I got gbs in 2022 from flu vaccine and it’s ruined my life i still have issues walking and probably going to lose everything because I keep getting denied for any help. I pray they bring awareness to this crippling illness
I have recieved IVIG for 15 years and it never worked, then I gave up on it and went to the Dominican Republic where I met with Dr. Biany Santos Pujols and she told me that she had about 9 patients on "Rituximab" and had😮 gotten rid of their walkers so I told her I wanted to try it. I got my first infusion in July of 2020 then my next infusion was in January of 2021. I tried to get the same medicine in NY, but the Dr's would not know that it was working on me. Then I went to PA and Dr Chang refused after I showed her my pictures.
Hi. I had my covid vaccine then after 5 days I was rushed to the hospital due to weakness of extremities and I was diagnosed with GBS. Now, I’m recovering.
hola tengo la enfermedad fe CIDP desde finales del pasado año 2021 tengo muy a menudo unos decaimientos que de golpe me dan sin mas ni mas en ocasiones a estos decaimientos se les une ma reos en todos estos meses mi neurólogo no me ha sabido decir que son estos sintomas me dice que estos sintomas será de lo último que se me irá cuando ya me esté recuperando pero yo tengo la inquietud de saber porque me pasa y si es seguro que desspareceran estos sintomas Me pueden ayudar me hace sentir muy mal gracias
I got gbs in 2022 from flu vaccine and it’s ruined my life i still have issues walking and probably going to lose everything because I keep getting denied for any help. I pray they bring awareness to this crippling illness
So sorry, it's maddening that people are denied acknowledgment and help after vaccine injury.
I have recieved IVIG for 15 years and it never worked, then I gave up on it and went to the Dominican Republic where I met with Dr. Biany Santos Pujols and she told me that she had about 9 patients on "Rituximab" and had😮 gotten rid of their walkers so I told her I wanted to try it. I got my first infusion in July of 2020 then my next infusion was in January of 2021. I tried to get the same medicine in NY, but the Dr's would not know that it was working on me. Then I went to PA and Dr Chang refused after I showed her my pictures.
I can say that Dr Mark Sivack at Mount Sinai was who diagnosed me with CIDP and he was the one that prescribed
Hi. I had my covid vaccine then after 5 days I was rushed to the hospital due to weakness of extremities and I was diagnosed with GBS. Now, I’m recovering.
I had GBS 5 years ago & Covid 1 year ago. I'd rather have Covid again than GBS.
hola tengo la enfermedad fe CIDP desde finales del pasado año 2021 tengo muy a menudo unos decaimientos que de golpe me dan sin mas ni mas en ocasiones a estos decaimientos se les une ma
reos en todos estos meses mi neurólogo no me ha sabido decir que son estos sintomas me dice que estos sintomas será de lo último que se me irá cuando ya me esté recuperando pero yo tengo la inquietud de saber porque me pasa y si es seguro que desspareceran estos sintomas
Me pueden ayudar me hace sentir muy mal
gracias
Thanks
🙏🙏🙏🙏🙏🌱