)
Iron is a good person! Its good she has Connor. I recall the time Connor went to a botinical garden for her while getting mouse a direct feed of the video. She was so happy. I truly wish her the best!
Mouse's parents go outside and meet face to face with her so it is possible.
Henya would have to scrubb down from head to toe and wear a hazmat suit,
but it is doable.
As a person who got sick when little and lost both legs it’s better to just ask then stare and wonder I have had kids point and grab there parents leg and pull on them and say that guy has no feet I know there just curious and wonder what happened…another thing is people think I was In the army and lost my legs in war which did not happen
"I would love to hang her out."
*mental image: Pink gremlin screaming and hissing as she's hung out the window to dry*
Henya is so sweet! 😭❤️
Henya is a good soul 💜
The wholesome Person Henya is, I swear whenever I turn in her streams, it just nothing but kindness. Makes me happy😁
is that her?!?!?! the kettle girl!?!?! fuck yea!!
We need super cute Henya and Mousey hanging out fanart now lol
There are people with CVID who got their Life back. They even were able to got children but I think mouse is an extra worse case... But maybe one day it is possible. Who knows.
Henya is a sweetheart. Mousie has good friends.
irondawg that rock meme was so good lmao subbed
Imagine a charity raise for irl Ironmouse +Henya+Connor stream
Aww, Henya.
Go to america to see Ironmouse...and get Reese's.
Every time i hear about Ironmouse illness, in my head start playing trailer of Warhammer 40K mechanicus. At the moment i understood weakness of my flesh, it disgusted me. I hope medical technology will advents faster to cure this errors of nature.
This hurts.
One day we'll learn mouse's condition will get worse and we won't be able to hold back our tears
maybe henya can visit her one day :o
note: henya hates to go outside
I wish we can find a cure for mouse…
"Hang her out". Hehe
Sadge.
Trust in chinese medicinal
so wait why not make the girl a bublle to walk around in like the classic movie bubble boy... then atleast she could go outside. honestly I always thought mouse had a mental/ psychological trauma to not go outside instead of a rare real disease, its worse than I thought and I feel bad, cause her voice is so good.
Sadly her voice was better but her condition weakened it. She was an opera singer in training before she had to isolate
@@KodyakCombs Yes, she got an infection in her lungs (MAC) that she couldn't get rid of because of her CVID so it damaged her lungs and throat.
It's why she's on supplemental oxygen, which also gives her regular nosebleeds.
Her voice was always high pitched, hence the training as a Coloratura Soprano, but the damage limits her ability to access her lower register.
As you said, her voice is not as strong as it should be, although it's so much stronger than it was just two or three years ago.
A suit like that wouldn't work, because they'd contaminate their living space while getting out of the suit. The original movie "the boy in the bubble" (not the more recent comedy "Bubble Boy") was based on a real person with SCID, and he criticized the movie for that element, among other things.
CVID isn't as bad as SCID, so she can go outside, with PPE, for limited amounts of time, to go to the hospital or something. They make special arrangements to have her arrive before normal opening hours so that she's exposed to as few people as possible. But for 3 years while COVID was serious, she couldn't even go to the hospital.
@@fwiffoI think for her going out and so on the existing damage is part of the barrier such as her lungs being damaged, her muscular atrophy that is improving, and the missing organs.
What is ironmouse illness? I didnt watch anything about it yet
CVID (not to be confused with COVID-19) basically her immune system doesn't work. This leads to her more easily catching other sickness, and also makes it harder on her. This resulted in her being bedridden and not being able to eat solid food for a long time, but from what I've heard these days she is moving around a bit using a walker and eating some solid foods.
She doesn't want advice, and we shouldn't talk about it constantly, she's not just some disabled latina she is Ironmouse.
It just eat and sleep there is a emergency to remove covid it only emergency only many people losted there taste strange for me I didn't just only bit more resistance to spicy more but you do feel weak in you atlases should recover on 10th day that when you recover off covid completely it just stay in your own room to get out room wear mask it high risk that it feel like no joke p.s idk how iron mouse got covid hope she recover
Isn't mouse in Puerto Rico?
Puerto Rico is the USA. It's a territory. All US Territories are legal parts of the USA and it's citizens are US Citizens.
She used to live in Puerto Rico, but her recent move required a flight, so I'm assuming she now lives in mainland America. No idea which of the 48 states it is though.
Wait wait wait wait did I hear that correctly she would go outside for mouse but not kson 😱😱😱😱 nope believe it when we see u go outside henya 😂😂😂😂 u say outside but do u really mean like outside going to other place and other countries with others or just staying a few mins outside and never going back out again we must have the answers
We must see if u truly shall go outside now we will be waiting til then 😋😋😋😋
wait wait wait, is Ironmouse really sick
Yeah. There is quite enough info from Mouse herself if you check clips, this is probably the best source to look for
Hers is chronic, but thankfully not worse than that as long as she's is super careful.
@@DeadDanganronpaGuy And is able to get plasma and medicine. But still pretty much impossible still to just go outside, not sure if that would even be possible again with the medicine.
CVID is uncurable.
Like cerebral palsy or ALS (which killed Stephen Hawking) it's something you have for the rest of your life. The best doctors can do is treat the problems that the disease creates.
yes but not in the "she got sick" sort of way, its something she's had for a very long time that just makes her fully unable to fight any degree of infection or disease
God I love pikamee
Idk
while I agree video game addiction is an illness people need to stop enabling Ironmouse otherwise she will neve get better.
Lmao