My 29 year old younger brother has cerebral palsy and gets frequent migraines. I learned a lot about cerebral palsy just from watching the video. Hope there will be a cure for CP one ☝️ day.
Could the headaches be related to food, gluten, sugar, and not CP? I have very mild CP and there is an unfortunate tendency in observers to draw inaccurate conclusions.
I have mild CP and I noticed less stiffness when I gave up gluten and sugar for a month. No, it’s not a cure, but there’s a definite difference like if I get out of a car, I don’t feel stiff. Lowering inflammation in the body through diet felt great.
Sometimes this toe walking thing can be in one leg only. Mine was on the right. I got operated 2 years ago and that seemed to be the only cure or solution. My type is spastic. And since my right side of my body is affected, this is called unilateral cerebral palsy. I also have light hemiplegia.
+Khalid Abdiaziz She did explain it but she just didn't use the terms. The fact that you are aware of these terms indicate you could easily identify which is which.
The author is wrong about whole-body spastic palsy, and about spastic cerebral palsy overall. The degree of stiffness can range from mild to severe ***throughout*** the body, resulting in relatively little impairment to a large amount of impairment; the severity of impairment is not exclusively determined by the regions of the body involved.
My sister's son, who makes his body so stiff. He is just 6 months old. Now doctor prescribed to use some medicine and giving physio therapy regularly. He makes his body so stiff mainly his neck and left hand. Is this spastic cerebral palsy??
What is the cause of my pain "cerebral palsy". Is not inborn, when it's started 6 years old. My spinal cord was injected by the doctor and I don't know about it. :)
Great video, except you forgotten to mention brain damage that leads to cerebral palsy can be caused by incorrect use of instruments during delivery; such as, forceps delivery or ventouse delivery. :)
Once I realized that physio would not make any improvement in the spasticity of the affected muscles and tendons below the waist, I gave up on it and chucked the useless and painful foot orthotics in the bin. The standard management of this disease wore me out, with very poor outcomes, although for a short time after multi level corrective surgery, of hip alignment and calf and rear knee tendon lengthening, I did gain some physical strength from an exercise program however, no improvement on the diplegia at all. I always found it odd why It was never suggested to me, the possibility of undergoing SDR (Selective Dorsal Rhysotomy) at age 12, instead my specialist took the alternative procedure. Oops! Tough cookies for me I guess. With the funny walk, has for me come a rather sedentary and somewhat; well can I say lonely lifestyle. In my 30s now, One might say I've accomplished A LOT in spite of CP, but from my personal standard of 'being a normal, healthy 'apparently good looking man' with all functions, and the same opportunities as others, not so much. And please, I don't need any medals for making it to my 30s, that's just lowering the standards of a very dog-eat dog world, and does nothing for character building. Although I paint a grim picture, it is however the cold truth of the situation. The only way one will truly benefit from an exercise program is to reduce spasticity with SDR, which I plan on looking into. Even with SDR's risk of incontinence among other unintended side effects, It sure does beat the assumption of deafness, intoxication, polio, intellectual disability, infertility, inability to perform well during intimacy or have any relationship at all, or worse! Being a total 'Champion' for accomplishing nothing other than putting up with this, with nothing to show for it, other than some charities, giving you free expensive stuff to raise your spirits, that's not to say I wasn't grateful. but, you know what I mean. No CP support groups either! thanks, it just bundles the problem all together in one room, where the privileged don't have to deal with it. It doesn't make it go away. and I've never personally gained psychological benefit from hanging out with other sufferers of the disease, it only compounded the reality of the situation. "Thanks for the reminder, I'm not normal, got it, now what?" Some might call me selfish, But, I cannot stand to be in the company of more suffering. As mentioned above, the ONLY true way you can exercise weak muscles is to turn off the constant fight against the high tone and stiffness, giving the weak and tired muscles a break, then perhaps rehabilitating them. and creating new pathways in the brain to take on the role of the once affected spinal cord and nerve pathways. bata-big-bata-boom CP. gone! or significantly reduced. If you end up with Spastic diaplegia, the only winners are physios, Occupational Therapists, foot orthotic manufacturers, assistive tech and wheel chair manufacturers and big Pharma. Oh and the fund-raisers and endless charities, who bring in BILLIONS of dollars! To date I've not seen a single dime spent on a cure, nor have I seen any medical approval for the free use of stem cell therapy pre or post injury to reverse the condition in children, teenagers or even the middle aged or elderly. Someone is lining someone else's pocket, I'm sure of it. The affected person and their family will always lose, unless the spasticity is taken away 100% or a cure for this cruel disease is found. Like they say; "The Squeaky wheel gets the oil" Well, I'd better get to work. If I may put it bluntly to again highlight the cruelty of society; If I can help it, No one with this rubbish deck of cards shall be deemed a 'spastic', retard or a cripple anymore! not on my watch. I was a pioneer in my school years copping those kind of taunts, and yet here we are, it continues to this day in some form, even with the curiosity of others, which in tern does nothing other than have me reliving the constant bullying, name calling and out-and-out exclusion from activities at school, along with less than adequate education due to poor teacher training. Time for a cure for ALL forms of Cerebral Palsy and associated medical problems! It's not funny anymore. And no child with the disease is a miracle baby, that's just condescending. From personal experience, like many terrible terrible diseases, its a fate worse than death.
Exercise, exercise, exercise. Exercise like an athlete. Does it “cure” me of CP? No. But it helps tremendously, because it keeps me from getting stiff and fat like anyone. The stakes are so much higher if we get fat,, because then we can’t walk! Stop griping and exercise as if you were an athlete.
Thank you for this video. No one explained CP in such a great details and easy to understand.
This is the best video I have seen so far! THanks!
This is the best video I have watched concerning this TOPIC..
THANKS ALOT..
GOD BLESS YOU..👍
My 29 year old younger brother has cerebral palsy and gets frequent migraines. I learned a lot about cerebral palsy just from watching the video. Hope there will be a cure for CP one ☝️ day.
Could the headaches be related to food, gluten, sugar, and not CP? I have very mild CP and there is an unfortunate tendency in observers to draw inaccurate conclusions.
I have mild CP and I noticed less stiffness when I gave up gluten and sugar for a month. No, it’s not a cure, but there’s a definite difference like if I get out of a car, I don’t feel stiff. Lowering inflammation in the body through diet felt great.
Sometimes this toe walking thing can be in one leg only. Mine was on the right. I got operated 2 years ago and that seemed to be the only cure or solution. My type is spastic. And since my right side of my body is affected, this is called unilateral cerebral palsy. I also have light hemiplegia.
I was diagnosed with cerebral palsy at 4 year old. I went for years to rehabilitation centers I can walk but I can't do stairs with out holding on.
hello, great video. but i wish you wouldve clarified hemiplagia quadriplegia,paraplegia and monoplegia
+Khalid Abdiaziz She did explain it but she just didn't use the terms. The fact that you are aware of these terms indicate you could easily identify which is which.
my son in the philippines was diagnosed with cerebral palsy etiol. Can someone help explain what this is?
Thank you so much 🙏🤗🌹
The author is wrong about whole-body spastic palsy, and about spastic cerebral palsy overall. The degree of stiffness can range from mild to severe ***throughout*** the body, resulting in relatively little impairment to a large amount of impairment; the severity of impairment is not exclusively determined by the regions of the body involved.
My sister's son, who makes his body so stiff. He is just 6 months old. Now doctor prescribed to use some medicine and giving physio therapy regularly. He makes his body so stiff mainly his neck and left hand. Is this spastic cerebral palsy??
Tq
What is the cause of my pain "cerebral palsy". Is not inborn, when it's started 6 years old. My spinal cord was injected by the doctor and I don't know about it. :)
I have aquired. I’ll cerebral palsy due to 2 strokes the day after birth
Great video, except you forgotten to mention brain damage that leads to cerebral palsy can be caused by incorrect use of instruments during delivery; such as, forceps delivery or ventouse delivery. :)
This was a video only explaining Spastic CP NOT what caused it. There seems to be other videos that explain what causes Cerebral Palsy.
Where is the hospital send address
I don’t need any assistance
I ve diplegic spastic cerebral palsy
Once I realized that physio would not make any improvement in the spasticity of the affected muscles and tendons below the waist, I gave up on it and chucked the useless and painful foot orthotics in the bin. The standard management of this disease wore me out, with very poor outcomes, although for a short time after multi level corrective surgery, of hip alignment and calf and rear knee tendon lengthening, I did gain some physical strength from an exercise program however, no improvement on the diplegia at all. I always found it odd why It was never suggested to me, the possibility of undergoing SDR (Selective Dorsal Rhysotomy) at age 12, instead my specialist took the alternative procedure. Oops! Tough cookies for me I guess.
With the funny walk, has for me come a rather sedentary and somewhat; well can I say lonely lifestyle. In my 30s now, One might say I've accomplished A LOT in spite of CP, but from my personal standard of 'being a normal, healthy 'apparently good looking man' with all functions, and the same opportunities as others, not so much.
And please, I don't need any medals for making it to my 30s, that's just lowering the standards of a very dog-eat dog world, and does nothing for character building.
Although I paint a grim picture, it is however the cold truth of the situation.
The only way one will truly benefit from an exercise program is to reduce spasticity with SDR, which I plan on looking into. Even with SDR's risk of incontinence among other unintended side effects, It sure does beat the assumption of deafness, intoxication, polio, intellectual disability, infertility, inability to perform well during intimacy or have any relationship at all, or worse! Being a total 'Champion' for accomplishing nothing other than putting up with this, with nothing to show for it, other than some charities, giving you free expensive stuff to raise your spirits, that's not to say I wasn't grateful. but, you know what I mean.
No CP support groups either! thanks, it just bundles the problem all together in one room, where the privileged don't have to deal with it. It doesn't make it go away. and I've never personally gained psychological benefit from hanging out with other sufferers of the disease, it only compounded the reality of the situation. "Thanks for the reminder, I'm not normal, got it, now what?" Some might call me selfish, But, I cannot stand to be in the company of more suffering.
As mentioned above, the ONLY true way you can exercise weak muscles is to turn off the constant fight against the high tone and stiffness, giving the weak and tired muscles a break, then perhaps rehabilitating them. and creating new pathways in the brain to take on the role of the once affected spinal cord and nerve pathways. bata-big-bata-boom CP. gone! or significantly reduced.
If you end up with Spastic diaplegia, the only winners are physios, Occupational Therapists, foot orthotic manufacturers, assistive tech and wheel chair manufacturers and big Pharma. Oh and the fund-raisers and endless charities, who bring in BILLIONS of dollars! To date I've not seen a single dime spent on a cure, nor have I seen any medical approval for the free use of stem cell therapy pre or post injury to reverse the condition in children, teenagers or even the middle aged or elderly. Someone is lining someone else's pocket, I'm sure of it.
The affected person and their family will always lose, unless the spasticity is taken away 100% or a cure for this cruel disease is found. Like they say; "The Squeaky wheel gets the oil"
Well, I'd better get to work. If I may put it bluntly to again highlight the cruelty of society; If I can help it, No one with this rubbish deck of cards shall be deemed a 'spastic', retard or a cripple anymore! not on my watch. I was a pioneer in my school years copping those kind of taunts, and yet here we are, it continues to this day in some form, even with the curiosity of others, which in tern does nothing other than have me reliving the constant bullying, name calling and out-and-out exclusion from activities at school, along with less than adequate education due to poor teacher training.
Time for a cure for ALL forms of Cerebral Palsy and associated medical problems! It's not funny anymore. And no child with the disease is a miracle baby, that's just condescending. From personal experience, like many terrible terrible diseases, its a fate worse than death.
Exercise, exercise, exercise. Exercise like an athlete. Does it “cure” me of CP? No. But it helps tremendously, because it keeps me from getting stiff and fat like anyone. The stakes are so much higher if we get fat,, because then we can’t walk! Stop griping and exercise as if you were an athlete.
I have mild level of cereal palsy
Same. What kind?
I have spastic hemi