Rapid Klonopin Taper after 23 Years Causes Severe Neurological Damage

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  • Опубліковано 11 чер 2024
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КОМЕНТАРІ • 223

  • @TheAjmos
    @TheAjmos Місяць тому +122

    It’s hard not to think these doctors are garbage when they have not noticed this happening to people for the last 40 years or whatever.

    • @christophera-realone9834
      @christophera-realone9834 Місяць тому +20

      They have to make money to afford their Teslas. Also, they are highly invested with the time and money they put into their education. They have to make money at all costs and they don’t gaf

    • @christophera-realone9834
      @christophera-realone9834 Місяць тому +12

      The metal detectors at the entrances to any psychiatric facility isn’t in fear of people bringing anything to the patients. I know why they are screening for weapons

    • @christophera-realone9834
      @christophera-realone9834 Місяць тому +18

      It’s so obvious what’s going on and there’s nothing anyone can do about it. Save yourself if you can and stay out of the system

    • @afol4016
      @afol4016 Місяць тому +16

      They Noticed. You can be sure of that. The have had many Decades to "Notice." Like 5 or 6 Decades! They just don't Care about the immense Suffering.

    • @afol4016
      @afol4016 Місяць тому +2

      I know what you mean.

  • @phucyutoob6477
    @phucyutoob6477 Місяць тому +97

    Rule no. 1. NEVER trust doctors.

    • @Acetyl53
      @Acetyl53 Місяць тому +8

      The best predictor of thinking you need a doctor? Having been to one previously.

    • @user-sr4sk7vd9o
      @user-sr4sk7vd9o Місяць тому

      Right. They were educated by big pharm.

    • @Geoplanetjane
      @Geoplanetjane Місяць тому

      One must carefully vet all new doctors before allowing them to work with you. There are a very few major academic medical centers that can usually be trusted. But almost none of the local docs and hospitals have the knowledge, expertise, or qualifications to know much of anything. Bi know more than most of them. As for meds, you must have one doc managing all of your medications.

    • @user-lg9zb2ic2n
      @user-lg9zb2ic2n Місяць тому +4

      @@Geoplanetjane you must become your own doctor and figure out what to replace the meds with and learn how to get off the poisons

    • @ms.nunnayabizness9020
      @ms.nunnayabizness9020 26 днів тому

      First, do no harm. The fact that from the beginning, that was rule #1 certainly says something about the mindset of most Drs

  • @donnadaniel4448
    @donnadaniel4448 Місяць тому +44

    Do not trust doctors! My doctor put me on clonazepam for anxiety 4 years ago and then he retired and was replaced by a nurse practitioner who took me off clonazepam cold turkey no tapering off. I am 73 years old with high blood pressure and anxiety. I told her I would not be able to survive the withdrawals and it did not matter to her at all I will probably be dead soon. My doctor never told me it was addictive or that I would have withdrawals if I stopped. What happened to the saying do no harm? Please do not let any doctor prescribe benzos to you trust me it is not worth it.

    • @daryljohnston5154
      @daryljohnston5154 Місяць тому

      @@waspay9644 -Don't trust in those pills. The "good" effects wear off eventually and basically all that will remain are side effects and addiction. Then you'll hate the drug and still need it-stopping is torture. However, despite the fact you can't just quit cold turkey, you may get a quack in control of your life who will cut you off just like the lady who's comment you replied to.

    • @s.o.c.2669
      @s.o.c.2669 Місяць тому +1

      @donnadaniel4448 praying for you!

    • @mikeskel45
      @mikeskel45 Місяць тому +2

      You better get to a hospital asap. Depending what dose you were on and how long you can have seizures and possibly die.

    • @user-fn3tw7wp1z
      @user-fn3tw7wp1z Місяць тому +3

      How are you

  • @ajax700
    @ajax700 Місяць тому +65

    Who pays for these crimes against humanity?
    Who loses their "medic" license?
    Who does some time in jail for damaging a previously healthy person?
    Who will give some confort to these millions damaged by drugs?
    Who will believe us the reality of the Hell we live in?
    Who is going to love us?
    Who is going to make us some much needed company after living all this and being so hurt and angry after being abused just for asking help when depressed?
    People like the sacklers are free and rich, while we are trapped inside our disabled bodies.

    • @KanoaB123
      @KanoaB123 Місяць тому +8

      Exactly!

    • @trollsneedhugs
      @trollsneedhugs Місяць тому +5

      I'm disabled. Who will love us? Jesus Christ 🙏

    • @edie4321
      @edie4321 Місяць тому +2

      I'd sure like to know because they are going to pay, big time. Myself and my adult children who were forced on as kids, too. Plus, they're still doing it.

    • @user-sr4sk7vd9o
      @user-sr4sk7vd9o Місяць тому +2

      Yes, where are the doctors that are going to believe us or do they have to be one of the victims first!

    • @marianneellman1139
      @marianneellman1139 Місяць тому

      Ajax...so many are waking g up to the latest scam,how sad to trust a doctor.
      Only to feel the bottom of your world ripped out@!!@!!!!
      Some few people are running the show!
      Thet NEVER give us help, the care , the right to understand they had totally care....and we give in because we are totally exhausted 😢
      We trust the so called professional s!!!!!
      So,so,so much being done right as we speak.
      Please fight to change things for all affected 🙏...
      In the meantime, go search this information!!!
      Then we can demand professional care.
      Not with the level of the past@!@
      But...
      Ponder on it!
      And start looking and decide where you need support.
      And mature women are really celebrating their achievements ❤

  • @michaelk1589
    @michaelk1589 Місяць тому +65

    If people selling weed go to prison for 5 years for instance, docs pushing psych drugs without informing thorougly patient about the risks should go to prison for how long? I'd set the number of years by using mathematics: amount of pain people go throu benzo withdrawal divided by pain people go throu weed withdrawal... Damn, I see a triple digit there!

    • @afol4016
      @afol4016 Місяць тому +7

      50 years would be a minimal sentence. . Maybe by then they will decide to Stop Destroying their Patients' Lives and Futures! But Revoke Their Licenses and Sue Them before they go to Prison. Then they might get the message.

    • @judyposner6199
      @judyposner6199 Місяць тому +1

      what an interesting comparison!

    • @newsomesunlight7050
      @newsomesunlight7050 12 днів тому

      Connected up with
      big pharma & politicians, a way to dispose of many.
      How sad when you are a youbg resident, wanting to help people and all you will be doing is writing scripts, attacing more meds, treating some like they are lying to you, some like they are already forensic patients, so in 2 to 5 years, their own family goes through what the patient is going through.
      Cruel & unusual punishment vs. Talking problems out, after gettibg the patient calmed down in their thoughts.

    • @newsomesunlight7050
      @newsomesunlight7050 12 днів тому

      Very, very, very true, seeing a patient for 5 minutes, scripted them, out the door. If you need an override, a med that could help you be more
      functional, they treat the patient like they do not have a clue what you are requesting ir tell you, we cannot do that here, which is a lie!
      So many want to get well, but are taught, not to advocate for themselves or to get a psychologist to talk with to come uo with solutions!

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому +11

    My new psychiatrist argued me down and told me I was a liar and said I didn’t know what I was talking about because I’m not a doctor yesterday when I told her I was experiencing benzo withdrawal/protracted withdrawal 23 months later from being taken off klonopin in a matter of 5 days. She wagged her finger at me and rolled her neck saying I could come off klonopin and be fine in ONE day as long as I was supervised by a doctor and a team of nurses. I asked her then why am I still experiencing this 23 months later. She couldn’t answer me. I told her about the Ashton Manual. She played stupid. I’m so sick of these stupid doctors who don’t know ish about benzos, but claim they know everything just because they’re doctors.

  • @thehandliesthandle
    @thehandliesthandle Місяць тому +31

    its so crazy to me that any doctor would rapidly take someone off of a medication that is well known to cause sometimes fatal withdrawal symptoms, then they act like they don't know whats happening even though the information is a quick google search away. even if you survive, suddenly quitting causes brain damage via excitotoxicity and i don't know how fast things go back to normal once that happens, or if they go back to normal at all. both outcomes could be prevented by tapering, or letting the patient stay on it if they really want to

  • @sharonshea3261
    @sharonshea3261 Місяць тому +27

    These interviews are amazing. They should be watched by every person who prescribes these medications. They're the best information on the dangers, the damage they do, and the difficulties of withdrawal. I don't think the detox places understand that withdrawal from meds isn't like from alcohol.

  • @newsomesunlight7050
    @newsomesunlight7050 Місяць тому +11

    They've done this to my son, over & over & over.
    SHE IS TELLING THE EXACT TRUTH!!
    She has been so very brave.
    My son has been through so many drugs, it is insane, making him feel like he is the problem, all the time!
    At Nami, the parent group, we were told to call police & have him Baker Acted, so in one year, 40 times in one year, jail, that is, etc. Up , down medz of all kinds. It is a wonder he has a mind left! How insane is this!
    Tapered with him, because they were hurting him & not helping him. It was hard to watch these torcherous years!
    My son, with so many years of almost, every patient you have interviewed, my son has been through. This lady is telling all of the happenings that occur with many patients!

  • @thefuzzfactor2989
    @thefuzzfactor2989 Місяць тому +38

    What a wonderful interview with a wonderful lady. I really admire that Barbara is sticking to the group helping others. God bless you in the future. ❤

    • @erinseward
      @erinseward Місяць тому

      May I ask you if you know how to join Barbara's group please?

    • @TE-7302-
      @TE-7302- 18 днів тому

      @@erinsewardstay away from the groups unless you are in serious trouble. See a good benzo coach and try to live your life. The groups are probably helpful for severely protracted people. It sounds like this woman should NEVER been taken off. She was not a hypochondriac. Sadly, her final taper was not slow and she is not typical as she has underlying conditions. Tragic.

  • @newsomesunlight7050
    @newsomesunlight7050 Місяць тому +10

    The pain from the meds, your own family not believing, doctors, nurses not believing you, organizations telling you to lock up your relative, so bad!
    Teaching a patient, not to want help.
    Thank you so very much for telling your story.

  • @deadairconversion
    @deadairconversion Місяць тому +32

    It’s not a cure, but intermittent fasting and drastically improving my diet (including reducing sugar intake to almost zero) really helped get me through. It didn’t take the withdrawal away completely, but it helped calm my nervous system and digestive system. It also made me stronger so I wouldn’t be so physically devastated after a wave. It’s one thing to drug us openly, but we are drugged through food and we don’t even think twice.

    • @cynthiathomas5754
      @cynthiathomas5754 Місяць тому +9

      Our standard American Diet is devastating people as well as is " medical intervention ". I've made similar diet changes and am amazed at its positive impact.

    • @calyorganic4002
      @calyorganic4002 Місяць тому +5

      Me as well.

    • @edie4321
      @edie4321 Місяць тому +4

      That helped me alot too, but kratom saved my life.

    • @sunnyromano6862
      @sunnyromano6862 Місяць тому +3

      Amen

    • @sunnyromano6862
      @sunnyromano6862 Місяць тому +4

      Amen to that

  • @KanoaB123
    @KanoaB123 Місяць тому +22

    so sad to hear the story because I think there's so many of them out there that are similar where we've lost so much and people just don't understand. They really don't get what we've gone through and how hellish it is and how much we lose. Feel so sorry for the people going through it and I feel so sorry for the people that are around them that don't understand it that it's affecting

    • @nwicconsultants6640
      @nwicconsultants6640 Місяць тому

      Very compassionate statement....appreciate your thoughts. (Hope you still have Bradley in your life!) 🙏

  • @christianajones3312
    @christianajones3312 Місяць тому +18

    I can truly relate to your gratitude for being able to do the smallest things in life after being housebound for years!

  • @YourSpiritBeautywithCorinna
    @YourSpiritBeautywithCorinna Місяць тому +12

    While it’s still hell at times. I cannot Thank You Both enough for doing what you do for us. I am still here because of videos like this that acknowledge the nightmare is real 😢. 🙏🏼🙏🏼🙏🏼

  • @liferseventy-eight8328
    @liferseventy-eight8328 Місяць тому +12

    I can so relate to the neuropathic pain. I was in the emergency room and nobody was able to help me. So of course I get told that it is all "just in my head". I find it so hard to believe that none of these doctors have ever heard of the side effects of benzos. Anyways, thanks for your interview. Stay strong and hang on. It WILL get better. 😔

  • @amitabh15
    @amitabh15 29 днів тому +4

    Yep, it’s quick taper withdrawal akathisia (subjective). Akathisia occurs in the pre-frontal cortex, with high dopamine, from d2 blockade. Take the benzo off, the dopamine shoots up even more. Causing havoc with an uprising of negative emotions, anxiety/depression. Agoraphobia. Activates the limbic center, (amygdala), cause functional neurological symptoms. As the dopamine begins to level out, anxiety/depression go down. Positive memories resurface, traumatic ones begin to resolve. Eases back off the limbic center, the symptoms begin to go away. Agoraphobia begins to wither away. Takes time.

  • @Ycnan111
    @Ycnan111 Місяць тому +24

    You are beautiful and courageous 🫂
    Thank you for helping us. 🙏 I am so sorry. Keep shining your light Lovely Lady 💜

  • @jamesbeitia1353
    @jamesbeitia1353 Місяць тому +4

    I wish doctors would take time after they get off work and watch some of these videos. I tried to get my doctor to watch a short video and she refused.

  • @kmkeenan
    @kmkeenan Місяць тому +10

    I really relate to what she said about her mom. I had to move in with my mom for a few months in 2021 and things got pretty rough between us due to my symptoms. She died a few months later. It tears me apart knowing that she will never see me totally off the drugs and healed after all that she went through to support me for so many years.

    • @edie4321
      @edie4321 Місяць тому +2

      Of course she can. She's still right there with you, cheering you on. Death is the biggest lie. Just talk to her, and listen. Celebrate with her.

    • @kmkeenan
      @kmkeenan Місяць тому +2

      @edie4321 aw, thank you

    • @edie4321
      @edie4321 Місяць тому +1

      @@kmkeenan, Thank her, I'm just the messenger. Much Love

  • @alnicospeaker
    @alnicospeaker Місяць тому +9

    Ehlers-Danlos patients should be careful with anything that messes with GABA, including and especially alcohol

  • @babycakesweetiepie77
    @babycakesweetiepie77 Місяць тому +9

    The pain thing . This is happening. Doctors are no longer treating pain. Suicides in the pain community are sky high.

    • @davidkruse4030
      @davidkruse4030 Місяць тому

      They are treating pain but not with opioids as much.
      There still are some doctors that will but you have to really look for them.
      Prescriber check up

  • @Malagarules
    @Malagarules Місяць тому +9

    I've been taking klonopin for 20 years too, tried many medications and nothing, recently I was put on gabapentine but I had to quit due to the dizziness etc, then I tried amitriptiline which helped me sleep but I started feeling weird, dizzy etc I feel like my life is ruined

  • @user-sr4sk7vd9o
    @user-sr4sk7vd9o Місяць тому +5

    I know she understands. It is hellish and doctor's education or rather lack of education is harming all areas of our lives. Lost job, friends, get labelled with wrong diagnosis because of withdrawals. Then they want to give more drugs. Thank you for sharing. It scares the hell out of me wondering if it could be fixed. It is torcher!!

    • @user-sr4sk7vd9o
      @user-sr4sk7vd9o Місяць тому

      I had a doctor say to me " don't admire doctors, alot of them are addicts". I didn't admire doctors, but this one told the truth. That I admire.

  • @bobjary9382
    @bobjary9382 Місяць тому +7

    Two months with no sleep might sound incredible but take someones bzs away and its entirely possible .

  • @steph7960
    @steph7960 Місяць тому +5

    What an extraordinary woman. Wishing her the best for the future.

  • @calyorganic4002
    @calyorganic4002 Місяць тому +5

    Eric Berg has a channel on UA-cam that has helped me and thousands of others with natural methods and a holistic approach to human health for healing or at the least improving digestive and so many other problems. I can relate to having to rebuild and your pleasure in the small things in life like a walk in the park or being able to go to the grocery store. I wish you every good thing

  • @mfdoom9437
    @mfdoom9437 Місяць тому +4

    What a lovely, warm strong woman. All the best to her. I relate to getting a kick out of being able to do things that are considered boring to others.

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому +10

    I never hear ppl say any brain dysfunction like pressure, brain damage, brain burning that they deal with constantly. That’s all my torture is and it’s been non stop for 22 months.

    • @beatrizrosado898
      @beatrizrosado898 Місяць тому +1

      It is horrible!

    • @Carolina_girl86
      @Carolina_girl86 Місяць тому

      @@beatrizrosado898 do you have any of my symptoms?

    • @kevk741
      @kevk741 Місяць тому +5

      @@Carolina_girl86I want you to believe you are not the only one with symptoms like yours. I’ve been in the community and suffer unimaginably at 4 years off. I have chronic akathisia, dystonia, TD, extreme tinnitus, and all kinds of other tardive neurological madness. I nearly died every day my first 2 years off. It’s gotten better cognitively, but neurologically has been another story. Just don’t think you are “the only one” or you are somehow different. It’s true, we are all different. This is brain injury, but that has to do with how you heal, not what you have.

    • @Carolina_girl86
      @Carolina_girl86 Місяць тому +2

      @@kevk741 how do you live a normal life?

    • @cjw8817
      @cjw8817 3 дні тому

      I have head pressure and burning. The pressure makes me dizzy and off balance. The insomnia and agoraphobia is bad for me. The most horrid medications on the planet.

  • @afol4016
    @afol4016 Місяць тому +15

    ER SEVERAL Times for Me, Also!!! They All knew what was going on! All they had to do is look on our prescription History! But, instead, they alleged it was "a Return of our(your) original Condition." That happened because We Didn't Yet Know of The Horrors of those drugs! Now, we do!

    • @cynthiathomas5754
      @cynthiathomas5754 Місяць тому +3

      Being in " healthcare ", I have seen the list of drugs " frequent fliers " are given. Its outrageous as doctors keep adding more. I have lost respect for the system.

  • @krillr_prawn
    @krillr_prawn Місяць тому +3

    Great to hear Barbara's experience. Thank you. There was a lot in this interview. Spending long periods of time out of the world is super daunting when you re-enter. Being grateful for the function/ experiences you can have was a valuable teaching, I took away from this.

  • @donnashory4086
    @donnashory4086 Місяць тому +4

    My daughter has EDS and Mthfr gene mutations. She has started taking methyl folate, methylcobalimine b12, and P5P. It has helped her tremendously. Some research has suggested Methyl folate might actually cause collagen to rebuild. ❤️

  • @Q1776Q
    @Q1776Q Місяць тому +13

    It's so odd to me that people can be on these for so long and not have problems...my interdose withdrawals started after about 2 weeks of 1MG of Ativan per day.

    • @honeygirl-is4mv
      @honeygirl-is4mv Місяць тому +2

      Because Ativan has a much shorter half life than Klonopin or Valium- however I wonder too as most peoole reach tolerance (withdrawal) on Klonopin or Valium very soon....

  • @edie4321
    @edie4321 Місяць тому +7

    Cymbalta was my nightmare too. I went through what this poor woman has. Although, still disabled, kratom has greatly helped. Mother nature always has an answer. Too bad, Big Pharma has done their best to hide them all. Nature is the answer.

  • @user-fn3tw7wp1z
    @user-fn3tw7wp1z Місяць тому +2

    Happy for you thank you 2 years off still struggling

  • @afol4016
    @afol4016 Місяць тому +8

    They have had 60:YEARS TO "GET IT " THEY ALL KNOW WHAT THIS LOOKS LIKE! I TOO, WAS IN The ER SEVERAL TIMES. They pretend that "it's a Recurrence of your original problem." All they need do is Look at the Reckless Way you have Been Overprescribed these Immensely Dangerous Drugs! It is Very Easy To See! THEY ALL KNOW. THEY ARE LIARS. .

  • @victorial8764
    @victorial8764 Місяць тому +10

    I’m trying to sign up for the clinic in PA. So glad you are doing it here. 😊

    • @beannamated
      @beannamated Місяць тому

      What clinic is it? I must have missed that.

    • @victorial8764
      @victorial8764 Місяць тому

      @@beannamated He has a shorter video announcing it. It’s recent. ☺️

  • @MrSlimething
    @MrSlimething Місяць тому +4

    The physical pain was bad but nothing in comparison to the mental torture for me. I'm still having issues after stopping could turkey began on Dec 26 2019. Within 5 days i was in a near vegetative state, yet had severe anxiety, hallucinations nerve pain throughout the whole body and especially in my feet which still has tingling today. I was experiencing a complete reset of my brain and was very conscious of the digestive system going through its various processes. The doctors at the clinic did absolutely nothing. 30 days there then on March 13th 2020 went into the psych ward for 17 days partial hospital for 2 weeks I could not function, they put me on cymbalta it felt like I was in a constant fog I could not hardly walk etc, brain zaps insomnia sometimes go for a few hours of sleep a whole week I thought I was going insane.

  • @kristypucciarello4626
    @kristypucciarello4626 Місяць тому +4

    RULE- UNDER NO CIRCUMSTANCES DO YOU QUIT A BENZO COLD TURKEY NO MATTER WHAT THESE JACKOFF DOCTORS SAY.

  • @sdcanyoncarver2203
    @sdcanyoncarver2203 Місяць тому +15

    How ignorant can a doctor be for not realizing she was going through withdrawal that hole time. My god if anyone was to take any kind of a pill for 23 years straight, that person would have some side effects that a doctor would say to them selfs hay maybe there withdrawaling.

  • @unshadowedthoughtpodcast6896
    @unshadowedthoughtpodcast6896 Місяць тому +2

    Barb is the best, thank you for all that you have done and are doing. I have learned so much from you over the years, I cant thank you enough.

  • @YourSpiritBeautywithCorinna
    @YourSpiritBeautywithCorinna Місяць тому +3

    I could never Thank You Both enough 🙏🏼🙏🏼

  • @kathya1956
    @kathya1956 25 днів тому

    Wishing her all the best.

  • @tberybear8793
    @tberybear8793 Місяць тому +5

    Thank you both for sharing.

  • @DavidJones-ib3zy
    @DavidJones-ib3zy Місяць тому +8

    What Opiate Drugs did she take for years ? Or Sitll take ? I wonder why pain meds & there doses were Never mentioned in this interview . ?? I do hope she keeps getting better .

    • @babycakesweetiepie77
      @babycakesweetiepie77 Місяць тому

      I do not understand why there are not thousands of videos about how they are taking people in pain off high doses of opioids. People on these for decades. Rapid tapers . There are mass suicides happening in the pain community. No one seems to care.

  • @newsomesunlight7050
    @newsomesunlight7050 29 днів тому +1

    My most recent happening with lorazepam 2 mg & 20 mg olanzapam: my son's tongue is swollen, so he decides to get off of ALL his medication, due to his tongue swelling & I am very very concerned for him.
    He will be seeing a doctor for ear, nose, & throat, tomorrow.
    He talks to himself alot. I am so concerned for him.
    He does not want to go to the EMR.

  • @jenniferbryn
    @jenniferbryn Місяць тому +7

    what is the main reasoning behind tapering when things seem to be working..., why is there always an "in flux" feeling to prescriptions

    • @cjean49
      @cjean49 Місяць тому +1

      I'm somewhat confused by what you are saying. Are you meaning why come off the drug if it's working?

  • @34332juju
    @34332juju Місяць тому +7

    I noticed the interviewee would continue taking in quick sharp breaths through her nose....I do the same from tapering off Zyprexa....I am constantly sniffing....I believe it's repertory issues... wondering if it lessons over time.....let me know if it does....thanks

  • @sjanoski8878
    @sjanoski8878 3 дні тому

    I’m so very sorry.

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому +1

    I was rapidly taken off in 5 days because my doctor okayed me to be taken off because she wouldn’t take me off. My brain for the past 22 months feels like it’s swollen, pulsating, pressure and this is how I feel non stop 24/7 all day long. My eyes are severely dry and I stand a chance of losing my sight. My neurologist says it’s IIH but I’ve told them countless times this all began the very next day after I left a detox center sent to by my doctor. I’m asking my neurologist for a referral to Duke hospital here in NC.

  • @Waves353
    @Waves353 Місяць тому +6

    If Barb reading comments. Thanks so much for sharing your journey. I’m in Bwc and it’s good to hear your story. Am wondering how long off benzo, and off cymbalta (and how that wd impacted symptoms)

  • @cynthiathomas5754
    @cynthiathomas5754 Місяць тому +3

    Great interview. Thank you so much for putting yourself out there. You are helping many people!

    • @katsm-wo9704
      @katsm-wo9704 Місяць тому

      Yes you are really helping if not scaring me. I have been on for over 20 years and don’t even know what I am going to do going forward

  • @shan4145
    @shan4145 Місяць тому +2

    This was a phenomenal video! Thank you both! Love Shanda from 🇨🇦💁🏻‍♀️asian Chinese 💖🦋🫂👏

  • @JerseyLynne
    @JerseyLynne Місяць тому +7

    why take her off the medicine when it was working. She suffered so much as a result.

    • @laurieclark859
      @laurieclark859 Місяць тому +2

      That's what I was wondering. I didn't hear her mention problems while on it, but that the Dr didn't want to prescribe it. I'm not saying a pro or con to being on it. It's also not mentioned other meds she was on. I do know that it's very dangerous to take opiates and benzos together, so maybe that's the reason?

    • @suzieq2268
      @suzieq2268 Місяць тому +8

      Benzos are not intended for long term use. Your body becomes dependent upon the benzos. The benzos have lengthy bad side effects all on their own such as memory loss, bloating, diaherra, etc. Many doctors increase the dosage when you should really be trying alternatives to benzos. The higher the dosage and/or the longer someone is on benzos then the longer it will take to safely reduce the dosage (taper down).
      The biggest problem is that the patient doesn't know and many times the specialists too how difficult it is to recognize that Benzo withdrawal symptoms affect the central nervous system for years with bizarre and dangerous health symptoms.

    • @JerseyLynne
      @JerseyLynne Місяць тому +1

      I get anxiety attacks because of concussion injury. I take lorazepam which acts on the cause of the anxiety. It works like a miracle, I don't feel drugged, I feel normal. Meanwhile I have to live in a very intentional way to not cause stress, and must practice strict mental hygiene and focus on the many methods and therapies of healing.

  • @csimms1968
    @csimms1968 Місяць тому +2

    Drs really don't care to make us better. I absolutely don't trust anyone now.

  • @jouezmoi
    @jouezmoi Місяць тому +3

    One of my GPs absolutely refuses to prescribe them. My other doctor prescribes them. I have had no trouble using them and weaning off over the last 4 decades. But, the longest I have ever been on one was 9 mths, Klonopin. I weaned off in 4 weeks without a problem. I refuse Xanax and Ativan .. poison.

  • @TE-7302-
    @TE-7302- Місяць тому +1

    Why would they put someone on a muscle relaxer if they were hypermobile and dislocating joints? Sad story and a very brave woman.

  • @hauntedbearchild
    @hauntedbearchild Місяць тому +2

    I'm wondering why a patient is put on a sedative for a pain problem. They should have dealt with the pain issue and found a solution for that.

  • @mohammedislam866
    @mohammedislam866 Місяць тому +2

    Ive been permanently damaged by mirtazipine..

    • @Aem640
      @Aem640 Місяць тому

      How so my husband is in this for sleep

  • @Lymelady08
    @Lymelady08 21 день тому

    This is what terrifies me. I’ve been on 1mg of clonazapam for severe rls/ and after having a seizure after multiple drugs failed to work. I’ve had great relief and better quality of life. But the idea of a doctor change and being tapered to fast and having to go through withdrawal on top of the rls getting worse or another seizure scares me. I’ve got late stage Lyme disease too.

  • @iuliamariamoldovan8855
    @iuliamariamoldovan8855 Місяць тому

    Great work Dr. Josef! Do you have any experience with the medicine called Dostinex (with substance cabergoline) ? It is used for treating prolactinoma, but I am curious of its possible side effects for long term usage, in medium doses (for example 0.5 or 1 mg per week)

  • @suspackmedia
    @suspackmedia Місяць тому +2

    Have individuals tried to sue Roche Pharmaceuticals?

  • @edie4321
    @edie4321 Місяць тому +3

    It saddens me that kratom is being censored at stories like this. When this happened to me, kratom made it manageable, and if taken correctly is a miracle.

    • @dustygatrell-ru7tg
      @dustygatrell-ru7tg Місяць тому

      Really? Kratom makes my benzo symptoms way worse. Even at a low dose.

    • @edie4321
      @edie4321 Місяць тому

      @@dustygatrell-ru7tg , I didn't take it while taking these drugs, but after, for the withdrawal. Different color kratoms do different things. I take reds and golds.

    • @edie4321
      @edie4321 Місяць тому

      @@dustygatrell-ru7tg , Low doses of kratom work harder. With kratom, less is more. I did not take it while taking these drugs.

  • @melissaannesmiling
    @melissaannesmiling Місяць тому +1

    Is thrre a clinic in Arkansas that tapers the way you do .?

  • @Acetyl53
    @Acetyl53 Місяць тому +3

    I don't want this to come across wrong because I can imagine how it feels. However it needs to be said that these language patterns "they put me on [drug]", "they kept me on [drug]", "my meds", "my medicine", "my prescription", "my diagnosis", "I asked them to take me off [drug]". These never should have been allowed to come into existence to begin with. Life is not a group activity. I can't put it any other way... these were just suggestions that were met with consent. Language patterns like this are bizarre poison, they have to go and stay gone. Been saying this since I was a child, the adults would give me that look, people would snap at me, etc. No. That's the way it is, always has been. I find the attachment hard to understand so I'll jsut leave it there.

    • @cynthiathomas5754
      @cynthiathomas5754 Місяць тому +4

      I understand what you are saying, but remember we are social,tribal animals who's existence depends on others. Boundaries are hard to build when already physically disabled. She obviously has overcome great obstacles without support.

    • @Acetyl53
      @Acetyl53 Місяць тому +3

      @@cynthiathomas5754 I definitely don't intend to talk down or criticize her at all. This type of language is subtle but ultimately very damaging, even if it's only for communication through the commonly understood terms. They quietly subvert a person's sense of confidence.

    • @cynthiathomas5754
      @cynthiathomas5754 Місяць тому +4

      @@Acetyl53 Agreed. It is a process though. I have been cutting out this language myself. However, the abuse by " heathcare" is real. I work in the field and have seen alot.

  • @cebruthius
    @cebruthius Місяць тому +1

    Your sleep studies probably never ruled out UARS, it's possible that it's still a problem to this day. It's common for people with Ehlers-Danlos.

  • @user-lg9zb2ic2n
    @user-lg9zb2ic2n Місяць тому +1

    I want huge compensation for this hell they caused me. Huge!

    • @dustygatrell-ru7tg
      @dustygatrell-ru7tg Місяць тому +2

      I just want my brain back. They can keep there filthy money. Money can't take this torture away. But i get where your coming from tho.

    • @user-lg9zb2ic2n
      @user-lg9zb2ic2n Місяць тому +1

      @@dustygatrell-ru7tg there isn't enough money in the world to make up for what they did to me but they definitely owe me big time. I'm with ya

  • @patriciatimson1730
    @patriciatimson1730 Місяць тому +2

    LDN is great for the gut and pain!

    • @edie4321
      @edie4321 Місяць тому

      LDN??? I used kratom, that is miraculous, itself.

    • @patriciatimson1730
      @patriciatimson1730 Місяць тому

      @@edie4321 what is that please

    • @edie4321
      @edie4321 Місяць тому

      @@patriciatimson1730 , What is LDN??? Kratom is a powder from the leaves of a plant in the coffee family. It comes from Indonesia. It works for many things. It is not an opiate but works on it's receptors to relieve pain, when using the red variety. It is a miracle for helping people come off of opiates, while relieving their pain.
      It puts the pain management back in your hands. Remember, while researching, that the FDA hates it, as they can't patent it, and it works. Look for reputable sellers. I do not buy from gas stations, or shops. It saved my life when I ran from the plethora of drugs I had been put on for Fibromyalgia/advanced arthritis.
      I wish you the best, and if you get this reply, LDN, please?

    • @davidkruse4030
      @davidkruse4030 Місяць тому

      @@edie4321low dose naltrexone. I can confirm this as well

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому

    You said you weren’t able to walk or drive until they put you on another benzo? After how long were you off? I don’t even know if that will help me now to function at 22 months. I still have the benzo I was abruptly taken off of 22 months ago. My very brilliant doctor decided to put me back on them last year at the same dose but by then I was told by ppl in the benzo group that it wouldn’t help anymore.

  • @ljsc1265
    @ljsc1265 Місяць тому

    I am on klo*** ne and antidepressant Cym***ta. How do you know which pill is causing which symptoms. This is a very discomforting dilemma for me. I stop tapering benzo/klo until my Cym*** taper is complete. The benzo/klp help some symptoms lessen. Horrible state to be in, debilitating, I have similar symptoms to the guest. Vertigo, muscle stiffness, vision weakness, agoraphobia.

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому

    When you say everything went away when you went back on the medication, everything went away like what?

  • @malmala1879
    @malmala1879 Місяць тому +2

    What they do for money while they can't work?

  • @Carolina_girl86
    @Carolina_girl86 Місяць тому +1

    Is this considered neuron brain damage?

  • @Widda68
    @Widda68 19 днів тому

    Who is Bob?

  • @mandyvasseybryant4618
    @mandyvasseybryant4618 Місяць тому +1

    I am tapering K and Well. I am also on cym. how do I taper from capsules?

  • @hellboystein2926
    @hellboystein2926 Місяць тому

    I never did Benzos or Opiates neighter had a physical alcohol dependency, but I'm interested in the topic because I suspect that someone in my surrounding has such a problem. Seen on most other channels that
    Yes, benzo withdrawal is at least as difficult as alcohol or Opiat withdrawal but dependent on the duration and dose you did it can be done in a several weeks to few months taper and that the ''long therm' effects may also last for ~100-200days.
    Here you regular present even more severe cases where people have serious problems for ~2-3years. how common is that extrem pathway. ~1-2% of cases? or more like ~10% or even more?

    • @ajax700
      @ajax700 Місяць тому +1

      Read the Ashton manual for tapering Benzos.
      Best wishes.

  • @MercyGrace.JC7
    @MercyGrace.JC7 Місяць тому

    She taper off during 2017 and still doctor are unaware . Why I want to know why ???❓⁉️

  • @joelbuzbee1750
    @joelbuzbee1750 Місяць тому +1

    Can anyone tell me the difference in amptriptaline and benzodiazepines . I was put on that drug for anxiety but am now taking myself off it it.

    • @valeriefromoregon
      @valeriefromoregon Місяць тому +3

      It’s an antidepressant for depression and benzodiazepines are for anxiety.

    • @gethelp6271
      @gethelp6271 Місяць тому +5

      amitriptaline is an MAOI or similar to MAOI action which is serotonin oriented. The benzo is gaba oriented. Are you researching this beyond just asking a question here? This process thrives on knowledge and patience.

    • @joelbuzbee1750
      @joelbuzbee1750 Місяць тому

      @@gethelp6271just asking about side affects upon getting off of it as it sounds like coming off benzodiazepines is very difficult. Are they similar with withdrawal difficulties

    • @davidkruse4030
      @davidkruse4030 Місяць тому

      @@valeriefromoregontricyclic antidepressants are more than just for depression. They are used for anxiety as well as pain.
      Benzodiazepines are sedatives

  • @Kfuglif
    @Kfuglif Місяць тому

    AER Stanos. What is that? She was talking fast. Is this what she said?

  • @Jeremy-wy2qc
    @Jeremy-wy2qc Місяць тому +5

    I can realte to this I have ginally.accepted it after 5 years good luck everyone 😢❤

  • @TE-7302-
    @TE-7302- 29 днів тому

    Why didn’t she stay on the benzo? I know that’s unpopular, but to what end?

  • @teresapittmann3451
    @teresapittmann3451 Місяць тому +2

    People should try medical cannabis before they try these awful drugs first ! Tinctures & oils & creams work great !

  • @clsatc
    @clsatc Місяць тому

    Dr Josef - are there any antidepressants that are safe? Any reports of pssd with wellbutrin for instance?

    • @Acetyl53
      @Acetyl53 Місяць тому +3

      Nutrition, raw cacao in some cases. Eliminating environmental toxicity. Improving gut health.

  • @kmjansen
    @kmjansen Місяць тому

    Did she say what year she jumped?

    • @TE-7302-
      @TE-7302- 29 днів тому

      I think final was 2021

  • @michelebergman4336
    @michelebergman4336 Місяць тому +2

    HOW CAN WE SLL GET 💰💰💰💰COMPENSATED FOR HAVING OUR LIVES DESTROYED & LOSING 10 years OR MORE of OUR LIFES???

  • @MrDeamon1
    @MrDeamon1 Місяць тому

    I've heard of so many epidemics. Never a benzodiazepine epidemic.
    Too many people take these medications.

  • @Geoplanetjane
    @Geoplanetjane Місяць тому

    Her mom didn’t want her there.

    • @Geoplanetjane
      @Geoplanetjane Місяць тому

      There are definitely worse things than not making it. Eventually we all do die. I do get pissed off that my quality life has been prematurely truncated. But I am alive in not much pain and even though I am on a range of medications, I feel like they are well-balanced. I do not feel there is any need to go off anything I’m taking now. I am 77 years old. I have had several spinal injuries. Am not able to walk without a rollator because my sense of balance is not working any more. Do I imagine myself living very long from now? Not sure how that could work. I have not walked unaided, have not been on a bicycle for years now. I do not go shopping much at all, because I exhaust quite easily. Was diagnosed with spinal stenosis as the cause of my balance issues. So, I do not know what comes next. But am happy that my life is more stable than it’s been for years. So things definitely could be worse.

  • @letigre5822
    @letigre5822 Місяць тому

    Off topic: why did I know this woman was a professor before she said it. I work in sales and I’ve guessed many peoples careers before they tell me specifically teachers and nurses. But she was giving me professor vibes. Weird bc I was talking about this last week. Can someone tell me why? Maybe they make it apart of their identity.. and I’m reading that. I also can see peoples moon signs as well lol, I know this sounds crazy but people give off diff vibes depending on their base element earth fire air water. So I have a hunch first of which element.

  • @kevinkay7607
    @kevinkay7607 Місяць тому +20

    why cant doctors just let us take benzos when we need them, 31 years xanax for me, they could just make us sign a waivor that we understand the risk and let us live a normal life.

    • @GeraltOfRivia99
      @GeraltOfRivia99 Місяць тому +2

      thats not how it works for alot of people. most people take benzos and it screws them up. they are not good for the brain look at dr amens work with brain scans. taking benzos causes damage similar to alochol to the brain. i could sign any waver you come up with and i would still be scewed and fucked up and it only took me months of a daily prescription... these shouldnt be prescribed at all unless you are seizing or its a emergency type situation.

    • @jenniferbriggs3796
      @jenniferbriggs3796 Місяць тому +5

      Same here. I've been on then that long as well. I take them as directed.I have tried to taper myself off before. But I have such bad anxiety. And it is so painful to come off them. 😢😢

    • @gunterchain
      @gunterchain Місяць тому +14

      Because benzodiazepines are neurotoxic, have severe (possibly life threatening) withdrawals, are extremely addictive, etc. In my opinion its not ethical for a doctor to continue renewing a prescription for such a drug indefinitely, especially when used for anxiety. You're just masking symptoms of a non-life threatening disorder with a dangerous and toxic substance. The risk outweighs the reward.

    • @kevinkay7607
      @kevinkay7607 Місяць тому

      @@gunterchain I do agree with you, but it is soooooo hard.

    • @Hollyucinogen
      @Hollyucinogen Місяць тому +4

      ​@@gunterchainYeah, I agree. As a person with an anxiety disorder: the rewards don't outweigh the risks. I actually think that it would be extremely unethical for a doctor to do that. There have actually been people who passed away from benzodiazepine withdrawals.

  • @dizzysnakepilot
    @dizzysnakepilot Місяць тому +1

    nice lighting, but too much bass dude

  • @user-lt6vj4gq4l
    @user-lt6vj4gq4l Місяць тому +1

    Absolute disgrace ❕

  • @robertdavis1116
    @robertdavis1116 15 днів тому

    Seroquel SUCKS!

  • @user-dn6mb7qd6q
    @user-dn6mb7qd6q 13 днів тому

    Sorry u went thru this😞cold turkey iff Klonopin. N I have severe rib/ chest squeezing..nose ears n throat feel like theyre burning w acid ..Muscle jerks..shaking. severe vibrating that causes pain in ribs chest & upper back EXTREME air hunger n geel like suffocating every day😞😢 akathisia.. tortue!

  • @waspay9644
    @waspay9644 Місяць тому

    Fake news

  • @teresapittmann3451
    @teresapittmann3451 Місяць тому +1

    I take medical marijuana for pain & anxiety & depression it is wonder , I wish people would try it first !!!!!! I use oils & tinctures & creams & there are suppositories & pills ! Start at very low doses !

  • @afol4016
    @afol4016 Місяць тому +6

    They All Knew, Of Course. You see, if there's a Choice between a Patient's Health and Welfare, and Their Bank Account, It Will Always Be The Latter! Always.

  • @traceysundberg1940
    @traceysundberg1940 Місяць тому +6

    Mom and dad were on 33 pills..33! Some of which I'm sure we're for side affects for the first 15!

  • @markpilon744
    @markpilon744 Місяць тому +4

    I have the privilege of working along side this great woman at BWC. She is a true champion for our cause. Thanks for this Barb

  • @afol4016
    @afol4016 Місяць тому +3

    Because if it's a choice between the patient's welfare and health, and their Bank Account, they Will Always choose The Latter!