I have suffered for 15 years and never met anyone else with this condition. Nothing works except staying out of the sun. Sitting next to a window is also a problem. I live in Alabama so summers are impossible. I pray for a cure or a treatment that works!
Just been diagnosed as of today 5/09/23. I am 39 years old and I am very scared and confused. Need others to communicate with and relate. Prayers needed 🙏
Exactly same thing happened to me similar age... it is shocking at first, but as everything you end up adjusting. There is a FB group where you can ask questions etc. All the best in your journey
I have had a sun allergy for over fifty years. My family has seen what I go through when I have had sun exposure and they truly understand how it effects me. They protect me at all times with shade locations. Many acquaintances don’t understand how difficult it can be. I use an 50 or 60 spf sunblock when I must go out and this works. I have been a shade seeker all my life. I know no other way. I live in Canada and the summer is the most difficult for me.
Hi! i just became aware that after 36 years i am now also dealing with hives after 4 min in the sun. I feel like stress is what caused the change. I know that people get relief from pepcid ( an acid reducer here in the states ) . it inhibits h2 histamines that are from the gut. its interesting that it could be a gut based issue. i am set on figuring it all out. I will share my discoveries. :) godbless
I was diagnosed when I was 34. I've lived with this for 14 years. Sun through a window can cause a reaction. Sunscreen and antihistamine is useless. I can react despite clothing. I can have milder reactions with florescent lights. I get hives. My eyes can feel like they are on fire. (Similar to flash burn. When this happens I spend a day or two in the dark.) All it takes is about fifteen minutes of sun exposure to get things started. It always starts with a burning sensation. I have reactions even on cloudy days. I need more specialized sunglasses. Regular sunglasses are useless. I always fall asleep and typically feel unwell.
I too have SU. I have had it for over 10 years but was diagnosed last year when I was diagnosed with Lupus. I have never met anyone who gets that rash from the sun. My most recent rash was my sisters BBQ last week. I insisted that I wanted to sit inside and she said its not even that sunny. I paid for it before I even went home with at red itchy rash round my neck and a splitting headache all the next day. Factor 50 sunscreen did nothing. Its hard for other people to understand. I have hyperpigmentation too. My dermatologist has given me antihistamines. Good luck with yours :-)
I have solar urticaria too and it’s mainly on my face, ears, chest. It sucks really bad but I remember that I have a family and that I’m not the only one and that there is other people suffering worse than I am. I wish there was a cure too. I feel your pain. I didn’t grow up like this but I developed it somehow. Thank you for creating a video like this.
I can understand...I have a similar condition but not as severe. I am happy your husband is understandings and doesn't force you for outdoor activities. People here in France think I am some kind of a freak to avoid the sun and often get offended when I do not participate in outdoor activities.
Well..I have been having this issue for the past 3 years...and I live in Jamaica! Thanks God I work in office during the sun hours and if I have to go outside I drive instead of walking. Just a couple of minutes can get the skin exposed very itchy..red and swallen, sometimes the sun is not completely out and I still get it. I have experienced the synthoms in my face twice, which is very uncomfortable. Hopefully I will find a solution to this soon!
I'm so sorry you have to go through that. I never even heard of it. I hope you get through the rest of the summer without any more problems. Thanks for sharing.
Hi i am going through the same thing, this problem is messing up my life. Have you tried using peppermint oil under sunscreen or without to cool the burn feeling. i can't wear any sort of sun screen. i drink some peppermint oil cool my body and apply the watered down peppermint oil to by face. this might help. just to be comfortable.
Nobody believes me when I say this. I was recently diagnosed with it. I live in sunshine state of Florida and it can get bad. But I don’t think mine is as serious as others, thankfully.
I do have this problem for the past 4 years.. I am extremely sad... I am an engineer and a graduate student and i can't go out when the sun is bright. Im really finding it difficult to adjust with this disease..
Please try Kalmes!! www.skinshop.co.uk/kalme Out of the blue I started to suffer from this and it was agony! Just a few minutes outside and I looked as though I'd had boiling water poured on me!!! Felt like it as well. Kalmes instantly cooled and calmed my skin and within a few days I've barely had any redness caused my the sun.
I am also suffering from this from past 3 years... doctors asked me to try anti-histamines and that didnt work.. am living with sun screen, coverings ..
I've been struggling with this condition for 14 years now, and it's been incredibly challenging. My doctor mentioned it's quite rare. Moving to Finland from Sri Lanka with my family seemed like a fresh start, but summer in here also hard for me 😢
Has anyone else had this come on during/after pregnancy? 3 years ago when I was 25 this started and it has gotten severe. Antihistamines work a good bit, but tend to make me so insular and withdrawn. Sunscreen prior to exposure used to help but does not anymore 😢 Today (February, in the eastern US which is usually chilly) was so nice out at around 60 degrees and my son and I played outside on and off all day in mostly overcast weather and tonight I’m having one of the worst flare ups I’ve ever experienced. It didn’t even occur to me. I thought I was experiencing a stress response - then it dawned on me I was OUTSIDE today 😭😭😭 luckily I wore leggings so it’s only half of my body. I did an internet deep dive on relief and landed here. Any special tips for management are greatly appreciated
Hello! I know this video was posted 4 years ago but I have a boyfriend who has had sun allergy for all of his life and I want to give a little tip: It is possible to get vitamin D from the sun even if you’re just in the shadow outside, it just takes longer. That’s cause the needed radiation reflects on the walls etc, but not in a harmful amount. What doesn’t work though with this is being behind a window since the needed radiation is filtered out by the window. It can also be possible to get a very slight sunburn from being only in the shadow :) (not that that’s very important haha but it’s a fun fact) Hope this helps! Good luck!
KALMES! Sorry to shout but I too was allergic to the sun!!! Holy crap people just don't understand how bad it is. Just out of the blue all it would take was 5 minutes and my face would be red raw, swollen and burning hot! Sometimes the pain is so bad it made me cry and FFS even the tears on my skin burnt! Then I spotted an article about "Kalmes" which is marketed for Rosacea but actually, it's for all sorts of skin reactions. I used it not expecting anything but within minutes my skin was calmed down and not only that since then I've been able to go out in the sun. I've not had to use it for years but I still buy a new tube each year because I can sometimes feel the "sting" which is the warning sign that I'm about to suffer. I've gone from someone with a face swollen and red raw sore to someone who can walk in the sun.
@@candicecoombs9586 www.skinshop.co.uk/kalme You don't need a prescription. I know that it says it's for rosacea but it works on any inflamation. The Daily Mail keep on doing articles about it which is how I first heard of it and at that time I would have smeared anything on my face I was just struggling so much with the redness/swelling etc. Not had to use it for years now but I alway have a tube of it just in case as it's just a horrible condition to live with and I hope you find some relief by using it.
I've had my hands and eyes swell at times. Ugh. You're right. People don't understand how bad it can be. I even have to watch what type of lightbulbs I get.
If I’m out for longer than 10 to 15 minutes in the heat I start to feel like my chest is being squeezed & I cannot breathe,leaving me feeling nauseous and as if I ran a whole mile,my hands get swollen aswell, and today I broke out in hives all over my arms and upwards them aswell,been hurting all day and my arms feel heavy and bruised as if someone punched me,also been feeling like I am going to throw up and headaches,I really dislike this soo much,they first started when I was 15 years old,now I am 30, I probably won’t be going out as of now for about 2 weeks or until fall starts again…
I have the same condition; my doctor told me, "Turns out, you are a special snowflake" (ha ha). I treat summer like others treat winter: stay inside and stay covered. I get really anxious when I get hot because of the hives I experience on my feet, legs and arms, and like you I also can't tolerate most sunscreens. I have found decent luck with TULA sunscreen for the face, but so far that's been it. I know exactly how you feel!!!
I feel your pain it's miserable I'm having an issue the last few days was sitting in the car and the sun got me I'm now in terrible pain and the itching is driving me nuts I've got psoriasis too so my skin is an absolute nightmare right now on antihistamines and have been layering on the cream but it's just not helping I had to go out into the garden today to peg out the washing I was fully covered up it was 23 degrees outside my neighbors must think I'm a right freak . Moved as fast as I could today but as I was putting last item of clothing on the line I could my skin burning I had only been exposed for 5 mins it's a nightmare people don't understand my family call me the vampire it's really not funny tho being covered up in this heat is not fun while everyone is wearing cute little summer tops and shorts and I look like a weirdo trying to escape the sunlight hopping into the shade or keeping the curtains closed in the house roll on winter for me it's a bit of normality and I can actually go out during the day without getting burnt or having my eyes burn water and itch 😭
There's a thing I found last year that helps me out in the summer heat. (I also have SU) The fabric is called "ice silk," and what's helped me are the "cooling sleeves." I've found them at Walmart for both arms and legs. The fabric isn't just UV blocking -- it also cools you down. It seems to be a recent invention, though, as it can be a little hard to find. (If it says "moisture wicking" or "absorbent" - that's *probably* NOT it.)
I’ve been getting hives like rashes on my neck for months & a dermatologist in Tokyo told me it was solar urticaria. Maybe I should start wearing a scarf. 🤔
You poor thing! I'm a shade seeker due to really pale skin and sunscreen flares up my psorasis. I've taken to carrying a giant golf style umbrella when I know I have to be in the Aussie sun. I may look ridiculous, but at least I don't end up burning. I don't know if you've tried this, but thought I'd share my experience. Loving all your videos 😄 Big hugs from Oz 💗
Ive been diagnosed with solar urticaria too 2 years back and im from india ..my quality of life has become so worse ever since i got this.i remember the exact day i got SU ..it just started off on my legs first and then it progressed to ears,face and hands in the later weeks.
I recently developed this condition. In retrospect I’ve had small issues for a few years but I attributed to other allergens. I have no idea what to expect from it in the future. I recently took a round of antibiotics and it seems to have elevated mine to an anaphylactic level.
I get rash from sun! It’s getting worse every year! I was diagnosed with an autoimmune disease called undifferentiated connective tissue disease. Dermatomyositis is top of the 5 as of now. I believe it’s fully just Dermatomyositis. I’m being treated the same either way so it’s fine but I’m not getting better!
Thank you for the videoooo. I am so itchy, with blisters on my legs, after being in the sun. I thought I was going crazy. Imagine, living in Florida with a sun allergy. Smh, my life. 😆🤪
Hey I recently got diagnosed with solar urticaria so was looking up other’s experiences with it being diagnosed by the doctor. My symptoms started when I was 8 and there would be hives on my face with just a horrible itchy swollen red that wouldn’t go away for 5-10 days no matter what ointment/cream/aloe I put on my face. The symptoms get worse when I visit a humid and hot place like hawaii but for some reason my face manages to swell only in humidity as well(probably from the dryness). I’ve only suffered 8 years though 😅.
Hey guys, Im from India, I also suffering with this condition from past 9 years, It's really very embarrassing situation being in sunlight with full covered body, either it is trekking or picnic... I dont prefer to attend any wedding ceremony in mornings because I cant be there with full covered body like a mumy ghost😂 I gets redness, and then swelling after being in sun more than 5-10 minutes, it heals automatically in 30 to 60 mins, with no exposure in sunlight after got rashes on skin , I also use ice cubes to get relieve from itching Thogh I haven't got any permanent cure for it, I tried allopathy, homeopathy but none of them worked, now I started ayurveda treatment, let's see what happens 😎
@@payalbharadwaj8238 Hi.. I am from India. Suddenly one day I felt I am problem with sun rays. I am having this issue from past 3 years but not cured .. Hope I get some better medicine to get permanent cure. Are you getting benefits from ayurvedic medicine
@@ruchigupta9691 see, since ayurveda takes long time to cure any disease, It's just been 2 months I've started taking it, how can I tell you. But I will surely give you update about my experience with ayurveda. A lot of mental stress is the highest reason behind this condition, so let the bullshit things go to hell and do meditation, be positive since we are fighting with this situation dont get depressed, deal with it, And ha, never ever try allopathy please 🙏
You poor thing, I'm so sorry you have this, it must be so hard when it's Summer, but totally understand why you moved, it certainly is a lot less sunny in the UK then Aus. You've answered the question I wanted to know, about whether you were taking a D3 supplement, please make sure you take K2 with it though, as without it, the D3 puts the calcium that your going to absorb from your foods better, into all the wrong places. I took D3 for 10 years & never knew this. If you check out Dr Bergs videos on D3 & K2, he explains it all much better than me. Hope that helps. Thanks for sharing, & take care. ❤🙂🐶 Jusg looked & Dr Berg says that sun allergies can be due to a B3 deficiency, have you heard off that. You probably have, so ignore me. Lol. 🤗
I also have this! I discovered it about 3 years ago! I’ve been talking One Allegra every day since then but I still get break out with that. When I have a bad breakout I take a Benadryl as well as cooling down my body with ice pack and maybe a cold shower.
I’ve just been diagnosed with SU. My family is mostly Irish so my skin is already very pale. I’m going to be white as a ghost this fall... might be a good costume idea
Wow, watching those hives dissolve every day until they disappear is definitely appeasing, I went with what I commented about and after 20 or so days the urticaria’s history, I simply go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!
Well, this is not kat but cookie (maybe you know me from my channel) and I personally have a sun allergy, idk how its called anymore but its just a regularly sun allergy (ik that) and I got diagnosed with it 4 years and it sucks sometimes because last year in summer I got allergic reaction (btw I was in Greece) and I got it with having noticing it, I was mostly in the water and next thing ik is I got an allergic reaction when I got out of the water, my eyes became small and I just basically looked bad, so my mom got me in the hotel room and I showered and took medicine, I fell asleep and I woke up and I was completely fine
I have suffered for 15 years and never met anyone else with this condition. Nothing works except staying out of the sun. Sitting next to a window is also a problem. I live in Alabama so summers are impossible. I pray for a cure or a treatment that works!
Me too. I am itchy bumps red
Can you tell what is your blood type ?
@@deannaburge5279 Can you tell what is your blood type ?
@@petarpetrov777 o positive
I hope ur okay, I only came here because this disease seems interesting..
Just been diagnosed as of today 5/09/23. I am 39 years old and I am very scared and confused. Need others to communicate with and relate. Prayers needed 🙏
Exactly same thing happened to me similar age... it is shocking at first, but as everything you end up adjusting. There is a FB group where you can ask questions etc. All the best in your journey
I have had a sun allergy for over fifty years. My family has seen what I go through when I have had sun exposure and they truly understand how it effects me. They protect me at all times with shade locations. Many acquaintances don’t understand how difficult it can be. I use an 50 or 60 spf sunblock when I must go out and this works. I have been a shade seeker all my life. I know no other way. I live in Canada and the summer is the most difficult for me.
Hi! i just became aware that after 36 years i am now also dealing with hives after 4 min in the sun. I feel like stress is what caused the change. I know that people get relief from pepcid ( an acid reducer here in the states ) . it inhibits h2 histamines that are from the gut. its interesting that it could be a gut based issue. i am set on figuring it all out. I will share my discoveries. :) godbless
I was diagnosed when I was 34. I've lived with this for 14 years.
Sun through a window can cause a reaction. Sunscreen and antihistamine is useless. I can react despite clothing. I can have milder reactions with florescent lights.
I get hives. My eyes can feel like they are on fire. (Similar to flash burn. When this happens I spend a day or two in the dark.) All it takes is about fifteen minutes of sun exposure to get things started. It always starts with a burning sensation. I have reactions even on cloudy days.
I need more specialized sunglasses. Regular sunglasses are useless.
I always fall asleep and typically feel unwell.
So, can you please tell me how you've been cured from this?
I too have SU. I have had it for over 10 years but was diagnosed last year when I was diagnosed with Lupus. I have never met anyone who gets that rash from the sun. My most recent rash was my sisters BBQ last week. I insisted that I wanted to sit inside and she said its not even that sunny. I paid for it before I even went home with at red itchy rash round my neck and a splitting headache all the next day. Factor 50 sunscreen did nothing. Its hard for other people to understand. I have hyperpigmentation too. My dermatologist has given me antihistamines. Good luck with yours :-)
I have been living with this for 19 years. It's definitely hard to deal with and for people to understand.
It is
The worst part has to be when people don't understand u
24 years! Soo hard to enjoy day actvty
I have solar urticaria too and it’s mainly on my face, ears, chest. It sucks really bad but I remember that I have a family and that I’m not the only one and that there is other people suffering worse than I am. I wish there was a cure too. I feel your pain. I didn’t grow up like this but I developed it somehow. Thank you for creating a video like this.
I can understand...I have a similar condition but not as severe. I am happy your husband is understandings and doesn't force you for outdoor activities. People here in France think I am some kind of a freak to avoid the sun and often get offended when I do not participate in outdoor activities.
It's a rare allergy so it's hard to get people to understand.
Well..I have been having this issue for the past 3 years...and I live in Jamaica! Thanks God I work in office during the sun hours and if I have to go outside I drive instead of walking. Just a couple of minutes can get the skin exposed very itchy..red and swallen, sometimes the sun is not completely out and I still get it. I have experienced the synthoms in my face twice, which is very uncomfortable. Hopefully I will find a solution to this soon!
I live in Trinidad and I have been battling SU for yearsss...it can be frustrating...having an umbrella with you, helps a lot ...
I'm so sorry you have to go through that. I never even heard of it. I hope you get through the rest of the summer without any more problems. Thanks for sharing.
Thanks so much.
Hi i am going through the same thing, this problem is messing up my life. Have you tried using peppermint oil under sunscreen or without to cool the burn feeling. i can't wear any sort of sun screen. i drink some peppermint oil cool my body and apply the watered down peppermint oil to by face. this might help. just to be comfortable.
Also, I love your channel and your recipes but, disclosing this, I am empathetic, and supportive, for I am a “shade hopper” too!
Thanks so much.
Nobody believes me when I say this. I was recently diagnosed with it. I live in sunshine state of Florida and it can get bad. But I don’t think mine is as serious as others, thankfully.
I can feel the sun sort of burning me through my clothes. Even if I cover, it still gets me.
I do have this problem for the past 4 years.. I am extremely sad... I am an engineer and a graduate student and i can't go out when the sun is bright. Im really finding it difficult to adjust with this disease..
I do have the same problem
Please try Kalmes!! www.skinshop.co.uk/kalme Out of the blue I started to suffer from this and it was agony! Just a few minutes outside and I looked as though I'd had boiling water poured on me!!! Felt like it as well. Kalmes instantly cooled and calmed my skin and within a few days I've barely had any redness caused my the sun.
I am also suffering from this from past 3 years... doctors asked me to try anti-histamines and that didnt work.. am living with sun screen, coverings ..
Has anyone been to a functional medicine doctor ? To see what they say?
@@aravindkumar9367 oh is it I got to know from 10 years back r u taking any treatment
I've been struggling with this condition for 14 years now, and it's been incredibly challenging. My doctor mentioned it's quite rare. Moving to Finland from Sri Lanka with my family seemed like a fresh start, but summer in here also hard for me 😢
Has anyone else had this come on during/after pregnancy? 3 years ago when I was 25 this started and it has gotten severe. Antihistamines work a good bit, but tend to make me so insular and withdrawn. Sunscreen prior to exposure used to help but does not anymore 😢
Today (February, in the eastern US which is usually chilly) was so nice out at around 60 degrees and my son and I played outside on and off all day in mostly overcast weather and tonight I’m having one of the worst flare ups I’ve ever experienced. It didn’t even occur to me. I thought I was experiencing a stress response - then it dawned on me I was OUTSIDE today 😭😭😭 luckily I wore leggings so it’s only half of my body. I did an internet deep dive on relief and landed here.
Any special tips for management are greatly appreciated
Hello! I know this video was posted 4 years ago but I have a boyfriend who has had sun allergy for all of his life and I want to give a little tip:
It is possible to get vitamin D from the sun even if you’re just in the shadow outside, it just takes longer. That’s cause the needed radiation reflects on the walls etc, but not in a harmful amount. What doesn’t work though with this is being behind a window since the needed radiation is filtered out by the window.
It can also be possible to get a very slight sunburn from being only in the shadow :) (not that that’s very important haha but it’s a fun fact)
Hope this helps! Good luck!
KALMES! Sorry to shout but I too was allergic to the sun!!! Holy crap people just don't understand how bad it is. Just out of the blue all it would take was 5 minutes and my face would be red raw, swollen and burning hot! Sometimes the pain is so bad it made me cry and FFS even the tears on my skin burnt! Then I spotted an article about "Kalmes" which is marketed for Rosacea but actually, it's for all sorts of skin reactions. I used it not expecting anything but within minutes my skin was calmed down and not only that since then I've been able to go out in the sun. I've not had to use it for years but I still buy a new tube each year because I can sometimes feel the "sting" which is the warning sign that I'm about to suffer. I've gone from someone with a face swollen and red raw sore to someone who can walk in the sun.
So sorry that you’ve also experienced pain from the sun. I will definitely look into that cream, thank you so much!
Where did you purchase Kalmes. Is it prescription?
@@candicecoombs9586 www.skinshop.co.uk/kalme You don't need a prescription. I know that it says it's for rosacea but it works on any inflamation. The Daily Mail keep on doing articles about it which is how I first heard of it and at that time I would have smeared anything on my face I was just struggling so much with the redness/swelling etc. Not had to use it for years now but I alway have a tube of it just in case as it's just a horrible condition to live with and I hope you find some relief by using it.
I've had my hands and eyes swell at times. Ugh.
You're right. People don't understand how bad it can be. I even have to watch what type of lightbulbs I get.
If I’m out for longer than 10 to 15 minutes in the heat I start to feel like my chest is being squeezed & I cannot breathe,leaving me feeling nauseous and as if I ran a whole mile,my hands get swollen aswell, and today I broke out in hives all over my arms and upwards them aswell,been hurting all day and my arms feel heavy and bruised as if someone punched me,also been feeling like I am going to throw up and headaches,I really dislike this soo much,they first started when I was 15 years old,now I am 30, I probably won’t be going out as of now for about 2 weeks or until fall starts again…
I've been feeling like that for yeaaars
I have the same condition; my doctor told me, "Turns out, you are a special snowflake" (ha ha). I treat summer like others treat winter: stay inside and stay covered. I get really anxious when I get hot because of the hives I experience on my feet, legs and arms, and like you I also can't tolerate most sunscreens. I have found decent luck with TULA sunscreen for the face, but so far that's been it. I know exactly how you feel!!!
I also have solar urticaria, dealing with this from last 8 years, its so frustrating not being able to go out
I feel your pain it's miserable I'm having an issue the last few days was sitting in the car and the sun got me I'm now in terrible pain and the itching is driving me nuts I've got psoriasis too so my skin is an absolute nightmare right now on antihistamines and have been layering on the cream but it's just not helping I had to go out into the garden today to peg out the washing I was fully covered up it was 23 degrees outside my neighbors must think I'm a right freak . Moved as fast as I could today but as I was putting last item of clothing on the line I could my skin burning I had only been exposed for 5 mins it's a nightmare people don't understand my family call me the vampire it's really not funny tho being covered up in this heat is not fun while everyone is wearing cute little summer tops and shorts and I look like a weirdo trying to escape the sunlight hopping into the shade or keeping the curtains closed in the house roll on winter for me it's a bit of normality and I can actually go out during the day without getting burnt or having my eyes burn water and itch 😭
There's a thing I found last year that helps me out in the summer heat. (I also have SU) The fabric is called "ice silk," and what's helped me are the "cooling sleeves." I've found them at Walmart for both arms and legs. The fabric isn't just UV blocking -- it also cools you down. It seems to be a recent invention, though, as it can be a little hard to find. (If it says "moisture wicking" or "absorbent" - that's *probably* NOT it.)
I’ve been getting hives like rashes on my neck for months & a dermatologist in Tokyo told me it was solar urticaria.
Maybe I should start wearing a scarf. 🤔
You poor thing! I'm a shade seeker due to really pale skin and sunscreen flares up my psorasis. I've taken to carrying a giant golf style umbrella when I know I have to be in the Aussie sun. I may look ridiculous, but at least I don't end up burning. I don't know if you've tried this, but thought I'd share my experience. Loving all your videos 😄 Big hugs from Oz 💗
Thanks, sometimes I use an umbrella but should do more often!
Ive been diagnosed with solar urticaria too 2 years back and im from india ..my quality of life has become so worse ever since i got this.i remember the exact day i got SU ..it just started off on my legs first and then it progressed to ears,face and hands in the later weeks.
I recently developed this condition. In retrospect I’ve had small issues for a few years but I attributed to other allergens. I have no idea what to expect from it in the future. I recently took a round of antibiotics and it seems to have elevated mine to an anaphylactic level.
I deal with this also, its life changing and a challenge. Best wishes!
I get rash from sun! It’s getting worse every year! I was diagnosed with an autoimmune disease called undifferentiated connective tissue disease. Dermatomyositis is top of the 5 as of now. I believe it’s fully just Dermatomyositis. I’m being treated the same either way so it’s fine but I’m not getting better!
Thank you for the videoooo. I am so itchy, with blisters on my legs, after being in the sun. I thought I was going crazy. Imagine, living in Florida with a sun allergy. Smh, my life. 😆🤪
I have solar and heat urticaria. I can’t go out in the sun nor can I get overheated.
Thank God I am not only with this allergy
I sympathize with you, my little cousin was diagnosed with the same thing last year.
Thanks, yes, it’s not very pleasant, hope it’s not too severe for your cousin.
@@YummyInspirations we'll see how it goes this summer. Thus far she wears long sleeve, hats n sunscreen.
I live in South Louisiana and for days after a few minutes in the sun and it itches & it is miserable
Hey I recently got diagnosed with solar urticaria so was looking up other’s experiences with it being diagnosed by the doctor. My symptoms started when I was 8 and there would be hives on my face with just a horrible itchy swollen red that wouldn’t go away for 5-10 days no matter what ointment/cream/aloe I put on my face. The symptoms get worse when I visit a humid and hot place like hawaii but for some reason my face manages to swell only in humidity as well(probably from the dryness). I’ve only suffered 8 years though 😅.
Has it gone away for anyone??
I also have this. I been dealing with it for about 10 years now. I just want to wear a tank top and shorts in the summer 😢 I hate it
Sorry to hear about your condition, sounds so uncomfortable! I have hyperpigmentation so avoid the sun too ☹️
SAMEE
Hey guys, Im from India,
I also suffering with this condition from past 9 years,
It's really very embarrassing situation being in sunlight with full covered body, either it is trekking or picnic... I dont prefer to attend any wedding ceremony in mornings because I cant be there with full covered body like a mumy ghost😂 I gets redness, and then swelling after being in sun more than 5-10 minutes, it heals automatically in 30 to 60 mins, with no exposure in sunlight after got rashes on skin ,
I also use ice cubes to get relieve from itching
Thogh I haven't got any permanent cure for it,
I tried allopathy, homeopathy but none of them worked, now I started ayurveda treatment, let's see what happens
😎
Even I am suffering from this issue,. please let me know as well if any medicine can cure Solar Urticaria
@@ruchigupta9691 where are you from? Nd how you fell in this hell kind of situation?
@@payalbharadwaj8238 Hi.. I am from India. Suddenly one day I felt I am problem with sun rays. I am having this issue from past 3 years but not cured .. Hope I get some better medicine to get permanent cure. Are you getting benefits from ayurvedic medicine
@@ruchigupta9691 see, since ayurveda takes long time to cure any disease,
It's just been 2 months I've started taking it, how can I tell you.
But I will surely give you update about my experience with ayurveda.
A lot of mental stress is the highest reason behind this condition, so let the bullshit things go to hell and do meditation, be positive since we are fighting with this situation dont get depressed, deal with it,
And ha, never ever try allopathy please 🙏
@@ruchigupta9691 I have one question more, if you don't mind,
Have you ever had consumption of non eatable things??
You poor thing, I'm so sorry you have this, it must be so hard when it's Summer, but totally understand why you moved, it certainly is a lot less sunny in the UK then Aus.
You've answered the question I wanted to know, about whether you were taking a D3 supplement, please make sure you take K2 with it though, as without it, the D3 puts the calcium that your going to absorb from your foods better, into all the wrong places. I took D3 for 10 years & never knew this. If you check out Dr Bergs videos on D3 & K2, he explains it all much better than me. Hope that helps. Thanks for sharing, & take care. ❤🙂🐶
Jusg looked & Dr Berg says that sun allergies can be due to a B3 deficiency, have you heard off that. You probably have, so ignore me. Lol. 🤗
Thanks so much, I will look into that combination of vitamins and watch that video you mentioned. Thanks!
@@YummyInspirations Your welcome. Take care. 👍🤗❤🙂🐶
My mom just found out she has a mild case of this after being in the sun after 30 minutes
I use a cortisone cream to smooth it if I happen to get some sun
i get scalp itchy nd flaky after sun expose.I live in Australia
I also have this! I discovered it about 3 years ago! I’ve been talking One Allegra every day since then but I still get break out with that. When I have a bad breakout I take a Benadryl as well as cooling down my body with ice pack and maybe a cold shower.
I’ve just been diagnosed with SU. My family is mostly Irish so my skin is already very pale. I’m going to be white as a ghost this fall... might be a good costume idea
Hey, how you got cured by solar urticaria?? Can you please tell me, I m suffering this situation from past 7 years
Thanks for info
Awww move to Seattle its cloudy and rainy
Sounds perfect, it’s like that a lot too here in Ireland!
Interested!
I soooooo understand. 😐💕
Wow, watching those hives dissolve every day until they disappear is definitely appeasing, I went with what I commented about and after 20 or so days the urticaria’s history, I simply go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!
Well, this is not kat but cookie (maybe you know me from my channel) and I personally have a sun allergy, idk how its called anymore but its just a regularly sun allergy (ik that) and I got diagnosed with it 4 years and it sucks sometimes because last year in summer I got allergic reaction (btw I was in Greece) and I got it with having noticing it, I was mostly in the water and next thing ik is I got an allergic reaction when I got out of the water, my eyes became small and I just basically looked bad, so my mom got me in the hotel room and I showered and took medicine, I fell asleep and I woke up and I was completely fine
I have same problem long time
I have this as well
Iam also dealing with this allergy 😒so irritating