Rock Hill baby battles rare genetic condition

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  • Опубліковано 31 гру 2024

КОМЕНТАРІ • 75

  • @Hottool365
    @Hottool365 Рік тому +12

    You can tell how much she loves her baby. I hope that they get all the support they need❤

  • @nadiabutcher6232
    @nadiabutcher6232 4 роки тому +37

    I’m 8 months pregnant an my unborn is diagnosed with trisomy 8 I’m prepared but scared ❤️ prayers for us moms ... this is very new to me! But god has my family just ready to met my baby boy 🤍🤍🤍🤍

  • @TaraRosado1998
    @TaraRosado1998 4 роки тому +17

    Awww, he is the most adorable little baby boy, such a sweetheart!!! 😍

  • @crystalhaataja304
    @crystalhaataja304 3 роки тому +14

    Such a sweet baby, who is obviously happy and loved. I don't understand the rude comments on here...

  • @rebeccabradshaw8911
    @rebeccabradshaw8911 6 років тому +14

    What adorable kids you both have. She like a mother when to him. Bless her, and he is so feisty which will be in his favor. He's a doll. He's lucky to have been placed in this family, with such wonderful parents. God bless you all.

  • @moniquem6667
    @moniquem6667 3 роки тому +19

    I’m curious how he’s doing. I would love to see an updated video. I have a daughter that’s nine months old with the same genetic disorder.

    • @eloquentia7207
      @eloquentia7207 Рік тому +7

      Just found out from an online search that Triton passed last month (May 2023), aged 8. So sorry for his parents...

  • @janetpitts7302
    @janetpitts7302 2 роки тому +7

    Oh my, what a beautiful baby!! God bless him!!

  • @dawndouglas922
    @dawndouglas922 4 роки тому +8

    What a happy little boy- such a cutie

  • @kingofcatskingofcats168
    @kingofcatskingofcats168 4 роки тому +9

    Shes a loving mother that is pure speechlessness priceless ❤ 💖 💕 💗 💙

  • @soaringkite2673
    @soaringkite2673 2 роки тому +8

    He’s beautiful!

  • @19th-Nervous-Breakdown
    @19th-Nervous-Breakdown 7 місяців тому +3

    Sad to hear that he died at age eight. It's such a rare disorder that it was hard to predict how long he might live. At least his loving parents got to spend some time with him before he passed. RIP.

  • @annacaiazza8869
    @annacaiazza8869 8 місяців тому +3

    He is a beautiful boy and he is very happy and lively and he is very loved 🥰
    Your daughter is also a sweetheart and how she loves her brother ❤
    May God’s blessings and protection be upon you and I will keep your family in my prayers ❤

  • @xohellalovexo
    @xohellalovexo 3 роки тому +5

    Such a sweet baby . Thank you for sharing . My baby is 10 months old and has 18q- . We are also new parents and learning day by day . The unknown is scary

  • @louderthanwordsInclusivity
    @louderthanwordsInclusivity 2 роки тому +4

    We are from SC and my son has Trisomy 9p, a 3rd cytoband (24.3) of one arm of the 9nth chromosome, he has level 3 Autism, IDD, Severe feeding disorder on all liquid diet, balance issues, seizure disorder, significant fine motor delay, and they are testing to make sure he doesn't have a cardiac cause for his siezures

  • @poohbeared40
    @poohbeared40 Рік тому +9

    My granddaughter has Trisomy 9. She is now 4 yrs old, but she needs quite a bit of care and she has had many surgeries.

  • @linm9598
    @linm9598 Рік тому +1

    You have beautiful children & I wish you all well for the future.
    You are doing a great job! I 🇬🇧💜👏

  • @NYCgirl927
    @NYCgirl927 3 роки тому +6

    How is this cute kid doing. I hope well

  • @bexnmoo
    @bexnmoo 6 років тому +9

    Good luck!! He's lovely by the way

  • @janetcox5748
    @janetcox5748 2 місяці тому

    ❤ God Bless this beautiful family ❤

  • @Chodie4Life
    @Chodie4Life 5 місяців тому

    He’s a beautiful joy filled baby. Aww. Him such a cutie.

  • @carolindorotheemcgroarty620
    @carolindorotheemcgroarty620 9 місяців тому

    Such a very cute baby! Precious. The big sister is too, of course.

  • @Horsewoman725
    @Horsewoman725 Рік тому +2

    So so so cute!!!

  • @kat.699
    @kat.699 9 місяців тому +1

    He's really cute, hope he grows up heathy ❤

  • @lindamarie6574
    @lindamarie6574 8 місяців тому +1

    He is so cute!❤

  • @JoeGoodman-ml4qk
    @JoeGoodman-ml4qk 9 місяців тому +1

    Great mama and daddy.

  • @kingofcatskingofcats168
    @kingofcatskingofcats168 4 роки тому +5

    Praying to you my lady and your lad keep your prayers on the behalf of this going and continue to believe in our enchanting redeemer Jesus christ .🙏

  • @donnagallt3145
    @donnagallt3145 Рік тому +3

    Omg my daughter has trisomy 9p duplication we have had 2 surgeries on her legs she started walking at 5. And she just turned 18 very difficult to find information about it

    • @fatimabekri5084
      @fatimabekri5084 Рік тому

      How is your daughter doing?
      What about her learning abilities?
      May Allah provides you with strength

  • @lindadoherty9176
    @lindadoherty9176 2 місяці тому

    He’s happy thank to you both

  • @jimmythevoice8716
    @jimmythevoice8716 5 років тому +1

    all the best to you 3 xo. was looking for info on Trisomy six ? anyone please .

  • @NayNay4life175
    @NayNay4life175 4 роки тому +8

    I know a full grown man with this...it's really sad. He doesn't really fit in anywhere & he's intelligent enough to know it. Not a good life unfortunately.

    • @spiralrose
      @spiralrose Рік тому

      🥺

    • @annacaiazza8869
      @annacaiazza8869 8 місяців тому

      What the hell is wrong with you !!! You are the one that is damn shame and pitiful!!!

  • @rachelsnyder5510
    @rachelsnyder5510 2 роки тому +2

    Cute baby

  • @dahby2724
    @dahby2724 2 роки тому +3

    Big sister is going to have his back

  • @hilarymeyerov2934
    @hilarymeyerov2934 8 місяців тому

    He is very cute

  • @blossom1643
    @blossom1643 4 місяці тому

    It’s a cute baby. I don’t see anything wrong with it (?) some people just “Borrow Trouble”.

  • @dahby2724
    @dahby2724 2 роки тому +1

    Angel's ok n Earth

  • @brendaseager7371
    @brendaseager7371 Рік тому +1

    It sounds like most symptoms are minor and I think he will live to be of a normal age. You are so lucky he has such a minor appearance of how this chromosome effects him

    • @elliesouza717
      @elliesouza717 8 місяців тому

      I think it's pretty callous to minimize her blindness

  • @joycehebda5274
    @joycehebda5274 5 років тому +1

    They should have known before he was born with the ultrasounds they didn't detect anything poor baby he's so cute though

    • @crystalhaataja304
      @crystalhaataja304 3 роки тому +2

      Ultrasounds aren't fool proof. They misdiagnose all the time and they also miss things all the time. He seems happy. His parents love him. Not really important at this point

    • @chloeshann8142
      @chloeshann8142 2 роки тому +1

      @@crystalhaataja304 Not accurate. Things aren't missed "all the time". Not everything can be visualized by ultrasound... big difference

    • @chloeshann8142
      @chloeshann8142 2 роки тому +1

      Not everything is apparent by ultrasound

    • @SapphirasMama
      @SapphirasMama Рік тому +1

      They can only detect so much, especially if the type of Trisomy, that is being looked at is extremely rare. In this case there is only over 100 people so far diagnosed. Also, his features on ultrasound may seem somewhat normal and is not noticed until immediately after birth that this is not the case and are in fact abnormal.

    • @elliesouza717
      @elliesouza717 8 місяців тому

      ​@@crystalhaataja304they don't "misdiagnose all the time", but there are things that cannot be seen

  • @jordyd4
    @jordyd4 8 років тому +4

    its never acceptable to act on the respiratory actions of a child when he does not need it, it can cause a lot of damage to the child lungs. you need to be really careful when breathing into him like that, thats really harmful. i would appreciate your fed back for your sons well being.. you are doing him harm.

    • @annacaiazza8869
      @annacaiazza8869 8 місяців тому

      Who the hell are you to tell them how to take care of their sick baby! They already know! Plus you are no fucking doctor to give any medical advice! Crazy idiot!

  • @cynthiawhite5040
    @cynthiawhite5040 Рік тому +1

    Okay tell us something good about him everything wrong with him

    • @elliesouza717
      @elliesouza717 8 місяців тому +1

      You kinda missed the point

    • @annacaiazza8869
      @annacaiazza8869 8 місяців тому

      You suck !!! Everything is beautiful about him and if you can’t see that then you are more stupid!!! I think you are the one who has something wrong!!!

  • @cindywhite4485
    @cindywhite4485 2 роки тому +1

    What is wrong with her??

    • @chloeshann8142
      @chloeshann8142 2 роки тому +3

      Read the description and watch the video.

    • @billyJessica1126
      @billyJessica1126 Рік тому

      It's a boy 💙

    • @bconsilio3764
      @bconsilio3764 Рік тому +4

      I second the other2 comments and will tell it is Very Rude to ask that question!! Children who are born with medical conditions and disabilities are not born wrong! Parents willing to be vulnerable and share their child’s needs deserve much more respect. Please think of a better way to ask for information AFTER you have watched the video and read comments. Parents don’t need to read questions like yours repeatedly when you can use your intellectual abilities to avoid rubbing it in their face that you think their child is broken!!

    • @hilarymeyerov2934
      @hilarymeyerov2934 8 місяців тому

      Nothing

    • @annacaiazza8869
      @annacaiazza8869 8 місяців тому

      @@bconsilio3764 true