Helios - CMT Bracing: Robin says her Balance and Gait feel Amazing

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  • Опубліковано 8 вер 2024
  • Robin shares her experience of wearing the Helios EI Braces. For more information about Helios Bracing go to heliosbracing.com
    The Helios® orthosis is a custom energy storing carbon fiber leg brace. The Helios® Excel is designed to correct skeletal structural deformities. This unique energy loading design offers the potential of normal walking. Because of its energy return in walking, it results in the user feeling less fatigue. Among the possible applications are the bracing for physical limitations resulting from Peroneal Neuropathy, CMT, Stroke, Cerebral Palsy, Polio, and many other neurological diseases.
    Charcot-Marie-Tooth disease (CMT) is one of the most common inherited neurological disorders, affecting approximately 1 in 2,500 people in the United States. The disease is named for the three physicians who first identified it in 1886 - Jean-Martin Charcot and Pierre Marie in Paris, France, and Howard Henry Tooth in Cambridge, England. CMT, also known as hereditary motor and sensory neuropathy (HMSN) or peroneal muscular atrophy, comprises a group of disorders that affect peripheral nerves. The peripheral nerves lie outside the brain and spinal cord and supply the muscles and sensory organs in the limbs. Disorders that affect the peripheral nerves are called peripheral neuropathies.
    Disclaimer: The views and opinions expressed in this video are those of the patient and do not necessarily reflect the official policy or position of Ortho Rehab Designs, Helios® Bracing or any other patients.

КОМЕНТАРІ • 38

  • @trudychastkavich2929
    @trudychastkavich2929 Рік тому +2

    I got my braces 2 weeks ago and they are great! Her comments are exactly how I feel too. It was so neat watching someone experiencing the exact same thing I experienced. I love them!

  • @ccampbell7214
    @ccampbell7214 Рік тому

    You are right most people can't understand... I understand 100% ... I too am afflicted with this disease..

  • @bbaker904baker7
    @bbaker904baker7 3 роки тому +2

    Let me give a statement on this. I have nerve impairment to my left leg and bad stenosis in my neck. I have been having multiple falls. I had a rigid ago for my left foot I rarely used like an idiot. Not only did my orthopedist and neurologist insist I wear my left brace, they had an identical one make for the right. Instantly my balance improved. No more knee buckle on stairs. It may be a little difficult to get comfortable wearing. Within a day no one could tell I wore them except on stairs. I found going up sideways was the best up and down

  • @zagstheklown187
    @zagstheklown187 3 роки тому +1

    Does Medicare cover these?

  • @fatmehzahraa
    @fatmehzahraa 5 років тому +3

    في منو ب لبنان؟؟؟؟؟ بليز حدى يجاوبني انا عندي هالمرض وبحاجة لهيك شي 😞

    • @ADIGAMAN
      @ADIGAMAN 3 роки тому +1

      في حكيني

    • @nadianadia9158
      @nadianadia9158 3 роки тому +1

      وانا كمان

    • @ahmedprance2707
      @ahmedprance2707 2 роки тому

      السلام عليكم انا متابع لهذا المرض منذ عدة اعوام
      لا يوجد علاج فقط العلاج الفيزيائي والمساند
      فيتامين E ياخذ على مدار العمر للحد من المرض الجيني اما هذة المساند تنفع للحالات الاوليه
      وكل حاله لها قالب خاص بها لذلك يستطيع مختص الاطراف الاصطناعيه ان يجهز لكم نموذج حسب قياس وقالب الاقدام او الايادي
      تكلفة هذه النماذج مرتفعه جدا وذو جهاز الضغط الهوائي مرتفع
      الله يعطيكم العافيه والصحه

  • @jimmyhand1259
    @jimmyhand1259 Рік тому

    My experience in the plastic AFO braces was not close to this good.
    I wish someone could help me.

  • @jaredfdk
    @jaredfdk 3 роки тому +1

    Hey hola soy de México tengo Charcot Marie tooth, me puede servir ?
    Dónde lo puedo localizar? Y que precio tienen ?

    • @SoyElBeto115
      @SoyElBeto115 3 роки тому +1

      Culero tener esto verdad XD
      PD: ya sabes dónde comprarlos? Jaja salu2

  • @IduKavyaLoka
    @IduKavyaLoka Рік тому

    Hiii my 2year baby having knee hiper extension rt now am using afo for him. Am not satisfied with is afo which I hv rt now. Wanted to know
    Is this available in India?

  • @athirag1018
    @athirag1018 2 роки тому +2

    Can I order one from india,kerala.please help me.

    • @athirag1018
      @athirag1018 2 роки тому +1

      I have this disease.how can overcome this condition 😪

    • @Heliosbracing
      @Heliosbracing  2 роки тому

      The Helios are custom made from a mold of a patient’s leg.

  • @nataliemartin8163
    @nataliemartin8163 4 роки тому +2

    Confirming that you need a brace for both legs even though one leg is affected?

    • @Heliosbracing
      @Heliosbracing  4 роки тому +2

      Not at all. If one leg is affected then you only need one brace.

    • @nataliemartin8163
      @nataliemartin8163 4 роки тому +1

      @@Heliosbracing thank you. What's the name of this brace? Can I get online or do I have to go thru insurance?

    • @Heliosbracing
      @Heliosbracing  4 роки тому +2

      Please contact us at 702-388-9909 for assistance.

    • @Heliosbracing
      @Heliosbracing  4 роки тому +2

      Or email us at info@heliosbracing.com

    • @NOVEMBER5TH2024
      @NOVEMBER5TH2024 9 місяців тому

      ​@@Heliosbracingdoes insurance pay for this?

  • @sampathpushpakumara1567
    @sampathpushpakumara1567 3 роки тому +1

    Pls help me how can I bye it

    • @Heliosbracing
      @Heliosbracing  3 роки тому

      Please contact us info@heliosbracing.com

  • @marlouiereyes6187
    @marlouiereyes6187 2 роки тому

    how can i order recover from stroke

  • @juniemoonuy1647
    @juniemoonuy1647 3 роки тому +1

    can i order one from the philippines

    • @Heliosbracing
      @Heliosbracing  3 роки тому

      Hello, the Helios is made from a custom mold of the patient’s leg.

  • @mrhabtiyassine3506
    @mrhabtiyassine3506 4 роки тому +1

    I need to order one . Do you have a distributeur in morocco ?

    • @Heliosbracing
      @Heliosbracing  4 роки тому +1

      I’m sorry but we are only in the USA.

  • @anjuma892
    @anjuma892 2 роки тому

    Problem with me pls help me

    • @Heliosbracing
      @Heliosbracing  2 роки тому

      Hello, how can we help you?

    • @anjuma892
      @anjuma892 2 роки тому

      This problem with me

    • @anjuma892
      @anjuma892 2 роки тому

      Enna panrathunu thereyala please🙏 help me

    • @Heliosbracing
      @Heliosbracing  2 роки тому

      @@anjuma892 please email us at info@heliosbracing.com

    • @anjuma892
      @anjuma892 2 роки тому

      Pls amount tell me