That you so much for making this video! I was diagnosed with NF2 as well when I was 4 and seeing your story was truly an inspiration. I related to your journey a lot and wanted to tell you to keep on fighting the good fight that the NF community knows too well.
I suffering too of the disease and I want seriously this to end. I’m tired physically and emotionally mentally. I can’t even imagine living with this disease 5 more years. Please I sincerely need help and hope
Thanks for your comment Levi. We are sorry to hear that you are struggling. At the link below is a recent webinar regarding pain in NF2: ua-cam.com/video/8MFBab8qFqI/v-deo.html
That's my big brother! Love you, Billy. It is incredible to see your impact on the world.
Me too pursuing medicine in India and suffering from NF2....you inspired me alot
Hello i want to talk you
Wow, as a man with NF2 seeing the MD after your name is very inspiring ❤
Love you a lot my big 👦 boy. Dr. Billy Nguyen I always stand with you, share with you the rest of my life.
Hey, I am also a medical student and I was diagnosed 2 years back, it's really very inspiring seeing you the way you tackled.
How r u feeling now
Keep on smiling. I have SMARCA4. I hope to have your optimism.
I was encouraged by you. I am also a medical doctor, a radiologist in China.
That you so much for making this video! I was diagnosed with NF2 as well when I was 4 and seeing your story was truly an inspiration. I related to your journey a lot and wanted to tell you to keep on fighting the good fight that the NF community knows too well.
I have type 1 ,I want to know about your NF 2 journey
If you are reading this i hope something amazing to you . u deserve it all the best always 🙌🕊
I suffering too of the disease and I want seriously this to end. I’m tired physically and emotionally mentally. I can’t even imagine living with this disease 5 more years. Please I sincerely need help and hope
Please feel free to reach out to our patient support coordinator if you need some support! We are here for you. Her email is kkelts@ctf.org
Bless you! Was yours genetic or spontaneous?
Hi closecaption2 - you can read more about Billy and his story here: www.ctf.org/news/ctf-debuts-new-nf2-comic
God bless you
How do u deal w pain.. cause sometimes it just feels like the end for me
Thanks for your comment Levi. We are sorry to hear that you are struggling. At the link below is a recent webinar regarding pain in NF2: ua-cam.com/video/8MFBab8qFqI/v-deo.html
I too suffer from nf2 to be honest I hate living with nf2 I'm covered from head to toe with lumps
nf2, bilateral vestibular schwannomas, patient zero. I'm the one who might have caused a ripple about the condition. No pressure, but find our cure!
Yeah taking a photo with masks on haha