Natalie Blagowidow - OB-GYN and EDS-HSD

Natalie Blagowidow discusses “OB/GYN and Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorders” for the 2018 EDS Global Learning Conference in Baltimore. The slides used are available in PDF from bit.ly/2zzrcxn and more information from the conference at bit.ly/2018ConBaltimore

[@SimiSilver]

You have no discussion here about menopause. I’m wondering why I have had severe muscle loss. I have always worked out and just got diagnosed at age 55. I am a real go-getter having raised five children as a single mother and run my dental clinic for 18 years. The past two years I have turned into a piece of Jell-O. They tell me it is not EDS but they haven’t found any other reason. I was hoping you were going to talk about menopause

[@heatherpsyd]

I'm curious about the prevalence of heterotopic pregnancies in women with EDS (hypermobility). Also, is endometriosis and adenomyosis (in younger women) more common?

[@florabraswell-nm1re]

I noticed with the EDS topics, there is no talk about seniors with EDS that have been living with this syndrome all their lives every test and every talk about my symptoms l always was told your bloodwork is fine or maybe you are anxious and sent me to a counselor or psychiatrist now it is coming out about EDS still only few know about this my doctor said to me “ where did you get this information from ? I told him the internet and l didn’t get to tell him my story when he walked out the door!

[@TheEhlersDanlosSociety]

Hi Flora, we have a talk on aging here: ua-cam.com/video/yD9LJvRHMN8/v-deo.htmlsi=0iHonTxxo3GT0lRa