E14 - My Journey with Addison's Disease Carol McDonald
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- Опубліковано 4 жов 2022
- A must listen for EVERYONE. Carol does an amazing job describing adrenal insufficiency, shares her journey and her inspirational message at the end brings tears to my eyes.
This was originally recorded at the start of 2022 to share with Team Addison Canada.
A true inspiration and I am proud to call her a friend.
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The information from THE PICKLE JAR represents the experiences of the host Jill Battle and the individual experiences of each guest. No information is intended to provide or replace the medical advice of a medical professional. The host or guests are not liable for any negative consequences from any treatment, action, application or preparation, to any person following the information from the podcast.
The pickle juice inside the pickle jar, delicious and a life saver
I never was told the probability of my adrenals are 90 percent damaged if now especially my doctor started me on hydrocortisone. I’ve been diagnosed since 2019, and now has significantly gotten worse . You’ve given me knowledge to ask the right questions for answers . Thanks so much!
I hope this is helpful friend ❤️thank you for watching ❤️
Thank you for this video
Thank you for watching ❤️ Carol did a great video ❤️
My little boy has Addisons, recently diagnosed but I really needed this video, made me feel alot better today to watch your video and hear you talk about some people's accomplishments with the disease
Yes we can have normal lives...ups and downs for sure but with educating yourself and being prepared we can do anything. thank you for the comment
This gave me so much hope on a difficult day- thank you for sharing your story 🙏 ❤️
That is great...Carol is amazing..I am glad her story gave you hope. Be well friend...take care
I am not diagnosed yet. I have had one crisis in 2021 and I never want to go through that again. It was miss diagnosed at the time. However my general labs are wnl if I am not in a stressful situation, sick, or both and that is when all my symptoms hit. My question to you is do you think it is a good idea to wait to see a endocrinologist after I have been sick or in a stressful time where my labs will show the high eosinophils low sodium and high potassium? Pay cash to get my labs drawn. Then make my appt after I have proof.
Sounds like that might be a good idea...have they tested your blood ACTH levels as well? Such a scary roller coaster as the adrenal slowly deteriorate...bigs hugs friend...
Endocrinologists can takes 6 months to get in in the US- I think there is a shortage- retirement age hit for a lot of them and the new ones aren’t in place yet. So definitely make your appointment now if you can.
I started seeing a naturopath and acupuncturist through a school they have near me, and it has really helped me stabilize. I was diagnosed early- saw an endo for my thyroid and she narrowed in the Addison’s. So I am on hydrocortisone as needed, and I don’t have to take it much- I did for taking a flight recently and I am building up my fitness and weightlifting and am taking it as I add in days of intense exercise. So if you are early on, the naturopath/acupuncture might be helpful until you can get in to see the endo?
I can hardly find anything on people talking about their symptoms. I can't get Dr's to listen to me. The few I've seen I can relate. It's disturbing to go through things without knowing what it is and having Dr's say it's just in your head. How do I get them to test me?
wish I had the magic answer...just keep asking and asking. Try and get a ACTH blood test at least..it would be a start and it is easy to get
Thank you, I'm calling them right now to request that test.
I’m so sick I can’t get out of bed. Stress begets stress, and I have a bad hip, I need a hip replacement but I have diabetes, and the hydrocortisone makes my insulin not work, so I just don’t know what to do. My cortisol levels were at 3 when I got tested in the morning when it’s at its highest. It really feels hopeless to me, I don’t have Addisons disease but i think what we’re experiencing is very similar because in the end my adrenal gland just isn’t working. Maybe I’m wrong though? Anyone that has advice or any help for me I would be very grateful.
Hey there...how are you doing? Push for blood work especially ACTH blood tests and an endocrinologist if you haven't seen one. Keep fighting and listening to your body and instincts!
Where is the addisons community?
there are lots of fb groups and you can go on FB and find TEAM ADDISON CANADA...this is a group I run!
Thank you!