Life-Changing Infusions for Morquio Type IV
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- Опубліковано 23 чер 2023
- Sarah Morrell has a rare genetic condition called Morquio type IV (mucopolysaccharidosis ) This means she is missing an enzyme that removes the toxins that build up in bones and joints Sarah’s life has changed due to a weekly infusion of an enzyme replacement drug called Vimizim. She now has more mobility, less pain and has been able to take on a job. Sarah works at Wanganui Hospital as a disability support coordinator for vaccination clinics
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my hubby had 2 people in his family with Morquio syndrome. His brother and his cousin, who both unfortunately passed away to the disease, his brother was 20 and his cousin 18. They both ended up in a wheel chair and it progressed over time. I love Sarah's optimism and I pray she loves a long and full life ❤ such an inspiration.
She is living life not just existing.
What a lovely young woman, an encourager, motivater, and strong!! So glad this dropped in my feed 💪🏾🇺🇸✔️
Wow! What a strong and independent young woman! ❤
What an extraordinary person! Proving that the word impossible really spells I’m possible
Love this!!
I have a special needs child. It's the hardest thing because you want to take all of their pain and struggles away. They're the bravest children. God bless this brave young lady.
Her outlook in life is so refreshing and lovely
so amazing to see a young person with morquio thriving, thank goodness for advances in medicine. a lovely young lady too and the work shes doing is such a worthy cause. i love this!
I love how fast you drive down the ramp from the front door. Thank you for sharing your story. I’m an infusion nurse in Oregon. I have not heard of your condition before. Again thank you.
What a lovely young woman! …with wonderful family and friends! I wonder if she’s ever considered opening an Etsy shop with her stickers? I purchase stickers, regularly, for my planner and would definitely purchase some of her art.
This young lady & her family really brightened my day. I wish Sarah all the best! 😊
Wow a amazing beautiful young lady . She is such a encouragement know matter who u are . God created a little bit of her for different people, her smile and laughter I just love 💕 how she can do this . Blessings to u sweetie. 😊
Such an inspiring young lady. Beautiful inside & out! 🥰🥰🥰
A great attitude do what you can with what you’ve got and go for it
I get an IV for my rheumatoid arthritis every 6 weeks that takes about 2 hours. I think I have been getting it for about 10+ years now and it has done wonders in my life. I can feel me going downhill the week before I am due for it. Then I get it and have to rest the next day then I am doing much better. I had been having flare-ups every week that lasted 2-3 days. Once I was on it, I lost track of the fact that while I might have a bad day, I wan't having flare-ups until out of the blue I had one. I had forgotton how bad they were. We don't have the same problems but boy those IVs sure do help and I am glad that you are having such a good effect from yours and that it allows you to work parttime. I had to quit working as a nurse 22 years ago I got so bad. Now at 68 I don't think I can't even think about trying to go out to work! Best wishes to you and I hope that you continue to get good relief.
Really, I LOVE Sarah a pray more healthy and long Life.
My daughter is MPS-IV-A live in Pakistan. Yesterday Birthday now 16 years old. facing very difficult time have FIT conditions twice a week this is very hard time unfortunately in Pakistan have no facilities and no treatment.
Sarah you are such an inspiration, I love your love of life.
Lovely young lady.
Praying for a healing amen
Thank you for sharing and educating us with such grace.
As amazing as always, the beautiful humans featured here on Attitude ❤
Very cool, I love it
Sarah you’re a wonderful and sassy young lady, I bet you’re an amazing friend to those around you. Sending much love from California ❤
I have enjoyed watching your video. Your so uplifting. Your an inspiration and hope for success. God bless you darling. Thank you for sharing your story 👏👏👏👏👏👏💐💐💐💐🥰🥰
You are lovely and I’m glad to have found you god bless you and your lovely family ❤️🙏🤗💕
Simply beautiful!! You n your friend ❤
Wonderful, amazing really!
❤so motivating!!!! ❤
beautiful
Happy birthday
Whoa
My daughter is diagnosed with MPS type 4. We are from India. Currently there is not enzyme replacement therapy here. Is there any way we could give her this treatment?
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