What Do Absence Seizures Look Like?
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- Опубліковано 30 вер 2024
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1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How old are you?
‣ 17
3. What is FND?
‣ fndhope.org/fn...
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‣ www.cdc.gov/nc...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, UA-cam and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!
You’re so brave, showing us what you go through everyday. You are the strongest person I know.❤❤
Seriously I can't watch this it makes me terrified 😂
The meat riding is insane
@@HussyBerghonestly, but with all the people faking conditions for clout this is the least of our concern. at least this one is a real one
Strongest person you know? Lolol
you exaggerated but ok
I suffer with absence seizures since around 6 years of age I’m now 23 and haven’t met another person with them it’s nice that your showing people because if I mention it I feel like someone’s going to think I’m either faking or not listening or spacing out and I get scared like people think I’m using it as a excuse 😂 nice to see it being put out there not all epileptics are up the floor having convolutions (although I do have grand malls too)
My 9 year old daughter has many types of epilepsy, but the absences are the ones we see the most. Can u explain how you feel when it happens so we can understand her better? (She has ASD &finds it difficult to explain) x
@@EyedontjudgeI have generalized idiopathic absence epilepsy with seizures and have had them for about a decade. They’re really wide-ranging in how they feel, and everyone feels things differently (so take this with a grain of salt) but here are MY most common types (these aren’t medical terms, just things I tell family and friends to help explain):
Full Seizure-you’re fully unconscious, it doesn’t rly feel like anything. (Think a record skipping)
Full Myoclonic seizure (seizure with small jerks)- same deal but with soreness from the repeated movement
Half seizure or discharge-you can’t control your body but you’re still semiconscious. Sounds and feelings filter in, but they’re hard to put together.
Cluster- a bunch of seizures put together. Can be really debilitating. Dizziness, fatigue, and sometimes even losing the ability to read are common for me.
I like to describe my brain like a sequined pillow. W/o meds t the world feels disjointed and hard to focus on (the sequins standing on end) but when I eventually take them my thoughts smooth out again.
I suffer from them too but I actually pass out for little bit when I have mine
@zacharyhightower9062 this is a fantastic description and the most detailed I have ever had explained to me. Thankyou SO much for sharing something so personal - I really appreciate it and will also share this with her teachers
@@sherreesecoleman5241 do you pass out from absences?
I got kicked in the head by my horse. Since then i have seizures. Some are absent seizures. Others are full body seizures to where i just freeze. Basically tonic colonic or grand mal. Thank you for showing what you go through so that the rest of us dont feel like we are the only ones going through this
Same here but probably years of wrestling and me doing *“stupid boy”* stuff😂
I remember that one girl in the background noise on your channel saying you were faking it for attention or smth like that. It's very brave of you to go out in media and raise awareness of what sezuires can actually look like.
when i was in 3-5th grade i had absence seizures and i kept gettin in trouble at school and at home until a school nurse noticed i would zone out. my mom said she cried when the neurologist confirmed my seizures after an eeg and she watched them as they put me in a seizure manually by blowing on a fan. i hope these dont happen very often and that your meds help as mine helped me.
Literally, you're such a blessing :) trust me.... going through this much and still trying your best to work and be happy :(( ... keep going girl !...and never feel alone cuz we all are with youu!!! Sending lotsssssss of love
I never knew there were kinds of seizures. I just thought it was the one kind that is shown on tv shows. You learn something new everyday!!
Kind of scary that these can be so subtle…Thank you for sharing so that I can be aware for others ❤️
Thanks for your braveness to share your struggle in this lovely way.
You are teaching and encouraging me in my Bubble.
What I find interesting about absence seizures is the broad spectrum of how they look. Mine look very different to this and I know others who all have different types of absence seizures for different lengths of time with different post ictal. I think visibility is key
Your so pretty 🩷
Hope your okay after these
if you don't mind, could you explain what happens from your perspective when you have a seizure? are you conscious?
I was curious as well.
for absence seizures you are unconscious, and most of the time you won't really realise that its happened. im not sure about others since i only struggle with absence ones, but i would think some are the same or youll have gaps in your memory
It just looks like your thinking critically on what you just heard/read. Im sorry you have to go through with this. Your doing an amazing job dealing with everything!!
Girl ur so brave if that happened to me I would have all kind of questions and I would be crying anyway hope u have a good day stay strong love ya girly
I never knew there were different types of seizures until I found your channel, thank you for educating and raising awareness! ❤
I have a question if that’s ok; do you ever pretend to faint in class when you are really tired and just want to sleep?!
Lol I love your videos
Usually when u faint it onlg lasts minutes so if u pretend and fall asleep you would notice
Sounds like a 70s Hub flick, so i have been told 😅
Is the chin jerk, and looking up a tic, or a seizure? Just found your page so I don't want to ask anything wrong. I just have had that kinda thing for a bit, and I don't know why, even when I am asleep my boyfriend notices my sudden movements. Anyway, thank you for sharing your story and hope you are doing well, I appreciate the awareness. Also you're gorgeous! 😊
People that have this:
When it happens do you “dream” for that brief period? Does it feel like you’re very tired while it’s happening and then you’re ok right after?
hope your okay
i don’t remember the technical name for these types of seizures but do you get the shaky seizures where you fall to the floor shaking? i get them a lot like at least twice a day and it’s really hard as a small con tent creator to film stuff while having a seizing episode
i cant tell if im having small seizures or dissociative episodes :(
neither can i
@@Sprinkles-is-confused i think its best for both of us to seek the help of a neurologist just to rule that out, because my tic attacks often appear similar to seizures and my tics were caused my medication, not tourrettes, i think it could be a possibility but im hoping not.
@@sage5530 yeah definitely trying to get an appointment with mine to figure this out. i just had Tourette's beore my heath spiral so i know its not medications it just got worse with more stress and i have no idea about the seizure vs tic vs dissosation vs a handful of my other problems that can look similar lol. definitely should reach out to your doctor.
Your so pretty😮
Will you ever be able to get a driver license Since you can tell when your episodes are going happen?
I have absence seizures daily and your not aloud to drive till your a year free and have proof or so I’ve been told by the doctor and driving instructor
How do you know the difference between a tic and a seizure? I feel like some of my 'tic attacks' have actually been seizures, especially since I usually feel dissociated/spacey when they happen
i have the same question
I am so sorry for asking but what were your first signs when you were diagnosed with it because l have a daughter whom has tics but we don't know whether or not they get worse over time thank you for sharing from concerned parents in New Zealand
You’re so incredibly brave for showing what you go through ❤ I do have a question though, do you ever get hurt with drop seizures?
❤
How hard is it to catch up on your studies when this happens? I mean, it's obviously during your lessons, and it looks like you might miss quite a bit, but does it actually interfere with how you learn?? It looks like you're doing really well!!!❤
the first year, it was near impossible... i almost dropped out! 🙈 but i've managed myself and my conditions so much better this year so i've finished and done okay!
My sibling has FND and Absence seizures, is there anything I can do to help them while it happens? I want to be there for them in the best way possible ❤
true i want to know too
Have you ever had like a proper seizure like shaking?
Saying things like "proper seizure" can make it look like her absence seizures aren't significant. All seizures, whether focal or generalized are important and "proper".
Not all seizures make you shake the seizures I have don’t make me shake
I feel like this might be an obvious question; But when you have an absent seizure does it feel like your zoning out?
Is it possible to ever dream when you faint?
I think she’s said that she personally hasn’t, but it’s definitely possible to dream during a seizure/fainting episode. You can also hallucinate, although from what I’ve heard they aren’t usually super detailed hallucinations.
I know this is months old but I have been enjoying your videos. I see you've uploaded recently, glad you're thriving!
Be blessed and in good health. God bless you always and protect you.
*⚠️WARNING⚠️*
This is long ash but…
I have seizures as well but I have grand maul seizures, which is the same as a clonic seizure. Basically your body, arms, and legs will contract, extend, shake-a *clonic* period (contraction and relaxation of the muscles), followed by the postictal period. During the postictal period, which results in being sleepy, having problems with vision or speech, and may experience a migraine, fatigue, or body aches. From my knowledge (because I never remember anything a little before or after I have them). I have them and then wake up idk how long later, once was about 2-3 days when I had my first ones since I was around 3 due to high fever. A few times I believe I was only out about an hour or so. The first time I had a seizure since then was I think in March last year. It happened when I was driving home after a little argument with my then girlfriend at the time and was on the road below my house right up a hill to the left. I crashed into someone’s parked car and totaled theirs and mine. I woke up in the hospital in a *DIAPER* around 2-3 days later (I don’t remember😅) and I didn’t have a single scratch or bruise on me thank God🙏🏽☝🏽❤️🔥. However they said when I woke up in the ambulance that I was confused and started fighting them, it took about 3 of them to hold me down and strap me in😭💀 I guess I thought I was getting kidnapped or something and was *NOT* having it😂 later found out in the hospital about everything, and also that they had to take my license away for 8 months and said I couldn’t join the military for 8 years😭 some bs if you ask me. And what would trigger your tics if you don’t mind me asking?
Hi Zara, I'm currently experiencing a lot of absent seizures on a daily basis. They look similar to yours without the head drop. Doctors think it could be FND or epilepsy. I know it's possible to have FND and epilepsy. How long did it take you to get a diagnosis?
Gosh the atonic sezirue looks scary😮
I have generalized absent seizures. I take Keppra valproare 7.5ml. I get 8 hours of sleep. Does looking at my phone or my computer screen trigger a seizure? Does Keppra cause me to be violent? Iwas told I get violent sometimes. My seizures very. I'll have a seizure then I'm able to stop them when I have a aura. My aura are when my hands shake, my heart will beat fast or when my legs start jumping. I will have a seizure one day then I will able to stop them. Then I will go a few days without having one. I have had epilepsy surgery. I have a vegal nerve stimulator. It hasn't helped me stop my seizures. Do you think taking vitamins would help? Cbd oil, magnesium deficiency? I read where you said vitamin D 500-2000iu, Folic Acid 1-4mg, vitamin D6 pyridoxine, Omega 3 fish oil could help for seizures? I watch from Fayetteville n.c.
Maybe you can use a plane neck pillow for your neck tics?
Question???? When you have absent seizures do you see anything or can you still see what’s infront of you another question??? Can you still here Whaterver is going on around you??
I been thought slightly this and I didn’t think this is part of a seizure.😮🙏🏽
Have you ever gotten a grand mal full body seizure?
I have a question, have you ever had a dangerous seizure in class, as in like one that could hurt you, physically or mentally? (Only answer if you are comfortable I don’t want to push u)
i just turned 30 on the fifth of may and had my first horrible seizure that sent me to ICU for 4 days last week....I was suffering small dream like episodes before but I had no idea they were seizures....
I don't know if anyone can answer this but when you have these seizures are you semi-conscious? Can you hear the people around you or are you totally gone? Also does it make you dizzy?
What happens to you during that seizure? Does your mind go blank, something like that?
How do you know you’re about to have a an absence seizure my brother doesn’t remember anything 30 second before or after. So do you just keep the phone recording the whole class?
does it work if I'm just staring, but my head doesn't drop? it happens to me more than I feel it should.
I could deal with a woman tht has seizures...lol just lay ur arm to keep her forhead from touching anything gross like food...but when in not there id worry.
Ive got a question if thats okay have you ever been sitting on a chair then you fall backwards of the chair when having a seizure its okay if you dont wanna answer have a good day or night
I knew someone who brought a bracelet with something on it and chewed it in class and had seizures she had about 4 a day before they figured out what was causing it
❤ I wish the best for you.
What do you do or do the people around you do when you’re in a dental office having some sort of treatment?
How do you do well in class because I have those same kind of seizures and they make me not be able to focus
I hope you get course work support.
What do these seizures feel like if you don't mind me asking
I feel like I’m basically the same as you but I’m not but get seshers
This might be weird to say, but you are absolutely gorgeous.
You are so brave and strong you really are ❤ going through what you do daily and your still going and giving everything your best.
Your an amazing, strong, inspiring person you really are i mean everything I've said from the bottom of my heart ❤️ it couldn't of been easy to go through what you do and you are still standing tall and strong truly amazing ❤
From the UK
Is there anyone in the school who knows what to do, in case you need help?
I am almost 30 and today I found out there are different types of seizures.
if someone is having an atonic or absence seizure can i tilt them to the side?
what does it feel like to have a seizure?
Have you ever
Had ringing in your ears
I have small seizure and scared 😅
😮😮😮😮😮😮😮😮😮😮😮😮😮😮😮
Im sry, ik this is off topic but ur so pretty
You are amazing and strong woman.
my friend has these all the time
Can you drive I feel like that’s a spurs question but I’m not sure
(These rules apply to Britain, USA, and probably most other countries) With her fainting she can’t drive, but you could argue to get your license back if you can prove you won’t faint while driving. For her tics there’s no specific rules around it, it’s more of a personal choice unless it’s proven you’re unsafe. For her seizures its an automatic ban, you have to be a certain amount of time seizure-free to get your license back. Hope this helps!
My 4 year old has tonic clinic and grandmas and infantile spasms. Recently the spasms are more aggressive and I’m starting to believe they are absence seizures. He’s not breathing when he has these. He goes stiff, states, no shaking, no eye rolling. BUT NO BREATHING. It last maybe 5 to 10 seconds. Do you experience this?
It must be rough living with your condition and I have so much empathy and compassion in your life and everyday I am so proud to see how far you’ve come over the years! I AM PROUD OF YOU ZARA! ❤❤❤ (happy pride 🌈🏳️🌈)
Having epilepsy honestly irritates tf outta me cuz I can’t even go to a concert without having to step away from the stupid lights. I will be getting prescribed glasses for it soon🤷🏽♂️
How do you manage at school/college when you're have absent seizures and fainting so often? You must lose track of what's being said. Thank you for sharing your story, i really enjoy watching your videos. 😊
And scary
Ive took seizures, convulsions from heat but mainly as a child. They referred to my seizures as febrile convulsions. I do not know what a seizure feels like. I have 0 recollection as i mainly took them as a kid like 27 years ago 😅 i had a big seizure after i fainted and hit my head. Well, i dunno if i overheated then keeled over, whacking my head on a big metal shop door handle, or did i get dizzy and seize after hitting my head? I honestly have no recollection, i literally lost 3 hours that night
Question well, maybe more than one. When someone has a condition like this, would you like someone to do something? Should they be doing something? Whats the best way to accommodate someone without hindering their ability to participate or make them feel uncomfortable by standing out uncomfortably.
Youre so strong its ok don't get embarrassed I'm anyone bully's you we've got you GIRL POWER!!!!!!
I am not sure if you respond to comments, especially on a video this old. But when you experience these seizures do they hurt at all? Or is it similar to something like just passing out where you don’t even feel it and it just happens. Because I don’t experience any medical problems but I have passed out just once, I didn’t even realize it till I woke up so yeah basically is it like that or is it painful? I over explained that way to much 😅
Lol
Do any seizures hurt? ❤️ I love you and you look so beautiful and I hope you are healthy where you are and with what you are doing!! 🤪😊
Idk if you'll ever see this, but do you ever stop breathing during a seizure?
My fiance does. It's scary...
So you can kinda over power the feeling to speak by preventive thought of keeping your mouth closed, I’m guessing
I have focal aware seizures (FAS) also called "aura" seizures and I just started college this week! They aren't to this extent, they are just a little... weird. Thank you for educating people on this unfiltered reality and for being so brave to do so!
If you find your focal seizures are interfering with your learning (and you are in the US) you can request reasonable accommodations such as a note taker or record lectures under the Americans with Disabilities Act. That way, you can go back later and fill in any gaps in your own notes during the periods you were having a seizure.
Best wishes to you 🥰
@@asl2mckays I still need to get around to doing this! Thank you for the reminder!!
FINALLY! Someone else with focal seizures!
@@emmynother1164I also have focal seizures I have( focal cortical dysplasia) since I was 8 now 15 still have them just not as bad but I also had 3 brain surgery’s when I was 10 and 11 so yeah
I know the feeling seziures are horrible I get Absence seziures and grand mal seziures
Omg thats literally me. Thanks now i know whats pausibly going on.😌
Aww 😢😢🙏🏿🙏🏿I’m
So sorry you have to go through this. So proud of you for continuing to push through. I know it’s not easy sometimes.
I wonder when it's over do you remember it happening or do you feel like you lost a bit of time and does the antiepileptic treatment really help?appreciate the video so much btw
I love your Chanel so much it’s probably my favorite channel I never feel alone because of you!❤
I used to have seizures, and to this day people still bully me about it (even though I haven’t had one in years because of my amazing meds). Thank you so much for normalising it and spreading awareness ❤ Love ya
I hate my epilepsy seizures. It feels like just dying and coming back to life with no memory of the seizure.
Out of curiosity, are you on any medication for your seizures? My daughter has epilepsy I'm sending her your profile so she can share your videos with her teachers as I've never been able to catch the absence seizures on film these are a good example to share with the schools nurse and her teachers
OMGGGG it's looks really horrible, LIKE seeing this from outside makes me feel so sad! You are so strong!❤
Thank you for showing this! I now have a good visual of what my character’s seizures might look like
Has anyone ever snitched on you for being “asleep” in class when really it’s just a seizure? (Meaning like they didn’t know that you had seizures or something along those line)
Btw I love watching your channel so I can be more educated on stuff that I didn’t know about.❤❤
It must be so much extra work to keep up with all these classes. I have no clue how often this happens to you during a class, but it seems like you have to possibly study a lot harder than the rest because you miss out on what the teacher is teaching
Used to do that a lot when I was like 11, everytime I wanted to open a door I would just stand there and not move for like 20 seconds or more until someone shakes me or something and it’s really awkward. when these happens all i could remember is seeing a white void. and don’t get me started on school.
I was wondering if someone could tell me what conditions she has if you know. Because she has Tourette’s and seizures and she’s all over my page but I have like no idea what other conditions she has or why she faints or any of it!
When you are having a seizure can you still hear everything that’s going around on you?
❤🌸🌸