I think this is the only video of its kind to show a clinician explaining this rare and mysterious disease. I had breast cancer with my LEMS. Cancer cured 6 years ago but still have the LEMS.
I've had LEMS for almost five years. I was a smoker for years. I quit about ten years before the LEMS symptoms started. So far, no cancer has been detected. This is the first time I've heard any doctor say that if you were a smoker and you develop LEMS, you will definitely find that you have small cell lung cancer. I agree that it's important to provide patients with a realistic prognosis but such a categorical statement as this leaves a person with no hope. If I could, I'd thank the good doctor for such a clear explanation of this disorder. I learned a a lot that I didn't understand before. Nonetheless, I am so very grateful that it was not this doctor who first explained to me my diagnosis.
Dave: Glad to hear you're still getting along well on that front at least. I was getting PET scans every six months for the first couple of years and then CT scans. I just cleared the five year mark and so far, so good. How do the vitamins work for you? Are the effective? I take vitamin B1 and D3 but at much lower doses than you.Do you take doctor prescribed medication as well? The medication that works for me is 3,4 DAP (Diaminopyrodine). I also take Mestinon and it helps some but not a lot. You may already know this but there is a LEMS Facebook group as well as a Yahoo Group. I follow the Facebook group and find it excellent. Best of luck to you! - Hector
I was diagnosed with this almost a month ago. I'm shocked at how quickly this rolled over me. I'm in rehab as I write this. I have no clue what comes next in my life with this.
Hi Shannon, my name is John, I am Spanish and I have LEMS dianosticado one for a year, autoimmune and cancer no time. I would like to know how you spent this seven years, have been able to walk, a lot of trouble, etc.. Greetings.
I think this is the only video of its kind to show a clinician explaining this rare and mysterious disease. I had breast cancer with my LEMS. Cancer cured 6 years ago but still have the LEMS.
I've had LEMS for almost five years. I was a smoker for years. I quit about ten years before the LEMS symptoms started. So far, no cancer has been detected. This is the first time I've heard any doctor say that if you were a smoker and you develop LEMS, you will definitely find that you have small cell lung cancer. I agree that it's important to provide patients with a realistic prognosis but such a categorical statement as this leaves a person with no hope. If I could, I'd thank the good doctor for such a clear explanation of this disorder. I learned a a lot that I didn't understand before. Nonetheless, I am so very grateful that it was not this doctor who first explained to me my diagnosis.
Dave: Glad to hear you're still getting along well on that front at least. I was getting PET scans every six months for the first couple of years and then CT scans. I just cleared the five year mark and so far, so good. How do the vitamins work for you? Are the effective? I take vitamin B1 and D3 but at much lower doses than you.Do you take doctor prescribed medication as well? The medication that works for me is 3,4 DAP (Diaminopyrodine). I also take Mestinon and it helps some but not a lot. You may already know this but there is a LEMS Facebook group as well as a Yahoo Group. I follow the Facebook group and find it excellent. Best of luck to you! - Hector
He did NOT say you will *definitely* have small cell lung cancer. He said there are TWO types... with only one type being related to cancer.
@@nateregnier poderá ser hereditário, como eu que herdei da minha mãe ...
Thank you needed to understand this for my pathophys class.
I was diagnosed with this almost a month ago.
I'm shocked at how quickly this rolled over me.
I'm in rehab as I write this. I have no clue what comes next in my life with this.
The person in the video is Professor Newsom-Davies.
Hi Shannon, my name is John, I am Spanish and I have LEMS dianosticado one for a year, autoimmune and cancer no time. I would like to know how you spent this seven years, have been able to walk, a lot of trouble, etc..
Greetings.
Who is the physician?
What is the name (and qualifications/specialization) of this physician?
Other than "John" of course
My mom has this disease