How fantastic!!! I smiled the whole way through this video. I'm four years too! I think we started withdrawal only a week or so apart. It has been such a gift to witness your journey throughout it all and I feel like you're my most similar TSW buddy!! Congrats to you and to us!!
Oh, thank you so much for this video! I am interested in whether I could use steroids again if I wanted to. I am so scared and anxious to use them now. Thanks for making this video.
Oh gosh I totally forgot to do this hahah. Well hopefully that tells you all you need to know, I am healthy and doing great! I will do a video at some point to update on the stopping of the drugs. But all good, no complaints from me so definitely am 'healed' from TSW. x
I have only ever hydrocortisone .5-1 percent. I have maybe used 4-6 small tubes over 12 years. I cant tell if I’m currently in tsw or just eczema as it is worse then it has even been. Hadn’t had a flair in about 5 years and used the cream a few times now it’s worse. What are your thoughts?
@locky4809 it depends on how often you used the cream last two months. What happened before doesn't matter. Addiction only forms if you use an ointment each day for a month. If you make 3-4 days off - it won't lead to addiction.
Hi, just wondering if you experienced withdrawal again (or any reaction) after using hydrocortisone again? I'm 3 yrs in and always wondered what it would be like if I ever needed to rely on it!
No I did not experience withdrawal again but bear in mind I am on immunosuppressants so this might have factored into it! Will be continuing to post about my experience as I taper off the medication.
How fantastic!!! I smiled the whole way through this video. I'm four years too! I think we started withdrawal only a week or so apart. It has been such a gift to witness your journey throughout it all and I feel like you're my most similar TSW buddy!! Congrats to you and to us!!
Amanda Clapp congratulations on your 4 years!!! You are looking so healthy, it’s been beautiful to watch you heal too 😘
Heya, I'm wondering how you're doing these days as I'm about to start immunos myself. Thank you so much for this little video series!
Oh, thank you so much for this video! I am interested in whether I could use steroids again if I wanted to. I am so scared and anxious to use them now. Thanks for making this video.
So glad you're still making progress. You look so much happier and healthier!
Ross Mera-Pirttijarvi Thanks Ross! I feel it 😄 freedom at last.
I went on hydrocortisone. I felt really bad to but I’m glad someone can relate.
Lu Ash you have to do what’s right for you 👍🏻
could you please do an update from this video as you have come off MTX and if any symptoms have re appeared?
thank you
I LOVE YOU! YOU LOOK AMAZING, four year TSW or four year journey - whatever it is!
Lynn Cheng thank you lady. Miss you xx
How is your skin doing now Steph? Waiting for the year 5 update 🙂
Oh gosh I totally forgot to do this hahah. Well hopefully that tells you all you need to know, I am healthy and doing great! I will do a video at some point to update on the stopping of the drugs. But all good, no complaints from me so definitely am 'healed' from TSW. x
It's possible to wean off hydrocortisone slowly because it's not that strong.
Informative video.
I have only ever hydrocortisone .5-1 percent. I have maybe used 4-6 small tubes over 12 years. I cant tell if I’m currently in tsw or just eczema as it is worse then it has even been. Hadn’t had a flair in about 5 years and used the cream a few times now it’s worse. What are your thoughts?
@locky4809 it depends on how often you used the cream last two months.
What happened before doesn't matter.
Addiction only forms if you use an ointment each day for a month.
If you make 3-4 days off - it won't lead to addiction.
💪💪💪
Brady Lloyd 😘
Did you have to take prednisone continually until methotrexate started working? Cause it took like 4 months to work?
No I do not take prednisone. I am in steroid withdrawal as they caused the problems to begin with.
Hi, just wondering if you experienced withdrawal again (or any reaction) after using hydrocortisone again? I'm 3 yrs in and always wondered what it would be like if I ever needed to rely on it!
No I did not experience withdrawal again but bear in mind I am on immunosuppressants so this might have factored into it! Will be continuing to post about my experience as I taper off the medication.
Hello do you use again steroid cream? Which part you put?
goddes sexy Hi yes, I used a small amount of hydrocortisone on my back to control a rash I got from my sportswear. All better now :)
@@stephs7438 happy you feel good now😊