I don't know who will need this but I understand that you can feel very down if you are sick. You feel like your are unable to do anything without feeling sick all over again. You keep needing rest until you get better. If you don't like medication, you still have to take them. Just remember that we are all going through something. You are not alone. It may be time taking but you will get better soon In shaa Allah! Don't worry about anything and focus on doing good deeds and staying happy. You are doing great! Keep smiling, stay positive and stay blessed! Edit: kindly make sure that your Vitamin D, calcium, Vitamin B12 etc are at good level. I have gotten my b12 checked and it was way below normal level. After taking supplements to bring it back to normal level, I am a lot better. Your diagnosis could be different than mine but you can only know for sure if you get your check up done. I hope it's something small and solvable for all of you.
Excellent video!!! I have been seen by several drs and well as a well renowned specialist, and none of them fully understood the fatigue I was expressing. I can handle the pain on most days, but the fatigue is overwhelming. I can't seem to shake it. You are the first Dr to explain it in detail with solutions, as well as address that is it can be an ongoing issue for Myositis patients. Thank you for taking the time to post this - it totally made my day.
I am the same way. I was Diagnosed with Fibromyalgia in 2001 and I'm having a really hard time right now. I can deal with pain better than fatigue because the fatigue is Relentless and severe.. at times I can barely hold my phone or type because I'm so wiped out! Exercises is almost impossible because I get hit with worse fatigue 😢 🙏🏻
@@lucyluu3539 Yes, I was diagnosed with Fibro in 2000 and I totally agree with you. Most people with any auto immune will tell you about the relentless exhaustion, but Fibro exhaustion is next level. I have gone to sleep and can't get up for a day or two, and even after I wake up my eyes are still rolling back in my head. Every day I had exhaustion and I have to work around what I call my "window of energy" which is only an hour or two tops a day. It's totally messed up my life. 10 years ago I was also diagnosed with a second auto immune called Dermatomyositis which causes issues with my connective tissue in my body. To better manage my Fibro and the Dermatomyositis I had to totally change my diet to more vegetarian and only fish, as well as no gluten, no sugar, no dairy and I had to cut many other highly inflammatory foods. I also had to really reduce my stress levels which also cause inflammation in the body. I also had to go through trauma therapy due to an abusive 22 year marraige to help with emotional pain that triggered physical pain. It was a start to getting better control of my body and what was happening to it. I am sorry you are having a hard time. I know all too well that feeling of your body not working right and the helplessness that comes with it. I wish you healing and will pray for you.
Thank you for addressing the issues of pain, something we are working to help fund and research, and for addressing muscle fatigue and its lasting involvement for patients.
Thank you for this! This video is going to help me immensely in explaining my muscular symptoms to friends and family. I appreciate that you’ve broken the video series up into different types of symptoms. Thank you for doing what you do, I am forever grateful.
Thank you for the clarification of this disease. I periodically will do a review of this video just to remind me of some key points about what is happening.
When I finally found out after 12+ false diagnoses and trying a bunch of GOD AWFUL pills I was incredibly relieved. Now I try to manage my CK level and live a healthier life to prevent major pain but there’s nothing any of us can do unfortunately
That's me you are talking about, i have experienced all what you are saying and doctors have failed to explain to me what's happening. i will try out exercising .
Yes I have dermatomyositis, the first attack I lost a lot of muscle mass and had severe muscle weakness. I recovered my strength after about a year. The second attack 5 years later I had severe fatigue and muscle weakness.
@@MC_thanos The main treatment is initially predisone at a high dose. Then azathioprine to reduce the amount of predisone. I was in the hospital for over a week at the direction of a rheumatologist. This disease is also often associated with some type of cancer so a lot of cancer tests were performed in case there is a connection. After the disease is stabilized physical therapy is required to increase strength it took over a year to get my strength back. I have to keep taking azathioprine and a small dose of predisone to keep the disease under control, there is no cure for Dermatomyositis just treatment.
@@paulmartin9354 Hello, did you have any side effects while taking prednisone?? I thought prednisone was suppose to help grow muscles 🙁 also, what symptoms did you have for this disease? I definitely have the muscle weakness and the lumps on my fingers. I hope you’re feeling okay now
@@talulaht9599 Prednisone is for controlling the inflammation it's a corticosteroid it does not grow muscles. If you can stop the damage from the muscle inflammation, the muscle can recover its strength over time. Dermatomyosotis is an inflammatory muscle disease with skin rashes, a type of myositis. Yes there are some mild side effects of prednisone. Your doctor needs to monitor those.
@@paulmartin9354 that makes sense now, thank you. I’m so worried about the muscle loss because its hurting my knees back and hips and I’m only 24....I can only be positive now and hope I get treated soon :)
That hasn't been entirely true for me. Exercises cause me to become extremely inflamed for a solid weak and therefore they backfire instead of help. I have found that nutrition is the first key in such cases bc without it your body can't handle even light exercises (and I was doing REALLY light exercises). When I started putting in the right nutrition my muscles felt so much better so fast!
@Taiwo Omotosho I never really lost mass as far as I know. I just had inflammation and was really weak in my muscles. I haven't recovered fully bc I haven't been able to get all the nutrition I need yet but I'm doing what I can and am still seeing improvements regularly!!! I stay away from dairy bc it can cause extra inflammation and try to keep gluten to a minimum for the same reason. I started taking double strength omega 3 supplements and using electrolyte drinks that my sisters bought me (tho I'm going to switch to another one with less sugar soon cause sugar can also backfire with this kind of condition). Those are both helping some and I'm also self-massaging my glute to help put it at ease and that helps a lot too (usually makes an IMMEDIATE difference)!!! The best foods are green and orange vegetables and fish bc they're high in electrolytes and omega 3s, but bc food's expensive and times are hard I can't eat as many of those as I'd like but I do what I can. Also the omega 3s and electrolyte drink are so huge. Without enough of these nutrients your muscles, nerves and veins can get so weak and inflamed even without any other factors. And it's almost impossible in today's world to eat enough fruits and vegetables to get the daily requirements of all those nutrients so supplements help a lot!!!
Hello, what about infectious myositis ? I had covid and the seasonal flu within the same 30 day period. I still some weakness and fatigue in my thighs, calves muscles and shoulder and some joint pain.
I can’t find your next video on this. I can’t find the 7th video. You said in this video that the next one would be about Dermatomyositis and the rash! I’m very interested and would love to watch the rest. Please let me know where to find the rest of the video on myositis.
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist ua-cam.com/users/shortsD6UBT8lKYcw?feature=share there is nothing god can't Do .
Is there a difference between myositis and ankylosing spondylitis? I have been diagnosed with ankylosing spondylitis and have been in severe pain, and I feel like I have something more going on. My whole body hurts so much, sometimes just breathing hurts my whole body. No one seems to be able to help. I am in constant pain. I can only sleep for 4 hours at night because the pain wakes me up and I have to get out of bed and start my day at 3am. It is really hard to live this way. Thank you for sharing
Hi, you need to meet a good Rheumatologist at the earliest. Also hope an Orthopaedic did not diagnose your Ankylosing Spondylitis? Meet a Rheumatologist as Orthopaedicians are not the right people for these diseases. Also, Myositis and AS are absolutely different, there is no correlation.
@@CoolguitaristRockstar thanks for your response, my rheumatologist diagnosed me with AS. I have actually been doing so much better now. I have been put on remicade infusions and my symptoms have been almost complete gone, praise the Lord!!!!
In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles. I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help. Just in case you don't know I have a good diet plus have been working out for over a year now!
Ypu also has the same condition with my brother.. He is also experiencing weakness on his knee and it sometime give way making him not balance himself and cant stant on his own. He also cant walk longer because he said, he feels like being out balance
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I have been having muscle pain in my neck, shoulders, full arms and hands since atleast 3 days now. My neck muscles become supper tight and hurt alot if I work or read a book etc. I don't know what this is but it's scaring me. I have also not slept properly since the last 3-4 days so I'm really hoping this is the result of that.
I have personally found that NUTRITION is the first key. If the muscles aren't nourished they feel awful and can't handle even the lightest exercises. Inflammation caN be LONG-lasting and relentless. But as soon as you nourish those muscles they calm down. I've seen this happen with so many of my pains. Unfortunately inflammation is a huge symptom of nutrient deficiency in any part of the body. My personal experience has been that even severe inflammation can go down within MINUTES if you put in the right nutrition and put it in in an easily absorbable way. I have found that for me, liquids often work better than capsules but some capsules also work great and fast!!! Best of luck to everyone!!! 🙏💛
5 months and 24 days and I've recently been told that I have Myositis. I've only been dealing with mild pains in my right leg, running down to my calf, behind my knee and sometimes my achilles and sometimes not all at once. Can be in my thigh only or just behind my knee and calf. I'll be honest I'm kinda scared of the progression this could take in terms of muscle weakness or anything potentially worse 😥
never heard of myositis, but have been told my muscle pain is MS, Fibro, Lyme ugh. years of not feeling good pain and fatigue, sometimes I sleep so much I think I have sleeping sickness. This need for lots of sleep is new this year. has all gotten worse as I age. I do not have much hope of any doctor ever helping me.
I been trying to fix my symptoms by general advice. I been thinking I must be just lazy and start exercise and I start slow but it doesn’t help any just worse. I change diet nothing.
Just to add.. my first symptoms included a swollen orbit right eyelid, breathing issues with exercise (that passed), double onset carpel-tunnel, and THEN leg weakness. took 8 months or so to get to the weakness and a few more for diagnosis.
@@anuragverma994 Currently on CellCept and very small amt of prednisone. I've had multiple remissions and flares and have been on 9 different medicines/combos. Tacrolimus worked the best/longest and then put me in the hospital after an allurgic reaction to it. CK is 700 and I'd say I feel ok.
@@anuragverma994 No. Walking and household chores, swimming, and light activities, yes. I used to be a power lifter and that has been impossible for almost 10 years now.
Omg I just found out I had this and I've been telling my PCP DR that there are times when I get out of my car or just by walking up my 3 steps 🚶♀️ so I can get into my house I get the worst pain as if I had worked out the day before and I am in so much pain that I have to get somewhere and lay down sobbing 😭 and take something for my pain until my pain calms down alil bit n I am alil better the worst part is that I feel everyone sees me with bad vibes
Thankyou for the information, how about patient having both upper and lower limbs muscles weakness? Can you explain how we can help. I'm from Papua New Guinea
I would love to know the Next exercises to build strength while suffering such bouts terrible fatigue throughout the day. Is it Normal to feel severely fatigued and them somewhat improved t n off n on all day?? I haven't seen anyone for Fibromyalgia since 2001. I don't know of a really Good Neurologist in my Area Unfortunately
dont waste sexual energy. exercise. good food. fast each day 14 hrs. plenty of minerals and electrolytes, burn off any carbs eaten. good fats important.
@@robertodonoghue4100 In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles. I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help. Just in case you don't know I have a good diet plus have been working out for over a year now!
What about IBM, when immune suppressants do not work? Is there anything that can be done to improve or stop the degradation of muscles in IBM? Also, exercise is not recommended with IBM. What else would you suggest?
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I think this explains alot, when i walk down the street, my muscles in the lower back begins to radiate pain after 3-5 mins, but immediately I find a chair and sit, the pain goes away immediately. if you know more about what helps my condition, please leave a comment.
Great stretching helps to release tension in your muscles. You can also use a great Gun Massager for: myofascial release, lactic acid decomposition, deep massage. Hightly recommended. Stay healthy and flexible ;)
Over the last couple years I've been dealing with muscles in my hands (almost like the skin and muscle at the base of my thumb and pinky kind of the web of the fingers), deep in the front of my armpits and also my hamstrings. I catch myself almost painfully stretching these areas of my body atleast 100 or more times per day. I've explained this to my primary care physician but I'm starting to think he's an idiot so I'll be changing my doctor soon. I'm 48 years old, worked out my entire life, mma and I also have a physical job. Since the time I started noticing I've been constantly stretching these muscles throughout the day it seems I also have been experiencing arthritis in my shoulders and knees. Another thing is that probably a month or two now my quads feel like a post workout feeling. Not extreme or very soar. Just a mild feeling. If you have any information or suggestions I'd greatly appreciate your input. Ty!
Been searching for a name for my issues.. I found the word myositis.. I check every symptoms.. just tested and my ck blood test is dead center of range.. 114.... I am lost now...5 years and no treatment has worked...only prednisone helps but rhumy HATES for me to take it... help..
My son has been dealing with these symptoms for two years. He’s taken every test known to man and nothing. He’s 24 years ago. How can we get the help we need?
Exercise actually makes my muscles much worse. I force myself to move as much as possible, so I won't be judged, but I'm getting to where I cannot force my thighs, hips, and biceps to work anymore. I'm seriously considering trying the opposite of what I've tried the last few years... rest. Controlled of course, I'd move enough of course to not lose muscle, but allow my thighs some time to try and heal.
In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles. I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help. Just in case you don't know I have a good diet plus have been working out for over a year now!
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist ua-cam.com/users/shortsD6UBT8lKYcw?feature=share there is nothing god can't Do .
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Hi sir, I had pains on my below sholder and full hands. pain coming continue. I placed batminton 1 months continusly. Then suddenly started pain. Now I Can not Stuffer pain. Only my right hands . 40 years old. Now what will do sir.
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Hey... I m unable to climb stairs.. coz my back doesn't support so I have to pull myself hard upward with the help of my hand and with my right leg...I dnt understand why my back doesn't support I never had any injury on back... Even if I bend down to pick up something I feel my back is so tight .. plz tell what to do . Wha is the issue
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Sir my wife suffered from muscle pain since 3 months. And first pain was in knees and back. Now her full body muscle are weak. She feel pain even after holding cellphone for some time. Is these are the symptoms of mytosis.
Both my shoulders and arms and fingers feel weak too. I get pain when I hold my cell phone too even my fingers get numb and it doesn’t have to be long time holding my phone
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What about swelling inner (upper forearm) upper elbow, and base of thumb with nodules, and between fingers (when making a fist) looks like fluid build up and all bones feeling sore even face. With swollen lymph glands in neck it’s worse before menstrual. I’ve had this for years 😩
@@anushrirawale7850 I never found out what it was, but I started taking vitamin D it helps with inflammation. I already knew I had high levels after the first day swelling was gone. I took 50,000 iu D3 for a few days then started taking it once a week.
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Inability to contract your abdomen? Your body really just falls apart. Been exercising for 4 years now, the pain was unbearable when it started, i use to sleep almost all day when i would get home from work at 11am. The pain went from 10/10 to a 2/10 in a 4 year span. I want to be pain free so bad look how far it’s gotten me😏im almost there
That’s so good to know! Wow so only training/working out has helped you that much?my muscles don’t seem to grow (I’ve had some muscle loss over the last 5 years) and even weight lifting hasn’t grown them much at all. I have the pain in my knees back and hips and it’s improved, but not my muscle growth. I hope I get diagnosed soon so I can start taking medication to help 🤞🏼
@@talulaht9599 Hello, how did you first know that you were losing muscle? I'm concerned my right arm is 1 inch smaller than my left... I am right hand dominant so it doesn't make sense to me 😞 My right arm also feels a bit off, easily fatigued, and has some pain. I'm worried that I may be losing muscle 😞
My arm muscles hurt when I move or lift my hands have gone weak and shake a bit .. my doctor thinks my anxiety has caused it as I have tenced my arms hands for six weeks none stop through severe anxiety.. I had MRI AND BLOODS THEY WAS NORMAL
Sir I get all this symptoms with my mom.she can't hold a things properly and can't tied up her own hair.But sir if mom is working heavyly her body is paining too much and get feaver.mostly her shoulder right side arm is paining and can't hold any thing....so sir what disease is this? Can it be treated by exercise sir...? please help me.
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That explains a lot! Dr Aggarwal I have DM, Sjogrens, OA, some other ailments and newly dx with NAFLD. Fatigue, pain and more pain, more fatigue. Thank you for this info video. ❤️🙏🏻
You have a wonderful delivery of the material, very easy to listen to...I hope the Dermatomyositis video is only temporarily highjacked by covid concerns??? I’m very interested in your info... thank you 🙏🏽
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Prednisone is ok for short periods of time and can help lower CK, but you should be on another immune-suppresant drug to help as well. See your specialist to get advice.
gone through PM, fully recovered...No medication since last 4 years. Yes agree the strength and endurance is not as before..but I think with continues exercise I have gained 90% of pre PM.
Sir , my right side full body weakness fell numbness .my eye nose lips and right hand little finger and same side foot finder fell very weak plz tell me some thing I don’t understand
Well exercise a little stetch a little and also I have a great product for you to overcome weakness its 100 percent natural and AAYUSH CERTIFIED Do mail me at wellnesshubforyou@gmail.com
You could be suffering from other problems. I had high heart-rate and found I had hemolitic anemia - when your body doesn't get enough oxygen to the blood stream. My HR was 130+ from walking across the room.
Hello .It is now almost a year I am on Prednisone n other immune suppresers .My cpk is now 1900 and crp is 5.1 but I am totally unable to climb the stairs and feel very low in strength of arms and legs.Now doctor is saying to go for rituximab.How much and in what ways will it help I don't know.
Does anyone have the grottons lumps on their hands and fingers? Does it get better if/after you get treatment. What treatments did you need? Also does anyone have any progress with any symptoms from this disease they can share? Specifically the muscle loss/weakness and if it was in some way recovered? I’m so scared of losing all my muscle or never being able to gain it back to what it use to be.
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist ua-cam.com/users/shortsD6UBT8lKYcw?feature=share there is nothing god can't Do
Still don't understand my disease suffering from years... Suddenly i feel my hands & legs are not with me & often a current moves in my legs & arms & often i feel same at my back off & on... It remains in my body for atleast 2 to 3. Minutes & it happens suddenly.... I had consulted many nuro surgeon don't find any pill helpful..after 2 to 3 months I again found my situation same 🥺🥺🥺🥺
Hi sir, I do regular strength training, but now Iam unable lift, due to fatigue , I eat well, drink good amount of water, sugar and blood levels are good, don't know why this happening.
Absolutely same. I might have this disease... I weight lift but it’s been 6 months and I have seen no progress...sometimes after I train I even can feel weaker than before which makes no sense.
@@talulaht9599 absolutely, I used to wonder why I feel no energy in my legs in the gym, others would lift 200 kgs and I would be stuck at 60, now I know after meeting the doctor.
I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on UA-cam, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products.
I don't know who will need this but I understand that you can feel very down if you are sick. You feel like your are unable to do anything without feeling sick all over again. You keep needing rest until you get better. If you don't like medication, you still have to take them. Just remember that we are all going through something. You are not alone. It may be time taking but you will get better soon In shaa Allah! Don't worry about anything and focus on doing good deeds and staying happy. You are doing great! Keep smiling, stay positive and stay blessed!
Edit: kindly make sure that your Vitamin D, calcium, Vitamin B12 etc are at good level. I have gotten my b12 checked and it was way below normal level. After taking supplements to bring it back to normal level, I am a lot better. Your diagnosis could be different than mine but you can only know for sure if you get your check up done. I hope it's something small and solvable for all of you.
I smiled
Thankyou Rosa
I needed to hear that
🥺jazakAllah
Thank you Allah bless you
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Hi what a clever and educated man who I can see genuinely wants to help people . Your sir are a credit to your family and a gentlemen
That explains a lot that my doctor has never even touched on in 6 years. Thank you!
What's ur condition ,
Try Amrith Noni, it's just amazing 🙏🏻
@@yb_7711 is it helpful in muscle pain all the time
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My doctor is an idiot. He's the one that got me into this situation by putting me on atorvastatin!
Excellent video!!! I have been seen by several drs and well as a well renowned specialist, and none of them fully understood the fatigue I was expressing. I can handle the pain on most days, but the fatigue is overwhelming. I can't seem to shake it. You are the first Dr to explain it in detail with solutions, as well as address that is it can be an ongoing issue for Myositis patients. Thank you for taking the time to post this - it totally made my day.
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I am the same way. I was Diagnosed with Fibromyalgia in 2001 and I'm having a really hard time right now.
I can deal with pain better than fatigue because the fatigue is Relentless and severe.. at times I can barely hold my phone or type because I'm so wiped out!
Exercises is almost impossible because I get hit with worse fatigue 😢 🙏🏻
@@lucyluu3539 Yes, I was diagnosed with Fibro in 2000 and I totally agree with you. Most people with any auto immune will tell you about the relentless exhaustion, but Fibro exhaustion is next level. I have gone to sleep and can't get up for a day or two, and even after I wake up my eyes are still rolling back in my head. Every day I had exhaustion and I have to work around what I call my "window of energy" which is only an hour or two tops a day. It's totally messed up my life. 10 years ago I was also diagnosed with a second auto immune called Dermatomyositis which causes issues with my connective tissue in my body. To better manage my Fibro and the Dermatomyositis I had to totally change my diet to more vegetarian and only fish, as well as no gluten, no sugar, no dairy and I had to cut many other highly inflammatory foods. I also had to really reduce my stress levels which also cause inflammation in the body. I also had to go through trauma therapy due to an abusive 22 year marraige to help with emotional pain that triggered physical pain. It was a start to getting better control of my body and what was happening to it. I am sorry you are having a hard time. I know all too well that feeling of your body not working right and the helplessness that comes with it. I wish you healing and will pray for you.
Please tell me how are you now. What did you do. Bcoz I have full tiredness which is unbearable.please help me yes exercise is impossible.
Thank you for addressing the issues of pain, something we are working to help fund and research, and for addressing muscle fatigue and its lasting involvement for patients.
Just got diagnosed with this a couple days ago. Felt good to finally have answers. This video helped me understanding what I have.
How did you get diagnosed, may I ask? Thank you!
How do you exercise when everything is hurting??
Thank you for this! This video is going to help me immensely in explaining my muscular symptoms to friends and family. I appreciate that you’ve broken the video series up into different types of symptoms. Thank you for doing what you do, I am forever grateful.
I have worked out almost for over thirty years. But the past two years I haven't exercise.
@@goodvideo5271👋 friend, why no excersize for 2years?? Is it because of the pain and weakness? I'm also in this battle. Peace 🕊
Thank you for the clarification of this disease. I periodically will do a review of this video just to remind me of some key points about what is happening.
Finally know the name of the condition Ive been battling for years
@ProfoundMinds. Same here. 😔
What was you feeling in your body for years
When I finally found out after 12+ false diagnoses and trying a bunch of GOD AWFUL pills I was incredibly relieved. Now I try to manage my CK level and live a healthier life to prevent major pain but there’s nothing any of us can do unfortunately
I am here for you guys tho
My body be so sore I be winded a lot and weak
I have muscle weakness... Your symptoms totally go with my situation
Plz tell me
That's me you are talking about, i have experienced all what you are saying and doctors have failed to explain to me what's happening. i will try out exercising .
hi doc, pls make a video on excercises needed to bring back strength of muscles after taking medication
Do some strength training and run for atleast 4-5km according to your speed
@@Riders_on_the_storm_ That is not only poor advice but is a really ignorant answer. Troll elsewhere!
This is exactly what I'm experiencing now. Hopefully physio and meds will work
Very informative video, thanks for all you do for the UA-cam community.
Yes I have dermatomyositis, the first attack I lost a lot of muscle mass and had severe muscle weakness. I recovered my strength after about a year. The second attack 5 years later I had severe fatigue and muscle weakness.
Hey Paul can you share with us how you recovered
@@MC_thanos The main treatment is initially predisone at a high dose. Then azathioprine to reduce the amount of predisone. I was in the hospital for over a week at the direction of a rheumatologist. This disease is also often associated with some type of cancer so a lot of cancer tests were performed in case there is a connection. After the disease is stabilized physical therapy is required to increase strength it took over a year to get my strength back. I have to keep taking azathioprine and a small dose of predisone to keep the disease under control, there is no cure for Dermatomyositis just treatment.
@@paulmartin9354 Hello, did you have any side effects while taking prednisone?? I thought prednisone was suppose to help grow muscles 🙁 also, what symptoms did you have for this disease? I definitely have the muscle weakness and the lumps on my fingers. I hope you’re feeling okay now
@@talulaht9599 Prednisone is for controlling the inflammation it's a corticosteroid it does not grow muscles. If you can stop the damage from the muscle inflammation, the muscle can recover its strength over time. Dermatomyosotis is an inflammatory muscle disease with skin rashes, a type of myositis. Yes there are some mild side effects of prednisone. Your doctor needs to monitor those.
@@paulmartin9354 that makes sense now, thank you. I’m so worried about the muscle loss because its hurting my knees back and hips and I’m only 24....I can only be positive now and hope I get treated soon :)
Muscle fatigue only solution is excercise.......by which muscle endurance could be developed with time......good information 👍🏼
That hasn't been entirely true for me.
Exercises cause me to become extremely inflamed for a solid weak and therefore they backfire instead of help. I have found that nutrition is the first key in such cases bc without it your body can't handle even light exercises (and I was doing REALLY light exercises). When I started putting in the right nutrition my muscles felt so much better so fast!
@Taiwo Omotosho I never really lost mass as far as I know. I just had inflammation and was really weak in my muscles. I haven't recovered fully bc I haven't been able to get all the nutrition I need yet but I'm doing what I can and am still seeing improvements regularly!!! I stay away from dairy bc it can cause extra inflammation and try to keep gluten to a minimum for the same reason. I started taking double strength omega 3 supplements and using electrolyte drinks that my sisters bought me (tho I'm going to switch to another one with less sugar soon cause sugar can also backfire with this kind of condition). Those are both helping some and I'm also self-massaging my glute to help put it at ease and that helps a lot too (usually makes an IMMEDIATE difference)!!! The best foods are green and orange vegetables and fish bc they're high in electrolytes and omega 3s, but bc food's expensive and times are hard I can't eat as many of those as I'd like but I do what I can. Also the omega 3s and electrolyte drink are so huge. Without enough of these nutrients your muscles, nerves and veins can get so weak and inflamed even without any other factors. And it's almost impossible in today's world to eat enough fruits and vegetables to get the daily requirements of all those nutrients so supplements help a lot!!!
@Taiwo Omotosho Best of luck to you! ✨🙏✨
Exercise only made it worse...
What nutrition is good?@@peachysparkles
Thank you for sharing the infos of muscle problem
May God bless you always
Thank you for this informative video!
Dear Dr where are you at ?
Brilliantly said. Thanks for posting these vids for everyone to get the correct information. There is a TON of mis-information out there. Cheers, Doc.
Hello, what about infectious myositis ? I had covid and the seasonal flu within the same 30 day period. I still some weakness and fatigue in my thighs, calves muscles and shoulder and some joint pain.
Did it ever clear up im going threw the same
Very imforative video, thank you for going into depth about this condition. Do you have any other videos to differenate from fibro and myositis?
Try Amrith Noni it's just amazing 🙏🏻
Thank you for valuable awareness
I can’t find your next video on this. I can’t find the 7th video. You said in this video that the next one would be about Dermatomyositis and the rash! I’m very interested and would love to watch the rest. Please let me know where to find the rest of the video on myositis.
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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there is nothing god can't Do .
Is there a difference between myositis and ankylosing spondylitis? I have been diagnosed with ankylosing spondylitis and have been in severe pain, and I feel like I have something more going on. My whole body hurts so much, sometimes just breathing hurts my whole body. No one seems to be able to help. I am in constant pain. I can only sleep for 4 hours at night because the pain wakes me up and I have to get out of bed and start my day at 3am. It is really hard to live this way. Thank you for sharing
Hi, you need to meet a good Rheumatologist at the earliest. Also hope an Orthopaedic did not diagnose your Ankylosing Spondylitis? Meet a Rheumatologist as Orthopaedicians are not the right people for these diseases. Also, Myositis and AS are absolutely different, there is no correlation.
@@CoolguitaristRockstar thanks for your response, my rheumatologist diagnosed me with AS. I have actually been doing so much better now. I have been put on remicade infusions and my symptoms have been almost complete gone, praise the Lord!!!!
@@deniseflores80 so glad to hear :) also I have heard Indian Ayurveda works wonders with AS. God bless you my friend.
@@CoolguitaristRockstar thank you so much, God bless you too!
Very informative video 🙏 Thanks
Very well explained symptoms. Thank you Doctor!
In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles.
I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help.
Just in case you don't know I have a good diet plus have been working out for over a year now!
Ypu also has the same condition with my brother.. He is also experiencing weakness on his knee and it sometime give way making him not balance himself and cant stant on his own. He also cant walk longer because he said, he feels like being out balance
Do u have pain in ur hands finger not able to hold tightly anything?
@@litapaquibo2754what medication he taking or supplements
I am also having 100% same to same symptoms like you. Have you found out what is the cause and any solution if any?
How are you now?
Found the reason and the treatment?
Great video and it helped me a lot
Thank for the video. What is the best treatment Medicine
Tq
I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on UA-cam, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products.
Thank you @ from India😊
Wow I actually watched because I could understand him. Informative.
Thank you sir!
Love from Army Medical College Jashore,Bangladesh!
Can you have Myositis with normal CK?
Thanku doctor thanku so much
Thank.you.so.much.sir.
So, I should get off the prednisone and get more exercise and put up with the pain?
I have been having muscle pain in my neck, shoulders, full arms and hands since atleast 3 days now. My neck muscles become supper tight and hurt alot if I work or read a book etc. I don't know what this is but it's scaring me. I have also not slept properly since the last 3-4 days so I'm really hoping this is the result of that.
It maybe a myofascial pain. I have same issue
@@shamaakalahorikitchen phir iska ilaaj kya hai, plz tell
Did you get the diagnosis
Thank you so much sir for this informative videos
I have personally found that NUTRITION is the first key. If the muscles aren't nourished they feel awful and can't handle even the lightest exercises. Inflammation caN be LONG-lasting and relentless. But as soon as you nourish those muscles they calm down. I've seen this happen with so many of my pains. Unfortunately inflammation is a huge symptom of nutrient deficiency in any part of the body. My personal experience has been that even severe inflammation can go down within MINUTES if you put in the right nutrition and put it in in an easily absorbable way. I have found that for me, liquids often work better than capsules but some capsules also work great and fast!!! Best of luck to everyone!!! 🙏💛
Which nutrition nutrient were you lacking?
Very useful information. God bless you and your family 🙏
5 months and 24 days and I've recently been told that I have Myositis. I've only been dealing with mild pains in my right leg, running down to my calf, behind my knee and sometimes my achilles and sometimes not all at once. Can be in my thigh only or just behind my knee and calf. I'll be honest I'm kinda scared of the progression this could take in terms of muscle weakness or anything potentially worse 😥
How you feel now
@gogolekolon5663 I'm telling you 😢😢😢 it's hell you can't relate to anything. We feel like our life is totally devastated, i'm really unlucky. 😢
never heard of myositis, but have been told my muscle pain is MS, Fibro, Lyme ugh. years of not feeling good pain and fatigue, sometimes I sleep so much I think I have sleeping sickness. This need for lots of sleep is new this year. has all gotten worse as I age. I do not have much hope of any doctor ever helping me.
I been trying to fix my symptoms by general advice. I been thinking I must be just lazy and start exercise and I start slow but it doesn’t help any just worse. I change diet nothing.
Hello, how are you doing now?
Just to add.. my first symptoms included a swollen orbit right eyelid, breathing issues with exercise (that passed), double onset carpel-tunnel, and THEN leg weakness. took 8 months or so to get to the weakness and a few more for diagnosis.
What is ur condition now , bro
@@anuragverma994 Currently on CellCept and very small amt of prednisone. I've had multiple remissions and flares and have been on 9 different medicines/combos. Tacrolimus worked the best/longest and then put me in the hospital after an allurgic reaction to it. CK is 700 and I'd say I feel ok.
@@kevinoconnell5170 can you perform activities like running , long jumping, etc plz tell
@@anuragverma994 No. Walking and household chores, swimming, and light activities, yes. I used to be a power lifter and that has been impossible for almost 10 years now.
@@kevinoconnell5170 sorry I hope you're doing well , I don't want this
Omg I just found out I had this and I've been telling my PCP DR that there are times when I get out of my car or just by walking up my 3 steps 🚶♀️ so I can get into my house I get the worst pain as if I had worked out the day before and I am in so much pain that I have to get somewhere and lay down sobbing 😭 and take something for my pain until my pain calms down alil bit n I am alil better the worst part is that I feel everyone sees me with bad vibes
Thankyou for the information, how about patient having both upper and lower limbs muscles weakness?
Can you explain how we can help.
I'm from Papua New Guinea
I would love to know the Next exercises to build strength while suffering such bouts terrible fatigue throughout the day.
Is it Normal to feel severely fatigued and them somewhat improved t n off n on all day?? I haven't seen anyone for Fibromyalgia since 2001. I don't know of a really Good Neurologist in my Area Unfortunately
What’s kind of exercise for this illness !
Sir my age is 22 and im suffer from very bad fatigue and musclr pain
I pray you get better
Still having same problem? If not then please let me know the process.
dont waste sexual energy. exercise. good food. fast each day 14 hrs. plenty of minerals and electrolytes, burn off any carbs eaten. good fats important.
@@robertodonoghue4100 In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles.
I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help.
Just in case you don't know I have a good diet plus have been working out for over a year now!
@@meetimian3383 ho are you now
What about IBM, when immune suppressants do not work? Is there anything that can be done to improve or stop the degradation of muscles in IBM? Also, exercise is not recommended with IBM. What else would you suggest?
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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Thanks sis 🙏🙏🙏🙏🙏🙏🙏
I think this explains alot, when i walk down the street, my muscles in the lower back begins to radiate pain after 3-5 mins, but immediately I find a chair and sit, the pain goes away immediately.
if you know more about what helps my condition, please leave a comment.
Does your blood pressure increase with the pain
Can you have more than one type of Myositis?
Yes. I have Poly and Dermato.
Thank you. Wonderful. We all need the medical diagnosis with the natural treatment combined. We need to know our options to help fix it
Try Amrith Noni it's just amazing 🙏🏻
Great stretching helps to release tension in your muscles. You can also use a great Gun Massager for: myofascial release, lactic acid decomposition, deep massage. Hightly recommended. Stay healthy and flexible ;)
Brilliant video thank u so much Doc very useful information 👌🏽🌟👍🏾👍🏾👍🏾🥰🥰🥰♥️❤️♥️💐💐💐
Over the last couple years I've been dealing with muscles in my hands (almost like the skin and muscle at the base of my thumb and pinky kind of the web of the fingers), deep in the front of my armpits and also my hamstrings. I catch myself almost painfully stretching these areas of my body atleast 100 or more times per day. I've explained this to my primary care physician but I'm starting to think he's an idiot so I'll be changing my doctor soon.
I'm 48 years old, worked out my entire life, mma and I also have a physical job. Since the time I started noticing I've been constantly stretching these muscles throughout the day it seems I also have been experiencing arthritis in my shoulders and knees. Another thing is that probably a month or two now my quads feel like a post workout feeling. Not extreme or very soar. Just a mild feeling.
If you have any information or suggestions I'd greatly appreciate your input. Ty!
Been searching for a name for my issues.. I found the word myositis.. I check every symptoms.. just tested and my ck blood test is dead center of range.. 114.... I am lost now...5 years and no treatment has worked...only prednisone helps but rhumy HATES for me to take it... help..
My son has been dealing with these symptoms for two years. He’s taken every test known to man and nothing. He’s 24 years ago. How can we get the help we need?
Exercise ma'am. I have the same problem.
@@008boot6 tried that and no change
@@trealravenel3422 same i have weakness after covid exerrcize dont help
Exercise actually makes my muscles much worse. I force myself to move as much as possible, so I won't be judged, but I'm getting to where I cannot force my thighs, hips, and biceps to work anymore. I'm seriously considering trying the opposite of what I've tried the last few years... rest. Controlled of course, I'd move enough of course to not lose muscle, but allow my thighs some time to try and heal.
In my tests everything comes normal. While my entire body muscles are weak including legs the most. Also my knees, ankles and spaces between hand / foot fingers produce extreme painful popping sound. Also I can't stand still as my legs use to start shivering. Sometimes massage helps but rarely I ever get rid of it. I don't usually masturbate or involve in any sexual activity but if I do every rarely I feel super weak specially in my leg and hip muscles.
I have been visiting a doctor and taking medications and have never found any good results. I'm only 22 and been suffering from this problem since last 3-4 years.. No one is able to spot where the problem is or what the heck the disease is. Please help.
Just in case you don't know I have a good diet plus have been working out for over a year now!
My muscle pain is a result of trying to exercise!
Mine too
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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there is nothing god can't Do .
Is there a connection with Histamine Intolerance.
I got the shoulders and thighs with waves of super tiredness that I need to lay down and get rest. I know what he is talking about
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So you don't suggest taking a medication for Myositis?
Hi sir, I had pains on my below sholder and full hands.
pain coming continue.
I placed batminton 1 months continusly.
Then suddenly started pain.
Now I Can not Stuffer pain.
Only my right hands .
40 years old.
Now what will do sir.
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
there is nothing god can't Do
Very clearly described. Very helpful. Thank you.
Hey... I m unable to climb stairs.. coz my back doesn't support so I have to pull myself hard upward with the help of my hand and with my right leg...I dnt understand why my back doesn't support I never had any injury on back... Even if I bend down to pick up something I feel my back is so tight .. plz tell what to do . Wha is the issue
is it sciatica? r u doing exercise to remove stiffness?
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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there is nothing god can't Do
Sir my wife suffered from muscle pain since 3 months. And first pain was in knees and back. Now her full body muscle are weak. She feel pain even after holding cellphone for some time. Is these are the symptoms of mytosis.
Both my shoulders and arms and fingers feel weak too. I get pain when I hold my cell phone too even my fingers get numb and it doesn’t have to be long time holding my phone
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
there is nothing god can't Do .
Myositis what the causes
I'm 19 year old and my body is very slim(weak) how to improve muscles
I can help you to improve your health
What about swelling inner (upper forearm) upper elbow, and base of thumb with nodules, and between fingers (when making a fist) looks like fluid build up and all bones feeling sore even face. With swollen lymph glands in neck it’s worse before menstrual. I’ve had this for years 😩
Then how you cured it?? Plz tell
@@anushrirawale7850 I never found out what it was, but I started taking vitamin D it helps with inflammation. I already knew I had high levels after the first day swelling was gone. I took 50,000 iu D3 for a few days then started taking it once a week.
@@raeRenae1 then how much time it take to get normal?
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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there is nothing god can't Do
Inability to contract your abdomen? Your body really just falls apart. Been exercising for 4 years now, the pain was unbearable when it started, i use to sleep almost all day when i would get home from work at 11am. The pain went from 10/10 to a 2/10 in a 4 year span. I want to be pain free so bad look how far it’s gotten me😏im almost there
That’s so good to know! Wow so only training/working out has helped you that much?my muscles don’t seem to grow (I’ve had some muscle loss over the last 5 years) and even weight lifting hasn’t grown them much at all. I have the pain in my knees back and hips and it’s improved, but not my muscle growth. I hope I get diagnosed soon so I can start taking medication to help 🤞🏼
@@talulaht9599 Hello, how did you first know that you were losing muscle? I'm concerned my right arm is 1 inch smaller than my left... I am right hand dominant so it doesn't make sense to me 😞 My right arm also feels a bit off, easily fatigued, and has some pain. I'm worried that I may be losing muscle 😞
My arm muscles hurt when I move or lift my hands have gone weak and shake a bit .. my doctor thinks my anxiety has caused it as I have tenced my arms hands for six weeks none stop through severe anxiety.. I had MRI AND BLOODS THEY WAS NORMAL
And I only get mild aches as well
@Ann-Marie Paliukenas I have stopped worrying it’s gone now so it turned out I had carpel tunnel in both hands and really bad stress made me weak 🙈
@Ann-Marie Paliukenas did they mine not bad now so am all good thank you xx
Sir I get all this symptoms with my mom.she can't hold a things properly and can't tied up her own hair.But sir if mom is working heavyly her body is paining too much and get feaver.mostly her shoulder right side arm is paining and can't hold any thing....so sir what disease is this? Can it be treated by exercise sir...? please help me.
Tell your mom to go to the doctor. It’s impossible to diagnose someone through the internet.
Which test diagonase
What if someone have a continuous pain under his chest
Please consult a doctor immediately..
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
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there is nothing god can't Do .
That explains a lot! Dr Aggarwal I have DM, Sjogrens, OA, some other ailments and newly dx with NAFLD. Fatigue, pain and more pain, more fatigue. Thank you for this info video. ❤️🙏🏻
You can help me. we can talk at your private apps
Same
I have some of those too plus others. Sjogren’s is the worst!
You have a wonderful delivery of the material, very easy to listen to...I hope the Dermatomyositis video is only temporarily highjacked by covid concerns??? I’m very interested in your info... thank you 🙏🏽
Can you please ask me to purchase a cherry squishy?
Hello doctor....my current cpk total is 3851 .Dose steroids become necessary to treat my pain .l m affraid of its side effects
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Prednisone is ok for short periods of time and can help lower CK, but you should be on another immune-suppresant drug to help as well. See your specialist to get advice.
gone through PM, fully recovered...No medication since last 4 years. Yes agree the strength and endurance is not as before..but I think with continues exercise I have gained 90% of pre PM.
Hi, are you able to reverse muscle atrophy?
How?
great show ... thank u sir
Sir , my right side full body weakness fell numbness .my eye nose lips and right hand little finger and same side foot finder fell very weak plz tell me some thing I don’t understand
Well exercise a little stetch a little and also I have a great product for you to overcome weakness its 100 percent natural and AAYUSH CERTIFIED
Do mail me at wellnesshubforyou@gmail.com
I m 43 n digonised with myositis.My cpk level was around 4560.I m under the treatment but why I feel high rate of heartbeat.
Uffff
You could be suffering from other problems. I had high heart-rate and found I had hemolitic anemia - when your body doesn't get enough oxygen to the blood stream. My HR was 130+ from walking across the room.
Thanks
@@prishagoel2404 how are you doing now
Hello .It is now almost a year I am on Prednisone n other immune suppresers .My cpk is now 1900 and crp is 5.1 but I am totally unable to climb the stairs and feel very low in strength of arms and legs.Now doctor is saying to go for rituximab.How much and in what ways will it help I don't know.
I have been referred to Rheumatologist by my Dr due to blood work being positive for an autoimmune disease. I just don't know what it is
Thank you for your video, wish I could have seen this earlier in my diagnosis. Truly grateful
Whqt problem do u have
@@abhijeetsingh5334 Myositis it took the VA 10 days to find it. I’m in my 5th month of fun with this new life. Thank you again for your videos 🙏
What is the problem for a sudden weakness in the right arm and pain when lifting
Bro from how much time u suffering from this
So basically: you suffer , in order to suffer less you ll have to suffer more and maybe it will improve 😂😂
Does anyone have the grottons lumps on their hands and fingers? Does it get better if/after you get treatment. What treatments did you need?
Also does anyone have any progress with any symptoms from this disease they can share? Specifically the muscle loss/weakness and if it was in some way recovered? I’m so scared of losing all my muscle or never being able to gain it back to what it use to be.
Ho are you now feeling
God really exit's totally am cured_ with strong herbal root and leaf's bitter mixtures medication, from STD infection by a native herbalist
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
there is nothing god can't Do
Thank you doctor.
Explained very well
Kya karna parta ha esk elage
When i stand still at one place my lower body thighs legs slightly move ... Even when i sit i feel my thighs muscles are moving
can myositis be cured permanently doctor?
How a you now
What is your address sir
Still don't understand my disease suffering from years...
Suddenly i feel my hands & legs are not with me & often a current moves in my legs & arms & often i feel same at my back off & on... It remains in my body for atleast 2 to 3. Minutes & it happens suddenly.... I had consulted many nuro surgeon don't find any pill helpful..after 2 to 3 months I again found my situation same 🥺🥺🥺🥺
@taimoor4313 does the current feel warm?
Hi sir, I do regular strength training, but now Iam unable lift, due to fatigue , I eat well, drink good amount of water, sugar and blood levels are good, don't know why this happening.
Absolutely same. I might have this disease... I weight lift but it’s been 6 months and I have seen no progress...sometimes after I train I even can feel weaker than before which makes no sense.
How are you doing now guys I have a same problem
@@talulaht9599 absolutely, I used to wonder why I feel no energy in my legs in the gym, others would lift 200 kgs and I would be stuck at 60, now I know after meeting the doctor.
How are you doing now
This condition is terrible
Sir sarir ma campan kyu hota hai
For contiuously more than 5 min dr keep saying muscle fatigue,,,,ufff ao irritating
I had a little blister on my mouth and genitals which I thought it was just normal, until my doctor told me it was HSV (Genital Herpes) and it has no medical cure, I decided to try out natural stuff by giving a try to Doctor Ani John herbalHome on UA-cam, am so glad that I was able to cure my hsv (genital herpes) with the help of Dr.Ani John herbal products.
U can as well do a video. Don't you think,? It will be nice