VLOG: Getting A Custom Wheelchair That Truly Fits Me

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  • Опубліковано 19 бер 2021
  • I recently got a new custom wheelchair from Permobil that is a much better fit for me. In this video I describe the differences between my first wheelchair and my new one.

КОМЕНТАРІ • 54

  • @HopeAndSunshine
    @HopeAndSunshine 3 роки тому +19

    You make a good point that a person may need a new chair sooner than 5 years, especially after an injury or as a person grows. I wonder what could be done to change the rule?

    • @TwitchHappens
      @TwitchHappens 3 роки тому +1

      Maybe getting a new script from a doctor?

    • @charlieholt4474
      @charlieholt4474 2 роки тому +2

      Doing a yearly review to discuss any alterations or changes

  • @marav4143
    @marav4143 3 роки тому +8

    The new chair is SO much smaller!! It’s super cute love the vlog :)

  • @johnvelas70
    @johnvelas70 3 роки тому +6

    Congrats on your new chair.
    I lifted my friend like you said to, she was super impressed.
    Then I tried to do a wheelie in her chair (she dared me) & failed miserably. She said I'm the 1st person she saw that falls off SIDEWAYS.

    • @JociScott
      @JociScott  3 роки тому +3

      I'm so glad that it worked for you!
      And wheelies are hard!! They take lots of practice!
      Thanks for the update & the laugh :)

  • @paralifetv-youreverydaywhe8314
    @paralifetv-youreverydaywhe8314 3 роки тому +4

    Hello! Great video. I'm t12 incomplete SCI post 22 years!! I was in same situation way back when fitted for my first chair. It was huge and HEAVY!! I was fitted at the time like you with the assumption I would gain weight and not be as mobile as I am today,. However, lol, I remained very active, and still to this day and able to walk with forearm crutches short distances. My second chair 5 years later I dictated the measurements and all is well! Thanks for the video!

  • @davidjtefft
    @davidjtefft 2 роки тому +2

    Just a note,came out of rehab In a 20 inch wide hospital chair.could live with a 16 wide chair that doesn't weigh 44 lbs with out leg rests.been slowly trying to adjust to me,seat height,etc.congratulations on getting it right finally. My wife spent months in kessler west orange so I know they never would have sent me home with such a poor fit as what I ended up with

  • @brin57
    @brin57 2 роки тому +6

    Congrats on the new chair. Whoever scripted Winona should not be let near the job of scripting chairs for paraplegics. OMG , I see this so much in American videos. What is going on. As an Australian 44 year wheelchair veteran, this makes me sad. For future reference, all things being equal, you could easily go 1 inch narrower, and with your level, even an inch or 2 lower back. I'm a T12/L1. Contrary to what some OT's think, the lower back improves your posture by making you sit upright, almost as if you were standing.

  • @RisenPhoenix-82
    @RisenPhoenix-82 7 місяців тому

    I cant wait to watch More of your videos! i just found you today! hope to learn as much as I can. I feel so behind, because pain and injuies have stopped my recovery process so many times. I'm actually still ahead. I had less then a 1% chance to walk again if I made it through the 18 suregery after rolling down a hill in a beverage golf cart at work.

  • @Jaggededge112
    @Jaggededge112 3 роки тому +3

    Hi new to your channel. I feel honored that you chose to name your new wheelchair as Shannon, as that is my name. Also I love it, it's really nice. I need the light up wheels.

  • @AndrewSmoot
    @AndrewSmoot 7 місяців тому

    Two years later...I had Jay Gel cushions for years, it seemed like the gel settled and became less supportive a month or two after I started using them, but, I guess Jay Seating gave the people who prescribed the cushions to me kick-backs because I kept getting them until my current chair that has a seat that was actually designed to support me and not just to treat common symptoms of prolonged sitting. My Matrx Elite E2 Deep is also so much more supportive than previous seatbacks, which were SO uncomfortable that I never bothered to learn what they were/are called.

  • @GAINZonWHEELS
    @GAINZonWHEELS 7 місяців тому

    Nice, I can’t wait (kopple of months) beautiful and see very wel and strong ..

  • @keithhutchins8803
    @keithhutchins8803 2 роки тому +1

    Whoops never mind you got a new chair! Yay!

  • @KT-eh5xs
    @KT-eh5xs 2 дні тому

    chairs are expensive, so insurance will not buy them but every five yrs, and repair the chair in 3yrs. the front casters are the biggest problems for chairs that allow the wheel to sling water up into the bearings resulting in a caster hanging up in a short amount of time. this chair casters are notorious for that. it takes time to figure out the set up that's best to keep water out, even tho the bearings are sealed they don't last long if u run through water holes or get caught in rain storms or using your chair in the winter where someone has put salt down on sidewalks.

  • @estebangarcia5827
    @estebangarcia5827 2 роки тому +1

    This is fascinating

  • @keithhutchins8803
    @keithhutchins8803 2 роки тому +1

    Hi Joci I’m Keith and I too use a wheelchair for ALS.

  • @nellielower5945
    @nellielower5945 Рік тому +1

    Liked your video on opening doors but wondered if you had any ideas if I'm in power chair and have upper body pain and weakness and unable to pull doors open unless very light door. I can push them open using my footplate of power wheelchair to help push a heavy door but am. Unable to. Pull a heavy door open. Any suggestions

  • @josiefrancis8197
    @josiefrancis8197 2 роки тому +1

    Hi Joci I'm Josie What brand is your new wheelchair and can you tell us more about getting a wheelchair from donations . Thanks Happy New Year Josie

  • @morgancalvi6675
    @morgancalvi6675 Рік тому +2

    I wish people would specify 'in the US, insurance only buys new wheelchairs every 5 years'.

    • @rivviegobrr714
      @rivviegobrr714 Рік тому +1

      yeah, good ol us defaultism

    • @qryptid
      @qryptid Місяць тому

      My understanding is it's the same for the NHS and other healthcare in other countries 🤷🏻‍♂️

    • @morgancalvi6675
      @morgancalvi6675 Місяць тому

      @@qryptid your understanding has nothing to do with other countries and their policies.

    • @morgancalvi6675
      @morgancalvi6675 Місяць тому

      @ qryptid....Your understanding is not correct.

  • @bassmansour7723
    @bassmansour7723 9 місяців тому +1

    Did insurance end up paying for the chair even tho it wasn’t 5 years or did you pay out of pocket

  • @Straight0uttaCrofton
    @Straight0uttaCrofton 7 місяців тому

    throw some Daytons on that thing!

  • @user-bo9ph4pn9x
    @user-bo9ph4pn9x 7 місяців тому

    What size backrest did you go with? Also what name brand of Back rest and cushion did you get? Would you recommend The cushion and back rest you got? The a t p I is coming monday and I'm trying to get all my ducks in a row So I know what kind to order

  • @keithhutchins8803
    @keithhutchins8803 2 роки тому +1

    Will your insurance replace just your backrest?

  • @fidelavila9083
    @fidelavila9083 4 місяці тому

    Hi love!!!!!!!!!!!

  • @itzeeyanbaby
    @itzeeyanbaby Рік тому +1

    What type of wheelchair is that?

  • @user-bo9ph4pn9x
    @user-bo9ph4pn9x 7 місяців тому

    What kind of chair is shannon? I caught that you said whynona was an areo z

  • @Francispyr
    @Francispyr 2 роки тому +1

    Did u pay with ur own money or insurance?

  • @groverboliviano5406
    @groverboliviano5406 Рік тому +1

    Una pregunta yo tengo lesión médular en c6 y c7. Cuál silla debo utilizar alguien sabe

  • @ashkinnally6316
    @ashkinnally6316 3 роки тому +1

    Hi. I might be getting a wheelchair (were not sure what it is but it's like my leg stopes working) do u have any advice?

    • @TwitchHappens
      @TwitchHappens 3 роки тому +5

      I am getting my first chair and my advice would be to go to a seating specialist. Really work with your insurance if you have it. I wore tight pants and shirt so that it was easier to see the measuring tape around my legs and hips. Think about how much you can lift and shop for a wheelchair in that weight range. If you drive, make sure that it fits in your car!

    • @ashkinnally6316
      @ashkinnally6316 3 роки тому

      @@TwitchHappens thanks

    • @JociScott
      @JociScott  3 роки тому +3

      I agree with @Twitch Happens! Make sure you go to a wheelchair clinic and get fitted by specialists there so you can make sure you get the best fit for you. There are tons of videos on YT (check out wheels2walking) about getting fitted for the perfect chair, so check those out to see what all your options are. Good luck!

    • @ashkinnally6316
      @ashkinnally6316 3 роки тому

      @@JociScott thank you

  • @davidfoster6545
    @davidfoster6545 3 роки тому

    Hi ! Have you considered a wheel chair with a recliner back . You don’t seem to have any support for your spine . David

    • @JociScott
      @JociScott  3 роки тому +3

      Hi! I had a taller backrest on my old chair but it was actually causing pain because it was affecting my posture. With the lower more flexible back, I am able to sit up straight and challenge my core and back muscles!

  • @LidLockTV
    @LidLockTV 2 роки тому

    Can I buy your old chair

  • @gotobassmsn
    @gotobassmsn 4 місяці тому

    Are you a wheelchair model?

    • @gotobassmsn
      @gotobassmsn 4 місяці тому

      Goto your local bicycle shop for your wheelchair tires, for your wheelchair tires are the same as wheelchair tires. And the cost difference is huge. And the bicycle shop can make sure your wheels are almost trued perfectly. Better in my opinion that a wheelchair supply place. And please tell all your wheelchair user friends this hack.

  • @presley007
    @presley007 3 роки тому

    Nice looking girl! What are you mixed with ?

  • @Originelks
    @Originelks 9 місяців тому

    Mam, I live in India and my mom had brain haemorrhage. Till date she is paralysed. Was looking for a wheel chair and it's cost so much for me. Can you sell me your menonan mam

  • @damodarraju5588
    @damodarraju5588 Місяць тому

    Madam I am a hemipledia and like to purchase wheelchair kindly send me quotation Tq

  • @christianfranke3300
    @christianfranke3300 3 роки тому +2

    What’s the level of your paralysis? Do you have a complete paralysis?

    • @JociScott
      @JociScott  3 роки тому +1

      I am a T12 injury, and I am incomplete... Asia B diagnosed but have some movement in hip flexors and quads

  • @narcisosantiagojr.5382
    @narcisosantiagojr.5382 3 роки тому

    Te felicito eres de inspiración te ves muy bien feliz Dtb cuidate mucho Jesucristo te AMA

  • @HARD-5150
    @HARD-5150 3 роки тому

    Hello How much?

    • @JociScott
      @JociScott  3 роки тому

      I paid for this out of pocket so it was around 5k

    • @jasonrosario5405
      @jasonrosario5405 8 місяців тому

      @@JociScott it’s so sad the cost of wheel chairs it’s really breaking me I’m gna die soon n I can’t get a better wheelchair instead they gave me a wheelchair without even saying theyykl cover it80percent unreal . N I’m not picky but it’s just sad no on deserves 😢to have to deal😢with paying for overpriced wheelchair 😢 I’m glad u got one.I hate my life I wish I had the b alls definitely tired of this world 😢

  • @coldc7
    @coldc7 5 місяців тому

    Ok....very respectfully....youre so cute!🥺