Ostomy Change After Surgery - Optimizing My Routine to Make It Last! | Let's Talk IBD

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  • Опубліковано 20 тра 2024
  • Thank you so much to Ostoform for sponsoring this video! Get your free sample here: bit.ly/flowassist-seal-samples
    I was really worried after surgery about the integrity of my ostomy appliance having a healing incision underneath of it. I used my FLOWASSIST Seal in my ostomy change to lengthen my wear-time!
    For 𝙗𝙪𝙨𝙞𝙣𝙚𝙨𝙨 & 𝙘𝙤𝙡𝙡𝙖𝙗𝙤𝙧𝙖𝙩𝙞𝙤𝙣𝙨 requests ONLY, please reach out at maggie@redefined-agency.com!
    𝙒𝙤𝙣𝙙𝙚𝙧 𝙬𝙝𝙖𝙩 𝙄 𝙪𝙨𝙚 𝙛𝙤𝙧 𝙢𝙮 𝙫𝙞𝙙𝙚𝙤𝙨?
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    𝙇𝙤𝙤𝙠𝙞𝙣𝙜 𝙛𝙤𝙧 𝙬𝙖𝙮𝙨 𝙩𝙤 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙢𝙮 𝙘𝙝𝙖𝙣𝙣𝙚𝙡?
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    *This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
    Having difficulties hearing this video? Please click the "CC" button on the bottom left of the video screen!
    Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy

КОМЕНТАРІ • 44

  • @LetsTalkIBD
    @LetsTalkIBD  27 днів тому +6

    Try a free sample of the FLOWASSIST Seal! bit.ly/flowassist-seal-samples
    Thank you Ostoform for sponsoring this video! This was filmed a few weeks ago and thankfully still progressing well. :)

    • @dyskover
      @dyskover 27 днів тому

      I saw your video on their site! Noice!

  • @toddrussell1691
    @toddrussell1691 27 днів тому +4

    After using the free samples they sent me i ordered these as part of my monthly ostomy order. I like how easy it is to place and use.

  • @jodil1209
    @jodil1209 26 днів тому +2

    I didn't realize that the ostomy bag held for that long. I'm learning so much from you.

  • @lisatracy2914
    @lisatracy2914 27 днів тому +4

    Sorry to hear about your pregnancy. Praying for you. I love your positive attitude😀

  • @carolehirsch7315
    @carolehirsch7315 27 днів тому +3

    Thank you for sharing so much of your life with all of us. So glad to hear that you’re healing well and I can’t wait for future good news. Be well.

  • @dyskover
    @dyskover 27 днів тому +6

    I just ordered samples! I've been using Convatec moldable 2 pc system, but I've been uncomfortable. Likely my fault, but I've been having more leaks lately and I am experimenting with some of the bags i have on hand as samples and I'm ordering some too. It sux when you lose confidence in your system or your body.

  • @sewlady33
    @sewlady33 27 днів тому +2

    I wish this product had been available when I had my ostomy. It would have saved me SO many times! I can see how helpful it would have been.

  • @sentrylevel
    @sentrylevel 26 днів тому +3

    You're a tough cookie, cutie. I have a stoma and your videos make me feel better. My stoma story is fucked up so I will keep it to myself. Just keep these videos coming mama. Take care.

    • @sakaimae
      @sakaimae 26 днів тому

      I hope you're doing well

    • @sentrylevel
      @sentrylevel 26 днів тому

      @@sakaimae I'm getting tthere

  • @joycefry3324
    @joycefry3324 20 днів тому

    You are very informative to a lot of people. I took care of my dad's stoma . Things are better now , YOU ARE WONDER WOMAN .THANKS.

  • @gordiemeow
    @gordiemeow 27 днів тому +3

    I'm so excited to try a new seal - my current ones work, but they definitely make my skin feel super gross!

  • @LadyGTarot
    @LadyGTarot 25 днів тому

    I got to go to the wound care center finally. The nurse was great in helping me to find something that might work for me. Am in the trial phase to see how long I can wear it. I get it my surgery includes as 12 inch incision. Today the surgeon opened it up - took out a lot of fluid and packed it with tons of packing. So am dealing with working around the incision as well. I have learned so much watching your videos. Thank you for posting them. My difficulty is a stoma that is quite recessed. So have been exploring all the convex options.

  • @Angela-km6re
    @Angela-km6re 24 дні тому

    Omg! I need these!

  • @shaimaakerroumy4910
    @shaimaakerroumy4910 27 днів тому +2

    The best of the best ❤

  • @Sandgee62
    @Sandgee62 21 день тому

    I am going to try the new design ones. I did not like the thicker ones. If these new ones work I would be so happy. Thanks for the video!

  • @joycefry3324
    @joycefry3324 20 днів тому

    I have been watching your videos for a little bit. You are so

  • @deborahshore-robinson5800
    @deborahshore-robinson5800 25 днів тому +1

    I went to a meeting today from secretary. The black bags you can get on a prescription from any insurance. We in the UK don't pay for ostomy supplies but I thought it may help you.

    • @LadyGTarot
      @LadyGTarot 25 днів тому

      wish we had those in the U.S.

  • @emilyhays6458
    @emilyhays6458 27 днів тому +3

    You are going to be the best mom ever!!

  • @lynda777
    @lynda777 26 днів тому +1

    I ordered sample and I told them you referred me.

    • @LetsTalkIBD
      @LetsTalkIBD  26 днів тому +1

      Yay! I really hope you like it!

  • @daneilfagot1772
    @daneilfagot1772 5 днів тому

    First I would like to thank you for what you are doing and how open you are with your ostomy journey. I have had my ileostomy for 15 months its is very high output of liquid, I drink water like its going to run out. I add to my pouch Diamonds from Ostomy Secrets to help thicken the output and they work sometimes. My GI doctor has me on Loperamide 8mg 3X a day, and Banatrol and taking both of those it barley does anything. Do you have any recommendation. Thanks

  • @malloryw6208
    @malloryw6208 27 днів тому +3

    Does your skin get irritated from being covered all the time around the stoma? Do you ever try to let the skin air out? I don't have IBD I just find your videos fascinating!

    • @LetsTalkIBD
      @LetsTalkIBD  27 днів тому +2

      Not really! Ostomy flanges are made out of a material that tries to keep the skin in check!

    • @dyskover
      @dyskover 27 днів тому +1

      @@LetsTalkIBD Where tehe fabric security flanges are integral to the moldable convatec wafer has started to show up dry and itchy. I suppose I could try the powder.

    • @sallydavidson4471
      @sallydavidson4471 24 дні тому +1

      ​@@dyskoverwhat do you use to clean your stoma when you are showering? I use Cetaphil cleanser and it works great to keep the irritation at bay! I also found out I'm allergic to latex which means eating certain foods causes skin rashes! I can't eat bananas, avocado, kiwi & cherries anymore as they have the same chemical compound as latex! Would've saved myself 2+ years of skin/stoma issues if I knew beforehand!

  • @maryhorrigandelaney2316
    @maryhorrigandelaney2316 25 днів тому

    Hi please can you tell did they stop you from Driving after your operation please ❤️

  • @Angela-km6re
    @Angela-km6re 24 дні тому

    If im using a brava protective sheet..do i apply the ring on rop of the ring?

  • @lisah.1448
    @lisah.1448 23 дні тому

    How can we ask you questions?

  • @malinnesse3876
    @malinnesse3876 26 днів тому

    ☀️🌼

  • @eachdaywithGod
    @eachdaywithGod 27 днів тому +4

    May God Keep you and protect you. I love your attitude

  • @user-CharityFFForever
    @user-CharityFFForever 25 днів тому +1

    I have a question sweetheart ,did they remove your belly button ?

  • @mandabedarkar9426
    @mandabedarkar9426 26 днів тому

    Madam my big sister hd stoma cancer she has bag she is senior citizen do u too hd cancer type sorry wht my big sister must eat she nt tkes medicines

  • @chrisjohanson9284
    @chrisjohanson9284 27 днів тому

    🙏❤️👍⭐😊👋😎🌞🌹

  • @fatifleur6200
    @fatifleur6200 27 днів тому

    انا لدي فتحتي تتجه للداخل لا اضنها جيدة لي

    • @LetsTalkIBD
      @LetsTalkIBD  27 днів тому +1

      That definitely can make ostomy changes difficult!

  • @mandabedarkar9426
    @mandabedarkar9426 26 днів тому +1

    Madam my big sister lives alone she can't afford to buy bags little pension she gets

    • @LetsTalkIBD
      @LetsTalkIBD  26 днів тому +1

      Check out Friends of Ostomates Worldwide! www.fowusa.org/

  • @jenniferknowles2023
    @jenniferknowles2023 26 днів тому +1

    Can you shower with your ostomy bag off?

    • @LetsTalkIBD
      @LetsTalkIBD  26 днів тому +1

      Yep! Its a great way to get the skin nice and clean!