Alopecia | Hair Loss Update
Вставка
- Опубліковано 22 сер 2024
- Hello, folks! You've been asking me to make a video chatting about this, so here we go! Links to things mentioned are down below. xx
--
If you like my videos and podcasts, please consider supporting me on Patreon: / jenvcampbell
-
MY BOOKS:
THE BEGINNING OF THE WORLD IN THE MIDDLE OF THE NIGHT tinyurl.com/ya...
Signed copies: www.jen-campbel...
FRANKLIN’S FLYING BOOKSHOP: tinyurl.com/mmf...
Signed copies: www.jen-campbel...
FRANKLIN AND LUNA GO TO THE MOON tinyurl.com/yb...
Signed copies www.jen-campbel...
THE GIRL AQUARIUM: tinyurl.com/yc...
THE BOOKSHOP BOOK: tinyurl.com/zxo...
Signed copies: www.jen-campbel...
THE HUNGRY GHOST FESTIVAL: tinyurl.com/d9c...
Signed copies: www.jen-campbel...
WEIRD THINGS CUSTOMERS SAY IN BOOKSHOPS: tinyurl.com/z6q...
Signed copies: www.jen-campbel...
MORE WEIRD THINGS CUSTOMERS SAY IN BOOKSHOPS: tinyurl.com/zrt...
Signed Copies: www.jen-campbel...
-
THINGS MENTIONED
Book tour: www.jen-campbel...
EEC Syndrome tinyurl.com/z3k...
Alopecia video • Video
Eye sight video • Video
Videos on disfigurement and representation • VIDEOS ABOUT DISFIGURE...
-
WHO I AM
Hello, my name's Jen. I'm an award-winning poet and short story writer. My debut short story collection 'The Beginning of the World in the Middle of the Night' is published by Two Roads, and my children's books, 'Franklin's Flying Bookshop’ and ‘Franklin and Luna Go To The Moon’ are published by Thames and Hudson. I'm also the author of the Sunday Times bestselling 'Weird Things Customers Say in Bookshops' series, 'The Bookshop Book' and 'The Hungry Ghost Festival.'
I run writing workshops, give talks at universities & book festivals on a variety of topics, judge literary prizes, and take on freelance writing and editing. If you would like to speak with me about the possibility of working together, please get in touch via email: jenvcampbell@gmail.com x
--
Where to find me:
Website: www.jen-campbel...
Writing Workshops: www.jen-campbel...
Twitter: / jenvcampbell
Instagram: / jenvcampbell
Patreon: / jenvcampbell
Events: www.jen-campbel...
Podcast: www.jen-campbel...
Facebook: tinyurl.com/3o3...
Goodreads: tinyurl.com/hs8...
Email: jenvcampbell@gmail.com
(Since starting UA-cam, some of you have been asking what's wrong with my hands. This should answer any questions :) tinyurl.com/z3k...)
NB This video does not contain any sponsored content.
![[UA] Team Vitality проти NAVI | IEM Cologne 2024](http://i.ytimg.com/vi/wttO1zVRTC0/mqdefault.jpg)
Thought it was time for some chatty, honest thoughts. Hope they help x
I truly admire how you speak about this so openly. I think you're truly an inspiration for people with disabilities. And I'm like baffled how positive you are about this. I don't know if I would be able to deal with hair loss and so much respect for the way you're dealing with it. You seem like such a strong person and mad respect for dealing with all of this.
"I'm going to go on permanent vacation and because what I have always wanted to be - scar tissue!"
I highly enjoyed how you phrased that.
Yes I agree you are a special person. I’m a fan.
Story time lol. So, I thought for the longest time that I had come to terms with my sexuality, until a few months ago. I was at my uni campus talking to a friend and laughing, when I look to my side and see a colleague starring at me, that look of "wow you are gay and it's really showing, how embarrassing, man up". He probably didn't even notice what he was doing, but it brought up all my insecurities back, that uneasiness that made me sit straight up and not move my hands growing up, so that no one would question my identity. I felt really disappointed at myself for "being weak again", that I wasn't proud enough of my identity. But I realize now that being strong and loving/accepting myself doesn't mean being a concrete wall and never feeling insecure, unsafe or cornered ever again, but rather that I'm human and I'll always struggle, yet I'll always pick myself up and be able to laugh in public without a care once more. We're all different and dealing with different things, but I want you to know that you are a huge inspiration to me, and I want to remind you that you can feel whatever you feel and do whatever it is to make yourself more comfortable, that you are not betraying your story or not being strong enough, because you're as strong as they come, and all you create does a lot of good for the world
Love to you, Andre x
Your honesty is mindblowingly beautiful to witness. This video made me happy, in the sense that i am so glad gorgeous individuals like you make videos
Awwwww Vibrant Jen. ❤️ I am way more than twice your age and have the other kind (non-scarring) of alopecia. That said, none of mine has ever grown back in over the past eight years. It has been so helpful to hear and see you discuss hair loss from the stance of something other than a desperate how-to-fix-it. You are truly bright and beautiful. With admiration xo Karen
Love to you, Karen x
My hair is all gone because of cancer treatment. It’s not easy and I’m really sorry you’re going through this. You’re very beautiful with or without hair.
I wear bandanas and sometimes a hat on top of that. Now I feel terribly cold in my neck. I have a wig, but it’s awful. The bandanas are nice and I use gorgeous earrings, bright lipstick. I feel pretty.
:) all power to you. xx
I love this video. I relate. I have PCOS and one of them symptoms for me is quite a lot of facial hair and its a mess to keep up with. And when I am home Im fine, my husband isnt bothered by it, but I cant just get up and leave the house. It takes a lot of prep because I am so self conscious of it due to the reaction and unacceptance in society.
Thank you for your vulnerability ♥️
Thank you for wording it like this. x
I completely sympathise for the stigma of society. I feel like it's just something we're conditioned to feel even when we think we're fine in ourselves with our appearance. There are plenty more important things, but we can't help but feel sensitive about things like how people will perceive us, even our good friends and family and total strangers.
You always come across very eloquently when you discuss such topics Jen and I love that you're talking about it because not only is it something I'm sure that helps you to figure things out a bit more, it also gives the rest of us a chance to know more about things we wouldn't otherwise think of, and I appreciate that.
Hope everything on the book tour goes completely fabulously! Youre, as always, a star for working so hard all the time ⭐ Hope to see you soon! Xx
Let me just say that I've got so much respect and admiration for the way you're coping with your illness. To speak so open and honest about it is incredibly courageous.
You are amazing! In a time when we are bombarded with so much messages about all the work and products we MUST have to achieve perfection, it is so wonderful to have someone talking with such clarity and eloquence about illness and imperfection, and showing - not telling- how our own worth is not tied with what we own and how we look and what we are missing, rather to how much we are contributing. Thank you, Jen! and all the best wishes regarding your health ❤️
You are amazing and beautiful and strong! Thank you for sharing this with us. You look fabulous no matter how you wear your hair.
Jen, I just wanted to let you know how much you have positively affected my life. I've learned so much from watching your channel. Mostly about Lupin and Sirius shipping (I can't not see it now!) and fairytales but more importantly about how to deal with things life throws at you in a way that is positive and inspiring. You are an awesome role model for the strength in vulnerability. Sharing your life so openly makes the world a bit better place and inspires others to do the same! Luv ya!
Ah, Remus and Sirius. My forever loves. xx
I love you Jen - you're amazing. You've inspired me so much through your passion of books. I hadn't read anything for years and have started reading again thanks to your fairy tale series. I wish you didn't have to go through all this. You are UA-cam gold! So many fake people on here but you create incredible content and are so nice and genuine. I hope you continue to make all your dreams come true xx
Thank you, Mary x
I really appreciate this video and, quite honestly, it made me cry (still crying). My sister has lost all her hair to alopecia. When she was young it came and went in patches and kids would make fun of her. Then when she got to adulthood, she would begin losing patches after a traumatic event (she's had more than her fair share) but would always return. In her thirties it went away completely. She's been so strong, but I know it has been difficult and I just hate that life requires so much more of some people than others. But it always does make me think twice before complaining about something petty.
I truly love your openness and honesty. I am certain you are helping others with your stories. Blessings to you!
Thank you, Tracy x
You’re such a beautiful person inside and out, Jen.
I’m sure I have commented before on previous videos regarding alopecia - when I go through periods of stress I lose my hair, always from the same patch at the back of my head. It has grown back 3 times now but the hair in that area is lighter in colour and a completely different texture. I put this down to how my body handles stress, but your video has got me thinking about perhaps there is a genetic element to it. Thanks for being so open about issues like this which a lot of people wouldn’t feel comfortable discussing.
You’re one of life’s wee diamonds!
Oh, side note - I have to wear my hair up for work and where the patch is is very noticeable so I had comments from colleagues every day - ‘do you know you have a bald patch??’ - yep, very aware thanks!
Ha, oh yes, the 'did you know...?' and 'Have you considered....?' Yes, yes, we have. Thank you for sharing. x
Jen, thank you so much for being so open about this. I’m sure it goes without saying that you don’t owe us all of the details about your personal life, but your honesty is much appreciated. I’m sorry that some people seem caught up on what your husband and family think of this situation. As if having/not having hair make a difference to someone’s character. Wishing you all the best for the future xx
I wouldn’t answer anything I didn’t feel comfortable with, don’t worry ☺️❤️ x
Thank you for being so candid about your experience. Some of your descriptions struck home strangely enough, though I am not losing my hair and cannot even pretend to know exactly what you are experiencing. But as a person of African American heritage, I too have often struggled with perceptions about my hair. Not at home, but outside the home, around some of my Mexican relatives who would wish me to transform my hair into something they understand. I so often put my hair up too when I leave the house. Even today I have a bun. I am not bothered by my hair but only by the questions in certain spaces where my hair is not normative, I suppose. All my love to you as you contend with and make your way through all of the opinions.
Thank you for sharing, Adrienne x
Just thank you. I really like you. ❤️
Dear Jen, I admire your eloquence so much. Whether you are talking about literature or more personal things, you are always so composed and well-spoken. I listen to you and learn and strive to be more like you.
Making sure you are comfortable is the most important thing, so kudos to you for taking care of yourself first! Wonderful video, as always xx
Appreciate your honesty in talking about this Jen. Your sense of humour and ability to see a funny side is one of your strengths. Unfortunately we live in a world where people are still quick to judge on appearance first. You shouldn’t have to feel self conscious around others all the time or feel a need to explain how you look. I hope you find a suitable solution to make you comfortable out and about.
Dear Jen, you are awesome, that is that. Respect.
I love that you talk so positively about your disease, you are an inspiration 💕 lots of love
There's so much strength in this video, Jen! I can't even begin to imagine what you're going through, but the simple fact that you are able to speak so openly about it putting yourself out there, is beyond inspirational. I really hope things are getting better by the day - stay happy and healthy! :)
I appreciate your up front honesty about requesting people not give you medical advice. I'm a Type One Diabetic and sometimes people think they can "cure" this auto immune disorder for me. It's very frustrating and while the kindness behind it is appreciated, I wish people would assume that the person living with the condition is doing what they can to manage it, including working with actual medical professionals.
I really admire that you openly talk about these issues and any health or mental health issues you have. I know sometimes it is hard and I started watching you years ago for your book videos but these videos are important to me as I have some mental health struggles. Sometimes it is the silent diseases that are the hardest to see. So thank you, I love your book content but I love this too!
Hi Jen. If you are feeling uncomfortable with the bald patches and really want to wear your hair down, you might consider clip-on hair pieces. There are some really good quality ones out there. I don’t know how expensive they are or if they would be practical for you, but they might work. To get them to look the best, you would most likely need to go thru a salon for color matching and having them cut to the right length. I know that you shouldn’t have to worry about these things, but society trains us women that we’re supposed to have thick beautiful hair. I have a rather large bald patch on the back of my head and I’m constantly worrying about whether it’s glaringly obvious or not. Sigh. Anyway, hope you’re doing well! ❤️
I just found your site and you have really motivated me on trying different books going towards the fairytale retellings instead of just the self help😄. You are a beautiful gal and have such a great amazing attitude. Thank you and I wish you greatness in your life
All the best to you, Ronda. x
Wish you strength and good health Jen.
Thank you for speaking about this topic so openly ! I lost all my hair because of an auto immune disease. I hope you won't have to wear a wig like me. You look fantastic, thank your for your positive message !
Oh, Jen. Thank you for sharing who you are with us on here. I admire your honest and transparency and your "Mr. M" sounds like a wonderful partner.
I just wanted to say you are so brave and positive. I have alopecia and well the struggle to feel good and societal expectations is a daily battle. Thank you so much for sharing this video.
Thank you for your courageous example. Just when I thought I couldn't possibly admire you any more greatly, my esteem has grown yet again.
I must say that every time I watch one of your videos I am mesmerized by your beautiful skin. When I look at you I notice your cute outfits, your lipstick, but mostly your flawless skin.
I am such a fan of your books and your reviews💜💜💜
How great are you!! I was going to say brave but I don’t think that is the best word. You have such a positive attitude and I so admire you for it! If there is one thing I have learnt over time, don’t waste energy on what people think. A lesson that I wished I know about in my early youth.
I love it when writers tell stories about their lives because they always make them so lively and unique. How about a fantasy colored wig? It would look lovely on you. 💙
I lost my hair due to chemo some years ago - very luckily I was only bald for about 9 months. But yes I agree that finding a comfy yet nice-looking head covering is not easy. I wore my wig every day for about 2 weeks, then just gave up on it. Then I used some soft caps and scarves which I quite liked, but they do make you somewhat noticeable if you don't have hair sticking out. People did stare, to a certain extent. And all of these things are harder in hot weather, as you say! Anyway, thanks for the open and informative video, and best wishes!
Thank you for sharing, Alexia ❤️ x
Dear Jen, thank you for sharing, you are amazing!!!🌷 I wish you did not have to go through it, I wish society worked harder to be more understanding and appreciative of all people. Beauty should not be standardized, we are all different, all beautiful... Lots of love ❤️
My adult daughter has a chronic and complicated medical condition that she finds very hard to deal with. I will show her this video as it may help her to understand that she is not alone. She has suffered a great deal from the thoughtless comments of people who just don't understand and is often has to deal with useless advice.Thank you so much.
Lots of love to you and your daughter! I have a whole playlist of videos on disfigurement, which is linked in the video description, in case that's of interest. x
I have trichotillomania, so I've lost a lot of hair before. I used to have short hair because of it and for a period I used wigs. So I know the feeling of losing a lot of hair! It sucks that our society is so harsh on hair loss, scars, deformities etc
Hey Jen. Just wanted to say I think you are really brave to talk about your hair loss so openly. I suffer too, in March this year I went down the wig route and things have improved for me a lot but for a long tine it was extremely hard, I would not go out to see my friends or anything. So I know exactly what you’re dealing with. I would say keep shopping around for wigs, and try a few different styles. A fringe might not be something you’ve considered but I find the ones I have with a fringe look more natural because the parting is less obvious! Xx
your honesty and positivity are unbelievable. I admire you so, so much 💜
So, what did your Mom & Dad and your family do throughout your childhood illnesses that helped you to be so strong & so well adjusted? I don't know you personally Jen, but I've been following you for a few years and I know few adults with so clear a sense of self & worth. Your passion for what you do and your ability to face difficulties with such courage and grace is inspiring.
Thank you for sharing your challenges. I wish I had ideas for solutions that could help. I know that your brave, positive spirit has helped me and helped others.
Congratulations on your wedding and wishing you well, always.
Thanks for these videos. Dealing myself with hair loss and other bodily changes due to a thyroid condition. I so appreciate your candor; it does make me feel less alone.
Love to you, Anna x
You are the most amazing, beautiful and independent woman I have ever watched on UA-cam. You are just so inspiring and wonderful. Plus you love books! I am so glad I have find you on this platform. You encourages me to face and live life with a smile on my face, no mater what happens. Thank you so much Jen. I hope one day I could meet you in person :)
Love listening to you
! I lost my hair through having chemo and realised that I could still live a happy life with no hair 😀 in some ways it was almost a freeing feeling! Of course it’s different in the way that I knew my hair would eventually grow back so I’m not comparing our situations...but it did make me realise that when you have to adapt to something you really can and still feel ok about yourself x all the best to you x
PS, if you do end up wearing a wig don’t lean too close to the oven...I ended up looking like Rod Stewart!
Hi Jen, I think you are a very special person, but first and foremost because of who you are and not because of the EEC. I hope it won't affect your health so much in the future though. Wishing you all the best! :-)
Thank you, though difficult to know what impacts what; EEC is part of me. If I’m determined and want to do things etc, I think a lot of it is down to that. Who knows what I’d be like without it. :) xx
@@jenvcampbell Of course, I didn't want to imply anything else! I just meant to say you're a lovely person really ❤
😘 x
Jen, I admire your courage. Thanks for sharing your story ♥ I hope that someday you find the right person/spa where you feel comfortable enough to be pampered, you deserve it! I feel weird about people touching my feet, but a few times I have sucked it up and got a pedicure and I tell ya, WOW it is AMAZEBALLS. I really should do it more often. Wishing you all the best!
Thank you so much for this, Jen. I’m feeling for you. I’ve been slowly losing my hair as well (hormone related). I’ve looked into toppers, but haven’t been able to afford the real hair pieces yet. And I’m not sure how I’d like them anyway. I do agree with you though- I’m tired of wearing my hair up all the time. Thanks again for being so lovely. Wishing you strength and comfort!
I needed this honesty and candour and frustration and complicated tangle of feelings. It resonated a whole lot. Thanks as always sweetness 💚
Good discussion 🌞☀️🦉📖 indoors in our solitary privacy one feel fine and ok, we feel ourselves, comfortable in our self. However, going into the more public sphere brings its psycho emotional challenges ie other people shallow judgements / reactions. Thanks for speaking about your hair and it's challenges. Great channel all round x
It is very inspiring to see how you put things in perspective. Thank you for being so open; you are an amazing woman!
You are a very stylish woman and you don't need masses of hair for that! Apparently, lots of make up experts believe that it's more elegant to wear either eye make or lipstick-not both, so you're bang on trend with that! Style never fades because it isn't dependant on hair, eyes or indeed fingers but if you have it, you have it and you do.
When I met you recently I didn't notice anything about your hair or hands as it was lovely to listen to you discuss fairy tales and books and meet you in person. I respect you talking openly to us about your feelings :-)
Whether you happen to notice them or not, they make up a part of who I am (my hands more than my hair, as that's something I've had all of my life). I don't try and hide my ectrodactyly, and whilst I know you mean that you were just happy to listen to me talk, and that's lovely, one doesn't have to cover for the other :). It was lovely to meet you. xx
Sorry if I've said the wrong thing.:-)
It's ok, it's just something that's said quite often, and it feels as though my aim should be to 'pass' for someone who doesn't have these things, and that's not a goal I have :) x
It wasnt meant like that. X
Out of interest (genuine question), what did you mean? xx
Dear Jen, you are wonderful. Thank you so much for talking about this. You are so brave and you even made me laugh a few times. Your videos brighten a day xx
Thanks, Molly. I hope you're having a good week x
Ugh, why are people so terrible to strangers just going about their normal lives, honestly. I'm sorry you have to deal with these rude stupid people; it's so bizarre and random what some people think is necessary, let alone acceptable to say ("Hello, I have an opinion on your hands and head!!" ?!??!!!). I can see what you mean about in a way protecting yourself against that. But it goes without saying you so shouldn't have to! Grrr.
Your hair looks really nice, by the way, Mr M is leagues better than all self-hair-cutters I know. :D
Mr M says thanks 😉 x
thank you for sharing this Jen, even when your situation is difficult, you are a light for others who may be in the same situation, love your courage and i admire your soul.
Hi Jen. Your transparency is refreshing and brave. I hope I can offer my encouragement and understanding to the other kind and loving people on this thread. I have a few disorders...mental and physical. 4 years ago I developed alopecia areata -- or as I like to call it "alopecia borealis". :) I had bald patches all over my head. I chose to completely shave my head and wear cute caps. I found them on headcovers.com and believe it or not, on Amazon. It took a year for my hair to grow back, but it is still very thin. All that to say...you have taught me so much about literature and poetry and your culture and presence. Thank you. I will continue to search out and view your videos and look forward to your content, personality, beauty, and intellect.
"alopecia borealis" love it! x
Thank you so very much for this video. I think you are a true role model. Wishing you all the best (without any medical advice;-)
Haha, thanks, Jess x
I "get" everything you say here. I lost my hair in matter of few weeks. I have alopecia universalis. I would say scarves and hats can be fun. I am happy to give you private suggestions. I have been wearing wigs too for 15 years and yes...I hate how they feel. I have gone out bald and it's bloody annoying to have gape - mouthed stares. In scarves, everyone assumes I have cancer. Blah. Blah. It's a challenge! Anyway, every word of yours here also reflects my experience. Thank you!
Loved this conversation as you put so well in words how you feel towards everything. I have learned a lot about it with you. So thank you for always giving a lot of you to us.
***********************************************
Thank you so much for this - I love your reflections on how even though you feel alright inside, there are these societal pressures that are hard to ignore... stay strong!
I will wave to you from afar x
Very thought provoking video. I have general hair thinning and am very self conscious now because of the same societal expectations that you mention. I hate really strong sun as it shows up my scalp so obviously. I applaud your attitude to all aspects of your condition. You are extremely inspirational! On a totally different subject, I commented that I would like you to come on tour to Bournemouth and you said you would like to, if asked. I’m going to try and encourage my local bookshop with this and any suggestions on how to go about this would be welcomed. In particular, I am thinking about the arguments to support a visit. Thank you Jen x
Thanks for sharing a part of you💞
Hi Jen!
Thank you for your chat; I admire you for all your bookish work and the honesty with which you talk to us about your health. The world judges, and really, we all feel inadequate most of the times when it comes to our looks. I appreciate how having a medical condition must make it even more difficult. But we on this channel love you for your brains, and are on the same page as Mr.S :)
You are simply amazing to me. You are perfect just the way you are.
Sending lots of love, and hugs!
PS, I am taking my book club to the Scottish Poetry Library in Edinburgh in a few weeks. I am sure you have been. Any secret spots we should check out while there?
‘I’m going to take a holiday’ basically is a summary of my own syndrome 😂 I’m glad you feel so open about discussing this on the internet tho :)
You are such a beautiful person and so strong! Sending you lots of hugs!!! Also, have you looked into these hair powder temporary dyes that go away when you wash your hair? It might give you a bit of coverage so the scalp isn't as visible so that will make your hair wearing up a little bit easier. I honestly am not sure how well they work but maybe it's worth checking it out.
Thanks for sharing. You are amazingly positive about everything in this video. X
Thank you for sharing Jen.
You are a great woman! All those thinking about what otheres think about you will get better when you get older 🙂
Isn't it interesting how our hair affects us emotionally? I have an autoimmune condition & took a severe reaction to my hair colour. I currently have about an inch & a half of pure white with dark brown coloured ends. Very like a badger. It'll probably take a year for it to go completely white. I'm amazed at how it has made me feel & some people definitely look at me strangely & in some cases treat me differently. I would love to say that I don't care but it's just not true even though it's only hair! I know that it's not the same but I do understand.
I love you. You are a marvelous human.
Good job Mr. M! :D
You're amazing and Mr. M is wonderful too.
You are beautiful. I have struggled with hormonal hair loss for years and am no longer able to wear my hair down due to bald spots. Batiste tinted dry shampoo conceals my scalp, as well as Toppik colored hair builder and powder. I bought a Uniwig hair topper last year but am too self conscious to wear it out. Oy vey. You're not alone!
Thank you for sharing x
Your amazing!!
Listen to me! YOU. ARE. GLORIOUS.!!!
bye
Thank you for the video, I really appreciate you making these!
I think it is so valuable when people are vulnerable online and I am really sorry for the reactions that you get..
I just have one question: do you plan to shave off your hair when most of it is gone or will you just wait it out?
I have no idea how I will feel if/when most of my hair goes. So, I can't answer that. x
Jen Campbell I understand.. I wish there was something we could do to help you..
I think the main part about wigs is that you have to style them in order for them to suit you, in most cases. I used to wear wigs a lot for fun, just during the day, and I got quite used to the feeling on my head. Like a tight hat. You find your way of securing and styling them, they usually didn't work for me fresh out of the bag, I cut them, sometimes I dyed them and combed them in different direction. I also found that wigs with ponies are easier to handle, since you have to wear lacefronts if you want them to look natural otherwise and lacefronts can be quite bothersome since you have to use glue if you want the lace to lay completely flat.
oh man this comment seems a little over the top I just have a big interest in wigs. If you're ever in Edinburgh I can set you up for some wig styling haha :D completely playful-not-shameful
for headscarves, I love silky fabrics that I pin down so that they don't budge at every breeze :) I used to wear a thin summer scarf as a head scarf in a sort of turban style, but I don't do that anymore since I'm afraid that would be culturally insensitive (man what I would give for non-muslim equivalents to hijabs)
Hello lovely Jen, I am trying to find a video where you recommend soft beanies and scarves, and where you tend to get them? Or did I imagine it. Thank you ❤.
Here you go: ua-cam.com/video/SGGVyqnmL3U/v-deo.html
Hey Jen! Sorry that I haven't commented in a while. Hope you're well! Thanks for sharing this with us. I was wondering if you've noticed whether the newer medical things that you've had to deal with have made their way into your writing, be that subconsciously or intentionally? And have you used writing as a way to process these new things you have to face/work out your feelings towards them? Lots of love, Greg
I'm sure they have; things have a habit of creeping in :) x
Thanks for sharing your experiences. I have other issues though also experience a complex of different emotions, thoughts and stances (the being okay with it, then not, and without wanting it to have an impact, the realisation that society does have an impact on how I deal with it). I have been frustrated with myself for caring what others think but then again: we are only who we are in relation to other people and society at large. So I'm getting better at not judging myself when I roll with it. Anyhow, thanks again for sharing.. Very inspirational.
PS. In London weekend after next. Celebrating our wedding with the decadence of 2 musicals :-D (Wicked and Matilda). You have mentioned some musea and an archive worth a visit but I can't seem to find those videos. Could you hint them? Thanks :)
x lizzie
Tate Britain, Wellcome Collection for museums. Bookshops: Foyles (Charing Cross), London Review bookshop, Persephone Books. Food: Dishoom, Pizza Pilgrims, Bone Daddies. xx
The amount of questions and advice I get from people about the tiny amount of eczema on my hand is infuriating so I don’t know how you don’t blow your top on a regular basis. One day people will learn to mind their business or will only ask when invited.
I think it's a human thing to want to try and help, but giving unwarranted advice or offering an opinion to a stranger seems to stem from the advice-giver/commenter wanting to feel better or superior themselves, rather than anything else. It can be infuriating, especially as (as I've discussed in previous videos) those of us with disfigurements/disabilities often feel like we have to set a good example, so that the commenters will be kinder to others with disfigurements/disabilities in the future. That's a whole other video in itself! xx
Check out Beautiful Betsy on youtube. She is a UK woman who suffers from alopecia, but has discovered how wearing beautiful human hair toppers (betsies) has helped her look very natural. I believe she has a connection to either their manufacture or their design. She looks great.
You are awesome ❤️
Funny - because I have really long hair, I always put it up at home, so I don't lie or sit on it, but put it down outside. Question: isn't it (aside from being really interesting) really scary that your body turns on you?
I don’t think of my body as something separate to myself, so I don’t really see it as turning on me. It’s inconvenient, sure, and unsettling but I feel like we’re on the same side.
Could you do like a half up half down pony tail so if you want it down it is kind of down?
Nope, too many bald patches on the back of my head for that.
For me you are beautiful no matter what, but I get the whole society thing and also that you don't want to deal with nasty comments and looks.
That said Sam from thoughtsontomes did a video about wigs on her other channel all that life. Maybe you find it helpful if you ever want to try it again. Not that you have to or that it is necessary in any kind of way just you know I case.
You are perfect
💙💙💙
Does a French plait not cover the hairless area?
No.
💕💖💕💖💕💖💕
This might interest you. I went to art college. As performance pieces the sculptors used to have a classmate build full plaster piece-molds around their heads (from which they can cast). They had to shave their hair off and use straws to breath. I’ve seen women and men do it. There was a bit of playful slagging after, but no one really cared otherwise. I don’t know how the women got on day to day mind. Have you ever considered just whipping it off?
...These situations are entirely different. You're talking about people choosing to shave their heads for art, when they know that their hair will grow straight back. Perhaps a little more consideration.
Jen Campbell Yeah, I understand they aren’t the same. Just some grist for the question...
Well, yes, I have thought about shaving it all off, because of course when you are in this situation you think about all of the possible things you could do. And, having thought about it, that isn't something that I want to do. I don't think I would find it liberating, given that scarring alopecia does not grow back.
Jen Campbell Thanks.I hope I didn’t piss you off. Good luck.
so, you're technically a unicorn in the medical community
INDEED!
7:20 - Really unfortunate hand position, read that as f*ggot moon. Which, you know, would be my guardian deity if I could choose one.
10:30 - I guess you already tried baseball caps? They would go really well with the kind of dungarees you like to wear, and you could wear them backwards if they don't cover up well enough. If they are to heavy, you might find some have a net portion for air circulation.
19:55 - You should take Vitalimax plus! (ContraPoints reference, not medical advice, sorry you are getting that)
Finally, you are most appreciated for everything you're doing. Hair is just dead cells (though unfortunately regularly policed through social norms), you are alive.
What the fuck. What type of people are doing these things. What world do we live in