I am the mum of libby and I have finally got round to reading all your comments, I still have not watched the program as I live with this every day with libby. Libby is doing amazing even after the pandemic, we did isolate libby for 15 months but this had a big impact on her mental health and anxiety, libby is under some wonderful doctors in London, Leeds and Hull and is receiving the best treatment, Libby has just completed sixth form and is hoping to pass her exams with flying colours, most of it in isolation and home learning, we did get libby a service dog named Bailey, he's very spoilt and he knows when something is wrong. We looked at moving nearer to a hospital but Libby has always been a strong character and wanted to live her life the way she wanted too and we as family gave libby our full backing, Libby is looking at going in to health care and is looking forward to the future, thank you once again for all your lovely comments, much love karen and libby xx
I’m glad she is doing ok. I’ve had anaphylaxis a few times myself which is no fun at all. My first I was working as a paramedic at a festival or overtime. I felt short of breath and felt my tongue swelling. I was told it swelled to double the size. My co workers saved my life that day with emergency care. The other issue is when I get a certain IV medication for anemia. I have to have meds prior to try to not react to it. I would do 3 or 4 rounds of that drug every couple of weeks and usually 1 out of 4 I reacted to even with pre meds. It’s awful and scary. Glad she is doing well and they have this figured out.
In the US here. My hospital is one of the highest charging in the nation and we are in the midwest. A hospital ride alone is between 8-10k. With insurance, and I have "great" insurance it's about 4-5k. Quite sad really. Most people have to decide whether to die or go broke.
Albinya_009 I did that once and it’s terrible, so don’t wish that you were there just so that you can say that you seen it happen. It’s extremely embarrassing and not funny.
Poor girl.... no frequent flyer miles for her. At least the different crews are aware, it’s probably turned into “oh bollocks, it’s Libby... best hurry”. The best thing is, the more they document things, the more information they can pass to the specialists. Chin up sweetie..... Britain’s best got ya covered 👍🏼
Poor girl. She would benefit from a service dog (if she’s not allergic) the dog would be a medical alert and response and allergen detection dog. The dog could be trained to a detect different scents she’s allergic to, the dog could also wear a tag and alert other people when she’s in distress so she can go to school and leave her house alone.
Theoretically that would be good. But they mentioned it’s idiopathic which means they don’t know what the trigger was, and it sounds like she has a LOT of triggers, so while a service dog might not be a bad idea it might not be feasible.
Since they know she is allergic to some airborne issues, she's probably allergic to dog and cat fur. Even if she had a service dog like a poodle or yorkie (which are more hypoallergenic), their coats could still trap things like dust and pollen and expose her to them.
Bless her I know how she feels and it’s not nice. I suffered from idiopathic anaphylaxis and angiodema and was constantly in A&E. one day I was in twice! I was eventually diagnosed with urticarial vasculitis and now my condition is controlled much better.
Silentgirl Tears, Idiopathic anaphylaxis doesn't exist. There's always a trigger- but allergists are quick to say "You can't get anaphylaxis from that...". 😂 And DEFINITELY look up MCAS...
I'm only allergic to a pain killer that you give for major pain (only found out last week because I had surgery and needed the pain killer) I started puking
I feel for her. My 9 year old son has 10 allergies. And he has ended up at hospital more times then I can count. Each time is frightening and I nearly lost him once. Im sorry that Libby and her mum has to go through this.
I’ve only ever gone into one anaphylactic shock in my life, it was an allergy to a medication. I was in A&E in a cubicle as i’d been unwell, I didn’t know I was having one but my hands.. oooh, they were itching so bad. I’ve had eczema all my life & the itching I felt on my hands was a hundred times worse. I just kept scratching & scratching, & when I looked down my hands were four times the size they should be! I kept calling for a nurse who proceeded to tell me that they were busy with more serious patients.. I won’t ever forget that, I felt so frightened because I started feeling breathless. My mum walked into the cubicle 5 minutes later, took one look at my pale face, I showed her my hands & she shouted for a nurse who took one look at me & my tiny cubicle suddenly filled up with a doctor & 3 nurses. It takes over so quickly, that’s the frightening bit. My tongue was swollen, my airways were closing up so they put me on oxygen, they managed to get an IV in & gave me 2 shots of adrenaline over a period of 10 minutes. I can’t imagine what this poor young girl must go through every week. I hope they find out what’s really wrong & can help her manage it to the best of her ability, bless her x
@@kim98677 yeah I used to intern at a hospital, sad to say that literally majority of the nurses weren't kind. I worked in the ICU at one point and there was an older gentleman in pretty serious condition. I happened to be outside his room and he started making this noise. He couldn't talk but I figured out he was telling me he couldn't breathe. I ran to get some nurses and they said oh him he's always lying. I'm thinking no I could see him turning blue. I go to some different nurses and they say oh we'll be there in a minute but never come I go back and the guy is becoming more panicked and I'm freaking out. So I go to look for a different group of nurses and they say the same thing. So my stubborn self literally walked across the ward to the cardiac recovery and got a nurse from there they come back with me and they figured out that the dudes breathing thing actually did come out and he wasn't lying. Then all of the nurses wanna act all suprised and like they actually care I lost alot of respect for some of them. It's just crazy...never realized a nurse could care so little about their patient.
Irish Eyes S/he didn’t say ‘all’ nurses, they were merely recounting a story from their own experience working with them. That’s not to say all nurses are terrible, but good nurses are becoming few & far between these days which shouldn’t be the case. A nurse SHOULD do all what you’ve mentioned, because that’s what being passionate about nursing is all about! You should care enough to want to fight for your patients, rather than having a non caring attitude. Some people say it’s because nurses are overworked & underpaid - which I won’t dispute, but pay shouldn’t be the driving force behind motivating someone to care for patients, you (generalising the ‘you’, not ‘you’ specifically!) should be in the job because of its caring profession. If you don’t love your job, don’t be in it, because Lawd knows I’ve left jobs I couldn’t stand & that deeply affected my mental wellbeing. My mother was a carer & worked briefly on wards many years ago, & the nurses back then were very different to now because you had matrons. Uniforms were pressed & ironed, hats were worn, sheets on beds didn’t have a crease in them, all wheels turned inwards on beds, nurses cared because it was a life long commitment, it was their home from home, they trained hard on the job, no coffee or drinks or gossiping (which I’ve witnessed) at the desks.. it was all very strict but equally all very professional & the girls / boys were like siblings. Dynamics have changed, society has changed, our NHS is under a lot more strain, but I don’t believe it’s ever acceptable to take that out on those most vulnerable. Having said all of the above.. thank you very much for your service & ongoing care for the community. I have, despite having met unpleasant nurses, equally met some absolutely amazing - salt of the earth - ones too, & individuals like you deserve so much more gratitude & appreciation that I know you don’t always receive. Please know that even if someone is speaking of poor experiences of nurses, it isn’t directly attacking you, but that maybe it’s highlighting changes need to occur somewhere along the line so that we can all have nurses like you. All the best x
I’ve had one of these reactions before, my whole face swelled up, I had rashes all over my body and I couldn’t breathe properly it was horrible, poor lass
hauha so you are saying that then. Regulate what people eat in confined spaces? What is with you lot? Stop telling people what they can and can’t do ffs. Fucking nanny shit
@hauha you're advocating telling people what they can and can't eat because someone on the rare chance around you might be allergic to it. That's nanny shit my friend. And "watch This Morning". Nah I'd rather not have my brain melt with a shitty day time talk show
this happened at our school. the hospital is right next to us, though, like literally an alleyway separates school and hospital, so the paramedics got there fast
This sounds like what I have. I have mast cell activation syndrome. And I can go anyphylactic just randomly. The only triggers we know of is when my pain increases or trauma to my body and it can happen just randomly as well
I was thinking MCAS because it can cause heart problems and my friend is allergic to all foods. She is fed via nj tube but she is allergic to the normal formula and so she is on an experimental one.
Having disabilities that leave me at risk of falling, it is difficult having to have someone with you when you go out or when you take a shower, etc. But there are ways round not being alone when you pee or shower. You can have a panic button to press so you can have privacy in the bathroom, but still call for help if you can't shout. But it is frustrating & that's worse for teenagers who are just beginning to need their space more. I'm blessed that in our house, all I have to do is leave the bathroom door unlocked because our lounge is right next to the bathroom with the shower. Then my Mum will sit in the lounge while I shower. I also have allergies, which have gotten worse over time. My cat allergy is the only one that affects my throat & makes it itch, but that could change at any time. My poor niece who's about to turn three has just been issued with her first epipen. We're hoping that she will be one of the majority of children who grow out of their allergies. Her worst allergy is eggs. She will throw up & get hives on the skin around her mouth. If she gets sick, her allergic reactions get more frequent & severe. During her last virus she even had an episode where her mouth started to feel weird. Poor little munchkin. Allergies are the worst.
I been to hospital from school after getting a nasty head injury which required rapid response, half the school was watching and most of the school was shut off due to the crowding. Not pleasent at all
I have a complex neurological condition and last month at college I had ambulance called 4 times and was hospitalised 3 times from the 5th-12th so in literally one week, I’m online now until they have a better plan to deal with stuff, I know how it feels to be in and out of hospital every other day
Not sure if Libbys family reads the comments or not, but while my condition wasnt quite as severe, I did have constant allergic responses without any “direct cause”. (Allergy testing showed I was allergic to literally everything in the area so we weren’t sure which was the culprit.) I wound up moving 2000+ miles away to a different climate (desert) and have been gone over half a decade and have not had a SINGLE issue since moving (except for when we flew “home” to see my family). Im not a doctor but it’s possible there may be something in the area that’s simply unavoidable. For me a simple move was life changing. Hopefully whats causing the issue for this girl gets solved but if not that may be a hail mary thing to try (or prolonged vacation in another climate with different flora and fauna to see if the problem remains). Best of luck and I truly hope you get well soon Libby.
thank you for your comment, we do read the comments, I am libby mum and she is doing great, I have put an update at the top, I hope your feeling better too.
I have her condition in America and what I wouldn’t give to have free healthcare like she has. An epipen is about $600 here. Sometimes folks with our conditions can go through 6+ in one episode. It’s unreal. I have $2.5 million in medical debt in the US despite never being uninsured a day in my life.
I didn’t realise anaphylactic‘s can cause a chest rash. I have add reaction in the past myself. They can be quite unpredictable in what Way there going to swing. To whether or not it’s mild to severe. That’s one lesson I’ve definitely have learnt with the reactions
My best friend is allergic to all nuts, coconuts and most fruits :( i have almost triggered anaphylaxis multiple times because at the begining of our friendship i didnt know exactly what he was allergic to and would offer him foods that the minor ingredients are allergens for him and he would have minor reactions and stop eating or drinking whatever i gave him to check the ingredients and low and behold he would be allergic to something in it. It worries me so much sometimes and now I check the ingreedients on everything i share with him or eat around him.
I have this and had an attack when I was 7. It was my first time and was rushed to the ICU in hospital. The doctors said I had seconds to love. Thank all the doctors. Btw I was allergic to red ants. Edit: it was my first time so we didn’t have an epipen. Anyone saying they remembered are either liars or are exaggerating. The doctor explained that it is almost impossible to remember such a moment
I really need to go to the UK for a couple of months. I was diagnosed a couple of years ago with Histamine Intolerance. Ever since I left this doctor, no one says that its a real condition. I fo!!ow the diet, take the antihistamines and I'm fine. The only info there is, its from the UK.
Heyyy! Zebras in the house! Hope you all are doing well! Love from the USA! I run a blog on EDS and chronic illness, feel free to give it a visit! Trying to build a community off my blog. www.edspaoutreach.com
I also have hEDS and POTS (and possible MCAS but nothing diagnosed) but I'm really fortunate not to experience any serious symptoms. My heart goes out to everyone with these conditions and any other chronic illnesses
Anaphylaxis, I had it and spent a bit of time in hospital, I couldn't breathe for a few minutes and my heart almost stopped. Still here though but it's caused by consuming peanuts, this doesn't affect me anymore as I don't even eat them nor do I carry an EpiPen as I haven't had an allergic reaction in years.
I wonder if she has mass cell activation syndrome. We suspect my best friend has that and this is the definition "Idiopathic Mast Cell Activation Syndrome. MCAS is a condition in which the patient experiences repeated episodes of the symptoms of anaphylaxis - allergic symptoms such as hives, swelling, low blood pressure, difficulty breathing and severe diarrhea."....I am also anaphylaxis to several things...it's scary
Suffered myself from anaphylaxis I spent six weeks in the hospital getting well is a very scary thing I can't imagine a child having it I now myself have the epipens I was on life support for a while then they put a trach in I was on a feeding tube
I feel so sorry for her that she has to live like this. But here's a question if they don't know what's causing her condition why can't they keep her in the hospital and run tests on her so they can find what's causing this
Because there are a billion things it could be. They can test for the common few thousand, ie peanuts or gluten or various medications or substances like the glue from a bandaid, but they can't test for the tens of thousands of specific pollens, tens of thousands of other airborn mites/bugs/chemicals/etc. At the worst end of the spectrum, kids like this do end up in hospital in hermatic rooms for the rest of their lives exactly due to this.
Poor girl :( I wonder if she has MCAS. It seems like that could be what’s going on. Not that that diagnosis would really help much, but it does seem to fit
She should go on a fast to see if the symptoms go away and slowly add back foods and see if anything triggers her and eliminate it from her diet. Food is often overlooked for things like this as well as autoimmune responses.
I hope this poor girl is feeling better , it must be awful for her during this pandemic more so than others , I remember a similar situation but worse at my old school , we were in pe and one of the students had injured herself very badly and was unresponsive and I recall everyone panicking , but I was able to remain calm and I pointed and shouted “ you run into the lockers get your phone and call 999” then to another kid “you go to reception and inform them” then I sprinted up to maths and grabbed my maths teacher and explained what happened coz I knew he used to be a medic in the military , then when me and him arrived back to the young girl I shouted at the rest of the kids saying “ give her some space the last thing she needs is 20kids going woah and crowding her”
Reading the comments made me realize just now that my bf had a mild anaphylactic shock to a type of pepper. I saw the pics and thought it was just hives but I remembered about his swollen upper lip :(
I had to use my out of date one recently, it was a year out of date, I used my new one and got worse and then had to use my spare which was out of date. Luckily I have managed to get replacements but it’s so scary!
I feel so bad for her. My own heart condition is incurable as is my lung condition, I know what its like knowing you have an incurable disease. But unlike her...We know what causes my issues
It seems as though something in the school environment is triggering these reactions. With endless kids and people walking around the school and surfaces constantly being touched, if she has a strong allergic reaction to something and she touches the same surface, it’ll cause the reaction. I don’t think it’s a case of her being allergic to everything, it’s an unknown allergy which isn’t being diagnosed and prevented sufficiently. Something in her typical daily routine is causing this to happen.
I am the mum of libby and I have finally got round to reading all your comments, I still have not watched the program as I live with this every day with libby. Libby is doing amazing even after the pandemic, we did isolate libby for 15 months but this had a big impact on her mental health and anxiety, libby is under some wonderful doctors in London, Leeds and Hull and is receiving the best treatment, Libby has just completed sixth form and is hoping to pass her exams with flying colours, most of it in isolation and home learning, we did get libby a service dog named Bailey, he's very spoilt and he knows when something is wrong.
We looked at moving nearer to a hospital but Libby has always been a strong character and wanted to live her life the way she wanted too and we as family gave libby our full backing, Libby is looking at going in to health care and is looking forward to the future, thank you once again for all your lovely comments, much love karen and libby xx
Get her on to cut B1 D3 k2 and magnesium, B1, 500mg, D3, up to 10,000 IU, k2 200mcg and magnesium, take B1 with magnesium and take d3 with k2
I’m glad she is doing ok. I’ve had anaphylaxis a few times myself which is no fun at all. My first I was working as a paramedic at a festival or overtime. I felt short of breath and felt my tongue swelling. I was told it swelled to double the size. My co workers saved my life that day with emergency care. The other issue is when I get a certain IV medication for anemia. I have to have meds prior to try to not react to it. I would do 3 or 4 rounds of that drug every couple of weeks and usually 1 out of 4 I reacted to even with pre meds. It’s awful and scary. Glad she is doing well and they have this figured out.
Really happy she is doing well ☺️
Glad she's doing well!
I have the same condition so know this all to well
Poor thing, that has to be absolutely terrifying
Same, the poor little lass xx
I can’t imagine the amount of anxiety she goes through
Okay michelle
poor thing :( I really hope they get to the bottom of it and can find something to help.
From experience of anaphylaxis it’s one of the most terrifying things possible because there’s almost nothing you can do to stop it
Got to give a shout out to the school staff member - calm and clearly describing the situation when the paramedic arrived
The school staff are amazing I go their
Makes you realise how lucky we are that this stuff is free. Imagine if she was in the US 👀 that’d be some dollar to pay.
Becca biz is there no help with costs at all? What if you can’t afford the cost
No because she’d be taken to St. Jude and they are free.
In the US here. My hospital is one of the highest charging in the nation and we are in the midwest. A hospital ride alone is between 8-10k. With insurance, and I have "great" insurance it's about 4-5k. Quite sad really. Most people have to decide whether to die or go broke.
hauha now look at them, clapping and cheering on the nhs
Jason im not saying you are one but tori’s definitely got proven wrong
These are the things that go on when I’m not in school
DYLANCD 11 along with fights
Ikr
I was Ill one day and a girl in my pe class fainted and had a seizure
Albinya_009 I did that once and it’s terrible, so don’t wish that you were there just so that you can say that you seen it happen. It’s extremely embarrassing and not funny.
For toilet roll and hand sanitizer
Poor girl.... no frequent flyer miles for her. At least the different crews are aware, it’s probably turned into “oh bollocks, it’s Libby... best hurry”. The best thing is, the more they document things, the more information they can pass to the specialists. Chin up sweetie..... Britain’s best got ya covered 👍🏼
Bollocks I’ve not heard that in ages.
I'm just glad she isn't American because she would be millions in debt
@@Aj-me8mo she would be called a frequent flyer going to the hospital so much and not because of the helicopter ride
Bolloks i forget that british slang :>>
Poor girl. She would benefit from a service dog (if she’s not allergic) the dog would be a medical alert and response and allergen detection dog.
The dog could be trained to a detect different scents she’s allergic to, the dog could also wear a tag and alert other people when she’s in distress so she can go to school and leave her house alone.
Not a bad idea at all. Maybe she'll get one in the future.
Theoretically that would be good. But they mentioned it’s idiopathic which means they don’t know what the trigger was, and it sounds like she has a LOT of triggers, so while a service dog might not be a bad idea it might not be feasible.
Since they know she is allergic to some airborne issues, she's probably allergic to dog and cat fur. Even if she had a service dog like a poodle or yorkie (which are more hypoallergenic), their coats could still trap things like dust and pollen and expose her to them.
The poodles that I've met have all made my eyes red and my troat itch.
She needs a hairless dog. Or some of those hypoallergenic dogs like a Portuguese Water Dog i believe.
Bless her I know how she feels and it’s not nice. I suffered from idiopathic anaphylaxis and angiodema and was constantly in A&E. one day I was in twice! I was eventually diagnosed with urticarial vasculitis and now my condition is controlled much better.
Look up mast cell activation Syndrome
Silentgirl Tears, Idiopathic anaphylaxis doesn't exist. There's always a trigger- but allergists are quick to say "You can't get anaphylaxis from that...". 😂 And DEFINITELY look up MCAS...
Karen Neill they said mine was because of vasculitis. Nuv
I'm only allergic to a pain killer that you give for major pain (only found out last week because I had surgery and needed the pain killer) I started puking
@@samanthamoser6147 I was thinking MCAS too!
I feel for her. My 9 year old son has 10 allergies. And he has ended up at hospital more times then I can count. Each time is frightening and I nearly lost him once. Im sorry that Libby and her mum has to go through this.
I just found this program. I am glad Libby's family got her a service dog. They make all the difference.
I’ve only ever gone into one anaphylactic shock in my life, it was an allergy to a medication. I was in A&E in a cubicle as i’d been unwell, I didn’t know I was having one but my hands.. oooh, they were itching so bad. I’ve had eczema all my life & the itching I felt on my hands was a hundred times worse. I just kept scratching & scratching, & when I looked down my hands were four times the size they should be! I kept calling for a nurse who proceeded to tell me that they were busy with more serious patients.. I won’t ever forget that, I felt so frightened because I started feeling breathless. My mum walked into the cubicle 5 minutes later, took one look at my pale face, I showed her my hands & she shouted for a nurse who took one look at me & my tiny cubicle suddenly filled up with a doctor & 3 nurses. It takes over so quickly, that’s the frightening bit. My tongue was swollen, my airways were closing up so they put me on oxygen, they managed to get an IV in & gave me 2 shots of adrenaline over a period of 10 minutes.
I can’t imagine what this poor young girl must go through every week. I hope they find out what’s really wrong & can help her manage it to the best of her ability, bless her x
@@kim98677 yeah I used to intern at a hospital, sad to say that literally majority of the nurses weren't kind. I worked in the ICU at one point and there was an older gentleman in pretty serious condition. I happened to be outside his room and he started making this noise. He couldn't talk but I figured out he was telling me he couldn't breathe. I ran to get some nurses and they said oh him he's always lying. I'm thinking no I could see him turning blue. I go to some different nurses and they say oh we'll be there in a minute but never come I go back and the guy is becoming more panicked and I'm freaking out. So I go to look for a different group of nurses and they say the same thing. So my stubborn self literally walked across the ward to the cardiac recovery and got a nurse from there they come back with me and they figured out that the dudes breathing thing actually did come out and he wasn't lying. Then all of the nurses wanna act all suprised and like they actually care
I lost alot of respect for some of them. It's just crazy...never realized a nurse could care so little about their patient.
Beautiful leaves good on you for that, big respect
Laura Williams I’m so sorry that must have been real scary
Irish Eyes S/he didn’t say ‘all’ nurses, they were merely recounting a story from their own experience working with them. That’s not to say all nurses are terrible, but good nurses are becoming few & far between these days which shouldn’t be the case. A nurse SHOULD do all what you’ve mentioned, because that’s what being passionate about nursing is all about! You should care enough to want to fight for your patients, rather than having a non caring attitude. Some people say it’s because nurses are overworked & underpaid - which I won’t dispute, but pay shouldn’t be the driving force behind motivating someone to care for patients, you (generalising the ‘you’, not ‘you’ specifically!) should be in the job because of its caring profession. If you don’t love your job, don’t be in it, because Lawd knows I’ve left jobs I couldn’t stand & that deeply affected my mental wellbeing.
My mother was a carer & worked briefly on wards many years ago, & the nurses back then were very different to now because you had matrons. Uniforms were pressed & ironed, hats were worn, sheets on beds didn’t have a crease in them, all wheels turned inwards on beds, nurses cared because it was a life long commitment, it was their home from home, they trained hard on the job, no coffee or drinks or gossiping (which I’ve witnessed) at the desks.. it was all very strict but equally all very professional & the girls / boys were like siblings. Dynamics have changed, society has changed, our NHS is under a lot more strain, but I don’t believe it’s ever acceptable to take that out on those most vulnerable.
Having said all of the above.. thank you very much for your service & ongoing care for the community. I have, despite having met unpleasant nurses, equally met some absolutely amazing - salt of the earth - ones too, & individuals like you deserve so much more gratitude & appreciation that I know you don’t always receive. Please know that even if someone is speaking of poor experiences of nurses, it isn’t directly attacking you, but that maybe it’s highlighting changes need to occur somewhere along the line so that we can all have nurses like you. All the best x
I’ve had one of these reactions before, my whole face swelled up, I had rashes all over my body and I couldn’t breathe properly it was horrible, poor lass
Poor angel I hope they can find a cure for such a sweetheart. Prayers for you sweetheart.
This is when a wet towel won’t sort it
or a magic wipe
Comment made my day 😂😂😂😂😂😂
OliviaSidnell 😎
😂
Paper towel lol 😂
Why have we all just got this on our recommendation.
Ik right
I
Id
Idk
Id
I
this one is tame compared to the old lady with a *knife 4 inches deep into her eye socket*
@@courtneydawn5480 oh ummmmm ok
Algorithms
Hope they can find some way to help her 💕
I suffer with this. I know what she’s going through, really ain’t nice
hauha what do you mean exactly?
hauha can’t force everyone to stop eating or doing what they are doing cause someone MIGHT be allergic to something
hauha so you are saying that then. Regulate what people eat in confined spaces? What is with you lot? Stop telling people what they can and can’t do ffs. Fucking nanny shit
hauha he’s just mad because he can’t eat peanuts in confined spaces with someone deathly allergic to them.
@hauha you're advocating telling people what they can and can't eat because someone on the rare chance around you might be allergic to it. That's nanny shit my friend. And "watch This Morning". Nah I'd rather not have my brain melt with a shitty day time talk show
this happened at our school. the hospital is right next to us, though, like literally an alleyway separates school and hospital, so the paramedics got there fast
These paramedic crews are so so fantastic keep it up please helimed 98
I suffer from anxiety attacks and this made me tear up. I just feel sorry for her.
I know her and go to that school it’s really bad and she’s had multiple and I feel so sorry for her mum
This so sad 😞, really hope they can find something to help her. So scary for her and her family x
How upsetting, feel so bad she’s still a young one 🙁 really do hope they get to the bottom of it for her and her family
This sounds like what I have. I have mast cell activation syndrome. And I can go anyphylactic just randomly. The only triggers we know of is when my pain increases or trauma to my body and it can happen just randomly as well
Prayers sent out to her and her family💍🎀
I have the same condition. Diagnosed almost 5 years ago.
Everyone is talking about the paramedics but dont forget the pilot. He is under so much pressure to fly it fast to hospitals
Airbus know how to make helicopters. Wow! What a machine.
So glad Tony and Al and Sammy are back on
God bless her and her family
"It sounds like this person has probably had a reaction to whatever has caused it."
Feel bad for her. Hopefully she gets more certainty soon
Could MCAS or like me, EIA which can be triggered by something as simple as walking when the weather is too damp.
That's what they think I have mass cell activation syndrome exactly what popped in to my head while watching
That's gotta be hell if you live in England then especially the northern part
Yeah, I also have MCAS. I haven't had an anaphylaxis episode yet, but I know it is likely it will start at some point.
I forgot to look at the comments before commenting and this is what I was thinking because they said the reactions happen randomly.
I was thinking MCAS because it can cause heart problems and my friend is allergic to all foods. She is fed via nj tube but she is allergic to the normal formula and so she is on an experimental one.
I would live in a bubble that would be so scary. I couldn't imagine being 13/14 and having to have someone their while I use the bathroom.
Having disabilities that leave me at risk of falling, it is difficult having to have someone with you when you go out or when you take a shower, etc. But there are ways round not being alone when you pee or shower. You can have a panic button to press so you can have privacy in the bathroom, but still call for help if you can't shout. But it is frustrating & that's worse for teenagers who are just beginning to need their space more. I'm blessed that in our house, all I have to do is leave the bathroom door unlocked because our lounge is right next to the bathroom with the shower. Then my Mum will sit in the lounge while I shower.
I also have allergies, which have gotten worse over time. My cat allergy is the only one that affects my throat & makes it itch, but that could change at any time. My poor niece who's about to turn three has just been issued with her first epipen. We're hoping that she will be one of the majority of children who grow out of their allergies. Her worst allergy is eggs. She will throw up & get hives on the skin around her mouth. If she gets sick, her allergic reactions get more frequent & severe. During her last virus she even had an episode where her mouth started to feel weird. Poor little munchkin. Allergies are the worst.
Bless her
In Australia all those incidents and resources put together would cost about $62,000
Priority 1 ambulance =$800
Helicopter =$20,000
Her mom must be terrified every time she gets a call from school!
mum
I been to hospital from school after getting a nasty head injury which required rapid response, half the school was watching and most of the school was shut off due to the crowding. Not pleasent at all
TH Gaming Wales someone fell and hurt there back in my class and the teacher carried on teaching till she was told to stop from the ambulance
I have a complex neurological condition and last month at college I had ambulance called 4 times and was hospitalised 3 times from the 5th-12th so in literally one week, I’m online now until they have a better plan to deal with stuff, I know how it feels to be in and out of hospital every other day
Not sure if Libbys family reads the comments or not, but while my condition wasnt quite as severe, I did have constant allergic responses without any “direct cause”. (Allergy testing showed I was allergic to literally everything in the area so we weren’t sure which was the culprit.) I wound up moving 2000+ miles away to a different climate (desert) and have been gone over half a decade and have not had a SINGLE issue since moving (except for when we flew “home” to see my family). Im not a doctor but it’s possible there may be something in the area that’s simply unavoidable. For me a simple move was life changing. Hopefully whats causing the issue for this girl gets solved but if not that may be a hail mary thing to try (or prolonged vacation in another climate with different flora and fauna to see if the problem remains). Best of luck and I truly hope you get well soon Libby.
Sadly they don't x
thank you for your comment, we do read the comments, I am libby mum and she is doing great, I have put an update at the top, I hope your feeling better too.
I have her condition in America and what I wouldn’t give to have free healthcare like she has. An epipen is about $600 here. Sometimes folks with our conditions can go through 6+ in one episode. It’s unreal. I have $2.5 million in medical debt in the US despite never being uninsured a day in my life.
Buy from mexico or from other countries for cheap, ask them to courier it to you.
Who’s here in lockdown
Wonder is she’s been checked for mast cell activation syndrome? Causes allergic reactions to anything and everything
Thats my thought too.
i have absolutely no idea what you just said but I agree :D
HoneyCove Hive 🤣🤣🤣
Pineapples are Amazing that was funny? Im funny omg Im funny! Mom take a picture Im gonna be the biggest comdeian ever!!!!!!!!
HoneyCove Hive well it made me laugh 🤣
I didn’t realise anaphylactic‘s can cause a chest rash. I have add reaction in the past myself. They can be quite unpredictable in what Way there going to swing. To whether or not it’s mild to severe. That’s one lesson I’ve definitely have learnt with the reactions
why does she look like a completely different person each time lol
dior butterfly ikr 😂
Swelling maybe?
Probably the swelling slightly distorting her features.
Poor darling, very sad.
Xolair has helped me I had the same thing
we take being healthy for granted we’re so lucky
My best friend is allergic to all nuts, coconuts and most fruits :( i have almost triggered anaphylaxis multiple times because at the begining of our friendship i didnt know exactly what he was allergic to and would offer him foods that the minor ingredients are allergens for him and he would have minor reactions and stop eating or drinking whatever i gave him to check the ingredients and low and behold he would be allergic to something in it. It worries me so much sometimes and now I check the ingreedients on everything i share with him or eat around him.
i cant imagine what it must be like to live like this, I don't know if i'd want to continue if i was her
Groundhog Day for poor Libby bless her
I have this!!!! Wow her case is serious 😪
I have this and had an attack when I was 7. It was my first time and was rushed to the ICU in hospital. The doctors said I had seconds to love. Thank all the doctors. Btw I was allergic to red ants. Edit: it was my first time so we didn’t have an epipen.
Anyone saying they remembered are either liars or are exaggerating. The doctor explained that it is almost impossible to remember such a moment
Sounds like she may have some sort of MAST cell activation disorder which can cause random anaphylactic reactions
Poor girl...
I really need to go to the UK for a couple of months. I was diagnosed a couple of years ago with Histamine Intolerance. Ever since I left this doctor, no one says that its a real condition. I fo!!ow the diet, take the antihistamines and I'm fine. The only info there is, its from the UK.
This is exactly what I deal with, I have MCAS,POTS,hEDS
Heyyy! Zebras in the house! Hope you all are doing well! Love from the USA! I run a blog on EDS and chronic illness, feel free to give it a visit! Trying to build a community off my blog. www.edspaoutreach.com
Cassie N I’m in the us as well
@@Savannah200D Really?! DM me on here?
Cassie N it won’t let me dm hit me up on insta Lucia.savannah1
I also have hEDS and POTS (and possible MCAS but nothing diagnosed) but I'm really fortunate not to experience any serious symptoms. My heart goes out to everyone with these conditions and any other chronic illnesses
Definitely sounds like EDS with MCAS
What a HORRIBLE condition to endure! Constantly having to worry you're going to have a reaction to something must cause so much anxiety. :(
Poor girl! That must be awful for her and her mum
Poor girl 😢
What series and episode is this?
Anaphylaxis, I had it and spent a bit of time in hospital, I couldn't breathe for a few minutes and my heart almost stopped. Still here though but it's caused by consuming peanuts, this doesn't affect me anymore as I don't even eat them nor do I carry an EpiPen as I haven't had an allergic reaction in years.
I honestly thought it was Hannah Hart and molly Burke in the thumbnail 🤷🏼♀️
I wonder if she has mass cell activation syndrome. We suspect my best friend has that and this is the definition "Idiopathic Mast Cell Activation Syndrome. MCAS is a condition in which the patient experiences repeated episodes of the symptoms of anaphylaxis - allergic symptoms such as hives, swelling, low blood pressure, difficulty breathing and severe diarrhea."....I am also anaphylaxis to several things...it's scary
School nurse be like have some ice bro
It's a rare condition this day in age to read any good news on the newspaper page.
Suffered myself from anaphylaxis I spent six weeks in the hospital getting well is a very scary thing I can't imagine a child having it I now myself have the epipens I was on life support for a while then they put a trach in I was on a feeding tube
I feel so sorry for her that she has to live like this. But here's a question if they don't know what's causing her condition why can't they keep her in the hospital and run tests on her so they can find what's causing this
Because there are a billion things it could be. They can test for the common few thousand, ie peanuts or gluten or various medications or substances like the glue from a bandaid, but they can't test for the tens of thousands of specific pollens, tens of thousands of other airborn mites/bugs/chemicals/etc. At the worst end of the spectrum, kids like this do end up in hospital in hermatic rooms for the rest of their lives exactly due to this.
Can you believe there are people who see this girl and think "We make plenty but we need to charge MORE money for this device."
Does anyone know if the poor girl is still alive. Have they found out what happened
Poor girl :( I wonder if she has MCAS. It seems like that could be what’s going on. Not that that diagnosis would really help much, but it does seem to fit
She should go on a fast to see if the symptoms go away and slowly add back foods and see if anything triggers her and eliminate it from her diet. Food is often overlooked for things like this as well as autoimmune responses.
I hope this poor girl is feeling better , it must be awful for her during this pandemic more so than others , I remember a similar situation but worse at my old school , we were in pe and one of the students had injured herself very badly and was unresponsive and I recall everyone panicking , but I was able to remain calm and I pointed and shouted “ you run into the lockers get your phone and call 999” then to another kid “you go to reception and inform them” then I sprinted up to maths and grabbed my maths teacher and explained what happened coz I knew he used to be a medic in the military , then when me and him arrived back to the young girl I shouted at the rest of the kids saying “ give her some space the last thing she needs is 20kids going woah and crowding her”
Reading the comments made me realize just now that my bf had a mild anaphylactic shock to a type of pepper. I saw the pics and thought it was just hives but I remembered about his swollen upper lip :(
Omg I did a competition at that schoo
Want a medal 😂
@@JkMoon. I'm a irish dancer nobody messes with irish dancers 🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🤬🤬🤬🤬🤬🤬🤬🤬🤬🤬🤬🤬👊👊👊👊👊👊👊👊👊👊
@@chelseafc3796 😂 alr mush only a joke😂
Same what was your kill count
Lee Roff ooooohhhhh sorry bad man
What’s sad is one day that helimed team will get there and what we see here will be mild compared to what they arrive and see
Poor girl
How often do you fly over flamingo land
Poor girl :(
This would truly be the power of Crispr Cas9.... imagine prehenting this stuff by a few simple steps.
Me turning up the next day... What did I miss?
Cons: She has to live with severe allergic reactions for the rest of her life
Pros: She has a Frequent Flyer status with the air ambulance
I’m api pen user and what is really scary is the fact that no pharmacy have any in the uk and we’re being told to use our out of date epi pens
Epi pens hard to get aren't they for some
I had to use my out of date one recently, it was a year out of date, I used my new one and got worse and then had to use my spare which was out of date. Luckily I have managed to get replacements but it’s so scary!
Really frustrating that these Really programs are cut short, without any outcomes of most of the patients 👎🏻
"Dispatcher Al is scrambling HeliMed 99
Dispatcher Al: :)
I live in Scarboroughhhhh
Who wants to start a donation for this young lady?
oh wait... isn't it free in the UK? I live in America so this would be a lot of money
Why she was still allowed to leave the hospital at all?
I have the same condition and it’s horrible,, it’s not as extreme as hers but I know how she feels and it’s fucking sad
I go to this school and brifley know this girl
Also this happend quite a while ago but was aired previously
Ik her as she is my BFF and frightens me everytime
@@bethanyyvonnexx I know this lass really well, sorry who are you??
Sounds like mcas poor thing hope they work it out and help her!
I feel so bad for her. My own heart condition is incurable as is my lung condition, I know what its like knowing you have an incurable disease. But unlike her...We know what causes my issues
Oh I live near Scarborough
Why does she keep going to school if she’s that ill? She should be in hospital
Sounds quite like MCAS.
I think the family needs to move to the city. Seems like they live too far out for someone with high risk medical issue.
I love how everybody in the comments is suddenly Immunologists 😂 Like yeah sure hun, go get a degree in it and then come and talk to us lol
It seems as though something in the school environment is triggering these reactions. With endless kids and people walking around the school and surfaces constantly being touched, if she has a strong allergic reaction to something and she touches the same surface, it’ll cause the reaction. I don’t think it’s a case of her being allergic to everything, it’s an unknown allergy which isn’t being diagnosed and prevented sufficiently. Something in her typical daily routine is causing this to happen.
Have they looked into systemic masticytosis
poor girl, u can tell shes just thinking fml why me