Allergic to the Sun (Xeroderma Pigmentosum)
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- Опубліковано 13 вер 2024
- Fatima Perez is allergic to the sun and supposed to remain inside at all times. She is diagnosed with Xeroderma Pigmentosum, a rare disorder resulting in the body's inability to repair cells damaged by the sun's rays.
This condition has taken Fatima's eyesight, but not her zest for life. She continues to celebrate each day while "shaking her bum bum."
![Camp Sundown: A Camp for Kids Allergic to Sunlight [The Big Idea]](http://i.ytimg.com/vi/l-uvqCd4wxU/mqdefault.jpg)
She may be allergic to the sun but she is a ray of sunshine!! I love her so much! This is one of my favourite videos on the channel! ❤️
Wonderfully put!
For sure! 🇧🇷
“She’s the same thing that’s killing her!!” 🤨
its not an allergy...it's a genetic disorder. "allergy to the sun" downplays the seriousness of it tbh.
I love her. I do not smile much . But she let me smile and I could not stop smiling.
This woman is so incredibly inspiring! I love her so much.🥰
Omg her confidence is everything she is awesome
I adore her dynamic personality and way of talking, she reminds me of my grandma!
She is absolutely amazing.
Aw man! I wish this interview was longer. Her happiness really is contagious, and I would watch for hours!
This video is a great motivator! I love revisiting it. Fatima is a joy! So much personality!
Dont know how i missed this one. This lady is great.
what a powerful powerful powerful women....Shes traveled through realms we can only dream of visiting one day
Fatima Perez is awesome!!
Thank you for this video. I really need to watch this at this particular point in my life. She’s such an beautiful inspiration.wow… thank you and God bless.
your smile and laughter is heart warming may father god always bless you
I love her so much! This personality is absolutely golden!!!! She’s awesome❤️
Fatima is WONDERFUL!! She is happier than anyone I know, she is a INSPIRATION and deserves all the happiness in the world. Love you, Fatima.
I've watched about a dozen of your videos in the past couple weeks. I find it so inspiring to see that these people that live with such debilitating conditions and experience agony I can't imagine, have nothing but positivity for life. If you ask me what I think of the world, I'll tell you it sucks and it's only going to get worse. These people with so much more to complain about will only tell you about the beauty and excitement of life. Shows you that strength and happiness can only come from within, no matter your circumstance.
She speaks very good english
She is incredible !
God Bless Fatima.
You are so inspiring and amazing Fatima ❤ I love your positive thoughts and attitude ♥ People could learn so much from you 😊
I thought my photosensitivity from SLE was bad, I feel like a whinger now. Thank you for your story. 💐💐
Also, it's like people forget you can go out at night. The night is beautiful!!
Especially in spring/summer and listening to the crickets and other nature sounds.
Hi everyone: It's so nice to see you all again on UA-cam. I want to meet you all one day. Take care and stay safe.
Got me a smile, amazing story
She’s amazing ! I want her positivity. Anyone know how this amazing women is
Felicitaciones Fátima !!!!!
Sigue así de positiva !!!!
Es es resiliencia pura !!!
Saludos desde Uruguay 🇺🇾.
I absolutely love Fatima Perez. You're joy is definitely contagious!
She's awesome!
Beautiful lady inside and out!
She’s exudes class and charm. I’d like to be her friend ❤
She exudes what everyone wants. She sees only the positives in her life and works around the not so positives. We all have that choice.
She's amazing
Wow. What an inspirational lady. Hello Fatima 👋🏻🙏🏻
Wonderful Fatima, she is an amazing happy person.
Fatima is a warrior! 💪🏼🙏🏼🙌🏼 Day at a time madam! Much love and respect to you! You are beautiful inside and out. ✨✨✨
May god be with Fatima and I’m sorry for what she went through.
Fatima's contagious happiness and joy is brighter than the sunlight. She is sunlight.
Can we have an update of Fatima Perez? PLEEEEEEEEEEEEEEEEEEEEASE!!!!! Make it a long video. Maybe in 2, 3 4 parts. She's just such full of incredibly and contagious happiness. She would be a fantastic inspiration for kids. Also to fate people are. Especially the brothers and sisters of young kids with special needs. They are just so proud of their brothers/sisters and fiercely protective and incredibly articulate, well spoken and wiser than really any kids should be. But in a very good way.
She is just like everyone else, we can't live a day without our electronics (computers, tablets or phones). I'd rather be in her situation with her struggles than be depressed and miserable. Fact!
Que Deus abençoe esta senhora
I love Fatima’s outlook on life!!! She seems like an absolute joy to be around and I would love to be her friend
Super positive :)
she is so COOL
i caught her happiness. I'm going to dance now.
I find you to be very beautiful & inspiring Fatima👍. Thank you for sharing your story, you are awesome
tu riesci a rimanere felice nonostante la malattia congratulazioni
God bless you Mam. Surely will pray for your fit health & fitness.✨💜💜💜💜💜💜💜💜💜💜💜💜💜💜✨
I want to know Fatima Perez!!!
True boss lady
Support!
Wow shes is wonderful
I’m inspired by her
God bless her ❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏
In Prayers 🙏 Bless you all and In Prayers daily and Love And Care and Concern always ❤️❤️❤️❤️❤️❤️❤️ Best wishes for Good health and Prosperity and Happiness 😊 ❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Farina IS the sunshine❤️😎
Poor happy go lucky woman
Out of sudden I remember her today. Wondering how she is doing...
My younger brother whenever he went out in the sunlight when he was younger sunblock or not he would get hives all over the back of his neck and head when he went out in the sun.
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Yes you're the gift you're amazing 🤩
Amen!!!
Jesús 🙏 Amén
she is so cool her accent is just like my doctor and she is so funny im not allergic to the sun very much but i have photosensitivity so i have some times burns by accident opps haha
❤❤❤❤❤❤❤❤❤❤❤❤❤👏👏👏👏❤
wow.
can't go outside at night?
❤❤❤❤
I think we found Dracula’s wife(saying this respectfully)
❤❤❤❤❤❤
No way Jose 😂❤
Poor thing she has to live in the darkness a lot like a vampire 🧛♂️ the sun is way to beautiful the sun for humans is good for you Atleast a little if we lived in darkness always we can get chemical imbalances in our body and get depressed
Ciaooo come va nn ci conosciamo io sono gabbriele ti mando un 🐞ti piace ok ti piace ballare ok sei troppo forte ciaoooo ti saluto
She's so happy that made me cry.