Thank you Dr. Bedlack and to your whole team for your work!! It does indeed bring hope and courage being part of the pALS community with all the information and support and opportunities to contribute. Your leadership is precious.
My heart already always went out to ALS sufferers, & then my brother aged 80 got late onset MND - ALS Bulbar. The anguish of watching him rapidly decline, a shell of himself, swallow & speech impairment, etc. a truly horrific scenario. What puzzles me is surely such late onset is rare? It’s the most vicious & cruel disease out there and as a family we are stunned & heartbroken for our dear family member. No treatment of any significance, terminal. WHAT ‘S BIG PHARMA DOING? Not much in terms of trials. Not a great money spinner for them. Shame on you.
Thank you Dr. Bedlack and to your whole team for your work!! It does indeed bring hope and courage being part of the pALS community with all the information and support and opportunities to contribute. Your leadership is precious.
I feel like the breakthrough in this disease is very close. Praise God. We must keep praying for these scientists, doctors!!!
Fantástico 🎉
I feel that I am a very good candidate for these programs mentioned. What is the process? Thank you kindly for more information.
Mrs. Richardson
My heart already always went out to ALS sufferers, & then my brother aged 80 got late onset MND - ALS Bulbar. The anguish of watching him rapidly decline, a shell of himself, swallow & speech impairment, etc. a truly horrific scenario. What puzzles me is surely such late onset is rare? It’s the most vicious & cruel disease out there and as a family we are stunned & heartbroken for our dear family member. No treatment of any significance, terminal. WHAT ‘S BIG PHARMA DOING? Not much in terms of trials. Not a great money spinner for them. Shame on you.
I have had bulbar ALS for 2 years and 9 months. Three minutes into video telling what you need, I received none. All iI got were lies. Virginia
I HAVE ALS!
What are the supplements that people with refersal are using?
contact me for your studies. i have ALS
PS: Covid vaccine connection???