Living with chronic migraines

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  • Опубліковано 30 вер 2024
  • A "quick" little rant about living with migraines. How ironic is it that my name is in migraine.
    Migraine buddy is available on ios/ and android

КОМЕНТАРІ • 83

  • @emptyblank099a
    @emptyblank099a 2 роки тому +14

    Everyone has answer but no cure.

  • @angellawilliams-stokes7537
    @angellawilliams-stokes7537 2 роки тому +10

    So much sympathy.. and it gets so old telling loved ones “I have another migraine.” My triggers are seemingly endless.

  • @karinafinearty9769
    @karinafinearty9769 2 місяці тому +1

    I feel your pain, literally. 30 years if my lfe. 😢

  • @jflsdknf
    @jflsdknf 7 місяців тому

    Headaches do not run in my family, I only get them very very rarely if I happen to sleep wrong with my neck in a weird position and it's usually associated with neck pain from sleeping wrong too...if you're getting headaches every single day of your life I'd think something in your physical makeup is misaligned or not functioning correctly. Have you tried chiropractors, osteopaths or functional medicine? I hope you find some answers.

  • @daniquafarmer1078
    @daniquafarmer1078 3 роки тому +12

    Crippling! And migraine so bad in the ER you wanna shoot yourself I can relate! I try to tell people they don’t understand. I’m far from suicidal but my migraines are so bad I sometimes just rather not be awake! Mine get so bad I throw up and I can’t do anything. I’ve noticed one thing! That trigger my migraines is clenching my teeth down bitting down on my jaw. It’s helped me to cautiously not bite down due to the stress of my head aches and the anxiety I get from worrying it will turn into a migraine.

    • @spontaneousgiraffe
      @spontaneousgiraffe  3 роки тому +2

      It's something I find alot of people shrug off saying "I get headaches sometimes too just take advil" I wish it was that easy haha. That's interesting to hear actually that's a new one to me I think. Hopefully they've eased up on you lately and you have some sort of relief!

    • @thesongdish45
      @thesongdish45 6 місяців тому

      😮😮

  • @MrOrangeonion
    @MrOrangeonion 8 місяців тому

    I have something of a constant headache, is it related to back problems at all or just me?

  • @psyfertech
    @psyfertech 10 місяців тому +1

    dang man exactly the same as me been popping ibuprofen every single day of my life since i was probably 6 years old im really hoping it doesnt destroy my kidneys im 31 now. Mine happen the same as yours it sounds like, usually behind my eyes or temples and when it goes full blown migraine it feels like its deep in my brain and any sudden movement hurts or head rush when i get up feels excruciating. I take imitrex for when they turn into a migraine, theyve put me on metoprolol since my blood pressure is usually elevated which seems to reduce the frequency of an actual migraine. I am trying the cgrp drugs now hoping they will help.
    People dont realize how lucky they are to not have to deal with this shit.
    Most of the people i know only get headaches if they dont have caffiene or something and they drink an energy drink and it gets rid of it.... lucky assholes
    You find anytyhing that helps since this vid?

    • @spontaneousgiraffe
      @spontaneousgiraffe  10 місяців тому +1

      Na man I've tried alot and nothing has really made a big difference. I'm now trying a mixture of antidepressants, and an anti-epileptics for a few weeks to see if they make a difference. I was on the emgality needle, but it hurts like hell and didn't make a big enough difference to justify $1000 a month.

    • @psyfertech
      @psyfertech 10 місяців тому

      @@spontaneousgiraffe ahh man yea i actually tried emgality as well and same didnt really make much difference, and yea the auto injectors remind me of the imitrex injectors hurts so bad it jams it all in at once but yepp they are stupid expensive, I think ive tried topimax which i believe is an anti-epilieptic and it made me feel really like foggy headed and groggy and stopped after that because i already feel like that some days anyway, i started taking fish oil pills and forcing myself to take less ibuprofen which is tough and ive been getting more exercise and surprisingly that helps a little but i still get a daily headache just not as hard to beat it down as it usually is.

  • @thespook1482
    @thespook1482 3 роки тому +8

    My migraines get so bad I thought I was having a stroke. Everyone thinks I’m drunk when they see me. I get so confused and disoriented. I have so much trouble speaking. When I hear people talk it’s kind of like I can feel their voice. My head doesn’t usually hurt with the migraine, but sometimes it does. The light sensitivity never goes away now. I can’t drive at night. I’m barely working anymore. I have more bad days than good days now. I’m at the end of my rope and i feel like my life has been ruined.

    • @spontaneousgiraffe
      @spontaneousgiraffe  3 роки тому

      This might be a ridiculous question but have you gone to doctors yet to seek assistance? That's really interesting to me that pain is usually minimal for you and your side effects are impacting you that much. How long have you had these migraines for??

    • @thespook1482
      @thespook1482 3 роки тому

      @@spontaneousgiraffe I have been to the doctor, I go see another neurologist tomorrow. This has been happening for 2 years now and it’s only getting worse.

    • @spontaneousgiraffe
      @spontaneousgiraffe  3 роки тому

      @@thespook1482 hopefully they have some good news for you! unfortunately i can tell you its going to be a long drawn out process, atleast up here in Canada it is. You gotta stay strong though and try to find something that eases the side effects such as mint oils or certain foods if possible. I was on a waiting list for 4 years up here to even see a migraine specialist but since then i have seen some improvements. It's a trial and error sort of deal when it comes to migraines and headaches but eventually you will find something that will help you out! I hope you find some good news at your appointment though i couldn't imagine what you're going through and I'm sorry.

    • @thespook1482
      @thespook1482 3 роки тому

      @@spontaneousgiraffe luckily I don’t have to wait 4 years, but it’s still long times between appointments, usually 4 months. I’m a veteran so I go to the veteran hospital in the USA. They actually have some of the best neurologists on the planet because they deal with lots of brain trauma. They suggested I wear blue light blocking glasses and increased the dosage of rizatriptan and gave me some new medicine to take everyday. I’m not too optimistic about stopping the migraines, but I’m learning to live with it.

    • @petradegroot3578
      @petradegroot3578 Рік тому

      I have photochromic glasses, when I’m inside or when it’s dark the are transparent but with sunlight or snow they are sunglasses. It wasn’t cheap but it works really well for me (maybe something for you as well?) if I have to drive in the dark I use yellow tinted glasses, it makes the lights las harsh on your eyes but you do have still a lot of contrast.
      Apologies for grammar or spelling errors, I have a light migraine and English isn’t my first languages

  • @BeingBrandy
    @BeingBrandy 8 місяців тому

    Have you tried 5HTP?

  • @ilqar887
    @ilqar887 Рік тому

    I have faceache and head ache it stars when i eat or speak o think

  • @MrOrangeonion
    @MrOrangeonion 8 місяців тому

    I mean, i know people in the comments give yolo replies, but i bet theres someone that knows the cure.
    Just hopefully they drop it in the comments.

    • @spontaneousgiraffe
      @spontaneousgiraffe  8 місяців тому +1

      The one thing I have learned throughout this journey and dealing with migraines for all these years it's, there may not be any specific reason. You might be lucky and have triggers, or you might just get them for no reason. Not much we can do except try any and everything possible to hopefully find something that helps. I'd suggest looking for a migraine specialist local to you, but some people are just unlucky, and we will have to deal with the pain.

  • @gingerwilliams7340
    @gingerwilliams7340 2 роки тому +4

    Thank you for sharing. I’ve had daily migraines/headaches since I was 4, the severe days i fantasize about anyway I can make the pain stop; but, I love my life and I desperately cling to that to get through. I’ve got my first neurology appointment in October after years of small town doctors thinking my pain was psychological. It was incredibly helpful to hear I’m not alone in the toll daily migraines take on your mental well-being.

  • @tonigarcia3430
    @tonigarcia3430 8 місяців тому

    How are you doing now man. I'm in the same position

    • @spontaneousgiraffe
      @spontaneousgiraffe  8 місяців тому

      Hey man sorry for the late response! I was on the Emgality needle for a couple years which made a difference, unfortunately the bridging program ended as it was finally recognized up here in Canada. That being said almost no health plan covers it so I would be paying almost $700 a month. So I'm no longer on it and I'm relying on other medications that help but don't quite cut it. The headaches are better than before I saw a doctor, but lately they have been unrelenting and very frustrating. Still ongoing and looking for solutions but I'm still thankful as it could always be worse and I consider myself very fortunate.

  • @lisamiller6848
    @lisamiller6848 Рік тому +2

    And I totally get that. You don't want to know the names of them. I got tired and knowing the names of s*** that didn't work for me.... I just quit doing it after about five different prescriptions. Not to mention what kind of s*** is going to do to me. Besides the migraines, I mean not to mention you're taking s*** and you're getting rebound headaches from it screw it. It's going to give me cancer of my liver or something down the road. Other stuff are out the f****** migraines you have other ailments from the medications. I'll just least I know how to handle my migraines

    • @spontaneousgiraffe
      @spontaneousgiraffe  Рік тому +2

      Thank you so much for sharing all of this! It is quite tiring and gets repetitive going through 3 month cycles of trying something new, it not working, and starting all over again with seemingly no progress. It does help knowing I'm not alone in all of this and that migraines impact more than i would have ever guessed but still at the end of the day it is just plain frustrating.

    • @lisamiller6848
      @lisamiller6848 Рік тому

      @@spontaneousgiraffe So I ended up having the flu flew like stomach bug flu for 24 hours and I had been wanting to quit drinking coffee to see if that was the problem because one of my van lifers that I watch gets migraines and she was saying about mold being in coffees. I'll coffees and she her neighbors had a coffee but she didn't want to drink it because she would have a migraine because she was waiting for her coffee to come in the mail. You can order coffee that is mold free. It costs a little more.... So it's been researching it and been afraid to start. But when I got the flu and I couldn't have coffee for a few days, I already went through the migraine the withdrawal migraine... So so I decided in that moment I am almost 3 weeks today. 3 weeks ago was the last cup of coffee I had and I'm still very tired. Sluggish it's rough not having coffee when other people in the house drink it and I smell it but I haven't had a migraine in 3 weeks which is huge for me like huge!

    • @lisamiller6848
      @lisamiller6848 Рік тому

      @@spontaneousgiraffe though I'm not saying that I will never have a migraine again. However, I'm saying my coffee is been contributing huge, especially since we've had such a wet winter and the mold in the house is probably bad on top of drinking mold... Yeah

  • @diamondL67
    @diamondL67 3 роки тому +6

    I understand this 100%, I have to take Asprin every day to stop my migraines from happening. It gets so bad that I have numbness and dizziness. So daily functions are super difficult 😞. I’ve been trying to see a neurologist but I can’t get an appointment until August.

    • @spontaneousgiraffe
      @spontaneousgiraffe  3 роки тому +2

      Atleast you finally got an appointment made! It's going to be a long process and most of it was trial and error for me which is very frustrating. I'm now on an Emgality needle which honestly doesn't do too much for me but I've heard good things from other migraine sufferers so that might be worth mentioning! Stay strong though once you see a neurologist hopefully you can get some relief!

  • @maxamillion5355
    @maxamillion5355 Рік тому +3

    You're story is EXACTLY the same as mine word for word. The common headaches at early age, the bad memory, everyone having an answer for it, the learning to accept it as part of life. I understand man. I even try to excersise to help it.

  • @corsothehealer
    @corsothehealer Рік тому +1

    Advil is dangerous for people with ulcers as it may cause internal bleeding of the ulcer and lead to anemia. And not longer than two weeks to anyone. It didn’t help me, but Analgin and Citromon did, similar to paracetamol; but only triptans can stop mine migraine attack. Did you try triptans?
    Also, since getting Lidocaine injections at home under the skin, it was huge relief as it nums the migraine site while the medicine will kick in, especially for women planning pregnancy when most of medications are advised against, Lidocaine as a local analgetics is okay to use except week 5 and 6, it has been a lifesaver! I can’t complain anymore because now I can manage. I spent years in pain and self research though before I found the answers! Before finding the solutions I thought I am the only one suffering and that there is no cure and therefore I was hopeless about my life

  • @JuleztheHai
    @JuleztheHai 2 роки тому +3

    Intake of painkillers such as advil more than 10-15 days per month are known to lead to medication-overuse-headache thus even increasing the days of headaches👍 Hope you had the appointment at the specialist and are feeling better today. I am suffering from chronic migraine aswell, what a hellride.

  • @jenniferornduff7835
    @jenniferornduff7835 2 роки тому +1

    God has lead me to a low inflammation diet. I am vegan and have found many common foods cause inflammation. Cane sugar, dairy, I can not eat gluten due to causing swelling, vegetable oil, margarine, sodium casinate...

  • @alexandrasylvester3206
    @alexandrasylvester3206 3 роки тому +5

    Thank you for making this video. It helps to see that there are others out there who suffer and keep pushing through life.

  • @daniels3401
    @daniels3401 2 роки тому +1

    man i am right there with you. A headache everyday going on 5 years and no end in sight. Fuuuuck thisssss currrrrseeeee. Holy fuck do i feel you on your like jaded and sarcastic attitude so much lol. Dealing with shitty medical systems and bullshit medications that just pile on the side effects and barely help the real problem at all just leaves you in a place where you're just kinda in such disbelief of the bullshit you can't help but just kind of laugh at it in this sorta seething way lol. You have excellent taste my man

  • @nataliechristensen420
    @nataliechristensen420 2 роки тому +2

    I have chronic migraines. I am 19 and they used to be episodic but in the last two years they have become chronic. My mom always told me not to worry about it when I was younger. Well they got worse. I’ve been trying to find my triggers but not a whole lot have been found. I know Strobe likes is a big one. The first migraine medication came out in 2018. No one else in my family has migraines and it’s frustrating. I have a service dog because I have really bad physical auras that can put me in danger If im not safe.

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому

      Have you noticed any improvements with the migraine medications? I know i personally don't have many triggers and just wake up with them, which really doesn't help with preventing them and is almost a sick joke. I Imagine that is similar to your situation.

    • @nataliechristensen420
      @nataliechristensen420 2 роки тому

      @@spontaneousgiraffe I’ve gone through multiple medications in the last year and none of them have worked. The Qulipta I was prescribed did absolutely nothing so I stopped taking it the only medication that has done anything is the ubrelvy but unfortunately it is only an emergency med.
      My migraines are random so I could wake up with them or I could be out for a walk or hike and get one. It got to the point where I wasn’t safe living alone so I got a service dog in order to tell me before they come so I can be safe.

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому

      @@nataliechristensen420 wow i can't even imagine I'm sorry. Keep at it though hopefully you can find some sort of relief, or at the very least still live an enjoyable life as close to normal as possible. I've never even heard of a service dog for migraines, that's really interesting to me if I'm honest, how reliable is the service dog? if you don't mind me asking of course.

    • @nataliechristensen420
      @nataliechristensen420 2 роки тому

      @@spontaneousgiraffe she’s still in training but I would say on a scale of 10 she’s about a 7 out of 10. She smells the hormonal and physiological changes that I don’t know. Kind of just like a diabetic where a dog can smell the highs and lows. Migraine alert isn’t really talked about. But it is definitely possible if you get the right dog

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому +1

      @@nataliechristensen420 That's really interesting to me I had no idea migraine service dogs existed, I hope you can find some relief in the near future. If possible please keep me updated on your migraine journey! I'd be very curious if you find something that is really effective against your migraine attacks.

  • @latoyatea7333
    @latoyatea7333 3 роки тому +2

    I also get chronic migraines. Mine are severe to the point I can’t move, because I will get extremely dizzy. Some days my whole body is in pain due to the migraine and I end up vomiting. No over the counter medications help me anymore. I take prescription Rizatriptan 10mg. It helps sometimes and other times it doesn’t. This weekend it did not help. I had a severe migraine for 2 days and had to miss out on work.
    My advice to you is to analyze everything. Triggers are all around us as you know. Triggers I did not realize for me was my hair products. Be careful in the ingredients in your shampoo,conditioners,body lotion,etc. MSG is a huge migraine trigger for me. Chick-fil-A uses MSG in their fries and chicken sandwiches (not the grilled one). Applying peppermint oil surprisingly helps so now I keep some handy. Sleeping with a humidifier on also cut my migraine days down. Drinking peppermint tea,chamomile tea, and green tea also helped lower my migraine days. I still get a migraine once a week, but it’s a little better than my previous everyday ones. Wish things were better for you. Wish it was a better solution for all us migraine sufferers.

  • @stephanie6858
    @stephanie6858 5 років тому +3

    I get your frustration, I've had them my whole life too. Migraines are often genetic, lifestyle and environment changes will help but not fix your migraines, finding the right med is the key. Dont give up.

  • @CriText
    @CriText 2 роки тому +1

    Thank you so much dude!

  • @TheQuintos
    @TheQuintos 4 роки тому +3

    Thank you for sharing. You are not alone and your video helps others know they are not alone either. My husband was in the e.r. 2xs this month for severe migraines. Headaches aren't gone. He's had them since he was younger as well. No answers...he is now experiencing zaps. Do you experience those as well?

    • @spontaneousgiraffe
      @spontaneousgiraffe  4 роки тому

      Ive always had little brain shakes just randomly and I've always tossed that up as side effects form the concussions. But i do get zaps during migraines sometimes although its pretty rare. Its a very unique feeling and would almost be interesting if the pain wasn't crippling. Has your husband found anything that helps ease the pain or side effects??

    • @TheQuintos
      @TheQuintos 4 роки тому

      @@spontaneousgiraffe Yeah the zaps are somewhat new in the last year. We have found that espresso shots are hit or miss.. but when they work it's almost within an hour. We have a french press and he takes the shot with no creamer or sugar. But like I said it's not 100% effective every time. We are also doing acupuncture once a week and he gets little to some relief (better than nothing). The neurologist recommended some supplements to try the natural route first before putting him on heavy meds. Interestingly they are the same vitamins recommended by a holistic doctor that we saw last year. So we will give it a try.

    • @spontaneousgiraffe
      @spontaneousgiraffe  4 роки тому

      @@TheQuintos That would be pretty impressive if those vitamins do help, unfortunately it seems like trial and error is the best plan of action with headaches. I'd be very curious to know if they do work so if possible let me know if you guys make any progress!

    • @TheQuintos
      @TheQuintos 4 роки тому

      @@spontaneousgiraffe it's ALWAYS trial and error but for sure we will. Please let us know if you find anything as well. Praying that God gives you strength.

  • @lisamiller6848
    @lisamiller6848 Рік тому +1

    U are writing my story... 46 years... I'm so glad I heard your Botox story. Not doing it. I quit taking Tylenol Advil all shit unless needing it...last resort.... no prescriptions.... either.... They make me so sick. And sometimes my headaches go away and sometimes I don't. So I just quit taking them. Quit getting prescriptions for them ... . Spend hours taking showers. Putting cold rice bags on my head from the freezer using peppermint using Vicks steaming my face with peppermint leaves. Soaking my body in an Epsom salt bath spraying my body with vinegar. SLEEP ... WATER... SO ON.

  • @stellaluv3737
    @stellaluv3737 2 роки тому +1

    I hear you my friend... its a nightmare.. praying for a cure🤍

  • @spiritualmagpie
    @spiritualmagpie Рік тому

    Hi ..your story is just the same as mine ..exactly to be honest I'm in the uk ..it ruins my life only thing that helps is sumatriptan..without that I'd not be here either ..they are restricted but everything you are describing is me ..every dam day popping pills just to live some kind of life ..like you no answers just people telling me to try this take that drink more eat more sleep more ..it doesn't work nothing works..I'm on my knees and you have my sympathy..mine started at 11 I'm now 56 and there worse..many blessings to you 😢 I cant even laugh without getting a migraine .

  • @petradegroot3578
    @petradegroot3578 Рік тому

    My first languages isn’t English and I have a light migraine so apologies for any grammar mistakes ect.
    I’ve had headaches for years almost daily but since I got a burn-out (I think about 4 years ago now..) I have migraines al day every day. I already had antidepressants since I was 14 (burn-out at 19-20) so those don’t do much for me. I had migraine medication in pill form (propanol), injections (Ajovy and emgality: both €500,- a month. Luckily my insouciance paid it) and I have 2 piercings in my ear in the end of a nerve (nervus vagus). It a worked for a little while but I’m building resistant or something because after a while it gets worse again.
    I’m sensitive to light, smell, taste, sound, temperature, sleep or lack of sleep and the amount of liquid I consume. I’ve glasses that are photochromatic, it adapts to light: I highly recommend those. I’m going to try the app you mentioned, thank you for this video👍🏼

  • @nicholaswills1574
    @nicholaswills1574 Рік тому

    have you asked about migraine shots called egality I have used it and it's really helped also low dose beta blockers help also unless you have bad Ashma

  • @davidma8597
    @davidma8597 Рік тому

    Raine, can you kindly provide a little more info about this $10k injection you mentioned in the video? Thx.

  • @north.studios
    @north.studios 2 роки тому

    12 years of chronic migraines guys, just turned 18 not to long ago and I think I'm gonna sign off. I'm aware life has more to offer and I've heard it all. Please don't copy what I'm about to do. GOD Loves you❤️

    • @north.studios
      @north.studios 2 роки тому

      My life has been ruined since I was a young child, I've completely forgotten whats it's even like to be what I call "sober" (a non-migraine day) I always feel stupid drunk and constantly am hallucinating things.

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому +1

      @@north.studios Hey man shoot me a message on Instagram and let's talk, Any time at all I'm all ears for ya. Instagram (Lutz.skunkworks) or Facebook just find me and message me!

  • @Valentino016
    @Valentino016 2 роки тому

    My family has no medical history. The fact I have to deal with this everyday only to get told that this is caused by genetics kinda hurts. I know its not just genetics its probably something else but they just dont tell me. I cant do my work I cant do anything. I dont even know how to feel human again I dont know whats going on in my brain. I drink a lot of water everyday, I exercise, I avoid triggers, But I still get told to do those things even tho im doing them this disorder is horrible

  • @anielaperron2486
    @anielaperron2486 2 роки тому

    I have chronic migraines and live in Canada as well. As a health care worker they can make my shifts at the hospital hard. I have been getting Botox for my migraines for three years. I don’t find it hurts more then a little small sting, and there is no recovery time. I don’t feel crappy for days or anything like that. The injection sites are tender for 24 hours but I would take the pain of the botox for the relief! Food for though, good luck on your migraine journey, I hope you find relief!

  • @jessicatomlinson1629
    @jessicatomlinson1629 Рік тому

    I have severe chronic migraine as well.. my heart goes out to you in the pain you are experiencing.. you have probably already tried this but two things that have helped me to have severe migraines less often was cutting out coffee(or any drinks high in caffeine) and all fermented food and drinks.. I also used to take insane amounts of advil all the time..but then I heard that doing that caused more migraines... now I just take it for the most severe ones where you are at the absolute end of your pain limit.. I'll be praying for you!

  • @missshaunab9225
    @missshaunab9225 2 роки тому

    My memory is garbage from several concussions and 20 years of migraines they never cared about because I was “too young” to be in that amount of pain so frequently. Ps. No one believes that my memory suffers because of these and that is a really hard pill to swallow probably one of the hardest with the litany of medication‘s that we all try :( I hate my head. I wish they would stop…life is passing me by.
    I’m sorry that you suffer with these what is the name of the $10,000 injection? And what medicines are you on for your regular maintenance and your rescue out of curiosity

  • @claudiaaa-15
    @claudiaaa-15 2 роки тому

    Wow I could relate! I’v had Aura Migraines for 7 years and when I don’t get migraines I have a constant headache it sucks you just have to live with it

  • @xindigochildx
    @xindigochildx 2 роки тому

    Sending you love 🌸 so sorry you have to go through this

  • @londonbridges9739
    @londonbridges9739 3 роки тому

    Hi, there have you tried Topiramate. It has changed my life!!!!! I used to have a migraine every day as well and now I only get one from rain and certain foods. I hope that you try this.💘 London

    • @spontaneousgiraffe
      @spontaneousgiraffe  3 роки тому +1

      I'll definitely give it a shot and look into it, unfortunately when i first started seeing my migraine specialist a few years ago the only medications approved for use in Canada for migraines were antidepressants and anti epileptic medications. the Emgality needle was the first of its kind release just over a year ago. I'll definitely mention it though anything that helps is worth it!

  • @rebeccaslater1398
    @rebeccaslater1398 2 роки тому

    You made this totally real . Just how it is . The unseen monster lurking and coming out to feast and then lurking for the next meal . Thankyou for painting a genuine picture of the reality of this disabling condition. You helped me and held a place for me to identify with. Nothing works is the reality . You are a warrior .

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому

      Wow thank you for those powerful words, that is absolutely the best way to describe it! It's sad how much is behind that sentence "Nothing works is the reality". I hope you have some way of easing the pain and dealing with your headaches and hopefully some day we can live a normal life! I really appreciate you commenting and sharing your thoughts. Stay strong!

    • @rebeccaslater1398
      @rebeccaslater1398 2 роки тому

      Hi Raine, very kind of you to reply. Nobody , nobody can fathom the depth of despair you have to deal with in a daily basis and you still get up to fight another day . You are resilient and so strong . People dont understand the capacity as to how it effects every aspect of your life. It breaks relationships , jobs and even homes. I really am pleased to watch your video because it resonates with me so much . The only realist migraine video I've seen . Thankyou for exposing the vulnerability migraine brings . Like you , I am an introvert- shaped by migraine . I live in the uk and fortunate enough I had the Ajovy and Erebunab injection- they had no effect on chronic migraine and awful side effects . One day I believe a cure will happen. I really hope it does for you. Life on hold - until then it feels. Thankyou so much for your wishes Raine and again for the great video .

  • @Xrex-dp8fg
    @Xrex-dp8fg 4 роки тому +2

    Try taking ibuprofen or Advil it really helped me out it hopefully it will help you out to , i take around 400mg works for me but you could take more or less depending on it makes you feel

    • @spontaneousgiraffe
      @spontaneousgiraffe  4 роки тому +1

      Advil is the only thing I've found that actually works, unfortunately I was taking it over 4 times a day every single day.

  • @trmp9923
    @trmp9923 2 роки тому

    Raine is a fairly common name for a dude in Finland... Do you have insta

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому

      I do! Should be Lutz.skunkworks. Also that's actually really interesting to know, for 27 years I've never heard anyone or anywhere having Raine as a common name!

  • @littleleobabe
    @littleleobabe 2 роки тому

    I’ve been suffering from daily headaches that never stop too: thank you for sharing your experience! I see this video is from 2 years ago, I hope are seeing some improvements and are doing well ❤️

    • @spontaneousgiraffe
      @spontaneousgiraffe  2 роки тому +1

      Thank you for the support and I appreciate that! I'm sorry to hear that but hopefully you can find something that helps ease your headaches and migraines as well!

  • @alexismattox6952
    @alexismattox6952 2 роки тому

    I just got diagnosed with it , it’s horrible I’ve had it for years and I have vertigo so bad with it but the neurologist prescribed me medicine but I haven’t been able to drive or do anything I’m so depressed