This video is very helpful. Lots of knowledge on what to expect and treatment plans available. Knowing this, I can go to my doctor and engage in useful conversation about getting help/treatment plans/or tests instead of relying on the physician telling me to "just come back in 6 months to a year ".
Is lumbar puncture safe for diagnosing IIH? I have a partially empty sella turcica and have been having extreme pressure in my head. I'm concerned about getting a lumbar puncture if I actually do have IIH, but that's really the only way to know.
Thanks for your question. As an MS charity unfortunately we don't have much knowledge on how to diagnose Idiopathic Intracranial Hypertension. Generally a lumbar puncture is thought to be a safe procedure for people with MS. On IIH UK, the UK charity for the condition, they do mention a Lumbar Puncture is usually a key part of the diagnosis process. I found information on this here: pulse.ly/3oemw294sm. Flora, MS Trust Enquiry Service 0800 032 3839 / ask@mstrust.org.uk
I was recently diagnosed with MS after clear MRI scans but i have symptoms and positive CSF results of Kappa Free Light Chain, CSF 2.17 mg/dL (High) CSF Bands 8 bands CSF Olig Bands 6 bands Serum Bands 2 bands
So I can't have an MRI because when I was 16, I was shot in the eye with a BB gun, and they left the zinc plated BB in my head. Will a lumbar puncture ALONE be enough to confirm MS?
It is possible to diagnose MS without using MRI, though it may take longer. What the neurologist is looking for is evidence of damage happening in more than one place in your brain or spine, and also evidence of this happening on more than one occasion. There are some situations where a relapse that affects different parts of your body and a lumbar puncture will give the neurologist what they need. Though you may need to wait for another relapse before they can say for certain that you have MS. The guidelines they use for making a diagnosis are called the McDonald Criteria. You can read more about these at pulse.ly/3mob4z3pjv
I’m afraid we don’t have any information on this. When a lumbar puncture is used in MS diagnosis it is typically to examine the cerebrospinal fluid and detect if there are signs of inflammation in the central nervous system. The pressure is not particularly something that comes into consideration, though I’m sure if there was an abnormality you would be informed. You can read about Lumbar punctures here: pulse.ly/7czttnr0ko Flora, MS Trust Enquiry Service 0800 032 3839 / ask@mstrust.org.uk
You are usually awake when a lumbar puncture is conducted. Some local anaesthetic will be put into your skin through a small needle. This stings but only for a moment. They will probably put more in a bit deeper to numb the underlying tissues, which you may or may not feel. The anaesthetic works within seconds, but if you are feeling sharp pains during the lumbar puncture, tell them and they can give you more. www.mstrust.org.uk/news/stories/what-it-have-lumbar-puncture Flora, MS Trust Enquiry Service 0800 032 3839 / ask@mstrust.org.uk
I am just here to vent about an LP. Yes and LP alone was ruff the healing process after was Hell… the worst headache I have ever had in my life…. If you get one just don’t move for 2 weeks after or else.
@KatiTheButcher I wanted to be KO. They cant KO us because off the position we have to be in during the procedure. You will be too relaxed and could mess up the process and take long Like I mentioned above... they added local anaesthetic once again. At the start then when I tapped out. It's annoying they didn't do it whilst KO.
@KatiTheButcher no...I haven't...but I know it's in my near future...I can't handle it awake...period...this dr is "shouldn't " be this or "shouldn't " be that....but he knows...
I wish you were my neurologist. You answered all my questions. Thank you.
😊😊
This video is very helpful. Lots of knowledge on what to expect and treatment plans available. Knowing this, I can go to my doctor and engage in useful conversation about getting help/treatment plans/or tests instead of relying on the physician telling me to "just come back in 6 months to a year ".
I'm a part of that 1% who had a terrible (perhaps the worst) experience of my life when the doctor did the Lumbar puncture during my diagnosis.
Is lumbar puncture safe for diagnosing IIH? I have a partially empty sella turcica and have been having extreme pressure in my head. I'm concerned about getting a lumbar puncture if I actually do have IIH, but that's really the only way to know.
Thanks for your question. As an MS charity unfortunately we don't have much knowledge on how to diagnose Idiopathic Intracranial Hypertension. Generally a lumbar puncture is thought to be a safe procedure for people with MS. On IIH UK, the UK charity for the condition, they do mention a Lumbar Puncture is usually a key part of the diagnosis process. I found information on this here: pulse.ly/3oemw294sm.
Flora, MS Trust Enquiry Service
0800 032 3839 / ask@mstrust.org.uk
very clear, very informative. thanks!
I'm still scared in the case the persons doing the lumbar puncture dose do it properly 😢
I was recently diagnosed with MS after clear MRI scans but i have symptoms and positive CSF results of
Kappa Free Light Chain, CSF 2.17 mg/dL (High)
CSF Bands
8 bands
CSF Olig Bands
6 bands
Serum Bands
2 bands
Had one a year ago, first two failtries. These were painful as hell. Third try worked and i felt nearly no pain.
Thank you for sharing your experiences.
So I can't have an MRI because when I was 16, I was shot in the eye with a BB gun, and they left the zinc plated BB in my head. Will a lumbar puncture ALONE be enough to confirm MS?
It is possible to diagnose MS without using MRI, though it may take longer.
What the neurologist is looking for is evidence of damage happening in more than one place in your brain or spine, and also evidence of this happening on more than one occasion.
There are some situations where a relapse that affects different parts of your body and a lumbar puncture will give the neurologist what they need. Though you may need to wait for another relapse before they can say for certain that you have MS.
The guidelines they use for making a diagnosis are called the McDonald Criteria. You can read more about these at pulse.ly/3mob4z3pjv
Can the Lumbar Puncture Diagnose or eliminate other conditions?
I HAD SYMPTOMS OF THE MS IN MY BODY, ATAXEA TROUBLE WALKING BALANCE ISSUES. MY FRIENDS CUSTUTOMERS TOLD HIM I SHOULD GO GET TESTED.
is 16cm opening pressure normal/ kindly reply
I’m afraid we don’t have any information on this. When a lumbar puncture is used in MS diagnosis it is typically to examine the cerebrospinal fluid and detect if there are signs of inflammation in the central nervous system. The pressure is not particularly something that comes into consideration, though I’m sure if there was an abnormality you would be informed.
You can read about Lumbar punctures here: pulse.ly/7czttnr0ko
Flora, MS Trust Enquiry Service
0800 032 3839 / ask@mstrust.org.uk
Is there pain? Are you usually awake or given local anesthesia?
You are usually awake when a lumbar puncture is conducted. Some local anaesthetic will be put into your skin through a small needle. This stings but only for a moment. They will probably put more in a bit deeper to numb the underlying tissues, which you may or may not feel. The anaesthetic works within seconds, but if you are feeling sharp pains during the lumbar puncture, tell them and they can give you more.
www.mstrust.org.uk/news/stories/what-it-have-lumbar-puncture
Flora, MS Trust Enquiry Service
0800 032 3839 / ask@mstrust.org.uk
I am just here to vent about an LP. Yes and LP alone was ruff the healing process after was Hell… the worst headache I have ever had in my life….
If you get one just don’t move for 2 weeks after or else.
Thank you for sharing your very honest experiences of having a lumbar puncture. Sending you best wishes from the MS Trust.
so why cant the patient be put to sleep...instead of having to "accept"...
I think they can. I have PTSD and Im not sure I can remain calm if I have to have one. Did you have it done by now?
@KatiTheButcher I wanted to be KO. They cant KO us because off the position we have to be in during the procedure. You will be too relaxed and could mess up the process and take long
Like I mentioned above... they added local anaesthetic once again. At the start then when I tapped out.
It's annoying they didn't do it whilst KO.
@KatiTheButcher no...I haven't...but I know it's in my near future...I can't handle it awake...period...this dr is "shouldn't " be this or "shouldn't " be that....but he knows...
Terrible pain ... a mild sedative should be standard.
The 5th time I got it done, it Def hit a nerve because my entire hip and leg went numb
Thank you for sharing 💙
I had this done 5x and each time. Each time, I was in major pain each time..
Thank you for sharing 💙
Thanks Professor, very helpful.
🏦🏥