I agree, although I think things have gotten much better than they used to be. I've used a wheelchair off and on for 20 years, and in the beginning I swear it was like wearing an invisibility cloak! I experimented a few times to see if people would see me... I brought drinks into stores or little things like that, and people (including store employees!!) would go out of their way to not see me, or so it seemed. I felt like I could have shoplifted anything as long it would have fit on my lap. Thankfully that's not the case now. More people meet my eye now, and see me instead of just a wheelchair. 😁
It sucks when people ask questions of your parents or friends because they assume you also have a mental disability or are unable to talk, I just wish people would address me directly because I can actually talk.
I’m an incomplete quad. I run a farm. My husband is military, so I also raise my boys on my own 6 months of the year. Oh, and I run a photography business. No help needed.
I also live on a farm, I modified all my big equipment with the help of family and friends , I did all my own farming with part-time assistance for 18 years. Now I rent out most of my land but still have feeder cattle and the 30 acer yard to take care of,. They say that marriages between one able-bodied person and the spinal cord injured person last longer and only have a 20% divorce rate compared 50 with to Able Body. I am also married and going on 28 years
@@scrapboy1318 that must be a tiny wheelchair! Didnt know they made ant sized wheelchairs. Haha sorry I had to. Good for your aunt! Thats awesome! Nurses rock!
Speaking of standing, i stood today! First time i've stood on my own (stabilized by the therapist) since dec 2014! I still got a long way to go, but knowing that i can, has given me a lot of new hope!
@@Wheels2Walking Yep! One day at a time. This past monday i had a recert with my therapist. He critiqued my technique, and showed me what i was doing wrong. Tried the new technique twice, and both times i went right on up! My legs are really tight and i cant straighten them yet, but i stretch them every day. Eventually i'll be straight legged. Once i get there, then i gotta work on pivoting and taking a step. Then i gotta figure out how i'm going to walk out of my door way. Being 7'2" with a back that won't allow for me to bend at the waist, will make it tricky! I'll keep you posted though! You're great inspiration!
Wheels2Walking I think your channel is amazing I have chronic pain and fatigue so for most long distances and some short I have to use a wheelchair and these videos have made me understand a lot about my chair and how to use it so and feel comfortable with using it while be able to walk at the same time but I wanted to say thank you very much
I still have no answers as to why my legs don't fully function or quit randomly after 4 yrs of being told it was this or that or just in my head, but I am not gonna sit around the house waiting for some medical person to figure it out. Hubbie and I are customizing my wheels to match me and make them a part of my get around. Thanks for your inspiration
mother important thing for people to know about wheelchair and powerchair users is thwt it isn't always due to injury that they use their chair. Sometimes it's a disease or condition that makes walking painful and/or difficult. I don't have a spinal injury and am a powerchair user because I have Ehlers-Danlos Syndrome, a rare, genetic connective tissue disorder. The connective tissue holding my joints (and body as a whole) together isn't built strong enough by my body. So I dislocate all of my joints very easily and though this is painful enough, it has also led to my now having osteoarthritis, as well. I love what you say about happiness and a good quality of life being a choice! It's absolutely true! There is always a way, a reason to be happy! There is always a silver lining! This doesn't mean that you shouldn't take time to feel what you feel, to grieve the life you thought you were going to have. My condition is progressively degenerative, so it won't improve or stay the same...it will gradually get worse. Coming to terms with that and with needing a chair meant dealing with the loss of a future that I thought would be different. And that's okay! Take the time to get through the grieving process so you can move on to adjusting to your new normal and learning how to adapt to your new way of movement. 👍 Awesome video, bro!!
Yes that is important! There are many reasons people need wheelchairs. I learned a lot about that in the comment section of my “why do I use a wheelchair if I can walk” video.
Also, the happiness part is freakin hard sometimes. I’m a realist and it doesn’t come easy. This is a hard, unfair life to live. However, like i said in the video, we can choose to do things that make us happy.
I'm a Zebra as well, and just getting into my first custom wheelchair hopefully in a few months (just started the process - currently using an old beat up depot style chair, but it's better than the pain from walking/standing, even so!). I also have what I am 98% certain is adhesive arachnoiditis in my lumbar spine but mainly in the sacrum, and that doubles down on the joint subluxations etc. as far as mobility. I've come to terms with and actually am excited about getting a custom wheelchair because it will give me back mobility I have lost over the last few years slowly and inexorably. I will still have trouble with my upper body, but at least if that's sore I can still sleep. If I walk more than four blocks in a day, I might as well stay up watching tv all night because I'm not going to sleep. What I haven't come to terms with and am still grieving is confidence in my body. I have no doubt I will find ways to do things differently with the changes that are coming, as I have already made many adaptations in my life to accommodate a wheelchair. I'm grateful that I am not completely dependent on my wheelchair, but I'm equally grateful to HAVE my wheelchair, even the depot one. I've never before in my life enjoyed shopping because it was always so painful to stand/be on my feet like that, but when I started using my wheelchair for shopping, I found myself enjoying it! What a difference it makes! I've been watching all kinds of wheelchair related videos to learn as much as I can, because I'm all in.
I just came home from a 4 night party camp… it was grand. Although I was pretty incapable of intelligent speech at various times it had nothing to do with the wheelchair. I also love driving fast.
Doctor on wheel ! I like it. I am 72 yr male ,lower limb muscles dystrophy ,for 2yrs . Looking for a manual wheel ,to buy .Planning to practice, virtual online medicine .Thanks to all of you. METTA ( love/ kindness)
I'm writing this as I'm stuck in bed, barely able to make it to the bathroom and back with my cane. About three years ago I started to develop pain in my hips, which then spread to the rest of my body. I finally decided to buy myself a cane after I stopped being able to leave my house. Now, even with my cane, it's a struggle to get around (especially when people don't give me a seat because they think I'm faking due to me being "too young to be disabled"). My doctors still don't know what's wrong or why this is happening. Last night, I fell on tile flooring and passed out until my roommate found me. It was the final straw. I stayed up until 3am looking up wheelchairs online, and came across your videos. I'm pretty nervous to make the switch, but after watching more of your content I feel so inspired to get my independence back and be able to live my life without pain. Thank you so much for everything you're doing, and I hope you keep it up!
I'm kind of in a similar situation! I get really weak and lots of pain while standing and went to a wheelchair rather than canes and walking sticks. My independence and ability to get around skyrocketed. If you think it's going to help you/make your life better/easier, go for it!
Loved this video, Richard!! I think it’s important for people to know that positivity is much greater than negativity in determining the outcome of an injury on one’s life. You’re a great example for others.
Jordan, I have suffered a motorcycle accident in June/18 which has made me a T6 Paraplegic, to be honest I am still suffering and fighting to come to terms with what happened to me. Your videos however always put a smile on my face and help me deeply touching my heart and bringing some form of comfort and joy to that seems to be a real difficult reality. Please continue sharing your amazing stories and videos as they are fuel to some much needed souls. God Bless you
My name’s Richard. The comment you saw was referencing the clip with Michael Jordan. I was confused too. “Who’s Jordan?!” lol 😅. I’m happy that you’re here and watching these videos. They’re made exactly for guys like you. That’s the whole point of my channel, to show guys just like you that you CAN have a compelling future and that you CAN live a normal life. Find me on Instagram and sign up to read my UNTOLD story linked in description. Talk with ya soon. (Also, my captions on IG are pretty fire too 😉).
Sorry Richard, my name is also Richard but in Portuguese so it is Ricardo!!!! Great to share the same name with such a hero!!! Keep it strong brother@@Wheels2Walking
@cadboy07 thank's for the kind words man, just completed an year of my accident and emotionally I am having a really hard time but I will keep praying and fighting to get better!!!
I want to thank you for the videos and emails. Pain is my biggest thing to get over. I'm a T11-12 complete. I just want to stop taking so many drugs. They make me tired and fuzzy. I think your awesome and uplifting...😊😊😊
I just found your channel today trying to figure out how to be more independent in my wheelchair, and what a blessing! I suddenly lost use of my legs at work two months ago for no apparent reason, and according to the doctors it looks like I have MS. I can still walk a bit on my own, but not far. If I want to get out and continue living my life, I need a chair for now. Your videos are such an encouragement, thank you for taking the time to bless others through your experiences! Your honesty is inspiring!
I’m so glad you’re here! Welcome! This channel is made for new wheelchair users like yourself. Although I have a spinal cord injury and a lot of my content is directed that way that doesn’t mean you’re not a part of the conversation! We’re all wheelchair users and can learn from each other. Be sure to jump on my IG too. I’ve got a lot of great stuff on there too.
I am 72 yr medical doctor with sudden progressive weakness both legs for 2yrs. Whatever the diagnosis, swimming is the best Physiotherapy, which will maintain your muscles in good shape. Age is on your side. Neuroplasticity: nerve can regenerate and heal . Practice, mind power, breathing meditation. Focus on present moment, enjoy life today. Listening to the song ," one fay at a time. " METTA. ( love/kindness)
Really needed that pep talk at the end. Today has just been one of those days and your 100% right happiness is a choice and life is so much better when you focus on the good you do have!! Keep up the videos!!
You’re so welcome! Wanna know something funny? I needed to hear it too. I’ve also had a rough couple of days and hearing myself say that little speech was really helpful. Thanks past self! Lol.
Man, I really miss your videos. These got me through some of my roughest times and, for that alone, I have nothing but appreciation and admiration for you. If you ever see this, man, I hope you're doing well 🫡
I have Fibromyalgia and I use a wheelchair sometimes when I'm out and so many people are staring at me when I'm standing up from my wheelchair to grab something or so. When I'm at the store and I need something higher up, I just stand up and grab it. But I don't care about people staring or talking behind my back though.
5 months since getting in my wheelchair and i'm finding it still hard to face that this is needed, but thanks to your videos it's helping me come to the reality that my life has changed not ended .. thank you
Also some wheelchair users can stand or even walk -- they just have limited ability to walk or find it too painful or exhausting to do for more than a short period of time. When I worked in an agency that ran group homes, we had several people who walked around their homes but used wheelchairs when out in the community because there's a huge difference between walking from the living room to the bathroom and walking around the mall. One woman used the wheelchair shopping cart after walking from the van into the grocery store -- which was about all the walking she could do at one go.
The last few minutes of your video……very inspiring. Thank you for sharing all that you do. It’s a breath of fresh air knowing someone else really does understand our daily struggles!
Awesome video!! Since I've become disabled in 2012 due to a diagnosis of PLS Primary Lateral Sclerosis which is a Variant of ALS, I've had aquaintances, even friends, and family members say to me " You look really good". Umm🤔 I didn't know I was supposed to look sick". I walk with a rollator and use a power wheelchair part-time for long distances and clinic visits to see my neurologist. People just don't know what to say to us, they want to remember you as you were before the accident, illness. . . I've always said from day one " It is what it is" You either except it and move on or you can sit home and let it eat you up inside. Having a positive attitude is so important.
Ah yes. The ole “you don’t look disabled” as if a disability has one look 🙄. That’s a great perspective to have because it’s the truth. It is what it is. Positivity takes you a long way.
Karen Gallimore Health issues ( gastrointestinal, orthopaedic, respiratory) from Gulf War Syndrome and I've had nurses, other people tell me I don't look sick. If I'm out a d about, I'm having a good day! Come and see me at my home when I'm sick, and you'll definitely believe me( won't want to stay long):)
Through a lot Of videos I’ve noticed one thing in common- the trauma always happens at a time where people either need to make a change or possibly go down the wrong path. Hope you’re doing well.
You’re right. I started on the right one and took the wrong one for years. Back on the good one now. If you’re curious about my path. Sign up to read the UNTOLD story linked in description.
Holy shit, you got to see Arnie? Back to the topic, another awesome video. You have such a great energy which really shows through the videos. I use a wheelchair through illness so even though we are in very different situations, I really appreciate how you normalise disability and wheelchair use. The world definitely needs more of that :D
Yeah it was pretty cool getting to see him. Definitely one of the most important bodybuilders of all time. Thanks! I really appreciate those kind words. I hope that my channel helps make disabilities and our needs less taboo 😊
I really hate it when I drop something (like everyone does) and someone flies from across the room to pick it up. I just have a leg amputation, everything else works fine!
Great video :) What I wish most people would know is that it is OK to come and ask us questions, in fact, it is preferable than seeing you just stare at us. Besides, it is the best way to get first-hand information ;)
Although I’m recently injured (3 months) I have been a hairstylist for 10 years and I’m also a salon owner. I’m not back to working the way that I used to but I have been able to go back and do hair!! It’s a challenge on my balance and torso but it feels damn good to be back behind the chair....even in my wheelchair ♥️
Don’t forget they make standing frames and standing wheelchairs for just this reason! I know a few barbers who do that and a few that sit just like you’re doing now. There are options 🙏🏻
In the past year I have gotten to know a friend in a wheelchair and, not having any experience with "Wheelie Boys" ( I am totally using that on him), I began a lot of sentences with" I don't have a lot of experience with this, can you help me understand or clear this up". He is an interesting character and I am glad to have this perspective in my life. He has attempted swimming Alcatraz 2 times and completed it once, with a pretty good time. But, I will be honest, before I met him, I had a lot of the same misconceptions. I liked what you said about happiness is a choice. Another friend teaches people how to ride motorcycles. He taught me about "Target fixation". That is when you see something in the road you need to avoid, but because you are fixated on it, you hit it. I think that parallels what you were saying about what you choose to focus on in life, the good or the bad. One of my favorite quotes is "Life is not what you see, but the light you see it in". That is my 2 cents. Great video and production value B.T.Dubbs.
Having an illness that doesn’t makes you to feel good most part of the day , everyday and even takes away your ability to go around as any other person , makes you so difficult and hard to stay in a good mood/ even if you try all day long! And as a woman , trying to look good and keep a good weigth, when you have a cronic illness, it really sucks!😢 Sometimes it is good to feel sorry for yourself, but difficult to manage how long . Agree with your comments about misconceptions about wheelchair users!!! But most people will never know the truth until they meet someone really close that needs it. Love your videos. Love your attitude!!!
Yeah it can definitely be rough some days for sure. I’m not perfect and have my bad days too. Pain can turn me into a different person so I can relate on some level. Most wont know completely but I hope my videos can start to dispel misconceptions and educate the general public about our disabilities. Thank you so much for your kind words 🙏🏻 really makes me smile 😁
Karla Bujalil I agree with you! A lot of things are easier said than done also. Everyone is different and sometimes you have to find what works for you. I'll have days where I'm sick( Gulf War Syndrome, extreme chills and fatigue, gastrointestinal, respiratory, orthopaedic) and I could care less what anyone thinks and I'm mad as hell about being sick. I've slowed myself to feel that way but then I also want to puss the military off by living to be 100 years old and collecting my retirement check just to piss them off:) So, in order to live long, I've got to make myself exercise, read and use my brain cells, and I sew blankets for cats/ dogs at Animal Welfare and for Veterans at the hospital:). FYI, I've noticed a difference since I've started eating majority organic foods! Do splurge on regular ice cream once in awhile 😀. Also bought a few hand weights that I use while watching TV. Sometimes volunteer work,even reading to animals at shelters helps the animals and gets you out. Making scarves for dogs, blankets for animals, kids( child services, Linus Blankets, etc)Scarves for homeless, kids, check out title 1 school system, elderly, meals on wheels, nursing homes) Utube is great for instructions:) Once in awhile I'll tell myself I can feel sorry and mad, and eat what I want for ? Days, but then I have to do something nice, exercise, etc after that. If there's someone or something your mad or angry at, try to use it to your advantage. I want to make it to 103 right now so I can beat the lady's time for running the 50 and 100 meter in the 2019 Senior Olympics!!
I just found your channel. Dude, for the past 10+ years I've lived my life small. I've put myself on the back burner. As my disease has progressed so too has my use of my chair. Your channel has given me the confidence to live bigger! Thank you!!!
Thanks so much for sharing your experiences with us. I’ve got an SCA so my journey is just beginning. Everything you have shared has reinforced my feeling that no, not sick, just different. I found your channel looking for ways to make my transition to chair life as smooth as possible.
I think I love you! Wish more people understood what you are saying about choices and attitude. I'm 81 year old granny and not feeble! Knees are shot (choose to keep as I can manage and accept limitations) whole body often sounds like box of Rice Krispies but I CAN do for myself. I live alone and still drive-not a minivan-! Please keep explaining you can do so much regardless of any physical disabilities IF you want it bad enough. Bless you😍
Wheels2Walking I also see more people in the comments talking about different reasons they use wheelchairs, including chronic illnesses, so that’s important & it’s nice to see the diversity for me as a new part-time chair user. I got a chair for cerebral play & chronic pain since my crutches didn’t work out well, and it’s been amazing to see what a difference it makes.
I also reacted strongly to that too! A lot of people in wheelchairs use them due to illness! Kinda threw me off to watch the rest of the video, this dude is great with normalizing spinal cord injuries for able-bodied people but does come off like a bulldozer and somewhat arrogant about everything else.
(That's not my picture) I am a retired lawyer, 79 years old and weigh 330 pounds. Some people assume that I am in a chair because I am too fat to walk or stand. My spinal cord is damaged (incomplete) from T-7 to T-12, a result of an A_V Fistula which engorged a vein proximate to the cord. At the time there was one doctor in the US who did the required surgery often enough to be good at it, so I went to his city, and came home for rehab. The doctor went in and sealed the hole between the artery and the vein. (He has since retired, having taught a platoon of surgeons how to do it) The neurological symptoms took 5 years to diagnose. The surgery in 2005 stopped it getting worse. What has happened in the succeeding 14 years is a couple of falls and slow decline in abilities. I started with a cane, mainly, then came to rely on a walker, and as matters got worse, I wound up mainly in a wheelchair, but walking short distances with the walker. The decline is due to aging, not neurological decline. Aging ain't for the timid, young man. It just beats the alternative. What you are doing is very useful, interesting, and encouraging. It is good and useful work. Keep it up. You are a useful person. I want to tell you about getting out of bed. I have a hospital bed. To get out of it, I start with it flat. I roll over onto one side, elbow down and feet over the edge of the bed. Then I push the button that raises the bed to a sitting position. After a little pushing and shoving I'm seated on the side of the bed. Lower the head of the bed, and raise the foot of the bed until the toes are 3 inches off the ground -- it is much easier to stand from a high seat than from a low one . Stand up and grab the walker. QED. Thank you
Thank you so much! I needed to hear those words about choosing to be happy. I love the way you said it, your tone of voice and how you looked directly at the camera to drive the point home even better. Thank you!
Great video and loved the motivational message at the end. I’m not sure about the comments from the people saying this was geared towards paralyzed wc users and I’m pretty sure you said “not all wheelchair users are sick or need help.” I’m not paralyzed. I was born with Spina Bifida and have been able to walk up until two years ago when I rapidly started to lose my mobility. Long distance walking is no longer my friend. I’ve moved from using a cane to using a walker. My wheelchair is due to be delivered in a week...a power chair because my doctors say a previous shoulder injury would cause problems in a manual chair. (Actually it’s a manual chair with a power drive hand control added) This is a completely new world for me. I found your channel after I had a pity party about not being able to go to concerts anymore. I’m a huge fan of concerts. Thank you so much for that concert video and for helping out us newbies!
I’m so happy you enjoyed it! I think the comments were mostly from people who didn’t identify with what I was saying. For example “we can drive” and they would reply “well I can’t drive” idk. I knew this video would be stirring up some controversies. I’m so stoked to hear that they’re helping and doing their job! Thanks for this comment and I’ll see ya in the next one 👊🏻
I had a complete family - wife and 2 children until my accident of spinal cord T12 - L1. They left me. I am now at my mother's house. She is the one and only who keeps me alive. Don't know what will happen 😕 in future. But I kept trying to be functional again.
I love when the elderly come up to me and ask if I need help. My answer is always the same ..thanks, but I'm burning calories and working on my abs.i then smile then proceed onward.❤️
Thank you so much for your channel. When I got sick 4 years ago, I fought and fought to get my legs back. It took me a very long time to accept that it just wasn't happening. But, when I finally made the concession that I would be a full time wheelchair user for the rest of my life, and it was time to get on with my life, it was such a game changer for me. I am much, much happier now, I'm still able to do just about anything I want, I've just learned how to do it all sitting down. I'm not afraid of falling anymore (I broke a rib on my last big fall, tough and painful lesson to learn), I'm not in constant pain anymore, and I'm much more pleasant to be around. Your channel is a Godsend, please keep it up! 🤘🤘👍👍
You have helped me SO MUCH with all your videos. You inspire me to be able to live a complete life as before I lost my legs. From the bottom of my heart i give you much gratitude for helping us all learn how to live again! THANK YOU! THANK YOU!
I have Spastic Quadriplegia Cerebral Palsy and C-7 incomplete Quadriplegia. (I roll in a Ki Rogue) My injury happened at birth and I’m an attorney, a wife, a mother and a friend to anyone that can keep up with me. My husband chose to be the one who would be the stay at home dad while I have the career. Our kids are well adjusted, are now young men who have jobs and their own active lives. 24 years ago when my oldest was born, society didn’t believe that I could be a parent. I and many others have proven society wrong time and time again. My husband and I are going on 27 years and I’m rapidly approaching my 50th birthday. Life is good and I’ve been asked would I want to be able-bodied, my answer is always never in this or any other lifetime. Disabilities are not something to be afraid of, embracing who you are and living your life to the fullest is what we all want.
I just came across your videos. This is the first one that I've watched and I'll watch the others. I like your positive attitude. My goals are to stay positive, stay active, and stay engaged. I have secondary progressive multiple sclerosis and I use a cane, rollator, or power wheelchair depending on my energy level. Thanks for this helpful video
I'm not in a wheelchair, and I hope I won't, but I like your video because thanks to you I know better how feels wheelchair users (I always wanted to do the right thing, but I didn't know what was right, so I was very uncomfortable). Just continue like that, great video, and as always, great spirit!
Hey Champ, you inspired me a lot. Because of you, I'm beginning to accept my situation. I'm having my new wheelchair and I followed your advice and design. I had massive stroke 2 years ago and learning to walk a bit. But I'm putting too much strain on my hips and will be more painful in the future. Thanks a lot for advocating the wheelchair. Now I get it why wheelchair is better than walking....🙂
Hi, I just wanted to thank you. I'm researching paraplegia for my debut novel, and this video helped me so much! I look forward to watching more of your videos.
I'm also in a wheelchair and didn't have an accident. I was born with it and I'm not ill. I'm now 15. And what you said about people saying sorry and always wanting to help, sometimes it's very sweet, but sometimes it's really annoying. They just don't understand that if something is difficult you want to try to do by yourself and if you just can't do it you'll ask for help. At least that's my opinion.
I’m currently in the hospital recovering from a spinal cord injury. I’m about to begin the journey of his life transition, thank you for the videos and inspiration!
I have a incomplete spinal cord of my T1 T2. My sister in law has a hang mans break with an incomplete spinal cord as well. We both are wheelchair users who do as well walk. I also have other health issues too. I hate the stigma of being young and in a chair. I’m 27 and she is 23. We both get dirty looks and rude comments. The other day we were going out and I parked in disability parking and a older lady yelled at us as we got out of my car before grabbing the chairs out of the back. About how we were not disabled. She probably felt stupid when we both rolled off.
Yeah, young and in a wheelchair, being able to walk but use a wheelchair, being disabled period... that tends to bring out the judgement and hatred in people. It’s really too bad :/
I'm not in a wheelchair myself. But this year I was diagnosed with chronic backpain (I'm 23 btw). And my life is a mess. But watching your videos gives me confidence in being happy. Number 10 made me cry. Because I'm in a dark place right now. I'm working on it but what you said helped. Thank you so much
I was born with cerebral palsy and the one question I always get from strangers is “oh what have you been doing with yourself?” Or “have you been in the wars?” And I don’t know what to say I’m fine.
I have spent the better part of today binge watching your videos! I will be back on my wheels Sat after the part for my lift comes Wed/Thurs. Thanks for your inspiration.
100% correct. Incomplete t12 here, I recently figured out I could choose to be happy instead of being negative/depressed. Good things are now happening.
That awkward moment when you’re a wheelchair user because you ARE sick... lol I’d bet more of us are sick vs. purely disabled. And do need help with things at home, etc (not that we typically have access to said help). I feel like these apply more specifically to paraplegics than wheelchair users in general. Definitely yes on empathy vs. sympathy though. (And lmao at that clip: “Stop it. Get some help.” 😂) That’s such an icky feeling when total strangers make assumptions purely based on the wheelchair.
Hey Amy! I always appreciate your comments. Question, would you consider illness as a sickness? I understand a lot of wheelchair users have illnesses and diseases but aren’t necessarily sick. They just have chronic symptoms to manage. Like I said it the video some need help some don’t. It’s all a varying degree. Take what ya need and leave the rest. Yes, this is aimed more at para wheelchair users because I am one, but if you pay close attention to the language I use I make sure to never say “all” or “everyone” I’m just addressing common assumptions by ableds. Stop it. Get some help 👊🏻😂
Wheels2Walking Hmm I use them interchangeably. I think it’s a matter of semantics and personal preference, more than anything else, personally. But it’s always a bit weird no matter what because the first thing people hear when you say “sick/ill” is cold, flu, or stomach bug. Even though you can feel way more sick than that every single day. Also, “ill” still sounds really British to me so I tend not to use it as much because I can’t pull it off. 😂 I guess not everyone who has a disease would consider themselves sick, maybe depending on the ways they’re affected or other factors, but many definitely do.
I say “my illness” when I want to refer to the fact I’m sick without giving details (which I may want to do for privacy, and also because I work in biopharma I have an overlap of my several illness and the work I do and having to do a weird “this illness sponsored by...” disclosure because it happens to be a disease I work on is awkward. “Sick” I think does sound more like the flu or something. -part time mobility scooter user
The “Sorry” thing really angers me too, I’ve come to terms with my disability but Empathy not Sympathy, thanks for your vids they make me feel less alone and more understood
I’m in a powerchair. I have central core disease and I’ve had it all my life but about a year ago I lost my ability to walk. It’s always been a challenge and I’ve never been one to give up but I have so many days where I feel “weak” or “useless” but I just gotta get up and don’t stop. I’ve been very depressed up until about a month ago and I’m still getting there but as long as I keep fighting and knowing I got this then I can do it no matter what! P.s your videos are what made me realize there’s more to life than just sitting in my sadness. Very inspiring, Love you man.🤘❤️
Hi, Im Carol I have MS and a wheelchair I kept falling and if someone had told me this was the wrong decision I could have made for myself I would have told them it doesn't bother me because I could be dead; your video's I find them inspiring. Thank you
I'm not paralyzed, I am sick, with a disease that robs me of the energy a healthy person would typically have. I do have a manual wheelchair, but it's more for last resort usage. I prefer my big ATV electric wheelchair so that I can get out and do life as best I can as a Mack truck with a pint of diesel! I can still stand up and walk. But I can't do either very well or for very long. I am always in power save mode with my energy. I have to be or a day will end much sooner than I had hoped. I really like your videos! You are spot on 90% of the time and I like your energy for life! I work hard to do the same! Keep producing these your work does make a difference!
I loved so much about this video! For me, the happiness part came when I realized that I could do so much more than I thought. Even as a former health care worker, I had a lot of internalized ableism and misconceptions about what using a wheelchair meant for my life. I've learned and grown so much since my injury. My boyfriend is especially happy that I can now push a grocery cart, thanks to your video, so now he doesn't have to come shopping with me lol It's the little things that add up sometimes :) I love both your comments about s#x & jobs - since I teach s#x/kink education for a living. It's always funny to see the looks on people's faces when they come out to a class and I roll in and introduce myself. I've had people actually get confused and tell me they aren't there for a disability class, as if I can't teach anything unless it's about being in a wheelchair :) One of the things I teach is different methods of sharing intimacy, for disabled and abled people. It's incredibly important and I don't think anyone would complain about having a creative and well-rounded lover. I think one of my big things that I wished people knew was that we don't all have an sci. I use a chair because of pain, damage and nerve issues in my right leg. I can get around on forearm crutches for shorter periods of time, but it messes with my working leg. My chair gives me so much more freedom. It is nice to be able to use crutches though since it means I can climb stairs.
what were some of your misconceptions i'm so curious now! the little things do add up, i'm so happy i was able to show you how to do it :) hahah thats funny you should definitely tell them it's the wheelchair sex class and then laugh. FACTS abled folks dont know how to f*** unless its the the 3 popular positions for 20 mins max. i can only do one and that's making her do all the work! we get creative AF and honestly it makes our sexlife a lot more interesting. ableds could take a page from our book for sure. i'm not sure of the abled community even knows what an SCI is, i think they believe wheelchairs are for the completely paralyzed. shoot, i thought that before i got hurt. disability is so taboo and it really shouldn't be. i hope my channel can shed some light on our secret little world.
@@Wheels2Walking I think a lot of my misconceptions came from both a shitty experience during my own accident and from when I was a paramedic, seeing a lot of worst case scenarios. I would pick people up from homes where they weren't getting the tools they needed to live independently and/or weren't getting the level of care they needed. We really drop the ball when it comes to disability and long term care (a common issue for many countries, from what I understand). I also spent a year in a hospital chair, so I thought that was as good as it was going to get. I still deal with wrist issues from trying to self propel in the damn thing. When I got my tilite, I was blown away at how easy it was to move around. Don't get me wrong, I'm still building strength and endurance because pushing a chair is a challenge but it's way easier than that evil torture device I had at first. I thought I would never be able to live alone or independently. I was worried that my partner would leave me because I couldn't do the stuff we loved anymore and that I would have to live in some awful care home. I don't have any family so if he wasn't there, I don't know what I would have done. Luckily, I have an amazing partner, and he helped me through the worst of things, so now we get to enjoy life together again. While I knew about hand controls for cars, I was worried that I would never be able to afford adaptations like that. Once I found out how expensive a basic wheelchair was, financial stuff became a real worry/barrier. Finances are still a concern, but I was able to keep working - which was another fear, that I would have to give up work. I travel a lot, go to conferences, present classes so I thought that was over. I just got back from a work/pleasure trip to Las Vegas, so I proved that one wrong :) I've had to take more time off and give up some of the things I did before, but I still work and it's getting better all the time. I thought I would have to give up everything I loved; hiking, travel in developing countries, backpacking/camping, going to the gym, basically anything active. I've managed to travel to the US, go hiking on accessible trails and I'm getting some cool new equipment very soon so that I can go off road and enjoy at least some of the less accessible trails. I want to be back in Mexico or Central America by 2020, once I'm stronger and more fit. If you've never been (and I'm talking remote locations, not resorts), they love stairs and hate flat, paved stuff. Lots of cobblestone for streets, huge, uneven curbs, basically, a wheelchair users nightmare. Of course, I was worried about intimacy, since pain and muscle spasms are a big component of my injury. It took a while and we are still getting back into the swing of things, but we're getting freaky again :) Definitely something that makes you feel better about life! Basically, I thought my life, as I knew it, was over. I don't think ableds know exactly what an sci is, but they assume we are all 100% paralyzed, as you said. I've been asked how I broke my back many times. Aside from some arthritis and other issues from lifting heavy stretchers all day for a lot of years, my back is in okay shape. When I move my legs (even if it's just the bad one doing a funky dance from spasms), people stare. I even had a woman tell me she was sure that my injury was very recent because my legs weren't atrophied. What she didn't realize is that the one is, you just can't tell due to the severe edema (swelling). I'm so happy to see how quickly your channel has grown, it's such a great help to so many people. Keep up the great work, I can't wait to see what you have for us next (and you're making me miss LA, Venice beach is such fun!)
Thank you, have used a wheelchair full time my whole life (31 years) was born with Spina Bifida (Spinal cord/spine didn't fully form) . still learning how to do new stuff how to live differently (I haven't mastered curb jumps 😂) a few other life skills work in progress. I work in child care an after school program. Love all my kids
@@Wheels2Walking ok thank you! Working on making things accessible learning to cook in a semi accessible kitchen (so far so good, everyone likes it and the house is still standing 😂)
Me and you share something that most people will never understand I'm not in a wheelchair but I have a major disability I'm a dialysis patient of 14 years I've had polycystic kidney disease my entire life..... I don't even think I could put a number on the amount of surgeries I've had over my 33 years of living.... but to be able to watch somebody operate just the same as I do is flat-out amazing and motivating cuz there's something about me that I haven't mentioned quite yet... I'm Also a Mountainbiker & Cycling Vlogger !!! You my friend are living a life I aim and definitely hope to achieve one of these days
You really helped me focus on the positiveives and try not to fucus on the negatives so much, I have scoliosis and had too have major surgery to fix it as much as they can, so I just want to say thanks for your videos because they helped me become less depressed about my situation ❤️❤️💜
Thank you so much! I've been referring people to this video when I just had enough of those questions. You explain it so well and clear. One thing I wish people stopped saying to me is that I am too young (21) to be in a wheelchair or be sick (I have several chronic illnesses too) or have a service dog. For one my service dog is not because I am in a wheelchair. Granted he does help pick up stuff too and such, but that isn't his main task. My dog is an alert and response dog, because of my seizures, fainting, blood pressure and blood sugar. In my chair I can do most things myself (there's a few most users can, but I can't due to the chronic stuff, but that's not important). People just assume so much and I get sick of it!
How do you find the strength to keep going I am personally not in a wheelchair but the parts when you talk about depression and stuff really do speak to me I am diagnosed with depression and I find it hard to go through out my day I find you very inspiring and I love your videos and everything you stand for
Once I was out and about and saw a guy in a really boss wheelchair -- all pimped out. I said, "Love your wheels!" and he gave me a dirty look. Is that just him, or is considered rude to compliment somebody if they have a really rad looking wheelchair?
A few years ago I broke my legs and ankles all at the same time... I was confined to a wheelchair. My perspective changed in my eyes became open through that experience . I just want to educate people they're not aware of the experience and encourage the ones going through it
Another misconception about wheelchair users is that every one is paralyzed or partially paralyzed. Not true. Sometimes walking just takes too much energy. People have injuries not related to spine like me or people have an illness or syndrome that makes walking tiring or painful. Or people have an invisible disability. Some people have flare ups and have good days and bad. I do. There are days I need my assistive devices more then other days. People don't understand why one day I take my powerchair a short distance and another day I choose to walk that short distance. Another thing just because you pretend like you don't see me...doesn't mean I don't notice you pretending. It's easy for people to overlook you because you sit lower then their eye contact. Even if someone says sorry or offers to help you do things you might be able to do yourself..it means they are taking the time to acknowledge you and talk to you rather then ignore you or pretend you don't exist. If they don't know you...they don't know what kind of help you need or don't need. If someone takes the time to open a door for me when I dont need help...I'm grateful because it means they are being kind and thinking about someone other then themselves. Maybe that's the first time they have ever interacted with a person using an assistive device. Maybe they don't know what to do or how to do it but they tried. If you fuss or make that a bad experience for them, the next time they see someone using assistive devices they might ignore that person. If it's a pleasant experience then they might not be afraid to talk to someone the next time. If someone grabs the door when you are in the middle of opening it say thank you very much how are you today? Or compliment them on their clothes or hair, or asked them a question. Sometimes when I am in my chair I will hold the door open for other people. That surprises them.
I used to be a wheelchair user when i was young (middle school) for 1 year i was ran over by a car by a drunk driver to be specific although it was relatively short i understand what you mean in the video
As someone who has been in a wheelchair since I was 3 (born with spina bifida.) I cannot say anymore how these videos have helped me in just the few hours I've watched them. I also had my leg amputated back in 2017 from an infection from a sore on my foot. So even more mobility was lost for me. These last few years have been so trying for me and damning. But this year things are finally going to be better. I'm going to be working at a local truck repair shop (working the parts department.) I also am working on getting my own home. Which will be my first and everything you have said in this video is true and so accurate. Another thing I hate is when people come up to me and talk to me like I'm 5 "awe well arent you just so handsome!" I'm just kinda sitting there like "well thank you ma'am. I do ask though that you please refrain from speaking to me like I am child." Its just that moment of. "I'm in a wheelchair. I mean I'm not all there 🤣🤣🤣 but that is for completely different reasons!"
Yeah, I haven’t reached the point to where I’m comfortable in my situation. I feel guilty, sort of, that people have to assist me or that I have to inconvenience others. I know I shouldn’t and that It’s not my fault. But I can’t help it, I know how people think. I was walking for my entire life, until 2 years ago. I try to be positive, but there’s always that voice.
I think it's normal. I hate having to ask for help or letting people do stuff for me. I would rather struggle and take 10x as long to do a thing than to have someone do it for me. My solution is to push myself to do some of the things (watching other disabled youtubers has been so helpful to learn how to do stuff - @wheels2Walking has listed wheelchair users to follow on his instagram, which was super helpful as well). I accept help while keeping in mind what I want to work on next. For instance, I need to work on my wheelies so that I can manage different terrain and curbs without asking for help, so that's next on my list. It's easier for me to handle the guilt if I know I'm working towards more independence. Knowing that there is this amazing community of people who know what I'm going through has made it easier for me to accept where I am. I'm coming up on the 2 year anniversary of my accident, and I'm trying to focus on all the things I've learned and how I've grown, rather than what I lost.
C6 Quad here. Love the videos! Use the same exact chair and backrest. Quads can also do evry thing he said just dont look as good (smooth) doing it. Just adding that in.
My parents don't at all understand me. I have a wheelchair that I use rarely because of my extreme Chronic Fatigue and some other undiagnosed issue that means I am losing strength in my legs. They see me around the house grabbing onto things and using crutches and go "Oh he can walk so he doesn't need his wheelchair" or make comments like "wheelchairs are only there for people with more serious disabilities not you who can walk with crutches or unaided most days"
Richard are right we go out look what you can do and can be positive,T4 paraplegic for 41 yrs is not easy but I get around , alright ,it was nice whatching you thing keeping going god bless you brother
I’ve been seeing my primary care doctor for about 2 years now, and even she says, “I’m so sorry for you” on multiple occasions. And I’m a c5 incomplete quad but I swear on most of my paperwork she writes, “patient is paraplegic”. I understand she’s not a spinal cord specialist but I do also think general family medicine doctors need more education on the SCI world.
I was fortunate when I was a kid to have a neurologist who explained everything to me. You have to become an expert in how your condition affects you, because someone else with the same can have a massive difference in how it affects them. Doctors know the uncomplicated textbook version.
Hi, I have cerebral palsy spastic diplegia , I use wheelchair most of the time , I wish I can be much more independent like you do , I live in Indonesia , here is almost never accessible places in wheelchair , so I always need someone with me ,I try harder. to get better movement and walk everyday but its always not easy, I'm proud of you watching this channel so I don't feel alone living in a wheels , please keep in touch if you don't mind
Thank you for your videos makes me I think more positive about my legs I've never had a good pair of legs they're starting to give away starting to tingle and go numb so I know I'm on my journey the next level of life Without my legs your videos are very reassuring and keeping me positive I'd love to talk to you more
I've been a wheelchair user for 30+ years and played many wheelchair sports over the decades. I get people looking at me weird at times when I mention a sport I have played or play now and some will say "wait you can do that sport?" that irritates me at times. like right now i play pool and i am a bowler. on my bowling league ive told people there is a wheelchair league that travels and some of those bowlers average around a 200. one of my old teammates laughed and said it was impossible.
You are such a inspiration for people in wheal chars my ant was in a car accident and she has a complete spinal cord injurie she is parilised from the wast down and she have had 2 kids sence then and she struggled with addiction on pain killers and sadly she is back in the hospital idk yet why but hopefully she gets out soon I was alway wondering the truth about wheel chairs and one thang is that sence I grew up with her in a wheelchair I have never thought she was smely I would love to have a conversation with you just to talk but you will probably not what to sadly but man just keep up the great work you are the best
the loud techno music has gott o be turned down in future vids bro, its hard to keep turning the sound way down for that then having to turn it up to hear you guys talk and still you have that loud beat pumping while you are talking its hard to hear you over that especially for those who use hearing aides and all, other than that, l i love your vids
I wish people would realize that, even though I am in a wheelchair, that does not mean I am stupid.
Ah yes. The ole talk loud and slow move. A classic among the ill informed.
@@Wheels2Walking btw, I just about lost it at 3:52 lmao
😂 stop it. Get some help 😂
I agree, although I think things have gotten much better than they used to be. I've used a wheelchair off and on for 20 years, and in the beginning I swear it was like wearing an invisibility cloak! I experimented a few times to see if people would see me... I brought drinks into stores or little things like that, and people (including store employees!!) would go out of their way to not see me, or so it seemed. I felt like I could have shoplifted anything as long it would have fit on my lap.
Thankfully that's not the case now. More people meet my eye now, and see me instead of just a wheelchair. 😁
It sucks when people ask questions of your parents or friends because they assume you also have a mental disability or are unable to talk, I just wish people would address me directly because I can actually talk.
I’m an incomplete quad. I run a farm. My husband is military, so I also raise my boys on my own 6 months of the year. Oh, and I run a photography business. No help needed.
Imma need you to brush ya shoulder off boss lady!
I also live on a farm, I modified all my big equipment with the help of family and friends , I did all my own farming with part-time assistance for 18 years. Now I rent out most of my land but still have feeder cattle and the 30 acer yard to take care of,. They say that marriages between one able-bodied person and the spinal cord injured person last longer and only have a 20% divorce rate compared 50 with to Able Body. I am also married and going on 28 years
Nice! I’m finding my wheelchair makes me and my kids so much happier and have so much more fun. #wheelchairmums
Know that Canadians always say "Sorry." Ask anyone. Peace
That's wonderful tbh
I'm a nurse in a wheelchair. People always think I'm a patient.
Wrong!
Lol
Haha nope! That's awesome! Nurses are amazing!
My ant is in a wheelchair and is a pediatric nurse
@@scrapboy1318 that must be a tiny wheelchair! Didnt know they made ant sized wheelchairs. Haha sorry I had to. Good for your aunt! Thats awesome! Nurses rock!
Claire Ashley it kinda made me mad then I realized I would have done the same thang
Speaking of standing, i stood today! First time i've stood on my own (stabilized by the therapist) since dec 2014! I still got a long way to go, but knowing that i can, has given me a lot of new hope!
Way to go Dozzer! last we spoke you were still in bed from another operation. glad to hear you're doing better 🤘🏻
@@Wheels2Walking Yep! One day at a time. This past monday i had a recert with my therapist. He critiqued my technique, and showed me what i was doing wrong. Tried the new technique twice, and both times i went right on up! My legs are really tight and i cant straighten them yet, but i stretch them every day. Eventually i'll be straight legged. Once i get there, then i gotta work on pivoting and taking a step. Then i gotta figure out how i'm going to walk out of my door way. Being 7'2" with a back that won't allow for me to bend at the waist, will make it tricky! I'll keep you posted though! You're great inspiration!
Dozzer AWESOME!!! Way to go! One step at a time:)
Well done
Keep up the good work
Keep up bro 3 years ago i was paralysed from neck to toes i can walk already we’re up for leaning running
You can do it as long a you can dream is
I wish people would realize that, even though I am in a wheelchair that does not make me an asshole .I've always been one .
BWAHAHAHAHA 😂😭🤣
I am not in a wheelchair and I am a asshole wtf people make no sense sometimes
I bet u hate us all equally
Nyan_cat 101 yes
Lmao
btw....wheelchair drivers are safer drivers...both hands are used for driving not texting ....my thought :)
thanks
Totally
Ehh lol even with hand controls o find myself on my phone sometimes lol
😂😂😂
DL Brittain also would not whant to be paralyzed from the waist down you where in a accident and was paralyzed from the wast down
#11 not all wheelchair users have spinal cord injuries
Obviously.
Wheels2Walking
I’ve talked to a lot of ignorant people who think that only paraplegics and elderly people use wheelchairs.
Wheels2Walking I think your channel is amazing I have chronic pain and fatigue so for most long distances and some short I have to use a wheelchair and these videos have made me understand a lot about my chair and how to use it so and feel comfortable with using it while be able to walk at the same time but I wanted to say thank you very much
And can’t forget mental disability
I still have no answers as to why my legs don't fully function or quit randomly after 4 yrs of being told it was this or that or just in my head, but I am not gonna sit around the house waiting for some medical person to figure it out. Hubbie and I are customizing my wheels to match me and make them a part of my get around. Thanks for your inspiration
mother important thing for people to know about wheelchair and powerchair users is thwt it isn't always due to injury that they use their chair. Sometimes it's a disease or condition that makes walking painful and/or difficult. I don't have a spinal injury and am a powerchair user because I have Ehlers-Danlos Syndrome, a rare, genetic connective tissue disorder. The connective tissue holding my joints (and body as a whole) together isn't built strong enough by my body. So I dislocate all of my joints very easily and though this is painful enough, it has also led to my now having osteoarthritis, as well.
I love what you say about happiness and a good quality of life being a choice! It's absolutely true! There is always a way, a reason to be happy! There is always a silver lining! This doesn't mean that you shouldn't take time to feel what you feel, to grieve the life you thought you were going to have. My condition is progressively degenerative, so it won't improve or stay the same...it will gradually get worse. Coming to terms with that and with needing a chair meant dealing with the loss of a future that I thought would be different. And that's okay! Take the time to get through the grieving process so you can move on to adjusting to your new normal and learning how to adapt to your new way of movement. 👍
Awesome video, bro!!
Yes that is important! There are many reasons people need wheelchairs. I learned a lot about that in the comment section of my “why do I use a wheelchair if I can walk” video.
Also, the happiness part is freakin hard sometimes. I’m a realist and it doesn’t come easy. This is a hard, unfair life to live. However, like i said in the video, we can choose to do things that make us happy.
Hello my fellow Zebra
I have that too with a good few other things. Be well.
I'm a Zebra as well, and just getting into my first custom wheelchair hopefully in a few months (just started the process - currently using an old beat up depot style chair, but it's better than the pain from walking/standing, even so!). I also have what I am 98% certain is adhesive arachnoiditis in my lumbar spine but mainly in the sacrum, and that doubles down on the joint subluxations etc. as far as mobility. I've come to terms with and actually am excited about getting a custom wheelchair because it will give me back mobility I have lost over the last few years slowly and inexorably. I will still have trouble with my upper body, but at least if that's sore I can still sleep. If I walk more than four blocks in a day, I might as well stay up watching tv all night because I'm not going to sleep. What I haven't come to terms with and am still grieving is confidence in my body. I have no doubt I will find ways to do things differently with the changes that are coming, as I have already made many adaptations in my life to accommodate a wheelchair. I'm grateful that I am not completely dependent on my wheelchair, but I'm equally grateful to HAVE my wheelchair, even the depot one. I've never before in my life enjoyed shopping because it was always so painful to stand/be on my feet like that, but when I started using my wheelchair for shopping, I found myself enjoying it! What a difference it makes! I've been watching all kinds of wheelchair related videos to learn as much as I can, because I'm all in.
Just cause were in wheelchairs Doesnt mean we dont party, drive fast cars, and hold an intellectual conversation
Fuck yeah dude 🤘🏻👊🏻 100%
Jacob Hernandez Why do people think your brain cells died? Look at Stephen Hawking!!
So true my dude lol
I just came home from a 4 night party camp… it was grand. Although I was pretty incapable of intelligent speech at various times it had nothing to do with the wheelchair. I also love driving fast.
Great video (as always!) I’m a Doctor, practicing on wheels is no different to those colleagues who use heels.
Thanks! wheels or not you're still a human and capable of anything.
When I was growing up, I could never have dreamed of being a Doctor. I am glad things are changing.
Doctor on wheel ! I like it. I am 72 yr male ,lower limb muscles dystrophy ,for 2yrs . Looking for a manual wheel ,to buy .Planning to practice, virtual online medicine .Thanks to all of you. METTA ( love/ kindness)
I'm writing this as I'm stuck in bed, barely able to make it to the bathroom and back with my cane. About three years ago I started to develop pain in my hips, which then spread to the rest of my body. I finally decided to buy myself a cane after I stopped being able to leave my house. Now, even with my cane, it's a struggle to get around (especially when people don't give me a seat because they think I'm faking due to me being "too young to be disabled"). My doctors still don't know what's wrong or why this is happening.
Last night, I fell on tile flooring and passed out until my roommate found me. It was the final straw. I stayed up until 3am looking up wheelchairs online, and came across your videos. I'm pretty nervous to make the switch, but after watching more of your content I feel so inspired to get my independence back and be able to live my life without pain. Thank you so much for everything you're doing, and I hope you keep it up!
I'm kind of in a similar situation! I get really weak and lots of pain while standing and went to a wheelchair rather than canes and walking sticks. My independence and ability to get around skyrocketed. If you think it's going to help you/make your life better/easier, go for it!
U need to see a neurologist
@@kgspvgsp7569 oh yea? Do you think that may be the source?
@@FridaAvosettaI have hEDS which is similar to what you described.
Loved this video, Richard!! I think it’s important for people to know that positivity is much greater than negativity in determining the outcome of an injury on one’s life. You’re a great example for others.
Jordan, I have suffered a motorcycle accident in June/18 which has made me a T6 Paraplegic, to be honest I am still suffering and fighting to come to terms with what happened to me. Your videos however always put a smile on my face and help me deeply touching my heart and bringing some form of comfort and joy to that seems to be a real difficult reality. Please continue sharing your amazing stories and videos as they are fuel to some much needed souls. God Bless you
My name’s Richard. The comment you saw was referencing the clip with Michael Jordan. I was confused too. “Who’s Jordan?!” lol 😅. I’m happy that you’re here and watching these videos. They’re made exactly for guys like you. That’s the whole point of my channel, to show guys just like you that you CAN have a compelling future and that you CAN live a normal life. Find me on Instagram and sign up to read my UNTOLD story linked in description. Talk with ya soon. (Also, my captions on IG are pretty fire too 😉).
Sorry Richard, my name is also Richard but in Portuguese so it is Ricardo!!!! Great to share the same name with such a hero!!! Keep it strong brother@@Wheels2Walking
No worries brother! From one Richard to another.
@cadboy07 thank's for the kind words man, just completed an year of my accident and emotionally I am having a really hard time but I will keep praying and fighting to get better!!!
I want to thank you for the videos and emails. Pain is my biggest thing to get over. I'm a T11-12 complete. I just want to stop taking so many drugs. They make me tired and fuzzy. I think your awesome and uplifting...😊😊😊
I just found your channel today trying to figure out how to be more independent in my wheelchair, and what a blessing! I suddenly lost use of my legs at work two months ago for no apparent reason, and according to the doctors it looks like I have MS. I can still walk a bit on my own, but not far. If I want to get out and continue living my life, I need a chair for now. Your videos are such an encouragement, thank you for taking the time to bless others through your experiences! Your honesty is inspiring!
I’m so glad you’re here! Welcome! This channel is made for new wheelchair users like yourself. Although I have a spinal cord injury and a lot of my content is directed that way that doesn’t mean you’re not a part of the conversation! We’re all wheelchair users and can learn from each other. Be sure to jump on my IG too. I’ve got a lot of great stuff on there too.
@@Wheels2Walking I have a wheelchair and crutches
I am 72 yr medical doctor with sudden progressive weakness both legs for 2yrs. Whatever the diagnosis, swimming is the best Physiotherapy, which will maintain your muscles in good shape. Age is on your side. Neuroplasticity: nerve can regenerate and heal . Practice, mind power, breathing meditation. Focus on present moment, enjoy life today. Listening to the song ," one fay at a time. " METTA. ( love/kindness)
Really needed that pep talk at the end. Today has just been one of those days and your 100% right happiness is a choice and life is so much better when you focus on the good you do have!! Keep up the videos!!
You’re so welcome! Wanna know something funny? I needed to hear it too. I’ve also had a rough couple of days and hearing myself say that little speech was really helpful. Thanks past self! Lol.
Man, I really miss your videos. These got me through some of my roughest times and, for that alone, I have nothing but appreciation and admiration for you. If you ever see this, man, I hope you're doing well 🫡
I have Fibromyalgia and I use a wheelchair sometimes when I'm out and so many people are staring at me when I'm standing up from my wheelchair to grab something or so. When I'm at the store and I need something higher up, I just stand up and grab it. But I don't care about people staring or talking behind my back though.
You’d probably like my “why i use a wheelchair if I can walk video” it address all the extra attention we get whenever we walk out of our chair.
If you see people staring when you stand up, throw your hands up in the air and shout "Holy shit, it's a miracle!". Works for me 😸
I am walking and doing usual thinks and People speaks behind so lett them do☺️
5 months since getting in my wheelchair and i'm finding it still hard to face that this is needed, but thanks to your videos it's helping me come to the reality that my life has changed not ended .. thank you
Also some wheelchair users can stand or even walk -- they just have limited ability to walk or find it too painful or exhausting to do for more than a short period of time. When I worked in an agency that ran group homes, we had several people who walked around their homes but used wheelchairs when out in the community because there's a huge difference between walking from the living room to the bathroom and walking around the mall. One woman used the wheelchair shopping cart after walking from the van into the grocery store -- which was about all the walking she could do at one go.
The last few minutes of your video……very inspiring. Thank you for sharing all that you do. It’s a breath of fresh air knowing someone else really does understand our daily struggles!
Awesome video!! Since I've become disabled in 2012 due to a diagnosis of PLS Primary Lateral Sclerosis which is a Variant of ALS, I've had aquaintances, even friends, and family members say to me " You look really good". Umm🤔 I didn't know I was supposed to look sick". I walk with a rollator and use a power wheelchair part-time for long distances and clinic visits to see my neurologist. People just don't know what to say to us, they want to remember you as you were before the accident, illness. . . I've always said from day one " It is what it is" You either except it and move on or you can sit home and let it eat you up inside. Having a positive attitude is so important.
Ah yes. The ole “you don’t look disabled” as if a disability has one look 🙄. That’s a great perspective to have because it’s the truth. It is what it is. Positivity takes you a long way.
Karen Gallimore Health issues ( gastrointestinal, orthopaedic, respiratory) from Gulf War Syndrome and I've had nurses, other people tell me I don't look sick. If I'm out a d about, I'm having a good day! Come and see me at my home when I'm sick, and you'll definitely believe me( won't want to stay long):)
Great video Richard, it's important for non-disabled to understand where their fellow human beings are coming from.
Through a lot Of videos I’ve noticed one thing in common- the trauma always happens at a time where people either need to make a change or possibly go down the wrong path. Hope you’re doing well.
You’re right. I started on the right one and took the wrong one for years. Back on the good one now. If you’re curious about my path. Sign up to read the UNTOLD story linked in description.
That last bit of your video about choice. Dude, it applies to everyone, abled or not. Thanks for that.
Holy shit, you got to see Arnie? Back to the topic, another awesome video. You have such a great energy which really shows through the videos. I use a wheelchair through illness so even though we are in very different situations, I really appreciate how you normalise disability and wheelchair use. The world definitely needs more of that :D
Yeah it was pretty cool getting to see him. Definitely one of the most important bodybuilders of all time. Thanks! I really appreciate those kind words. I hope that my channel helps make disabilities and our needs less taboo 😊
I really hate it when I drop something (like everyone does) and someone flies from across the room to pick it up. I just have a leg amputation, everything else works fine!
Yes! That is super annoying for sure.
Great video :)
What I wish most people would know is that it is OK to come and ask us questions, in fact, it is preferable than seeing you just stare at us.
Besides, it is the best way to get first-hand information ;)
Agreed! You’d probably also like my Ask Me Anything video I did!
Although I’m recently injured (3 months) I have been a hairstylist for 10 years and I’m also a salon owner.
I’m not back to working the way that I used to but I have been able to go back and do hair!! It’s a challenge on my balance and torso but it feels damn good to be back behind the chair....even in my wheelchair ♥️
Don’t forget they make standing frames and standing wheelchairs for just this reason! I know a few barbers who do that and a few that sit just like you’re doing now.
There are options 🙏🏻
In the past year I have gotten to know a friend in a wheelchair and, not having any experience with "Wheelie Boys" ( I am totally using that on him), I began a lot of sentences with" I don't have a lot of experience with this, can you help me understand or clear this up". He is an interesting character and I am glad to have this perspective in my life. He has attempted swimming Alcatraz 2 times and completed it once, with a pretty good time. But, I will be honest, before I met him, I had a lot of the same misconceptions.
I liked what you said about happiness is a choice. Another friend teaches people how to ride motorcycles. He taught me about "Target fixation". That is when you see something in the road you need to avoid, but because you are fixated on it, you hit it. I think that parallels what you were saying about what you choose to focus on in life, the good or the bad. One of my favorite quotes is "Life is not what you see, but the light you see it in".
That is my 2 cents. Great video and production value B.T.Dubbs.
Having an illness that doesn’t makes you to feel good most part of the day , everyday and even takes away your ability to go around as any other person , makes you so difficult and hard to stay in a good mood/ even if you try all day long!
And as a woman , trying to look good and keep a good weigth, when you have a cronic illness, it really sucks!😢
Sometimes it is good to feel sorry for yourself, but difficult to manage how long .
Agree with your comments about misconceptions about wheelchair users!!! But most people will never know the truth until they meet someone really close that needs it.
Love your videos. Love your attitude!!!
Yeah it can definitely be rough some days for sure. I’m not perfect and have my bad days too. Pain can turn me into a different person so I can relate on some level. Most wont know completely but I hope my videos can start to dispel misconceptions and educate the general public about our disabilities. Thank you so much for your kind words 🙏🏻 really makes me smile 😁
Karla Bujalil I agree with you! A lot of things are easier said than done also. Everyone is different and sometimes you have to find what works for you. I'll have days where I'm sick( Gulf War Syndrome, extreme chills and fatigue, gastrointestinal, respiratory, orthopaedic) and I could care less what anyone thinks and I'm mad as hell about being sick. I've slowed myself to feel that way but then I also want to puss the military off by living to be 100 years old and collecting my retirement check just to piss them off:) So, in order to live long, I've got to make myself exercise, read and use my brain cells, and I sew blankets for cats/ dogs at Animal Welfare and for Veterans at the hospital:). FYI, I've noticed a difference since I've started eating majority organic foods! Do splurge on regular ice cream once in awhile 😀. Also bought a few hand weights that I use while watching TV. Sometimes volunteer work,even reading to animals at shelters helps the animals and gets you out. Making scarves for dogs, blankets for animals, kids( child services, Linus Blankets, etc)Scarves for homeless, kids, check out title 1 school system, elderly, meals on wheels, nursing homes) Utube is great for instructions:) Once in awhile I'll tell myself I can feel sorry and mad, and eat what I want for ? Days, but then I have to do something nice, exercise, etc after that. If there's someone or something your mad or angry at, try to use it to your advantage. I want to make it to 103 right now so I can beat the lady's time for running the 50 and 100 meter in the 2019 Senior Olympics!!
I fucking love you. When I'm depressed, lately, your videos really perk me up. They remind me to keep focused and not loose hope in life.
I just found your channel. Dude, for the past 10+ years I've lived my life small. I've put myself on the back burner. As my disease has progressed so too has my use of my chair. Your channel has given me the confidence to live bigger! Thank you!!!
I love it when people ask if I’m getting a taxi or a bus. The look on their faces when I tell them I drive a van!
Amen bro. This one pretty oblivious, but don’t assume we always want help pushing our chairs. My dad has a bad habit of this. Ask first.
Thanks so much for sharing your experiences with us. I’ve got an SCA so my journey is just beginning. Everything you have shared has reinforced my feeling that no, not sick, just different. I found your channel looking for ways to make my transition to chair life as smooth as possible.
I think I love you! Wish more people understood what you are saying about choices and attitude. I'm 81 year old granny and not feeble! Knees are shot (choose to keep as I can manage and accept limitations) whole body often sounds like box of Rice Krispies but I CAN do for myself. I live alone and still drive-not a minivan-! Please keep explaining you can do so much regardless of any physical disabilities IF you want it bad enough. Bless you😍
I am in a wheelchair and am ill all the time due to my hypermobile EDS. So you can be sick and in a wheelchair....
Can you time stamp where in the video i said you can't be sick? because i know i never said that.
Wheels2Walking you said it at about 1 minute into the video, but sort of corrected yourself and said “not inherently sick”
Wheels2Walking I also see more people in the comments talking about different reasons they use wheelchairs, including chronic illnesses, so that’s important & it’s nice to see the diversity for me as a new part-time chair user. I got a chair for cerebral play & chronic pain since my crutches didn’t work out well, and it’s been amazing to see what a difference it makes.
Wheels2Walking 0:54 - 0:56
I also reacted strongly to that too! A lot of people in wheelchairs use them due to illness! Kinda threw me off to watch the rest of the video, this dude is great with normalizing spinal cord injuries for able-bodied people but does come off like a bulldozer and somewhat arrogant about everything else.
(That's not my picture) I am a retired lawyer, 79 years old and weigh 330 pounds. Some people assume that I am in a chair because I am too fat to walk or stand. My spinal cord is damaged (incomplete) from T-7 to T-12, a result of an A_V Fistula which engorged a vein proximate to the cord. At the time there was one doctor in the US who did the required surgery often enough to be good at it, so I went to his city, and came home for rehab. The doctor went in and sealed the hole between the artery and the vein. (He has since retired, having taught a platoon of surgeons how to do it) The neurological symptoms took 5 years to diagnose. The surgery in 2005 stopped it getting worse. What has happened in the succeeding 14 years is a couple of falls and slow decline in abilities. I started with a cane, mainly, then came to rely on a walker, and as matters got worse, I wound up mainly in a wheelchair, but walking short distances with the walker. The decline is due to aging, not neurological decline. Aging ain't for the timid, young man. It just beats the alternative.
What you are doing is very useful, interesting, and encouraging. It is good and useful work. Keep it up. You are a useful person.
I want to tell you about getting out of bed. I have a hospital bed. To get out of it, I start with it flat. I roll over onto one side, elbow down and feet over the edge of the bed. Then I push the button that raises the bed to a sitting position. After a little pushing and shoving I'm seated on the side of the bed. Lower the head of the bed, and raise the foot of the bed until the toes are 3 inches off the ground -- it is much easier to stand from a high seat than from a low one . Stand up and grab the walker. QED.
Thank you
Thank you so much! I needed to hear those words about choosing to be happy. I love the way you said it, your tone of voice and how you looked directly at the camera to drive the point home even better. Thank you!
Great video and loved the motivational message at the end. I’m not sure about the comments from the people saying this was geared towards paralyzed wc users and I’m pretty sure you said “not all wheelchair users are sick or need help.” I’m not paralyzed. I was born with Spina Bifida and have been able to walk up until two years ago when I rapidly started to lose my mobility. Long distance walking is no longer my friend. I’ve moved from using a cane to using a walker. My wheelchair is due to be delivered in a week...a power chair because my doctors say a previous shoulder injury would cause problems in a manual chair. (Actually it’s a manual chair with a power drive hand control added) This is a completely new world for me. I found your channel after I had a pity party about not being able to go to concerts anymore. I’m a huge fan of concerts. Thank you so much for that concert video and for helping out us newbies!
I’m so happy you enjoyed it! I think the comments were mostly from people who didn’t identify with what I was saying. For example “we can drive” and they would reply “well I can’t drive” idk. I knew this video would be stirring up some controversies.
I’m so stoked to hear that they’re helping and doing their job! Thanks for this comment and I’ll see ya in the next one 👊🏻
I had a complete family - wife and 2 children until my accident of spinal cord T12 - L1. They left me. I am now at my mother's house. She is the one and only who keeps me alive. Don't know what will happen 😕 in future. But I kept trying to be functional again.
I love when the elderly come up to me and ask if I need help. My answer is always the same ..thanks, but I'm burning calories and working on my abs.i then smile then proceed onward.❤️
Thank you so much for your channel. When I got sick 4 years ago, I fought and fought to get my legs back. It took me a very long time to accept that it just wasn't happening. But, when I finally made the concession that I would be a full time wheelchair user for the rest of my life, and it was time to get on with my life, it was such a game changer for me. I am much, much happier now, I'm still able to do just about anything I want, I've just learned how to do it all sitting down. I'm not afraid of falling anymore (I broke a rib on my last big fall, tough and painful lesson to learn), I'm not in constant pain anymore, and I'm much more pleasant to be around. Your channel is a Godsend, please keep it up! 🤘🤘👍👍
You have helped me SO MUCH with all your videos. You inspire me to be able to live a complete life as before I lost my legs. From the bottom of my heart i give you much gratitude for helping us all learn how to live again! THANK YOU! THANK YOU!
This was excellent. Very revealing as to what someone who uses a wheelchair thinks and feels.
I have Spastic Quadriplegia Cerebral Palsy and C-7 incomplete Quadriplegia. (I roll in a Ki Rogue) My injury happened at birth and I’m an attorney, a wife, a mother and a friend to anyone that can keep up with me. My husband chose to be the one who would be the stay at home dad while I have the career. Our kids are well adjusted, are now young men who have jobs and their own active lives. 24 years ago when my oldest was born, society didn’t believe that I could be a parent. I and many others have proven society wrong time and time again. My husband and I are going on 27 years and I’m rapidly approaching my 50th birthday. Life is good and I’ve been asked would I want to be able-bodied, my answer is always never in this or any other lifetime. Disabilities are not something to be afraid of, embracing who you are and living your life to the fullest is what we all want.
I just came across your videos. This is the first one that I've watched and I'll watch the others.
I like your positive attitude. My goals are to stay positive, stay active, and stay engaged.
I have secondary progressive multiple sclerosis and I use a cane, rollator, or power wheelchair depending on my energy level.
Thanks for this helpful video
I’m so glad you found them! Thanks for watching :)
I'm not in a wheelchair, and I hope I won't, but I like your video because thanks to you I know better how feels wheelchair users (I always wanted to do the right thing, but I didn't know what was right, so I was very uncomfortable). Just continue like that, great video, and as always, great spirit!
Congratulations on 10k!!!!!
Hey Champ, you inspired me a lot. Because of you, I'm beginning to accept my situation. I'm having my new wheelchair and I followed your advice and design. I had massive stroke 2 years ago and learning to walk a bit. But I'm putting too much strain on my hips and will be more painful in the future. Thanks a lot for advocating the wheelchair. Now I get it why wheelchair is better than walking....🙂
Hi, I just wanted to thank you. I'm researching paraplegia for my debut novel, and this video helped me so much! I look forward to watching more of your videos.
Last 5 min... bliss 💜
I've been in a wheelchair for 40 years and everything you said is a 100% spot on.
I'm also in a wheelchair and didn't have an accident. I was born with it and I'm not ill. I'm now 15. And what you said about people saying sorry and always wanting to help, sometimes it's very sweet, but sometimes it's really annoying. They just don't understand that if something is difficult you want to try to do by yourself and if you just can't do it you'll ask for help.
At least that's my opinion.
I’m currently in the hospital recovering from a spinal cord injury. I’m about to begin the journey of his life transition, thank you for the videos and inspiration!
I have a incomplete spinal cord of my T1 T2. My sister in law has a hang mans break with an incomplete spinal cord as well. We both are wheelchair users who do as well walk. I also have other health issues too. I hate the stigma of being young and in a chair. I’m 27 and she is 23. We both get dirty looks and rude comments. The other day we were going out and I parked in disability parking and a older lady yelled at us as we got out of my car before grabbing the chairs out of the back. About how we were not disabled. She probably felt stupid when we both rolled off.
Yeah, young and in a wheelchair, being able to walk but use a wheelchair, being disabled period... that tends to bring out the judgement and hatred in people. It’s really too bad :/
I'm not in a wheelchair myself. But this year I was diagnosed with chronic backpain (I'm 23 btw). And my life is a mess. But watching your videos gives me confidence in being happy. Number 10 made me cry. Because I'm in a dark place right now. I'm working on it but what you said helped. Thank you so much
you did an excellent overview, think adaption is important. making people aware to ......thumbs up :)
thanks
I was born with cerebral palsy and the one question I always get from strangers is “oh what have you been doing with yourself?” Or “have you been in the wars?” And I don’t know what to say I’m fine.
People can be stupid sometimes.
I have spent the better part of today binge watching your videos! I will be back on my wheels Sat after the part for my lift comes Wed/Thurs. Thanks for your inspiration.
100% correct. Incomplete t12 here, I recently figured out I could choose to be happy instead of being negative/depressed. Good things are now happening.
That awkward moment when you’re a wheelchair user because you ARE sick... lol I’d bet more of us are sick vs. purely disabled. And do need help with things at home, etc (not that we typically have access to said help). I feel like these apply more specifically to paraplegics than wheelchair users in general.
Definitely yes on empathy vs. sympathy though. (And lmao at that clip: “Stop it. Get some help.” 😂) That’s such an icky feeling when total strangers make assumptions purely based on the wheelchair.
Hey Amy! I always appreciate your comments. Question, would you consider illness as a sickness? I understand a lot of wheelchair users have illnesses and diseases but aren’t necessarily sick. They just have chronic symptoms to manage.
Like I said it the video some need help some don’t. It’s all a varying degree. Take what ya need and leave the rest.
Yes, this is aimed more at para wheelchair users because I am one, but if you pay close attention to the language I use I make sure to never say “all” or “everyone” I’m just addressing common assumptions by ableds.
Stop it. Get some help 👊🏻😂
Wheels2Walking Hmm I use them interchangeably. I think it’s a matter of semantics and personal preference, more than anything else, personally. But it’s always a bit weird no matter what because the first thing people hear when you say “sick/ill” is cold, flu, or stomach bug. Even though you can feel way more sick than that every single day. Also, “ill” still sounds really British to me so I tend not to use it as much because I can’t pull it off. 😂 I guess not everyone who has a disease would consider themselves sick, maybe depending on the ways they’re affected or other factors, but many definitely do.
I say “my illness” when I want to refer to the fact I’m sick without giving details (which I may want to do for privacy, and also because I work in biopharma I have an overlap of my several illness and the work I do and having to do a weird “this illness sponsored by...” disclosure because it happens to be a disease I work on is awkward. “Sick” I think does sound more like the flu or something. -part time mobility scooter user
When I was born I was 100% along the lines of disabled. As I age I’m disabled, and chronically ill also. My spoons are definitely not invincible.
The “Sorry” thing really angers me too, I’ve come to terms with my disability but Empathy not Sympathy, thanks for your vids they make me feel less alone and more understood
I’m in a powerchair. I have central core disease and I’ve had it all my life but about a year ago I lost my ability to walk. It’s always been a challenge and I’ve never been one to give up but I have so many days where I feel “weak” or “useless” but I just gotta get up and don’t stop. I’ve been very depressed up until about a month ago and I’m still getting there but as long as I keep fighting and knowing I got this then I can do it no matter what! P.s your videos are what made me realize there’s more to life than just sitting in my sadness. Very inspiring, Love you man.🤘❤️
Hi, Im Carol I have MS and a wheelchair I kept falling and if someone had told me this was the wrong decision I could have made for myself I would have told them it doesn't bother me because I could be dead; your video's I find them inspiring. Thank you
I'm not paralyzed, I am sick, with a disease that robs me of the energy a healthy person would typically have. I do have a manual wheelchair, but it's more for last resort usage. I prefer my big ATV electric wheelchair so that I can get out and do life as best I can as a Mack truck with a pint of diesel! I can still stand up and walk. But I can't do either very well or for very long. I am always in power save mode with my energy. I have to be or a day will end much sooner than I had hoped.
I really like your videos! You are spot on 90% of the time and I like your energy for life! I work hard to do the same! Keep producing these your work does make a difference!
Great video Richard as always cannot wait to see the finished product.
So true about the driving! People are so surprised. I tell them I've been driving since I was 15!
I loved so much about this video! For me, the happiness part came when I realized that I could do so much more than I thought. Even as a former health care worker, I had a lot of internalized ableism and misconceptions about what using a wheelchair meant for my life. I've learned and grown so much since my injury. My boyfriend is especially happy that I can now push a grocery cart, thanks to your video, so now he doesn't have to come shopping with me lol It's the little things that add up sometimes :)
I love both your comments about s#x & jobs - since I teach s#x/kink education for a living. It's always funny to see the looks on people's faces when they come out to a class and I roll in and introduce myself. I've had people actually get confused and tell me they aren't there for a disability class, as if I can't teach anything unless it's about being in a wheelchair :) One of the things I teach is different methods of sharing intimacy, for disabled and abled people. It's incredibly important and I don't think anyone would complain about having a creative and well-rounded lover.
I think one of my big things that I wished people knew was that we don't all have an sci. I use a chair because of pain, damage and nerve issues in my right leg. I can get around on forearm crutches for shorter periods of time, but it messes with my working leg. My chair gives me so much more freedom. It is nice to be able to use crutches though since it means I can climb stairs.
what were some of your misconceptions i'm so curious now! the little things do add up, i'm so happy i was able to show you how to do it :)
hahah thats funny you should definitely tell them it's the wheelchair sex class and then laugh.
FACTS abled folks dont know how to f*** unless its the the 3 popular positions for 20 mins max. i can only do one and that's making her do all the work! we get creative AF and honestly it makes our sexlife a lot more interesting. ableds could take a page from our book for sure.
i'm not sure of the abled community even knows what an SCI is, i think they believe wheelchairs are for the completely paralyzed. shoot, i thought that before i got hurt. disability is so taboo and it really shouldn't be. i hope my channel can shed some light on our secret little world.
@@Wheels2Walking I think a lot of my misconceptions came from both a shitty experience during my own accident and from when I was a paramedic, seeing a lot of worst case scenarios. I would pick people up from homes where they weren't getting the tools they needed to live independently and/or weren't getting the level of care they needed. We really drop the ball when it comes to disability and long term care (a common issue for many countries, from what I understand).
I also spent a year in a hospital chair, so I thought that was as good as it was going to get. I still deal with wrist issues from trying to self propel in the damn thing. When I got my tilite, I was blown away at how easy it was to move around. Don't get me wrong, I'm still building strength and endurance because pushing a chair is a challenge but it's way easier than that evil torture device I had at first.
I thought I would never be able to live alone or independently. I was worried that my partner would leave me because I couldn't do the stuff we loved anymore and that I would have to live in some awful care home. I don't have any family so if he wasn't there, I don't know what I would have done. Luckily, I have an amazing partner, and he helped me through the worst of things, so now we get to enjoy life together again.
While I knew about hand controls for cars, I was worried that I would never be able to afford adaptations like that. Once I found out how expensive a basic wheelchair was, financial stuff became a real worry/barrier. Finances are still a concern, but I was able to keep working - which was another fear, that I would have to give up work. I travel a lot, go to conferences, present classes so I thought that was over. I just got back from a work/pleasure trip to Las Vegas, so I proved that one wrong :) I've had to take more time off and give up some of the things I did before, but I still work and it's getting better all the time.
I thought I would have to give up everything I loved; hiking, travel in developing countries, backpacking/camping, going to the gym, basically anything active. I've managed to travel to the US, go hiking on accessible trails and I'm getting some cool new equipment very soon so that I can go off road and enjoy at least some of the less accessible trails. I want to be back in Mexico or Central America by 2020, once I'm stronger and more fit. If you've never been (and I'm talking remote locations, not resorts), they love stairs and hate flat, paved stuff. Lots of cobblestone for streets, huge, uneven curbs, basically, a wheelchair users nightmare.
Of course, I was worried about intimacy, since pain and muscle spasms are a big component of my injury. It took a while and we are still getting back into the swing of things, but we're getting freaky again :) Definitely something that makes you feel better about life!
Basically, I thought my life, as I knew it, was over.
I don't think ableds know exactly what an sci is, but they assume we are all 100% paralyzed, as you said. I've been asked how I broke my back many times. Aside from some arthritis and other issues from lifting heavy stretchers all day for a lot of years, my back is in okay shape. When I move my legs (even if it's just the bad one doing a funky dance from spasms), people stare. I even had a woman tell me she was sure that my injury was very recent because my legs weren't atrophied. What she didn't realize is that the one is, you just can't tell due to the severe edema (swelling).
I'm so happy to see how quickly your channel has grown, it's such a great help to so many people. Keep up the great work, I can't wait to see what you have for us next (and you're making me miss LA, Venice beach is such fun!)
Many of us can only dream about sexual intimacy with someone else.
Thank you, have used a wheelchair full time my whole life (31 years) was born with Spina Bifida (Spinal cord/spine didn't fully form) . still learning how to do new stuff how to live differently (I haven't mastered curb jumps 😂) a few other life skills work in progress. I work in child care an after school program. Love all my kids
I have a city navigation video I want you watch! I teach you how to go up and down curbs in that video 😁
@@Wheels2Walking ok thank you! Working on making things accessible learning to cook in a semi accessible kitchen (so far so good, everyone likes it and the house is still standing 😂)
I,still live with my family at the moment
I’m a wheelchair user with Spina Bifida, too. 🙌🏽
Me and you share something that most people will never understand I'm not in a wheelchair but I have a major disability I'm a dialysis patient of 14 years I've had polycystic kidney disease my entire life..... I don't even think I could put a number on the amount of surgeries I've had over my 33 years of living.... but to be able to watch somebody operate just the same as I do is flat-out amazing and motivating cuz there's something about me that I haven't mentioned quite yet...
I'm Also a Mountainbiker & Cycling Vlogger !!!
You my friend are living a life I aim and definitely hope to achieve one of these days
Thank you for your Inspirational Video! I discovered you recently and watch several 'parts' of your story each week. ♥
You really helped me focus on the positiveives and try not to fucus on the negatives so much, I have scoliosis and had too have major surgery to fix it as much as they can, so I just want to say thanks for your videos because they helped me become less depressed about my situation ❤️❤️💜
Love this channel so much
Thanks for being here!
Thank you so much! I've been referring people to this video when I just had enough of those questions. You explain it so well and clear.
One thing I wish people stopped saying to me is that I am too young (21) to be in a wheelchair or be sick (I have several chronic illnesses too) or have a service dog. For one my service dog is not because I am in a wheelchair. Granted he does help pick up stuff too and such, but that isn't his main task. My dog is an alert and response dog, because of my seizures, fainting, blood pressure and blood sugar. In my chair I can do most things myself (there's a few most users can, but I can't due to the chronic stuff, but that's not important). People just assume so much and I get sick of it!
Jesus, Sir, you have quite the physique. I'm respectfully jealous
How do you find the strength to keep going I am personally not in a wheelchair but the parts when you talk about depression and stuff really do speak to me I am diagnosed with depression and I find it hard to go through out my day I find you very inspiring and I love your videos and everything you stand for
Wow! I am now in a rehabilitation hospital after a car accident. And finally manages to smile and hope for the best Thank you !
You leaving me this comment makes me smile :) find me on IG and send me a message!
Once I was out and about and saw a guy in a really boss wheelchair -- all pimped out. I said, "Love your wheels!" and he gave me a dirty look. Is that just him, or is considered rude to compliment somebody if they have a really rad looking wheelchair?
Just him I think. Lot of us pimp our chairs to get compliments
A few years ago I broke my legs and ankles all at the same time... I was confined to a wheelchair. My perspective changed in my eyes became open through that experience . I just want to educate people they're not aware of the experience and encourage the ones going through it
Thank you for sharing! I love the footage off you doing the pull up in the chair. I never thought of that!
I wish people would try not to like really think that people in wheel chairs are just completely useless tbh
I am a wheelchair user too. But I'm not just like u to have a strong abelity and brave to do that kind of adventure u have. I admire u so much
Another misconception about wheelchair users is that every one is paralyzed or partially paralyzed. Not true. Sometimes walking just takes too much energy. People have injuries not related to spine like me or people have an illness or syndrome that makes walking tiring or painful. Or people have an invisible disability. Some people have flare ups and have good days and bad. I do. There are days I need my assistive devices more then other days. People don't understand why one day I take my powerchair a short distance and another day I choose to walk that short distance. Another thing just because you pretend like you don't see me...doesn't mean I don't notice you pretending. It's easy for people to overlook you because you sit lower then their eye contact. Even if someone says sorry or offers to help you do things you might be able to do yourself..it means they are taking the time to acknowledge you and talk to you rather then ignore you or pretend you don't exist. If they don't know you...they don't know what kind of help you need or don't need. If someone takes the time to open a door for me when I dont need help...I'm grateful because it means they are being kind and thinking about someone other then themselves. Maybe that's the first time they have ever interacted with a person using an assistive device. Maybe they don't know what to do or how to do it but they tried. If you fuss or make that a bad experience for them, the next time they see someone using assistive devices they might ignore that person. If it's a pleasant experience then they might not be afraid to talk to someone the next time. If someone grabs the door when you are in the middle of opening it say thank you very much how are you today? Or compliment them on their clothes or hair, or asked them a question. Sometimes when I am in my chair I will hold the door open for other people. That surprises them.
I used to be a wheelchair user when i was young (middle school) for 1 year i was ran over by a car by a drunk driver to be specific although it was relatively short i understand what you mean in the video
As someone who has been in a wheelchair since I was 3 (born with spina bifida.) I cannot say anymore how these videos have helped me in just the few hours I've watched them. I also had my leg amputated back in 2017 from an infection from a sore on my foot. So even more mobility was lost for me. These last few years have been so trying for me and damning. But this year things are finally going to be better. I'm going to be working at a local truck repair shop (working the parts department.) I also am working on getting my own home. Which will be my first and everything you have said in this video is true and so accurate. Another thing I hate is when people come up to me and talk to me like I'm 5 "awe well arent you just so handsome!" I'm just kinda sitting there like "well thank you ma'am. I do ask though that you please refrain from speaking to me like I am child." Its just that moment of. "I'm in a wheelchair. I mean I'm not all there 🤣🤣🤣 but that is for completely different reasons!"
“Stop it. Get some help.” Lmao that was my favorite part. If you make merch, you should put that on a t-shirt. 🙌🏽
Yeah, I haven’t reached the point to where I’m comfortable in my situation. I feel guilty, sort of, that people have to assist me or that I have to inconvenience others. I know I shouldn’t and that It’s not my fault. But I can’t help it, I know how people think. I was walking for my entire life, until 2 years ago.
I try to be positive, but there’s always that voice.
I know the feeling. watch my last video, the AMA. i talk about how i projected things onto other people.
I think it's normal. I hate having to ask for help or letting people do stuff for me. I would rather struggle and take 10x as long to do a thing than to have someone do it for me. My solution is to push myself to do some of the things (watching other disabled youtubers has been so helpful to learn how to do stuff - @wheels2Walking has listed wheelchair users to follow on his instagram, which was super helpful as well). I accept help while keeping in mind what I want to work on next. For instance, I need to work on my wheelies so that I can manage different terrain and curbs without asking for help, so that's next on my list. It's easier for me to handle the guilt if I know I'm working towards more independence. Knowing that there is this amazing community of people who know what I'm going through has made it easier for me to accept where I am. I'm coming up on the 2 year anniversary of my accident, and I'm trying to focus on all the things I've learned and how I've grown, rather than what I lost.
It's not how quick you get there. There will be detours and dead end along the way - but you will find what works for you. ❤️
C6 Quad here. Love the videos! Use the same exact chair and backrest. Quads can also do evry thing he said just dont look as good (smooth) doing it. Just adding that in.
My parents don't at all understand me. I have a wheelchair that I use rarely because of my extreme Chronic Fatigue and some other undiagnosed issue that means I am losing strength in my legs. They see me around the house grabbing onto things and using crutches and go "Oh he can walk so he doesn't need his wheelchair" or make comments like "wheelchairs are only there for people with more serious disabilities not you who can walk with crutches or unaided most days"
Richard are right we go out look what you can do and can be positive,T4 paraplegic for 41 yrs is not easy but I get around , alright ,it was nice whatching you thing keeping going god bless you brother
I’ve been seeing my primary care doctor for about 2 years now, and even she says, “I’m so sorry for you” on multiple occasions. And I’m a c5 incomplete quad but I swear on most of my paperwork she writes, “patient is paraplegic”. I understand she’s not a spinal cord specialist but I do also think general family medicine doctors need more education on the SCI world.
😬I think i'd have a hard time trusting their medical experience.
I was fortunate when I was a kid to have a neurologist who explained everything to me. You have to become an expert in how your condition affects you, because someone else with the same can have a massive difference in how it affects them. Doctors know the uncomplicated textbook version.
Hi, I have cerebral palsy spastic diplegia , I use wheelchair most of the time , I wish I can be much more independent like you do , I live in Indonesia , here is almost never accessible places in wheelchair , so I always need someone with me ,I try harder. to get better movement and walk everyday but its always not easy, I'm proud of you watching this channel so I don't feel alone living in a wheels , please keep in touch if you don't mind
I miss yours videos ,
Thank you for your videos makes me I think more positive about my legs I've never had a good pair of legs they're starting to give away starting to tingle and go numb so I know I'm on my journey the next level of life Without my legs your videos are very reassuring and keeping me positive I'd love to talk to you more
I feel uplifted by this. Thank you so much. Fx
I've been a wheelchair user for 30+ years and played many wheelchair sports over the decades. I get people looking at me weird at times when I mention a sport I have played or play now and some will say "wait you can do that sport?" that irritates me at times. like right now i play pool and i am a bowler. on my bowling league ive told people there is a wheelchair league that travels and some of those bowlers average around a 200. one of my old teammates laughed and said it was impossible.
Hey bro I just started my UA-cam channel a few days ago and I ran across yours. it's f****** awesome and I love this video.
You are such a inspiration for people in wheal chars my ant was in a car accident and she has a complete spinal cord injurie she is parilised from the wast down and she have had 2 kids sence then and she struggled with addiction on pain killers and sadly she is back in the hospital idk yet why but hopefully she gets out soon I was alway wondering the truth about wheel chairs and one thang is that sence I grew up with her in a wheelchair I have never thought she was smely I would love to have a conversation with you just to talk but you will probably not what to sadly but man just keep up the great work you are the best
the loud techno music has gott o be turned down in future vids bro, its hard to keep turning the sound way down for that then having to turn it up to hear you guys talk and still you have that loud beat pumping while you are talking its hard to hear you over that especially for those who use hearing aides and all, other than that, l i love your vids