Joe Hogan Talks About Living with Charcot-Marie-Tooth and How His Allard AFO Has Helped Him

Even though Joe Hogan now admits that his Allard AFO has been a good solution for his foot drop, it has taken him awhile to get to this point. Adjusting to Charcot-Marie-Tooth (CMT), foot drop, and an amputation has been a long journey.
In this interview Joe talks about his CMT, how it has affected him and what made him finally try an Allard AFO.
Joe's Story:
www.getbackupt...
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[@Elika808]

I was diagnosed with CMT1A back in 2019 when I was preparing for knee surgery. I am the first generation for CMT, as no one on either side of my family have it. I can relate to so much of what Joe is going through. Foot drop, loss of muscle in the legs. I also am experiencing progressive balance issues, tremors, weakening of the hands, etc. It is heartwarming to see others dealing with similar issues as I am with CMT, and how they deal with it. People who don't have CMT, just don't understand what we go through, so it's good to have others share their stories. Thank You Joe.

[@andypaulocelli109]

I agree with you...what's even worse is that you have doctors who say shit like, " well, just exercise more!"
Easy for them to say!

[@MrSteightment]

Great video I too have CMT and understand the feelings. I hope all is well

[@robertgarcia3872]

So great to know somebody else has the same thoughts as me so much that you said is exactly how I feel but acceptance is the key .I tried to hide my discomfort and ability all my life .

[@irishughes8517]

God bless you. Thank you for sharing your journey with CMT. I have CMT and the things others take for granted, we have to prepare for in advance for.
Oh to be spontaneous and jump out of bed bliss.

[@Hesam0000]

Joe, some of us wish we could walk like you.

[@jimmyhand1259]

I wish they could help me but my balance is gone. You walk better with 1 leg than I do with 2 legs.
After 3 pairs of plastic AFOs the orthotics gave up on me probably because I was too affected. I don't know. I have a great deal of pain.
I hope you continue doing as well as you are in this video.

[@chantalhill9268]

Joe- Is there a way to message you? My maiden name is Hogan and I have CMT as well. I know you mentioned this comes from your maternal side but I have a few questions if you don't mind? Thank you!

[@如伴]

I am also a patient of CMT, let’s cheer together！

[@kestraavalon]

Does Joe have social media? Similar story, lots of questions!

[@richardgerardi]

I was told I had it when I tried to join the military 40 years ago...I was formally diagnosed August of 2022. According to genetic testing it was not inherited but a mutation. Either way it sucks.

[@marijadulovic5720]

❤❤❤

[@ChristopherB711]

❤

[@abeabe9000]

I have the same I can’t grow my calf’s !! And walk funny

[@ronny1330]

It's just the beginning look for muscle loss in your palms

[@lshtar777]

Vaccine Injured?

[@amandareiche9083]

No🙂

[@emmystump9163]

Hereditary. My husband has it, and so does his grandfather. I suspect our kids have it as well.

[@abernathymonsoon4638]

🤣🤣🤣
nooooooooo

[@joannakozinska2077]

❤❤❤